Jump to content

If you find useful information here, your gift would help keep this site going. Our staff is entirely volunteer.

Photo
- - - - -

Petition calling for tapering kits


  • Please log in to reply
24 replies to this topic

#1 JamesMoore

JamesMoore

    Member

  • Members
  • PipPip
  • 23 posts
  • LocationSouth Wales

Posted 01 September 2016 - 02:06 AM

Hi all, I'm new to the forums here but, like many of you, I am struggling to withdraw from my medication (in my case Mirtazapine). I feel so strongly about this that I believe that the Pharmaceutical companies should assist users who want to stop or reduce their medications.

 

I have created a petition at Change.org and I would be really grateful if you would visit the petition, sign it and make your friends, families and/or co-workers aware of it too. The more we get this issue recognised and discussed, the greater the chance that we can get the help we need.

 

The petition has so far had the support of a few charities including Mind and also by Dr. Ben Goldacre.

 

Thanks and my best wishes to anyone struggling with anti-depressant withdrawal.

 

James

 

https://www.change.o...epression-drugs

 

 

 



#2 Junglechicken

Junglechicken

    Gold star

  • Members
  • PipPipPipPip
  • 1,229 posts
  • LocationReading, UK and also Southwest, UK

Posted 01 September 2016 - 02:11 AM

James,

 

I have signed this petition.

 

This is such a good idea, thank you.

 

JC


Feb 2014 -Cipralex/Escitalopram 10mg daily June 2015 - Started taper, 5mg every other day July 2015 - 5mg every 2 days August 2015 - 5mg every 3 days September 2015 - 5mg every 4 days Sept 14th - Completed tapering, but at 7 weeks "drug free" I suffered serious WD symptoms as a consequence of "incorrect" tapering. Nov 25 2015 - Re-instated Cipralex @ 2.5mg daily. WD symptoms disappeared over a few days. Have been on this dose ever since and am experiencing "windows" and "waves". Nov 15th 2016 Re-started Therapy Jan 19th 2017 Started CBT. Jan 2017 Homeopathic Treatment starts 4th Jan 2017. Mar 2017 Naturopathic Treatment starts - anti-Candida diet starts as diagnosis of Systemic Candida. 24 March 2017 DETOX started for anti-Candida to help "re-set" my gut. April 2017 Gut Cleanse - 6 weeks.
Plan to re-start taper (liquid Cipralex/Escitalopram)


#3 Terry4949

Terry4949

    Silver star

  • Members
  • PipPipPip
  • 171 posts
  • LocationBedfordshire

Posted 01 September 2016 - 05:28 AM

James I have also signed this position , even if they don't do anything at least it opens the door to a few more people who aren't away of any problems , good idea
100mg Effexor 2000 untill jan 2015 severe withdrawals . Tapered 4weeks.
Jan to end of Feb 4 weeks on 15mg mirtazapine 20mg quetiapine , tapered of both 2 weeks , severe withdrawals , still some from Effexor possibly
End of Feb 2015 to end of July 30mg citolapram tapered 2weeks severe withdrawal , anxiety high , bouts of sever depression , severe emotional moods
Currently on 30mg mirtazapine appx 5 months , high anxiety, March cut dose 22.5 mg going on to liquid still no improvements with the depression , also started sept 2015 200mg pregabalin , currently on 22.5mg mirtazapine tablet form doing really badly. Cut beginning of May remeron 20mg still bad anxiety,August 15mg remeron ,100mg pregablin , severe depression headaches anxiety , oct 2016 doctor stoped pregablin c/t , 15mg mirtazapine still no let up in physical symptoms ,high anxiety ,Nov 2016 remeron 13.5 mg , Jan 2017 mirtazapine stopped flouxetine20mg added by hospital admission, no choice , doing really badly , akathesia suicidel ,, Flouxetine c/t by hospital after 7 weeks 20mg daily , currently on nothing , God help me

#4 Terry4949

Terry4949

    Silver star

  • Members
  • PipPipPip
  • 171 posts
  • LocationBedfordshire

Posted 01 September 2016 - 05:36 AM

plus I would like to add , Dr . Ben goldacre is one of the good guys , and acknowledges the problems with these medications
100mg Effexor 2000 untill jan 2015 severe withdrawals . Tapered 4weeks.
Jan to end of Feb 4 weeks on 15mg mirtazapine 20mg quetiapine , tapered of both 2 weeks , severe withdrawals , still some from Effexor possibly
End of Feb 2015 to end of July 30mg citolapram tapered 2weeks severe withdrawal , anxiety high , bouts of sever depression , severe emotional moods
Currently on 30mg mirtazapine appx 5 months , high anxiety, March cut dose 22.5 mg going on to liquid still no improvements with the depression , also started sept 2015 200mg pregabalin , currently on 22.5mg mirtazapine tablet form doing really badly. Cut beginning of May remeron 20mg still bad anxiety,August 15mg remeron ,100mg pregablin , severe depression headaches anxiety , oct 2016 doctor stoped pregablin c/t , 15mg mirtazapine still no let up in physical symptoms ,high anxiety ,Nov 2016 remeron 13.5 mg , Jan 2017 mirtazapine stopped flouxetine20mg added by hospital admission, no choice , doing really badly , akathesia suicidel ,, Flouxetine c/t by hospital after 7 weeks 20mg daily , currently on nothing , God help me

#5 scallywag

scallywag

    Platinum star

  • Moderators
  • 3,846 posts
  • LocationOntario, Canada

Posted 01 September 2016 - 08:43 AM

This is brilliant James. Thanks for starting the petition and for posting it here.

 

If you haven't already, you might want to post it in the UK threads in the Relationships forum.

 

Colchester & Essex

Southwest UK


This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.
1997-1999 Effexor; 2002-2005 Effexor XR 37.5 mg linear taper, dropping same #beads/week with bad results
Cymbalta (brand name), 60 mg 2012 - 2015; 20 mg to 7 mg in 2016, taper details in this post;
2017: 6.3 (58 beads) Feb. 1; 5.6 mg (52) Feb. 22; 5.4 mg (50) Mar. 15;
Current dose: 5.1 mg (47 beads) 2017-Mar-25
+ Supplements: fish oil (1500 mg EPA/500 mg DHA), Vitamins: D3, K2, C; Minerals: Mg, Se, Cr, I, V
scallywag's Introduction
Online spreadsheet for dose taper calculations and nz11's THE WORKS spreadsheet


#6 Altostrata

Altostrata

    Administrator

  • Administrators
  • PipPipPipPipPipPip
  • 23,878 posts
  • LocationSan Francisco, CA

Posted 01 September 2016 - 08:45 AM

For your information, Tapering packets to be produced for paroxetine and venlafaxine...

 

This small Netherlands company is still working on producing more tapering kits for other drugs.


This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

#7 Terry4949

Terry4949

    Silver star

  • Members
  • PipPipPip
  • 171 posts
  • LocationBedfordshire

Posted 01 September 2016 - 09:56 AM

I wish these were available when I was withdrawing from Effexor , the only thing is I wonder if the kits will do 10% drops as advices here or will they just drop in larger amounts , anyway it's a start and at least they acknowledge the fact that they need to withdraw slower and by smaller amounts
100mg Effexor 2000 untill jan 2015 severe withdrawals . Tapered 4weeks.
Jan to end of Feb 4 weeks on 15mg mirtazapine 20mg quetiapine , tapered of both 2 weeks , severe withdrawals , still some from Effexor possibly
End of Feb 2015 to end of July 30mg citolapram tapered 2weeks severe withdrawal , anxiety high , bouts of sever depression , severe emotional moods
Currently on 30mg mirtazapine appx 5 months , high anxiety, March cut dose 22.5 mg going on to liquid still no improvements with the depression , also started sept 2015 200mg pregabalin , currently on 22.5mg mirtazapine tablet form doing really badly. Cut beginning of May remeron 20mg still bad anxiety,August 15mg remeron ,100mg pregablin , severe depression headaches anxiety , oct 2016 doctor stoped pregablin c/t , 15mg mirtazapine still no let up in physical symptoms ,high anxiety ,Nov 2016 remeron 13.5 mg , Jan 2017 mirtazapine stopped flouxetine20mg added by hospital admission, no choice , doing really badly , akathesia suicidel ,, Flouxetine c/t by hospital after 7 weeks 20mg daily , currently on nothing , God help me

#8 JamesMoore

JamesMoore

    Member

  • Members
  • PipPip
  • 23 posts
  • LocationSouth Wales

Posted 01 September 2016 - 11:38 PM

Hi All, thank you so much for your suggestions and help so far, I am really grateful.

@scallywag - thanks for the links to the local groups that's really useful
@altostrata - really interesting to hear that something similar happens in the Netherlands already, I am hopeful that we can make some progress elsewhere by raising awareness of the issue but this certainly shows that the approach works.
@junglechicken, @terry4949 thanks for the signatures.

Please raise awareness of the petition if you can or feel free to suggest other groups/users that I could promote the petition with.

Best wishes

James

#9 Altostrata

Altostrata

    Administrator

  • Administrators
  • PipPipPipPipPipPip
  • 23,878 posts
  • LocationSan Francisco, CA

Posted 02 September 2016 - 12:26 PM

It's an excellent idea, JamesMoore. I hope you go far with it. There's an MP who's very interested in psychiatric drug issues, I don't remember his name, but you might contact him. I believe his daughter died in some drug-related incident.


This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

#10 nz11

nz11

    Platinum star

  • Members
  • PipPipPipPipPip
  • 2,520 posts
  • LocationWaipu NZ

Posted 02 September 2016 - 10:34 PM

signed

 

nz11


2000 amitryptaline, nortriptaline venlafaxine clonazepam for  arm pain from keyboard use, told I had a chemical imbalance it would fix my arm was just a matter of finding the right med for me not informed of the nature of these drugs assured safe and not addictive, CT off Effexor after being told to double the dose on reporting adverse effects...later ..uncharacteristic psych panic tearful presented to doctor to get answers. Given paroxetine no questions asked 'safe and not addictive' next please.2001-2010 paroxetine (paxil) 2 failed attempts to quit, a learned helplessness set in. Feb 10 - Sept 10,  8 month clueless taper, hell. Doc said I had underlying depression .. I said that's not right' then found online support group and the truth!...overcome with inconceivable humiliation and outrage. 28 Sept 10 drug free ...  daily psych and emotional torture beginning in the waking hours of the morning receding somewhat in the evening only to start up again the next day. 28 Sept 12 (24 months) Stabilizing  (What an indescribable unimaginable non-functional nightmare). sleep issues start up at 3 yrs  waking daily at 2am -4.30am)28 Sept 15 (5yrs drug free), cf, cmw, insomnia  horrifying pssd continues, still feel Rip van Winkle-ish, cognitively doing heaps better. 28 Sept 16 after 6 yrs start working again on a casual basis.

 

"It is unsafe for people who suffer from something that could be treated with an ssri to consult a psychiatrist." Gotzshe 2015. [ I think Gotzsche could have easily meant to say 'to consult anyone with prescribing privileges']. "Going to a psychiatrist is one of the most dangerous actions a person can take." Breggin

 

“Paroxetine is not safe, it is not effective and it meets every known definition of addictive.” McLaren, N, (2016) 'Psychiatry as bullsh*t’ p55..."Psychiatry is stuffed full of 'deep nonsense' better known as bullsh*t." McLaren 2016

 

"Within the first week of when you go on an antidepressant you may have a sexual dysfunction, it can go on forever, often only appearing when you go off the drug ...its extraordinarily common" Healy 2015

 

See  my intro post #451 for the xanax back story and for a CV -GSKs.  Come on guys get taperwise see a TaperMe Schedule

 For a staggeringly shocking 'prozac back story' see the truth post #523

 

"If I were an enemy combatant and the NZ army did this to me someone would be dragged to the Hague and jailed!"  nz11


#11 JamesMoore

JamesMoore

    Member

  • Members
  • PipPip
  • 23 posts
  • LocationSouth Wales

Posted 04 September 2016 - 01:15 AM

Hey all, thank you so much for the positive feedback and for the support, I am very grateful.

 

I have put together a web site to accompany the petition, if any of you were interested in having a look it is here...

 

http://www.jfmoore.co.uk

 

Thanks again.

 

James



#12 nz11

nz11

    Platinum star

  • Members
  • PipPipPipPipPip
  • 2,520 posts
  • LocationWaipu NZ

Posted 04 September 2016 - 07:54 PM

Thankyou for all that you are doing James.

nz11


2000 amitryptaline, nortriptaline venlafaxine clonazepam for  arm pain from keyboard use, told I had a chemical imbalance it would fix my arm was just a matter of finding the right med for me not informed of the nature of these drugs assured safe and not addictive, CT off Effexor after being told to double the dose on reporting adverse effects...later ..uncharacteristic psych panic tearful presented to doctor to get answers. Given paroxetine no questions asked 'safe and not addictive' next please.2001-2010 paroxetine (paxil) 2 failed attempts to quit, a learned helplessness set in. Feb 10 - Sept 10,  8 month clueless taper, hell. Doc said I had underlying depression .. I said that's not right' then found online support group and the truth!...overcome with inconceivable humiliation and outrage. 28 Sept 10 drug free ...  daily psych and emotional torture beginning in the waking hours of the morning receding somewhat in the evening only to start up again the next day. 28 Sept 12 (24 months) Stabilizing  (What an indescribable unimaginable non-functional nightmare). sleep issues start up at 3 yrs  waking daily at 2am -4.30am)28 Sept 15 (5yrs drug free), cf, cmw, insomnia  horrifying pssd continues, still feel Rip van Winkle-ish, cognitively doing heaps better. 28 Sept 16 after 6 yrs start working again on a casual basis.

 

"It is unsafe for people who suffer from something that could be treated with an ssri to consult a psychiatrist." Gotzshe 2015. [ I think Gotzsche could have easily meant to say 'to consult anyone with prescribing privileges']. "Going to a psychiatrist is one of the most dangerous actions a person can take." Breggin

 

“Paroxetine is not safe, it is not effective and it meets every known definition of addictive.” McLaren, N, (2016) 'Psychiatry as bullsh*t’ p55..."Psychiatry is stuffed full of 'deep nonsense' better known as bullsh*t." McLaren 2016

 

"Within the first week of when you go on an antidepressant you may have a sexual dysfunction, it can go on forever, often only appearing when you go off the drug ...its extraordinarily common" Healy 2015

 

See  my intro post #451 for the xanax back story and for a CV -GSKs.  Come on guys get taperwise see a TaperMe Schedule

 For a staggeringly shocking 'prozac back story' see the truth post #523

 

"If I were an enemy combatant and the NZ army did this to me someone would be dragged to the Hague and jailed!"  nz11


#13 CJAJ16

CJAJ16

    Member

  • Members
  • PipPip
  • 94 posts
  • LocationReading

Posted 19 September 2016 - 02:31 PM

Hello Everyone,

I'm not sure if this has been posted before but whilst doing further research this evening I came across this petition.

James Moore has a wonderful vision and is trying to achieve the following...

We want the Pharmaceutical manufacturers to produce “drug tapering kits” which provide the most commonly prescribed medications in decreasing doses over a period of time.
We need tapering kits to help the millions of users of psychoactive pharmaceutical drugs because:
Many tablets are only available in increments that are so large that they are useless for gradual lowering (tapering) of the dose.
Liquid forms for some medications are available but tend to be hugely expensive and therefore the NHS will not provide them.
Pill cutting is, at best, a hit and miss affair.
Many doctors and psychiatrists confuse the symptoms of withdrawal with a return of the symptoms that the tablet was originally prescribed for.
These kits would save a significant amount of time for General Practitioners, Psychiatrists and Community Mental Health teams.
These kits would help users of psychiatric medications stop taking them safely and in a controlled fashion, giving them control over their drug intake.
The pharmaceutical companies are already set up to manufacture massive quantities of these drugs, therefore it cannot be a huge additional cost to manufacture tablets of decreasing dosages. At most this is likely to be a tiny fraction of a percentage of profit but would win a huge amount of public confidence that the Pharmaceutical firms have their customers safety at heart.

He has initiated a petition for the Secretary of State for Health, Jeremy Hunt, which I feel we all should sign. It's too late for many of us but I know you'll all agree with me that such support and guidance would have made tapering and withdrawal a easier journey. If it helps one person to not experience the hell I've been through it's worth it!

Please sign and read more here...

https://www.change.o...rugs?lang=en-GB
You can hear my story on the Let's Talk Withdrawal podcast. Its a global weekly podcast created by James Moore that interviews experts and others suffering from the awful effects of psychiatric medication. Here's how to listen...

If you have an iPhone, iPad or PC/Mac with iTunes, this link will take you to the iTunes Store where you can subscribe so each new episode will download automatically...
https://goo.gl/Yz7Zmp
Or you can also listen and download each episode here on any device...
http://jfmoore.libsyn.com/

Started AD aged 14 (1997)
Stopped AD Escitralopram aged 33 (May 14th 2016) weaned down from 20mg to 1mg
10 months SSRI free since May 2016

#14 CJAJ16

CJAJ16

    Member

  • Members
  • PipPip
  • 94 posts
  • LocationReading

Posted 20 September 2016 - 09:55 AM

Hi James
Admin moved my above post into this thread. I came across your website last and excitedly posted the above in a new thread, not realising you were here and had started one already.

I just want to thank you for all you're doing, I think you're ideas are wonderful and I pray you get all the signatures you need to take this all the way. It is too late for me but this could be life changing for so many!
I've sent the link to everyone I can. Thank you again! 😊
You can hear my story on the Let's Talk Withdrawal podcast. Its a global weekly podcast created by James Moore that interviews experts and others suffering from the awful effects of psychiatric medication. Here's how to listen...

If you have an iPhone, iPad or PC/Mac with iTunes, this link will take you to the iTunes Store where you can subscribe so each new episode will download automatically...
https://goo.gl/Yz7Zmp
Or you can also listen and download each episode here on any device...
http://jfmoore.libsyn.com/

Started AD aged 14 (1997)
Stopped AD Escitralopram aged 33 (May 14th 2016) weaned down from 20mg to 1mg
10 months SSRI free since May 2016

#15 Vigor

Vigor

    Member

  • Members
  • PipPip
  • 56 posts
  • LocationUSA

Posted 20 September 2016 - 11:35 AM

Hey James,

 

I am sorry for the situation you are in, just understand you are in good company here. I signed your petition. I hope this goes through - not only could it help you - but countless others. This is something that should have been in development decades ago. 


Paxil 20-30mgs since 2004.

Three previous withdrawal attempts 2008,2012 and 2015 all cold turkey.

Reinstated 10mg February 20th 2016

3/20/16-9mg 4/5/16-8mg 5/5/16-7mg 5/25/16-6mg 6/25/16-5mg 8/7/16-updose to 6mg 9/7/16 5.5mg 10/10/16-5mg 11/10/16-4.5mg

One thing that helps me is to see your withdrawal process as your own personal journey. Do not internalize someone else's withdrawal as your own. 

  

"I did then what I knew how to do. Now that I know better, I do better."  - Maya Angelou


#16 JamesMoore

JamesMoore

    Member

  • Members
  • PipPip
  • 23 posts
  • LocationSouth Wales

Posted 23 September 2016 - 11:06 AM

Hi all, I just wanted to say thank you for your support and feedback so far and also for signing the petition. Also I wanted to update you progress so far. The petition is doing well and I've had support from Dr. Chris van Tulleken (the doctor who gave up drugs) as well as Dr. Ben Goldacre and Beverley Callard. Interestingly a number of psychiatrists and doctors have also signed and I have had really good feedback from a number of mental health professionals.

My next step is to start to raise awareness of this issue with Government and I already have a few contacts that I am making use of.

There are a couple of excellent facebook groups that I wanted to recommend that you look at, there are lots of like minded people on these groups who are keen to share their stories. Both these groups are closed so you would have to ask the admin to join but it's well worth it. I am sure that some of you are already members but if not, please consider joining.

https://www.facebook.../?ref=bookmarks

https://www.facebook.../?ref=bookmarks

Lastly, I have been updating my own website to include more information, if you get the chance, I'd love to get some feedback as the most important comments come from those who,have experienced these issues first hand.

Www.jfmoore.co.uk

So, sorry for the rambling, but thanks to all of you for taking the time to contribute to the petition.

All the best

James

#17 JamesMoore

JamesMoore

    Member

  • Members
  • PipPip
  • 23 posts
  • LocationSouth Wales

Posted 23 September 2016 - 11:08 AM

@CJAJ16 I don't feel worthy of such high praise but thank you so much, your feedback adds to my resolve to get something done for all those suffering in silence.

#18 nz11

nz11

    Platinum star

  • Members
  • PipPipPipPipPip
  • 2,520 posts
  • LocationWaipu NZ

Posted 23 September 2016 - 11:24 AM

 This is something that should have been in development decades ago. 

Exactly.

Thanks again James you are an inspiration and definitely praise worthy.


2000 amitryptaline, nortriptaline venlafaxine clonazepam for  arm pain from keyboard use, told I had a chemical imbalance it would fix my arm was just a matter of finding the right med for me not informed of the nature of these drugs assured safe and not addictive, CT off Effexor after being told to double the dose on reporting adverse effects...later ..uncharacteristic psych panic tearful presented to doctor to get answers. Given paroxetine no questions asked 'safe and not addictive' next please.2001-2010 paroxetine (paxil) 2 failed attempts to quit, a learned helplessness set in. Feb 10 - Sept 10,  8 month clueless taper, hell. Doc said I had underlying depression .. I said that's not right' then found online support group and the truth!...overcome with inconceivable humiliation and outrage. 28 Sept 10 drug free ...  daily psych and emotional torture beginning in the waking hours of the morning receding somewhat in the evening only to start up again the next day. 28 Sept 12 (24 months) Stabilizing  (What an indescribable unimaginable non-functional nightmare). sleep issues start up at 3 yrs  waking daily at 2am -4.30am)28 Sept 15 (5yrs drug free), cf, cmw, insomnia  horrifying pssd continues, still feel Rip van Winkle-ish, cognitively doing heaps better. 28 Sept 16 after 6 yrs start working again on a casual basis.

 

"It is unsafe for people who suffer from something that could be treated with an ssri to consult a psychiatrist." Gotzshe 2015. [ I think Gotzsche could have easily meant to say 'to consult anyone with prescribing privileges']. "Going to a psychiatrist is one of the most dangerous actions a person can take." Breggin

 

“Paroxetine is not safe, it is not effective and it meets every known definition of addictive.” McLaren, N, (2016) 'Psychiatry as bullsh*t’ p55..."Psychiatry is stuffed full of 'deep nonsense' better known as bullsh*t." McLaren 2016

 

"Within the first week of when you go on an antidepressant you may have a sexual dysfunction, it can go on forever, often only appearing when you go off the drug ...its extraordinarily common" Healy 2015

 

See  my intro post #451 for the xanax back story and for a CV -GSKs.  Come on guys get taperwise see a TaperMe Schedule

 For a staggeringly shocking 'prozac back story' see the truth post #523

 

"If I were an enemy combatant and the NZ army did this to me someone would be dragged to the Hague and jailed!"  nz11


#19 CJAJ16

CJAJ16

    Member

  • Members
  • PipPip
  • 94 posts
  • LocationReading

Posted 23 September 2016 - 12:37 PM

@JamesMoore
Thank you for the wonderful update! You're doing a fabulous job and getting the support from such recognised and respected professionals!
At the start of my journey into the hell that is withdrawal I asked "isn't there anything we can do!? Shouldn't more be done to make ppl aware and help sufferers?" And you're pushing forward and answering those questions which is why I feel so inspired and excited by all you're doing!! I check the petition page daily and feel so happy to see that number rising everyday!
I will eagerly follow you every step of this journey and will gladly do anything I can to help.
Thank you again! 😊
You can hear my story on the Let's Talk Withdrawal podcast. Its a global weekly podcast created by James Moore that interviews experts and others suffering from the awful effects of psychiatric medication. Here's how to listen...

If you have an iPhone, iPad or PC/Mac with iTunes, this link will take you to the iTunes Store where you can subscribe so each new episode will download automatically...
https://goo.gl/Yz7Zmp
Or you can also listen and download each episode here on any device...
http://jfmoore.libsyn.com/

Started AD aged 14 (1997)
Stopped AD Escitralopram aged 33 (May 14th 2016) weaned down from 20mg to 1mg
10 months SSRI free since May 2016

#20 JamesMoore

JamesMoore

    Member

  • Members
  • PipPip
  • 23 posts
  • LocationSouth Wales

Posted 26 September 2016 - 12:13 AM

Hello all, thank you again so much for the feedback and for promoting the petition, its making a real difference and we are nearly at 950 signatures as I write.

 

I wanted to let you know that I now have some overall aims for the campaign to try and better explain to others what we are trying to do, briefly there are:

1. Raise awareness of the difficulties users face when they want to stop taking psychoactive drugs.

2. Encourage and support conversations between users, mental health professionals and policy-makers around this issue.
3. Promote the idea of drug tapering kits and to encourage Pharmaceutical manufacturers to better support the users of their products.

 

Please continue to share the petition or my website among your family, friends and co-workers, even if others are not directly affected they probably know someone who is. If you have any ideas for further promotion then please do let me know.

 

Also, there is another initiative which is well worth supporting, the Council for Evidence based Psychiatry (CEP) are asking people to write to their local MPs to raise the issue of dependence on prescription drugs. If this is something that you would like to do the following link will give you all the details...

 

http://cepuk.org/201...rug-dependence/

 

Thanks for your time.

 

James



#21 JamesMoore

JamesMoore

    Member

  • Members
  • PipPip
  • 23 posts
  • LocationSouth Wales

Posted 15 October 2016 - 10:44 AM

Hi all, I have some exciting (and slightly terrifying!) news. The Victoria Derbyshire programme are shortly going to run an item looking at the experiences that people have taking antidepressants, including the difficulties some users have when attempting to stop. As part of this, all being well, I will have a short live interview about my petition.

This is such a great opportunity to gain some much needed awareness of the struggles that so many have using these drugs. If you can find the time please watch and, even better, contact the show to share your experiences. We need to demonstrate how many are suffering in silence, unable to get the help they need, this will make a huge difference and a real impact. Let’s light up their Twitter feed like a Christmas tree!

The broadcast details are:
- The Victoria Derbyshire show
- BBC 2 and BBC news channel
- Wednesday 19 October
- 0900 to 1100

Contact details:
- Twitter @VictoriaLIVE
- Facebook: http://www.facebook....toriaDerbyshire
- Email: victoria@bbc.co.uk
- SMS: 61124
- WhatsApp: 07753 428 430

Thanks so much for all the support.

James

#22 Terry4949

Terry4949

    Silver star

  • Members
  • PipPipPip
  • 171 posts
  • LocationBedfordshire

Posted 18 October 2016 - 10:39 AM

Well done James , I am going to try and contact the show to share my hell with a/d withdrawel , as untill the people responsible are educated in this matter the more people are going to suffer , I have just spent 4 weeks in a mental health hospital and I saw 3 doctors while I was in there and they all said that it was nonsense and that I was depressed and need medication and long term withdrawel is not possible , and that it is the depression returning , something has to change , I like you am struggling to withdraw from mirtazapine and for me I have been worse while on it , let's hope somebody actually takes notice
100mg Effexor 2000 untill jan 2015 severe withdrawals . Tapered 4weeks.
Jan to end of Feb 4 weeks on 15mg mirtazapine 20mg quetiapine , tapered of both 2 weeks , severe withdrawals , still some from Effexor possibly
End of Feb 2015 to end of July 30mg citolapram tapered 2weeks severe withdrawal , anxiety high , bouts of sever depression , severe emotional moods
Currently on 30mg mirtazapine appx 5 months , high anxiety, March cut dose 22.5 mg going on to liquid still no improvements with the depression , also started sept 2015 200mg pregabalin , currently on 22.5mg mirtazapine tablet form doing really badly. Cut beginning of May remeron 20mg still bad anxiety,August 15mg remeron ,100mg pregablin , severe depression headaches anxiety , oct 2016 doctor stoped pregablin c/t , 15mg mirtazapine still no let up in physical symptoms ,high anxiety ,Nov 2016 remeron 13.5 mg , Jan 2017 mirtazapine stopped flouxetine20mg added by hospital admission, no choice , doing really badly , akathesia suicidel ,, Flouxetine c/t by hospital after 7 weeks 20mg daily , currently on nothing , God help me

#23 JamesMoore

JamesMoore

    Member

  • Members
  • PipPip
  • 23 posts
  • LocationSouth Wales

Posted 18 October 2016 - 10:51 AM

Hi Terry, thanks so much for your reply and I'm so sorry that things recently have been so difficult for you. If you did feel up to sharing your experiences it would really help others. It is brave to be so open about it. Tomorrow is a real chance to make a difference and get the matter some much needed airtime. I'd be lying if I said I wasn't bricking it about being on live TV though! I honestly can't help feeling that chemistry and statistics have taken much of the compassion out of mental health. Hopefully we can start to change things for the future, first steps and all that. My very best wishes to you and I'm sure that things will start to improve. Cheers.

#24 anongrl5590

anongrl5590

    Member

  • Members
  • PipPip
  • 95 posts
  • LocationLos Angeles, California

Posted 04 January 2017 - 10:45 AM

I have signed the petition. I pray that this gets out and that big pharma will take action to create these kits. It's so sad to not have any real professional info on what to do when tapering off and having to rely on ourselves.

My medication -- Prozac
August 2015: Started on 10mg/day
September 2015 to May 2016: Increased to 20mg/day
May 2016: Abruptly stopped 20mg for 2 weeks (withdrawal symtoms arose but assumed it was worsened depression)
June 2016 to August 2016: increased to 40mg (my body reacted very badly to this dose)
August 2016: decreased back to 20mg
September 2016: tapered off 10mg this month alone
September 30, 2016: last day of Prozac
October 2016: month long window
November 2016-Present: WD symptoms (too many physical sxs and some mental sxs)
February 5-20, 2017: Reinstated at 1-2mg // February 21, 2017: Back to no meds

 


#25 JamesMoore

JamesMoore

    Member

  • Members
  • PipPip
  • 23 posts
  • LocationSouth Wales

Posted 11 February 2017 - 02:08 AM

HI everyone, I wanted to let you know that BBC Radio 5 live are broadcasting a programme on antidepressants on Sunday 12 February from 1100 to 1200. I am interviewed as part of the program. If you could listen in that would be great, if you felt like making contact with the show to share your experiences that would be even better.

Here's a link to the programmes web page:
http://www.bbc.co.uk...rammes/b08dnpkn

Contact details are:
Phone 0500 909 693
SMS 85058
Email: 5liveinvestigates@bbc.co.uk
Facebook: www.facebook.com/5live
Twiter: @BBC5live

Thank you and my best wishes to anyone struggling with antidepressants.

James