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Chronic Fatigue - Prozac


btdt

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Thank you btdt, I so appreciate you looking stuff up for me even though you aren't feeling well yourself.  It's over my head but if I their conclusion is right in your first reference it does look like there is some inflammatory response going on...Maybe that's why the herb seems to be working.

 

I hear you about googling too, I still feel there are answers too.  I for some reason never really listened when people said not to look stuff up.  I don't feel it sets me back much to do though like you feel it can be unpleasent.  I have found answers that way too though, plus in severe withdrawal I did know the drugs were the cause of my problems so I tended not to get stuck on ideas like I had a fatal illness.  I can see how people who aren't sure the drugs are to blame would find it scary or even counterproductive.  But for me that wasn't the case at all.

 

Also I looked at what you feel you might have.  That looks scary.  I hope you find your answers, I truly do as you have suffered more than your fair share.

It is the disease of the month... flavour of the wk... sort of deal as I have been thru this before with so many strange and varied symptoms I could write a book and likely have. 

If you were to read this link.

http://survivingantidepressants.org/index.php?/topic/7835-new-york-times-resident-psychiatry-writer-an-md-tosses-coin-to-choose-meds/

you will see how there are very many contradictory studies done... really there are and so much of it just sits where it was put and no one is ever told it is a bunch of crap so it is hard to say which research if valid when coming from a lay person perspective... some of the studies found fraudulent are still alive and being taught to doctors today as we speak if the story I am referencing is true... who the hell knows... it is complex for sure so don't buy everything you read... much of it may be contaminated by loot $$$$$$$$$$$$$$$$$ we just can't know for sure. 

I am glad you still looking no harm in learning a few things 

i wish you peace

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

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WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

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Thank you btdt, I so appreciate you looking stuff up for me even though you aren't feeling well yourself.  It's over my head but if I their conclusion is right in your first reference it does look like there is some inflammatory response going on...Maybe that's why the herb seems to be working.

 

I hear you about googling too, I still feel there are answers too.  I for some reason never really listened when people said not to look stuff up.  I don't feel it sets me back much to do though like you feel it can be unpleasent.  I have found answers that way too though, plus in severe withdrawal I did know the drugs were the cause of my problems so I tended not to get stuck on ideas like I had a fatal illness.  I can see how people who aren't sure the drugs are to blame would find it scary or even counterproductive.  But for me that wasn't the case at all.

 

Also I looked at what you feel you might have.  That looks scary.  I hope you find your answers, I truly do as you have suffered more than your fair share.

It is the disease of the month... flavour of the wk... sort of deal as I have been thru this before with so many strange and varied symptoms I could write a book and likely have. 

If you were to read this link.

http://survivingantidepressants.org/index.php?/topic/7835-new-york-times-resident-psychiatry-writer-an-md-tosses-coin-to-choose-meds/

you will see how there are very many contradictory studies done... really there are and so much of it just sits where it was put and no one is ever told it is a bunch of crap so it is hard to say which research if valid when coming from a lay person perspective... some of the studies found fraudulent are still alive and being taught to doctors today as we speak if the story I am referencing is true... who the hell knows... it is complex for sure so don't buy everything you read... much of it may be contaminated by loot $$$$$$$$$$$$$$$$$ we just can't know for sure. 

I am glad you still looking no harm in learning a few things 

i wish you peace

 

 

Well I had an answer to your post and then my computer shut down...argh.

 

Okay where was I...

I read the article  from the thread you linked to.  I am spaced out right now and also can't follow fine print easily like boring old man had in his retort, but before I got to his comments I had already assumed the NY Times article had problems as the part about Serzone and therapy being best for a subset of

"depressed" patients was a red flag for me...reason being, Serzone causes liver damage, and was removed from the market because it was killing people. So I had to wonder then if the authors of the study were connected to the drug manufacturer...I figured then there were going to be problems with that study.  Not at all surprised to find that was the case.

 

Also if you look up the other study mentioned in the NY Times (and if I got this right, I may not have) it sounds like they selected to research "depressed" people but didn't select out people who had been exposed to drugs.  They don't specifically say how many had been and I believe that is important. I am too out of it to read the whole thing but the results on their own then as far as I know may actually reflect iatrogenic problems and not something about "depression", you'd have to know how many were exposed to drugs.  If most were, then the results at minimum would need to be compared to studies where "depressed" people hadn't ever been exposed to drugs, and I don't know how often that has happened with recent research...

 

I believe I read somewhere that now  mostly they aren't often selecting for people who never took drugs, so results really may be reflecting changes that drugs caused. (When results are not being manipulated in other ways.)  I could be wrong about all of this as I am half asleep but that's what I think on no sleep... :)

 

Sleep or no basically I don't take studies on their face anymore, not usually anyway as I am too aware that drug company money or other issues can affect the results..I looked into a number of them early on in withdrawal and kept finding problems with them.  A favorite of mine was a study that claimed that people had had akathisia from a placebo...Meanwhile it's caused by drugs...I looked into that one, turned out they'd ripped people off other drugs abruptly before the study started so that some had withdrawal akathisia so on placebo they could be said to have it and thus it made the drug look more favorable by comparison,  it caused akathisia too but if I recall the difference wasn't statistically significant then.  Awful.

 

Anyway I am way off topic, sorry for that, I wish you peace too btdt, will get back to CF now...

 

 

 

 

 

 

..

I am not a medical professional and nothing I say is a medical opinion or meant to be medical advice, please seek a competent and trusted medical professional to consult for all medical decisions.

 

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Funny I was just going to mention B12.  I need to get mine tested. Thanks for the reminder. :)

 

Also low vit. D causes fatigue too, so that is another I need to get checked again. 

I am not a medical professional and nothing I say is a medical opinion or meant to be medical advice, please seek a competent and trusted medical professional to consult for all medical decisions.

 

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I have low D but can't tolerate the supplement.

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

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Something new to me.. not sure if it interests you or not..

I just got back from my doc got my blood work..among other things I have low sodium and low creatinine... I looked it up of course that is what I do.. :) always and found this about CFS

 http://forums.prohealth.com/forums/index.php?threads/low-creatinine-sodium-in-urine.205694/

 

In case you ever have this... 

This is just a small part of it

"In diabetes insipidus, the hypothalamus/pituitary do not put out enough of a hormone called antidiuretic hormone (also called arginine vasopressin). This hormone normally tells the kidney how much water to excrete into the urine. When the hormone secretion is low, it kidneys dump too much water into the urine. The results are that the urine has low concentrations of its usual constituents, including sodium and creatinine. 

Also, the amount of water in the blood is decreased, and that causes the blood to become more concentrated in electolytes, and also to have a lower total volume. The person has constant thirst, but even though they drink a lot of fluids, they cannot keep up with the water loss, so they have constant hypovolemia (low blood volume). This low blood volume causes a lower than normal venous return of blood to the heart, and consequently the cardiac output also goes down, because the heart can pump out only what it receives. 

The result of this is often orthostatic intolerance. That is, the person cannot stand up very long without feeling faint, or having their blood pressure drop too much (OH or orthostatic hypotension), or having their heart rate speed up too much (POTS or postural orthostatic tachycardia syndrome). Also, if they take a warm shower standing up, they tend to faint, because the heat will cause more of their blood flow to be directed to the skin to carry away the heat, and that leaves less for the brain."

 

 

I have often said at times it feels like my brain in not getting blood and the other day I read somebody else on here say they had low blood volume... not sure who or what the thought the cause was... as I can't recall squat today... if you happen to see that post pass this on please thanks. 

 

Just another day in the life... wishing you peace.

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

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after I posted that I realized I was wrong that it said urine and not blood dah I am so sorry if I am doing something misleading ... I just screwed up it was not on purpose... sorry... 

 

guess that changes everything...

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

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I have low D but can't tolerate the supplement.

 

How about food sources?

 

I eat salmon to try to get some.

 

However I'm getting concerned about the radiation level risk in it since that meltdown happened in Japan andt the fish usually comes from out west.

 

There are too many things to think about in recovery.

I am not a medical professional and nothing I say is a medical opinion or meant to be medical advice, please seek a competent and trusted medical professional to consult for all medical decisions.

 

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after I posted that I realized I was wrong that it said urine and not blood dah I am so sorry if I am doing something misleading ... I just screwed up it was not on purpose... sorry... 

 

guess that changes everything...

 

No worries. I didn't read it until after you posted this.

I am not a medical professional and nothing I say is a medical opinion or meant to be medical advice, please seek a competent and trusted medical professional to consult for all medical decisions.

 

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there is this book not sure it is any good but it might be

http://www.thyroiduk.org.uk/tuk/related_conditions/CFS-Sarah-Myhill.html

 

"Dr Sarah Myhill has treated over 5,000 patients with CFS since qualifying from Middlesex Hospital Medical School in 1981. She is now one of the leading authorities on Chronic Fatigue Syndrome (CFS) in the UK. As she emphasises, CFS is not a diagnosis but a clinical picture that has many causes, and her book, Diagnosis & Treatment of Chronic Fatigue Syndrome, looks at the underlying nutritional, biochemical, immunological, toxic, hormonal, and lifestyle mechanisms that cause the symptoms, collating many years of research and revealing that CFS is a result ofmitochondrial failure."

 

Could they be right?  I wonder...

"Dr Myhill clearly explains what mitochondria are, the importance of the job they do and how failure can arise. Their key role is to supply energy to every cell in our bodies in the form of a chemical compound called adenosine triphosphate (ATP). ATP is known as the 'universal currency of energy'; it is essential for all sorts of biochemical jobs, from muscle contraction to hormone production. When mitochondria fail this results in a poor supply of ATP (i.e. energy); consequently, cells go slow, which means that all bodily functions go slow. What is exciting, as the book describes, is the research conducted by Dr Myhill, with Dr John McLaren-Howard of Acumen Laboratory and Dr Norman Booth of Mansfield College Oxford, which supports an objective 'ATP Profile Test' that correlates with subjective experience of fatigue. This test can now measure the rate at which ATP is made and also looks at where the problem behind poor function lies." 

 

It is not like I am going to the UK to see them 

but I could read the book if I can afford it ever.. and have a brain to do it with.  I am counting my pennies now being even more frugal to get rent money to move.  

peace

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

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If you look at all this with a brain that works at a lower percentage than normal... imply implications from other things one has learned by living a life and take into account the symptoms lived with personally ... it would point to these drugs being the cause of auto immune disorders.  At least I think it could as I am describing myself and found myself looking at this one ...if it involved the gut and lungs I would say this is what I have today... based on my history and currant life. 

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2500254/

Now since we are always warned or were at pp not to let the health anxiety get the better of us and beware of googlitis as a further complication of wd... it is hard to say which it is today. 

Either while I wish to be in top form and seek answers I know my brain is not functioning well enough to actually do it and the affect it has on how I actually feel... while I don't truly think it damaging really not at this point it is in no way uplifting either... with all the googling I have done on disorders since this started I have a terrible unquenchable thirst for it.  So I know I will never be satisfied as I feel there is an answer even if they never let it out and never tell us... when I work my brain is good... I will always seek the answers. 

I hope you are well and thank you for sharing your experience.  I think there is a lot to be found yet.. we are only on the brink of the truth. 

I wish you peace. 

I think a link is missing 

but I found another one..

http://rheumatology.oxfordjournals.org/content/37/10/1077.full.pdf

about rats of course...

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

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Share on other sites

there is this book not sure it is any good but it might be

http://www.thyroiduk.org.uk/tuk/related_conditions/CFS-Sarah-Myhill.html

 

"Dr Sarah Myhill has treated over 5,000 patients with CFS since qualifying from Middlesex Hospital Medical School in 1981. She is now one of the leading authorities on Chronic Fatigue Syndrome (CFS) in the UK. As she emphasises, CFS is not a diagnosis but a clinical picture that has many causes, and her book, Diagnosis & Treatment of Chronic Fatigue Syndrome, looks at the underlying nutritional, biochemical, immunological, toxic, hormonal, and lifestyle mechanisms that cause the symptoms, collating many years of research and revealing that CFS is a result ofmitochondrial failure."

 

Could they be right?  I wonder...

"Dr Myhill clearly explains what mitochondria are, the importance of the job they do and how failure can arise. Their key role is to supply energy to every cell in our bodies in the form of a chemical compound called adenosine triphosphate (ATP). ATP is known as the 'universal currency of energy'; it is essential for all sorts of biochemical jobs, from muscle contraction to hormone production. When mitochondria fail this results in a poor supply of ATP (i.e. energy); consequently, cells go slow, which means that all bodily functions go slow. What is exciting, as the book describes, is the research conducted by Dr Myhill, with Dr John McLaren-Howard of Acumen Laboratory and Dr Norman Booth of Mansfield College Oxford, which supports an objective 'ATP Profile Test' that correlates with subjective experience of fatigue. This test can now measure the rate at which ATP is made and also looks at where the problem behind poor function lies." 

 

It is not like I am going to the UK to see them 

but I could read the book if I can afford it ever.. and have a brain to do it with.  I am counting my pennies now being even more frugal to get rent money to move.  

peace

 

Here you go btdt, you may be able to read it for free:

 

https://www.scribd.com/book/247158754/Diagnosis-and-Treatment-of-Chronic-Fatigue-Syndrome-it-s-mitochondria-not-hypochondria

 

The site scribd has a free month trial and people upload all kinds of books to it.

 

(It used to be free all the time, now costs $9 a month once the trial period expires.  Though I don't think there is an obligation to pay later if you try the free trial.  Not sure, I haven't tried it.)

I am not a medical professional and nothing I say is a medical opinion or meant to be medical advice, please seek a competent and trusted medical professional to consult for all medical decisions.

 

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there is this book not sure it is any good but it might be

http://www.thyroiduk.org.uk/tuk/related_conditions/CFS-Sarah-Myhill.html

 

"Dr Sarah Myhill has treated over 5,000 patients with CFS since qualifying from Middlesex Hospital Medical School in 1981. She is now one of the leading authorities on Chronic Fatigue Syndrome (CFS) in the UK. As she emphasises, CFS is not a diagnosis but a clinical picture that has many causes, and her book, Diagnosis & Treatment of Chronic Fatigue Syndrome, looks at the underlying nutritional, biochemical, immunological, toxic, hormonal, and lifestyle mechanisms that cause the symptoms, collating many years of research and revealing that CFS is a result ofmitochondrial failure."

 

Could they be right?  I wonder...

"Dr Myhill clearly explains what mitochondria are, the importance of the job they do and how failure can arise. Their key role is to supply energy to every cell in our bodies in the form of a chemical compound called adenosine triphosphate (ATP). ATP is known as the 'universal currency of energy'; it is essential for all sorts of biochemical jobs, from muscle contraction to hormone production. When mitochondria fail this results in a poor supply of ATP (i.e. energy); consequently, cells go slow, which means that all bodily functions go slow. What is exciting, as the book describes, is the research conducted by Dr Myhill, with Dr John McLaren-Howard of Acumen Laboratory and Dr Norman Booth of Mansfield College Oxford, which supports an objective 'ATP Profile Test' that correlates with subjective experience of fatigue. This test can now measure the rate at which ATP is made and also looks at where the problem behind poor function lies." 

 

It is not like I am going to the UK to see them 

but I could read the book if I can afford it ever.. and have a brain to do it with.  I am counting my pennies now being even more frugal to get rent money to move.  

peace

 

Here you go btdt, you may be able to read it for free:

 

https://www.scribd.com/book/247158754/Diagnosis-and-Treatment-of-Chronic-Fatigue-Syndrome-it-s-mitochondria-not-hypochondria

 

The site scribd has a free month trial and people upload all kinds of books to it.

 

(It used to be free all the time, now costs $9 a month once the trial period expires.  Though I don't think there is an obligation to pay later if you try the free trial.  Not sure, I haven't tried it.)

 

Thank you I hope it works for me... as I am clumsy at best when it comes to many computer things I will let you know :) THANKS!

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

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http://www.ncbi.nlm.nih.gov/pubmed/22251606


 


"


 contemporary investigations have revealed that depression is linked with inflammation, and that SSRI/SNRIs possess significant anti-inflammatory actions. While these anti-inflammatory properties initially only related to work undertaken on cells of the peripheral immune system, it has recently become apparent that these drugs also exert anti-inflammatory effects on microglia, the principal cells within the CNS that regulate and respond to inflammatory factors. "


 


So it would make sense for inflammation to increase after these drugs are stopped( I would suspect cold turkey to be worse than taper but don't know...) They do affect the peripheral immune system... since the immune system is poorly understood who know where we go from there. The affect on the CNS is even more interesting and compelling as we live with that fact daily in withdrawal. 

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

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same link

"Accordingly, the current study evaluated the ability of five different SSRIs (fluoxetine, sertraline, paroxetine, fluvoxamine and citalopram) and one SNRI (venlafaxine) to suppress microglial responses to an inflammatory stimulus. Specifically, we examined their ability to alter tumour necrosis factor-α (TNF-α) and nitric oxide (NO) production after 4 and 24 h stimulation with lipopolysaccharide. Our results indicated that the SSRIs potently inhibited microglial TNF-α and NO production. We then investigated whether these effects might involve either β-adrenoceptor or cAMP signalling. Using the protein kinase A inhibitor Rp-CAMPs, we found evidence to suggest that cAMP signalling is involved in regulating the anti-inflammatory response."

 

I read something about this the other day but it involved Calcium ... my mind boggles easily... I so miss my old brain... :(  more than I hate the pain I think

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

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Share on other sites

 

there is this book not sure it is any good but it might be

http://www.thyroiduk.org.uk/tuk/related_conditions/CFS-Sarah-Myhill.html

 

"Dr Sarah Myhill has treated over 5,000 patients with CFS since qualifying from Middlesex Hospital Medical School in 1981. She is now one of the leading authorities on Chronic Fatigue Syndrome (CFS) in the UK. As she emphasises, CFS is not a diagnosis but a clinical picture that has many causes, and her book, Diagnosis & Treatment of Chronic Fatigue Syndrome, looks at the underlying nutritional, biochemical, immunological, toxic, hormonal, and lifestyle mechanisms that cause the symptoms, collating many years of research and revealing that CFS is a result ofmitochondrial failure."

 

Could they be right?  I wonder...

"Dr Myhill clearly explains what mitochondria are, the importance of the job they do and how failure can arise. Their key role is to supply energy to every cell in our bodies in the form of a chemical compound called adenosine triphosphate (ATP). ATP is known as the 'universal currency of energy'; it is essential for all sorts of biochemical jobs, from muscle contraction to hormone production. When mitochondria fail this results in a poor supply of ATP (i.e. energy); consequently, cells go slow, which means that all bodily functions go slow. What is exciting, as the book describes, is the research conducted by Dr Myhill, with Dr John McLaren-Howard of Acumen Laboratory and Dr Norman Booth of Mansfield College Oxford, which supports an objective 'ATP Profile Test' that correlates with subjective experience of fatigue. This test can now measure the rate at which ATP is made and also looks at where the problem behind poor function lies." 

 

It is not like I am going to the UK to see them 

but I could read the book if I can afford it ever.. and have a brain to do it with.  I am counting my pennies now being even more frugal to get rent money to move.  

peace

 

Here you go btdt, you may be able to read it for free:

 

https://www.scribd.com/book/247158754/Diagnosis-and-Treatment-of-Chronic-Fatigue-Syndrome-it-s-mitochondria-not-hypochondria

 

The site scribd has a free month trial and people upload all kinds of books to it.

 

(It used to be free all the time, now costs $9 a month once the trial period expires.  Though I don't think there is an obligation to pay later if you try the free trial.  Not sure, I haven't tried it.)

 

I gave up all my credit cards a  long time ago when I woke up one day broke ...not knowing or understanding how it happened... I know it sound unbelievable but that is how it went down for me.  As soon as I realized what had happened I closed all access to credit as I thought it was bad enough being broke I did not want to have a ton of bills on top of that.  Being broke was bad enough truth is I still do not trust myself as I still have times where I slip away... so still no credit card.   I am sure after all this time without working getting credit again would be impossible I have not worked since 2006. 

 

When I went to the site they will only honor the free month after they have your credit card number or some other source of payment like pay pal.  

I appreciate your thinking of me. 

Thank You 

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

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I read something about this the other day but it involved Calcium ... my mind boggles easily... I so miss my old brain... :(  more than I hate the pain I think

I miss my old brain too, though I get peeks at it now and again. 

I am not a medical professional and nothing I say is a medical opinion or meant to be medical advice, please seek a competent and trusted medical professional to consult for all medical decisions.

 

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there is this book not sure it is any good but it might be

http://www.thyroiduk.org.uk/tuk/related_conditions/CFS-Sarah-Myhill.html

 

"Dr Sarah Myhill has treated over 5,000 patients with CFS since qualifying from Middlesex Hospital Medical School in 1981. She is now one of the leading authorities on Chronic Fatigue Syndrome (CFS) in the UK. As she emphasises, CFS is not a diagnosis but a clinical picture that has many causes, and her book, Diagnosis & Treatment of Chronic Fatigue Syndrome, looks at the underlying nutritional, biochemical, immunological, toxic, hormonal, and lifestyle mechanisms that cause the symptoms, collating many years of research and revealing that CFS is a result ofmitochondrial failure."

 

Could they be right?  I wonder...

"Dr Myhill clearly explains what mitochondria are, the importance of the job they do and how failure can arise. Their key role is to supply energy to every cell in our bodies in the form of a chemical compound called adenosine triphosphate (ATP). ATP is known as the 'universal currency of energy'; it is essential for all sorts of biochemical jobs, from muscle contraction to hormone production. When mitochondria fail this results in a poor supply of ATP (i.e. energy); consequently, cells go slow, which means that all bodily functions go slow. What is exciting, as the book describes, is the research conducted by Dr Myhill, with Dr John McLaren-Howard of Acumen Laboratory and Dr Norman Booth of Mansfield College Oxford, which supports an objective 'ATP Profile Test' that correlates with subjective experience of fatigue. This test can now measure the rate at which ATP is made and also looks at where the problem behind poor function lies." 

 

It is not like I am going to the UK to see them 

but I could read the book if I can afford it ever.. and have a brain to do it with.  I am counting my pennies now being even more frugal to get rent money to move.  

peace

 

Here you go btdt, you may be able to read it for free:

 

https://www.scribd.com/book/247158754/Diagnosis-and-Treatment-of-Chronic-Fatigue-Syndrome-it-s-mitochondria-not-hypochondria

 

The site scribd has a free month trial and people upload all kinds of books to it.

 

(It used to be free all the time, now costs $9 a month once the trial period expires.  Though I don't think there is an obligation to pay later if you try the free trial.  Not sure, I haven't tried it.)

 

I gave up all my credit cards a  long time ago when I woke up one day broke ...not knowing or understanding how it happened... I know it sound unbelievable but that is how it went down for me.  As soon as I realized what had happened I closed all access to credit as I thought it was bad enough being broke I did not want to have a ton of bills on top of that.  Being broke was bad enough truth is I still do not trust myself as I still have times where I slip away... so still no credit card.   I am sure after all this time without working getting credit again would be impossible I have not worked since 2006. 

 

When I went to the site they will only honor the free month after they have your credit card number or some other source of payment like pay pal.  

I appreciate your thinking of me. 

Thank You 

 

 

I don't blame you for getting rid of the cards under that circumstance I would have done the same thing.  I am sorry what they did to you with drugs, that you lost so much money, that it came to that.  Seems there's no aspect of a person's life they won't touch.

 

 I wish the site was easier to access, it used to be free all the time.  I was so out of it it didn't even occur to me half the time to even look stuff up there after I found it or I would likely have recommended it to you long ago when it was.  It'd be nice if something worked in our favor. 

 

Though you might poke around online there may be somewhere else it is free.  I occasionally find other sites with the odd free book I have wanted to read.  Can't hurt.   Hope it turns up somewhere. :)

 

Take care,

 

US

I am not a medical professional and nothing I say is a medical opinion or meant to be medical advice, please seek a competent and trusted medical professional to consult for all medical decisions.

 

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WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

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btdt, there's a story in the recovery section of someone who took one of these, ubiquinol.  I don't know a thing about it.

 

I'll see if I can find the link.

I am not a medical professional and nothing I say is a medical opinion or meant to be medical advice, please seek a competent and trusted medical professional to consult for all medical decisions.

 

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Okay it sounds like they had mixed results with it:

 

http://survivingantidepressants.org/index.php?/topic/7786-recovery-success/

I am not a medical professional and nothing I say is a medical opinion or meant to be medical advice, please seek a competent and trusted medical professional to consult for all medical decisions.

 

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In that recovery story they say that the GAPS diet helped with fatigue.  I may look into this since gut health is an issue for me too. 

I am not a medical professional and nothing I say is a medical opinion or meant to be medical advice, please seek a competent and trusted medical professional to consult for all medical decisions.

 

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I had good results with a diet before the accident had more energy and losts some weight ...need energy to get food cook to have a good diet... seems a catchh 22 somewhere in there... 

I had one kind of normal day this wk and today has been a very tired day.. I am thinking I am back to doing less and less again.  

bit more stupid than normal too making a lot of mistakes. 

I think diet is a good bet... a good start.

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

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I had good results with a diet before the accident had more energy and losts some weight ...need energy to get food cook to have a good diet... seems a catchh 22 somewhere in there... 

I had one kind of normal day this wk and today has been a very tired day.. I am thinking I am back to doing less and less again.  

bit more stupid than normal too making a lot of mistakes. 

I think diet is a good bet... a good start.

 

We so need someone to cook for us...A home delivery service with withdrawal-appropriate meals.

 

Yes I am delusional. :)

 

I looked over the GAPS diet and got tired just contemplating it, lol.  I am not sure I'll even be able to remember what I can and can't eat on it.  My experiments to fix fatigue thus far aren't doing that much, I feel a bit more mentally clear with that herb I mentioned and with vit. D but I'm not exactly running marathons yet...So back to the drawing board I guess.

 

What kind of diet did you do before the accident? 

 

I am sorry you are not doing as well today.  I am tired too.

I am not a medical professional and nothing I say is a medical opinion or meant to be medical advice, please seek a competent and trusted medical professional to consult for all medical decisions.

 

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No sugar no flour fist off... and I mean none.

 

Starch brown rice,  brown rice crackers and humus which I learned to love made my own from scratch. 

 

Tons of salads Kale... Kale in everything from morning eggs to soup at lunch home made of course.. to mixed in with meats ect salads of course it is not bad mixed with other sorts of lettuce.  Home made salad dressing olive oil cold pressed a must any acid you like pick a vinegar... bit of honey 1T max mustard to help if mix.. add any spice you like I am a big dill fan dill or oregano..

 

Home made soups this is what I mostly ate soup.  There is a green soup of parsley green beans ect anything green if you are sick it will help. 

 

Chicken soup... stock.. bones if you can get them ... wings if not... baked in the oven with onion celery carrot leaks garlic anise... let it go.. add water as needed in the winter I do it in the oven summer outside in a potluck electric pot. I put the stock in the fridge and let the fat harden and throw it all out ... fat and everything else. I know expensive really.  Keep the chicken if your using wings or thighs. 

 

To the stock whatever you like from the veggie family no white potato as it is a fast carb.. but sweet potato is fine.  I used a lot of sweet potato beets ect in my salads too just steam them and let them cool some.  

 

Add some bean if you like kidney is the only bean I like but lentils were a mainstay.. I also made a lentil soup... a lot of soups. 

 

Simple food steamed veggies with dill of course... usually had some dill. 

Salad with simple sort of meats chicken baked or fish ..or port loin .. any lean meat. 

 

I did not eat fruit except dried apricots for a treat or if I thought my potassium was low which showed up in jittery nerves. 

 

If I really wanted a fruit I would have it but mostly no ...if I had it fresh and well  washed is how it went.  

nuts of any sort a lot of nuts tho I find I cannot digest them now... 

 

Curry with coconut milk lots of flavour low fat. 

 

Turkey and chicken tacos on lettuce with guacamole.. cheese was allowed so was butter but only hard from the fridge butter.  Ryvita crackers with cheese..

 

Eggs every morning and I do not like eggs much I found I could hide the taste of them with curry... with the eggs Kale... which I like Kale was my reward for eating the eggs.

 

I also did juicing at this time .. the juicer is broken due to other folks careless handling 

 

I followed in part a diet from the book fatty liver ... 

used the lose-it program to track my food.

https://www.loseit.com/

 

Sought help from a family member who studied this :) who pointed out some things I might add to increase energy such as iodine from sea salt a specific kind I no longer recall... ;( 

 

I came together after awhile but it takes a lot of shopping a lot of cooking a lot of getting the car as veggies are heavy I don't have a car.. can't afford cabs.  

It also takes a body up to all that ... and being able to carry a lot of heavy food. 

 

Is that too much running on ...:)

peace 

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

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Share on other sites

No sugar no flour fist off... and I mean none.

 

Starch brown rice,  brown rice crackers and humus which I learned to love made my own from scratch. 

 

Tons of salads Kale... Kale in everything from morning eggs to soup at lunch home made of course.. to mixed in with meats ect salads of course it is not bad mixed with other sorts of lettuce.  Home made salad dressing olive oil cold pressed a must any acid you like pick a vinegar... bit of honey 1T max mustard to help if mix.. add any spice you like I am a big dill fan dill or oregano..

 

Home made soups this is what I mostly ate soup.  There is a green soup of parsley green beans ect anything green if you are sick it will help. 

 

Chicken soup... stock.. bones if you can get them ... wings if not... baked in the oven with onion celery carrot leaks garlic anise... let it go.. add water as needed in the winter I do it in the oven summer outside in a potluck electric pot. I put the stock in the fridge and let the fat harden and throw it all out ... fat and everything else. I know expensive really.  Keep the chicken if your using wings or thighs. 

 

To the stock whatever you like from the veggie family no white potato as it is a fast carb.. but sweet potato is fine.  I used a lot of sweet potato beets ect in my salads too just steam them and let them cool some.  

 

Add some bean if you like kidney is the only bean I like but lentils were a mainstay.. I also made a lentil soup... a lot of soups. 

 

Simple food steamed veggies with dill of course... usually had some dill. 

Salad with simple sort of meats chicken baked or fish ..or port loin .. any lean meat. 

 

I did not eat fruit except dried apricots for a treat or if I thought my potassium was low which showed up in jittery nerves. 

 

If I really wanted a fruit I would have it but mostly no ...if I had it fresh and well  washed is how it went.  

nuts of any sort a lot of nuts tho I find I cannot digest them now... 

 

Curry with coconut milk lots of flavour low fat. 

 

Turkey and chicken tacos on lettuce with guacamole.. cheese was allowed so was butter but only hard from the fridge butter.  Ryvita crackers with cheese..

 

Eggs every morning and I do not like eggs much I found I could hide the taste of them with curry... with the eggs Kale... which I like Kale was my reward for eating the eggs.

 

I also did juicing at this time .. the juicer is broken due to other folks careless handling 

 

I followed in part a diet from the book fatty liver ... 

used the lose-it program to track my food.

https://www.loseit.com/

 

Sought help from a family member who studied this :) who pointed out some things I might add to increase energy such as iodine from sea salt a specific kind I no longer recall... ;( 

 

I came together after awhile but it takes a lot of shopping a lot of cooking a lot of getting the car as veggies are heavy I don't have a car.. can't afford cabs.  

It also takes a body up to all that ... and being able to carry a lot of heavy food. 

 

Is that too much running on ... :)

peace 

 

Thanks btdt, no it's not too much running on..but your diet sounds so tasty it might be too much for me to read on an empty stomach, lol. :)   Actually part of it sounds very much like what I did in early withdrawal.  I did no sugar, and flour too.

I am not a medical professional and nothing I say is a medical opinion or meant to be medical advice, please seek a competent and trusted medical professional to consult for all medical decisions.

 

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I did this later on for quite a long time.. in early wd I did not cook much at all...boiled a few carrots heated up broth mostly. 

 

I need to find the gumption to get back to it.. maybe... I don't know if it would really help at this point my diet is not horrid still mostly decent just not great like it was... the first month I was on it I lost 20 pounds and a lot of inches... that was enough to keep me on track.. but that was the big push I guess not much after that. 

 

It seemed to just fall off me.. I could not believe it.. all back now PLUS as I have not been walking been sleeping mostly

reading on here.

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

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http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3069946/

Conclusions

MCAD comprises disorders affecting functions in potentially every organ system by abnormal release of mediators from and/or accumulation of genetically altered mast cells. There is evidence that MCAD is a disorder with considerable prevalence and thus should be considered routinely in the differential diagnosis of patients with chronic multisystem polymorbidity of unknown cause. In most cases of MCAD, diagnosis is possible by relatively non-invasive investigation. Effective therapy often consists simply of antihistamines and mast cell membrane-stabilising compounds supplemented with medications targeted at specific symptoms and complications.

Another new cause of cfs... 

  • Nickel JC, Tripp DA, Pontari MA, Moldwin RM, Mayer R, Carr LK, Doggweiler R, Yang CC, Whitcomb D, Mishra N, Nordling J. Phenotypic associations between interstitial cystitis/painfil bladder syndrome and irritable bowel syndrtome, fibromyalgia, chronis fatigue syndrome: a case control study. J Urology. 2009;181(Suppl):19. doi: 10.1016/S0022-5347(09)60067-7. [Cross Ref]

sure sounds like withdrawal to me maybe it all does at this point feeling lost... in pub med so many years here

 

Canadian site dealing with the issues

http://www.mastocytosis.ca/masto.html

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

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I did this later on for quite a long time.. in early wd I did not cook much at all...boiled a few carrots heated up broth mostly. 

 

I need to find the gumption to get back to it.. maybe... I don't know if it would really help at this point my diet is not horrid still mostly decent just not great like it was... the first month I was on it I lost 20 pounds and a lot of inches... that was enough to keep me on track.. but that was the big push I guess not much after that. 

 

It seemed to just fall off me.. I could not believe it.. all back now PLUS as I have not been walking been sleeping mostly

reading on here.

 

Sounds like  me I have been sleeping a lot although not well and at all the wrong hours, and reading here and not getting out, putting on weight.  The fatigue is such a problem.  I feel the cold so badly now too now this year, don't know why, but it's keeping me inside.  Maybe I need my thyroid checked.

I am not a medical professional and nothing I say is a medical opinion or meant to be medical advice, please seek a competent and trusted medical professional to consult for all medical decisions.

 

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Yes I just had my checked in a few months ago she said it was fine so was my B12 I asked for all the fatigue ideas to be checked she did it all find D is still low but not as low as it was so that is hopeful.  

I have thought of taking D but I don't think I can handle the anxiety right now. Cold sucks when your not well enough to go out and enjoy it like I once did.. but I have good memories of cold skiing fun in the snow.. it is not all bad it just seems that way when your not up to it.  I miss the fun. 

peace

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

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Yes I just had my checked in a few months ago she said it was fine so was my B12 I asked for all the fatigue ideas to be checked she did it all find D is still low but not as low as it was so that is hopeful.  

I have thought of taking D but I don't think I can handle the anxiety right now. Cold sucks when your not well enough to go out and enjoy it like I once did.. but I have good memories of cold skiing fun in the snow.. it is not all bad it just seems that way when your not up to it.  I miss the fun. 

peace

 

I miss the fun too, years ago I used to ski too.

 

It's good to hear the vit. D is coming up, maybe when summer comes you can get it up even more. 

 

I think what I am trying to say is we deserve a prescription that involves lying on the beach.  I mean if you have to be fatigued that's the place to do it right? 

I am not a medical professional and nothing I say is a medical opinion or meant to be medical advice, please seek a competent and trusted medical professional to consult for all medical decisions.

 

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I like the idea of it..that is for sure if I could get there in my old body that likes that sort of thing bring it on sadly that body has left the building.. and taken the sun loving ways with it.. I am not so keen on the sun these days.. I like everything moderate and boring I guess... 

 

could be it has taken so long to try and get well we just get old waiting too... could be that

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

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Ah well btdt, moderate can mean part of you is under the sun umbrella and the other part in the sun!

I am not a medical professional and nothing I say is a medical opinion or meant to be medical advice, please seek a competent and trusted medical professional to consult for all medical decisions.

 

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http://phoenixrising.me/archives/13083

 

Fibromyalgia Studies Suggest Mast Cell Link

1990 and 1997 skin studies found high levels of IgG deposits in the skin that appeared to be caused by mast cell activity. Nine years later a 2008 FM study suggesting immune problems  in fibromyalgia pointed an arrow at mast cells, but it wasn’t until 2010 that a Spanish FM study looked again at the skin – and foundgreatly increased levels of mast cells in the skin of every FM patient tested – a high positive rate for any disorder.

At that point, Ang, a frustrated physician/researcher not happy with a 30% success rate for FM approved drugs got busy. When preliminary results from his small NIH funded Ketiotifen FM study suggested the drug was working; he stated “I am quite excited. I think we are on the right track. The most rewarding thing I think that I can tell you being a physician scientist, is hearing from patients that they are responding to the medication that we are testing.”

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

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Ah well btdt, moderate can mean part of you is under the sun umbrella and the other part in the sun!

love how you just ignore my bitchy self and carry on... I need more friends like you  :)

yes it can mean that... good idea...

peace

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

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Ah well btdt, moderate can mean part of you is under the sun umbrella and the other part in the sun!

love how you just ignore my bitchy self and carry on... I need more friends like you  :)

yes it can mean that... good idea...

peace

 

 

lol you don't sound like that to me at all....I'm just trying to get you out to the beach, my body checked out a while ago too but I don't think my indoor tan is doing me any favors, lol...so if I have to not quite rock a bathing suit you are coming too, like it or lump it! :)

 

Also remember you did post, "They tried to bury us, they didn't know we were seeds"...and what seed is going to grow in the dark?

 

(Beach it is then!  I believe that's checkmate. :D )

I am not a medical professional and nothing I say is a medical opinion or meant to be medical advice, please seek a competent and trusted medical professional to consult for all medical decisions.

 

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