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Wikipedia - editing the pages of the psychiatric medication


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#1 adrianctn

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Posted 18 December 2016 - 11:17 PM

Hello, 

 

I would like to gather the help of the community to modify the pages of all psychiatric medication on Wikipedia - to reflect what we know to be true: that these drugs are dangerous and have debilitating side effects. 

 

This is important because Wikipedia is used as a source of medical information by millions of people worldwide. 

 

I have started with the page on Prozac, with a minor edit. My edit is underlined. 

 

https://en.wikipedia...wiki/Fluoxetine

 

 

"Fluoxetine, also known by trade names Prozac and Sarafem among others, is an antidepressant of the selective serotonin reuptake inhibitor (SSRI) class.[1] It is used for the treatment of major depressive disorderobsessive–compulsive disorder (OCD), bulimia nervosapanic disorder, and premenstrual dysphoric disorder. It may decrease the risk of suicide in those over the age of 65, but significantly increases the risk of suicide overall, by causing severely altered mental states[5]. Fluoxetine has also been used to treat premature ejaculation, but it causes permanent impotence and sexual dysfunction in some individuals[6]. It is taken by mouth.[1]"


December 2015 One month Prozac at 10mg/day and every other day for MILD Anxiety ( What the hell??? No prior illness of any sort.)

Horrible side effects. Finally Cold Turkey.
May 2016 - Lamotrigine 0.5mg. Going up slowly. Sleep back to 8-9 hours normal (complete insomnia after Prozac).
June 2016 - 2 weeks 2.5mg Diazepam for Akathisia. Then lowered to 0.6mg/day.

Also Propranolol, Clonidine, occasional antihistamine, magnesium, B6 - for akathisia.

Experiencing severe protracted withdrawal. Symptoms got worse and changed each month. 

Last symptom remaining - Severe Akathisia since May with (mostly) waves and (some) windows. (When worse: pacing, can't concentrate or even speak, difficulty eating, driving, getting out of the house, horrible pain, restlessness, headache, exhaustion)

 

 


#2 keepinghope

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Posted 28 December 2016 - 07:05 AM

Looks like it's already been changed again.

I had to laugh at the following section:
"The side effects of the fluoxetine discontinuation are uncommon and mild..."
Hmm, ok then!

Drug companies have their people rewrite this stuff faster than we can :(
2002 - Prescribed fluoxetine 20mg for mild situational depression and anxiety. Over the years also briefly swapped about on citalopram, sertraline and venlafaxine. 2012 - Cold turkeyed fluoxetine. Within 3 months was suffering from aggression, anxiety, panic attacks and paranoia. GP put me back on tablets as I was 'relapsing'. I didn't know anything about WD then. Jul 15 - Wanted to quit fluoxetine again so tapered off over 6 weeks under advice of GP - he told me the liquid was hard to get hold of so I used my 20mg tablets and went from 1 every other day to 1 every 3 days etc. Now know how bad that advice was (understatement of the year!) Aug 15 - Last fluoxetine dose end of August 2015. Dec 15 - Had my first real crash after discontinuing. Found this site. Aug-Dec 16 - Signed off work because of a herniated disc & severe sciatica. Prescribed diazepam (took for 6 days and got WD symptoms on stopping; nausea, morning cortisol spikes, anxiety, anger) and codeine which I was on for 4 mths. Can confirm - opiate WD is nasty but nowhere near as bad or prolonged as SSRI WD!
Withdrawal symptoms have included: extreme anger and irritability, lethargy, depression and weepiness, anxiety, stomach upsets, loss of appetite, excessive sweating, muscle and back pain, insomnia, cortisol surges, akathisia, inability to cope with stress.
Things that help: Herbal tinctures (Rose, Lemon Balm and Chamomile prescribed by herbalist - also take Skullcap occasionally to help with sleep & anxiety. Seaweed baths & Epsom salt baths which help with muscle tension and restlessness. Now trying fish oil and magnesium too.

#3 Altostrata

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Posted 28 December 2016 - 12:39 PM

This is a good idea. Be sure to back up any changes with links to appropriate papers from verified medical journals.


This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

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#4 InvisibleUnless

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Posted 31 December 2016 - 05:33 PM

while this has been a long time coming, i also advise people to integrate new content into the present format in order to reduce the chances of people trying to reverse the changes.  for example, the changes mentioned in the first post here did not follow the "positives, then negatives" formatting of the paragraph they were introduced into.  even people who agree about the known risks may revert an edit if they think it was a poor fit stylistically.

 

i consider this a fairly important campaign for informed consent.  perhaps members of SA with enough time or cognitive functioning on their hands to work on these sorts of issues can collaborate to most effectively amend such articles to be more accurate and more scientific.  if such a collaboration takes place, i would be interested in contributing to the degrees i am capable.


from 2005-2012, i spent 7 years taking 17 different psychotropic medications covering several classes.  i would be taking 3-7 medications at a time, and 6 out of the 17 medications listed below were maxed or overmaxed in clinical dosage before i moved on to trying the next unhelpful cocktail.
 
antidepressants (SSRIs, SNRIs, NDRIs, tetracyclics): zoloft, wellbutrin, effexor, lexapro, prozac, cymbalta, remeron
antipsychotics (atypical): abilify, zyprexa, risperdal, geodon
sleep aids (benzos, off-label antidepressants & antipsychotics, hypnotics): seroquel, temazepam, trazodone, ambien
anxiolytics: buspar
anticonvulsants: topamax
 
i tapered off all psychotropics from late 2011 through early 2013, one by one.  for all 5 years since quitting, ive been cycling through severe, disabling withdrawal symptoms spanning the gamut of the serious, less serious, and rather worrisome side effects of these assorted medications.  previous cross-tapering and medication or dosage changes had also caused undiagnosed withdrawal symptoms.
 
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#5 PatriciaVP

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Posted 31 December 2016 - 05:51 PM

I would love to help with something like this, but I would want to do it in collaboration with others to ensure my edits were grammatically correct, fit stylistically, backed by research and didn't disappear into oblivion the minute I hit "save".

PatriciaVP@AbleWriterSays My Intro

 

Zoloft 150-200 mg- on and off between 1998 and 2004.

 

Lexapro 40 mg - 2004-2013 30 mg 2013 - August 2015 20 mg August 2015- September 2015 15 mg September 2015 - October 2015 10 mg October 2015 -Nov. 1 2015. Nov. 2015 increased dose to 12.5 mg to stabilize. Dec. 28 2015 11.25 mg March 29, 2016 10 mg. August 1, 2016 9 mg. October 23, 2016 8.1 mg. Nov. 29, 2016 7.5 mg

 

Depakote 1000 mg 2008-2013  750 2013-Dec 2015 500 mg Dec 2015 to Feb 2, 2016. Sopped completely Feb 2 2016.

 

Adderall 40mg 2004-Feb 29, 2016. Feb 29,2016 - reduced Adderall to 20 mg based on pdoc's recommendations. March 29, 2016 - Reduced Adderall to 15 mg. April 30 reduced Adderall to 10 mgs. May 28, 2016 reduced Adderall to 5 mgs.June 8, 2016 stopped taking Adderall due to extreme agitation.

 

Amphetamine 20mg 2008 - 1/16. 1/16 - Stopped Amphetamine completely because pdoc did not renew script.

"Just keep swimming! Just keep swimming! Just keep swimming, swimming, swimming! What do we do? We swim!" -Dory


#6 tjdeepthinker

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Posted 26 January 2017 - 06:04 AM

This is a very good idea. For the future generations! 


I know I can handle this moment, simply because I AM handling this moment. 

 

*Current: 2017 January Seroquel 10.75 Pax 5mg Dormonoct 2 mg ( holding up-dose due to life circumstances) 

 

*My full withdrawal history so far, up to Jan 2017 here in my intro (post #65)

*My Blog: tjdeepthinker@wordpress.com

 

...and we can SING about LOVE together...

:rolleyes: 


#7 IHadPassion

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Posted 26 January 2017 - 08:19 AM

Since Pharma monitors and changes the drug pages regularly, why not make a Surviving Antidepressants.org page on Wikipedia and start collecting data there? 


Year 0:      Social anxiety, obsessive thoughts, NO depression, NO suicidal ideations

Years 1-2: Ativan (benzo) <1mg as needed, not abused but developed physical dependence

Years 2-3: Paxil (20mg) augmented with Adderall XR (10-20mg) due to withdrawal from Ativan

Years 3-Present: Severe depression, headaches, psychiatric hospitalization, lost job, etc.

 


#8 InvisibleUnless

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Posted 27 January 2017 - 08:31 AM

that is not really how Wikipedia works--SA is not relevant to Wikipedia and it would not be working within the Wikipedia format to put drug information on the SA Wiki even if it was deemed 'notable enough'.  however, i suggest that anyone making edits saves the text of those edits as to more easily revise them or undo inappropriate reversals by other parties.  i think they have an edits log, but i am not sure what information is saved across months.

 

because there is edit moderation and a section for discussing proposed revisions, too much activity on a page might get it locked down.  this would be a positive thing--special interest parties could not as easily propagandize if alterations require mod approval or whatever goes on there.  so, if someone wants to campaign for information integrity, i do not think it is a lost cause, simply an uphill battle that requires strategizing and collaborative action.

 

pharmaceutical corporations and other special interest groups have far more resources, but we can be just as tenacious.  that means we should focus on bottlenecks where all their extra resources do not help them as much, for example.  additionally, and in step with this Wikipedia idea, focusing on offering information rather than changing pharmaceutical behavior will likely yield more tangible results in many contexts.  theyve been using the same tricks for decades now, regardless of legislation and penalties.


from 2005-2012, i spent 7 years taking 17 different psychotropic medications covering several classes.  i would be taking 3-7 medications at a time, and 6 out of the 17 medications listed below were maxed or overmaxed in clinical dosage before i moved on to trying the next unhelpful cocktail.
 
antidepressants (SSRIs, SNRIs, NDRIs, tetracyclics): zoloft, wellbutrin, effexor, lexapro, prozac, cymbalta, remeron
antipsychotics (atypical): abilify, zyprexa, risperdal, geodon
sleep aids (benzos, off-label antidepressants & antipsychotics, hypnotics): seroquel, temazepam, trazodone, ambien
anxiolytics: buspar
anticonvulsants: topamax
 
i tapered off all psychotropics from late 2011 through early 2013, one by one.  for all 5 years since quitting, ive been cycling through severe, disabling withdrawal symptoms spanning the gamut of the serious, less serious, and rather worrisome side effects of these assorted medications.  previous cross-tapering and medication or dosage changes had also caused undiagnosed withdrawal symptoms.
 
brainpan addlepation


#9 PatriciaVP

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Posted 27 January 2017 - 12:59 PM

 
pharmaceutical corporations and other special interest groups have far more resources, but we can be just as tenacious.  that means we should focus on bottlenecks where all their extra resources do not help them as much, for example.  additionally, and in step with this Wikipedia idea, focusing on offering information rather than changing pharmaceutical behavior will likely yield more tangible results in many contexts.  theyve been using the same tricks for decades now, regardless of legislation and penalties.


Just curious, and forgive me for being so clueless but could you give us an idea of what one of these bottlenecks might be?

PatriciaVP@AbleWriterSays My Intro

 

Zoloft 150-200 mg- on and off between 1998 and 2004.

 

Lexapro 40 mg - 2004-2013 30 mg 2013 - August 2015 20 mg August 2015- September 2015 15 mg September 2015 - October 2015 10 mg October 2015 -Nov. 1 2015. Nov. 2015 increased dose to 12.5 mg to stabilize. Dec. 28 2015 11.25 mg March 29, 2016 10 mg. August 1, 2016 9 mg. October 23, 2016 8.1 mg. Nov. 29, 2016 7.5 mg

 

Depakote 1000 mg 2008-2013  750 2013-Dec 2015 500 mg Dec 2015 to Feb 2, 2016. Sopped completely Feb 2 2016.

 

Adderall 40mg 2004-Feb 29, 2016. Feb 29,2016 - reduced Adderall to 20 mg based on pdoc's recommendations. March 29, 2016 - Reduced Adderall to 15 mg. April 30 reduced Adderall to 10 mgs. May 28, 2016 reduced Adderall to 5 mgs.June 8, 2016 stopped taking Adderall due to extreme agitation.

 

Amphetamine 20mg 2008 - 1/16. 1/16 - Stopped Amphetamine completely because pdoc did not renew script.

"Just keep swimming! Just keep swimming! Just keep swimming, swimming, swimming! What do we do? We swim!" -Dory


#10 InvisibleUnless

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Posted 28 January 2017 - 10:19 AM

that is not a clueless question at all, especially given how vague the comment was.  i feel wikipedia edits are a greater bottleneck than television spots or magazine space, to give an example.  while more resources can mean having an easier time monitoring and editing pages, there is ultimately only one published draft allowed (exclusivity) and there is generally more weight given to the strength of academic backing (equal opportunity) than pure cash contributions or whatever else.

 

that is not to imply that all arguments truly get a rational and balanced treatment during "edit wars", but such areas are places where the massive difference in resources between individual advocates and pharmaceutical corporations and industry entities is minimized.  a "bottleneck" means resource flow/investment is restricted, as opposed to completely cut off.

 

bottlenecks are an area of increased weakness for them not only because more balanced representation can be made with regards to individual investment on the part of people such as us, but also because the visibility is increased when you cut a datastream down by 90% or more.  areas with a lot of traffic, with greater 'clout', and with a heightened interest in higher quality content are more potent places to look for and utilize bottlenecks.


from 2005-2012, i spent 7 years taking 17 different psychotropic medications covering several classes.  i would be taking 3-7 medications at a time, and 6 out of the 17 medications listed below were maxed or overmaxed in clinical dosage before i moved on to trying the next unhelpful cocktail.
 
antidepressants (SSRIs, SNRIs, NDRIs, tetracyclics): zoloft, wellbutrin, effexor, lexapro, prozac, cymbalta, remeron
antipsychotics (atypical): abilify, zyprexa, risperdal, geodon
sleep aids (benzos, off-label antidepressants & antipsychotics, hypnotics): seroquel, temazepam, trazodone, ambien
anxiolytics: buspar
anticonvulsants: topamax
 
i tapered off all psychotropics from late 2011 through early 2013, one by one.  for all 5 years since quitting, ive been cycling through severe, disabling withdrawal symptoms spanning the gamut of the serious, less serious, and rather worrisome side effects of these assorted medications.  previous cross-tapering and medication or dosage changes had also caused undiagnosed withdrawal symptoms.
 
brainpan addlepation


#11 IHadPassion

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Posted 28 January 2017 - 12:17 PM

I get that that's not how Wiki works concerning topics, but there's nothing against creating a SA page that discusses withdrawal effects of psychiatric drugs, discusses tapering methods and directs people to SA.org.  


Year 0:      Social anxiety, obsessive thoughts, NO depression, NO suicidal ideations

Years 1-2: Ativan (benzo) <1mg as needed, not abused but developed physical dependence

Years 2-3: Paxil (20mg) augmented with Adderall XR (10-20mg) due to withdrawal from Ativan

Years 3-Present: Severe depression, headaches, psychiatric hospitalization, lost job, etc.

 


#12 InvisibleUnless

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Posted 28 January 2017 - 02:50 PM

i may be wrong in saying so, as i have not made an account there myself, but i think there is something against creating an SA page on there and putting that stuff in it.  there are limitations on what sorts of articles can be created, and how those articles are to be formatted.  how important or even how scientific a topic or issue is takes a back seat to supposed social relevance and a formal organizational scheme.


from 2005-2012, i spent 7 years taking 17 different psychotropic medications covering several classes.  i would be taking 3-7 medications at a time, and 6 out of the 17 medications listed below were maxed or overmaxed in clinical dosage before i moved on to trying the next unhelpful cocktail.
 
antidepressants (SSRIs, SNRIs, NDRIs, tetracyclics): zoloft, wellbutrin, effexor, lexapro, prozac, cymbalta, remeron
antipsychotics (atypical): abilify, zyprexa, risperdal, geodon
sleep aids (benzos, off-label antidepressants & antipsychotics, hypnotics): seroquel, temazepam, trazodone, ambien
anxiolytics: buspar
anticonvulsants: topamax
 
i tapered off all psychotropics from late 2011 through early 2013, one by one.  for all 5 years since quitting, ive been cycling through severe, disabling withdrawal symptoms spanning the gamut of the serious, less serious, and rather worrisome side effects of these assorted medications.  previous cross-tapering and medication or dosage changes had also caused undiagnosed withdrawal symptoms.
 
brainpan addlepation


#13 btdt

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Posted 29 January 2017 - 10:44 AM

:) I did this before for a time as fast as you can put things on wiki it will disappear.  There is a memorable bit from the effexor page this post brought to mind I have decided to share it with you folks here.

 

"It is sad and scary that this article is on the first page of google search results for Effexor. If you are looking for any accurate information about this medication, stay away from this page, and the wikipedia pages of any other psychopharmaceuticals. Many of the people editing Wikipedia are seriosly mentally ill, whether psychotic, delusional, or paranoid. By editing Wikipedia their paranoid delusions, previously shouted on the street to strangers, become respectable.

While there are plenty of reputable people editing Wikipedia, at any given time you have no way of knowing whether the version of the page you are reading is written from the POV of a doctor or an untreated mental patient. It may be reasonably accurate for an hour, then full of misinformation and bias the next. While an article on, say, calculus can usually be considered to be accurate, articles on psych medications tend to attract the genuinly insane- people who have been prescribed these medications and need to warn the world of the evil doctor-conspiracy to control their minds."

 

https://en.wikipedia...faxine/Archive1

path to this is the original page

https://en.wikipedia...&action=history

this link

Do it if you like however I do not think changes you make to wiki will stay not for long anyway. Good Luck


WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivinganti...ng-myself-btdt/

There is a crack in everything ..That's how the light gets in :)