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Antipsychotic survivors? Interested in your stories.


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#1 Wowzers

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Posted 05 April 2016 - 03:04 PM

Haven't seen or heard anything in regards to antipsychotic recovery.

Depakote on and off 2012-2014

 

Topirimax 2015-2016 Quit cold turkey in the middle of Febuary 2016

Tramadol for three months due to stomach ailments which have now healed Jan 2015-March 2015

 

Latuda December 2015 Quit cold turkey in the middle of Febuary 2016

 

"Diagnosis" Bipolar 2....................Since 2004


#2 Meimeiquest

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Posted 05 April 2016 - 03:12 PM

Well, I stopped Zyprexa in 2012 and I consider myself completely recovered. But it was an 8 mo taper, not CT. If you are struggling I would really recommend reinstatement and a proper taper. 3 yrs before that a dr. tried me on 50% reductions and it was impossible.
1st round Prozac 1989/90, clear depression symptoms. 2nd round Prozac started 1999 when admitted to dr. I was tired. Prozac pooped out, switch to Cymbalta 3/2006. Diagnosed with bipolar disorder due to mania 6/2006--then I was taken abruptly off Cymbalta and didn't know I had SSRI withdrawal. Lots of meds for my intractable "bipolar" symptoms.
Zyprexa started about 9/06, mostly 5mg. Tapered 4/12 through12/29/12
Wellbutrin. XL 300 mg started 1/07, tapered 1/18/13 through 7/8/13
Oxazepam mostly continuously since 6/06, 30mg since 12/12, tapered 1.17.14 through 8.26.15
11/06 Lithium 600mg twice daily, 2.2.14 400mg TID DIY liquid, 2.12.14 1150mg, 3.2.14 1100mg, 3.18.14 1075mg, 4/14 updose to 1100mg, 6.1.14 900 mg capsules 7.8.14 810mg, 8.17.14 725mg, 8.24.24 700mg...10.22.14 487.5mg, 3.9.15 475mg, 4.1.15 462.5mg 4.21.15 450mg 8.11.15 375mg, 11.28.15 362.5mg, back to 375mg four days later, 3.4.16 updose to 475 (too much going on to risk trouble)
9/4/13 Toprol-XL 25mg daily for sudden hypertension, tapered 11.12.13 through 5.3.14, last 10 days or so switched to atenolol
7.4.14 Started Walsh Protocol
56 years old

#3 Marsha

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Posted 05 April 2016 - 04:02 PM

I had to stop taking the antipsychotic geodon at 40 mgs after 12 years on high doses. Couldn't complete my taper due to tardive dyskenisia manifesting itself. I am about four months off and I am definitely recovering.
Hashimotos 1988 started on levothyroxine. .1994-2012 all the different kinds of antidepressants. 1997 xanax 1.5 klonopin 2006. Geodon started 2003 160 mgs. Many neuroleptics. Seems like l have been on everything. gabapentin 1800 mg 2013 librium 75 mg then 60mg 5/15 Tapered trazodone from October 2014 450 mgs to march 2015 0 mgs. Geodon reduced from 80 mg 8/2014 to 0 12/19/15. switched to 3 mgs of clonazepam 11/15. 12/16 2 mg clonazepam. Currently 1.88 mg clonazepam 845 mg gabapentin. 88 mcg levothyroxine 10 mcg liothyronine. Tapered prevacid 8/16 after 6 six years use. Supplements:D3 2000 iu. Digestive enzymes, probiotic. No gluten, sugar, dairy. Eating nutrient dense foods to promote healing. Gentle daily walks in the fresh air.

#4 Wowzers

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Posted 07 April 2016 - 08:25 AM

Thanks you all. I appreciate your personal experiences.........


Depakote on and off 2012-2014

 

Topirimax 2015-2016 Quit cold turkey in the middle of Febuary 2016

Tramadol for three months due to stomach ailments which have now healed Jan 2015-March 2015

 

Latuda December 2015 Quit cold turkey in the middle of Febuary 2016

 

"Diagnosis" Bipolar 2....................Since 2004


#5 Ayaa

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Posted 07 April 2016 - 10:39 AM

I was taking Haloperidol  in 1992 for about 1.5 month. Risperidone and Chlorprotixen, then Quetiapine, then Saphris in 2013-2014. Both times I successfully stopped antipsychotics. I have seen other people here who also successfully quitted and recovered.


1992 - Antidepressants, Antipsychotics and benzodiazepines in hospital for about 1,5 month, with PTSD diagnosed. Then I abruptly stopped taking pills. W/d for few months and then no symptoms for many years.

2013 – Doctor prescribes Paxil, Amitriptyline, Risperidone due to insomnia, anxiety and weight loss. Then it starts a long story about changing diagnosis and adding/changing meds. I started to taper in December 2014. Severe withdrawal symptoms for  4 months. Then the 1st window.

April 2015 – meds free. June, July – the first big window which lasted until mid-October. Then a wave again, but this time with new strange symptoms I’ve never had before.


#6 Shep

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Posted 07 April 2016 - 03:53 PM

I'm off all meds after taking cocktails of antipsychotics, antidepressants, benzos, z-drugs, etc. for 30 years. You name it, I took it. 

 

But I'm free now, off all drugs for almost 11 months, and slowly healing. 


Locked up and forced onto drugs as a teenager - misdiagnosed manic depressive.
Developed dependency and stayed on cocktails of drugs for nearly 30 years.

My Intro: Shep's Journey

Last drug cocktail: Seroquel, Halcion, Klonopin, Sonata, Vibrydd, and Dexetrine

After 30 years of polydrug use, completely med free May 22, 2015.

Remaining symptoms: dp/dr with memory problems and insomnia

 

I am not a medical professional, and this is not medical advice, but simply information based on my own experience, as well as other members who have survived these drugs. 

 

 


#7 Wowzers

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Posted 08 April 2016 - 11:41 AM

I'm off all meds after taking cocktails of antipsychotics, antidepressants, benzos, z-drugs, etc. for 30 years. You name it, I took it. 

 

But I'm free now, off all drugs for almost 11 months, and slowly healing. 

Wow......That's terrific and inspiring. Congratulations on your journey to recovery :-)


Depakote on and off 2012-2014

 

Topirimax 2015-2016 Quit cold turkey in the middle of Febuary 2016

Tramadol for three months due to stomach ailments which have now healed Jan 2015-March 2015

 

Latuda December 2015 Quit cold turkey in the middle of Febuary 2016

 

"Diagnosis" Bipolar 2....................Since 2004


#8 Wowzers

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Posted 08 April 2016 - 11:42 AM

I was taking Haloperidol  in 1992 for about 1.5 month. Risperidone and Chlorprotixen, then Quetiapine, then Saphris in 2013-2014. Both times I successfully stopped antipsychotics. I have seen other people here who also successfully quitted and recovered.

Thanks for the enlightenment and congratulations on your journey as well.


Depakote on and off 2012-2014

 

Topirimax 2015-2016 Quit cold turkey in the middle of Febuary 2016

Tramadol for three months due to stomach ailments which have now healed Jan 2015-March 2015

 

Latuda December 2015 Quit cold turkey in the middle of Febuary 2016

 

"Diagnosis" Bipolar 2....................Since 2004


#9 InvisibleUnless

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Posted 11 April 2016 - 12:59 AM

i spent years on a variety of antipsychotics, and am in my fifth year of withdrawal post-discontinuation.  i still cannot hold down a job or drive or cook my own meals most days, and still have antipsychotic-induced psychotic symptoms.  but, i am better than every year previous.  my daily/weekly symptoms still number in the many dozens, and functioning is impaired, but i am able to do some things in life i could not before this point in recovery (or most periods of recovery), like sleep more than a few hours a night, listen to some music here and there, type with a keyboard without reversing letters in every phrase, etc.

 

i havent updated my thread in a while, and am not always active on here, but i hope to catch up sometime.  there are a good number of users on here primarily or additionally suffering from antipsychotic withdrawal, but we are the minority.  personally, antipsychotics have been worse for me in withdrawal than antidepressants, anxiolytics, benzos, and hypnotics.  topiramate probably takes the cake just because seizures and stuff are more serious than dyskinesias and dystonias, despite the greater overall problems presented by antipsychotics in my withdrawal.


from 2005-2012, i spent 7 years taking 17 different psychotropic medications covering several classes.  i would be taking 3-7 medications at a time, and 6 out of the 17 medications listed below were maxed or overmaxed in clinical dosage before i moved on to trying the next unhelpful cocktail.
 
antidepressants (SSRIs, SNRIs, NDRIs, tetracyclics): zoloft, wellbutrin, effexor, lexapro, prozac, cymbalta, remeron
antipsychotics (atypical): abilify, zyprexa, risperdal, geodon
sleep aids (benzos, off-label antidepressants & antipsychotics, hypnotics): seroquel, temazepam, trazodone, ambien
anxiolytics: buspar
anticonvulsants: topamax
 
i tapered off all psychotropics from late 2011 through early 2013, one by one.  for all 5 years since quitting, ive been cycling through severe, disabling withdrawal symptoms spanning the gamut of the serious, less serious, and rather worrisome side effects of these assorted medications.  previous cross-tapering and medication or dosage changes had also caused undiagnosed withdrawal symptoms.
 
brainpan addlepation


#10 cymbaltawithdrawal5600

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Posted 11 April 2016 - 04:11 PM

 

but, i am better than every year previous.

 

For this, IU, you are my hero.


What happened and how I arrived here: http://survivinganti...ion/#entry50878

July 2016 I have decided to leave my story here at SA unfinished. I have left my contact information in my profile for anyone who wishes to talk to me. I have a posting history spanning nearly 4 years and 3000+ posts all over the site.

Thank you to all who participated in my recovery. I'll miss talking to you but know that I'll be cheering you on from the sidelines, suffering and rejoicing with you in spirit, as you go on in your journey.

#11 Marsha

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Posted 11 April 2016 - 07:08 PM

Yes invisibleUnless antipsychotic side effects and subsequent withdrawal is the single most difficult life experience I have ever endured.
Hashimotos 1988 started on levothyroxine. .1994-2012 all the different kinds of antidepressants. 1997 xanax 1.5 klonopin 2006. Geodon started 2003 160 mgs. Many neuroleptics. Seems like l have been on everything. gabapentin 1800 mg 2013 librium 75 mg then 60mg 5/15 Tapered trazodone from October 2014 450 mgs to march 2015 0 mgs. Geodon reduced from 80 mg 8/2014 to 0 12/19/15. switched to 3 mgs of clonazepam 11/15. 12/16 2 mg clonazepam. Currently 1.88 mg clonazepam 845 mg gabapentin. 88 mcg levothyroxine 10 mcg liothyronine. Tapered prevacid 8/16 after 6 six years use. Supplements:D3 2000 iu. Digestive enzymes, probiotic. No gluten, sugar, dairy. Eating nutrient dense foods to promote healing. Gentle daily walks in the fresh air.

#12 cymbaltawithdrawal5600

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Posted 12 April 2016 - 05:20 AM

You're a hero too if you manage to stay off, Marsha. I love you both and all I know is the horror of AD withdrawal. Yours is a special kind of hell I can only dimly understand.

 

Too many have lost their lives to the irresponsible use of APs by the medicos. AD not working? Here, try this!

 

Yeah, guaranteed to make you so messed up you won't remember why you even started on the drugs to begin with (or be a casualty like btdt and nz11 who WEREN'T TOLD WHAT THEY WERE TAKING).


What happened and how I arrived here: http://survivinganti...ion/#entry50878

July 2016 I have decided to leave my story here at SA unfinished. I have left my contact information in my profile for anyone who wishes to talk to me. I have a posting history spanning nearly 4 years and 3000+ posts all over the site.

Thank you to all who participated in my recovery. I'll miss talking to you but know that I'll be cheering you on from the sidelines, suffering and rejoicing with you in spirit, as you go on in your journey.

#13 whitelily

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Posted 12 April 2016 - 08:22 AM

I'm really inspired to hear of successful withdrawals from antipsychotics.  I've tried a number of times but have always so far relapsed.  


History:- 1993: - prescribed Prozac - soon started having momentary episodes of psychosis - 1994: psychotic breakdown  - prescribed high doses of antipsychotics including Depixol, Chlorpromazine (with procyclidine to control pacing) and later prescribed olanzapine, haloperidol, risperidone with different antidepressants (relapsed or crashed each time I tried to reduce or withdraw from meds).  Can't recall all combinations of drugs have been on. 

2007: amisulpride 400mg & venlafaxine 75mg;  2009 - stopped venlafaxine (cold turkey, got brain zaps, didnt know about withdrawal)

2013: Got down to 150mg amisulpride, but hospitalised with v.bad psychosis after dropping to this dose and coerced into taking 600mg (always hit problems when dropping below 200mg)

March 2014:- 300mg, April 270mg, Aug 250mg, Sept 225mg, Oct 200mg, Nov 180mg - problematic symptoms of psychosis, mid-Dec - back up to 200mg, 5th Jan 2015 190mg, 9th Feb 2015 180.5mg crashed badly and hospitalised : prescribed 200mg amisulpride, 10 mg aripripazole, 50 mg sertraline.  Sept 2016: Reduced to 100mg amisulpride, 10mg abilify.  Oct 2016 75mg amisulpride, 10mg abilify.  23/11/16 67.5mg amisulpride, 10mg abilify.  28/12/16 60.75mg amisulpride, 10mg abilify.  shortly after 30/1/17 two days paranoia

 

Current Meds: 30 Jan 2017 60.75mg amisulpride, 10mg abilify (now trying to withdraw from amisulpride first as it has shorter half-life) plus 2000mg metformin for drug-induced type II diabetes

 

Current supplements: fish oil, high dose vitamin C

 


#14 Wowzers

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Posted 13 April 2016 - 01:15 PM

i spent years on a variety of antipsychotics, and am in my fifth year of withdrawal post-discontinuation.  i still cannot hold down a job or drive or cook my own meals most days, and still have antipsychotic-induced psychotic symptoms.  but, i am better than every year previous.  my daily/weekly symptoms still number in the many dozens, and functioning is impaired, but i am able to do some things in life i could not before this point in recovery (or most periods of recovery), like sleep more than a few hours a night, listen to some music here and there, type with a keyboard without reversing letters in every phrase, etc.

 

i havent updated my thread in a while, and am not always active on here, but i hope to catch up sometime.  there are a good number of users on here primarily or additionally suffering from antipsychotic withdrawal, but we are the minority.  personally, antipsychotics have been worse for me in withdrawal than antidepressants, anxiolytics, benzos, and hypnotics.  topiramate probably takes the cake just because seizures and stuff are more serious than dyskinesias and dystonias, despite the greater overall problems presented by antipsychotics in my withdrawal.

Thanks for your experience and input.


Depakote on and off 2012-2014

 

Topirimax 2015-2016 Quit cold turkey in the middle of Febuary 2016

Tramadol for three months due to stomach ailments which have now healed Jan 2015-March 2015

 

Latuda December 2015 Quit cold turkey in the middle of Febuary 2016

 

"Diagnosis" Bipolar 2....................Since 2004


#15 Wowzers

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Posted 13 April 2016 - 01:25 PM

Yes invisibleUnless antipsychotic side effects and subsequent withdrawal is the single most difficult life experience I have ever endured.

Thanks. I was hoping it would be the least horrible but from what i have experienced personally....ARGH!!!!!!!!!!!!!!!


Depakote on and off 2012-2014

 

Topirimax 2015-2016 Quit cold turkey in the middle of Febuary 2016

Tramadol for three months due to stomach ailments which have now healed Jan 2015-March 2015

 

Latuda December 2015 Quit cold turkey in the middle of Febuary 2016

 

"Diagnosis" Bipolar 2....................Since 2004


#16 Wowzers

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Posted 13 April 2016 - 01:31 PM

I'm really inspired to hear of successful withdrawals from antipsychotics.  I've tried a number of times but have always so far relapsed.  

I must say it's getting better for me after almost 2 months. I have windows and the waves seem to be less lengthy. Don't want to talk to fast though for i am appreciative and sometimes according to some of the stories relapse seem's right around the corner. I am hopeful and optimistic as well as staying positive not anticipating the worst, but taking it slow.........The epsom salt baths seem to calm my nerves and muscles. Didn't think anything could work but that does. Wen't out and bought a bunch of different herbs and vitamins but i have now just stuck with a good diet cutting out caffeine and sugar. Scared to put anything in my body really. Even natural herbs...............


Depakote on and off 2012-2014

 

Topirimax 2015-2016 Quit cold turkey in the middle of Febuary 2016

Tramadol for three months due to stomach ailments which have now healed Jan 2015-March 2015

 

Latuda December 2015 Quit cold turkey in the middle of Febuary 2016

 

"Diagnosis" Bipolar 2....................Since 2004


#17 Shep

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Posted 13 April 2016 - 11:58 PM

 

I'm really inspired to hear of successful withdrawals from antipsychotics.  I've tried a number of times but have always so far relapsed.  

I must say it's getting better for me after almost 2 months. I have windows and the waves seem to be less lengthy. Don't want to talk to fast though for i am appreciative and sometimes according to some of the stories relapse seem's right around the corner. I am hopeful and optimistic as well as staying positive not anticipating the worst, but taking it slow.........The epsom salt baths seem to calm my nerves and muscles. Didn't think anything could work but that does. Wen't out and bought a bunch of different herbs and vitamins but i have now just stuck with a good diet cutting out caffeine and sugar. Scared to put anything in my body really. Even natural herbs...............

 

 

If you're already seeing windows, I would also be scared to start taking a lot of herbs and vitamins. Ideally, if you are going the supplement route, it's best to try one at a time at a very small dose to see how you react.

 

I'm glad you're already seeing progress. 


Locked up and forced onto drugs as a teenager - misdiagnosed manic depressive.
Developed dependency and stayed on cocktails of drugs for nearly 30 years.

My Intro: Shep's Journey

Last drug cocktail: Seroquel, Halcion, Klonopin, Sonata, Vibrydd, and Dexetrine

After 30 years of polydrug use, completely med free May 22, 2015.

Remaining symptoms: dp/dr with memory problems and insomnia

 

I am not a medical professional, and this is not medical advice, but simply information based on my own experience, as well as other members who have survived these drugs. 

 

 


#18 CaptainJackSparrow

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Posted 14 April 2016 - 07:27 PM

Hi All. 

I wanted to share my experience because I think it might be helpful. I was on antipsychotics for a very long time - years, I don't even remember how long but I would guess between 5 and 8 years. Last year I made the decision to get off them, I was at 400mg Seroquel at the time. I read a little bit online about how to taper them. From what I had read, antipsychotics had much faster half-life than antidepressants. I think the half-life of seroquel was 4-6 hours while my antidepressant was 26 hours. But from what I read, because of the short half life it was recommended antipsychotics could be weaned off less conservatively. I went from 400mg, to 300, to 200, to 100, and finally went from 100 to 0 within a 2month period. I never regretted that choice and I live fine without them. One suggestion is to not judge yourself on your sleeping patterns, that has helped me a lot. 


2005/6-2013 - A wild rollercoaster of meds I can't remmeber, i was on 40mg of zyprexa at one point daily
2014 200mg Zoloft /5mg Saphris
2015 April 200mg Zoloft /5mg Saphris
2015 May 200mg Zoloft / 400mg Seroquel
2015 June 200mg Zoloft / 300mg Seroquel
2015 July 150mg Zoloft / 200mg Seroquel
2015 August 125mg Zoloft / 100mg Seroquel
2015 September 100mg Zoloft / 50mg Seroquel
2015 October 50mg Zoloft
2015 November 75mg Zoloft

2016 November 100mg Zoloft; 112.5mg Clozaril 


#19 RubyTuesday

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Posted 14 April 2016 - 08:10 PM

was tapering off of Seroquel already when TD & dystonia got really bad so jumped off while working for first time in 10 years. stopped working due to dystonia but have been off for 6 months now and really happy to be off. am taking ballet class again. just stopped Lamictal. medication free now for 23 days.


2002: "Situational depression" 2002-2010:Prozac.Birth Control.2011 Short trials: Paxil, Celexa, Lexipro, Wellbutrin, Xanax, Ativan- Gee, Doc never mentioned protracted AD wd syndrome. Imagine that. 2011-2015. Lamictal. Seroquel. Remiron. 2012: "Complex post traumatic stress disorder." Fast taper of Remiron jumped off June 2013. Slow tapers ever since of Seroquel & Lamictal.  crippling muscle spasms. crying fits. panic attacks. akathisia. nerve twitches. the jitters. the heebie jeebies. de-personal/realization. numbness. tingling. fatigue. lethargy. nightmares.insomnia. weird images. eye pain.vertigo. dizziness. brain zaps. and on and on and on. withdrawal? side effects? which drug? impossible to know. applied for disability. awaiting case to be settled.also back in school slowly & carefully. have not worked full time in 10 years. NOW: Seroquel 12.5 mg. Lamictal 75% of 50 mg. 

GOT DISABILITY. USING THE ROAD BACK JAMES HARPER VITAMIN SUPPLEMENTS. OFF OF SEROQUEL OCTOBER 2, 2015. Tapered off Lamictal approx 5 mg per month until Wednesday April 23 2016 jumped off at about 20 mg. (dissolved in water.) Feel great mentally & emotionally but physically like a mild flu, achey, heavy, dizzy, uncoordinated but nonetheless still better than the last few months of tapering. Worked Fall 2015 while withdrawing Seroquel then quit all school & work again February 2016 in order to get off the drugs.p.s. the worst of the morning panic disappeared the morning I stopped the Lamictal.

http://robertwhitake...n Epidemic.html

 

 


#20 Wowzers

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Posted 15 April 2016 - 10:17 AM

 

 

I'm really inspired to hear of successful withdrawals from antipsychotics.  I've tried a number of times but have always so far relapsed.  

I must say it's getting better for me after almost 2 months. I have windows and the waves seem to be less lengthy. Don't want to talk to fast though for i am appreciative and sometimes according to some of the stories relapse seem's right around the corner. I am hopeful and optimistic as well as staying positive not anticipating the worst, but taking it slow.........The epsom salt baths seem to calm my nerves and muscles. Didn't think anything could work but that does. Wen't out and bought a bunch of different herbs and vitamins but i have now just stuck with a good diet cutting out caffeine and sugar. Scared to put anything in my body really. Even natural herbs...............

 

 

If you're already seeing windows, I would also be scared to start taking a lot of herbs and vitamins. Ideally, if you are going the supplement route, it's best to try one at a time at a very small dose to see how you react.

 

I'm glad you're already seeing progress. 

 

Yeah thanks. Lesson learned. Started to have bad experiences with the ingestion of natural herbs so i cut that out too............


Depakote on and off 2012-2014

 

Topirimax 2015-2016 Quit cold turkey in the middle of Febuary 2016

Tramadol for three months due to stomach ailments which have now healed Jan 2015-March 2015

 

Latuda December 2015 Quit cold turkey in the middle of Febuary 2016

 

"Diagnosis" Bipolar 2....................Since 2004


#21 Wowzers

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Posted 15 April 2016 - 10:20 AM

was tapering off of Seroquel already when TD & dystonia got really bad so jumped off while working for first time in 10 years. stopped working due to dystonia but have been off for 6 months now and really happy to be off. am taking ballet class again. just stopped Lamictal. medication free now for 23 d

Congrats on your journey to recovery........


Depakote on and off 2012-2014

 

Topirimax 2015-2016 Quit cold turkey in the middle of Febuary 2016

Tramadol for three months due to stomach ailments which have now healed Jan 2015-March 2015

 

Latuda December 2015 Quit cold turkey in the middle of Febuary 2016

 

"Diagnosis" Bipolar 2....................Since 2004


#22 lanah

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Posted 27 June 2016 - 06:05 AM

Following this thread. I'm still tapering my seroquel. Feeling very sick.


Several ssri's, antipsychotics, opiads and benzo's since 2003.

Flurazepam: rapid taper after 6 weeks usage in beginning of march 2015

Trazodone: rapid taper from 50ms to 0mgs end of july 2015

Current medication:12 mgs seroquel (from 25mgs)


#23 scallywag

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Posted 12 November 2016 - 11:40 AM

I may move posts that contain questions about an individual's situation to that individual's introduction topic.

 

However a post about getting relief for as little as an hour or a day can be encouraging to another person in a tough wave.

 

Since this is in the Success Stories forum, what do you think about using this thread to share good news you have about your withdrawal and recovery from neuroleptic medication?


This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.
1997-1999 Effexor; 2002-2005 Effexor XR 37.5 mg linear taper, dropping same #beads/week with bad results
Cymbalta (brand name), 60 mg 2012 - 2015; 20 mg to 7 mg in 2016, taper details in this post;
2017: 7.0 (65 beads) Dec.10; 6.3 (58 beads) Feb. 1; 5.6 mg (52) Feb. 22;
Current dose: 5.4 mg (50 beads) 2017-Mar-15
+ Supplements: fish oil (1500 mg EPA/500 mg DHA), Vitamins: D3, K2, C; Minerals: Mg, Se, Cr, I, V
scallywag's Introduction Post
Online spreadsheet for dose taper calculations and nz11's THE WORKS spreadsheet


#24 Marsha

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Posted 12 November 2016 - 05:33 PM

Would it be possible for those of us who have gotten off or are still on or tapering to have this topic devoted to us and our experiences, both the difficulties and the improvements etc. There seems to be no other place for us to share our collective experiences. Just a thought.
Hashimotos 1988 started on levothyroxine. .1994-2012 all the different kinds of antidepressants. 1997 xanax 1.5 klonopin 2006. Geodon started 2003 160 mgs. Many neuroleptics. Seems like l have been on everything. gabapentin 1800 mg 2013 librium 75 mg then 60mg 5/15 Tapered trazodone from October 2014 450 mgs to march 2015 0 mgs. Geodon reduced from 80 mg 8/2014 to 0 12/19/15. switched to 3 mgs of clonazepam 11/15. 12/16 2 mg clonazepam. Currently 1.88 mg clonazepam 845 mg gabapentin. 88 mcg levothyroxine 10 mcg liothyronine. Tapered prevacid 8/16 after 6 six years use. Supplements:D3 2000 iu. Digestive enzymes, probiotic. No gluten, sugar, dairy. Eating nutrient dense foods to promote healing. Gentle daily walks in the fresh air.

#25 scallywag

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Posted 13 November 2016 - 12:03 PM

Good point, Marsha. Thanks for posting that. If folks want a place to connect around their shared experience with neuroleptics, I've created a topic in the Relationships forum.
 
Being on or tapering from neuroleptic medications ("anti-psychotic" meds)
 

Let's keep this as thread for posts about successful tapers from this class of medications.


This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.
1997-1999 Effexor; 2002-2005 Effexor XR 37.5 mg linear taper, dropping same #beads/week with bad results
Cymbalta (brand name), 60 mg 2012 - 2015; 20 mg to 7 mg in 2016, taper details in this post;
2017: 7.0 (65 beads) Dec.10; 6.3 (58 beads) Feb. 1; 5.6 mg (52) Feb. 22;
Current dose: 5.4 mg (50 beads) 2017-Mar-15
+ Supplements: fish oil (1500 mg EPA/500 mg DHA), Vitamins: D3, K2, C; Minerals: Mg, Se, Cr, I, V
scallywag's Introduction Post
Online spreadsheet for dose taper calculations and nz11's THE WORKS spreadsheet


#26 catnapt

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Posted 29 November 2016 - 02:28 PM

I was on stelazine only when forced drugged in a mental hospital in my teens. Interestingly, I dont recall them ever giving me an Rx cor when I was discharged... I always believed it was more of a chemical restraint for us wild and crazy teenagers. :/

 

I would not have recalled any WD symptoms, but I had dystonia from taking it and was given cogentin, I believe. Or artane? this was in the 70s, mind you, a long time ago

 

I was forced to take Haldol for many months while impatient in a state hospital- never took it outside the hospital. Got  akathesia from haldol when they changed my dose and was given some drug for that side effect.

no wait, I did take ONE pill of haldol outside of the hospital and was instantly suicidal, so I knew that the drug was bad for me.

 

I don't recall any WD effects although I do recall being extremely tired and sleeping for long periods, that might have been a WD symptom I don't know

 

 

I was on zyprexa for a "manic episode" and CTed off that (but also CTed off depakote at the same time) I had a crushing depression afterward where  it hurt to breathe, I also had a lot of anxiety and was taking klonopin for that. I imagine a lot of the stuff that happened when I Ct'ed were WD symptoms but I never made the connection and of course, the dr never suggested that I was in WD

 

I was on a very high dose of seroquel for at least a year, maybe two? I had severe WD symptoms from Ct'ing off that but did not know that's what it was at the time. I had to take atenalol because my heart rate was so high. I have permanent heart muscle damage from that, but not enough to impair the function of my heart (not from the atenolol but because my heart rate was so high for so long BEFORE being treated for it) Lucky for me  I have a strong  heart to begin with, so the damage is not a concern for me now.

 

I was being switched around on all sorts of different drugs at the time, risperdal, trilafon etc and so, there ware side effects and WD all happening at once

amazingly, I was raising my daughter as a single mom thru all of this and did an OK job at that!

 

I have not been on any antipsychotics for over 10yrs and I believe i recovered from even the worst of the WD in a year or less, even thought it was CT and multiple drugs

 

I was not however, drug free- I have been on an SSRI (zoloft, first, then celexa and then lexapro) since er, sometime in the 1990's

I am not yet drug free, I am tapering off of that lexapro after being on it for about 13 yrs

 

almost there, though!! almost there!!!!!!


1974-2002 many psych meds, all types; longest used drugs include lithium, seroquel, SSRI's zoloft & celexa; many CT's off drugs

2002-2015 on varying doses of lexapro, as  high as 40 mgs, but usually 20mgs

June 2015: tapered too fast to 2.5mgs, then to 2.5mgs every other day Dec 2015:  found SA forum; holding at 2.5mgs 

Early May 2016: jumped off at 2.5mgs, not smart- crashed in late Sept.

Oct 26 2016  reinstated liquid lexapro 0.05ml/day at night, dose +/- til settling on 0.15BID (0.3/day)= windows and waves

Jan 8, 2017 too quick switch to single dose in the morning, 0.3mgs (bad mistake, led to a crash)

Jan 12 added low dose zyprexa for SI, took infrequently as rescue med, last dose Feb.15

Jan 26 lexapro 0.27mg Feb 25 lexapro updose back to 0.3mg due to unrelenting severe insomnia

March 1 insomnia got worse, back down to 0.29 for one day, then 0.27, then 0.25- improving!! March 17 0.24

March 7 added low dose lamictal

Supplements: vit D-3, Magnesium taurate 250mg, chromium, pro-biotic, biotin, valerian root, L-theanine


#27 scallywag

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Posted 18 December 2016 - 06:07 PM

A recent post in the Tips for Tapering Seroquel thread:

I'm here just to tell everyone not to give up. I just started reading these forums a month or so ago to see if tapering down works and indeed it does .I've bin on seroquel for 3 years dosage 125 mg a day . 25 mg 4pm and 100 mg at 11 pm is when I take it. Now I'm at .15 mg at 4 pm and 80 mg at night . Hey that might not seem like much it was hella lot better than my other attempts to quit cold turkey and tapering down at a non realistic way . Keep in mind everyone is different you could have less side effects .
I use a point scale I bought it at the weed 420 store it weighs exactly to the point
I actually tried to taper down more but notice I still had lingering side effects so I decided to taper between 5 and 10 %

Now here are some tips to not screw up You recovery
do not do anything to disrupt ur sleep .
No excessive drinking
No drugs
Exercising a hour a day
Drink water and sugar free drinks
No chocolate
No caffeine
High in sugar food

For a year or so I thought this way gonna be my life
Insomnia , mood swings , sweats , and feeling like crap

I can go on to why seroquel is the devil. But I will save it for the next post .

We will survive.


This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.
1997-1999 Effexor; 2002-2005 Effexor XR 37.5 mg linear taper, dropping same #beads/week with bad results
Cymbalta (brand name), 60 mg 2012 - 2015; 20 mg to 7 mg in 2016, taper details in this post;
2017: 7.0 (65 beads) Dec.10; 6.3 (58 beads) Feb. 1; 5.6 mg (52) Feb. 22;
Current dose: 5.4 mg (50 beads) 2017-Mar-15
+ Supplements: fish oil (1500 mg EPA/500 mg DHA), Vitamins: D3, K2, C; Minerals: Mg, Se, Cr, I, V
scallywag's Introduction Post
Online spreadsheet for dose taper calculations and nz11's THE WORKS spreadsheet