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Eleven10: 30 months off Prozac

fluoxetine Prozac imipramine

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#37 Eleven10

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Posted 27 November 2016 - 01:18 PM

Hi JC

Definitely I would like that pact. I so miss that exhausted but happy feeling when you finish a race, best feeling in the world.
I see a physiotherapist but I'm not making much progress, and it makes me feel very dizzy after the session. Maybe osteo would be better,my physio says my muscles are locked solid in my neck and back.

Thanks scallywag. I religiously kept a symptom diary for 18 months, I gave up. I'm not a defeatist I just honestly didn't see a pattern. The first 8 months were excruciating and if I hadn't improved slightly at the end I genuinely wouldn't be here now, but after that it's just stayed the same. I can honestly say I'm no different than 2 years ago and I just don't get it. :(
Prozac 17 years 20mg.
Cold turkey Feb 14

#38 KarenB

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Posted 27 November 2016 - 04:10 PM

I'm not the maths expert, but if you had tapered by 10% monthly, with the occasional longer hold, you'd probably just be getting to the end of it by now anyway.  You might find it interesting to work out if your maths is better than mine.  It just takes the body as long as it takes to heal and regroup. 


2010 May Fluoxetine 20mg. Raging mostly stops, become more functional.
2011 February Escitalopram 10mg (sudden switch). 2012 January Escitalopram 20mg.  2013 Early June Feeling great, decide to taper. Doc advises alternate days 20mg/10mg for 4 weeks.  Late June Steady. Drop to 10mg daily. Early July Not coping, raging, flu symptoms, shaky, anxious, low, spaced-out, self-destructive.  Mid July Return to alternate days 20mg/10mg - minimal improvement. Early August Return to full dose 20mg. Lost.
2014 February Switch to Venlafaxine. (First reduced Esc. to 10mg/day for a week) Feb-April Lost, 'light' self-harm, exhausted.
April Increase Ven. to 150mg/day. Dizzy. July 75mg twice a day to improve dizziness. Deep depression remains.  2015 Feb Vigilant dose spacing partially eases dizziness. Mar Switch to Effexor 75mg 2x/day. May Cut 10% to 135mg - bad w/d 2 mths, held 1 mth.  Aug 1.3% cut - bad 1mth, held 1mth. Oct 4 wkly 0.4% cuts held 6 weeks. Jan 2016 2 wkly 0.4% cuts. 8 month hold. Sept Wkly cuts: 0.5%, 3 1% cuts.  Oct 4 wkly 1% cuts, hold 3-4 weeks.
Supplements: Fish oil, vitamins E & C, magnesium, iron, MSM, oat-straw tea, nettle tea.  My story of healing: ContinuedHealing

***I am not a doctor or counselor; please do your own research and be prepared to take responsibility for decisions you make.*** 

           'The possibility of renewal exists so long as life exists.'  Dr Gabor Mate.


#39 Eleven10

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Posted 27 November 2016 - 07:02 PM

Thanks karenb Although in heinsight I would love to go back and do a very slow taper, it's not a guarantee to success, unfortunately it seems as many others are I am super sensitive to withdrawal. Neither can I accept that it will take as long as it takes, I'm at my limit of suffering and I really feel my body is begging for help. I feel years of withdrawal is doing my body serious long lasting harm and I need to to take action. I just need to muster the strength to do that. Iv promised my family Mummy is getting better soon and I idint intend to break that promise. Time for action.
Prozac 17 years 20mg.
Cold turkey Feb 14

#40 KarenB

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Posted 27 November 2016 - 11:08 PM

It's true there is no guarantee, I was more trying to offer a comparison which might explain why you still feel so bad after so long.  Meaning, our brains are slow to heal. 

 

I understand that feeling of a body getting seriously drained by w/d, especially for us mums.  To counter that (somewhat) I eat a really good diet, some vitamins and minerals, and make sure I get regular good rest.  What sort of help is your body wanting? 


2010 May Fluoxetine 20mg. Raging mostly stops, become more functional.
2011 February Escitalopram 10mg (sudden switch). 2012 January Escitalopram 20mg.  2013 Early June Feeling great, decide to taper. Doc advises alternate days 20mg/10mg for 4 weeks.  Late June Steady. Drop to 10mg daily. Early July Not coping, raging, flu symptoms, shaky, anxious, low, spaced-out, self-destructive.  Mid July Return to alternate days 20mg/10mg - minimal improvement. Early August Return to full dose 20mg. Lost.
2014 February Switch to Venlafaxine. (First reduced Esc. to 10mg/day for a week) Feb-April Lost, 'light' self-harm, exhausted.
April Increase Ven. to 150mg/day. Dizzy. July 75mg twice a day to improve dizziness. Deep depression remains.  2015 Feb Vigilant dose spacing partially eases dizziness. Mar Switch to Effexor 75mg 2x/day. May Cut 10% to 135mg - bad w/d 2 mths, held 1 mth.  Aug 1.3% cut - bad 1mth, held 1mth. Oct 4 wkly 0.4% cuts held 6 weeks. Jan 2016 2 wkly 0.4% cuts. 8 month hold. Sept Wkly cuts: 0.5%, 3 1% cuts.  Oct 4 wkly 1% cuts, hold 3-4 weeks.
Supplements: Fish oil, vitamins E & C, magnesium, iron, MSM, oat-straw tea, nettle tea.  My story of healing: ContinuedHealing

***I am not a doctor or counselor; please do your own research and be prepared to take responsibility for decisions you make.*** 

           'The possibility of renewal exists so long as life exists.'  Dr Gabor Mate.


#41 Eleven10

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Posted 28 November 2016 - 01:23 AM

yes I understand thank you. I think it was the shock of withdrawal that has left me in this state.

I'm glad you manage to get rest, unfortunately that is just not possible for me as my brain has lost the ability to sleep. I average 3 hrs.
There is nothing I haven't tried to sleep naturally. I have spent slot of time and money trying every natural method. I'm not sure what it's asking for but it's desperate for rest and peace, the only way I see to help it is medication again which I never thought I would say but my life is at risk so I have to be brave and try some things. I'm not a drama queen In fact the opposite but things have got too much for me.
Prozac 17 years 20mg.
Cold turkey Feb 14

#42 Junglechicken

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Posted 28 November 2016 - 01:38 AM

Hi JC

Definitely I would like that pact. I so miss that exhausted but happy feeling when you finish a race, best feeling in the world.
I see a physiotherapist but I'm not making much progress, and it makes me feel very dizzy after the session. Maybe osteo would be better,my physio says my muscles are locked solid in my neck and back.

Thanks scallywag. I religiously kept a symptom diary for 18 months, I gave up. I'm not a defeatist I just honestly didn't see a pattern. The first 8 months were excruciating and if I hadn't improved slightly at the end I genuinely wouldn't be here now, but after that it's just stayed the same. I can honestly say I'm no different than 2 years ago and I just don't get it. :(

 

When we were living in Canada, I had months and months of osteo treatment for all kinds of issues relating to WD.

 

They were excellent at getting to the root cause of the pain, and any pains I had just disappeared either the same day or after a couple of days.  This would include headaches/migraine.

 

I also took my time to explain to them about AD WD, and the effect the drugs had on the CNS, and how my body had become one big stress ball.

 

In early WD (this time last year), I was in excruciating pain, suffering from sciatica, lower back pain so bad I was on powerful pain killers.  My whole body had gone into shock and my muscles and joints were spasming something chronic.

 

Despite having run 3 marathons back to back, I had NEVER suffered from any of these issues before.

 

The only reason I am not having regular osteo treatment at the moment, is because we don't have the money coming in and I don't have the medical insurance I had from my previous job.


<p>Feb 2014 -Cipralex/Escitalopram 10mg daily June 2015 - Started taper, 5mg every other day July 2015 - 5mg every 2 days August 2015 - 5mg every 3 days September 2015 - 5mg every 4 days Sept 14th - Completed tapering, but at 7 weeks "drug free" I suffered serious WD symptoms as a consequence of "incorrect" tapering. Nov 25 2015 - Re-instated Cipralex @ 2.5mg daily. WD symptoms disappeared over a few days. Have been on this dose ever since and am experiencing "windows" and "waves". Nov 15th 2016 Re-started Therapy Jan 19th 2017 Started CBT. Jan 2017 Homeopathic Treatment starts 4th Jan 2017. Mar 2017 Naturopathic Treatment starts - anti-Candida diet starts as diagnosis of Candida Related Complex (CRC). 24 March 2017 DETOX (3 weeks) started for anti-Candida to help "re-set" my gut. April 2017 "Genova Testing 3 day stool sampling" Comprehensive Analysis.  Gut Cleanse - 6 weeks.  Plan to re-start taper (liquid Cipralex/Escitalopram) when feel ready.


#43 Eleven10

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Posted 03 December 2016 - 06:31 AM

I started dosulapin 25mg and it seems ok for the last 4 days, haven't got up for the toilet 7 times a night like usual and feel slightly less edgy. All the other horrific symptoms continue but I'm hopeful. I'm going to go up to 50mg in a week and stick there. I have everything crossable crossed.

I have also had an osteo asesemnt. He said my muscles in my upper back and around my spine were locked solid. Hopefully will be able to looses them slightly. He said he had seen it in a severe drug reaction before and is a sign of the nervous system being in shock. Not that I needed to be told what I already knew.
Prozac 17 years 20mg.
Cold turkey Feb 14

#44 Junglechicken

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Posted 03 December 2016 - 06:44 AM

At least the osteo was able to diagnose the cause of the locked muscles (WD) Eleven10. That's impressive, as it's so specific (in our case) and should stand you in good stead to reduce your pain.

I'm glad you went to see the osteo, and hope it helps you.

<p>Feb 2014 -Cipralex/Escitalopram 10mg daily June 2015 - Started taper, 5mg every other day July 2015 - 5mg every 2 days August 2015 - 5mg every 3 days September 2015 - 5mg every 4 days Sept 14th - Completed tapering, but at 7 weeks "drug free" I suffered serious WD symptoms as a consequence of "incorrect" tapering. Nov 25 2015 - Re-instated Cipralex @ 2.5mg daily. WD symptoms disappeared over a few days. Have been on this dose ever since and am experiencing "windows" and "waves". Nov 15th 2016 Re-started Therapy Jan 19th 2017 Started CBT. Jan 2017 Homeopathic Treatment starts 4th Jan 2017. Mar 2017 Naturopathic Treatment starts - anti-Candida diet starts as diagnosis of Candida Related Complex (CRC). 24 March 2017 DETOX (3 weeks) started for anti-Candida to help "re-set" my gut. April 2017 "Genova Testing 3 day stool sampling" Comprehensive Analysis.  Gut Cleanse - 6 weeks.  Plan to re-start taper (liquid Cipralex/Escitalopram) when feel ready.


#45 Eleven10

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Posted 03 December 2016 - 06:57 AM

He didn't think it was a antidepressant that caused the reaction but a drug used in cancer treatment and the lady's pain eased in a few months not years but I suppose it's similar
Prozac 17 years 20mg.
Cold turkey Feb 14

#46 Junglechicken

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Posted 03 December 2016 - 07:01 AM

He didn't think it was a antidepressant that caused the reaction but a drug used in cancer treatment and the lady's pain eased in a few months not years but I suppose it's similar


I see, so over the next few months I am certain you will notice your pain reduce.

<p>Feb 2014 -Cipralex/Escitalopram 10mg daily June 2015 - Started taper, 5mg every other day July 2015 - 5mg every 2 days August 2015 - 5mg every 3 days September 2015 - 5mg every 4 days Sept 14th - Completed tapering, but at 7 weeks "drug free" I suffered serious WD symptoms as a consequence of "incorrect" tapering. Nov 25 2015 - Re-instated Cipralex @ 2.5mg daily. WD symptoms disappeared over a few days. Have been on this dose ever since and am experiencing "windows" and "waves". Nov 15th 2016 Re-started Therapy Jan 19th 2017 Started CBT. Jan 2017 Homeopathic Treatment starts 4th Jan 2017. Mar 2017 Naturopathic Treatment starts - anti-Candida diet starts as diagnosis of Candida Related Complex (CRC). 24 March 2017 DETOX (3 weeks) started for anti-Candida to help "re-set" my gut. April 2017 "Genova Testing 3 day stool sampling" Comprehensive Analysis.  Gut Cleanse - 6 weeks.  Plan to re-start taper (liquid Cipralex/Escitalopram) when feel ready.


#47 AliG

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Posted 03 December 2016 - 08:11 AM

Eleven.  The ability to sleep can come back even after a long period of time. It sounds trite , but with time the sleep cycle can normalize. If you feel you have to take drugs to stay functional then , so be it.  It can be done without , but it can take time and not everybody has the time to spare.

I hope it goes well for you and the drugs have the desired effect. Eventually , I would hope you that you might be able to hop off them and sleep naturally in the future.


Many SSRI's &SSNRI's over 20 years . Zoloft - 7 years .  Effexor, Lexapro, Prozac, Cymbalta, Celexa, Pristiq, Valdoxan, Mianserin and many more - on and off . No tapering. Cold turkey -  Valdoxan - end of May 2014

 

                                                            Drug free since May, 2014
.
             "Find a place inside where there's joy and the joy will burn out the pain" - Joseph Campbell


#48 Eleven10

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Posted 03 December 2016 - 08:31 AM

Ali.

With genuine respect for differing opinions and experiences and I disagree. For many maybe but I know my body and my experiences and my sleep has not improved or shown any signs of improvement in 2.5 years. There is nothing I have not tried and much time I have invested. I have an extremely low quality of life and the insomnia has took me to the edge of suicide. It has destroyed my health caused serious infections requiring hospital treatment and reduced immunity, put me at risk of heart problems which run in our family and many other things.
I don't expect anyone to endorse meds especially on this site and I respect that but if it means I can spend one more hour a day with my kids for me it was a golden unavoidable decision. May not work may mean in playing with fire but I have taken a step forward in my opinion not back.
Prozac 17 years 20mg.
Cold turkey Feb 14

#49 AliG

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Posted 03 December 2016 - 09:05 AM

I respect your decision to do what you have to do and i wasn't disputing that in any way . I was just hoping that eventually you would possibly be able to sleep drug - free.

I totally understand if that's not possible and I certainly didn't mean to offend.

 

I have gone down a hard road myself in this respect and battled with insomnia nightly for a very long period of time . I have a family history of " sleep drugs "  so I have a vested interest in helping others find a more natural route but totally understand that everyone has their own history and unique circumstances. At the end of the day we have to do what works individually for each of us. 


Many SSRI's &SSNRI's over 20 years . Zoloft - 7 years .  Effexor, Lexapro, Prozac, Cymbalta, Celexa, Pristiq, Valdoxan, Mianserin and many more - on and off . No tapering. Cold turkey -  Valdoxan - end of May 2014

 

                                                            Drug free since May, 2014
.
             "Find a place inside where there's joy and the joy will burn out the pain" - Joseph Campbell


#50 Eleven10

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Posted 03 December 2016 - 09:26 AM

I totally respect that and I certainly wouldn't recommend anyone suffering ongoing insomnia to take drugs, I do think that it can be overcome naturally in most cases but I felt at the limit of suffering. I truly hope it helps and that I can slowly reduce in the future taking any psychotropics does not sit well with me.
Prozac 17 years 20mg.
Cold turkey Feb 14

#51 Junglechicken

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Posted 08 December 2016 - 08:49 AM

Just checking in to say hi!

How are you feeling?

<p>Feb 2014 -Cipralex/Escitalopram 10mg daily June 2015 - Started taper, 5mg every other day July 2015 - 5mg every 2 days August 2015 - 5mg every 3 days September 2015 - 5mg every 4 days Sept 14th - Completed tapering, but at 7 weeks "drug free" I suffered serious WD symptoms as a consequence of "incorrect" tapering. Nov 25 2015 - Re-instated Cipralex @ 2.5mg daily. WD symptoms disappeared over a few days. Have been on this dose ever since and am experiencing "windows" and "waves". Nov 15th 2016 Re-started Therapy Jan 19th 2017 Started CBT. Jan 2017 Homeopathic Treatment starts 4th Jan 2017. Mar 2017 Naturopathic Treatment starts - anti-Candida diet starts as diagnosis of Candida Related Complex (CRC). 24 March 2017 DETOX (3 weeks) started for anti-Candida to help "re-set" my gut. April 2017 "Genova Testing 3 day stool sampling" Comprehensive Analysis.  Gut Cleanse - 6 weeks.  Plan to re-start taper (liquid Cipralex/Escitalopram) when feel ready.


#52 Eleven10

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Posted 10 December 2016 - 04:22 AM

Hi JC

I'm still struggling but intend to persevere with the dosulapin. I don't think my body can make its mind up if it wants to accept it or not, I'm hoping it does but will try not to berate it if it doesn't.

It's devastating to think how close iv got to ending my life in the last 3 years and iv struggled to understand why my body has had such a difficult time in showing any definitive kind of recovery. There seems to be the method of thinking that if we just suffer long enough we will be rewarded and I went along with that thinking for a very long time. It broke me to have nights of "brain cooking" activation and torture that I am unable to describe properly and days of such soul destroying depression such a long time after withdrawal. I totally get that this can be a long long journey and many get that reward at this end but for some maybe because of some genetic vulnerabilities will never get that reward and I think maybe I'm one.
I try desperately to try and remember how I was before I touched a med and I was undoubtedly depressed and ill in some way I don't understand but there was no brain cooking and the depression was not a patch on this beast. Prozac made me feel very well for a long long time but it's also damaaged my brain in the most terrible way.
I'm praying Dr Healy is onto something with the tricyclic but who knows.

Ps thanks for asking how I am x
Prozac 17 years 20mg.
Cold turkey Feb 14

#53 Eleven10

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Posted 19 January 2017 - 10:39 AM

Update.
I had to come off the dosulapin, my bp dropped so low I was unable to stand up. I'm devastated as I felt I was getting a little of an anti anxiety effect.
I'm now back at square one, 3 years off and the suicidal depression, insomnia and all it's friends are back with a vengeance.

I feel there is no end to this nightmare
Prozac 17 years 20mg.
Cold turkey Feb 14

#54 Purplestars22

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Posted 19 January 2017 - 08:49 PM

Hey Eleven10, I am also three years off meds it's been the hardest time in my whole life. I try not to get too disappointed that it still is hard at times. Knowing that I have I have surpassed all these years makes me feel strong that I can handle the upcoming years whatever it is. Sometimes I feel disheartened on how tough it's been but I just move forward and focus on my breath. I have a faith you will be okay since you have gotten this far. Practice self soothing techniques such as, EFT tapping, mindfulness, take walks, meditating, using adult coloring books, reading a book, watching a funny show, putting a face mask, lighting a candle, surfing the web. Focus one step at a time, ps22
Celexa 20mg 2008-2012 for Social Anxiety
Failed attempt to stop reinstated
1 year taper skipping doses
Celexa free 12/2013
1/2014-5/2014 took 5 htp every other day
Failed Reinstatement 5mg of Celexa on 12/2014 for 5 days only

#55 Eleven10

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Posted 19 January 2017 - 11:47 PM

I'm glad you are coping and in a relatively good place.

I can't read a book I'm too ill and the Prozac damaged my vision.

I'm currently sleeping just 2.7 hrs a night and I'm in a dark dark place.

I had to postpone my cbt classes as was just too unwell to travel and attend. I do go to acupuncture at the chronic pain clinic but I have not seen benefit.

I'm really struggling to stick around at the moment
Prozac 17 years 20mg.
Cold turkey Feb 14

#56 nz11

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Posted 20 January 2017 - 10:13 AM

11-10 so sorry you are in this bad place.

I wouldn't worry about missing the cbt classes I dont think cbt can do a lot for acute wdl imo . Have you checked out the Claire weeks thread.

 

 It sounds to me like you thought things couldnt possibly get any worse prior to dosulapin but now they have.

Its very unfortunate that you have done yet another CT 

I was just reading the common adverse effects of dosulapin and hypotension (low bp) was one of them.

 

Wishing you strength.


2000 amitryptaline, nortriptaline venlafaxine clonazepam for  arm pain from keyboard use, told I had a chemical imbalance it would fix my arm was just a matter of finding the right med for me not informed of the nature of these drugs assured safe and not addictive, CT off Effexor after being told to double the dose on reporting adverse effects...later ..uncharacteristic psych panic tearful presented to doctor to get answers. Given paroxetine no questions asked 'safe and not addictive' next please.2001-2010 paroxetine (paxil) 2 failed attempts to quit, a learned helplessness set in. Feb 10 - Sept 10,  8 month clueless taper, hell. Doc said I had underlying depression .. I said that's not right' then found online support group and the truth!...overcome with inconceivable humiliation and outrage. 28 Sept 10 drug free ...  daily psych and emotional torture beginning in the waking hours of the morning receding somewhat in the evening only to start up again the next day. 28 Sept 12 (24 months) Stabilizing  (What an indescribable unimaginable non-functional nightmare). sleep issues start up at 3 yrs  waking daily at 2am -4.30am), April 2016 return to sport for the first time since drug free, Sept 16 return to work on casual basis.  28 Sept 16 (6yrs drug free), still cant sleep with any regularity, pssd continues no sign of improvement, still feel Rip van Winkle-ish, brain fog still improving, psoriasis concerns.

 

"It is unsafe for people who suffer from something that could be treated with an ssri to consult a psychiatrist." Gotzshe 2015. [ I think Gotzsche could have easily meant to say 'to consult anyone with prescribing privileges']. "Going to a psychiatrist is one of the most dangerous actions a person can take." Breggin

 

“Paroxetine is not safe, it is not effective and it meets every known definition of addictive.” McLaren, N, (2016) 'Psychiatry as bullsh*t’ p55..."Psychiatry is stuffed full of 'deep nonsense' better known as bullsh*t." McLaren 2016

 

"Within the first week of when you go on an antidepressant you may have a sexual dysfunction, it can go on forever, often only appearing when you go off the drug ...its extraordinarily common" Healy 2015

 

See  my intro post #451 for the xanax back story and for a CV -GSKs.  Come on guys get taperwise see a TaperMe Schedule

 For a staggeringly shocking 'prozac back story' see the truth post #523

 

"If I were an enemy combatant and the NZ army did this to me someone would be dragged to the Hague and jailed!"  nz11


#57 Eleven10

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Posted 20 January 2017 - 10:53 AM

Thank you nz11

I ordered a couple of her books a while ago I will check them out when I can

The dosulapin has not made me worse I'm in the same place as I was prior to to taking it if I feel any worse it's because I feel so disappointed as I feel I was getting a slight benefit whilst I took it.
I only took it for a a few weeks but felt the burning doom feeling lessen just a smidge.. if I thought my bp would stabilise I would stay at 50mg but it was low to start with. I didn't ct either.

Thank you for your kind words, I will try some thing else I'm not leaving my child without a fight.

Prozac had a devasting effect on my depression in the long run. I never saw true light until I found it but would gladly go back to living in the dusk compared to this darkness.
Prozac 17 years 20mg.
Cold turkey Feb 14

#58 Altostrata

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Posted 20 January 2017 - 10:29 PM

Update.
I had to come off the dosulapin, my bp dropped so low I was unable to stand up. I'm devastated as I felt I was getting a little of an anti anxiety effect.
I'm now back at square one, 3 years off and the suicidal depression, insomnia and all it's friends are back with a vengeance.

I feel there is no end to this nightmare

 
Hello, Eleven. What were the beneficial effects of dosulapin for you? Did it help your sleep?
 
When you got low blood pressure from it, did you try taking a smaller dosage?
 
Was it Dr. Healy who recommended it?
 
Have you followed our suggestions for sleep hygiene in Important topics about symptoms, including sleep problems ? Keep bedroom cool and dark, block out morning light, etc.? Get off the computer in the evening? Are you light-sensitive? 

 

What is your sleep pattern? Do you fall asleep at the same time each night?


This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

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#59 Eleven10

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Posted 21 January 2017 - 03:30 AM

Alto, thank you.

After about a week at 25mg I felt a slight lift in anxiety, and a some improvement in sleep. Around 18 months ago I tried a tiny bit of mirtazapine around 3.75mg. I was awake all night with rushes of adrenaline and I cried with deep depression all the next day. I was very afraid to try to the dosulapin but it didn't have the same effect, it was less activating.

Insomnia is one of the worse symptoms, I go to bed so tired around 10.40, I feel my thoughts start to swim as if I'm going to sleep but then something changes and I become extremely alert, I become hypersensitive to noise and despite the exhaustion I have to get up, I get a drink and maybe some paracetamol or ibruphhonen and around 12.30 I drop off but wake after just 2 Hrs, go back to sleep till 4 then I'm wide awake. I'm then filled with looping anxieties, I sometimes drop back off at 8 till 9.30 and that is my night almost every night. Sometimes worse occasionally better but if anything more sleep means deeper depression and more physical pain the following day. The only thing that has lessened is the huge cortisol rushes am of early withdrawal. I still get a dampened version.

Anxiety effected my sleep before meds. But in a different way and I was always able to catch up on sleep unlike now.

Dr Healy suggested clonidine to me but I struggled to get a gp to prescribe as my bp is low.
Dosulapin was his his second suggestion.

Light sensitivity is a huge problem to me as well as noise and tinnitus. I have not had proper vision since the ct.

I have black out curtains and I wear ear plugs and a face mask.


The last psychiatrist diagnosed ptsd from the withdrawal and suggested gabapentin but I really don't want to mess around with that.

tje biggest fear I have of medication is activation and anxiety.
Prozac 17 years 20mg.
Cold turkey Feb 14

#60 Eleven10

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Posted 23 January 2017 - 01:47 AM

Tinnitus has been a constant for the whole of withdrawal, constant high pitched whistle that get louder if I laugh cry or afte sny stimulation including short conversations.
I took half a zoplicone last night in total fear after 4 nights of no sleep, my sister took me to the shop for basics and whilst walking round I totally forgot where I was, what I was doing or how I had got to the shop.
Anyway the zoplicone half a 3.75 significantly subdued the tinnitus, still only slept fretfully and woke after 3 hrs but to not wake up to a million crickets in my ears was nice.
After 3 years I'm flattened by my progress it's hard to know the next step.
Prozac 17 years 20mg.
Cold turkey Feb 14

#61 Eleven10

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Posted 23 January 2017 - 02:51 AM

I was also told by dr Healy that once ssri withdrawal set in there was nothing anyone could do and no relatable treatment and it was unlikely to go away.
Prozac 17 years 20mg.
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#62 keepinghope

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Posted 23 January 2017 - 10:26 AM

Hi Eleven10

 

Did he say unlikely to go away as in permanent? There are stories on here from people who have healed, but at the moment I don't feel like I ever will. I'm nearly 17 months off Prozac, and feel like I'm slowly losing myself bit by bit, like every wave takes a bit more of my mind with it. 

 

Hope you're doing better and have managed to get some sleep. 


2002 - Prescribed fluoxetine 20mg for mild situational depression and anxiety. Over the years also briefly swapped about on citalopram, sertraline and venlafaxine during poop out. 2012 - Cold turkeyed fluoxetine. Within 3 months was suffering from aggression, anxiety, panic attacks and paranoia. GP put me back on tablets as I was 'relapsing'. I didn't know anything about WD then. Jul 15 - Wanted to quit fluoxetine again so tapered off (skipping doses) over 6 weeks under advice of GP. Aug 15 - Last fluoxetine dose end of August 2015. Dec 15 - Had my first real crash after discontinuing. Found this site. Aug-Dec 16 - Signed off work because of a herniated disc & severe sciatica. Prescribed diazepam (took for 6 days and got WD symptoms on stopping; nausea, morning cortisol spikes, anxiety, anger) and codeine which I was on for 4 mths. Can confirm - opiate WD is nasty but nowhere near as bad or prolonged as SSRI WD!
Withdrawal symptoms have included: extreme anger and irritability, lethargy, depression and weepiness, anxiety, stomach upsets, loss of appetite, excessive sweating, muscle and back pain, insomnia, cortisol surges, akathisia, inability to cope with stress.
Things that help: herbal tinctures (rose, lemon balm, chamomile and skullcap), seaweed baths & epsom salt baths, fish oil and magnesium.


#63 Eleven10

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Posted 23 January 2017 - 10:35 AM

Hi there.

It was a email he sent saying that once ssri withdrawal became entrenched there was no treatment and was unlikely to go away by itself. I was upset and cried a lot but really crying doesn't solve anything. I refuse to just accept this is my life now. I would rather not be here than live at this level of functioning.

I'm sorry you suffer, Prozac withdrawal is horrific.

If I could calm my tinnitus and sleep a little better I know I could get one foot on the escalator.

Much love
Prozac 17 years 20mg.
Cold turkey Feb 14

#64 keepinghope

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Posted 23 January 2017 - 11:23 AM

I'd love to prove him wrong! If the brain is as neuroplastic as they think it is, we must be able to heal eventually. It just takes so long. I'm about to buy some fish oil and magnesium and give that a go. Been epsom salt bathing for England but I don't think that's cutting it. 

 

I know how you feel about the lack of sleep, it wears me down. Things will get better for all of us, got to hang on to that. 


2002 - Prescribed fluoxetine 20mg for mild situational depression and anxiety. Over the years also briefly swapped about on citalopram, sertraline and venlafaxine during poop out. 2012 - Cold turkeyed fluoxetine. Within 3 months was suffering from aggression, anxiety, panic attacks and paranoia. GP put me back on tablets as I was 'relapsing'. I didn't know anything about WD then. Jul 15 - Wanted to quit fluoxetine again so tapered off (skipping doses) over 6 weeks under advice of GP. Aug 15 - Last fluoxetine dose end of August 2015. Dec 15 - Had my first real crash after discontinuing. Found this site. Aug-Dec 16 - Signed off work because of a herniated disc & severe sciatica. Prescribed diazepam (took for 6 days and got WD symptoms on stopping; nausea, morning cortisol spikes, anxiety, anger) and codeine which I was on for 4 mths. Can confirm - opiate WD is nasty but nowhere near as bad or prolonged as SSRI WD!
Withdrawal symptoms have included: extreme anger and irritability, lethargy, depression and weepiness, anxiety, stomach upsets, loss of appetite, excessive sweating, muscle and back pain, insomnia, cortisol surges, akathisia, inability to cope with stress.
Things that help: herbal tinctures (rose, lemon balm, chamomile and skullcap), seaweed baths & epsom salt baths, fish oil and magnesium.


#65 nz11

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Posted 23 January 2017 - 12:20 PM

I was also told by dr Healy that once ssri withdrawal set in there was nothing anyone could do and no relatable treatment and it was unlikely to go away.

 

 

It was a email he sent saying that once ssri withdrawal became entrenched there was no treatment and was unlikely to go away by itself.

 

To be honest i was a bit surprised to read this.

No disrespect to Prof Healy for i have a lot of admiration for him but unless he has changed his view in the last couple of years this appears to contradict a previous statement that it clears up with time.

Actually in acute wdl i highlighted this statement and held onto it desperately.

 

"If the explanation offered above is even partly correct, it implies that with time the condition should resolve but this resolution may take months or years." Healy.

 

So would he be saying then that his explanation is not even 'partly correct'.

 

I do agree that once you trigger full blown ssri wdl all bets are off the table on how to find relief but for me at least it has receded with time and we are talking years.

 

Are you sure you aren't misreading the email?

nz11


2000 amitryptaline, nortriptaline venlafaxine clonazepam for  arm pain from keyboard use, told I had a chemical imbalance it would fix my arm was just a matter of finding the right med for me not informed of the nature of these drugs assured safe and not addictive, CT off Effexor after being told to double the dose on reporting adverse effects...later ..uncharacteristic psych panic tearful presented to doctor to get answers. Given paroxetine no questions asked 'safe and not addictive' next please.2001-2010 paroxetine (paxil) 2 failed attempts to quit, a learned helplessness set in. Feb 10 - Sept 10,  8 month clueless taper, hell. Doc said I had underlying depression .. I said that's not right' then found online support group and the truth!...overcome with inconceivable humiliation and outrage. 28 Sept 10 drug free ...  daily psych and emotional torture beginning in the waking hours of the morning receding somewhat in the evening only to start up again the next day. 28 Sept 12 (24 months) Stabilizing  (What an indescribable unimaginable non-functional nightmare). sleep issues start up at 3 yrs  waking daily at 2am -4.30am), April 2016 return to sport for the first time since drug free, Sept 16 return to work on casual basis.  28 Sept 16 (6yrs drug free), still cant sleep with any regularity, pssd continues no sign of improvement, still feel Rip van Winkle-ish, brain fog still improving, psoriasis concerns.

 

"It is unsafe for people who suffer from something that could be treated with an ssri to consult a psychiatrist." Gotzshe 2015. [ I think Gotzsche could have easily meant to say 'to consult anyone with prescribing privileges']. "Going to a psychiatrist is one of the most dangerous actions a person can take." Breggin

 

“Paroxetine is not safe, it is not effective and it meets every known definition of addictive.” McLaren, N, (2016) 'Psychiatry as bullsh*t’ p55..."Psychiatry is stuffed full of 'deep nonsense' better known as bullsh*t." McLaren 2016

 

"Within the first week of when you go on an antidepressant you may have a sexual dysfunction, it can go on forever, often only appearing when you go off the drug ...its extraordinarily common" Healy 2015

 

See  my intro post #451 for the xanax back story and for a CV -GSKs.  Come on guys get taperwise see a TaperMe Schedule

 For a staggeringly shocking 'prozac back story' see the truth post #523

 

"If I were an enemy combatant and the NZ army did this to me someone would be dragged to the Hague and jailed!"  nz11


#66 WhySSRI

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Posted 23 January 2017 - 12:31 PM

If I could calm my tinnitus and sleep a little better I know I could get one foot on the escalator.

Much love

 

You nailed it.  This is exactly how I feel.


2010 - had my first full blown panic attack started on alprazolam 0.5 mg
2011 - was told by doc to try AD along with benzo to control panic attack and anxiety lexapro 20 mg alprazolam 2.0 mg
2012 - was told by doc to switch out medication paxil 40 mg clonazepam 2.0 mg
Mar 2016 - made the jump to cymbalta 60 mg clonazepam 2.0 mg
July 2016 - got sick and tired of taking meds finally decided to cold turkey meds
 

- BE HERE NOW -

 

My Intro


#67 Eleven10

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Posted 25 January 2017 - 03:46 AM

Yep the tinnitus and vertigo is the pits.

Healy does say can be permanent in older people and I'm not 20 anymore!

It's difficult when you had depression to start with and it all merges into one..ssris make a condition chronic which we all know but they doesn't deminish the pain of severe depression. But then again Healy does say if ssris worked for you in the first place you probably didn't have severe depression but that is not always the case.

I'm discussing ect with my dr this afternoon. 3 years is long enough to wait for a improvement
Prozac 17 years 20mg.
Cold turkey Feb 14

#68 nz11

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Posted 26 January 2017 - 12:31 AM

So do you think you have misread the emails then.

Personally i doubt very much Healy said that stuff.

 

Any update on your doctors opinion of ECT ?


2000 amitryptaline, nortriptaline venlafaxine clonazepam for  arm pain from keyboard use, told I had a chemical imbalance it would fix my arm was just a matter of finding the right med for me not informed of the nature of these drugs assured safe and not addictive, CT off Effexor after being told to double the dose on reporting adverse effects...later ..uncharacteristic psych panic tearful presented to doctor to get answers. Given paroxetine no questions asked 'safe and not addictive' next please.2001-2010 paroxetine (paxil) 2 failed attempts to quit, a learned helplessness set in. Feb 10 - Sept 10,  8 month clueless taper, hell. Doc said I had underlying depression .. I said that's not right' then found online support group and the truth!...overcome with inconceivable humiliation and outrage. 28 Sept 10 drug free ...  daily psych and emotional torture beginning in the waking hours of the morning receding somewhat in the evening only to start up again the next day. 28 Sept 12 (24 months) Stabilizing  (What an indescribable unimaginable non-functional nightmare). sleep issues start up at 3 yrs  waking daily at 2am -4.30am), April 2016 return to sport for the first time since drug free, Sept 16 return to work on casual basis.  28 Sept 16 (6yrs drug free), still cant sleep with any regularity, pssd continues no sign of improvement, still feel Rip van Winkle-ish, brain fog still improving, psoriasis concerns.

 

"It is unsafe for people who suffer from something that could be treated with an ssri to consult a psychiatrist." Gotzshe 2015. [ I think Gotzsche could have easily meant to say 'to consult anyone with prescribing privileges']. "Going to a psychiatrist is one of the most dangerous actions a person can take." Breggin

 

“Paroxetine is not safe, it is not effective and it meets every known definition of addictive.” McLaren, N, (2016) 'Psychiatry as bullsh*t’ p55..."Psychiatry is stuffed full of 'deep nonsense' better known as bullsh*t." McLaren 2016

 

"Within the first week of when you go on an antidepressant you may have a sexual dysfunction, it can go on forever, often only appearing when you go off the drug ...its extraordinarily common" Healy 2015

 

See  my intro post #451 for the xanax back story and for a CV -GSKs.  Come on guys get taperwise see a TaperMe Schedule

 For a staggeringly shocking 'prozac back story' see the truth post #523

 

"If I were an enemy combatant and the NZ army did this to me someone would be dragged to the Hague and jailed!"  nz11


#69 Eleven10

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Posted 26 January 2017 - 01:22 AM

You doubt Healy said what stuff?

He's going to speak to another Dr but he said it's definitely an option as I'm so opposed to drugs.
Prozac 17 years 20mg.
Cold turkey Feb 14

#70 Eleven10

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Posted 26 January 2017 - 10:44 AM

I have to try one more med then I can try ECT.

I don't think I will actually take the med.

Something has to change this year for me. I'm having such terrible problems with my ears and neck I barley leave the house but feel too agitated to sit in the house. Torture

I'm struggling mentally with the fact I did this to myself. Albeit unknowingly and with ignorance.
Prozac 17 years 20mg.
Cold turkey Feb 14

#71 nz11

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Posted 26 January 2017 - 11:41 AM

These are still early days in healing i was like that in yr 3 too.

 

Im pretty sure no one here is going to rec a different med or ect for that matter

The Healy stuff i was referring to post 65


2000 amitryptaline, nortriptaline venlafaxine clonazepam for  arm pain from keyboard use, told I had a chemical imbalance it would fix my arm was just a matter of finding the right med for me not informed of the nature of these drugs assured safe and not addictive, CT off Effexor after being told to double the dose on reporting adverse effects...later ..uncharacteristic psych panic tearful presented to doctor to get answers. Given paroxetine no questions asked 'safe and not addictive' next please.2001-2010 paroxetine (paxil) 2 failed attempts to quit, a learned helplessness set in. Feb 10 - Sept 10,  8 month clueless taper, hell. Doc said I had underlying depression .. I said that's not right' then found online support group and the truth!...overcome with inconceivable humiliation and outrage. 28 Sept 10 drug free ...  daily psych and emotional torture beginning in the waking hours of the morning receding somewhat in the evening only to start up again the next day. 28 Sept 12 (24 months) Stabilizing  (What an indescribable unimaginable non-functional nightmare). sleep issues start up at 3 yrs  waking daily at 2am -4.30am), April 2016 return to sport for the first time since drug free, Sept 16 return to work on casual basis.  28 Sept 16 (6yrs drug free), still cant sleep with any regularity, pssd continues no sign of improvement, still feel Rip van Winkle-ish, brain fog still improving, psoriasis concerns.

 

"It is unsafe for people who suffer from something that could be treated with an ssri to consult a psychiatrist." Gotzshe 2015. [ I think Gotzsche could have easily meant to say 'to consult anyone with prescribing privileges']. "Going to a psychiatrist is one of the most dangerous actions a person can take." Breggin

 

“Paroxetine is not safe, it is not effective and it meets every known definition of addictive.” McLaren, N, (2016) 'Psychiatry as bullsh*t’ p55..."Psychiatry is stuffed full of 'deep nonsense' better known as bullsh*t." McLaren 2016

 

"Within the first week of when you go on an antidepressant you may have a sexual dysfunction, it can go on forever, often only appearing when you go off the drug ...its extraordinarily common" Healy 2015

 

See  my intro post #451 for the xanax back story and for a CV -GSKs.  Come on guys get taperwise see a TaperMe Schedule

 For a staggeringly shocking 'prozac back story' see the truth post #523

 

"If I were an enemy combatant and the NZ army did this to me someone would be dragged to the Hague and jailed!"  nz11


#72 Eleven10

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Posted 26 January 2017 - 12:16 PM

I'm pretty sure I didn't ask anyone to recommend anything nvz11 and simply repeating what the dr said to me.
Prozac 17 years 20mg.
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