Simo

Simo: Olanzapine/Zyprexa withdrawal

51 posts in this topic

What is making you consider doing this? Your impatience?  (I can understand that, I wish I was off this drug too and find I get impatient.) You're not that far from the finish line.  It is not wise in my opinion to jeopardize your health.

 

My plan is to stay a bit longer on 4.5 (I'm shaving off a tiny bit of the 5 mg. Then, to go down to 3.75 for a bit, then 2.50, then 1.875, then 1.25, then even .625.  I doubt I will do each cut for a month, as I've only been on it since the beginning of December.

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Hi 

Madeleine

 

Yes that was desperate/ impatient thinking and talking.  I had been on my own for a few hours and started to panic; i'm really not very good on my own at the moment.

 

I've calmed down a bit and am back on the withdrawal process.  I'm now cutting out caffeine and nicotine which seem to send me into intense anxiety.

 

You're right : i must try not to lose sight of the fact that I'm not too far away from the finish line.  This process is so hard, because I'm not in a position to work or do very much even on this small amount of drug I find it very hard to get through the days.

 

I think i might have to make an oral solution of a smaller dose, possibly 0.4 and 0.2mg's. And I possibly should buy some micro scales to measure a dose of 1mg etc.

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Well done Simo, and BTW we're ALL on a learning curve in WD.

 

You've made a huge leap in learning how you react in certain situations, i.e. being alone put you into an anxious state and made you want to CT.

 

Madeleine made a good point which was that you're not far from your finishing line.

 

View this as your "project", to take yourself safely off this poison once and for all.

 

You're almost there....... :) 

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Well done indeed, Simo.  I'm very glad you gave yourself time to seriously consider the risks of cold-turkey off the Zyprexa right now.

 

Thanks Madeleine for your post -- really helpful.

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Hi Simo,

I too am tapering olanzapine. I've read in the tapering olanzapine thread that the liquid solution lasts in the fridge for 48 hrs. So if you take it at the same time every day - day 1 at 0 hours, day 2 at 24 hrs and day 3 at 48 hrs so you can get 3 days of doses each time you make it.

I have made a rough schedule for coming off but I am going by how I feel. Not strictly according to a schedule. That way I avoid most withdrawal symptoms. As you get to lower amounts the drug affects you less so oh well if it takes some years to come off as long as I feel fairly well while I am doing it. I make small cuts and wait till I am sleeping well again before making another cut.

How are you doing? I hope well.

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Hi Everyone,

 

Just a message to anyone out there who's successfully come off Neuroleptics.  I'm down to 2.5mg Olanzapine/ Zyprexa and have been on that for 15 days, but I'm getting very frustrated and impatient. Looking for some support.

 

I've just had to give up caffeine and cigarettes (a bad habit i acquired when so drugged up I couldn't feel anything). Giving these up will be difficult because they have been a "crutch " these last few months when I still felt heavily drugged.

 

My central nervous system is shot! Caffeine and nicotine just make me incredibly wired and i was never like that pre psych drugs.

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Your CNS is already dealing with changes in a neuroactive substance, making dramatic changes with another one -- caffeine or nicotine -- could be tricky. If you feel strongly about needing to reduce, please pick ONLY one -- caffeine OR cigarettes -- not both.

 

I tapered caffeine in October and November. If coffee is how you get your caffeine AND you make your coffee yourself, tapering is fairly easy to do: start with 20% decaf 80% regular for a week or so, then increase the decaf by 20% each time. Some people prefer the shorter time that a cold-turkey stop requires

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Hi simo

 

Im glad to read you are going well with your taper , i too was on high dose of olanzapine its one nasty drug, i really relate to what you said about time passing like treacle, for a year i stumbled out of bed every day, went straight to kitchen and would remain there just pacing up and down until it was time to go back to bed, day after day after day just physically couldnt do anything else due to olanzapine.

 

Things really do get better though, and i cant recommend the exercise enough, it might take 2-3 weeks of doing something everyday but eventually the lift you get is so worth it.

 

Stick with it and best of luck 

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Posted (edited)

I need to share this somewhere, so I'm choosing here, hopefully you can understand.

 

Because of what's happened to me over the last 7 years (initially suffering from low mood, then the dreaded Olanzapine and it took me ages to realise that the drug was 'keeping me depressed'). My mum is choosing to blame me for everything: her low mood, her marriage failing.

 

Because I first suffered at 22 I had nowhere else but my parents house to Live. And because of the consequent 'drugging' I haven't been able to move out and crack on with my life (this drug evacuates my motivation and interests and leaves me a blank body).

 

What's so sad is now I'm 2/3 rd's of the way through my withdrawal I need support now, I just need a bit of stability so I can finish the taper and move on. But it's now, when I'm vulnerable, that she's choosing to try to kick me out the house because she feels I have a chronic mental Illness called depression that I'm not choosing to beat. We see a totally different picture of what's wrong.

 

The future is very uncertain right now. If my parents do split up, I'm hoping my Dad will have me to stay whilst I finish the taper. The idea of trying to find a new place to live and all the hassle that comes with that whilst I'm trying to finish my taper, is very daunting. As we know, if the Withdrawals kick in life suddenly gets very difficult.

 

I went to visit the a therapeutic community in London today, where you can apply for housing benefit and stay for a while. Perhaps I need to accept the toxicity of the relationship with my parents and live in these extremely humble surroundings and try to finish my taper there. Although it would be extremely basic and definitely not an ideal place to withdraw.

 

Sorry for the long post. I just feel very alone, apart from the online community nobody I know really understands what I'm going through.

 

One more kick in the teeth, it looks like I now have to even give up decaf drinks. My CNS appears to be incredibly sensitive from the Olanzapine and even a decaf coffee is giving my akathesia.

Thanks for reading

Edited by scallywag
added extra lines at paragraph breaks

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Hi simo

 

Im glad to read you are going well with your taper , i too was on high dose of olanzapine its one nasty drug, i really relate to what you said about time passing like treacle, for a year i stumbled out of bed every day, went straight to kitchen and would remain there just pacing up and down until it was time to go back to bed, day after day after day just physically couldnt do anything else due to olanzapine.

 

Things really do get better though, and i cant recommend the exercise enough, it might take 2-3 weeks of doing something everyday but eventually the lift you get is so worth it.

 

Stick with it and best of luck 

thanks Chester. struggling a bit right now, mainly with life issues brought about because of the drugged years- see my most recent post on this thread.

 

how are you getting on with your withdrawal/CT?

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Simo, I'm sorry you're having to deal with the fallout of your parents' discord. Moving is hard when it's something we actually WANT to do.

 

The good news about the tough, tough challenges withdrawal throws at you is that once you're through it, you'll have very deep reserves of many strengths AND you'll know you have them.

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Hi All,

 

Checking in. I'm still on 2.5mg. I've been told you can get liquid form Olanzapine at a low dose to make tapering easier. Does anyone know of that for sure?

I was told there's a chance you can get it here in the UK.

 

Simo

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Hi All,

 

Checking in. I'm still on 2.5mg. I've been told you can get liquid form Olanzapine at a low dose to make tapering easier. Does anyone know of that for sure?

I was told there's a chance you can get it here in the UK.

 

Simo

 

Hi Simo,

 

You could put the same question into the "Tapering" section of SA.

 

Hopefully you'll get some responses.

 

TC,

JC

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Hi Simo,

I hope all is going ok for you. If you have the ORA-plus it is not too hard to make the solution yourself. If you can get orally disintegrating tablets (lowest 5 mg for ODT I believe) you can dissolve this in say 4 ml of water (water needs to be less than 50% of solution) then add in say 6 ml of ORA-plus, then withdraw 5 ml of solution and you've got 2.5 mg of medicine. Then store in the fridge for 48 hours (2 more doses). I use a plastic cylinder from children's Tylenol with 5, 10, 15 & 20 ml markings and 5 ml syringe from children's medicine as well. I'm currently down to 1.25 mg so 2.5 ml of solution - I'm using a 3 ml syringe for that now with smaller incremented markings than the 5 ml syringe - I can't remember if I got the syringes through a compounding pharmacy or online - it was awhile ago. You could probably ask about purchasing syringes and cylinders through a compounding pharmacy if you can't find them online or with kids' medicine. Once you open the ORA-plus you don't have to store it in your fridge just put the cap back on, but once you mix the small amount with olanzapine you will need to store it in the fridge - I put a bit of seranwrap (sp?) over the little cylinder and a hair elastic over to seal then in the fridge. Alternately if you can't get disintegrating tablets you can just get a pill crusher (try a compounding pharmacy) and put that in your ORA-plus /water solution - it mixes just fine that way too - I've done it. With those tablets smallest is 2.5 mg so really easy to figure out the math if you put that in 10ml of water/ORA-plus solution. Please let us know how things are going for you. Best of luck to you :0)

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Also, to make measuring easier, I pour some water in a cup & use the 5 ml syringe to draw up 4 ml of water, and put that in a little cylinder with markings with the ODT olanzapine, then I pour in slightly more than 6 ml ORA-plus into another small cylinder with markings & draw up 5 ml and then after 1 ml and put those into the cylinder with the ODT olanzapine & water. Stir it with a baby spoon wrong end (as small than the scoop end) and there you go. If you can't get the orally disintegrating olanzapine, mix the water & ORA-plus amounts first then add in the ground up olanzapine - works the same.

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