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Major national UK newspaper looking for patient stories of drug withdrawal


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#1 Glaucus

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Posted 02 March 2017 - 11:31 AM

A major national newspaper is looking for people living in the UK willing to share recent stories of negative effects while trying to withdraw from benzodiazepines, antidepressants and / or opioid painkillers.

The newspaper is particularly looking for recent stories from those who experienced one or more of the following:

- You were prescribed the drugs for longer than you should have been
- You tried repeatedly to withdraw without support
- Your doctor was unable or unwilling to help with withdrawal
- You were told to go cold turkey by your doctor
- You eventually managed to withdraw but only with support from a charity or online forum or Facebook
- You were sent to traditional drug and alcohol services but discovered these were inappropriate
- You were told that your symptoms were due to a disorder and not the drug withdrawal

The newspaper is also looking for stories from family members / partners who provided support during withdrawal, as well as from bereaved families where patients were driven to suicide because of intolerable symptoms.

Ideally, you would be willing to be named and photographed for the paper. Interviews will be handled sensitively and will be conducted by journalists who have experience in this area.

If you are interested, please send a short version of your story as well as contact details to admin@cepuk.org and we will forward to the newspaper.

The All Party Parliamentary Group for Prescribed Drug Dependence and the Council for Evidence-based Psychiatry are keen to support this initiative as part of our effort to lobby for appropriate withdrawal services, including a national helpline. Your help is needed! Please share!

 


On various SSRIs/SNRIs from 1990 to Dec 2010; drug free since then.  Also on clonazepam 2003 to 2009; taken off via horrific detox.  Crossed over from Effexor to Celexa in 2009, then tapered off over 1.5 yrs.

 

Have had glimpses of improvements but still going through a brutal withdrawal...


#2 nz11

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Posted 02 March 2017 - 07:59 PM

Thanks for posting.

 

I can tick 6 of the boxes.

When i demanded answers i wasnt  sent anywhere except to a psychiatrist. That was a very dangerous place to be sent.How stupid to think they could tell me something helpful and useful. All i got was a barrage of  'alternative facts. '


2000 amitryptaline, nortriptaline venlafaxine clonazepam for  arm pain from keyboard use, told I had a chemical imbalance it would fix my arm was just a matter of finding the right med for me not informed of the nature of these drugs assured safe and not addictive, CT off Effexor after being told to double the dose on reporting adverse effects...later ..uncharacteristic psych panic tearful presented to doctor to get answers. Given paroxetine no questions asked 'safe and not addictive' next please.2001-2010 paroxetine (paxil) 2 failed attempts to quit, a learned helplessness set in. Feb 10 - Sept 10,  8 month clueless taper, hell. Doc said I had underlying depression .. I said that's not right' then found online support group and the truth!...overcome with inconceivable humiliation and outrage. 28 Sept 10 drug free ...  daily psych and emotional torture beginning in the waking hours of the morning receding somewhat in the evening only to start up again the next day. 28 Sept 12 (24 months) Stabilizing  (What an indescribable unimaginable non-functional nightmare). sleep issues start up at 3 yrs  waking daily at 2am -4.30am)28 Sept 15 (5yrs drug free), cf, cmw, insomnia  horrifying pssd continues, still feel Rip van Winkle-ish, cognitively doing heaps better. 28 Sept 16 after 6 yrs start working again on a casual basis.

 

"It is unsafe for people who suffer from something that could be treated with an ssri to consult a psychiatrist." Gotzshe 2015. [ I think Gotzsche could have easily meant to say 'to consult anyone with prescribing privileges']. "Going to a psychiatrist is one of the most dangerous actions a person can take." Breggin

 

“Paroxetine is not safe, it is not effective and it meets every known definition of addictive.” McLaren, N, (2016) 'Psychiatry as bullsh*t’ p55..."Psychiatry is stuffed full of 'deep nonsense' better known as bullsh*t." McLaren 2016

 

"Within the first week of when you go on an antidepressant you may have a sexual dysfunction, it can go on forever, often only appearing when you go off the drug ...its extraordinarily common" Healy 2015

 

See  my intro post #451 for the xanax back story and for a CV -GSKs.  Come on guys get taperwise see a TaperMe Schedule

 For a staggeringly shocking 'prozac back story' see the truth post #523

 

"If I were an enemy combatant and the NZ army did this to me someone would be dragged to the Hague and jailed!"  nz11


#3 Terry4949

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Posted 03 March 2017 - 12:45 PM

A major national newspaper is looking for people living in the UK willing to share recent stories of negative effects while trying to withdraw from benzodiazepines, antidepressants and / or opioid painkillers.
The newspaper is particularly looking for recent stories from those who experienced one or more of the following:
- You were prescribed the drugs for longer than you should have been- You tried repeatedly to withdraw without support
- Your doctor was unable or unwilling to help with withdrawal
- You were told to go cold turkey by your doctor
- You eventually managed to withdraw but only with support from a charity or online forum or Facebook
- You were sent to traditional drug and alcohol services but discovered these were inappropriate
- You were told that your symptoms were due to a disorder and not the drug withdrawal

The newspaper is also looking for stories from family members / partners who provided support during withdrawal, as well as from bereaved families where patients were driven to suicide because of intolerable symptoms.
Ideally, you would be willing to be named and photographed for the paper. Interviews will be handled sensitively and will be conducted by journalists who have experience in this area.
If you are interested, please send a short version of your story as well as contact details to admin@cepuk.org and we will forward to the newspaper.
The All Party Parliamentary Group for Prescribed Drug Dependence and the Council for Evidence-based Psychiatry are keen to support this initiative as part of our effort to lobby for appropriate withdrawal services, including a national helpline. Your help is needed! Please share!

A major national newspaper is looking for people living in the UK willing to share recent stories of negative effects while trying to withdraw from benzodiazepines, antidepressants and / or opioid painkillers.
The newspaper is particularly looking for recent stories from those who experienced one or more of the following:
- You were prescribed the drugs for longer than you should have been- You tried repeatedly to withdraw without support
- Your doctor was unable or unwilling to help with withdrawal
- You were told to go cold turkey by your doctor
- You eventually managed to withdraw but only with support from a charity or online forum or Facebook
- You were sent to traditional drug and alcohol services but discovered these were inappropriate
- You were told that your symptoms were due to a disorder and not the drug withdrawal

The newspaper is also looking for stories from family members / partners who provided support during withdrawal, as well as from bereaved families where patients were driven to suicide because of intolerable symptoms.
Ideally, you would be willing to be named and photographed for the paper. Interviews will be handled sensitively and will be conducted by journalists who have experience in this area.
If you are interested, please send a short version of your story as well as contact details to admin@cepuk.org and we will forward to the newspaper.
The All Party Parliamentary Group for Prescribed Drug Dependence and the Council for Evidence-based Psychiatry are keen to support this initiative as part of our effort to lobby for appropriate withdrawal services, including a national helpline. Your help is needed! Please share!

I have tried to send my story to the link above but it does not seem to be recognising it ,
100mg Effexor 2000 untill jan 2015 severe withdrawals . Tapered 4weeks.
Jan to end of Feb 4 weeks on 15mg mirtazapine 20mg quetiapine , tapered of both 2 weeks , severe withdrawals , still some from Effexor possibly
End of Feb 2015 to end of July 30mg citolapram tapered 2weeks severe withdrawal , anxiety high , bouts of sever depression , severe emotional moods
Currently on 30mg mirtazapine appx 5 months , high anxiety, March cut dose 22.5 mg going on to liquid still no improvements with the depression , also started sept 2015 200mg pregabalin , currently on 22.5mg mirtazapine tablet form doing really badly. Cut beginning of May remeron 20mg still bad anxiety,August 15mg remeron ,100mg pregablin , severe depression headaches anxiety , oct 2016 doctor stoped pregablin c/t , 15mg mirtazapine still no let up in physical symptoms ,high anxiety ,Nov 2016 remeron 13.5 mg , Jan 2017 mirtazapine stopped flouxetine20mg added by hospital admission, no choice , doing really badly , akathesia suicidel ,, Flouxetine c/t by hospital after 7 weeks 20mg daily , currently on nothing , God help me

#4 Vanora

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Posted 07 March 2017 - 03:19 PM

If I could just add to the above post re a major UK newspaper seeking patient stories of drug withdrawal, this paper wants to hear from people who have had their experience of benzodiazepines/sleeping tablets, antidepressants, and opioid pain killers particularly in the last 10 years and not to be ageist but they especially want to hear from those who are younger, I think this is designed to show that this is very much a current issue.

 

When I came on here last I was struggling to come off diazepam as well as a Z-drug after a year and a half striving to survive from a brutal withdrawal from Effexor, that was back in 2013. As of November 5th of that same year I have been psych drug free after over 30 years of taking antidepressants. I strongly suspect that my healing was considerably compromised not only by my length of time on antidepressants but also by additional psychiatric drugs and benzodiazepines in particular. People such as myself are calling on the UK government via petition to launch an independent inquiry into benzodiazepine use, we have known of the problems around dependence and withdrawal at least since the 1960s and yet people are still having their health harmed by this class of drugs. Anyone from anywhere in the world is welcome to sign, we already have the signature of Prof Malcom Lader, a renowned expert on benzodiazepines and the BMA is taking a close interest on the progress of this petition. Please sign if you have been damaged by benzodiazepines or if you know of anyone in this situation. Every signature will count. Thank you.  

 

https://www.change.o...odiazepines    


1979 put on Clomipramine.
Failed attempt to withdraw from Clomipramine started on Seroxat 1992.
1997 Effexor replaces Seroxat after failed withdrawal.
2011 fail to withdraw from Effexor despite combined use of Prozac and Seroquel. Started on Cymbalta.
Anxiety not resolved by Cymbalta so taper off by 28th March 2012. Left on 10mg Buspirone and 1 quarter of 5mg Diazepam.
Anxiety at times very severe. 19th May take my first half of a 5mg Lamictal.

As of 5/11/2013, off all psychiatric drugs. Doing better but hope for more healing yet.


#5 Vanora

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Posted 08 March 2017 - 01:58 AM

If anyone is having any problems connecting to the admin@cepuk.org link they may send their stories to claire@benzoinfo.com.

 

 

 


1979 put on Clomipramine.
Failed attempt to withdraw from Clomipramine started on Seroxat 1992.
1997 Effexor replaces Seroxat after failed withdrawal.
2011 fail to withdraw from Effexor despite combined use of Prozac and Seroquel. Started on Cymbalta.
Anxiety not resolved by Cymbalta so taper off by 28th March 2012. Left on 10mg Buspirone and 1 quarter of 5mg Diazepam.
Anxiety at times very severe. 19th May take my first half of a 5mg Lamictal.

As of 5/11/2013, off all psychiatric drugs. Doing better but hope for more healing yet.


#6 pete1989

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Posted 14 March 2017 - 01:02 AM

I am interested I have drug withdrawal experience with eczema induced by topical and oral steroids as well as antidepressants and anti psychotic withdrawal that I am now in. I am also young!



#7 Vanora

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Posted 14 March 2017 - 02:59 AM

Thank you Pete, we are really struggling to get more people to come forward. You can contact the journalist at jo_waters15@hotmail.com or telephone 0208 289 1777. Hope things are going ok for you.


1979 put on Clomipramine.
Failed attempt to withdraw from Clomipramine started on Seroxat 1992.
1997 Effexor replaces Seroxat after failed withdrawal.
2011 fail to withdraw from Effexor despite combined use of Prozac and Seroquel. Started on Cymbalta.
Anxiety not resolved by Cymbalta so taper off by 28th March 2012. Left on 10mg Buspirone and 1 quarter of 5mg Diazepam.
Anxiety at times very severe. 19th May take my first half of a 5mg Lamictal.

As of 5/11/2013, off all psychiatric drugs. Doing better but hope for more healing yet.


#8 Vanora

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Posted 23 March 2017 - 04:07 PM

We are still keen to hear from people in the UK who are prepared to share their negative experiences of withdrawal from antidepressants, benzodiazepines/sleeping tablets and opioid pain killers. The journalist Jo Waters would like to hear specifically from people in their 20s having received enough material from those older and if you are in the unfortunate position of having suffered a loss of a family member or partner due as a result of intolerable withdrawal symptoms please contact Jo who will treat your story with the utmost sympathy. This article needs people who are prepared to go on the record. Every piece of publicity helps our chances of bringing prescription drug dependence to a wider public as well as helping our efforts to gain specialist withdrawal services and a national helpline. Jo can be contacted at the above telephone number and email address. Thank you. 


1979 put on Clomipramine.
Failed attempt to withdraw from Clomipramine started on Seroxat 1992.
1997 Effexor replaces Seroxat after failed withdrawal.
2011 fail to withdraw from Effexor despite combined use of Prozac and Seroquel. Started on Cymbalta.
Anxiety not resolved by Cymbalta so taper off by 28th March 2012. Left on 10mg Buspirone and 1 quarter of 5mg Diazepam.
Anxiety at times very severe. 19th May take my first half of a 5mg Lamictal.

As of 5/11/2013, off all psychiatric drugs. Doing better but hope for more healing yet.


#9 DrugfreeProf

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Posted 23 March 2017 - 04:27 PM

I wrote offered to share my story about my daughter Lexi's horrific protracted withdrawal and my older daughter, Monique's, suicide in 2007, almost certainly due to ADs.  Both of them in their 20s.  I got a very nice note back from a fellow sufferer named Claire, who is helping coordinate the stories to be used. She said that they unfortunately will only use reports from the UK (I'm in the U.S.)  I will, ihowever, have the fortunate opportunity to be interviewed in April by the wonderful James Moore for his program, Let's Talk Withdrawal, where I'll have the opportunity to speak out against these legalized poisons and big pharma criminality.  He's so far archived around four interviews, all excellent, especially the one by Peter Gotszche. 


Edited by ChessieCat, 23 March 2017 - 05:05 PM.
Added link

Drugfree Prof

Psychologist and Psychotherapist

Prozac 20 mg for approx 3 months during 2000, withdrew, no w/d sx

Prozac 10 - 30 mg Jan. 2008 - Dec. 2014

Ritalin 30-40 mg Jan. 2008 - Mar. 2015

W/d sx from Prozac started around 3 months after cessation--crying spells, depressed mood, lethargy; resolved in 8 - 12 mos. post cessation

Used and continue to use a TON of alternative methods--meditation, mindfulness, nutrition. supplements, exercise, etc.


#10 Vanora

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Posted 23 March 2017 - 05:24 PM

I am so very sorry to hear about your daughters' terrible experiences with ADs, I cannot begin to imagine what you are going through. To lose a daughter must be unbearable. It is a great pity that we cannot use your story as we are having problems getting people to go on record which is perhaps understandable, it's a pretty daunting thought for some especially as many are fragile and ill. It's so frustrating that the outside world regards ADs as mostly benign though you and I know this isn't true. This article could help our cause tremendously but we need more people to come forward. I am glad that you will at least be able to tell your story in Let's Talk Withdrawal. James is doing a fantastic job with his podcast and I couldn't hear enough from Peter Gotzsche. Thank you for making what must have been a less than easy decision to speak out about your experiences, I hope that one day we will make a real difference and have these poisons consigned to history. 


1979 put on Clomipramine.
Failed attempt to withdraw from Clomipramine started on Seroxat 1992.
1997 Effexor replaces Seroxat after failed withdrawal.
2011 fail to withdraw from Effexor despite combined use of Prozac and Seroquel. Started on Cymbalta.
Anxiety not resolved by Cymbalta so taper off by 28th March 2012. Left on 10mg Buspirone and 1 quarter of 5mg Diazepam.
Anxiety at times very severe. 19th May take my first half of a 5mg Lamictal.

As of 5/11/2013, off all psychiatric drugs. Doing better but hope for more healing yet.


#11 Terry4949

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Posted 24 March 2017 - 06:13 AM

I have written my story and would like to participate in the above , but I cannot seem to send it to the above admin@cepuk.org has anyone else had trouble in sending their story to this site
100mg Effexor 2000 untill jan 2015 severe withdrawals . Tapered 4weeks.
Jan to end of Feb 4 weeks on 15mg mirtazapine 20mg quetiapine , tapered of both 2 weeks , severe withdrawals , still some from Effexor possibly
End of Feb 2015 to end of July 30mg citolapram tapered 2weeks severe withdrawal , anxiety high , bouts of sever depression , severe emotional moods
Currently on 30mg mirtazapine appx 5 months , high anxiety, March cut dose 22.5 mg going on to liquid still no improvements with the depression , also started sept 2015 200mg pregabalin , currently on 22.5mg mirtazapine tablet form doing really badly. Cut beginning of May remeron 20mg still bad anxiety,August 15mg remeron ,100mg pregablin , severe depression headaches anxiety , oct 2016 doctor stoped pregablin c/t , 15mg mirtazapine still no let up in physical symptoms ,high anxiety ,Nov 2016 remeron 13.5 mg , Jan 2017 mirtazapine stopped flouxetine20mg added by hospital admission, no choice , doing really badly , akathesia suicidel ,, Flouxetine c/t by hospital after 7 weeks 20mg daily , currently on nothing , God help me

#12 Vanora

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Posted 24 March 2017 - 06:31 AM

HI Terry,

 

If the CEPUK link doesn't work you can contact the journalist Jo Waters directly at the telephone number 0208 289 1777 as well as her mobile number 07971 286 878 or at the email address jo_waters15@hotmail.com. I hope that will help you out.


1979 put on Clomipramine.
Failed attempt to withdraw from Clomipramine started on Seroxat 1992.
1997 Effexor replaces Seroxat after failed withdrawal.
2011 fail to withdraw from Effexor despite combined use of Prozac and Seroquel. Started on Cymbalta.
Anxiety not resolved by Cymbalta so taper off by 28th March 2012. Left on 10mg Buspirone and 1 quarter of 5mg Diazepam.
Anxiety at times very severe. 19th May take my first half of a 5mg Lamictal.

As of 5/11/2013, off all psychiatric drugs. Doing better but hope for more healing yet.