Junglechicken

Southwest UK Support Group - Please check in here if interested

36 posts in this topic

A message to all those living in the Southwest UK:-

 

 

I am working on starting a support group for those of us based in the Southwest UK.  This is a way for us help eachother and also encourage social aspects/friendship.

 

 

Ideas so far as follows:

 

The group would meet once a month in a different location to suit each member.

 

The SurvivingAntidepressants.org website would be our base for communication i.e. we would not have our own website.

 

The group would comprise a mix of 'Veteran' and 'Newbie' members.

 

There would be a structure to the meet ups - this is to be decided.

 

 

For those of you who are interested please could you sign up under this message.

 

Thank you

 

Junglechicken

 

 

 

 

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Well, we have made a great start, and so far we have interest from the following SA members:

 

Africa - based in Exeter (DEVON)

Funkybaboon - based in Torquay (DEVON)

Pocketnurse - based in HAMPSHIRE

Daddycee - based in Bristol (AVON)

Junglechicken - based in Yeovil (SOMERSET)

 

I'm going to send a message to all the above asking who is a 'Veteran' and who is a 'newbie' - this is in regard to the number of years they have been taking AD's and their level of 'experience' in tapering etc.,

 

Thanks guys,

JC x

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Our first meeting will be in Somerset on Sat 14th May.

 

Venue and time to be confirmed.

 

Looking forward to it x

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I can confirm that the first meeting will be in the Fleur de Lis pub in Stoke-sub-Hamdon, Somerset between 12 noon and 4pm on Sat 14th May.

 

I have booked the function room on the LH side of the main entrance and the landlord would be happy if people had a meal and/or drinks.

 

All future Somerset meetings will be held here.

 

Looking forward to it!

 

Best,

JC x

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It was an honour to meet founding members Africa and Reflex - thanks both for travelling all the way from Exeter and Bristol for our first meeting :0)

 

We decided against having any 'structure' to the meetings and just talked and talked for 3 hours straight. It was the best feeling in the world.....we are NOT alone in this WD struggle any more!

 

Also, next months meeting will be held in Exeter on June 11th - venue/time TBC. Thanks Funky!

 

July 1st meeting will likely be held in Bristol. Thanks Reflex!

 

Looking forward to getting to know everyone over the months and am happy that we have each other for support IN PERSON, lol

 

Hugs,

JC

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It was so wonderful to meet you JC and and Reflex.

 

It felt so good to talk and not feel judged.

 

It was such a good idea to have this support group and I hope we get to meet more members.

 

Hugs

 

Africa

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Thank you Africa :0)

 

It was wonderful to meet you and Reflex too and very therapeutic to be able to chat with you special ladies and share one's deepest fears etc.,

 

Can't wait till our next meeting and putting faces to our other members names.

 

JC X

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We are all set for our next meeting in Bristol/Avon to be held on Sat 9th July.  Time place TBC as being kindly organised by DaddyCee.

 

Looking forward to meeting you DaddyCee!

 

JC

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I just found out about this from Africa.

 

In total shock: he was so looking forward to his trip to the US (to see family) and other adventures in Europe.

 

We will really miss him.

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So sorry to hear about your friend and fellow group member.

 

Really sorry that I didn't get to meet him as well

 

Best wishes to you Africa and Jungle chicken

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It was a privilege to have know him for the short period that I did, and totally tragic that his life should end so abruptly.

 

Thank you for your kind words Reflex.

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Adam's memorial service will be on July 15th in Torquay, if you would like to be there please let me know on i_h@hotmail.com

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Hi all,

 

Firstly I just wanted to say how sad I was to read the news above, Adam was clearly a popular member of the community and will be missed.

 

I'm new to the forums here but, like many of you, I am struggling to withdraw from my medication (in my case Mirtazapine). I feel so strongly about this that I believe that the Pharmaceutical companies should assist users who want to stop or reduce their medications.

 

I have created a petition at Change.org and I would be really grateful if you would visit the petition, sign it and make your friends, families and/or co-workers aware of it too. The more we get this issue recognised and discussed, the greater the chance that we can get the help we need.

 

The petition has so far had the support of a few charities including Mind and also by Dr. Ben Goldacre.

 

Thanks and my best wishes to anyone struggling with anti-depressant withdrawal.

 

James

 

https://www.change.org/p/secretary-of-state-for-health-jeremy-hunt-make-pharmaceutical-firms-help-users-who-want-to-stop-taking-anxiety-depression-drugs

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This came into sa this morning please consider sending them your story

 

I'm a British BBC TV reporter and I want to make a film about the problems of withdrawing from antidepressants. I'm keen to hear from people who've struggled with SSRIs, particularly if you like in the UK. Also what you think about the lack of support groups, or if you HAVE a support group, how do you help?

Please email me your stories, confidentially at first, of course, although ultimately I'm looking for people who will be willing to stand up and speak about what's happened to them.  I think few people know or report this sort of problem and I know many of you are really really struggling for help.  My BBC2 programme wants to expose all this, so please get in touch.

Lesley.ashmall@bbc.co.uk

 

Thank you very much.  This forum has been recommended to me by several long-term members, so forgive my intrusion.

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Thanks nz11,

 

Lesley interviewed me a couple of weeks ago after I approached her.

 

She mentioned that she would email me the footage or video once its been edited etc.,

 

Will keep you guys posted when I hear back.

 

JC

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Email from Lesley Ashmall received today (18th Oct 2016):


 


 


Thank you all so much for your help.  The BBC2 programme will air tomorrow morning (barring a big breaking news story). I know some of you are abroad, but for those of you in Britain, it’s on the BBC2 Victoria Derbyshire, between 9am -11am.  


The long 12 minute film will air first, between 9am-10am and then afterwards, between 10am and 11am a shorter version will be broadcast and we will have a live studio discussion with guests.  I’d urge any of you to get in touch with the programme after 9am tomorrow, with questions and even your stories.  We can then put them to our guests, but also if the editor sees how many people have been affected by this, we may be able to do a larger investigation at a later date.  There are certainly some issues raised over the course of my research which I think could do with a deeper look (they involve more lawyers though, so we’d need a little more time).


But I just wanted to encourage you all to watch the programme.


I have shorter social media clips available too, which I’ll send on and hopefully you can all share on your forums etc.


 


Thank you all for your help,


 


 


Lesley Ashmall


Reporter BBC TV


The Victoria Derbsyhire Programme


07711-894243


020-3614-3111


http://www.bbc.co.uk/programmes/b05qqk5c


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Hi guys,

 

Our next meeting will be on Sat, 12th Nov @ noon.

 

The Anchor, Gordano, Bristol.

 

JC x

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Hi. Shaftesbury Dorset, just noticed the meeting today ???? But hopefully catch the next one x

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Hey artSet3561,

 

Great to have you here, and a warm welcome to the group!

 

Our next meeting will be on Saturday 10th December, and will be our Christmas get together. Venue to be decided, lol.

 

I will add you to our group messages too, and looking forward to meeting you :0)

 

Take care,

JC

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Do you meet up in person or via Skype? I live to far away, in Essex, long journey...

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Do you meet up in person or via Skype? I live to far away, in Essex, long journey...

Hi Ikam,

 

We meet in person. BUT I hadn't thought of Skype sessions, that's actually a great idea.

 

Let me sleep on it ok? I like your idea a lot.

 

TC,

JC xx

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Hi all,

 

I'm new to SA, struggling to withdraw from Olanzapine/Zyprexa- it is the bain of my life!

 

I live in Woking, Surrey, would love to meet up with fellow SA members if possible. I'm obviously quite far from some of you people.

 

best wishes,

Simo

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Hi all,

 

I'm new to SA, struggling to withdraw from Olanzapine/Zyprexa- it is the bain of my life!

 

I live in Woking, Surrey, would love to meet up with fellow SA members if possible. I'm obviously quite far from some of you people.

 

best wishes,

Simo

 

Hi Simo,

 

Welcome to the group....great to have you!

 

I drive from Reading, Berks to get to our monthly group meetings in Ham Green (nr Gordano, Bristol).  Its takes me 1.5hrs straight along the M4.

 

It depends how far you are prepared to travel, but it is only once a month, and so the trip is worth it in my mind.....it is a fantastic group of people and we have been meeting since mid-2016.

 

We are also in contact between each meeting.

 

Our next meeting is fast approaching on Saturday 14th January @ The Anchor Pub, Ham Green, nr Gordano.

 

I hope you'll join us.

 

Take care,

JC

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JC,

 

I'll do my best to make it! I suffer terribly with lethargy as a result of being on Olanzapine, and I'm also a bit nervy on my own, but it sounds like a great opportunity to meet people like myself. I'll really try to get there.

 

What time are you meeting at that pub?

 

Simo

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JC,

 

I'll do my best to make it! I suffer terribly with lethargy as a result of being on Olanzapine, and I'm also a bit nervy on my own, but it sounds like a great opportunity to meet people like myself. I'll really try to get there.

 

What time are you meeting at that pub?

 

Simo

 

Hi Simo,

 

We usually meet at 12 until around 3/3:30pm.

 

Be safe is the main thing, if you're feeling lethargic from the AD, then best not drive until that lifts.

 

Don't worry, we were all a bit nervy to begin with......its understandable when meeting total strangers!

 

Hopefully see you there, if not ....... then the next month.

 

JC

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JC,

 

OK, i'm intending on meeting you there  (providing I'm not too lethargic from the Olanzapine (one of those horrible antipsychotic/neuroleptic drugs that mess with the dopamine)).

 

How will I know "it's you"?

 

How many people normally attend?

 

Simo

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JC,

 

OK, i'm intending on meeting you there  (providing I'm not too lethargic from the Olanzapine (one of those horrible antipsychotic/neuroleptic drugs that mess with the dopamine)).

 

How will I know "it's you"?

 

How many people normally attend?

 

Simo

 

Simo,

 

Our biggest headcount is 4, but for the last few months we have only been 3 as Reflex (one of our founding members) had a major operation in early Sept 2016 which put her into a massive wave.  We haven't heard from her since before Christmas, but hopefully she is well on her way to "WDnormal".

 

Our members are:

 

Africa - lovely lady from South Africa

DaddyCee - our "WD success story" chappie from Bristol area

Reflex - another lovely lady also from Bristol area

JC (me) - from Somerset but moved to Reading

ArtSet - lady from Shaftesbury (she is our most recent member but about to get married so very busy with wedding arrangements, so we haven't met her yet)

 

We sit at our usual table just behind the bar to the left hand side.

 

Its very exciting for us to have new members, so can't wait to meet you :)

 

JC x

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it'll be really nice to meet other people too,  with common interests and goals.

 

looking forward to meeting you all too

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The SA Southwest UK Support Group is pleased to announce that we now have the capability to offer Skype group meetings for those who do not have a support group near to them and are isolated.

 

DaddyCee set this up for us, and noted that it is possible to have a maximum number of 10 people at the same time.

 

We do not have a schedule set up for when these Skype group chats will happen, but we would like to know the level of interest first before setting one up.

 

Thanks,

JC

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Just posted in "In the media":
 

A major national newspaper is looking for people living in the UK willing to share recent stories of negative effects while trying to withdraw from benzodiazepines, antidepressants and / or opioid painkillers.
The newspaper is particularly looking for recent stories from those who experienced one or more of the following:
- You were prescribed the drugs for longer than you should have been
- You tried repeatedly to withdraw without support
- Your doctor was unable or unwilling to help with withdrawal
- You were told to go cold turkey by your doctor
- You eventually managed to withdraw but only with support from a charity or online forum or Facebook
- You were sent to traditional drug and alcohol services but discovered these were inappropriate
- You were told that your symptoms were due to a disorder and not the drug withdrawal

The newspaper is also looking for stories from family members / partners who provided support during withdrawal, as well as from bereaved families where patients were driven to suicide because of intolerable symptoms.
Ideally, you would be willing to be named and photographed for the paper. Interviews will be handled sensitively and will be conducted by journalists who have experience in this area.
If you are interested, please send a short version of your story as well as contact details to admin@cepuk.org and we will forward to the newspaper.
The All Party Parliamentary Group for Prescribed Drug Dependence and the Council for Evidence-based Psychiatry are keen to support this initiative as part of our effort to lobby for appropriate withdrawal services, including a national helpline. Your help is needed! Please share!

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Just posted in "In the media":

 

A major national newspaper is looking for people living in the UK willing to share recent stories of negative effects while trying to withdraw from benzodiazepines, antidepressants and / or opioid painkillers.

The newspaper is particularly looking for recent stories from those who experienced one or more of the following:

- You were prescribed the drugs for longer than you should have been

- You tried repeatedly to withdraw without support

- Your doctor was unable or unwilling to help with withdrawal

- You were told to go cold turkey by your doctor

- You eventually managed to withdraw but only with support from a charity or online forum or Facebook

- You were sent to traditional drug and alcohol services but discovered these were inappropriate

- You were told that your symptoms were due to a disorder and not the drug withdrawal

 

The newspaper is also looking for stories from family members / partners who provided support during withdrawal, as well as from bereaved families where patients were driven to suicide because of intolerable symptoms.

Ideally, you would be willing to be named and photographed for the paper. Interviews will be handled sensitively and will be conducted by journalists who have experience in this area.

If you are interested, please send a short version of your story as well as contact details to admin@cepuk.org and we will forward to the newspaper.

The All Party Parliamentary Group for Prescribed Drug Dependence and the Council for Evidence-based Psychiatry are keen to support this initiative as part of our effort to lobby for appropriate withdrawal services, including a national helpline. Your help is needed! Please share!

 

 

Thank you very much Scally - we have actually discussed the CEPUK at one of our meetings.

 

JC x

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I've volunteered my story to them. Waiting for their reply.

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Just wanted to say I'm based in Bournemouth

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Just wanted to say I'm based in Bournemouth

 

Welcome DaveyPete - great to hear from you, and hope we'll see you at one of our meet ups.

 

TC,

JC

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