Marmite

UK Members -- Write MPs about Drug Dependency Progress in the UK.....

22 posts in this topic

Progress at last! The Council for Evidence Based Psychiatry in the UK have pushed through the following actions to tackle dependency on antidepressants, benzos, z-drugs and psycho-active prescribed drugs.

 

The British Medical Association have been looking into the effects of prescribed drugs with various agencies and the following article explains the actions that were agreed in February 2016 to tackle this problem.  The chief actions outlined are listed below:

 

Following the meeting, the BMA has issued a document which details the agreed areas for action.  These include:

  • calling for a national helpline for prescribed drug dependence
  • writing to NICE proposing a review of the effects of withdrawal from psychoactive prescribed drugs
  • establishing a working group with the aim of establishing a multi-disciplinary quality standard guideline for prescribing
  • undertaking a pilot of the best way to fund and commission local specialist prescribed drug withdrawal services
  • lobbying for changes to the Prescribing Safety Assessment, part of the Year 1 medical curriculum
  • incorporating patient experiences within relevant training programmes
  • proposing areas of additional research to funding organisations, to include research on withdrawal and the harms associated with prescribed drug dependence

It is very encouraging and I hope that all UK SA members will contact their local MPs to offer their stories, peer support (if they are able) and endorsement of these initiatives.

 

The link to the full article is here: http://cepuk.org/2016/03/07/british-medical-association-commits-various-actions-tackling-prescribed-drug-dependence/

 

 

 

 

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Very good news, thank you, Marmite.

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there is a website called change.org in the UK which works by canvassing support for campaigns via members of various social media sites. Perhaps we should put this together as a petition on change.org and see how much support we can drum up for the proposed actions.....before they fade away due to government cuts !!

 

Any ideas?

x

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Wish I lived there.. 

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where do I sign up? time to make a change.

 

DC.

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I'm up for it too - just need a bit of time to work out how to go about it - my cognitive functioning is not that good so it can take me a while to think things through !! Will take a look at change.org website In the meantime.

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I've sent a contact message from the website http://cepuk.org to ask if I can offer support and how best to raise local / nationwide awareness.

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Thank you both for trying to help out. I've contacted the CEP and offered my story and help too DaddyCee.  I see you've had some tough drugs to withdraw from....no wonder you're willing to support a call for withdrawal support!

 

Out of interest I contacted one of the organisations who are involved in the discussions and their helpline staff knew nothing about it rather worryingly!  They also admitted that there is nowhere for antidepressant users to go in the UK for help with withdrawal and seemed unaware that antidepressant withdrawal was a significant problem....although I was directed to one helpline person who told me he'd taken 3 calls that week from people asking for support with AD withdrawal.

 

Benzo and opoid support is available in the UK - if localised - but there is still nothing for antidepressants.  I'm concerned that with organisations who support benzo withdrawal being the only ones who are involved in these negotiations, antidepressant dependency and withdrawal support may get overlooked.  There was an organisation called CITAp, but they have closed recently due to a lack of funding.  I spoke to their chemist and he confirmed that they set up initially to deal with benzo support, but latterly had moved into AD withdrawal support as well as there was a significant need. They supported my view that Escitalopram was a horrible drug to withdraw from.

 

We need to raise awareness and ask the CEP to ensure that AD users are represented in their negotiations with the BMA.  Could we ALL contact the CEP to request that they represent antidepressant users with withdrawal and dependency.  We don't want to miss out do we?

 

x

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Hi Marmite,

 

I didn't get any response to my email to CEP. I was wondering if you had been more successful?

 

Peace,


DC.

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Maybe we should do this in every country if they have to pay out for treatment on top of disability maybe the pay out they get from suing pharma will no longer be worth allowing them to do business the way they have been .. 

 

but maybe I am kidding myself too....

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it is a nice thought. in the UK there are telly ads now for no win no fee claims against medical negligence. I wonder if prescribing of ADs without proper consent would be able to be claimed on though. I doubt it very much as it is hard to prove and for me it was such a long time ago.

 

DC.

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What about people in the uk who have had adverse reactions to these drugs ?

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Below is a petition for Secretary of State for Health Jeremy Hunt in the UK (920 out of 1000 have been signed):

https://www.change.org/p/secretary-of-state-for-health-jeremy-hunt-make-pharmaceutical-firms-help-users-who-want-to-stop-taking-anxiety-depression-drugs


What we want

We want the Pharmaceutical manufacturers to produce “drug tapering kits” which provide the most commonly prescribed medications in decreasing doses over a period of time.

We need tapering kits to help the millions of users of psychoactive pharmaceutical drugs because:
◦Many tablets are only available in increments that are so large that they are useless for gradual lowering (tapering) of the dose.
◦Liquid forms for some medications are available but tend to be hugely expensive and therefore the NHS will not provide them.
◦Pill cutting is, at best, a hit and miss affair.
◦Many doctors and psychiatrists confuse the symptoms of withdrawal with a return of the symptoms that the tablet was originally prescribed for.
◦These kits would save a significant amount of time for General Practitioners, Psychiatrists and Community Mental Health teams.
◦These kits would help users of psychiatric medications stop taking them safely and in a controlled fashion, giving them control over their drug intake.

The pharmaceutical companies are already set up to manufacture massive quantities of these drugs, therefore it cannot be a huge additional cost to manufacture tablets of decreasing dosages. At most this is likely to be a tiny fraction of a percentage of profit but would win a huge amount of public confidence that the Pharmaceutical firms have their customers safety at heart.



This petition will be delivered to:Secretary of State for Health
Jeremy Hunt

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I wrote to my MP once nice man but never came to anything as usual. You may as well be talking to the wall. I have no faith in MP's to change anything.

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Petition update:

 

 

A very exciting development!
 
 
from James Moore
Caldicot, United Kingdom

15 Oct 2016 — I have some exciting (and slightly terrifying!) news. The Victoria Derbyshire show is shortly going to run an item looking at the experiences that people have taking antidepressants, including the difficulties some users have when attempting to stop. As part of this, all being well, I will have a short live interview about this petition.

This is such a great opportunity to gain some much needed awareness of the struggles that so many have using these drugs. If you can find the time please watch and, even better, contact the show to share your experiences. We need to demonstrate how many are suffering in silence, unable to get the help they need, this will make a huge difference and a real impact. Let’s light up their Twitter feed like a Christmas tree!

The broadcast details are:
- The Victoria Derbyshire show
- BBC 2 and BBC news channel
- Wednesday 19 October
- 0900 to 1100 BST

Contact details:
- Twitter: @VictoriaLIVE
- Facebook: http://www.facebook.com/VictoriaDerbyshire
- Email: victoria@bbc.co.uk
- SMS: 61124
- WhatsApp: 07753 428 430

Thanks so much for all the support.
 

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I would regard this as a well-respected BBC news-related program here in the UK.

Good luck and well done.

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this is not my petition, i only reported this...

 

i think it is good that it will apear on bbc

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