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Effexor XR Tardive Dyskinesia Lawsuit

tardive dyskinesia EFFEXOR XR dystonia Akathisia movement disorder effexor side effects effexor muscle spasm Myoclonus

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#1 Kay

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Posted 26 August 2016 - 08:25 AM

If you have a movement disorder (Tardive Dyskinesia , Dystonia,  Akathisia, Myoclonus etc.), that you believe was caused by Effexor XR (or made worse by this drug), you are eligible to join a multi plaintiff lawsuit now forming. To join this lawsuit, please message me on this forum, or email me at effexortd@gmail.com. For US residents only.
 
Posted by permission of Group Admin for informational purposes. 
Posting does not necessarily signify Group endorsement.

February 12 2017 Stepping down to Venlafaxine 53mg
January 1 2017 Stepping down to Venlafaxine 56mg

 

November 9 2016 Stepped down to Venlafaxine 59mg

September 1 2016 Stepped down to Venlafaxine 62mg

June 16 2016 Stepped down to Venlafaxine 65mg.

May 21 2016 Stepped down to Venlafaxine 70mg. Taking Omega 3 fish oil every day (with food). Taking some other theroadback supplements.

 

April 22 2016 switched from Venlafaxine XR 75mg to: a different brand, Venlafaxine non-extended release 75mg.

 

Taking Effexor XR 75mg, which I've been taking for many years. Tried reducing last year on my own, and began having bad side effects. Planning to try reducing again this year (2016) and am currently taking supplements that are supposed to help (following theroadback.org program). 


#2 btdt

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Posted 29 August 2016 - 08:57 AM

Hi Kay what is the knowledge base on this issue?  Are you the go to person?  Have you heard of people getting a movement disorder years after taking and stopping E that was because of Effexor?  I had some problems with movement that is why I was taken off Effexor by a neurologist years later I seem to be hit by a full blown movement disorder.  

 

I am not a citizen of the USA and so am not checking the link I am however interested in the issues I present above.  Please tell me what you know or redirect me. 

Thanks B


WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivinganti...ng-myself-btdt/

There is a crack in everything ..That's how the light gets in :)


#3 Kay

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Posted 29 August 2016 - 09:44 AM

Hello btdt,

 

So sorry to hear about your movement disorder. I have myself a neck spasm condition. Into my eighth year. I've just begun to taper the Effexor. For years I thought the problem was due to stuffed emotions.

 

I read your history, if you quit Effexor cold turkey, that could be a cause of the movement disorder years later. Of course I'm just saying based on what I've learned. I have heard of people having symptoms come up after getting off the med. Very scary. One tool could be to try reintroducing the Effexor? I don't know. Neither does anyone else really.

 

I'm not the go to person, that would be someone named Mark Dikstein. We have a large group on facebook with some outside of US, some information there you might find useful: Tardive Dyskinesia/Dystonia Lawsuit is the name of the group you can search it and ask to join on facebook. So sorry about the illness. Don't give up. For me, I do many things with exercise and diet to strengthen my health, as I slowly taper off the med. That's the best course I've found.


February 12 2017 Stepping down to Venlafaxine 53mg
January 1 2017 Stepping down to Venlafaxine 56mg

 

November 9 2016 Stepped down to Venlafaxine 59mg

September 1 2016 Stepped down to Venlafaxine 62mg

June 16 2016 Stepped down to Venlafaxine 65mg.

May 21 2016 Stepped down to Venlafaxine 70mg. Taking Omega 3 fish oil every day (with food). Taking some other theroadback supplements.

 

April 22 2016 switched from Venlafaxine XR 75mg to: a different brand, Venlafaxine non-extended release 75mg.

 

Taking Effexor XR 75mg, which I've been taking for many years. Tried reducing last year on my own, and began having bad side effects. Planning to try reducing again this year (2016) and am currently taking supplements that are supposed to help (following theroadback.org program). 


#4 westcoast

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Posted 22 September 2016 - 11:29 PM

Kay and BTDT, I noticed that Kay gives Ecaudor as her location. Does that mean non-US residents can participate?


2009: Cancer hospital said I had adjustment disorder because I thought they were doing it wrong. Their headshrinker prescribed Effexor, and my life set on a new course. I didn't know what was ahead, like a passenger on Disneyland's Matterhorn, smiling and waving as it climbs...clink, clink, clink.

2010: Post surgical accidental Effexor discontinuation by nurses, masked by intravenous Dilaudid. (The car is balanced at the top of the track.) I get home, pop a Vicodin, and ...

Whooosh...down, down, down, down, down...goes the trajectory of my life, up goes my mood and tendency to think everything is a good idea.
2012: After the bipolar jig was up, now a walking bag of unrelated symptoms, I went crazy on Daytrana (the Ritalin skin patch by Noven), because ADHD was a perfect fit for a bag of unrelated symptoms. I was prescribed Effexor for the nervousness of it, and things got neurological. An EEG showed enough activity to warrant an epilepsy diagnosis rather than non-epileptic ("psychogenic") seizures.

:o 2013-2014: Quit everything and got worse. I probably went through DAWS: dopamine agonist withdrawal syndrome. I drank to not feel, but I felt a lot: dread, fear, regret, grief: an utter sense of total loss of everything worth breathing about, for almost two years.

I was not suicidal but I wanted to be dead, at least dead to the experience of my own brain and body.

2015: I  began to recover after adding virgin coconut oil and organic grass-fed fed butter to a cup of instant coffee in the morning.

I did it hoping for mental acuity and better memory. After ten days of that, I was much better, mood-wise. Approximately neutral.

And, I experienced drowsiness. I could sleep. Not exactly happy, I did 30 days on Wellbutrin, because it had done me no harm in the past. 

I don't have the DAWS mood or state of mind. It never feel like doing anything if it means standing up.

In fact, I don't especially like moving. I'm a brain with a beanbag body.   :unsure:


#5 Kay

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Posted 23 September 2016 - 09:14 AM

Hi westcoast, this lawsuit (planned) is for US residents only, I am a US resident though living outside the US. If you believe you would be an eligible plaintiff, please email me at the address in my post. Currently I have five people, you would make us six. I am working on gathering at least 20 people to entice a law firm to agree to take our case.

 

Eligibility would be any movement disorder you believe to be caused by Effexor XR, or made worse by it. You would also need to be able to document your illness, drug dosages, treatments for legal purposes.


February 12 2017 Stepping down to Venlafaxine 53mg
January 1 2017 Stepping down to Venlafaxine 56mg

 

November 9 2016 Stepped down to Venlafaxine 59mg

September 1 2016 Stepped down to Venlafaxine 62mg

June 16 2016 Stepped down to Venlafaxine 65mg.

May 21 2016 Stepped down to Venlafaxine 70mg. Taking Omega 3 fish oil every day (with food). Taking some other theroadback supplements.

 

April 22 2016 switched from Venlafaxine XR 75mg to: a different brand, Venlafaxine non-extended release 75mg.

 

Taking Effexor XR 75mg, which I've been taking for many years. Tried reducing last year on my own, and began having bad side effects. Planning to try reducing again this year (2016) and am currently taking supplements that are supposed to help (following theroadback.org program). 


#6 Kay

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Posted 02 November 2016 - 10:19 AM

I am still hunting for more people to join with me in attempting to file a lawsuit to sue the drug company Pfizer. If you are a US resident (I am but living outside US currently), and have experienced movement disorder, or I believe also nerve pain since that's related, you believe is from taking Effexor XR, you would be an eligible plaintiff. Please message me here to let me know you would like to be added to the list of plaintiffs, or message me privately. The more plaintiffs, the stronger the lawsuit. So I need your help.


February 12 2017 Stepping down to Venlafaxine 53mg
January 1 2017 Stepping down to Venlafaxine 56mg

 

November 9 2016 Stepped down to Venlafaxine 59mg

September 1 2016 Stepped down to Venlafaxine 62mg

June 16 2016 Stepped down to Venlafaxine 65mg.

May 21 2016 Stepped down to Venlafaxine 70mg. Taking Omega 3 fish oil every day (with food). Taking some other theroadback supplements.

 

April 22 2016 switched from Venlafaxine XR 75mg to: a different brand, Venlafaxine non-extended release 75mg.

 

Taking Effexor XR 75mg, which I've been taking for many years. Tried reducing last year on my own, and began having bad side effects. Planning to try reducing again this year (2016) and am currently taking supplements that are supposed to help (following theroadback.org program). 


#7 FeralUrban

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Posted 06 November 2016 - 08:32 AM

Yes. I feel this is an important civic duty. 

 

I took Effexor ER for over 10 years.

 

I was diagnosed in May with serotonin toxicity after 5 months of off the charts neurological pain.

I have dystonic symptoms -- muscle rigidity and had them the entire time I was on Effexor and before that other SSRI/SNRIs. I still have that on and off.

I have on again off again Parkinsonian movement issues -- my whole body wobbles, or I can't rely on auto-pilot for simple movements.

I've become a person who drops things every day, all day long. My right hand just doesn't work as well as it used to.

Low exertion repetitive movements, like walking, operating gas/brake pedals, writing, typing can cause muscle spasms and neuropathic pain.

I have loss of fine sensation awareness.

I have wide spread neuropathic pain.

I have been recently diagnosed with Central Pain Syndrome, a form of brain damage.

 

I am still tapering, but that came to a standstill about a month ago and I am waiting patiently at 22 mg for a time when I can reduce the daily dose of poison.

 

Money would be nice. This year, thanks to Effexor, I have earned less than $3000 in income. 

 

But more importantly, my hope would be that a lawsuit would bring awareness to the medical community about the devastating consequences that taking this drug can have. I am appalled by the general lack of awareness in the medical community. 

 

Please send me a private message about how to join in.


2002 to 2016 Venlafaxine ER 225mg.  2013 TMS treatments triggered nerve pain in face, arm, back.  2016 TMS round ending Feb 1 Central Nerve Pain and and sub-acute serotonin toxicity compounded by Imitrex.  April-June tapered over 3 months from 225 to 0. Reinstated 6/20/16 21.5 nonER 2x day. 7/7/16-37.5mg; 7/17/16-36.6; 7/22/16-33.75; 8/22/16 32.6mg, 9/11/16-28.9mg, 9/25/16-25mg, 12/3/16-19.4mg, 12/18/16-18.5 holding.  OTHER DAILY PHARMACEUTICALS:   *Oxcarbazepine 150 mg 2x/day since mid 2015, *Naproxen 220mg 3x/day as an antidepressant and for pain since 2012, *Levothyrozine 75mcg since 2008 (hypothyroid), *Levothyronine 5 mpg 2x/day since 2012 (hypothyroid) *montelukast SOD 10 mg for asthma since 2014, Advair 250/50 2x daily, [DX 11/16 Felodopine 5mg since 2006,DX combivent 8/1/16] *MEDICAL MARIJUANA for neuropathic pain:CBD oil 25 mg 3-4 x day, THC tincture a few drops: 1/4 tsp 0-3x/day, vaporize CBD for breakthrough pain, CBD concentrate for severe pain.  PRN MEDS *Valium 5 mg PRN up to 4/day for muscle spasms, usually 1-2 x/ day. *Low dose Ketamine nasal spray for severe pain, and also finding 1 dose calms bad WD quickly. HERBAL TINCTURES: burdock, lobelia, turmeric, white willow. CURRENT SUPPLEMENTS:  *Methylated B vitamins, *Vitamin D 5000 iu, Alpha Lipoid Acid, Neti pot. [DX 6/13/16 promethazine suppository + 2 OTC Benadryl for severe pain N Acetyl Cytine for asthma1992-2002, over 20 different psych meds. 2012-2016 Eliminated 7 meds 1 at a time DX Plaquenil DX Spironolactone DX Lunesta, DX Ativan,  + others


#8 Kay

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Posted 06 November 2016 - 09:18 AM

Thank you for your response FeralUrban. I'm so glad you found my post. I'll PM you.  I hope your post will help others here to come forward and join us also. Gathering a large number of plaintiffs is very helpful in a lawsuit.

 

I am relatively stable currently having tapered from 75mg Venlafaxine XR to currently 62mg Venlafaxine (31mg 2xs per day). I am looking forward to my next reduction, this coming Thursday, to 59mg, having been at 62 for 10 weeks. It seems I will be stepping down 5% at a time, holding each time for 6-7 weeks. We'll see. Also some mild instances of lessening of Dystonia, hoping for full recovery as I taper. I'm also journaling my daily progress and activities, and plan to publish it in ebook form for anyone who wants to follow my path. 

 

When you post Venlafaxine ER is that the same as XR (extended release) or something different I haven't heard of?


February 12 2017 Stepping down to Venlafaxine 53mg
January 1 2017 Stepping down to Venlafaxine 56mg

 

November 9 2016 Stepped down to Venlafaxine 59mg

September 1 2016 Stepped down to Venlafaxine 62mg

June 16 2016 Stepped down to Venlafaxine 65mg.

May 21 2016 Stepped down to Venlafaxine 70mg. Taking Omega 3 fish oil every day (with food). Taking some other theroadback supplements.

 

April 22 2016 switched from Venlafaxine XR 75mg to: a different brand, Venlafaxine non-extended release 75mg.

 

Taking Effexor XR 75mg, which I've been taking for many years. Tried reducing last year on my own, and began having bad side effects. Planning to try reducing again this year (2016) and am currently taking supplements that are supposed to help (following theroadback.org program). 


#9 FeralUrban

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Posted 08 November 2016 - 02:23 PM

Effexor XR and venlafaxine ER. Took em both.

 

I've emailed you.

 

I'm wondering why you haven't gotten more responses?  


2002 to 2016 Venlafaxine ER 225mg.  2013 TMS treatments triggered nerve pain in face, arm, back.  2016 TMS round ending Feb 1 Central Nerve Pain and and sub-acute serotonin toxicity compounded by Imitrex.  April-June tapered over 3 months from 225 to 0. Reinstated 6/20/16 21.5 nonER 2x day. 7/7/16-37.5mg; 7/17/16-36.6; 7/22/16-33.75; 8/22/16 32.6mg, 9/11/16-28.9mg, 9/25/16-25mg, 12/3/16-19.4mg, 12/18/16-18.5 holding.  OTHER DAILY PHARMACEUTICALS:   *Oxcarbazepine 150 mg 2x/day since mid 2015, *Naproxen 220mg 3x/day as an antidepressant and for pain since 2012, *Levothyrozine 75mcg since 2008 (hypothyroid), *Levothyronine 5 mpg 2x/day since 2012 (hypothyroid) *montelukast SOD 10 mg for asthma since 2014, Advair 250/50 2x daily, [DX 11/16 Felodopine 5mg since 2006,DX combivent 8/1/16] *MEDICAL MARIJUANA for neuropathic pain:CBD oil 25 mg 3-4 x day, THC tincture a few drops: 1/4 tsp 0-3x/day, vaporize CBD for breakthrough pain, CBD concentrate for severe pain.  PRN MEDS *Valium 5 mg PRN up to 4/day for muscle spasms, usually 1-2 x/ day. *Low dose Ketamine nasal spray for severe pain, and also finding 1 dose calms bad WD quickly. HERBAL TINCTURES: burdock, lobelia, turmeric, white willow. CURRENT SUPPLEMENTS:  *Methylated B vitamins, *Vitamin D 5000 iu, Alpha Lipoid Acid, Neti pot. [DX 6/13/16 promethazine suppository + 2 OTC Benadryl for severe pain N Acetyl Cytine for asthma1992-2002, over 20 different psych meds. 2012-2016 Eliminated 7 meds 1 at a time DX Plaquenil DX Spironolactone DX Lunesta, DX Ativan,  + others


#10 btdt

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Posted 11 November 2016 - 01:10 AM

Hello btdt,

 

So sorry to hear about your movement disorder. I have myself a neck spasm condition. Into my eighth year. I've just begun to taper the Effexor. For years I thought the problem was due to stuffed emotions.

 

I read your history, if you quit Effexor cold turkey, that could be a cause of the movement disorder years later. Of course I'm just saying based on what I've learned. I have heard of people having symptoms come up after getting off the med. Very scary. One tool could be to try reintroducing the Effexor? I don't know. Neither does anyone else really.

 

I'm not the go to person, that would be someone named Mark Dikstein. We have a large group on facebook with some outside of US, some information there you might find useful: Tardive Dyskinesia/Dystonia Lawsuit is the name of the group you can search it and ask to join on facebook. So sorry about the illness. Don't give up. For me, I do many things with exercise and diet to strengthen my health, as I slowly taper off the med. That's the best course I've found.

 

I went off  E cold turkey by a neurologist years ago because my one leg was dragging and my head was dropping to my chest whenever at odd times.  He tried to switch me to another snri and it did not work.... I could not tolerate it I tried going back on E at the time my body rejected it in way of projectile vomit... my gut was wrecked by then. He tied other drugs mirapex lyrica none worked for me... I suffered.. long and hard for years and years. That was how it went... for me and it is now 7 days away from my 9 year anniversary this May I started with a movement disorder. All these years in between my leg has not be right my body has had pain you know the old fibro thing... chronic fatigue it has now been moved up a category to mcs multiply chemical sensitivity and a movement disorder... another name another year this had been going on now since 1990 when I first too prozac.... one disorder disease after the other. 

I am not in the USA and not on facebook.... and not going to be either. I do not need to make it easy for pharma to track me not that I really think I am safe from them I don't.... but why spoon feed them.  It is bad enough I have been finding article for them for years so they could make them disappear... nope I am not playing any longer.  Money is not going to fix this... I don't think anything is going to fix this. 

Just my take on things now almost nine years later... 

I hope you all find some peace where you are right now cause this entire experience is severely lacking in peace... 


WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivinganti...ng-myself-btdt/

There is a crack in everything ..That's how the light gets in :)


#11 Kay

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Posted 11 November 2016 - 09:55 AM

So sorry to hear your tragic tale btdt. Thanks for sharing it here.


February 12 2017 Stepping down to Venlafaxine 53mg
January 1 2017 Stepping down to Venlafaxine 56mg

 

November 9 2016 Stepped down to Venlafaxine 59mg

September 1 2016 Stepped down to Venlafaxine 62mg

June 16 2016 Stepped down to Venlafaxine 65mg.

May 21 2016 Stepped down to Venlafaxine 70mg. Taking Omega 3 fish oil every day (with food). Taking some other theroadback supplements.

 

April 22 2016 switched from Venlafaxine XR 75mg to: a different brand, Venlafaxine non-extended release 75mg.

 

Taking Effexor XR 75mg, which I've been taking for many years. Tried reducing last year on my own, and began having bad side effects. Planning to try reducing again this year (2016) and am currently taking supplements that are supposed to help (following theroadback.org program). 


#12 btdt

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Posted 12 November 2016 - 07:31 AM

There is something about the words "tragic tale" that rings of dismissive disrespect as tale can mean it is not true is not my reality day in day out as such is dismissive. I don't like it but like so many other things I don't like it is what it is... you are who you are...I will take note of your response and remember it in any further posts I read from you.  

peace all


WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivinganti...ng-myself-btdt/

There is a crack in everything ..That's how the light gets in :)


#13 Kay

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Posted 12 November 2016 - 01:51 PM

I'm terribly sorry btdt. You're right it does sound dismissive. I certainly didn't mean that. I understand these illnesses are very difficult. I hope you can forgive my bad phrasing. 


February 12 2017 Stepping down to Venlafaxine 53mg
January 1 2017 Stepping down to Venlafaxine 56mg

 

November 9 2016 Stepped down to Venlafaxine 59mg

September 1 2016 Stepped down to Venlafaxine 62mg

June 16 2016 Stepped down to Venlafaxine 65mg.

May 21 2016 Stepped down to Venlafaxine 70mg. Taking Omega 3 fish oil every day (with food). Taking some other theroadback supplements.

 

April 22 2016 switched from Venlafaxine XR 75mg to: a different brand, Venlafaxine non-extended release 75mg.

 

Taking Effexor XR 75mg, which I've been taking for many years. Tried reducing last year on my own, and began having bad side effects. Planning to try reducing again this year (2016) and am currently taking supplements that are supposed to help (following theroadback.org program). 


#14 WiggleIt

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Posted 21 November 2016 - 09:21 PM

I will keep you all in my prayers that you see justice.  Because I was put on generic tricyclic antidepressants, I am unable to sue for my movement disorder.  I also tried to sue my doctor, and no luck there, either.

We don't have a good justice system, but every once in while, justice happens.  I hope it happens for all of you.  Those meds RUINED my life.


-Dual cold turkeys off TCA & Ativan in October 2014. Prescribed from 2011-2014, off-label for pain

-Meds were prescribed for an "autoimmune chronic pain disease."  It was a MISDIAGNOSIS, but did not find out until AFTER meds had caused total damage.  All med tapers & cold turkeys directed by doctors 

-Nortriptyline from May 2012 - Dec 2013

-Desipramine from Jan 2014 - October 2014. 60 mg reduced by 10 mg each month. Held 30 mg for 3 months. Rapid taper over 1 week from 30 mg down to 20, 10, 0

-Lorazepam 1 mg per night in 2011. In 2012, used 1 mg per month or less.  Lorazepam on & off Dec 2013 - Aug 2014, did not exceed 1.5 mg, did not exceed 3x a week

-On desipramine had muscle tremors & rigidity. Were they side effects or withdrawal effects as I reduced desip throughout 2014? Or was I in WD from nortrip as I was on desip? First muscle/dystonia side effects started on nortriptyline, but docs were too stupid to help me figure it out

-Last dosage desip 10 mg on Oct. 29, 2014. Last dose lzpam 1 mg, Nov. 2, 2014. Paradoxical reactions to benzos after quitting TCAs

-Tardive dystonia, dyskinesia, myoclonic jerks ALL over body, ribcage wiggles, facial tics, twitching tongue & fingers, tremors/twitches of arms, legs, cognitive impairment, throat muscles semi-paralyzed & unable to swallow solid food, brain zaps, ears ring, dizzy, everything looks too far away, insomnia, numbness & electric shocks everywhere when I try to fall asleep, jerk awake from sleep with big, gasping breaths, wake with terrors & tremors, severely depressed.  NO HISTORY OF DEPRESSION, EVER. Meds CREATED it.

-Month 7 off meds: hair falling out; no improvement in vision; still tardive dystonia; facial & tongue tics returned
-Month 8 off meds: thrown back to acute, including Grand Mal seizure-like episodes. New mental torment, PGAD, worse insomnia
-Month 9 off meds: tardive dystonia worsened, dyskinesia returned. Unable to breathe well due to dystonia in stomach, chest, throat.
-Month 13 off meds: Back to total acute, brain zaps back, plus developed eczema & stomach problems. Left leg no longer works right due to dystonia, meaning both legs are now damaged


#15 Kay

Kay

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Posted 22 November 2016 - 08:56 AM

I'm so sorry for your difficulties WiggleIt. And thank you for your support. I hope we will have some success, we will see.


February 12 2017 Stepping down to Venlafaxine 53mg
January 1 2017 Stepping down to Venlafaxine 56mg

 

November 9 2016 Stepped down to Venlafaxine 59mg

September 1 2016 Stepped down to Venlafaxine 62mg

June 16 2016 Stepped down to Venlafaxine 65mg.

May 21 2016 Stepped down to Venlafaxine 70mg. Taking Omega 3 fish oil every day (with food). Taking some other theroadback supplements.

 

April 22 2016 switched from Venlafaxine XR 75mg to: a different brand, Venlafaxine non-extended release 75mg.

 

Taking Effexor XR 75mg, which I've been taking for many years. Tried reducing last year on my own, and began having bad side effects. Planning to try reducing again this year (2016) and am currently taking supplements that are supposed to help (following theroadback.org program). 






Also tagged with one or more of these keywords: tardive dyskinesia, EFFEXOR XR, dystonia, Akathisia, movement disorder, effexor side effects, effexor muscle spasm, Myoclonus