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  1. Hi, all-- I am so grateful to have found this site. It is helpful to know that I'm not alone. This is my first post, I will try my best to be succinct. I'm a 42 y/o female. I've been on Zoloft for 12 years, anywhere from 50mg daily to 175mg. I'd say my average over the years is probably around 125mg daily. My signature has a breakdown of my history. I've also taken klonopin during this time, but I take it PRN as I have never agreed with the doc suggestions to take this med multiple times daily. So in terms of my average klonopin dosing, during acute anxiety or hospitalization I take it multiple times daily but otherwise I take it maybe once or twice a month (more or less). My pills are 0.5, but I have a sensitive system so I take one quarter of that or maybe a half. A full pill usually means I am heading into a major depressive episode or something pretty difficult is going on. I smoked marijuana for about 7 years, but had to stop that in July 2020 due to cannabinoid hyperemesis syndrome (CHS). Lastly, I began a magnesium supplement around July 2020, and it has greatly helped with daily anxiety. The difference has been pronounced for me. For the past five/six years or so, I noticed that I occasionally got facial tics when I wake up in the morning. They were small, brief, and random, usually my jaw jiggling or shutting, or my eyes shutting closed due to my cheeks lifting. I thought it might be the Zoloft, but I didn't look into it too much. Well, now I've looked into it and I'm terrified. For the past 6 months, I'd say, the tics have started to happen during the course of the day and not just when I wake up in the morning. A couple of days ago, I was lying in bed and my throat/esophagus just started twitching up and down a few times-- that one was scary. I have an HMO, so I am in the process of seeking out a holistic psychiatrist on my own. I've seen the list on this site, that's been very helpful! I have a few questions for anyone that can help: In your experience, is it okay to have a long-distance psych? Does it make a difference? I'd rather see someone who knows what they're doing and is far, far away than someone close by who doesn't know or believe in patient-centered care. How might this hamper care? Do the TD symptoms indicate that I should follow a quicker taper? Or is this a matter of doing the 10% and then waiting/hoping that TD symptoms don't get worse? Can klonopin cause TD? I haven't seen anything about this, but I'd love to hear others' experiences. I will ask my psych the same thing, but are there any supplements that folks here recommend to help with the taper? I've tried tapering once before back in 2011-2013 (I thought I was tapering slowly, but given the info we have now I can see I was most definitely not going slowly. I was also following bad advice about taking my SSRI "every other day" to even out the amount of med in my bloodstream), and had what I now recognize to be an acute and quickly-manifesting depressive episode as a result of withdrawal. I understand that everyone's body is different, but any experiences with supplements is very welcome. Of course I am impatient to get off of this drug which could now be causing me a lot of harm. I have done loads and loads of work with therapists on my PTSD and depression, but the Zoloft did help me with that at the beginning, very much. I have so many conflicting feelings, but fear overrides them all because I would very much love to retain my ability to swallow and chew voluntarily (the cosmetic fears are also there, but to a lesser degree). I am a Buddhist and humanist and practice daily in one way or another, but as I'm sure many of us know a strong depression can and will obliterate reason, faith, belief, you name it. Thankfully I have a wife who shares my beliefs, and she is a rock. Thank you so much for any help. I am terrified of this journey, but I am very heartened that at least I have others to share it with.
  2. Mod note: link to: Happy2Heal: Hope I'm doing this right (Introduction and update topic) I was just an 18yr old, a very confused, naive young woman, er no- more of a child, really- when I was given (by force) my first psych drug, stelazine, a major tranquilizer. that was the beginning of a long series- spanning almost 40 yrs!- of psych drugs and hospitalizations. All along the way, I was plastered with one diagnosis after another, or several heaped on at once. My physical health went downhill and I ended up a virtual shut-in, living my life all in my head, friendless, socially isolated to the extreme, my only contact with drs and therapists, leaving my house to go food shopping maybe twice a month. This wasn't living, and I knew it. But I didn't know how to change things. I didn't know what was wrong. I spent over two thirds of my life believing I was mentally ill and *needed* to be on those drugs. but at some point, it occurred to me that the drugs might actually be the problem, or at least, part of the problem. I knew I had to get off them. and I did. The process and the pain of that is reported on my thread, I don't care to go back over it, at least not now. I learned a lot along the way, but for now, I don't want to think about where I've been, I only want to think about where I am now, and the life I have before me. Here I am, now, one year off all drugs, of all kinds. I rarely even take a ibuprofen for a headache. I want to write my success story, but I'm not 100% ready yet However I do have to say that what I feel most of all, is a great deal of pride in having survived. I suffered all forms of abuse as a child, emotional, sexual, physical, verbal, went on to be a survivor of rape, of domestic abuse. I was abused within the mental health system. I've spent virtually all of my adult life in poverty, raising my daughter as a single mom on disability due to "mental illness". But today, I feel as if I've done more than just survive; I am thriving. I have friends. I have a very active social life. I volunteer and I feel like the work I do is making a difference, having an impact. while technically I am still 'poor' by income, I don't go without anything I need, with the possible exception of good dental care I have a good life. Is my withdrawal journey over? I'm not sure.While I took my last dose of lexapro over a year ago, I feel like I am still having some symptoms that must be related to the nearly 4 DECADES on psych meds. BUT you need to know, these symptoms are extremely mild. and after that long on so many different drugs, it stands to reason that there will be minor little tweaks that my brain will need to make, for some time to come. I'd like to say that all that has faded into the background of my life, but to be honest: I am more vigilant about them now, than at any time during active withdrawal- because I don't want to fall into a trap of thinking that any problems I may have mean that all those doctors were right, I'm permanently disabled by a mental illness and there's no hope for me. I am pretty sure that the only thing I suffer from is PTSD, and I don't see that as a mental illness so much as a natural reaction to extremely stressful, traumatic life events. so Today I feel Victorious. I've overcome a lot and need to soak in that feeling of doing a good job I don't often give myself credit for my achievements or feel like it's ok to feel good about them but today, I give myself permission to bask in this feeling. it feels like the right and honest thing to do. I guess I just have to be different, I don't want to call this a success story because that sounds to me like the end, when in fact it is not. It's not really a beginning, either, because the beginning of my new life dates back to when I first realized that the drugs were the problem. to me, this just feels like a victory over adversity- something to celebrate! so please, celebrate with me, and know that you are going to heal as well, those of you still going thru WD/recovery. it's worth it, believe me so very worth it!
  3. I new to participating in the forum type sites so please forgive me if I’m doing this wrong. Anyway I started to have what I think is brain zaps a month and a half ago not really knowing what it was but from all the research I’ve done it’s the only thing that makes sense. I stopped taking paroxetine 40mg tablets and started taking fluoxetine 40mg. Wishing 2-3 days I started to notice this, it caused me to panic and spiraled from there. I stopped the fluoxetine and went back to the paroxetine and finally a couple weeks ago started to feel pretty good again. After talking to my doctor decided to try the fluoxetine again because I had been to my primary doctor, an ENT, and had an MRI done because we all thought the off balance feeling I would get was something else going on like some kinda inner ear problem. Anyway I tried it again because I was feeling the best I had felt in the last two months and wanted to fast track the feeling better process and get back to work and that was a horrible mistake. What I think are brain zaps came right back and that’s my biggest issue. It’s like if I try to do to much and I’m looking around and moving my head around eventually I will start feeling sick, my head will hurt and I’ve literally got to lay down and close my eyes. What I’m thinking are brain zaps is so hard for me to describe because I wouldn’t have said it felt like an electrical shock, the way I tried to describe it is if I turned my head or my eyes it was like my brain couldn’t keep up. I could trigger it by turning just my eyes from one side to the other, up and down didn’t seem to bother me. And it’s just a horrible feeling for to me that once it happens so much from me moving around trying to behave and do things I would normally do it feels like a bad motion sickness. Best thing I can compare it to because I’ve gotten motion sickness all my life. It’s really debilitated me and this being the 3rd different antidepressant I’ve been on since 2014, if this is what I’ve got to look foraward to is the medication stopping working and having to try a new one I’d rather figure out how to deal with my problems on my own. I’ve said for a long time now that my goal in life is to get off this medicine anyway. I’d really like to know if it’s brain zaps that I’m having as I haven’t stopped the medication as to just changed to a new one.
  4. I started taking MMJ two years ago to help “manage” my anxiety so I could come off of 50 mg of Amitriptyline and .50 of Klonopin. My doctor was completely on board with this as he said it’s “natural” and really wanted me off Klonopin. This past February I ended up accidentally overdosing on MMJ and started to hallucinate. I was told my metabolism must have changed and that I would have to readjust the dose. Even in my state of mind I knew that was a horrible idea and CT’ed the MMJ. I had NO idea what I was doing or what was in store for me. I was put on 2 mg of Abilify and was told that it would help “speed the withdrawal process.” I never even decreased the Amitriptyline or Klonopin the entire time I took the MMJ. I was told after a month to just stop the Abilify. I can’t even attempt to describe the terror I felt the next two months. I had de realization, depersonalization, disordered thinking, panic attacks, it goes on and on. I didn’t sleep AT ALL the first month and then the second month I was getting 1-2 hours a night. I didn’t even know that it was physically possible to go that long without sleep. I developed paradoxical insomnia as well as a fear of insomnia. I stopped the Ability after one month. I decided by the third month I would taper the Amitriptyline since I initially took it for sleep and it wasn’t helping. Did I mention I had NO idea what I was doing? I went from 50mg to 6mg in two months. I honestly was about to throw in the towel at this point and go on an antidepressant but then found this site. I knew at this point I was in PAWS from MMJ but didn’t realize cutting the Amitriptyline this fast was a contributing factor. I thought that this was my “mental illness” coming back. I increased back to 10 mg in July and am holding steady. I am currently on 10 mg Amitriptyline and .50 mg Klonopin. Seven months later I still have a lot of issues. More importantly I have a lot of hope. I worked with a wonderful hypnotist and am at the point where I don’t worry about sleep. I eat well and exercise every day. I practice gratitude and am learning to live in the moment. I still wake up every 1-2 hours a night; most nights I fall back asleep and I am grateful for that. I’m learning to observe my thoughts and use my anxiety and fear as guides. I am already the strongest person I know. I’m only starting my journey but wanted to share early hope for those that may be struggling with acceptance. I also want to thank everyone on this site, you have been a part of my journey.
  5. Hi Everyone, I am just going to jump right into this. I developed anxiety 4 years ago after having several life crisis in a months time. My mom was diagnosed w Dementia. My little sister was diagnosed with stage 3 lung cancer. I was diagnosed with squamous cell carcinoma.A childhood friend died in his sleep from heart failure. I tipped over from the stress. I went to my GP and she started throwing AD's at me to help silence the anxiety. The AD's only made me worse. I went to the ER one night after experiencing my first panic attack The ER Dr gave me a script for Ativan. I took it for four weeks and then stopped because I was feeling much better. A few days later my world turned on it's axis. I didn't know what was happening. My anxiety was worse, I was pacing, heart racing, Panic attacks daily.... I went to my GP and she said I needed to see a Psychiatrist. To get in to see anyone was 3 months. I started to spiral. I had no idea I was in withdrawal! I ended up in the hospital to get help for my anxiety. I was put on Effexor (75mg)and Klonopin (.25mg). I stabilized and was sent home. I did really well on Effexor. After 4 months on Klonopin I started to slowly taper off. I tapered over 3 months. The taper went pretty well. I was cutting and weighing my pills. 8 months after that I felt good and talked to my Psychiatrist about tapering off of the Effexor. She strongly recommended to go slow and we did. I tapered for almost 7 months. To be honest, the Klonopin was easier to come off of than the Effexor. She put me on Prozac before my last cut of Effexor. Tapered off of the Prozac over 3/ months. I still had some anxiety but it was tolerable. It felt AMAZING to be free of AD'S and the Benzo....then COVID hit and my mom passed away. Anxiety came back w a vengeance. I ended up back in the hospital after a very bad reaction to Zoloft. My new psychiatrist kept telling me to "push through," the first 3 months. I was back on Klonopin but now it was.50mg twice a day.The hospital took me cold turkey off of Zoloft and started me on Remeron and Trazadone. The next day they added clonidine. The klonodine didn't agree w my system at all and I was taken off of that in two days. They released me from the hospital 5 days later. I lasted two weeks on Remeron. I was so disoriented, confused, high anxiety and felt like I could become violent on them so they weaned me off of that over 4 days and put me back on Prozac. Prozac didn't help my anxiety, I had constant headaches for months! I did get an MRI and it was normal. I started to feel more and more depressed on it. I was on Prozac for maybe two months when my psychiatrist took me off of that (tapered over 6 weeks) and put me on Lexapro. I had to have back surgery during this. I did NOT take a single pain med out of fear of making my WD worse. At first I thought the Lexapro was helping? I was still having breakthrough anxiety so he bumped it up. My Psychiatrist retired and a new woman came in to take his place until they could find a new one. She bumped my Lexapro up to 25mg when I told her I was having major anxiety rushes, my face would get bright red, I wasn't sleeping very well. That increased dosage was the worst! I was like a zombie but w heightened anxiety. I couldn't work, I would sit at my desk and space off for hours! I felt awful. So, she told me to start tapering off of the Lexapro (4 weeks total! I knew better...) and she wanted to cross taper me onto Effexor. I started that and boy....the depression was BRUTAL! I was not sleeping well, could hardly focus, anxiety was high, my legs felt like jelly, my head would burn, I felt my brain tingle all the time... I was nearing the end of my rope. I was desperate for a Psychiatrist that CARED. The interim Psych left and a new one came in. She wanted me off of the Effexor because she felt it was too hard to come off of and if it didn't work for me, I would be in for hell. I told her I was scared to switch AGAIN and she assured me that switching to Duoloxetine was it's "sister drug," and I shouldn't have an issue. I trusted her. The last 3 months have been.... (How do describe this hell?!) a daily battle to push through hell on earth. I am still working, I can still function, I take care of myself, my home, my dog. I am a divorced woman with a 22 year old son. I live by myself with my Rottweiler. Life is so friggin' hard when you are trying to get thorough this mess. I now have a WONDERFUL and caring Psychiatric nurse practitioner who truly cares. She is holding me on the last 10mg of Lexapro until the Effexor/Lexapro WD calms down...IF it calms down. I should tell you that I can't believe I have pushed through the last year. My symptoms have been Burning in my head, headaches, tingling in my head, mood fluctuations, burning on my skin, bloodshot eyes, pressure on my chest, sensitivity to heat, depression, sweat easily, joint pain, ringing in my ears, no motivation, grinding my teeth, feeling mentally off at times, at the beginning I couldn't sit still, short tempered, at times in the beginning of the Lexapro taper, I didn't want to talk at times...like I almost couldn't, buzzing in my body, feel like I'm going crazy sometimes, anxiety rushes...etc I am interested in this group for support and the combined knowledge from it's members. I know that NO ONE can tell me when this is going to end. What I am hoping is that someone can tell me what I am going through is normal for all of the med changes? I am honestly concerned if I am still having problems because of the Duoloxetine? My anxiety IS better since I have been on it. I get 8 hours of sleep. I don't drink. I don't use illegal drugs, don't smoke. I eat pretty healthy. I don't exercise. It's tough to get out for walks when you feel like hell and I guess I save my mental energy to work. I know I have rambled on. My mind feels like it's in a vice and also these drugs affect how well I put my thoughts into words. For the most part I am a happy and well adjusted person. I feel like the last few years have been stolen from me because I faithfully followed Dr's instructions and thought they knew best...I was so wrong. Thank you for your time. Blessings to all of you.
  6. Helooo i am new here in july 2023 before six months i feel fastness in my body and behaviour i consult with my psychiatrist he gave me mixture of prozac and olanzapine then after three days i become restless and became suicidal i immediately quit then my dr gave sertaline and olanzapine then after 20 days my panic attack start and ocd became severe my dr told me about cold turkey and i did because i did not know about tapering but then hell start my worst panic attack start which last almost till evening then my dr gave lexapro which hit as a blast and i told my mother i want to die nothing did help me no one benzo calm me intense panic and restlessness then my dr gave kolonopin and paxil which stop restlessness and panic attack immediately i feel relief them after three days i feel inner agitation but panic attack stop which is a big relief but agitation not leting me rest i told my dr he said thats is anxiety i told him thats is not anxiety he did not listen me and contine my prescription but told me to cut the pill half which coated and i did that my agitation became less then my dr told me take 1/4 i took it then agitation still present but became very calm then dr told me i think u have bipolar disorder and precribe lamictal and seroquel which i not took because i have history of anxiety disorder and depression i use paxil cr in 2021 when mother diagnose with mets cancer and prozac and olanzapine in 2018 when i became suicidal which was my first episode now my dr tell me to take 1/4 paxil coated pill every other day and then every second day and quit and take lamictal and seroquel when i take pill every second day then hell broke intense physical pain which last only three days then intnese restlessness start and ocd i also mention here that i also take 0.5 kolonopin at night Dear guys help what i should i do?
  7. Hi,everyone. My name is Manny.my psiquiatrist wants me to reduce the cymbalta from 60 to 30 mgs. I know it is a 50% reduction.i should decrease only 10%.how do i taper off 10%? And how long it takes? Should i open the capsules and count the number of beads and remove that 10%? How do i ingest the 90% remaining? With water? With juice? Can i do water tritation? I take cymbalta 60,abilify 25,ativan 2.5,risperdal 7.5 mg.
  8. wantrelief

    wantrelief

    Hello everyone, This is my first post. I've been reading many posts over the last couple of days and am finding a lot of great information. Thanks for being here! My drug history is listed below my post. I wanted to get some advice. I really want to get off of Zoloft (wt gain, sexual side effect and a feeling it has blunted who I truly am) and have been trying for a few years now unsuccessfully, unfortunately. I have now tried 2 slow tapers off of Zoloft (using the liquid). Both times I get under 40 mg, have something stressful occur and go into full blown withdrawal mode: complete insomnia, severe anxiety, agitation and no appetite. The first taper was 10%, the 2nd time I tried 5% cuts as I thought that would help me avoid this from happening but yet again I am in the same situation. This time I had gotten down to 37.5 mg, had something very stressful happen once again - I tried to stay put for a couple of months at 37.5 but the anxiety became worse and worse again turning into complete insomnia, etc. So I started to updose as I had done in the past which had in the past brought relief fairly quickly. However, this time updosing doesn't seem to be doing anything at all except give me a bad constant headache. I am currently back at 70 mg and my psychiatrist wants me to keep going to at least 100 mg. Ultimately she would like to see me at 150-200 mg because she thinks I have an underlying anxiety disorder. She also prescribed Klonopin which I've been on now for 2 weeks mostly at 1 mg and that has helped me sleep and eat a bit (appetite still not great and am losing quite a bit of weight) and be somewhat functional but I am scared of staying on this too long (already went through Klonopin withdrawal after a short stint a few years ago). But I also can't function not sleeping or eating. With the bad headache and no relief felt yet with the updose I am not sure what to do. Any thoughts? Am beginning to think I have some sort of bipolar disorder as the symptoms that occur when I am under stress really seem to be hypomanic. It seems since I started ADs i have absolutely no coping mechanisms to handle stress any longer. I am just feeling scared, lost and confused as to where to go from here. I should note that I never had anxiety or depression like this prior to taking ADs. I would have some of both but not at this magnitude. i also have no history of mania prior to medication. Thanks in advance for reading and for any advice you may have. I am also curious if anyone else has experienced these problems while still on the medication. _________________________________________________________________________________________________________________________________________________________________________________________________________________________ Cymbalta Rx'd 2006 for depression/stress while in an intense graduate school program - stayed on for just over 1 year - tapered quickly in 2007, experienced withdrawal symptoms (?) 4 months later around stress of starting new job/career (adrenaline rushes, insomnia, anxiety). Had trouble starting back on any AD as would make symptoms worse so was Rx'd Klonopin to enable start-up of Zoloft. Eventually 100 mg Zoloft; tapered Klonopin; Have tried 2 very slow tapers Zoloft but can't get off due to increased anxiety/insomnia when go below 40 mg. Now back on 1-.75mg Klonopin for 2 weeks and trying to up Zoloft to get stable - so far unsuccessful.
  9. Hi all, I am new to this site. A little background info. I have been on Venlafaxine for the past 8 or so years. I got off of the medication 5 years ago (somewhat abruptly) and had terrible withdrawl symptoms. I stayed off of the medication for four months before I finally reinstated, along with 7.5 mg of remeron and 1 mg of Klonopin. I was on the klonopin for a year and tapered off the mg over the span of a year. I had been on 150 mg of Venlafaxine. I sucessfuly tapered down to 112.5 over the span of six months. I did so well on this that my wife and I decided we would do a 3 month taper for the second quarter. I did okay on this and was on 75 mg for two weeks. Then I started having really bad anxiety/ocd/insomnia. We quickly reinstated to 112.5 mg which is what I have been on the past three months. I was also prescribed klonopin, again, as needed. I am taking .5 mg of klonopin four nights a week to help sleep. I have been having muscle spasms, increased ocd symptoms, GI symptoms, and more muscular pain which seems to only get worse the longer I am on the Effexor. I did a DNA Test and it turns out I am a poor metabolizer of CYP2D6-which is the enzyme used in metabolizing Venlafaxine and a lot of other SSRI/SNRI's. Desvenlafaxine is one SNRI that is not metabolized by CYP2D6. I am wondering if anybody has sucessfuly cross tapered from Venlafaxine to Desfenlafaxine. Any advice/suggestions would be greatly appreciated!
  10. KittenLePurr, here. Thank you so much for maintaining this site and for welcoming me here❤️ I was put on psych meds as a child, at age 12. I'm still working through a lot of anger around that. My parents did the best they could but, you know, they were traumatized by their parents, who were traumatized by their parents, etc., and they were all taught to blindly trust doctors and to essentially live in fear of their bodies. Thanks, Western medicine. Anyway, so, as a highly sensitive child who felt deeply depressed and uncomfortable in the world, I presented quite a set of challenges to my parents. I had a month-and-a-half-long period at age 11, so my mom took me to an OBGYN who did no tests or anything to see what was up with my hormones; she just wrote me a prescription for birth control. 🙄 My mom was concerned about that but gave it to me. I became even more depressed after that and, when I was 12, told my mom I thought I needed help. She took me to a counselor who suggested I see a psychiatrist, who wrote me a prescription for Zoloft. Oh, and talk therapy. The gold standard of care. Zoloft and therapy didn't seem to help, so I was then put on Prozac...and then, on a whole host of other meds. I took a jumbled handful of different cocktails I can’t even remember, including Effexor, Wellbutrin, Trazadone, Remeron, and a number of mood stabilizers. It was a rollercoaster on top of the hormonal rollercoaster I was already on, being a preteen on birth control. At age 13, things felt increasingly bleak, as I was having issues with my friends at school and felt unloved and completely hopeless, and I decided it was time to end it. I took as many pills from the medicine cabinet as I could without throwing up and lay down in my bed, waiting to die. But it took too long; I got impatient and decided maybe I didn’t really want to die...not if it meant lying there, excruciatingly nauseated. So when my dad got home, I told him I needed to go to the hospital and they pumped my stomach. The pills I'd taken the most of were Effexor leftover from my brief stint on it months prior. I thought I was going to throw up the charcoal until a social worker put a cool washcloth on my forehead, and the nausea passed and I felt this giant wave of relief and joy from still being alive. I told my psychiatrist about that, and she took that to mean Effexor was a good med for me. So I went back on it and stabilized on Remeron, and over the next few years, things did get a little better. Meaning we were sort of managing my depression. But I was still deeply, deeply troubled. I was attracted to drugs and alcohol because I was so depressed and uncomfortable in my own skin and altered states felt better to me. I was on a constant quest to find the best and most complete escape from the pain of normal, everyday life and started partying and skipping school to smoke pot and take drugs. I was diagnosed with ADHD and prescribed Adderall, which gave me horrible side effects but also appeased my longing to escape sobriety, so I took more and more of it. Up to 120mg a day. I flunked out of public school and my parents sent me to private school, at which point I finally chilled out on the partying and graduated. I was managing my symptoms a little better. In college, I had a serious boyfriend who pointed out it was not normal for a girl like me to have such severe sexual dysfunction. I’d never been told anything about that by my doctor or even realized it was abnormal, and when I found it was a common side effect of antidepressants, I was outraged and decided to stop taking my antidepressants, cold turkey, between doctor’s visits. I’d never heard of withdrawal symptoms. But I didn’t experience any! Different biology?? I don’t know. When I told my doc I’d stopped taking the meds, she was pretty surprised that I seemed okay. This was the most stable period of my life. I wasn’t “happy” or even well-adjusted but I was managing, even after I got off the meds. I wonder why my more recent experiences have been so different. I’d developed TMJ my senior year and in college, guzzling Adderall and stressing out, my anxiety and jaw pain got much, much worse. I would have flare-ups where it felt like my jaw muscles were being stabbed with an ice pick. I went to the emergency for a particularly bad episode and asked my psychiatrist if there was anything she recommended. She prescribed lorazepam. I started off only taking that here and there for my jaw but eventually, it became a daily habit for anxiety. Life was just better when I took it. It’s what I’d always been searching for: peace. I vowed never to take antidepressants again but benzos were okay in my book because I had no idea they also came with a slew of negative side effects, and they made a much bigger difference in how I felt. For a while, anyway. Eventually I graduated to Klonipin and was taking 1-2 mg a day, every day, sometimes more. I dropped out of college to pursue a music career and my love of getting inebriated spiraled out of control. During a particularly low point in my life, I started taking pain pills to get through work and got addicted to them. I spent the next few years battling opioid addiction which progressed to heroin addiction. I checked myself into rehab in 2012 and during that month, I was put on Lexapro for depression and Seroquil for sleep. Seroquil made me feel frightened, so I talked to the doctor and he put me on Remeron again. I was like a zombie. And I couldn’t stop eating the junk food they had there. I felt AWFUL. So, as soon as I got out, I stopped taking all the meds. Not sure whether I had withdrawals because, unfortunately, I also relapsed. I battled my addiction a while longer until my beloved boyfriend at the time OD’d and died in front of me. I was obviously crushed and blamed myself. I was more depressed than ever but didn’t want to die, so I entered a methadone maintenance program and stopped doing street drugs. I’m so grateful for that methadone clinic...it saved my life. But the doctor there kept urging me to get back on an antidepressant and I didn’t want to. Because I knew it would only be harder this time. But I still had no other coping skills and had these health professionals telling me I had a chemical imbalance and the only way to fix it was with medication, so I relented. I was on 75mg Effexor and 1.5mg Klonipin. My doc lowered my dose of Klonipin a few times over the next few years; he wanted me to get off of it now that the FDA released a black box warning about cognitive effects. In 2017, I switched from Effexor to 20mg Citalopram, which he thought would help with my anxiety. It didn’t. And she tapered me off the Effexor over the span of about a week and a half...it was brutal! I knew better by that point, too, but I chose to just trust her anyway. I barely slept and the anxiety was incapacitating. It took me a couple of years to connect the dots but Citalopram gave me horrendous brain fog. I’m a writer and musician, and I had a health and wellness blog I really took pride in. Once I was stable on the Citalopram, I stopped feeling able to write or make music entirely. I could barely think straight. For 3 YEARS. And for the first year and a half of that, I thought I was just tired and lazy because my doctor said it wasn’t related. But in 2017, I discovered holistic psychiatrist Kelly Brogan on a podcast and learned the truth about antidepressants and learned I was not the only person whose creativity was stunted by them. I learned game-changing lifestyle practices that actually DID help with depression and anxiety--unlike the meds--and I underwent a huge health transformation and had an awakening around the medical system and society at large. And I got to a place where I felt more centered, joyful, and more MYSELF than I’d ever thought possible. I vowed to get off meds for good--this time, not to just “manage my mental illness” without meds, but to live a full, vibrant, healthy life. I was most eager to get off the things that stifle my creativity, so I microtapered off my remaining 0.35mg Klonipin in Spring of 2020. I got through it using my lifestyle practices--clean eating, meditation, intentional movement, grounding, EFT/tapping and emotional regulating practices/shadow work--and had only a few severe panic attacks. The brain fog was INTENSE and I’m so grateful to have been laid off from the lockdown because I could not have worked. I basically lay around all day for months, aside from doing my self-care practices. I tried to move right into tapering Celexa because I want OUT but my body said NOPE just about immediately with severe insomnia, crippling anxiety and even worse brain fog. I’ve been balancing out over the past year and am feeling 9,000,000,000 times better than I was right off of Klonipin. I’m ready to get off of Celexa. I’ve lowered my dose of methadone over the past several years, too, and I’m at half my original dose. I know this isn’t a forum for that but it’s part of my journey...and getting off an opioid is no walk in the park but I’m honestly concerned that this Celexa taper is going to be even harder. That’s why I signed up here. I’m currently at 14.35 mg; my original dose was 20mg. I don’t really know what to expect (aside from anxiety and sleep disturbances) but I know I’m going to need support. Figuring out the math to do each cut feels really difficult. My brain fog is still really thick. I’m honestly disappointed it hasn’t improved more by now, having been off Klonipin for almost a year. I’m taking lion’s mane mushrooms, which definitely help but it’s still a challenge. I’m still unemployed and have been hesitant to cut my dose because I keep expecting to lose my unemployment and have to be able to perform, create, be productive, etc. I don’t feel comfortable going to a workplace with what’s going on out there now, so I started learning copywriting last year during lockdown and was planning to start a freelancing business but kept going back and forth between prioritizing that and my healing. I couldn’t write during Klonipin withdrawal; I don’t know if I’ll be able to during this taper. I have so much fear around this. I’m doing a lot of inner work, a course called Core Wound Healing and lots of shadow work, which I know will help me through this. Still, it’s difficult. So much fear! But since I only have 1 ongoing freelance client and it’s really easy work, I’m back to prioritizing my healing, and I cut my dose by 10% this morning. I’m just telling myself “I got this” over and over. Going to see how I feel in a few days, a week, 2 weeks. And I’ll go from there. Thank you so much if you made it to this point!! I know this was a novel!! (I'm a writer...I edited this about 10 times but brevity isn't one of my strong suits😬)
  11. Link to Hibari's Introduction topic: hibari-tapering-remeron-and-want-to-start-tapering-lamictal I first want to say that we do heal and life does get better. I am someone who was poly-drugged, on benzos twice, and now am 15 months off all medications. I made mistake like forgetting doses, getting misdiagnosed with Lyme, taking supplements for my adrenals and being treated badly by both doctors and holistic practitioners. I still made it off the medications. I feel well most of the time and optimistic about life. I couldn't feel that at all when I was on medication, (benzos in particular) and while I tapered, so I now know it was the medication. Thank you @Altostrata for starting this site and collecting all the information needed planning and tapering. Med History: Put on and off a variety of medications for short periods of time after having a nervous system breakdown from excessive caregiving and overworking. (You can see my signature). What helped me: One thing that helped me during benzo withdrawal was to look up the side effects, not withdrawal symptoms, of Clonzapam. I saw that depression was one of the main side effects of the medication and even though I felt deep despair at the higher doses, I keep reminding myself that the medication itself was causing my crushing depression. Support In addition to the support I received on this site and benzo buddies, the first two things on this list I wish I had known about earlier. 1. I worked with a Psych-K practitioner (psychological kinesiology). This practitioner had gotten off of a cocktail of medications using the Psych-K technique. I met her by chance, heard about the work and decided to try it. This method helps to balance the brain and body. With this support I was able to continue tapering my benzo 20% a month till the end. We worked remotely even pre-pandemic and I found it incredibly helpful. I continue with her to this day. If anyone wants more information on this, please PM me. 2. The second thing was that I worked with a benzo coach from Lucid Lane, a fee for service support site for any medication dependence. I spoke or should say, cried to my coach on a regular basis. I found it really helpful to talk with someone who understood my pain. Here is their website. https://lucidlane.com/ 3. I connected to some wonderful people on this site @freespirit @Shep @Santino @leahy @brassmonkey and others who I’m sure I’m forgetting. I found the people who I resonated with the most and they were a lifeline to me. Not everyone here will be the right fit for you nor have the right guidance for you and that’s okay. 4. Advice: Take what you like and leave the rest. This site has wonderful resources and offers very solid advice on tapering. And you also have to trust yourself. That might mean sometimes going against what works for others and that’s okay. For example, I couldn’t handle fish oil during my tapers, it had the opposite effect. I didn’t try and push it once I discovered that. Some supplements like L-Theanine worked during my Remeron/Mirtazapine taper but not during my benzo taper. Your body has a lot of wisdom and if it’s saying no, it’s no. 5. Mental: Two shifts occurred during this process. The first occurred when I finally realized that being stable enough to taper did not mean, feeling great. For me it meant, being functional enough to make the bed, wash the dishes and stare at the TV. Later it meant, I could go for a walk, meet a friend and then start working a bit. I got confused for a while thinking that if I were stable, I would feel more upbeat but that was not what stable was for me. It was all about being functional enough to keep going in my taper. I used a scale from 1-10. If I was in the 5, 6, 7 range, which was uncomfortable but tolerable, I kept going. If I went to an 8 or 9, I held till I was back to a 6 or 7. Tracking this way helped me move forward and also allowed me to see if there were any patterns of when my cuts hit. The second occurred, during my final taper. I realized that I whenever I wanted to change something in my taper-the method, the rate, the brand-that it was me trying desperately to have some control over the process. This hurt me especially at the end of my Lamictal taper. I am very compassionate about it now and saw it was my attempt to feel more in charge of something I felt helpless about. I had to really fight that urge during my final year of tapering and it worked to my benefit. 6. Belief: You don’t have to believe you will heal to heal. I had a lot of despair and fear during my tapers and especially during my final benzo taper. I thought I was actually a depressed person and was unable to meditate, exercise or do anything that seemed to work for others (until the Psych-K work) and I still kept healing. I know now that it was hard for me to believe that I would feel good again because of the temporary brain injury and withdrawal. Now I know for sure I am not a depressed person and look forward to life. 7. Food: I lost my appetite at times and could not eat much for different periods. For the most part I ate cleanly, no sugar, alcohol, or caffeine during a majority of my taper. I was not perfect and did eat candy at times when that was what was going to get me through the next hour. I now drink a cup of coffee a day and am fine. I do eat healthy now about 95% of the time. I did put on 30lbs during the time I was taking Remeron/Mirtazapine and when I went off, I lost 25lbs in about 2 months without dieting. It was all medication weight. Choose what works for you, whether it’s plant based or keto-you get to decide. 8. Supplements: The only supplements I really take are Magnesium Glycinate, which I took on and off during my tapers. I take between 50-150 mgs at night to help me relax into sleep. I do drink an Adrenal Cocktail, 1/2 cup natural OJ, 1/4 tsp Himalayan Pink Salt and 1/4 tsp of creme of tartar to support my adrenals. I drink it now as needed but when I was in withdrawal and too revved up to relax at night, I drank it 2x a day at 10AM and 2PM. In about 10 days the hyper feeling subsided and I started to sleep better, which at that time was about 3 hours a night with many nights of little sleep. There are versions of this cocktail that use other liquids if you can't handle OJ. You can Google those recipes. 9. Exercise. I walked my dog during withdrawal but during the last part of my Lamictal/benzo withdrawal I did not exercise much due to the agoraphobia and weakness. I also tried exercising more vigorously after I stepped off the benzo, but it would cause mini waves. I went back to exercising at about 13 months off and can now handle dance classes and fitness classes. I’m out of share but optimistic I will get physically fit again. 10. Spirituality/Faith: I do believe I was transformed for the better by going through this. I felt pretty spiritually abandoned especially during benzo withdrawal but my spiritual beliefs were not so solid to begin with. That has changed over the past year. I also had to learn a hard lesson about how I was living my life pre-medication. My habit of giving too much and doing too much wore me down. Now after meds, I have to continue to keep an eye on that tendency though it is so much better. 11. COVID: I think I may have gotten Covid early on but was never tested. I had a very bad sore throat in the fall of 2020. It was so bad I took an antibiotic (which I could handle) and it cleared it up. I have been vaccinated 3 times and the first time I was vaccinated I was off benzos for 3 months. Aside from the usual reaction to a vaccine, aches, chills, etc, I was fine. I am someone who never got flu shots and don’t plan on getting them in the future but I knew a handful of people who got very sick with COVID including two who now have long COVID so I was willing to take the vaccine. What Remains: My sleep has gotten better though it is not where it was at pre-medication. However, I have gone from very light sleep, waking every hour or so to sleeping 6-7 hours a night and waking up between 2 or 3 times. Dropping off is still not as easy but I’m not wired or hyper. I just think I’m still low on something the brain and body produces to ease me into sleep. I also occasionally get some temperature fluctuations/hot flashes but am okay with them. When I first stepped off of Remeron/Mirtazapine, the sweat poured off of me at night and I was so drenched I had to get up and change. I was post-menopausal so I knew it was the medication. That’s it for now. As with anything I've mentioned above, please do your research and learn to trust your body's responses. The capacity for our brains and bodies to heal is real. I'm wishing everyone on this journey continued strength to keep going. Remember how courageous you are to take on this challenge. You will heal and have the life you want for yourself again. Hibari
  12. Hello, This is my first post on this forum after lurking for a couple years while tapering off of Zoloft, starting at age 20. I thought I had the taper under control for most of that time, but all the changes seem to have caught up with me. I am feeling skeptical that this is going to pass and that I will ever be able to get off of this medication. Anxiety, panic attacks, and physical disorientation and discomfort have kept me effectively homebound for a few months now, with no sign of cessation; it is discomfort far greater than I have ever experienced in my life. My sleep is often interrupted, and sometimes I am awake for up to 40 hours at a time due to physical stress. I cannot walk around my neighbourhood, let alone take the bus, go to the store, or participate in work or school; I can do very little physical activity at home, and have to be extremely cautious with my dietary choices. I am currently taking no supplements, but I am considering trying L-Theanine or Taurine, which I understand to be neuroprotective. Gabapentin seemingly helped me through medication changes in the past before, but I am skeptical of adding a new drug into the mix. My doctor had been helpful with the taper, but suddenly changed her tune after I was finally honest about the problems I was having, and is now of the opinion that I need to be on this drug forever (her words), completely disregarding the fact that many of my symptoms are purely physical and could not be explained by my "original condition" (as she maintains is the case.) Additionally, I have been adamant that going back on medication is not an option; Zoloft caused me to uncontrollably engage in extremely self-destructive and reckless behaviour (drinking by myself until passing out, sleeping with strangers using no protection, reckless driving); prior to taking medication, I was a quiet, introverted guy who liked gaming and fantasy literature, and had neither taken a sip of alcohol nor intended to. I also believe it is responsible for a sudden complete and unprecedented shift in sexuality (from heterosexuality to homosexuality) and strong gender dysphoria. I do not know which mechanism of the drug could have caused this, but there is no other suitable explanation, as these acquired traits have both completely subsided, directly synchronous with my taper. When I told my doctor that the medication had these effects on me, she prescribed me Seroquel (which I am, of course, not taking); despite my calm demeanour over the phone, she clearly thinks that I am delusional. I certainly learned my lesson through this, and will no longer say any more than is necessary to avoid seeming belligerent. Out of all the people in my life, only my mother and my girlfriend believe me that Zoloft caused me to have this dramatic personality shift that endangered my life, and they are both very supportive of me in general. My father, who is currently financially supporting me, albeit reluctantly, is of the same mind as my doctor; he believes that I have a genetic defect and must be medicated permanently. Overall, however, he has been surprisingly tolerant, and I have a safe place to live where my needs are being taken care of. I have undergone thorough medical examination, and have been determined to be in good physical health, aside from a recent POTS diagnosis that I believe is a result of my taper and is causing many of my symptoms. To sum everything up: I am trapped in a world of discomfort, and have no idea what my next steps should be. Any help at all is appreciated. I am only a young guy, and the future is not looking bright right now. I am really scared that I have damaged my body and brain beyond repair both by taking the medication for so long at such a high dose and in tapering improperly. Having said that, I am feeling much more like myself, and I know that I am on the right track. P.S. I apologize if any part of my post violates content guidelines. I was aiming for as much clarity as possible but any offending parts can certainly be removed.
  13. Hey everyone, I said that once I was healed and felt back to normal again I would write a success story and I do believe that today is finally the day for it! It was a very long journey for me personally, but I know that others have been going through it for even longer. So for those of you that are still in the thick of it, I will tell you this! Keep on going and going and going!! Never ever give up! I truly do believe that everyone heals no matter how long it takes!! For some it is shorter than others, but it's coming for all of us! You can read my intro topic and see that I really didn't find this site until I was almost 8 months in deep. I was one of those who CT quit everything because nothing was working for me and I got tired of trying different things to feel better. I was extremely fortunate to meet a wonderful lady who had survived the process and she reached out to me. She was able to encourage me daily to keep going and helped me to get through the very worst of days! I was so lucky because most people do not have that support system, but it was a life saver. Some things that I learned while going through this process: 1. Stay as positive as you possibly can! I know it's hard, believe me. There were so many days I just wanted to get in a funk and stay there, but I knew how dangerous that was. If you let yourself always see the bad in things, then eventually that is all you will see! Take what is happening to you and turn it around. Find something positive in your day. When I was having the worst of symptoms, instead of feeling bad about it and moping about it, I would turn it around and tell myself that I was having a good strong day of healing! The harder the symptoms, the more healing that was taking place. I made it a positive thing!! 2. Acceptance!!! I know this one is hard!! It was for me and took me a very very long time to learn it, but once I did it made a world of difference for me. The symptoms no longer had the power over me that they once had. Yeah they were still there, but I would just acknowledge them and then move on. There was nothing I could do about them, so I just let them happen. Besides it just meant that I was doing some more healing. The sooner you can learn how to accept the process the easier the process becomes. 3. Time!!! Unfortunately in my experience I found that there are no shortcuts in this process. There is no magic pill or drug that I could take that was gonna heal me any faster. I had to be patient and wait for my brain and CNS to heal! There was no way to speed up the process or make it any easier. I just had to get through it! That was it. Time time and more time!! Each day you go through is one day closer to your ultimate healing so don't give up!! 4. Distract!!! Find something anything that you can use to distract yourself and make the time go by. For me it was long walks, paint by numbers, etchings, diamond dots, models, board games with my children!! Just anything to pass the time! The more I was able to distract myself, the more healing that was taking place without me worrying about it! When you sit around all day and don't engage your mind, it has nothing to do but ruminate on what you are thinking or experiencing. Distract!! 5. Keep track of the good days! I experienced the normal waves and windows pattern that is normal for a lot of people. I would keep a journal daily where I would write down what I was thinking, how things were going. And for me most importantly, when I was feeling good in a window, I would write about it in the journal. I would write notes to myself reminding myself that I could feel good again and that I would feel good again. That way on the hard days I could go back and see what I had written to myself to know that I was gonna be ok. And that's honestly about it! That's what worked for me! Just remember that what you are going through is temporary!! This is not the rest of your life. One day you will be healed and able to move forward with life and enjoy the days. This whole process has made me such a strong and more resilient person. Little things in life no longer really bother me and I have found I have so much more patience and understanding than I ever did before. As much as this whole thing sucked, it has made me a better person!! Just remember to keep going and going for as long as this takes!! You've got this and you know it! I will be sticking around the forums to help others. I always told myself once I made it through this I was gonna pay it forward and help others as well. Don't hesitate to reach out if needed! Ken
  14. Hi I’m mark. I spent an hour trying to make my signature , but it wouldn’t allow it because it was to long. Tried cutting it down significantly, still to long , gave up. Basically I’ve been on a million drugs on and off , and didn’t ween off any of the em correctly except lamictal and seroquil. I can make a extremely generalized timeline . Starting with cymbalta 16-17 years ago. cynbalta -2007 1 year 2012 -1 month wellbutrin-2007- a few days xanax-2012- 1mg, recreationally 10-15 doses klonopin-2013 1year .25-1mg lexapro-1-2 months 10mg topamax-2weeks small dose lamictal— 2015 7 years- doses(25-400mg) Seroquil- 2015 5 years -15-100mg ketamine-2019 -10 iv treatments gabapentin-2020- 300mg- 2 months litrhium-2020 1200mg-1 month ambien-2020 5-10 mg 3 months Propalanol-2023 10mg -2 weeks I’ve had several med trials for past 10 years trying to address symptoms that came out of nowwhere in 2013, which I now realize we’re most likely issues from taking cymbalta at an early age , not weening off then going into more rec drug use and Xanax . past ten years of my life were terrible , Constant doctors , trying meds , psych ward visits from bad reactions , not knowing what was wrong , more meds , even was convinced I had lymw and did antibiotic protocols , hyperbaric chamber , etc. also multiple shoulder surgeries from bad shoulders , one of which was a botch job and caused terrible nerve damage furthering my issues . started realizing psych drugs were the problem in late 2021. Got off everything for about a year I got hit with a severe life threatening bout of insomnia in 2022 June , and after being off of drugs for nearly a year , had to resort back to trying things , and things spiraled quickly . While I always have had the hypersensitive nervous system symptom, i I started developing this at a new level . super sensitive to sounds ( even not loud soundslike fridge clicking on, car door in distance , anything etc). Can’t watch most movies emotions trigger symptoms . Constant tinnitus . Can’t exercise , sex release , can’t go to the store without flare .) nighttime adrenal surges / jolting . even then I STILL was seeing psych and trying meds because I was not familiar with kindling . How would I know ? I was member of benzo buddies and knew something was going on drug related but was suffering and didn’t know how else to try and fix it . Then I finally learned of kindling , and found this site . I’ve been off everything for 6-7 weeks . I see people with exact symptom profiles and I see a lot of people that don’t seem to show improvement with the hyper arousal especially from sounds . ive already suffered most of my life , and it’s been ten years and I’m not even close to better , in fact way worse. I guess what I need is a success story, for people with similar countless (to long to list) drug trials , that had the hyper arousal from sounds , lights , emotions , etc and eventually showed improvement . I don’t want to break any rules by saying how I truly feel , but this basically isn’t doable . I saw one lady that said she has the auditory arousal issues seven years later .. what?????? No.. can’t, sorry, I’ve already been in hell for 10 plus years . any success stories or other who had this issue and showed improvement WOULD help. I can’t really find any though . thank you for allowing me in the group and for reading
  15. Hello! I am a 22 year old woman who was first prescribed 10mg of Celexa in January 2022, then 20mg in March 2022. I had never had any issues with anxiety or depression, but at the time was in the midst of an Adderall addiction that had left me with depressive comedowns to the point of suicidal ideation. I ultimately said goodbye to Adderall in March 2023 and went cold-turkey without any lingering side effects. I continued to take 20mg Celexa daily until the end of April, when I realized that the medication was numbing my emotions and curbing my anxiety to the point that I felt no urgency over anything. My prescriber's instructions for tapering, I have learned, were much too fast – I cut from 20mg to 10mg at the end of April, and held there for a month before cutting from 10mg to 0mg over the course of June/July. My last dose of Celexa was on July 9th. Symptoms of withdrawal were noticeable shortly thereafter, but have really peaked over the past 2 weeks. I had severe gastrointestinal side effects (took laxatives for 10 days straight), feelings of depersonalization and dizziness, difficulty staying asleep, elevated heart rate, and severe episodes of hopelessness and lack of motivation. I decided to reinstate 2.5mg as of Saturday, which resolved my gastrointestinal issues but otherwise has not made a significant difference yet in terms of mental stability. I am not sure where to go from here – I plan to meet with a new psychiatrist this week, but this has been the most difficult thing I have ever encountered. Curious if anyone has had a similar experience, has any recommendations, or even just words of support. I am so desperate for my life back. Thank you so much.
  16. I’ve been weaning Venlafaxine XR since August 2023. I’m currently down to 37.5 plus 31 beads. The biggest symptom I’m experiencing lately is paranoia. Or maybe they are delusions. Insomnia is slowly improving, dizziness has improved. I’m not eating much, have diarrhea a lot and these intrusive thoughts are overwhelming my brain! I’m wondering how long this will last. I previously weaned off Klonopin and experienced paranoia while weaning as well. Is paranoia a common withdrawal symptom when weaning from antidepressants, as it’s not listed on the checklist. My husband calls what I’m experiencing delusions, so maybe that’s what they are more than paranoia. It seems like it’s much worse in the evenings. Maybe when the Venlafaxine has worn off? I take my daily dose nightly at 10pm.
  17. Link to Benzo Forum Thread - Shep's Journey Link to French translation (courtesy of Erell): Se libérer de la psychiatrie - Shep : « Quitter la caverne de Platon » Leaving Plato’s Cave In Plato’s famous “Allegory of the Cave,” a group of human beings are chained since birth in a dark cave where a fire casts shadows of the world upon the walls. The shadows are all the prisoners know to be true. But one day, a prisoner breaks free and wanders out into the world. Her eyes are blinded by the sudden blast of sunlight and she is unsure of her reality and at times, longs to be back inside the familiar darkness. But as her eyes adjust, she is in awe of this new reality — people, nature, her own reflection! When she returns to the cave, the other prisoners laugh at her story in disbelief. . . . And so I left psychiatry — a dark cave of drug dependency, incarceration, deception, violence, mystification, and social control. The empty shadows on the walls that message this non-reality based belief system of mythical “mind diseases” fade out and a beautiful new reality unfolds before me. After 30 years, success from such an experience is a process, not a singular event. There may still be some unexpected waves, but that will allow the experience of re-emerging from periods of darkness with even more skill and resilience. For me, this part of the journey is very similar to the final phase of the grieving process. As Francis Weller reminds us in the book The Wild Edge of Sorrow, grief is sacred work. It’s an important teacher and should be honored, not feared. When symptoms are viewed as teachers and guides and you walk with them with curiosity and not fear, leaving Plato’s Cave turns into a journey of adventure and skill building. My signature symptom was - and is - DP/DR (depersonalization / derealization) and the lessons taught are in mindfulness and becoming The Observer. (I wrote about The Observer in several places in my benzo thread). I still have some lingering DP/DR, but this is a symptom I carry out of the cave with me, as I'm still learning from it and no longer view it as a problem but as a valued guide. Never give up — your new world awaits you. For many of us, it’s a brutal trip. So travel lightly and listen carefully to what your teachers and guides are telling you. As painful and confusing as it is, these symptoms are here for a reason. At five years off all drugs (from 30 years use), I can now: Run 30 - 60 minutes, four days a week, along with doing yoga and strength training. Runner’s high is beautiful! Bike 30 miles a week - urban cycling is now my main transportation to and from work because of subway and bus delays due to COVID-19 Work 40 - 45 hours a week (was unemployed for around 9 months due to severe akathisia and DP/DR) See the world with 20/20 vision (with glasses) - since last August (before that, my focus was in and out and I wasn’t able to get an accurate eyeglass prescription) Read books with a high level of concentration during windows. I get lost in activities now and experience a sense of “flow” when reading, working, exercising, and playing music for hours at a time Feel music deeply to the point of being moved to tears at times Experience powerful levels of spirituality and connection with the universe Sleep a restful 6 - 7.5 hours a night most nights (Netflix is a treat when insomnia hits now because I know the insomnia wave will pass and I like the excuse to watch movies in my favorites list) About me: 52-year-old female, currently working full time, no family, studio apartment, still navigating my way back into more social situations, complicated by the city’s partial shut-down due to COVID-19. Entry into psychiatric drugs: forced “treatment” in private and state psychiatric prisons off and on from the age of 17 until 21 for so-called “psychosis.” Gaslighted into long-term drug compliance with the lie that neuroleptics are a neuro-protective agent against brain damage caused by so-called “psychosis.” Never told about dopamine supersensitivity or tardive dysphoria. Drug and label history: 30 years of neuroleptics, benzodiazepines, z-drugs, so-called “anti”-depressants, and amphetamines. Labeled with “manic depression” and “PTSD” from years of physical and sexual abuse as a child. The “chemical imbalance” myth dominated the narrative because psychiatry replicates the patriarchal and paternalistic abuses of the nuclear family (and the larger political structure) within a medicalized context. This is not an accident. This is how the system is designed. Date of last drug taken: May 22, 2015 Reason for exiting the cave: After having spent more than 25 years working low-level jobs and bouncing from here to there, I descended into cognitive decline with voices and visuals, disassociation, akathisia, and suicidal thoughts. A psychiatrist suggested another change in drugs but — too fast, too soon, leading to a nervous system crash. After being threatened with forced “treatment” in the state psychiatric prison again in early 2014, I found Robert Whitaker’s book Anatomy of an Epidemic in a random Google search on my phone. The realization I had been poisoned was enough for me to control my behavior and save myself from further “treatment.” The psychiatric system disables and kills people. That’s not an abstract concept when you’re at the receiving end of forced “treatment.” Method of coming off psychiatric drugs: cold turkey and rapid taper off a cocktail of Seroquel, Viibryd, Klonopin, Sonata, Dexedrine, and Halcion (NOTE: I do NOT recommend this method of withdrawal - I didn’t find the withdrawal forums until I was almost completely off all drugs. Stay safe and taper if at all possible). Favorite non-drug coping skills: Shep’s Toolkit. For me, the non-drug coping skills were not optional. I still refer to this list and have tons more bookmarked in folders on my laptop. Mooji and Alan Watts are still my go-to sources for calming. The un-patienting process: During recovery, I began reading a lot of anti-psychiatry literature. Dr. Phil Hickey’s article sums it up well - In Defense of Anti-Psychiatry. Anti-psychiatry gave me the language to understand and name the world around me. Dr. Thomas Szasz is a major influence in my understanding of this world. He understood the power structure of psychiatry better than anyone I've read so far. Dr. Bruce Cohen's Psychiatric Hegemony: A Marxist Theory of Mental Illness helped me understand psychiatry's political structure. Psychiatry is about power and politics, not medicine. Psychiatry is not broken. The system was designed this way. Psychiatry is not a legitimate field of medicine and cannot be reformed. It needs to be abolished. To not message this would be to condone a form of structural violence that not only has disabled and killed millions of people, it also maintains and even furthers the systemic social and economic injustices these individuals represent. I hope one day, those still trapped in Plato’s Cave will be released and the cave will be sealed shut.
  18. I am desperate for some help. My story is long, so if you read it entirely, I sincerely appreciate it. I was on SSRI's for about 18 years, since age 11. I added in wellbutrin for about the last 7 years to counteract the side effects of celexa and lexapro. Eventually I had to add in buspar because my anxiety was uncontrolled. I felt better for a while, but when it got worse, I decided to see a psychiatrist. My primary doctor had been prescribing my meds previously. The psychiatrist tried me on zoloft, lamictal, paxil, and abilify. At the end of it, I was on paxil, wellbutrin, and abilify. I had taken abilify for 10 days and had a night where I vomited 6 times; I had not vomited in about 10 years. My psychiatrist told me she felt I had serotonin syndrome and instructed me to discontinue all of my meds immediately. She gave me klonopin to get through withdrawal. I trusted her and did not know any better. I thought I would be okay. I had all of the typical withdrawal symptoms, but shortly after, started to experience new symptoms/injuries/illnesses. I started having panic attacks which I never had before. I started to have muted and painful orgasms, and then came pudendal nerve pain. I tried to reinstate antidepressants 4 months later, but they have only made me feel worse. I'm experiencing side effects I've never had before, even on AD's I've previously been on with no issues. I will attach a medication timeline and a symptom timeline. I have a new psychiatrist and he does not know how to help me except to keep trying me on medications. I'm terrified of them now, but all in the same, I know I can't stay this disabled for an indefinite amount of time. I lost my job due to dizziness/dysautonomia/swaying etc. If anyone has any advice for me, I would really appreciate it. I'm feeling very lost and alone and terrified. I saw numerous specialists who all told me I had anxiety and needed pills; not that my brain and body are injured and destabilized. As of today I am still on klonopin (0.25mg twice daily) and tapering off of lexapro 0.5mg every 4 weeks (currently at 1.5mg, experiencing withdrawal symptoms, set to decrease to 1mg on saturday 1/1/22). I cannot taper off klonopin until I'm done with the lexapro taper. April 29th- discontinued paxil (20mg) and Wellbutrin XL (150mg) May 2021- muted and painful orgasms May 2021- numbness/tingling in extremities May 2021- panic attacks started July 4, 2021- pudendal neuralgia/tailbone pain started July 2021- waves of depression started July 20, 2021- carvedilol increased from 1 q12h to 1 AM and 2 PM August 11, 2021- BPPV maneuver (half somersault)- PPPD started August 13, 2021- mouth twitching (due to Compazine) August 25, 2021- clonazepam prescribed by primary doctor August 31, 2021- jaw clenching (due to Trintellix prescribed by primary doctor) August 2021- hair falling out in clumps September 2021- dysautonomia/POTS started September 2021 (after reinstating Lexapro per psychiatrist)- RLS, migraines, tinnitus, ear ringing, constant music in my head again October 2021- rashes started October 2021- PPPD diagnosed after vestibular testing October 2021- left shoulder popping October 2021- brain fog, memory issues, trouble word recalling November 2021- muscle spasms (everywhere) November 7, 2021- left knee popping November 7, 2021- right shoulder pain November 11, 2021- right shoulder popping November 11, 2021- jaw popping November 12, 2021- cold sensation and nerve sensations coming from tailbone November 15, 2021- right shoulder pain and weakness November 16, 2021- decreased carvedilol back to 1 q12h December 9, 2021- blisters on top of hives December 10, 2021- cardiologist confirmed dysautonomia due to discontinuing antidepressants December 10, 2021- medial right knee pain December 24, 2021- pudendal neuralgia symptoms back to square one (pins and needles, burning, stabbing, hypersensitivity and severe pain) Celexa from 2003-2011 Cymbalta for 5 days in 2009- felt horrible like I was dying Celexa + Wellbutrin from 2011-2014 Lexapro + Wellbutrin from 2014- 03/2017 Lexapro + Wellbutrin + Buspar from 03/2017-2018 Lexapro + Wellbutrin + Buspar + Carvedilol (carvedilol introduced for physical forms of anxiety high BP high HR) from 2018-2020 Zoloft + Wellbutrin + Buspar + Carvedilol from Dec. 2020- Feb. 2021 Zoloft + Wellbutrin + Carvedilol + Lamotrigine (lamotrigine 2 weeks) Feb. 2021- lamotrigine caused stiff neck, increased anxiety, short term memory loss, overall floaty feeling in my head Zoloft + Wellbutrin + Carvedilol March 2021- zoloft helped with ocd and depression, but not anxiety Last dose of Zoloft April 1st Paxil + Wellbutrin + Carvedilol March 2021- April 2021- still had some anxiety with paxil April 15th, 2021- April 18th, 2021- trazodone 50mg April 19th-April 28th – Abilify added. On the 28th, up all night vomiting/diarrhea April 29th, 2021- discontinued meds cold turkey at Jaime Mendoza’s instruction (except carvedilol)- suspected serotonin syndrome 5/19/21-5/23/21 Seroquel (12.5mg)- made me very dizzy and I was already very dizzy from withdrawal (pre pppd) 6/22/21-6/30/21 Prozac (10mg)- heart was racing and pounding, chest hurt, increased blood pressure. Instructed to stop and see cardiologist: heart monitor and echocardiogram normal, cleared to take meds on 8/20 8/20/21- Pristiq er (50mg)- severe diarrhea, nausea, woke up at 1am having a panic attack, face green, eyes dilated, shaking, sweating and about to vomit 8/31/21-9/22/21 Trintellix (5mg)- jaw clenching, teeth clicking, brain zaps, increased dizziness, increased anxiety, nausea/vomiting, increased headaches, dry mouth, vivid and frightening dreams, increased panic attacks and pseudoseizures, itching, some blurry vision, gas, worsening depression, irritability 9/23/21-10/8/21 Lexapro (5mg)- Palpitations/pounding heart (mostly at night), Ear ringing, Tinnitus, Bad dizziness/off balance/increased 3pd, Nausea, Racing thoughts, Restlessness, restless leg syndrome 10/9/21-11/5/21 Lexapro (2.5mg) 11/6/21-12/3/21 Lexapro (2mg) 12/4/21-12/31/21 Lexapro (1.5mg) 1/1/21-1/28/22 Lexapro (1mg) 1/29/22-2/25/22 Lexapro (0.5mg)
  19. Unsure if I'm posting in the right place but this is somewhat of an introduction. 1.5 years ago I started on 20mg of Prozac for OCD. There was restlessness with starting but it went away. Gradually I tapered down to 10mg of Prozac which I was on for a full year. 2 months ago, I felt the sudden onset of a a very severely agitated feeling. It was very vague but I can pinpoint the exact moment I noticed it -- I was sitting, doing nothing remarkable, and unstressed. I had felt something like this before throughout my treatment but it was very very temporary and felt more like an agitated depression brought on by external circumstances. When this feeling started I could not pinpoint anything else as the cause. Things were good in all parts of my life. I had not messed with the dosage of Prozac at all for a year. Is it still possible that the Prozac is causing this long term agitation/akathisia that I still experience today? A month into the feeling I decided to taper off Prozac completely. I experienced very little withdrawal...just mild headaches and dizziness. The akathisia didn't get worse or better. But it is still quite bad. And the longer it continues the more hopeless I become and probably the more depressed as well because I can't see a life without this agitation anymore. Started on some Klonopin to treat the restlessness and help me sleep. Has anyone else experienced akathisia without a dose change? And also only being on a low dose?
  20. Here is my story. As an adolescent and college student, I suffered from anxiety and in particular social anxiety. I finally sought psychiatric treatment in senior year of college (year 2014) as I also started getting major depressive symptoms and was prescribed Zoloft (at 100 mg for 7 years, then tapered to 50 mg for the remaining time I was on it; I did not take any breaks, was always on it during this time; mainly had some sexual side effects, a bit of emotional blunting, but overall really manageable from side effect standpoint, nothing major). It was highly effective at treating the physical feelings of anxiety and healed me mentally as well, slowly improving and lowering social anxiety and my depressive symptoms. In late July of 2023, while on 50mg I decided I was in a good place and found a few of the side effects annoying, and (unfortunately) self-tapered off the 50 mg (50 to 25 to 12.5 over around 6 weeks) by mid-September. As I tapered, I felt no increase in anxiety or depression (and had not been feeling these in a significant way for a long time – in fact I was the happiest I had probably ever been in my whole life, which is what prompted me to think I did not need the Zoloft any more), or any of the symptoms I took it for the in the first place, and experienced minimal ‘discontinuation’ symptoms as well. Then, about 6 weeks after stopping, in mid-November I had several things pop up at the time I did not recognize as relapse/discontinuation, but almost certainly were (GI distress, nausea, constipation) – these were separate ‘episodes’ that occurred, and there was spacing in between them. December 10 is when the true full relapse began: I woke up in the middle of the night feeling uneasy, with chills, got bad night sleep / struggled to get back to sleep, following night at girlfriend’s had panic attack come out of nowhere- chills, shivering, feeling anxious not self, thought I was going to die- walked around and talked it out, died down in 20-30min… but for rest of night felt uneasy, struggled to sleep / got a bad night sleep. Following day woke up feeling full anxiety in chest, shoulders (adrenaline type feeling) and had racing/worrying thoughts, told primary care provider they refilled Zoloft 25 mg. I took the Zoloft 25 mg had a strong reaction (this was ~2.5 months after my last dose of 12.5mg), both positive in sense it did calm me down but with strong side effects (tingling, no libido, strange sensations (I experienced lower libido, but nothing like the strange sensations when on it before)—like an electric shock in lower body mostly, i.e., what I now know to be the ‘kindling’ effect and you can’t argue against this because human beings can’t natural produce electric shock sensations internally even as a manifestation of anxiety), deterring me from wanting to take it again, still got pretty poor sleep that night but not horrible. Did not take Zoloft Wednesday because concerned about side effects, still felt anxious / off and got poor night’s sleep again. I met with primary care thursday, at doctor’s office Thursday had a panic attack that did die down, they referred me to psychiatrist. On Friday took 12.5 mg Zoloft since they said it wouldn’t make a difference either way at that dose and felt more relaxed but again had weird side effects. The next day I started to feel weird, and took 12.5mg to take the edge off (in retrospect, not how Zoloft to be used but I was in an irrational, anxious state), made me feel calmer but still got a bad sleep. Sunday morning felt very off, like panic building so took 25 mg Zoloft initially calmer but panic attack did not stop ended up going to ER, had elevated BP/HR otherwise fine, and gave me low dose of lorazepam, talked it out, calmed down. Also trazodone for sleep, ended up sleeping very well that night for whatever reason. The next day felt a bit weird but also a bit recovered, around noon felt growing depression feeling so took 25mg Zoloft, then that night really struggled to get sleep, next morning also feeling off, had panic attack, ended up calling 911 evaluated in ambulance, just elevated HR and BP, calmed down, flew home that day (took Zoloft 25mg at noon because could feel growing depression feeling again). Had another panic attack and went to the ER one more time (this was last day I took Zoloft 25mg). I then started on my newly found psychiatrist’s (yea… unfortunately did not have one for a while) plan of 0.5mg/night clonazepam and 150mg Wellbutrin (since starting the 0.5mg clonazepam, no true panic attacks have occurred), unfortunately even with taking the Wellbutrin in the morning, I got no sleep that night (got hypnic jerks that kept me awake), told me psychiatrist, he told me to stop and we’d re-evaluate in a few days. Then following two nights no sleep, the psychiatrist kind of gave up on me, so then took a few days to find a new provider. Who started me on 5mg Lexapro (and continue 0.5mg/night clonazepam) – the main side effects were getting no sleep (down from 5-6 hours previous two nights) both nights I tried it and constipation (but other than that nothing bad). I took a break for a day and re-tried in the morning, then was able to get some sleep. Over a 5-week period, I vamped up from 5 to 7.5 to 10mg/morning Lexapro, and tapered down to 0.25mg/night clonazepam (tapered down regardless of impact on sleep because I did not want to become dependent). Since starting the Lexapro, there has been continued improvement in daily functioning, reduction in anxiety (in particular better control over thoughts), mood (continues to improve actually – in many ways getting back to old self despite being sleep deprived); I continue to feel I am approaching ‘normal’ / being myself more. However, there is still something major that is very off: I do not feel exhaustion/tiredness (OR anywhere near as much like **** as I should after a poor night’s sleep, I am also strangely am able to focus better and in a better mood than I’d be under normal circumstances) during the day (or a very limited amount of it), and continue to get poor night’s sleeps (I have not taken a single nap or dosed off at all since December 10… I even took 5mg ambien in the middle of the day (long story) and that failed to make me fall asleep). It is often challenging for me to both fall asleep, and guaranteed I will wake up at least 1-2 times throughout the night (and sometimes during these instances I cannot get back to sleep), and I can never sleep in past 7am. The worst nights are usually 1.5-2.5 hours, the better ones are in the 4.5-6 hour range (I had a streak of 0 hour sleep for 3 nights in a row after going down from .5 to .25mg Klonopin too early, then went back to 0.5mg and made taper more gradual). I have had several nights of 7-8 hour sleeps, but with only a few exceptions these have always been after taking a sleeping drug (and always the 0.25mg Klonopin as well). During the nights, I will sometimes wake up with a faster heartrate, night sweats, urinate frequently, when trying to fall asleep I have experienced minor hypnic jerks (though a lot less bad than the ones after taking the Wellbutrin) – a lot of these have admittedly declined in frequency (and some I think have been in reaction to taking certain sleep meds the night prior, e.g., Mirtazapine), but nonetheless my average amount of sleep has not improved that much, still waking up often and not getting very many hours (interestingly I also pretty much always remember my dreams). For awareness, I have tried Ambien (just 5mg) which did not work at getting me to sleep (did make me extremely drowsy though.. also felt depressed/anxious like 5-6 hours of taking it), Trazodone (25-100mg, it was effective, but started realizing it might be causing tachycardia and made me act weird in the mornings so stopped taking it), Mirtazapine (~4mg, probably the best sleep I’ve had during the whole experience slightly over 8 hours only woke up once, obviously made me extremely drowsy, but the next morning was a zombie, then in the afternoon started experiencing hypersensitivity and getting jolts of anxiety in reaction to things like dogs barking while on a walk), Lunesta (1mg – was effective 6-7 hours helped with falling and staying asleep, but did some GI distress, and felt causing some sort of mini-withdrawal since on the Klonopin / not advisable to take z-drug with benzo), and Hydroxyzine (25-75mg – this has been effective, I think become a bit less effective over time but still helpful, some side effects getting better, notable so want to avoid taking every night); for supplements I take 2mg melatonin, 300mg magnesium, vitamin D3, I try going to bed at consistent time, go on daily 30+ minute walks, employ diaphragmatic breathing, though admittedly have more to learn on sleep hygiene. All of this said, I would love to hear people’s thoughts on the following (and I am going to an online forum because I have brought some of this up to supposedly highly qualified Ivy League-trained psychiatrists who won’t really know what to do). (1) Is there any possibility I did not give re-trying Zoloft a proper chance, and getting back on it at some TBD dosage is my only chance to get back to normal? When I took it initially it did feel weird, but all of the effects I’d be willing to put up with if I got back to feeling normally and being able to sleep properly again (even though as I took it later in the week I noticed most decline in intensity). Additionally I took it incorrectly, starting on a Tuesday at 25mg, then taking 12.5mg on Friday, then 12.5mg Saturday, then 25mg for just a few more days before stopping. You may think, why on earth would he get back on that he still had panic attacks on them (and yes, they were potentially worse because I took it, but I took it improperly, which likely completely threw off my brain). In comparison to Lexapro, when I first took it it did not interfere with sleep like Lexapro did (two nights in a row with no sleep, and still after 5 weeks on Lexapro I am getting poor sleep, though some components may be improving). It did have a calming effect, did have a somewhat numbing effect and made me feel better than I should have (given the overtiredness), but still that was early days and towards the end 4th day or so of using that became less the case. a. I read in some cases if you react strongly to the initial dosage that is “kindling” and does not mean the drug will not work, but just you are extra sensitive to it. My brain clearly grew dependent on Zoloft over the 9+ years I was on it and may need the drug to get back to normal. I had not taken it long enough the second time (only 4-5 days) to tell if it could properly reduce anxiety, rebalance my brain so I could sleep properly. When I was having the panic attacks while taking it, it had not been long enough to prevent them (would take weeks…), I was also not eating nearly enough (something I realized during my final ER visit when I horsed down a bunch of mediocre hospital food). b. If I were to switch I am pretty sure I’d need to cross taper with Lexapro, because going to 0 on an SSRI I don’t think would be good for me at this point, in particular combining the withdrawal with the sleep deprivation. It would probably be wise to start with a very low amount of Zoloft (like 1 mg?) to minimize any risk of Serotonin Syndrome. c. While I don’t think they take a nuanced approach, and lack a sophisticated enough understanding of SSRIs, have been advised against this by several doctors. (2) Does it make sense to stick with Lexapro, at least for several more weeks, potentially at a higher dose. I am not concerned about the constipation, but obviously if it makes sleep worse that’s a no go. I have noticed continued improvements shifts to normality while on it just not the desired improvement on sleep. In some ways I am happier on it than I was on Zoloft, but still not the sleep improvement—and sleep is huge foe me. If I were to increase the dose I would start going from 10mg to 12.5mg. My GI system seems to be improving (gets less irritated after meals, getting more of real appetite/feeling hunger) a. The recent psychiatrist I saw recommend I try increasing the dose of Lexapro and see how it goes over the next month. (3) Could it make sense to try an alternative SSRI, such as Prozac or Celexa? The key here would be getting brain back to a state where I could sleep. Or a different antidepressant class, but those are second line and known for even worse side effects. (4) Some may say the Klonopin, especially in the context of tapering, is hurting sleep (which it probably is but I doubt that severely given I have held at .25mg for 3 weeks), and right now I am still suffering from the bad sleep deprivation, have lost 15 pounds – suffering through potential benzo withdrawal might not be something I can handle now. I have no desire to ever take a dose higher than 0.25mg, and eventually 100% want off of it, preferably as soon as possible. (5) In terms of other treatment options for the insomnia, I have not yet tried Seroquel but have reservations given I already have not had the best experiences with Trazodone and Mirtazapine – if I were to try Seroquel maybe like ¼ or ½ the usual starting dose of 25mg… Would rather try one of the alternative treatments, CBD/cannabis if those really do sometimes work. a. I have heard CBT-I, ketamine infusions, psilocybin microdose, CBD, cannabis, maybe be helpful – would love to hear anyone’s thoughts on any of these or other treatments
  21. Hi, I am new here, I was put on klonopin for 6 months then I had to taper because I developed a tolerance to it. Accidentally did a rapid taper off of it with out realizing how fast and dangerous the taper was. I am suffering from a lot of systems from getting off of klonopin. I am 4 months out since my last dose of klonopin. As soon as I got off of my doc put me on Amitriptyline for sleep. I don’t why I excepted Amitriptyline I wasn’t thinking straight at the time. I just need to now if it is ok to be on a sedative like Amitriptyline while trying to heal your CNS from a benzo like klonopin? I know that Amitriptyline has a long list of symptoms just like klonopin. And I am getting scared that the symptoms from Amitriptyline might be intertwining with the withdrawal symptoms from klonopin.
  22. Please help. Very insane situation and still can’t believe this happened bc I took my K taper so carefully and knew all what to stay away from, persevered thru hell and was get myself back and functionality, love feeling and joy towards end of it. Had sleep come back to 5-6hrs taking .5mg gummy kid melatonin only after last few yrs at 0-3hrs. 4 mos off Klonopin 3 ye taper, 2 months of psych hospital hell all the med changes, 3 days into now Covid positive and all the neuro symptoms ramped up that day. Not sure if it also is Mirtazapine neurotoxicity bc I’m reacting badly after taking now…. Didn’t in psych hospital. All beta blockers trialed one time in in First psych place- early to mid Nov. I'm beyond freaking out as intense panic in gut twisting and turning having jolts in gut. This is all so so so hard. I’ve had 120+ symptoms they K taper so I’m used to persevering through hell, but had been recovering pretty well towards lower doses with anbout 10 symptoms per day varying but predictable ….all hell broke loose at .018mg. Acute was horrific stuck in dark closet for 6-8 weeks as my eyes hurt so bad and akathisia ramped up with any light. then hell began bc I had to go to ER m, ended up in 3 paych hospitals bc of SI and all hell since then. back home now, have covid day 3 that skyrocketed my synproms and now I can’t figure out what this is what’s. had covid pretty bad in Swpt 2022 but recovered in a few weeks, still on .12mg K at that point . Severe body clenching and eye pain and now now Mirtazapine is very drying and can cause eye problems and so freaking out. Had to come off 1 wk Elavil in 2021 bc of eye color changes and 6 wks of hell followed but was still on K at that point. the akathusua is my biggest hardest thing and how it affects so much. I know I made mistakes here recently and went against everything I knew not to take but I was forced to bc I they out in my IV water or forced to take tablets. I had all written out what couldn’t tKe and my family had that and we gave to hospitals and psych places and the nurses and staff intentionally wanted to screw me up more bc I was a ‘broken Betty’ with the akathisia and they didn’t get the aka. They psychologically also put me thru hell to get me to break completely…. I was terrorized. Laying still now body extreme vibration buzzing internally clenching involuntarily jolting involuntarily, This can happen with covid remeron and Klonopin but I've not had it had this severe before. I am unable to lay really. It’s like my brain is screaming inside and I want to scream running…. Again had this to a degree during K taper but not constant. Want to scrape face off, yank eyes out. During acute K I was pulling hair literally out bc aka was so so bad and pulling skin and scraping face. All stuff I couldn’t control. So heartbreaking for me bc I didn’t want to be doing it. I repeat same things over and over fast all day long. Rock at times, just disaster. I already have my body attack my thyroid with hashimotos, I'm susceptible to autoimmune issues and now all of this. My body is on fire internally 30min-2hes after taking 7.5mg Mirtazapine at 9-10pm. Body starts jolting and extreme RLS, eyeballs start shaking and try to roll back in head. Chest pain and heart pain, intense mental akathisia. Stomach rolling. At some point of fallen asleep and then awaken to nightmare and extreme panic chest. Bottom clenching pressure and internal walls on own. It's horrendous feeling. Stomach same. 97lbs. But eat The feeling your being uncomfortable tickled on bones and organs can't do anything to stop it- akathisia. Want to pull everything apart. Can't close eyes during day bc they burn and hurt so badly, pressure and akathisia behind them. Just dart open and so much burning pain and I've tried 3 eye drops types today. Can't even take 15mg armour without severe reaction when I was doing ok at 30mg. Normal amount is 75but was too stimulating initially coming off K so de said I could take lower but now TSh is a 10, yet can’t do much. Vitamin issues d is like 11 3 mo ago, b12 is under 300, I know this is horrendous souls but vitamins stimulated me and I clumsy be outside due ri eye issues. Please help with any encouragement and what talk might think about the Mirtazapine. I’m so angry I’m on this bc it’s not helping and here I persevered thru K taper whole time saying I’d never get back on anything after. they were going to do lithium at place and I said well some people have had ok time with Mirtazapine for akathisia bc I was terrified of lithium. So total of a month being on, changed bransa a week ago coming home bc didn’t know brand from hospital and my pharmacy gave what that thought . I am devastated annd have been and to survive minute to minute. This is like worst horror story I could ever imagine and my family is overwhelmed (live with brother who can’t handle much of this anymore after 3 1/2 years ) parents are a basket case and in 70s so they just can’t have all the stress I’m putting on them. I’ll try to edit with help later bc eyes are hurting so bad and body jolting about. K march 2020 after in hospital with covid type symptoms and antibiotic rash-adverse reaction. Told had severe anxiety and Gad disnt know better had never had any of anxiety in 37 yrs. .75mg tapered to .005mg in Aug 2023 Will update more later
  23. Hi Everyone, Sorry about any misspellings or rambling/fragmented sentences. I'm in the middle of a wave of high anxiety with severe insomnia. I figured it was time to give this a shot. I've been on and off Lexapro since 2014, mostly on. I had never taken a medication my whole life, barely took headache meds. Very active my whole life. I had flare ups of anxiety since I was a young child but I never knew what it was and just powered through. I'd always distract myself by working out, running, video games, etc. In 2012 my four year old son was having a lot of health issues and the doctors had him going through a lot of tests. This went on for over a year. My wife was scared, my son was scared, I was terrified. The cancer word was being thrown around. I was a ball of nerves, I couldn't outrun the anxiety this time. Our GP suggested I try an AD. I wasn't sure but my family really pushed me to try it as a crutch. I started taking Zoloft in March 2014 and I took it for 3 months. It made me insanely tired. I stopped working out and I could barely get out of bed in the morning. I wasn't anxious but I wasn't happy so I talked to my GP and he said I could just stop. I CT'd and got some minor brain zaps but nothing too bad. About a month later I had a full blown panic attack in Target, my first ever panic attack. It absolutely floored me. Then I had another panic attack a few weeks after that. I went to the hospital, got checked out and was told talk to my GP and see a psych. GP said you didn't like Zoloft, try Effexor. Also was told this was my mental illness progressing and now I would need this meds. I took Effexor that night and after about 3 hours I had worse anxiety I've ever had. Called GP practice, they said keep taking. I took it 3 more days and had to leave work and go to the hospital. I was in terrible shape with extremely high blood pressure and manic. I went inpatient where I saw a psych doc who put me on Lexapro 20mg and Klonopin 1 mg a day. I got out a week later and was allowed to work from home. I ended up back at work 2 months later after I started to feel better. I wasn't great but I could deal. You know the deal. Better more days than not. I started to gain weight, I stopped exercising, and I stopped socializing with family and friends. In July 2016 I started a taper. I went down 5mg a month and jumped in Oct 2016. I had a bad two weeks after every drop but got through. In January 2017, 3 months after I jumped off Lexapro, I started to get bad anxiety again. I was still on the Klonopin, now 1.5mg a day. It didn't help. My psych believed this was not withdrawal but my symptoms coming out again. She put me on Prozac and I had another bad reaction. Three days in I started having panic attacks and I ended up with insomnia for a month. I ended up back in the hospital where they put me back on Lexapro 20mg. I ended up getting more out of shape and lethargic. My BP, Cholesteral, and Sugar were up. I started CBT and pushed myself to exercise. I could not lose weight. I ended up finding a psych doc in my area that is great at tapering off benzos. So I joined a Benzo recovery discord and became active on Benzo Buddies. I tapered off 1.5 mg of Klonopin from December 2018 to December 2019. Actually took my last dose on Xmas eve. Coming of the benzo was terrible but I did it. It was a long terrible year. Next I turned my attention to the Lexapro and my psych doc got me liquid and I went down 1 mg every week from February 2020 to August 2020. When I jumped in August I had about 2 weeks of pretty bad symptoms but they resided over time. I was doing really well, very active and getting good rest. All of sudden I woke up insanely anxious last Thursday and it's been that way since. I'm having insomnia, insane anxiety, not hungry, face flushed, gastro issues and constant fight or flight. Just coming here for some type of support.
  24. Hi, I was on .5 Mg 1x day of Klonopin for 28 years, my GP updoses it to 3 x day....terrible pyridoxal reaction, Dr. added 10 Mg Prozac which helped the terrible reaction. Did a 2 year taper off Klonopin. 6 Months after being off I started a 5 - 6 month taper off the Prozac. Been off Klonopin 15 months; Off Prozac little over 4 months. Having terrible monophobia (which I kinda had over these last 28 years), huge terror, obsessive thoughts, ruminating thoughts, extreme anger / rage, insomnia. I called both my dr. and therapist crying today. Dr. wants me to re-instate the Prozac. Is this still benzo withdrawal or Prozac wd ??? I am SO scared of meds.....I wonder if this is me or meds ???
  25. I'm start to taper klonopin becouse I feel that klonopin is making me the most problems,in fact I suposted to be tapering luvox first but klonopin is asking me more and more to feel some sort of normal so i decated to taper it first,I'm also on diazepam so I hope that I am on the right plce to have some answers becouse Here it is some sort of diferent that on benzobuddies becouse you say to taper ssri first but becouse I am on two benzos maybe it is the right way to taper one benzo then luvox,tnx and be well
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