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Shortcake: Effexor withdrawal. When will it end?

venlafaxine Effexor

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#145 Shortcake

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Posted 10 March 2017 - 01:37 PM

Thanks Chessie! I wish I had knwon all this a month ago.... i seriously thought I was losing it/had a haunted house. I'm still nervous down there but I'm sure with time that will pass.
Started weaning from Effexor XR (put on these in 1999)in September 2013 150 mg by removing a few little balls a week and ended at 8 mg January 2017. ER doctor stopped them January 3rd, 2017 due to what she thought was seratonin syndrome. I now know it was withdrawal.

Reinstated 2.25mg Effexor Xr February 4, 2017

Previous meds Zoloft 1997-1999 stopped abruptly July 1999. A few months later I was diagnosed as bipolar and put on Effexor XR, Epival, and Trazadone. A few years after that I was told the bipolar was a misdiagnoses and they stopped the Epival. At some point I stopped the trazadone myself.

Supplements:omega 3 fish oil, vitamin d, magnesium, high dose probiotic.Ativan when needed

#146 Shortcake

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Posted 12 March 2017 - 10:56 PM

So my house is gone. Big fire at adjacent unit.... water damage and smoke to my unit... fire possibly hit it... but basically its gone. At my parents with my daughter and my cat. We are all safe. I cant sleep.
Started weaning from Effexor XR (put on these in 1999)in September 2013 150 mg by removing a few little balls a week and ended at 8 mg January 2017. ER doctor stopped them January 3rd, 2017 due to what she thought was seratonin syndrome. I now know it was withdrawal.

Reinstated 2.25mg Effexor Xr February 4, 2017

Previous meds Zoloft 1997-1999 stopped abruptly July 1999. A few months later I was diagnosed as bipolar and put on Effexor XR, Epival, and Trazadone. A few years after that I was told the bipolar was a misdiagnoses and they stopped the Epival. At some point I stopped the trazadone myself.

Supplements:omega 3 fish oil, vitamin d, magnesium, high dose probiotic.Ativan when needed

#147 ChessieCat

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Posted 12 March 2017 - 11:02 PM

Oh dear.  What a horrible thing to happen.  Glad you are all okay though.  I can understand not being able to sleep.  When we had bushfires here a friend of mine's daughter was really affected by it.  It might be worth seeing a (non drug prescribing  ;) ) counsellor.

 

Take care.


Reminder to self:      P A T I E N C E       I want to go faster    but I won't

 

Antidepressants:  25 years - 1 unknown, Prozac (caused muscle weakness), Zoloft; Cipramil CTed (very sick for 2.5 wks soon after)

Pristiq:  50mg mid 2012, 100mg beg 2014 (mild Serotonin Toxicity)     Current:  Pristiq 24mg (from 19 May 2017)

 

Tapering history & graph

My website - includes my brief history + links to videos & information on the web

 

Podcasts:    Let's Talk Withdrawal

 

PLEASE NOTE:  I am not a medical professional.


#148 Shortcake

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Posted 12 March 2017 - 11:05 PM

I emailed my psychologist but hes on holiday for 2 weeks :( i was doing so well with the withdrawal... accepting my panic was making it happen less. And now this.

Also... im taking 11 beads of effexor xr a day. The pharmacist today told me i could take the beads in applesauce? I dont need to take it in capsules? My empty capsules again... in the fire... so.... its okay to take effexor xr in applesauce? I thought my stomach acid would destroy it.
Started weaning from Effexor XR (put on these in 1999)in September 2013 150 mg by removing a few little balls a week and ended at 8 mg January 2017. ER doctor stopped them January 3rd, 2017 due to what she thought was seratonin syndrome. I now know it was withdrawal.

Reinstated 2.25mg Effexor Xr February 4, 2017

Previous meds Zoloft 1997-1999 stopped abruptly July 1999. A few months later I was diagnosed as bipolar and put on Effexor XR, Epival, and Trazadone. A few years after that I was told the bipolar was a misdiagnoses and they stopped the Epival. At some point I stopped the trazadone myself.

Supplements:omega 3 fish oil, vitamin d, magnesium, high dose probiotic.Ativan when needed

#149 Shortcake

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Posted 12 March 2017 - 11:05 PM

My pharmacist also told me to try taking them once every second day if i was weaning... which makes me totally not trust him now lol.

Edit to say: not weaning right now. Staying stable. Trying to.
Started weaning from Effexor XR (put on these in 1999)in September 2013 150 mg by removing a few little balls a week and ended at 8 mg January 2017. ER doctor stopped them January 3rd, 2017 due to what she thought was seratonin syndrome. I now know it was withdrawal.

Reinstated 2.25mg Effexor Xr February 4, 2017

Previous meds Zoloft 1997-1999 stopped abruptly July 1999. A few months later I was diagnosed as bipolar and put on Effexor XR, Epival, and Trazadone. A few years after that I was told the bipolar was a misdiagnoses and they stopped the Epival. At some point I stopped the trazadone myself.

Supplements:omega 3 fish oil, vitamin d, magnesium, high dose probiotic.Ativan when needed

#150 ChessieCat

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Posted 12 March 2017 - 11:08 PM

Yep, from drug.com

 

Swallow Effexor XR extended-release capsules whole. Do not break, crush, chew, or place in water before swallowing. If you cannot swallow the capsule whole, you may open it and sprinkle the contents over a spoonful of applesauce. Mix the medicine with the applesauce and swallow the mixture right away, followed by a glass of water. Do not crush or chew the medicine before swallowing.


Reminder to self:      P A T I E N C E       I want to go faster    but I won't

 

Antidepressants:  25 years - 1 unknown, Prozac (caused muscle weakness), Zoloft; Cipramil CTed (very sick for 2.5 wks soon after)

Pristiq:  50mg mid 2012, 100mg beg 2014 (mild Serotonin Toxicity)     Current:  Pristiq 24mg (from 19 May 2017)

 

Tapering history & graph

My website - includes my brief history + links to videos & information on the web

 

Podcasts:    Let's Talk Withdrawal

 

PLEASE NOTE:  I am not a medical professional.


#151 Shortcake

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Posted 12 March 2017 - 11:10 PM

Okay perfect. Now i need applesauce. I just bought some. But. Fire.
Started weaning from Effexor XR (put on these in 1999)in September 2013 150 mg by removing a few little balls a week and ended at 8 mg January 2017. ER doctor stopped them January 3rd, 2017 due to what she thought was seratonin syndrome. I now know it was withdrawal.

Reinstated 2.25mg Effexor Xr February 4, 2017

Previous meds Zoloft 1997-1999 stopped abruptly July 1999. A few months later I was diagnosed as bipolar and put on Effexor XR, Epival, and Trazadone. A few years after that I was told the bipolar was a misdiagnoses and they stopped the Epival. At some point I stopped the trazadone myself.

Supplements:omega 3 fish oil, vitamin d, magnesium, high dose probiotic.Ativan when needed

#152 ChessieCat

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Posted 12 March 2017 - 11:20 PM

You'll be doing that for a while yet, unfortunately.  If you have an apple you could grate it finely for the time being.  Or stew it.


Reminder to self:      P A T I E N C E       I want to go faster    but I won't

 

Antidepressants:  25 years - 1 unknown, Prozac (caused muscle weakness), Zoloft; Cipramil CTed (very sick for 2.5 wks soon after)

Pristiq:  50mg mid 2012, 100mg beg 2014 (mild Serotonin Toxicity)     Current:  Pristiq 24mg (from 19 May 2017)

 

Tapering history & graph

My website - includes my brief history + links to videos & information on the web

 

Podcasts:    Let's Talk Withdrawal

 

PLEASE NOTE:  I am not a medical professional.


#153 Shortcake

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Posted 12 March 2017 - 11:24 PM

Thank you Chessie.
Started weaning from Effexor XR (put on these in 1999)in September 2013 150 mg by removing a few little balls a week and ended at 8 mg January 2017. ER doctor stopped them January 3rd, 2017 due to what she thought was seratonin syndrome. I now know it was withdrawal.

Reinstated 2.25mg Effexor Xr February 4, 2017

Previous meds Zoloft 1997-1999 stopped abruptly July 1999. A few months later I was diagnosed as bipolar and put on Effexor XR, Epival, and Trazadone. A few years after that I was told the bipolar was a misdiagnoses and they stopped the Epival. At some point I stopped the trazadone myself.

Supplements:omega 3 fish oil, vitamin d, magnesium, high dose probiotic.Ativan when needed

#154 Shortcake

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Posted 19 March 2017 - 06:33 PM

I really felt like I was getting better. And then the fire happened. And now Im having another wave of symptoms. Well 1 symptom. All the others are gone except random waves of feeling "butterflies" all over my body and then I feel the derealization. Like I can't function the way I used to.

I had been reading books to help with it. Noting irrational thoughts. But all that stuff is in the old apartment. Where I cant get any of my stuff because of the fire. I ordered Claire Weekes book... it was attempted delivery 2 days after the fire so it went back to the depot. Because I dont have photo ID they wont let me pick up my mail.
Started weaning from Effexor XR (put on these in 1999)in September 2013 150 mg by removing a few little balls a week and ended at 8 mg January 2017. ER doctor stopped them January 3rd, 2017 due to what she thought was seratonin syndrome. I now know it was withdrawal.

Reinstated 2.25mg Effexor Xr February 4, 2017

Previous meds Zoloft 1997-1999 stopped abruptly July 1999. A few months later I was diagnosed as bipolar and put on Effexor XR, Epival, and Trazadone. A few years after that I was told the bipolar was a misdiagnoses and they stopped the Epival. At some point I stopped the trazadone myself.

Supplements:omega 3 fish oil, vitamin d, magnesium, high dose probiotic.Ativan when needed

#155 ChessieCat

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Posted 19 March 2017 - 07:04 PM

It's to be expected after such a traumatic event that you would be hit with a wave.  Even a person not going through withdrawal would have problems after this.  Also realise that you are going through a time of grieving.  It's important to understand this and allow yourself to feel the feelings and not bottle them up, because they have a habit of getting back to you later, and if they return later, you don't always attribute it to the cause of it, and you can get in a state trying to work out what is causing it.  I think accepting that it's normal is a start.  It may take a while but as time goes on it will lessen.  The main thing at the moment is to try not to stress yourself further and to do what you need to do to keep yourself as settled as possible.  Here a couple of things which might help:

 

Audio:  How to Recover from Anxiety - Dr Claire Weekes

 

Audio:  First Aid for Panic (4 minutes)

 

Yoga for calming (very simple poses can help greatly) (some members have found the "legs up the wall" helpful for anxiety)

 

USE A TIMER:  A year ago my 14 year old dog died and my daughter was concerned about how I would cope.  She suggested that I "check in with myself" during the day to see how I was.  Because I knew that I would probably forget and sometimes things creep up slowly and then all of a sudden I am in a bad state, I set a timer for an hour during the morning (and it became easier to do it without the timer in the afternoon) just so I could be reminded and I would stop and think, okay, how am I feeling, what thoughts am I having.  This meant that I could nip it in the bud and do some controlled deep breathing before it became too much of a problem and harder to deal with.


Reminder to self:      P A T I E N C E       I want to go faster    but I won't

 

Antidepressants:  25 years - 1 unknown, Prozac (caused muscle weakness), Zoloft; Cipramil CTed (very sick for 2.5 wks soon after)

Pristiq:  50mg mid 2012, 100mg beg 2014 (mild Serotonin Toxicity)     Current:  Pristiq 24mg (from 19 May 2017)

 

Tapering history & graph

My website - includes my brief history + links to videos & information on the web

 

Podcasts:    Let's Talk Withdrawal

 

PLEASE NOTE:  I am not a medical professional.


#156 Shortcake

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Posted 20 March 2017 - 12:42 PM

Thank you for this Chessie. The first few days I had to take ativan in order to stay calm and deal with all the meetings and stuff that go on after a fire. Signing paperwork, meeting with tons of insurance people etc. Everyone commented on how well I was dealing with it, but I was on ativan. I havent taken it in 3 days and the anxiety has hit hard. Definitely a wave of symptoms, physical now too. And I was fighting it. Telling myself no, I need to be strong, I cant feel this right now. But I am.. and fighting it makes it worse. Reading your comments were a bit like a breath of fresh air, like the permission I felt I needed to be anxious and not feeling well.
Started weaning from Effexor XR (put on these in 1999)in September 2013 150 mg by removing a few little balls a week and ended at 8 mg January 2017. ER doctor stopped them January 3rd, 2017 due to what she thought was seratonin syndrome. I now know it was withdrawal.

Reinstated 2.25mg Effexor Xr February 4, 2017

Previous meds Zoloft 1997-1999 stopped abruptly July 1999. A few months later I was diagnosed as bipolar and put on Effexor XR, Epival, and Trazadone. A few years after that I was told the bipolar was a misdiagnoses and they stopped the Epival. At some point I stopped the trazadone myself.

Supplements:omega 3 fish oil, vitamin d, magnesium, high dose probiotic.Ativan when needed

#157 Shortcake

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Posted 25 April 2017 - 05:15 PM

The darn waves. Was feeling great... was ready to go back to work. Finally living on my own without moms help. Everything great. And then the wave! Now i question everything. Can i be a single parent? Can i ever go back to work? YES! But why why why does it seem like no when the waves hit. Its so frustrating.
I go from feeling so strong and good to feeling weak and scared and like I can barely function. Just keep trucking... just let time pass... I will heal. Right?
Started weaning from Effexor XR (put on these in 1999)in September 2013 150 mg by removing a few little balls a week and ended at 8 mg January 2017. ER doctor stopped them January 3rd, 2017 due to what she thought was seratonin syndrome. I now know it was withdrawal.

Reinstated 2.25mg Effexor Xr February 4, 2017

Previous meds Zoloft 1997-1999 stopped abruptly July 1999. A few months later I was diagnosed as bipolar and put on Effexor XR, Epival, and Trazadone. A few years after that I was told the bipolar was a misdiagnoses and they stopped the Epival. At some point I stopped the trazadone myself.

Supplements:omega 3 fish oil, vitamin d, magnesium, high dose probiotic.Ativan when needed

#158 Shortcake

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Posted 25 April 2017 - 05:16 PM

I end up having to take ativan way more often than I would like.
Started weaning from Effexor XR (put on these in 1999)in September 2013 150 mg by removing a few little balls a week and ended at 8 mg January 2017. ER doctor stopped them January 3rd, 2017 due to what she thought was seratonin syndrome. I now know it was withdrawal.

Reinstated 2.25mg Effexor Xr February 4, 2017

Previous meds Zoloft 1997-1999 stopped abruptly July 1999. A few months later I was diagnosed as bipolar and put on Effexor XR, Epival, and Trazadone. A few years after that I was told the bipolar was a misdiagnoses and they stopped the Epival. At some point I stopped the trazadone myself.

Supplements:omega 3 fish oil, vitamin d, magnesium, high dose probiotic.Ativan when needed

#159 powerback

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Posted 26 April 2017 - 01:07 PM

The darn waves. Was feeling great... was ready to go back to work. Finally living on my own without moms help. Everything great. And then the wave! Now i question everything. Can i be a single parent? Can i ever go back to work? YES! But why why why does it seem like no when the waves hit. Its so frustrating.
I go from feeling so strong and good to feeling weak and scared and like I can barely function. Just keep trucking... just let time pass... I will heal. Right?

 

Totally agree here about the waves shortcake ,always stick at it  I'm  feeling human the last 2 days [if not overwhelmed] in a window after a horrendous month so never ever doubt your recovery ,I'm jealous of your taper :)  ,I had to reinstate after only 16 days of just 2 beads out of 37.5 so I wont fail just keep at it .

 

I worked 3 days this week at only 50% capacity but so what I'm trying and that builds positivity in us and keeps the mind fresh enough so its in us ,it just takes so much patience for us .

Never doubt your spirit

Take care


June 2012 citroll 10mg

​July 2012 citroll 20 mg

​September 2013 Lexapro 20mg

October 2014 venlafaxine xl 75mg

January 2015 venlafaxine xl 37.5mg

April 2015 venlafaxine xl 75mg

June 2015 venlafaxine 37.5mg ..this is my current dose to this day at present

IVE had 2 unsuccessful tapers in the last year . 

 


#160 Shortcake

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Posted 29 April 2017 - 02:49 PM

Thanks powerback :) i just cant bring myself to go back yet. I panic and i work with patients so i really cant only be at 50%.

Does anyone know what causes you to shoot awake when you start falling asleep? I dont even know if i asked this before. But wverytime i slip into sleep i shoot up in bed awake and panicked. Total adrenalin rush. Im exhausted.
Started weaning from Effexor XR (put on these in 1999)in September 2013 150 mg by removing a few little balls a week and ended at 8 mg January 2017. ER doctor stopped them January 3rd, 2017 due to what she thought was seratonin syndrome. I now know it was withdrawal.

Reinstated 2.25mg Effexor Xr February 4, 2017

Previous meds Zoloft 1997-1999 stopped abruptly July 1999. A few months later I was diagnosed as bipolar and put on Effexor XR, Epival, and Trazadone. A few years after that I was told the bipolar was a misdiagnoses and they stopped the Epival. At some point I stopped the trazadone myself.

Supplements:omega 3 fish oil, vitamin d, magnesium, high dose probiotic.Ativan when needed

#161 powerback

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Posted 29 April 2017 - 11:53 PM

Thanks powerback :) i just cant bring myself to go back yet. I panic and i work with patients so i really cant only be at 50%.

Does anyone know what causes you to shoot awake when you start falling asleep? I dont even know if i asked this before. But wverytime i slip into sleep i shoot up in bed awake and panicked. Total adrenalin rush. Im exhausted.

 

totally agree with your work ,the shooting awake rarely happens to me ,u could be on too something with the adrenalin rush ,I suggest winding down earlier for sleep than normally if possible.  .I'm the opposite, I have horrible symptoms when I wake ,major depression, panic  ,headaches ,it can be an hour before I'm lucid and awake properly, this is after my nightmares :( 

Take care

PB


June 2012 citroll 10mg

​July 2012 citroll 20 mg

​September 2013 Lexapro 20mg

October 2014 venlafaxine xl 75mg

January 2015 venlafaxine xl 37.5mg

April 2015 venlafaxine xl 75mg

June 2015 venlafaxine 37.5mg ..this is my current dose to this day at present

IVE had 2 unsuccessful tapers in the last year . 

 


#162 peng

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Posted 30 April 2017 - 02:18 AM

Shortcake,

Firstly, remembering, at all times, that this forum is primarily for helping people to get off antidepressants/tranx, and who want to, as they feel, or have been informed by a trustworthy qualified person, that the drugs are not needed to help their distress and illness.

 

They may be correct, they may not.  That is what makes the choice about reducing or cutting out the medication difficult.

 

Based on my own 40 years experience, (I am not a doctor), IMO you are "early waking" with an acute anxiety attack.  

This used to be* regarded as a classic symptom that one was heading for, or was suffering from clinical depression. 

(*still is? Alto?)

 

If it were me, based on what I have found at painful expense, you need to get yourself on a stable platform.  How you do that is obvious to some of us, but it is up to you to decide.

 

I have been there about 3 times, am 71, but have managed to tweak quite a few years of reasonable-to-good quality of life from the dilemma and am still here.

 

Best regards.


1977 - Collapse of health at 32 after 12 years of irregular,stressful shift work. 1977-84 – Ativan. 1984 - 2002 Anafranil.

2002 - 13 – Effexor XL 150-187.5mg.

2014 Nov.  Raise to 225mg due external crisis. Chronic fatigue, low mood. Felt I had reached brick wall with medication. Blood test GP Prescribed 5mg Folic Acid/day.

2016 Jun- Feeling better. Supplement research. 13Jul  -  212.5mg (-5.5%). 6Aug  - 200.0mg (-5.9%). 24Aug - 187.5mg (-6.3%). 13Sep – 175.0mg (-6.7%). Feeling best for a couple of years. 3Oct  - 162.5mg (-7.1%). 26Oct - 150mg (-7.7%). off Folic Acid.  Nov - off Omeprazole after decades.

2017 9Jan - 150mg. 23Mar - 137.5mg. 24Apr - 125.0mg (-9.1%).  

 

Current supps/Vits

540mg EPA /day. 425mg Magnesium Malate. Vit D. Probiotic.  Benecol (w.plant statins). Honey instead of table sugar in tea and coffee, wef Oct16.

 


#163 baroquep

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Posted 30 April 2017 - 07:20 AM

Hi Shortcake, sorry to hear that you are in a wave right now.  Hope it doesn't last too long.  Know that it is hard to know what to do when you are in this frame of mind, especially when no-one knows what is going to provide any relief.  Please know that I am not a moderator so what I'm writing is only a suggestion based on my experiences with this drug and you may want to run it by one of the moderators before making a decision.  At this point, you may need to decide whether or not you can ride through the waves or try to up-dose.  My thoughts based on your history, and because you may have to return to work soon, is to up-dose until your symptoms are at a level where you can function.  I would up-dose the smallest amount, say 0.75 to 1mg, maybe even less, hold that for at least a couple of weeks and see if that brings any relief.  Because your last dosage was in the area of 9-10mg where you were somewhat functional, my reasoning is that there is a big difference between 2.25mg and 9mg.  Even small amounts of this drug make a profound difference.  You may find relief somewhere between the 2.25mg and 9mg. The trick is make only small changes (up-doses) to find the sweet-spot with the smallest up-dose that your system will tolerate and find relief from.  The less you have to up-dose the better.  

Back in January, I was feeling so good, I tried to speed up my taper by reducing every three weeks instead of holding for four and ran into a lot of trouble.  Because I really didn't want to up-dose, I've been riding it out to get stabilized again and it is working.  But I only reduced 10% of my previous dose (5mg) so imagine that is why I was able to stabilize, but it's taken more than two months and I'm still counting.  If I were experiencing what you are now, I would have up-dosed for sure to relieve the symptoms of anxiety and panic that you are dealing with now.

 

Then again, and here is the most frustrating thing of all.  If you are experiencing long periods of relative stability, maybe the best thing to do is just stay at the 2.25 mg and wait it out until the anxiety and panic are more tolerable.  If you are having more good days than bad, then I'd say this is the nature of withdrawal and eventually the severity of the waves will fade away with time.  Unfortunately sometimes more time than we may have the patience for.    

Ultimately the decision is yours, and again, I have to stress that you should run my thoughts by a moderator who has a lot more experience with these drugs than I do.  I'm only writing based on my own personal experience, we are all different and each of us reacts differently to changes with these drugs.  Any changes we make can have a downside and we won't know until we try for ourselves whether the outcome is going to be positive or not.  It really is a guessing game as to what is going to work.  

Hoping one way or the other, you stabilize soon.  

   


Current Prescription Drugs for Hypothyroidism

Synthroid 100mcg / Cytomel 5mcg

Tapering Schedule
September 15, 2016 - switched from Pristiq 50mg to Effexor XR 75mg 
November 10, 2016 - reduced to 67.5 Effexor XR
December 9, 2016 - reduced 60.75
January 5, 2017 - reduced 54.67
January 30, 2017 - reduced to 49.0
February 20, 2017 - reduced to 44.0 (holding until I stabilize)
May 20, 2017 - reduced 40.25


#164 Shortcake

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Posted 30 April 2017 - 08:20 AM

Thanks everyone.

I seem to have more good days than bad days. I will have a couple of weeks feeling good,but still get anxiety/panic, if i have to go out somewhere, which i can usually push through, float past and accept. But other than the anxiety and panic from having to go out I feel strong and good and confident. But not enough to return to work yet. Then after a couplw of weeks of "good" i will have a few days to a week of a wave where its a lot of anxiety and panic, everytime i start to fall asleep i shoot awake with a huge intake of air and panic, realize nothings wrong and attempt again. During the waves i am on alert almost 24/7. Nausea, diarrhea, headaches, neuro emotions hard core.

It has been 3 months since reinstatement to 2.2mg and i am learning ti handle the waves better now so they are not as intense, and my good days are increasing, but I would still not consider myself "stable". I was supposed to return to work in May. That is now on hold. My paid leave has run out and I will be living off insurance money from my house burning down.

So my question for the moderators would be what is your advice? Do i stick to the 2.2 mg or do I attempt a small updose to see if that makes it a bit more manageable?
Started weaning from Effexor XR (put on these in 1999)in September 2013 150 mg by removing a few little balls a week and ended at 8 mg January 2017. ER doctor stopped them January 3rd, 2017 due to what she thought was seratonin syndrome. I now know it was withdrawal.

Reinstated 2.25mg Effexor Xr February 4, 2017

Previous meds Zoloft 1997-1999 stopped abruptly July 1999. A few months later I was diagnosed as bipolar and put on Effexor XR, Epival, and Trazadone. A few years after that I was told the bipolar was a misdiagnoses and they stopped the Epival. At some point I stopped the trazadone myself.

Supplements:omega 3 fish oil, vitamin d, magnesium, high dose probiotic.Ativan when needed

#165 Shortcake

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Posted 30 April 2017 - 09:42 AM

I do admit that hings seem to be very slowly improving, but still not quite able to consider myself "stable" enough to return to work. The plan was to stickit out at 2.2mg but want aome other opinions.
Started weaning from Effexor XR (put on these in 1999)in September 2013 150 mg by removing a few little balls a week and ended at 8 mg January 2017. ER doctor stopped them January 3rd, 2017 due to what she thought was seratonin syndrome. I now know it was withdrawal.

Reinstated 2.25mg Effexor Xr February 4, 2017

Previous meds Zoloft 1997-1999 stopped abruptly July 1999. A few months later I was diagnosed as bipolar and put on Effexor XR, Epival, and Trazadone. A few years after that I was told the bipolar was a misdiagnoses and they stopped the Epival. At some point I stopped the trazadone myself.

Supplements:omega 3 fish oil, vitamin d, magnesium, high dose probiotic.Ativan when needed

#166 scallywag

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Posted 03 May 2017 - 05:21 PM

Shortcake, there are only 3 options:

  1. Stay at current dose.
  2. Increase.
  3. Decrease.

Nobody can predict how you will react to an increase or a decrease.  The decision is yours -- you know your body and your experience on these medications. You have the best sense of what the risk might be.

 

If you do #2 or #3, make the change a small one. I wish I could be more helpful. (((hugs)))


This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.
1997-1999 Effexor; 2002-2005 Effexor XR 37.5 mg linear taper, dropping same #beads/week with bad results
Cymbalta (brand name), 60 mg 2012 - 2015; 20 mg to 7 mg in 2016, exact doses and dates in this post;
2017: 6.3 (58 beads) Feb. 1; 5.6 mg (52) Feb. 22; 5.4 mg (50) Mar. 15; 5.1 mg (47) Mar. 25; 4.9 mg (45) Apr. 5; 4.5 mg (42) Apr. 14; 3.5 mg (32) Apr. 26;
Current dose: 2.6 mg (24) 2017-May-17
+ Supplements: fish oil (1500 mg EPA/500 mg DHA), Vitamins: D3, K2, C; Minerals: Mg, Se, Cr, I, V
scallywag's Introduction
Online spreadsheet for dose taper calculations and nz11's THE WORKS spreadsheet


#167 Shortcake

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Posted 03 May 2017 - 05:27 PM

Thanks scallywag ❤ i think im going to stay at this dose until I feel more stable. I DO see improvement as the weeks go by so that is probably my best bet. Eventually I will wean off this drug completely. Only 2.2 mg to go. Slow and steady. ❤
Started weaning from Effexor XR (put on these in 1999)in September 2013 150 mg by removing a few little balls a week and ended at 8 mg January 2017. ER doctor stopped them January 3rd, 2017 due to what she thought was seratonin syndrome. I now know it was withdrawal.

Reinstated 2.25mg Effexor Xr February 4, 2017

Previous meds Zoloft 1997-1999 stopped abruptly July 1999. A few months later I was diagnosed as bipolar and put on Effexor XR, Epival, and Trazadone. A few years after that I was told the bipolar was a misdiagnoses and they stopped the Epival. At some point I stopped the trazadone myself.

Supplements:omega 3 fish oil, vitamin d, magnesium, high dose probiotic.Ativan when needed

#168 scallywag

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Posted 04 May 2017 - 06:30 AM

What non-drug coping techniques are you using?

For ideas, please read Non-drug techniques to cope with emotional symptoms.

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.
1997-1999 Effexor; 2002-2005 Effexor XR 37.5 mg linear taper, dropping same #beads/week with bad results
Cymbalta (brand name), 60 mg 2012 - 2015; 20 mg to 7 mg in 2016, exact doses and dates in this post;
2017: 6.3 (58 beads) Feb. 1; 5.6 mg (52) Feb. 22; 5.4 mg (50) Mar. 15; 5.1 mg (47) Mar. 25; 4.9 mg (45) Apr. 5; 4.5 mg (42) Apr. 14; 3.5 mg (32) Apr. 26;
Current dose: 2.6 mg (24) 2017-May-17
+ Supplements: fish oil (1500 mg EPA/500 mg DHA), Vitamins: D3, K2, C; Minerals: Mg, Se, Cr, I, V
scallywag's Introduction
Online spreadsheet for dose taper calculations and nz11's THE WORKS spreadsheet


#169 Shortcake

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Posted 04 May 2017 - 06:44 AM

Meditation
Claire Weekes methods of floating and acceptance
Letting time pass
Magnesium
Fish oil
Trying to stay busy and with people
Started weaning from Effexor XR (put on these in 1999)in September 2013 150 mg by removing a few little balls a week and ended at 8 mg January 2017. ER doctor stopped them January 3rd, 2017 due to what she thought was seratonin syndrome. I now know it was withdrawal.

Reinstated 2.25mg Effexor Xr February 4, 2017

Previous meds Zoloft 1997-1999 stopped abruptly July 1999. A few months later I was diagnosed as bipolar and put on Effexor XR, Epival, and Trazadone. A few years after that I was told the bipolar was a misdiagnoses and they stopped the Epival. At some point I stopped the trazadone myself.

Supplements:omega 3 fish oil, vitamin d, magnesium, high dose probiotic.Ativan when needed

#170 scallywag

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Posted 05 May 2017 - 06:48 AM

That's a good set of "tools". It never hurts to add one or two -- can you get 30 minutes of gentle walking daily?


This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.
1997-1999 Effexor; 2002-2005 Effexor XR 37.5 mg linear taper, dropping same #beads/week with bad results
Cymbalta (brand name), 60 mg 2012 - 2015; 20 mg to 7 mg in 2016, exact doses and dates in this post;
2017: 6.3 (58 beads) Feb. 1; 5.6 mg (52) Feb. 22; 5.4 mg (50) Mar. 15; 5.1 mg (47) Mar. 25; 4.9 mg (45) Apr. 5; 4.5 mg (42) Apr. 14; 3.5 mg (32) Apr. 26;
Current dose: 2.6 mg (24) 2017-May-17
+ Supplements: fish oil (1500 mg EPA/500 mg DHA), Vitamins: D3, K2, C; Minerals: Mg, Se, Cr, I, V
scallywag's Introduction
Online spreadsheet for dose taper calculations and nz11's THE WORKS spreadsheet


#171 Shortcake

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Posted 05 May 2017 - 06:53 AM

My daughter and I try to get outside everyday. We usually walk up to the park. Doesn't take 30 minutes to get there but its a start lol.
Started weaning from Effexor XR (put on these in 1999)in September 2013 150 mg by removing a few little balls a week and ended at 8 mg January 2017. ER doctor stopped them January 3rd, 2017 due to what she thought was seratonin syndrome. I now know it was withdrawal.

Reinstated 2.25mg Effexor Xr February 4, 2017

Previous meds Zoloft 1997-1999 stopped abruptly July 1999. A few months later I was diagnosed as bipolar and put on Effexor XR, Epival, and Trazadone. A few years after that I was told the bipolar was a misdiagnoses and they stopped the Epival. At some point I stopped the trazadone myself.

Supplements:omega 3 fish oil, vitamin d, magnesium, high dose probiotic.Ativan when needed

#172 Shortcake

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Posted 06 May 2017 - 05:30 AM

Do we know the reason behind why the waves happen? It's so odd. For a couple weeks I feel great and almost my old self again. I am full of positivity and hope and happy. Loving life. Wanting to go back to work. And then when the wave randomly hits its like a switch in my brain has gone off. My thoughts are all fear, my body is shaky (it actually feels like when you have the flu), I feel sick, my gi system is messed up. I don't get it. I know it will pass and when the window comes it'll be ok again but I don't get the reason why these waves happen?
Started weaning from Effexor XR (put on these in 1999)in September 2013 150 mg by removing a few little balls a week and ended at 8 mg January 2017. ER doctor stopped them January 3rd, 2017 due to what she thought was seratonin syndrome. I now know it was withdrawal.

Reinstated 2.25mg Effexor Xr February 4, 2017

Previous meds Zoloft 1997-1999 stopped abruptly July 1999. A few months later I was diagnosed as bipolar and put on Effexor XR, Epival, and Trazadone. A few years after that I was told the bipolar was a misdiagnoses and they stopped the Epival. At some point I stopped the trazadone myself.

Supplements:omega 3 fish oil, vitamin d, magnesium, high dose probiotic.Ativan when needed

#173 ChessieCat

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Posted 06 May 2017 - 04:09 PM

Have you seen these?  They really helped me to understand what is happening.  I especially like the Rubik's cube and the bit about rebuilding is good too.  Understanding what is happening has helped me not to get stressed when I go through waves, because I know what it is so I don't become fearful.

 

Brain Remodelling


Video:  Healing From Antidepressants - Patterns of Recovery

 

From best-description-of-healing-process

 

Basically- you have a building where the MAJOR streel structures are trying to be rebuilt at different times - ALL while people are coming and going in the building and attempting to work.

It would be like if the World Trade Center Towers hadn't completely fallen - but had crumbled inside in different places.. Imagine if you were trying to rebuild the tower - WHILE people were coming and going and trying to work in the building!  You'd have to set up a temporary elevator - but when you needed to fix part of that area, you'd have to tear down that elevator and set up a temporary elevator somewhere else. And so on. You'd have to build, work around, then tear down, then build again, then work around, then build... ALL while people are coming and going, ALL while the furniture is being replaced, ALL while the walls are getting repainted... ALL while life is going on INSIDE the building. No doubt it would be chaotic. That is EXACTLY what is happening with windows and waves.  The windows are where the body has "got it right" for a day or so - but then the building shifts and the brain works on something else - and it's chaos again while another temporary pathway is set up to reroute function until repairs are made.  
And just like the Twin Towers- it's possible - but the buiding is a major effort -and it takes a good year or more sometimes.


Reminder to self:      P A T I E N C E       I want to go faster    but I won't

 

Antidepressants:  25 years - 1 unknown, Prozac (caused muscle weakness), Zoloft; Cipramil CTed (very sick for 2.5 wks soon after)

Pristiq:  50mg mid 2012, 100mg beg 2014 (mild Serotonin Toxicity)     Current:  Pristiq 24mg (from 19 May 2017)

 

Tapering history & graph

My website - includes my brief history + links to videos & information on the web

 

Podcasts:    Let's Talk Withdrawal

 

PLEASE NOTE:  I am not a medical professional.


#174 Shortcake

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Posted 06 May 2017 - 05:00 PM

Thank you that helps a lot! I feel like I'm trucking forward and I can see how after each wave I come out feeling better than before. I like to understand the ins and outs of it. My psychologist is awesome but pretty sure he thinks the waves are triggered by something else and not just random the way i feel they are. Like he thinks id we can find the trigger we can stop them, whereas from what I have read here thst is not the case at all.
Started weaning from Effexor XR (put on these in 1999)in September 2013 150 mg by removing a few little balls a week and ended at 8 mg January 2017. ER doctor stopped them January 3rd, 2017 due to what she thought was seratonin syndrome. I now know it was withdrawal.

Reinstated 2.25mg Effexor Xr February 4, 2017

Previous meds Zoloft 1997-1999 stopped abruptly July 1999. A few months later I was diagnosed as bipolar and put on Effexor XR, Epival, and Trazadone. A few years after that I was told the bipolar was a misdiagnoses and they stopped the Epival. At some point I stopped the trazadone myself.

Supplements:omega 3 fish oil, vitamin d, magnesium, high dose probiotic.Ativan when needed

#175 Shortcake

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Posted 22 May 2017 - 06:04 PM

I seem to be getting better and stronger everyday. And I'm hopeful. But randomly I still get hit with feelings of "I cant do this.". To such ordinary things. Most days I'm strong and confident. Other days... I feel like something is wrong with my brain. Like I could lose it at any second. The thought of such mundane tasks seem overwhelming. For example I could be thinking about going back to work and I just get like a deep fast inhale of breath and "I cant do that!" As if I'm thinking about sky diving or something terrifying. I'm good at my job. I love my job. Why does the thought of it now seem so terrifying. Normal every day things... If I think about them its a quick panic "I cant do that". I'm doing things again. Socializing, shopping, taking care of my daughter, living my life, but if I THINK about doing it... Its like I become this weak, scared person. Jello. I feel like jello. I used to be a rock. It's overwhelming feeling like this. Compared to everything before this isnt much, but it really throws you for a loop and makes you second guess yourself.

Sometimes I just need to come here and document it. I dont really have anyone else I talk to about it. Theres my psychologist. But he steers it away from the withdrawal. Wants to get to the root of the problems that had me on meds to begin with so we can fix it from there. Makes sense since only time can really heal this withdrawal. But sometimes its nice coming here to others who know this mental pain.
Started weaning from Effexor XR (put on these in 1999)in September 2013 150 mg by removing a few little balls a week and ended at 8 mg January 2017. ER doctor stopped them January 3rd, 2017 due to what she thought was seratonin syndrome. I now know it was withdrawal.

Reinstated 2.25mg Effexor Xr February 4, 2017

Previous meds Zoloft 1997-1999 stopped abruptly July 1999. A few months later I was diagnosed as bipolar and put on Effexor XR, Epival, and Trazadone. A few years after that I was told the bipolar was a misdiagnoses and they stopped the Epival. At some point I stopped the trazadone myself.

Supplements:omega 3 fish oil, vitamin d, magnesium, high dose probiotic.Ativan when needed





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