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greenrobin: 10 months off antidepressants and still needing help

antidepressant withdrawal effexor social anxiety extreme agitation

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#1 greenrobin

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Posted 20 April 2017 - 01:47 PM

Hi fellow victims,

 

I have now been off Effexor (and all antidepressants) for 10 months, although I do OCCASIONALLY take Ativan to relieve me of my sheer panic and anxiety.  Let me tell you my story:

 

I have been taking antidepressants on and off for 21 years (since age 18).  I went on it for debilitating depression and self hatred.  The meds worked.  I definitely felt better.  However, over the years, each antidepressant would lose its effectiveness, sending me to the doctor to get a new one to try.   The one I went on that worked the best was Effexor.  I started at the lowest dose, 37.5 mg after suffering severe post partum depression.  The Effexor was a life saver, or so I thought.  I did not have the dark cloud handing over me, was not as anxious, and enjoyed life for a while.  Fast forward five years.  Now I felt withdrawn from my family, an outsider.  I had extreme irritation, couldn't stand my kids touching me or sounds.  I blew my lid around my family when the stress level got too high.  It is at this point that I decided to eliminate antidepressants from my life.  I tried and was off them for a couple months and could NOT deal with life.  Back on again.  Only this time, I started to do research, learning about withdrawal from Effexor from people who have experienced it, not doctors who prescribed it.  I read some heart wrenching blogs and realized that this would be a commitment of at least a year.  I armed myself with amino acids and vitamins, ate serotonin boosting foods, eliminated my beloved coffee, and got more exercise.  I did EVERYTHING I could possibly do to succeed in withdrawal this time.  Well it's been 10 months.  Let me recap what it has been like.

 

The physical withdrawal symptoms, although they seemed bad, were nothing compared to the emotional.  I got the dizziness and uncontrollable crying for a few months.  Then, I started realizing what the waves and windows were.  Waves-bad times, windows, not so bad.  My research told me that eventually the waves would be shorter, less intense, and less frequent.  And so it seemed.  I tracked my waves on a calendar and at one time they were coming every few days  ( 4-5 days of wave, then two days of window), then they were every couple of weeks.  I thought I had turned a corner.  It was around month 5 off meds that I felt that maybe I could conquer this. However, I DID have a few angry moments when I totally scared my three children and felt like I went off the deep end during this time.  Then January hit, the SADD months.  I got my next "phase" of withdrawal: intrusive thoughts.  Dark, awful, debilitating thoughts that made me want to crawl into a hole and die.  I ALMOST went back on meds, but persevered thinking I only needed to get through the SADD months.  During this time I also developed severe social anxiety, and I no longer hang out in groups and rarely hang out with anyone except my husband and children even now.  Now I am in a new "phase" of extreme agitation, super low self esteem, and self hatred.  I have begun cutting myself and punching myself when I am angry at myself for "losing it" with my family.  My stomach currently looks like a bruised mess of red hash tags.  My self esteem is zilch and I am paranoid that everyone hates me and/or is talking about me.

 

I feel I keep encountering new phases of this debilitating withdrawal.  I don't know if this will ever end.  I am at the point where I sometimes think suicidal thoughts because it is too tough to live like this.  I cry all the time and analyze every feeling I have.  When I get mad at my kids and my blood is boiling, I retreat to the bathroom to self harm.  My husband is supportive but even HE doesn't know what to do anymore.   I DO NOT want to go back on medication.  I truly feel it was the meds that made me this way in the first place.  If anyone could offer some advice, some hope, I'd appreciate it.  Thank you all for reading.


took different antidepressants on and off for 21 years including wellbutrin, Zoloft, paxil, lithium

most recent was Effexor 37.5 mg to 150mg depending on need

went off Effexor in June 2016 by tapering down to 37.5, then every other day for a week or two, then no meds

occasionally take Ativan for relief (2-3 times per month)

take L-tryptophan, TMG, DLPA, and GABA (aminos)

Take fish oil, B complex, vitamin C, D, multi vitamin, zinc, magnesium, calcium

recently started curcumin as an herbal supplement

Prayer and positive thinking (when possible) have kept me alive

 


#2 Petunia

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Posted 21 April 2017 - 01:37 AM

Welcome greenrobin,

 

Thank you for sharing your story. I'm so sorry for what you're going through. What you describe sounds to me like protracted withdrawal syndrome. You tapered too fast, using the skipping dose method, which is not good for the nervous system.

 

We suggest reducing by no more than 10% of the current dose every 4 weeks, this reduces the risk of withdrawal symptoms arising. Please read through this which will explain why:

  

Why taper by 10% of my dosage?

 

Reinstatement of a small amount of the drug can often work well to alleviate withdrawal symptoms. According to medical knowledge, reinstatement is the only way to alleviate withdrawal. Reinstatement is best done immediately upon appearance of symptoms. The more time that passes, the less likely it is to work. Once you have stabilized on a low dose of the drug, then a slower, safer taper can be started.

 

But in your case, its been 10 months since your last dose, so there's no guarantee it would work, but its possible. Here is some information about reinstatement to help you decide if its something you would like to try:  About reinstating and stabilizing to stop withdrawal symptoms

 

If you decide not to reinstate, you will still get better, but it will take some time. Everyone is different, so its impossible to say how long it will take, but you will recover. You already know about the windows and waves pattern, this is how recovery often happens, its been like that for me too. I'm also in protracted withdrawal, recovering after stopping Lexapro too fast after years of being on ADs.

 

The extreme emotions you have been experiencing sound like what we call 'neuro-emotions', Many of us have had these, I'm currently dealing with sudden flashes of extreme anger and frustration, its been going on for about 6 months now and I'm sort of getting used to it, but its still not pleasant. These neuro-emotions settle down in time.

 

When you are feeling bad, instead of hurting yourself, do something nice for yourself, like taking a warm bath, maybe with epsom salts or scented oils. Listen to relaxing music...something you like. Maybe go for a walk to a nice park or natural setting. Recovery requires that we take good care of ourselves. I like to think of it as 'extreme self care', the worse I feel, the kinder I am to myself.

 

Here is the link to our symptoms and self care section, you may find some useful ideas to help manage symptoms as you recover.  Especially read the topics pinned at the top.

 

Aside from a high quality fish oil and magnesium, avoid supplements. (See King of Supplements: Omega 3 Fatty Acids (Fish Oil) and Magnesium, Nature's Calcium Channel Blocker). They've been helpful to many of us.

 

And a few more relevant links:

 

Brain Remodelling (Rhi's Description of Brain Healing)

 

Recovery Success Stories

 

Videos

 

Patterns of Recovery

 

The Power of Neuroplasicity

 

I know there's a lot there to read, so take your time. You can come back here to your thread if you have any questions.

 

Please feel free to write whenever you want, you will find a lot of friendly help and support here.

 

I’m glad you found us, we’re here to support you.

 

Petunia.


I'm not a doctor.  My comments are not medical advise. These are my opinions based on my own experience and what I've learned. Please discuss your situation with a medical practitioner who has knowledge of tapering and withdrawal...if you are lucky enough to find one.

 

My Introduction Thread

 

Full Drug and Withdrawal History

 

Brief Summary

Several SSRIs for 13 years starting 1997 (for mild to moderate partly situational anxiety)

Xanax PRN

Various other drugs over the years for side effects

2 month 'taper' off Lexapro 2010

Short acute withdrawal, followed by 2 -3 months of improvement then delayed protracted withdrawal

DX ADHD followed by several years of stimulants and other drugs trying to manage increasing symptoms

Failed reinstatement of Lexapro and trial of Prozac (became suicidal)

May 2013 Found SA, learned about withdrawal, stopped taking drugs...healing begins.

Protracted withdrawal, with a very sensitized nervous system, slowly recovering as time passes animal25.gif

 

Supplements which seem to help:  High doses of Vitamin C, Magnesium, Garlic and Ginger.  Taurine, Vit D3, L-Theanine and Inositol. I'm one of the rare people who react badly to fish oil.

 

June 2016 - Started daily juicing, mostly vegetables and lots of greens.

 

VIDEO: Where did the chemical imbalance theory come from?



VIDEO: How are psychiatric diagnoses made?



VIDEO: Why do psychiatric drugs have withdrawal syndromes?



VIDEO: Can psychiatric drugs cause long-lasting negative effects?

VIDEO: Dr. Claire Weekes

 

 

 






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