Jump to content

If you find useful information here, your gift would help keep this site going. Our staff is entirely volunteer.

Photo
- - - - -

Has anyone who suffered with severe insomnia for months from withdrawal, ever healed from it?


  • Please log in to reply
10 replies to this topic

#1 Daisies24

Daisies24

    Member

  • Members
  • PipPip
  • 12 posts
  • LocationCleveland, OH

Posted 16 February 2017 - 02:59 PM

Hi everyone. I am new to this site. It is full of great information, and I am so thankful to be able to read through all of the collective wisdom here. 

 

I am just wondering . . . It seems that withdrawal insomnia is very common and for some (like myself) it is going on months on end now. I don't know if I just haven't read enough here yet, but it seems like very few people who suffered this symptom ever mention recovering from it? It would be so encouraging to read about people who had long-term nightly insomnia from AD withdrawal, but actually did recover from the insomnia. Are there people on here that have positive success with this? Have I just not read through enough success stories? It does seem that on forums, once people get better they often stop posting. I am so hoping that any lack of positive stories here is simply due to people leaving the site once they get better, not that they never get better!

 

Thanks for any information!


30/f

Low dose Lexapro (5mg) for 1 year from roughly 2007-2008

Low dose Prozac (between 5mg and 10mg) for about 9 months from October 2013-July 2014

Tried another low dose of Prozac (5mg) from May 2016-July 2016 with constant horrible anxiety and insomnia, which have never resolved


#2 catnapt

catnapt

    Silver star

  • Members
  • PipPipPip
  • 766 posts
  • LocationUSA

Posted 16 February 2017 - 03:16 PM

Hi everyone. I am new to this site. It is full of great information, and I am so thankful to be able to read through all of the collective wisdom here. 

 

I am just wondering . . . It seems that withdrawal insomnia is very common and for some (like myself) it is going on months on end now. I don't know if I just haven't read enough here yet, but it seems like very few people who suffered this symptom ever mention recovering from it? It would be so encouraging to read about people who had long-term nightly insomnia from AD withdrawal, but actually did recover from the insomnia. Are there people on here that have positive success with this? Have I just not read through enough success stories? It does seem that on forums, once people get better they often stop posting. I am so hoping that any lack of positive stories here is simply due to people leaving the site once they get better, not that they never get better!

 

Thanks for any information!


OH I so hope ppl respond to this as I'm suffering severe insomnia as well and would love to have some hope that it ends.

would also like to know if it suddenly gets better or if it follows the windows and waves pattern along with other symptoms

I've seen a *few* posts where ppl say they are feeling better but they don't mention how long the insomnia lasted.

 

It's been since Sept for me, and I'd give anything for one good night's sleep.


1974-2002 many psych meds, all types; longest used drugs include lithium, seroquel, SSRI's zoloft & celexa; many CT's off drugs

2002-2015 on varying doses of lexapro, as  high as 40 mgs, but usually 20mgs

June 2015: tapered too fast to 2.5mgs, then to 2.5mgs every other day Dec 2015:  found SA forum; holding at 2.5mgs 

Early May 2016: jumped off at 2.5mgs, not smart- crashed in late Sept.

Oct 26 2016  reinstated liquid lexapro 0.05ml/day at night, dose +/- til settling on 0.15BID (0.3/day)= windows and waves

Jan 8, 2017 too quick switch to single dose in the morning, 0.3mgs (bad mistake, led to a crash)

Jan 12 added low dose zyprexa for SI, took infrequently as rescue med, last dose Feb.15

Jan 26 lexapro 0.27mg Feb 25 lexapro updose back to 0.3mg due to unrelenting severe insomnia

March 1 insomnia got worse, back down to 0.29 for one day, then 0.27, then 0.25- improving!! March 17 0.24

March 7 added low dose lamictal

Supplements: vit D-3, Magnesium taurate 250mg, chromium, pro-biotic, biotin, valerian root, L-theanine


#3 Petunia

Petunia

    Platinum star

  • Moderators
  • 4,593 posts
  • LocationAU

Posted 16 February 2017 - 03:50 PM

I'm a good example of WD insomnia improving and then disappearing completely, along with your correct assessment of why there are so few posts about improvement and recovery.

 

During my worst, acute period between 2012 -  2013 I was barely getting 1 - 2 hours of broken sleep a night. Some nights I would doze off for a few seconds and then be startled awake, only to have the cycle repeat over and over all night long.

 

My ability to sleep properly has recovered slowly in a windows and waves kind of pattern, with it being disrupted by a variety of changing symptoms through the process.

 

Today, I can say that its 99% back to normal. Sleep is wonderful and restorative again and I never need to take anything to induce its onset. I reserve that 1% for the rare waves that I'm still getting from time to time and because I'm still sensitive to stress and some substances and these will also temporarily effect my ability to get a good night sleep.

 

I'm also an example of your correct assessment that when people start to get better, they visit the site less and therefore, don't post their increasingly more positive experiences or continue to document their ongoing recovery process.

 

You may have already seen it, but here is the link to our sleep topic:  Tips to help sleep -- so many of us have that awful withdrawal insomnia


I'm not a doctor.  My comments are not medical advise. These are my opinions based on my own experience and what I've learned. Please discuss your situation with a medical practitioner who has knowledge of tapering and withdrawal.

 

My Introduction Thread

 

Full Drug and Withdrawal History

 

Brief Summary

Several SSRIs for 13 years starting 1997 (for mild to moderate partly situational anxiety)

Xanax PRN

Various other drugs over the years for side effects

2 month 'taper' off Lexapro 2010

Short acute withdrawal, followed by 2 -3 months of improvement then delayed protracted withdrawal

DX ADHD followed by several years of stimulants and other drugs trying to manage increasing symptoms

Failed reinstatement of Lexapro and trial of Prozac (became suicidal)

May 2013 Found SA, learned about withdrawal, stopped taking drugs...healing begins.

Protracted withdrawal, with a very sensitized nervous system, slowly recovering as time passes animal25.gif

 

Supplements which seem to help:  High doses of Vitamin C, Magnesium, Garlic and Ginger.  Taurine, Vit D3, L-Theanine and Inositol. I'm one of the rare people who react badly to fish oil.

 

June 2016 - Started daily juicing, mostly vegetables and lots of greens.

 

VIDEO: Where did the chemical imbalance theory come from?



VIDEO: How are psychiatric diagnoses made?



VIDEO: Why do psychiatric drugs have withdrawal syndromes?



VIDEO: Can psychiatric drugs cause long-lasting negative effects?

VIDEO: Dr. Claire Weekes

 

 

 


#4 DrugfreeProf

DrugfreeProf

    Silver star

  • Members
  • PipPipPip
  • 106 posts
  • LocationNew York City

Posted 16 February 2017 - 05:59 PM

My daughter, Lexi (Lex1992) had HORRIBLE insomnia early in withdrawal. In fact, it was one of her first symptoms, which was followed by a cascade of many other terrible symptoms, which at this point have abated to a large degree, except for some anxiety and cognitive symptoms. In other words, in many ways, she is much better, but she is still not back to normal functioning. In any event, her insomnia, which was absolutely total for at least a month if not much longer, has now pretty much gone away completely. She is sleeping entire nights, sometimes 10 - 12 or more hours, although from time to time that block of sleep moves from nighttime to daytime!  Right now, her sleep is sound and pretty normal!  So yes, there is hope for relief from withdrawal-related insomnia!


Drugfree Prof

Psychologist and Psychotherapist

Prozac 20 mg for approx 3 months during 2000, withdrew, no w/d sx

Prozac 10 - 30 mg Jan. 2008 - Dec. 2014

Ritalin 30-40 mg Jan. 2008 - Mar. 2015

W/d sx from Prozac started around 3 months after cessation--crying spells, depressed mood, lethargy; resolved in 8 - 12 mos. post cessation

Used and continue to use a TON of alternative methods--meditation, mindfulness, nutrition. supplements, exercise, etc.


#5 AliG

AliG

    Platinum star

  • Moderators
  • 3,354 posts
  • LocationAustralia

Posted 18 February 2017 - 05:38 AM

I was the worst case in terms of sleep. I had long term WD insomnia for 2 years.  I had the odd doze on the lounge but it was brutal with no relief for a long time . I sometimes managed to get a couple of hours sleep during the day when the exhaustion would finally overtake me.

 

I'm now sleeping normally . My improvement was quite sudden really. There is really no other explanation for my insomnia except withdrawal. I'm 99% improved but still have the odd sleepless night every now and then.  Having said that , I feel I'm over it and I usually sleep  approximately 7- 8 hours nightly.

 

I feel I'm doing better than most who haven't even had W/D , and I don't use any sleep aids including natural supplements. I had some success with Melatonin for a period of time but I didn't want to become reliant on it so only took it sporadically. I do feel it helped me at the time.

 

I know I get real restorative non - drug sleep now but it's been a challenge getting there. I was determined to avoid drugs of any kind.

 

Have I healed ?  I believe that I have and everyone can. It mostly takes time and patience.


Many SSRI's &SSNRI's over 20 years . Zoloft - 7 years .  Effexor, Lexapro, Prozac, Cymbalta, Celexa, Pristiq, Valdoxan, Mianserin and many more - on and off . No tapering. Cold turkey -  Valdoxan - end of May 2014

 

                                                            Drug free since May, 2014
.
             "Find a place inside where there's joy and the joy will burn out the pain" - Joseph Campbell


#6 Daisies24

Daisies24

    Member

  • Members
  • PipPip
  • 12 posts
  • LocationCleveland, OH

Posted 19 February 2017 - 06:23 AM

Petunia, DrugfreeProf, and AliG, thank you so, so much for sharing your stories of recovery and hope on this thread. Those of us still suffering with this symptom so need to hear these!

 

Catnapt, I am so sorry you are going through this. I do hope that these stories will give you some hope and encouragement. My insomnia actually began when I started Prozac in May of 2016, and when it did not resolve, I quit taking it in July, thinking that would fix everything quickly. But, the insomnia has been ongoing since.


30/f

Low dose Lexapro (5mg) for 1 year from roughly 2007-2008

Low dose Prozac (between 5mg and 10mg) for about 9 months from October 2013-July 2014

Tried another low dose of Prozac (5mg) from May 2016-July 2016 with constant horrible anxiety and insomnia, which have never resolved


#7 Cookson

Cookson

    Silver star

  • Members
  • PipPipPip
  • 148 posts
  • LocationEngland, London

Posted 20 February 2017 - 10:42 AM

Close too my heart this one. You can only really judge it on an individual basis and how uniquely screwed up your nervous system is. I'm sorry too have too say that, Probably not very comforting too hear eh? What I can give you is a cast iron guarantee that it will get better but it's going too take time and patience.
You must be kind and forgiving too yourself.
When this all began for me after putting my nervous system through the ringer beacause I thought I was indestructible doing very naugthy things too it my sleep was absolutely destroyed. My sleep had done a Dorothy and said goodbye too Kansas. I'd go two days without sleep regularly and even when I did I'd only get a few hours at a time.
I drank heavily every night for a month just too knock me out completely which just exacerbated symptoms making me worse off! I'd dread the entire day about bedtime knowing that I woud not be able too sleep and when attempting too sleep the horrid HORRID feelings of disassociation and terror you know I can't even give it the justice with words it was bad.
And now, besides a hiccup recently, 99% of the time I can fall asleep with ease. Best advice I can can give you you is you must be as relaxed. For me, I had too try too clear my mind completely. Feelings and even thoughts were stimulating! What worked for me well back then was melatonin and a hopps/valerian mix.
Rest as much as you can and stay strong.
What was especially problematic for me at bedtime was I had trouble entering R.E.M. I found myself constantly stuck in R.H.M which my doctor diagnosed as rapid hand movement syndrome and that it was a chronic condition. Gotta have a sense of humour through all of this. It's kept me going.
All the best
Cookson

2013-July 1st Citalopram 20mg ()

2013-August 19th ended Citalopram cold turkey

med free.  (Took them for 7 weeks)

 

When I was a child, I spoke as a child,

I understood as a child, I thought as a child;

But when I became a man,

I put my childish things away.

 

- 1 Corinthians 13:11

 


#8 Mimi11

Mimi11

    Member

  • Members
  • PipPip
  • 44 posts
  • LocationCanada

Posted 20 February 2017 - 04:28 PM

Thank god for you Cookson and your sense of humour! I laughed so hard reading your intro in another thread. Please keep posting and making us (me) laugh. I need it. This is such a crazy journey. I'm here for you too! Although, not quite as funny as you are...but I try ;)


Celexa 10 mg (5years), 5mg (10 years). Prescribed for anxiety and panic. Started tapering July 2015-2.5 mg for a month, then 2.5 every other day. Kept tapering until October when I took my last crumb. 10 months drug free and WD symptoms are evolving constantly. 


#9 Altostrata

Altostrata

    Administrator

  • Administrators
  • PipPipPipPipPipPip
  • 23,876 posts
  • LocationSan Francisco, CA

Posted 20 February 2017 - 10:35 PM

We have many people who recovered from withdrawal insomnia. I had it myself for quite a while.


This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

#10 Daisies24

Daisies24

    Member

  • Members
  • PipPip
  • 12 posts
  • LocationCleveland, OH

Posted 12 March 2017 - 10:18 AM

Cookson and Altostrata, thanks for the replies! Do you mind my asking how long each of you experienced the insomnia? Mine actually started while I took the medication, and only worsened when I went off. It's been almost a year of this. 


30/f

Low dose Lexapro (5mg) for 1 year from roughly 2007-2008

Low dose Prozac (between 5mg and 10mg) for about 9 months from October 2013-July 2014

Tried another low dose of Prozac (5mg) from May 2016-July 2016 with constant horrible anxiety and insomnia, which have never resolved


#11 lobster

lobster

    Silver star

  • Members
  • PipPipPip
  • 315 posts
  • LocationMaine

Posted 20 March 2017 - 09:59 AM

I'm a good example of WD insomnia improving and then disappearing completely, along with your correct assessment of why there are so few posts about improvement and recovery.

 

During my worst, acute period between 2012 -  2013 I was barely getting 1 - 2 hours of broken sleep a night. Some nights I would doze off for a few seconds and then be startled awake, only to have the cycle repeat over and over all night long.

 

My ability to sleep properly has recovered slowly in a windows and waves kind of pattern, with it being disrupted by a variety of changing symptoms through the process.

 

Today, I can say that its 99% back to normal. Sleep is wonderful and restorative again and I never need to take anything to induce its onset. I reserve that 1% for the rare waves that I'm still getting from time to time and because I'm still sensitive to stress and some substances and these will also temporarily effect my ability to get a good night sleep.

 

I'm also an example of your correct assessment that when people start to get better, they visit the site less and therefore, don't post their increasingly more positive experiences or continue to document their ongoing recovery process.

 

You may have already seen it, but here is the link to our sleep topic:  Tips to help sleep -- so many of us have that awful withdrawal insomnia

Your sleep then sounds just like mine is now . very aggravating. I'm hoping mine improves soon .  


Lexapro 1 1/8 mg and 10 mg Propranolol. I jumped down to 2.5 mg lexapro from 5 mg on oct 2 where I had been for 7 months and went from 2.5 mg to 1 1/8 mg not sure when maybe around nov 2 went back up to 2.5 mg December 30 . May 13 small cut lexapro 2.5 mg down to 2.4 mg 9/4/14 dropped 8.33% to 2.2 mg 10/13/14 dropped to 2mg lexapro. Back up to 2.2 mg 10/15/14. Dropped to 2 mg lexapro 11/26/14. Dropped 10% to 1.8 mg lexapro 1/11/15. 2/23/15 . Cut of 5%.
3/11/15 cut of 5% 5/3/15 cut of 5% 6/3/15 cut of 5% 7/19/15 cut of 5%.