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Multiple Chemical Sensitivity vs hypersensitized nervous system


alexjuice

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  • Mentor

I find now,  I have mould sensitivity,    yes mouldy home, the two years I been in this group.              Anyone know what air purifier I could buy?      Neglected and poorly built homeswest home  (yep moved in 2 years ago).                

1992 Dothiepin 375mg 8 weeks, exhaustion/depression.  Serotonin syndrome, oh yes!  seizures . Fell pregnant, 3rd baby, Nitrous Oxide, 3 weeks mental hospital pp psychosis. zoloft tegretol.

Feb 1996 ct tegretol, tapered Zoloft 8 weeks. as (unexpectedly)  pregnant. Steven died after 3 days.(Zolft HLHS baby).  98 had run in with Paxil, 2 tablets, 3 weeks taper, survived.
2005..menopause? exhausted again. Zyprexa, mad in three days, fallout....  Seroquel, Effexor, tegretol,   and 8 years of self destruction. Failed taper.
Damn 1/4 valium... nuts again! .fallout, zoloft 100mg  seroquol 400mg mirtazapine 45 mg  tegretol 400mg.  Mid 14 3 month taper. Nov 14 CRASH.
Mid 15 ....   75mg  seroquel,  3 x 1800mg SJW  2 week window end of December followed by 6 week wave
5/2 68mg seroquel, 2.5 x 1800mg SJW::::20/2 61mg seroquel, 2.5 x  SJW::: 26/2 54mg seroquel, 2 x SJW::::21/3 43mg seroquel, 1 x 2700SJW :::: 23/4 36mg seroquel 1 x 1800 SJW
15/5 33mg seroquel, 1 x SJW::::   28/5 30mg seroquel, 1 x SJW::::;  18/6 25mg seroquel 1/2 SJW::::, 11/7 21mg seroquel 1/2 SJW::, 26/7 18mg seroquel 1/2 SJW:::, 9/8 12mg seroquel :::, 16/8 6mg seroquel ;;;;, 12/9 0 jump.

23/9  3mg.....,  27/9 0mg.  Reinstated, 6mg, then 12mg.............  LIGHTBULB MOMENT,  I have  MTHFR 2x mutations.  CFS and issues with MOULD in my home. So I left home, and working 150km away during week, loving it.

Oh was hard, panic attacks first week, gone now, along with the mould issues.

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  • 2 months later...

Is this the right place to write about chemical sensitivities? I am having such a serious problem today, and for a while now. ...  I don't feel the discouragement is from the withdrawal, but from the great chemical and food sensitivity.

.

Unfortunately you are not alone. I also am experiencing MCS after starting Paxil and I don't know if they will end when I get off Paxil.

I think you might have an aspirin allergy so please look into getting an epi pen.

Sage is high in Salicylates.

Benedril has red food dye, try children's dye free.

Hydroxyzine liquid has menthol? /Mint flavoring so white pills are best.

I have found that the Failsafe diet out of Australia helps as does the website salicylatesensitivity.com.

http://www.salicylatesensitivity.com/forum/

http://www.failsafediet.com

Best is

http://www.fedup.com.au/factsheets/support-factsheets/capsaicin-for-management-of-salicylate-intolerance-an-open-trial

You can desensitize (overwhelm pathways ) your body to aspirin by drinking camomile tea, yerba santa or capsaicin.

Look at the aspirin allergy reverse taper / build up schedules to be found by digging through the forums at salicylatesensitivity.com. But please have an Epi Pen.

Also don't go cold turkey on all unsafe foods or it will make your MCS worse.

You might also look into Mast Cell Activation Syndrome.

https://tmsforacure.org/wp-content/uploads/2016-TMS-ER-Protocol-Pages-2.pdf

I assume that all drugs listed as unsafe on all these websites are bad for me.

Try soaking in a small amount of epson salt in water and work your way up to epson salt baths for your sulfur detox pathways,

More later

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  • 1 month later...

Hi everyone. I was just wondering . . .  Does anyone know what the difference is between having Multiple Chemical Sensitivity, versus a hypersensitized nervous system to certain foods, supplements, herbs, medications, etc.?

 

My face gets swollen, puffy, itchy and red whenever I eat certain foods or am around certain scents/chemicals (e.g, my husband’s strong-smelling shampoo and body wash, etc.). Certain chemical smells, foods, and supplements make my chest feel tight and my neck feel very sore. I get rashes from things like my own shampoos I have always used with no problem, or sometimes from my daughter’s baby food if I get some of it on my skin. And, I get rashes/hives/facial swelling/ear pressure from almost any supplement, vitamin, herb, or medication. I don’t know if this is a hypersensitized nervous system, or actual MCS?

 

Thank you in advance to anyone who can help me understand; you are much appreciated!

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  • 3 weeks later...

Elisheba^

 

Thank you for all of the ^information!

zoloft 2004-08 tapered too fast(2 weeks)
Luvox 5/08 100 mg 07/10 40mg via small reductions, 08/10 39mg, 09/10 38mg, 10/10 37mg, 11/10 36mg,2/11 35mg, 5/11 34mg, 8/11 33mg, 11/11 32mg, 01/12 31mg, 03/12 30mg, 4/12 29mg, 5/12 28 mg, 8/12 27 mg, 11/12 26 mg, 1/13 25 mg, 3/13 24 mg, 4/13 23 mg,6/13 22 mg, 7/13 21 mg, 8/13 20mg, 10/13 19 mg, 11/13 18 mg, 12/13 17 mg, 1/14 16 mg, 3/14 13 mg, 9/14 10.9 mg,  1/15 10 mg, 3/15  9 mg,  5/15 8 mg. 11/15 7.12 mg.  4/16  5 mg, 6/16   4.5 mg,  9/16 4.2 mg, 1/17 3.48 mg, 2/17  3.2 mg,  4/17 2.2 mg, 5/17 2.0 mg, 6/17  1.74 mg, 7/17 1.58 mg, 9/17 1.27 mg, 11/17 1.0 mg,  1/18 0.79 mg

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  • 3 weeks later...

I am not sure but have been suffering for 5 years. Neural Dynamic Training and Alkalyzing my system has helped

12 year on Paxil 20mg. Dropped to 5mg a few years before weaning, Was on 5mg weaned over a few months and then went off Aug 15, 2012. Severe withdrawal started Nov 2012 and have been slowly recovering. Have had all physical symptoms especially muscle, immune and food sensitivities!

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Will have to look into "Neural Dynamic Training", sounds interesting.

Dose History: 19 Feb 2014 - Escitalopram 10mg daily June 2015 - Started taper, 5mg every other day July 2015 - 5mg every 2 days August 2015 - 5mg every 3 days September 2015 - 5mg every 4 days Sept 14th - Completed tapering, but at 7 weeks "drug free" I suffered serious WD symptoms as a consequence of "incorrect" tapering. Nov 25 2015 - Re-instated Cipralex @ 2.5mg daily. WD symptoms faded. Held at this dose and experienced "windows and waves". 12 Oct 2017 Reduced dose to 1.25mg. 13 Mar 2018 Reduced dose to 0.625mg (approx.). 16 April 2018 0mg. Windows and waves triggered by stress (IBS/reflux, headaches, sinus issues) Aug 2019 Mirena coil fitted 6 Jan 2020 MAJOR Wave hit 19 months following last dose (protracted WD).  Symptoms listed below Mar 2020 Mirena coil removal.

Therapy: Nov 15th 2016 Re-started therapy Jan 19th 2017 Started CBT Dec 2017 Started listening to Hypnotherapy CD (self-esteem). Nov 2019 Started couples therapy.

Supplements: "Bioglan" Biotic Balance Ultimate Flora 10 billion CFU, live Bacteria, Probiotic, suitable for Vegetarians, with Lactobacillus Acidophilus, Lactobacillus Rhamnosus, Bifidobacterium Longum"Pukka" Vitalise a unique blend of 30 energising botanicals.

Diet: 16 April 2018 Detox cleanse / anti-candida for 90 days. Jan 2020 Started "small plate" diet (i.e child size portions).

Exercise: Stretching, Yoga, Pilates, Spinning, Elliptical/upper body workout, walking.

Medical Test Results: 4 Jan 2017 Homeopathic Treatment starts 24 Feb 2017 Started weight loss program 24 Mar 2017 Naturopathic Treatment + anti-Candida diet started due to suspected Candida Related Complex (CRC). DETOXED for 7 weeks to "re-set" gut. April 2017 "Genova Diagnostics" Comprehensive Stool Analysis NEGATIVE; Full Blood Count (Normal) / Blood Cholesterol: 5.6 (Borderline) / Blood Sugar (Normal) / 28 Jun 2017 FSH 8.2 / 14 Nov 2017 FSH 17.7 Dec 2017 Blood Cholesterol: 3.9 (Normal) / Kidney Function (Normal) / Blood Sugar (Normal). December 2017 "Genova Diagnostics" Food panel allergy (bloodwork) analysis - a few "VERY LOW/VL" allergens; Mar 2018 "Genova Diagnostics" SIBO urine analysis: High Level of Yeast/fungal markers found in small intestine but NO SIBO.  April 2018 Thyroid (Normal) / Full Blood Count (Normal) / FSH (Normal). 16 April 2018 Started anti-Candida diet - 3 month protocol.   25 March 2020 All test results "Normal". CRP" 5 mg/L (normal range to 0-5 mg/L).

Symptoms:  Flu-like symptoms, anxiety, anhedonia, sinus headaches right-side (severe), IBS issues/reflux (severe)**, tinnitus, fatigue, inner tremor, nausea, chills/hot flushes, pounding heart, muscular issues including stiff left hip flexor, intense anger, PSSD (ongoing).  **Histhamine intolerance (suspected).

Major Life Events: 

Re-located to UK from Canada: Jan 2016

My father died: 5:05pm, Monday 5 Feb 2018 Last Lexapro dose: 16 April 2018 (its now been over a year since I quit ADs)  Moved house: Friday 23rd February 2018  "Divorced" toxic Mother: Monday 26 March 2018 Starting working again: 19 November 2018  Diagnosed with: 5th August 2021 PTSD/C-PTSD Diagnosed with: March 2022 Interstitial Cystitis (IC)/Painful bladder syndrome

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In my experience, some foods, especially the ones high in glutammate, seem to stimulate my nervous system more than others. 

Not to mention salty ones and refined sugars! 

I'm not allergic to anything but I just seem to be sensitive... I've been suggested to avoid milk proteins as well as gluten, and I think I'll definitely stick to such a diet! I don't know about alcohol and caffeine because I had extreme reactions to them before taking my first drug ever, so it wouldn't be wise to try now... Caffeine would make me hyper aroused and alcohol almost ineffective.

 

I don't seem to have issues with chemical products. 

Klonopin (4th April 2016-28th September 2016) for a relentless insomnia caused by an adverse reaction to Levofloxacin (25th - 29th March 2016). I tried other benzos for a couple of days but they were ineffective (Xanax, Halcion, Ambien).

Trazodone (Since June 2016, up to 80 mg/day at night time). Seroquel instant relapse (25 mg, first August-September 2016. Another try, 25 mgs before and 17.75 mg then, from January to present). I take both at night time.

Seroquel XR (a tiny 50 mg) proved to be ineffective.

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  • 4 weeks later...

Hi, I was just after some advice and reassurance about the latest group of symptoms that seem to be harassing me. Since I settled on 20mg 6 or so weeks ago after 6-7 months of rapid taper (6 weeks), massive re-instatement (40mg), and not so gradual taper again to 20mg again, I'm on a symptom merry go round. Basically, after reinstating at 20mg I have been suffering physical symptoms again. I have a clenched jaw a lot, headaches, tingling in my fingers. But what is scaring me the most is i have developed chemical sensitivities. Mainly to perfume, deodorant etc. However, I have also starting thinking I started itching when Im in the sea, in my wetsuit. As a kayaking instructor who is doing his best to work through this hell this is scaring me to hell! This sensitivity is new to me, I've suffered from allergies in the past, but no reactions to chemicals etc. I read the "killing me softly" paper and that scares me even more about how this is because of the death of a part of the brain! But, Ive also read posts from people on BenzoBuddies who have had this sort of thing as a symptom that has resolved with time, like Im clinging onto the hope that these myriad of cognitive symptoms will!

 

I really would like to hear from anyone who has had this sensitivity that has then resolved with time. You wouldn't have thought I was a completely rational health man and adventure sports instructor this time last year before my bloody doctor, who I trusted, said come off these things over 6 weeks! What is also so hard to get my head around is my parents advised me to go on these things when I was 17 because i was suffering from some paranoia / anxiety after chronic cannabis smoking as a teenager. I blame them massively for not warning me (a 15 year old kid) that smoking weed could cause me to be on this road for the rest of my life! Then, even though they knew I was a reactive kid (allergies to pulses, lentils, vinegar etc) and a strange histomine system they let the docs put me on these F*cking pills (paxil).

 

The doc's even tried to put me on an anti-psychotic which my body rejected violently with facial spasmodia, even then no-one warned this poor kid that these pills can mess you right up. Then fast forward 17 years and as I've had no adverse reactions to these pills ever, and been symptom free and recovered for 17 years I ask the docs advice about coming off them, and ask my parents advice about the whole coming off them thing. That in my mind was 2 control measures (things that control risk) against the hazard of messing up coming off them, and making a bad decision. Little did I know my doc would be a pharma puppet, but I expected my parents to have my back in this. It's the only time in my life I've asked for help and the people I trusted the most completely failed me, not through lack of love etc, but by not researching, asking peers, and basically having the common sense that a 15 year old cannot be expected to have! Especially after they lived through Thalidomide etc. I have always been so close to my parents, but this is ripping us apart as I don't want to see them. So what I am going through is hell, and I'm loosing my family too. This is truly shi*e!

Edited by scallywag
merged topics

Intro - 

  • On Paroxetine (Paxil / Seroxat) 20mg since 1999 (age 18). Tapered off over 8 weeks on Dr's advice 2016 - Crashed massively (acute withdrawal) September '16 and reinstated on doc's advice. Found this site and started getting real answers! Currently doing a very slow withdrawal. 

 

Taper progress - 

  • September '16 - 40mg / December'16 - 30mg / Feb '17 - 20 mg / March '17 - 18mg / April '17 - 15mg - became paranoid / May '17-  upped dose to 20mg (kindled - developed chemical sensitivities and neuropathy in legs). 2 month hold. July '17 - 19.5mg / Aug'17 - 18.5mgSept '17 - 17.5mg / October '17 - 17mg / Nov '17 - 16mg / Dec '17 - 15.5mg / Jan '18 - hold / Feb '18 - 14.5mg / April '18 - 13mg / June '18 - 11.5mg / Aug '18 - 10mg (half way hold of approx 2 months) / Nov '18 - 9mg / Dec '18 - 8mg. (tapering too fast, having anxiety / paranoia, so having a 6 week extra hold) / April 19 - still holding at approx 7.5mg

 

Points of interest - 

  • Average seroxat 20mg pill weights 0.355g 
  • Using AWS Gemini 20 scales (seem reasonable for about £20)
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On 26/04/2017 at 0:16 PM, Daisies24 said:

Hi everyone. I was just wondering . . .  Does anyone know what the difference is between having Multiple Chemical Sensitivity, versus a hypersensitized nervous system to certain foods, supplements, herbs, medications, etc.?

 

My face gets swollen, puffy, itchy and red whenever I eat certain foods or am around certain scents/chemicals (e.g, my husband’s strong-smelling shampoo and body wash, etc.). Certain chemical smells, foods, and supplements make my chest feel tight and my neck feel very sore. I get rashes from things like my own shampoos I have always used with no problem, or sometimes from my daughter’s baby food if I get some of it on my skin. And, I get rashes/hives/facial swelling/ear pressure from almost any supplement, vitamin, herb, or medication. I don’t know if this is a hypersensitized nervous system, or actual MCS?

 

Thank you in advance to anyone who can help me understand; you are much appreciated!

Hi daisies, how are you getting on with this? Did it start straight away with you or come later? 

Intro - 

  • On Paroxetine (Paxil / Seroxat) 20mg since 1999 (age 18). Tapered off over 8 weeks on Dr's advice 2016 - Crashed massively (acute withdrawal) September '16 and reinstated on doc's advice. Found this site and started getting real answers! Currently doing a very slow withdrawal. 

 

Taper progress - 

  • September '16 - 40mg / December'16 - 30mg / Feb '17 - 20 mg / March '17 - 18mg / April '17 - 15mg - became paranoid / May '17-  upped dose to 20mg (kindled - developed chemical sensitivities and neuropathy in legs). 2 month hold. July '17 - 19.5mg / Aug'17 - 18.5mgSept '17 - 17.5mg / October '17 - 17mg / Nov '17 - 16mg / Dec '17 - 15.5mg / Jan '18 - hold / Feb '18 - 14.5mg / April '18 - 13mg / June '18 - 11.5mg / Aug '18 - 10mg (half way hold of approx 2 months) / Nov '18 - 9mg / Dec '18 - 8mg. (tapering too fast, having anxiety / paranoia, so having a 6 week extra hold) / April 19 - still holding at approx 7.5mg

 

Points of interest - 

  • Average seroxat 20mg pill weights 0.355g 
  • Using AWS Gemini 20 scales (seem reasonable for about £20)
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Thanks for the helpful responses. I ordered those Neural Dynamic Training DVDs, and I will keep working on changing my diet.

 

DaveWales, my hypersensitivities began about 3 months after I stopped Prozac CT. I read your intro thread where you said you seem to be allergic to the sea--oddly, I am on vacation in Florida right now, and I, too, have become allergic to the ocean water! 

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I am not sure there is any difference as they seem to be the same thing to me just ones seems to come first.. the other later or I noticed the hypersensitivity first... as it was more obvious to me.  The chemical thing I would have a shower and have to go to bed to recover .. my eye would be red like I had shampoo in them and I was so very careful to keep soap far from my eye... I would put on deoderant and feel confused... only after I was in the later stages did the deoderant bother me.. only after years of not wanting to shower or showering only when I could go to bed after..then cleaners made me sick really sick previously they just made me nauseated or feel dizzy or confused... it all snowballed food had been a problem early on water mellon walnuts... I thought I had got over that... but later food problems came back big... mouth blisters extreme gastro issues... it showballs they call it spreading as with mcs it starts out slow and if it is ignored it spreads to more and more reactions to more and more things and it really sucks. 

 

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

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On 04/07/2017 at 4:08 AM, Daisies24 said:

Thanks for the helpful responses. I ordered those Neural Dynamic Training DVDs, and I will keep working on changing my diet.

 

DaveWales, my hypersensitivities began about 3 months after I stopped Prozac CT. I read your intro thread where you said you seem to be allergic to the sea--oddly, I am on vacation in Florida right now, and I, too, have become allergic to the ocean water! 

Hi dasies, what do you mean? I get slightly itchy skin, maybe, the jury's out at the moment. It could have been my wetsuit, but time will tell i guess. I'm so scared at the moment as my job involves going in the sea. How are you doing ?

Intro - 

  • On Paroxetine (Paxil / Seroxat) 20mg since 1999 (age 18). Tapered off over 8 weeks on Dr's advice 2016 - Crashed massively (acute withdrawal) September '16 and reinstated on doc's advice. Found this site and started getting real answers! Currently doing a very slow withdrawal. 

 

Taper progress - 

  • September '16 - 40mg / December'16 - 30mg / Feb '17 - 20 mg / March '17 - 18mg / April '17 - 15mg - became paranoid / May '17-  upped dose to 20mg (kindled - developed chemical sensitivities and neuropathy in legs). 2 month hold. July '17 - 19.5mg / Aug'17 - 18.5mgSept '17 - 17.5mg / October '17 - 17mg / Nov '17 - 16mg / Dec '17 - 15.5mg / Jan '18 - hold / Feb '18 - 14.5mg / April '18 - 13mg / June '18 - 11.5mg / Aug '18 - 10mg (half way hold of approx 2 months) / Nov '18 - 9mg / Dec '18 - 8mg. (tapering too fast, having anxiety / paranoia, so having a 6 week extra hold) / April 19 - still holding at approx 7.5mg

 

Points of interest - 

  • Average seroxat 20mg pill weights 0.355g 
  • Using AWS Gemini 20 scales (seem reasonable for about £20)
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To me, whenever I feel itchy from something, I just tend to call it being "allergic," so I apologize if that is not the right word to use. Also, I may not have remembered what I read on your thread correctly. Regardless, I do also get itchy skin now when I am in the ocean, which I never got before. It is bothersome enough that this time I didn't really want to go swimming in the ocean, which I normally love more than anything! I am sorry that you experiencing this; hopefully whatever is causing the itchy skin is something that will go away in time.

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On 06/07/2017 at 1:32 PM, Daisies24 said:

To me, whenever I feel itchy from something, I just tend to...

Hi dasies, im sorry to hear about this for you too. Im really struggling at the moment with tasting chemicals, and some rashes. Has this improved for you? What did you do? Please tell me more about ur journey. Regards dave 

Intro - 

  • On Paroxetine (Paxil / Seroxat) 20mg since 1999 (age 18). Tapered off over 8 weeks on Dr's advice 2016 - Crashed massively (acute withdrawal) September '16 and reinstated on doc's advice. Found this site and started getting real answers! Currently doing a very slow withdrawal. 

 

Taper progress - 

  • September '16 - 40mg / December'16 - 30mg / Feb '17 - 20 mg / March '17 - 18mg / April '17 - 15mg - became paranoid / May '17-  upped dose to 20mg (kindled - developed chemical sensitivities and neuropathy in legs). 2 month hold. July '17 - 19.5mg / Aug'17 - 18.5mgSept '17 - 17.5mg / October '17 - 17mg / Nov '17 - 16mg / Dec '17 - 15.5mg / Jan '18 - hold / Feb '18 - 14.5mg / April '18 - 13mg / June '18 - 11.5mg / Aug '18 - 10mg (half way hold of approx 2 months) / Nov '18 - 9mg / Dec '18 - 8mg. (tapering too fast, having anxiety / paranoia, so having a 6 week extra hold) / April 19 - still holding at approx 7.5mg

 

Points of interest - 

  • Average seroxat 20mg pill weights 0.355g 
  • Using AWS Gemini 20 scales (seem reasonable for about £20)
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  • 2 months later...
On 03/06/2017 at 0:04 PM, Junglechicken said:

Will have to look into "Neural Dynamic Training", sounds interesting.

Please be careful with these treatments as I had 2 sessions of EMDR therapy and became very unwell with severe head symptoms, stomach pain, nausea, heightened sensitivity to smell and feeling of impending doom. My therapist stopped treatment and told me to see a neurologist who found nothing so it damage from prozac I believe. Just be careful with what you try as what helps one person can be damaging for another. And I know we all keep searching for a cure, unfortunately for me it has went wrong. All the best

Prozac for 18years with break in 1999 for pregnancy. Started to feel unwell with numerous problems 2015 and think I was in a tolerance to drug. Started to come off May 2016 and by June 2016 wasn't able to tolerate any medications at all. Was on Lansoprazole as and when need from 2001 but haven't had to take and wldnt have been able to take since June 2016

 

GP gave sertraline 25mg 6/04/17 loss of appetite, gut pain and then following morning whole body shaking and vomiting. Stopped tablet.

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I never got around to looking into it Bluebird, but thank you for the heads up.

 

Best,

JC

Dose History: 19 Feb 2014 - Escitalopram 10mg daily June 2015 - Started taper, 5mg every other day July 2015 - 5mg every 2 days August 2015 - 5mg every 3 days September 2015 - 5mg every 4 days Sept 14th - Completed tapering, but at 7 weeks "drug free" I suffered serious WD symptoms as a consequence of "incorrect" tapering. Nov 25 2015 - Re-instated Cipralex @ 2.5mg daily. WD symptoms faded. Held at this dose and experienced "windows and waves". 12 Oct 2017 Reduced dose to 1.25mg. 13 Mar 2018 Reduced dose to 0.625mg (approx.). 16 April 2018 0mg. Windows and waves triggered by stress (IBS/reflux, headaches, sinus issues) Aug 2019 Mirena coil fitted 6 Jan 2020 MAJOR Wave hit 19 months following last dose (protracted WD).  Symptoms listed below Mar 2020 Mirena coil removal.

Therapy: Nov 15th 2016 Re-started therapy Jan 19th 2017 Started CBT Dec 2017 Started listening to Hypnotherapy CD (self-esteem). Nov 2019 Started couples therapy.

Supplements: "Bioglan" Biotic Balance Ultimate Flora 10 billion CFU, live Bacteria, Probiotic, suitable for Vegetarians, with Lactobacillus Acidophilus, Lactobacillus Rhamnosus, Bifidobacterium Longum"Pukka" Vitalise a unique blend of 30 energising botanicals.

Diet: 16 April 2018 Detox cleanse / anti-candida for 90 days. Jan 2020 Started "small plate" diet (i.e child size portions).

Exercise: Stretching, Yoga, Pilates, Spinning, Elliptical/upper body workout, walking.

Medical Test Results: 4 Jan 2017 Homeopathic Treatment starts 24 Feb 2017 Started weight loss program 24 Mar 2017 Naturopathic Treatment + anti-Candida diet started due to suspected Candida Related Complex (CRC). DETOXED for 7 weeks to "re-set" gut. April 2017 "Genova Diagnostics" Comprehensive Stool Analysis NEGATIVE; Full Blood Count (Normal) / Blood Cholesterol: 5.6 (Borderline) / Blood Sugar (Normal) / 28 Jun 2017 FSH 8.2 / 14 Nov 2017 FSH 17.7 Dec 2017 Blood Cholesterol: 3.9 (Normal) / Kidney Function (Normal) / Blood Sugar (Normal). December 2017 "Genova Diagnostics" Food panel allergy (bloodwork) analysis - a few "VERY LOW/VL" allergens; Mar 2018 "Genova Diagnostics" SIBO urine analysis: High Level of Yeast/fungal markers found in small intestine but NO SIBO.  April 2018 Thyroid (Normal) / Full Blood Count (Normal) / FSH (Normal). 16 April 2018 Started anti-Candida diet - 3 month protocol.   25 March 2020 All test results "Normal". CRP" 5 mg/L (normal range to 0-5 mg/L).

Symptoms:  Flu-like symptoms, anxiety, anhedonia, sinus headaches right-side (severe), IBS issues/reflux (severe)**, tinnitus, fatigue, inner tremor, nausea, chills/hot flushes, pounding heart, muscular issues including stiff left hip flexor, intense anger, PSSD (ongoing).  **Histhamine intolerance (suspected).

Major Life Events: 

Re-located to UK from Canada: Jan 2016

My father died: 5:05pm, Monday 5 Feb 2018 Last Lexapro dose: 16 April 2018 (its now been over a year since I quit ADs)  Moved house: Friday 23rd February 2018  "Divorced" toxic Mother: Monday 26 March 2018 Starting working again: 19 November 2018  Diagnosed with: 5th August 2021 PTSD/C-PTSD Diagnosed with: March 2022 Interstitial Cystitis (IC)/Painful bladder syndrome

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  • Altostrata changed the title to Multiple Chemical Sensitivity vs hypersensitized nervous system
  • 5 years later...

I wonder if anyone has realized something like that. But it's meaningful to check other observations.

 

According to my observations, I realized that since I stopped taking drugs I have strong sensitivity to any kind of toxins. It's not just an idea suddenly arised in my head. I was being watchful for years.

 

I say that drugs caused my hypersensitivity to toxins and now as soon as I am exposed, my WD symptoms are awakened.

 

I heard that people in WD process are sensitive to caffeine, perfumes, artificial sweeteners and so on. But in my case it seems so extreme. I am sensitive to literary everything: pesticides, plastic, mold, wool, chlorine, cleaning fluids, even natural toxins, say glycoalkaloids from nightshades. In the moment when I am exposed, my symptoms are manifested big time. The hardest thing for me is eat something. I do the first bite and then - click!, I am out. My heart starts beating faster, all my muscles are jerked, I got upset stomach and get bloated, it's harder to swallow food for me, I start shaking, I start breathing more shortly (Years ago I would be a panic attack.), I got brain fog and I got something like inner akathisia - my mind can't be focused on one thing, it is just jumping from one object to another.

 

It is similar if there is another way. I step into the moldy room or in the room where chlorine was used and click!, I am out.

 

On the other hand, since I eat organic food i feel better and I when spend more time outside, where air is more fresh (less toxins), I start feeling better.

 

I don't have any food allergies. It's all about toxicity.  As soon as I exposed, my whole nervous system is out of control. It seems like if I could lived in a fictive totally toxic free vacuum, I wouldn't have any WD symptoms. But it is just any allegory.

 

Has anyone seen something similar?

2009-2010: Asentra (50 mg)

2011: Cipralex (10 mg)

2009-2011: tried Zyprexa (5/2.5mg), Kventiax  (50/25mg) and Abilify (low dosage) (started refusing it - being zombie)

2012-2016: Prozac (60 mg)

2016-2017: Alventa (75 mg)

2016: just tried Cymbalta and Ludiomil

2017-2019: Mirtazapine (30/45mg)

2012-2018: Wellbutrine (300 mg)

2014-2018: Lamotrigine (50/100/150 mg)

Supplements: B12, D, Mg

 

I know I wrote a lot of nonsense here. I'm sorry, I feel shamed!

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Administrator, thanks for moving the topic here. Now I can really see the answers. Sorry, I didn't find it by myself.

2009-2010: Asentra (50 mg)

2011: Cipralex (10 mg)

2009-2011: tried Zyprexa (5/2.5mg), Kventiax  (50/25mg) and Abilify (low dosage) (started refusing it - being zombie)

2012-2016: Prozac (60 mg)

2016-2017: Alventa (75 mg)

2016: just tried Cymbalta and Ludiomil

2017-2019: Mirtazapine (30/45mg)

2012-2018: Wellbutrine (300 mg)

2014-2018: Lamotrigine (50/100/150 mg)

Supplements: B12, D, Mg

 

I know I wrote a lot of nonsense here. I'm sorry, I feel shamed!

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  • 3 weeks later...
On 11/6/2023 at 2:05 AM, Prozack said:

I wonder if anyone has realized something like that. But it's meaningful to check other observations.

 

According to my observations, I realized that since I stopped taking drugs I have strong sensitivity to any kind of toxins. It's not just an idea suddenly arised in my head. I was being watchful for years.

 

I say that drugs caused my hypersensitivity to toxins and now as soon as I am exposed, my WD symptoms are awakened.

 

I heard that people in WD process are sensitive to caffeine, perfumes, artificial sweeteners and so on. But in my case it seems so extreme. I am sensitive to literary everything: pesticides, plastic, mold, wool, chlorine, cleaning fluids, even natural toxins, say glycoalkaloids from nightshades. In the moment when I am exposed, my symptoms are manifested big time. The hardest thing for me is eat something. I do the first bite and then - click!, I am out. My heart starts beating faster, all my muscles are jerked, I got upset stomach and get bloated, it's harder to swallow food for me, I start shaking, I start breathing more shortly (Years ago I would be a panic attack.), I got brain fog and I got something like inner akathisia - my mind can't be focused on one thing, it is just jumping from one object to another.

 

It is similar if there is another way. I step into the moldy room or in the room where chlorine was used and click!, I am out.

 

On the other hand, since I eat organic food i feel better and I when spend more time outside, where air is more fresh (less toxins), I start feeling better.

 

I don't have any food allergies. It's all about toxicity.  As soon as I exposed, my whole nervous system is out of control. It seems like if I could lived in a fictive totally toxic free vacuum, I wouldn't have any WD symptoms. But it is just any allegory.

 

Has anyone seen something similar?


I am sensitive to so far chemicals, perfumes, cleaning products, the smell of weed. It is very scary. Just today my sister used Lysol wipes in her room, I passed by her room her door was open (I wasn’t even in her room!!)I smelt it & got heart Papalations. I ran into my room. You’re not alone @Prozack in a bad wave im extra sensitive to noise, screens, lights & smells.

 

 

April 2022- Only 1 celxa pill 10mg

had an adverse reaction & never took anymore again 

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On 8/22/2013 at 12:35 AM, Rhiannon said:

Alex, I have chemical and fragrance sensitivities. I use a mask sometimes and use a pricey air filter and plants in my home, and definitely avoid fragrances and new construction stuff and other noxious chemicals as much as possible. I discovered when I moved to Oregon that there are more stringent standards here for volatile organics than where I was living before, which is nice.

 

The other thing that has helped (actually the thing that's helped the most) is the Gupta limbic retraining program. I didn't really do it full-on but even the little bit I did relieved my problems enough so that they don't limit my life the way they used to, and also they have quit getting worse. I don't seem to be getting any new ones, and before I was picking up new sensitivities pretty often.

 

The sensitivities haven't gone away completely, but they don't prevent me from being able to do things I want to do any more.

 

I talk about the Gupta program in the limbic retraining thread. I don't really have anything new to say about that. 

 

I have no idea if any of this would apply to your situation, but I do know that it's not unusual for people to develop chemical sensitivities after mold exposure. 


Had your chemical sensitivity gone away yet?? @Rhiannon I’m struggling with this & so scared as I am reacting to smells

April 2022- Only 1 celxa pill 10mg

had an adverse reaction & never took anymore again 

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  • Mentor
47 minutes ago, peaceandlove said:

You’re not alone @Prozack in a bad wave im extra sensitive to noise, screens, lights & smells.

Me too!!!! Sometimes the wrong lighting or a screen in the background of a room will bring on a headache or anxiety. So much more sensitive with less chemicals clouding our senses, I guess?

Pronouns: they/them/theirs 

Started on Prozac in early 2000s to treat cPTSD, been on various cocktails ever since.

2002-2004, 2017-2022: Buspar, tapered down to 0

2016-present: 100mg Seroquel for sleep -> May 2023: 90mg -> June 2023: 81mg -> September 2023: 72mg -> switched to brand name, much too strong, down to 60mg -> October 2023: 54mg -> November 2023: 50mg -> January 2024: 45mg

2016-Present: 100mg Wellbutrin SR -> January 2023: 75mg IR (37.5mg 2x a day) -> February 2023 (33.75mg 2x a day) -> July 2023 (30.37mg 2x a day) -> August 2023: 27.33mg 2x a day 

2018-present: 25mg Pristiq

2015-present: 600mg Gabapentin (200mg 3x a day) -> December 2022: 300mg Gabapentin (100mg 3x a day) per GP's recommendation after side effects -> March 2023: 90mg 3x a day (switched to liquid suspension) -> April 2023: 81mg 3x a day -> September 2023: bad generic, switched back to homemade liquid; too strong after bad generic, down to 70mg 3x a day, still bad. Adjusted slowly till at 60mg 3x a day, much better. Long hold till -> December 2023: 54mg, still feels too high after November Seroquel switch from brand name to generic, doc recommended 50mg which feels better -> January 2024: When Wellbutrin went down, Gabapentin started putting me to sleep, went down to 45mg, then 41mg to stay awake, so far so good -> February 2024: 36mg

Supplements: Multivitamin w/magnesium, probiotics, digestive enzymes, anti-viral nitric oxide nose spray as needed

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  • Mentor

As if to drive the point home, a neighbor started doing dishes and it was like the cutlery and glass was rattling inside my skull. Maybe one day I'll live in a peaceful place!

Pronouns: they/them/theirs 

Started on Prozac in early 2000s to treat cPTSD, been on various cocktails ever since.

2002-2004, 2017-2022: Buspar, tapered down to 0

2016-present: 100mg Seroquel for sleep -> May 2023: 90mg -> June 2023: 81mg -> September 2023: 72mg -> switched to brand name, much too strong, down to 60mg -> October 2023: 54mg -> November 2023: 50mg -> January 2024: 45mg

2016-Present: 100mg Wellbutrin SR -> January 2023: 75mg IR (37.5mg 2x a day) -> February 2023 (33.75mg 2x a day) -> July 2023 (30.37mg 2x a day) -> August 2023: 27.33mg 2x a day 

2018-present: 25mg Pristiq

2015-present: 600mg Gabapentin (200mg 3x a day) -> December 2022: 300mg Gabapentin (100mg 3x a day) per GP's recommendation after side effects -> March 2023: 90mg 3x a day (switched to liquid suspension) -> April 2023: 81mg 3x a day -> September 2023: bad generic, switched back to homemade liquid; too strong after bad generic, down to 70mg 3x a day, still bad. Adjusted slowly till at 60mg 3x a day, much better. Long hold till -> December 2023: 54mg, still feels too high after November Seroquel switch from brand name to generic, doc recommended 50mg which feels better -> January 2024: When Wellbutrin went down, Gabapentin started putting me to sleep, went down to 45mg, then 41mg to stay awake, so far so good -> February 2024: 36mg

Supplements: Multivitamin w/magnesium, probiotics, digestive enzymes, anti-viral nitric oxide nose spray as needed

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19 minutes ago, littlebird said:

Me too!!!! Sometimes the wrong lighting or a screen in the background of a room will bring on a headache or anxiety. So much more sensitive with less chemicals clouding our senses, I guess?


Yes & anything with flashing lights like a video of a concert or on effects on tv will feel like a shock through my body like I got electrocuted. Yes, I’ve had that too a loud dish dropping will actually feel so intense to me. If I’m by a window & car passes by i can feel it in my body it’s insane 
 

The sensitivity to smell is what scares me the most because I cannot control what people spray. My orthodontist has multiple scented air plugs in the wall, I go out to eat & the waiter cleans the table with chemicals, someone I pass by is wearing perfume etc. makes me feel like I just have to stay home 

 

im sorry your experiencing this too. It makes life difficult. I hoping it’ll go away in some years for the both of us @littlebird 💕

April 2022- Only 1 celxa pill 10mg

had an adverse reaction & never took anymore again 

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  • Mentor
35 minutes ago, peaceandlove said:

The sensitivity to smell is what scares me the most because I cannot control what people spray. My orthodontist has multiple scented air plugs in the wall, I go out to eat & the waiter cleans the table with chemicals, someone I pass by is wearing perfume etc. makes me feel like I just have to stay home 

I know what you mean! It makes me wonder if some of these are as toxic as they smell and we're just more sensitive to the effects? So sorry to hear it's making you want to stay home, which can be hard on a person too. Masking has been helping a lot, which attracts looks sometimes, but whatever.

 

Has the sensitivity developed or worsened since tapering?

Pronouns: they/them/theirs 

Started on Prozac in early 2000s to treat cPTSD, been on various cocktails ever since.

2002-2004, 2017-2022: Buspar, tapered down to 0

2016-present: 100mg Seroquel for sleep -> May 2023: 90mg -> June 2023: 81mg -> September 2023: 72mg -> switched to brand name, much too strong, down to 60mg -> October 2023: 54mg -> November 2023: 50mg -> January 2024: 45mg

2016-Present: 100mg Wellbutrin SR -> January 2023: 75mg IR (37.5mg 2x a day) -> February 2023 (33.75mg 2x a day) -> July 2023 (30.37mg 2x a day) -> August 2023: 27.33mg 2x a day 

2018-present: 25mg Pristiq

2015-present: 600mg Gabapentin (200mg 3x a day) -> December 2022: 300mg Gabapentin (100mg 3x a day) per GP's recommendation after side effects -> March 2023: 90mg 3x a day (switched to liquid suspension) -> April 2023: 81mg 3x a day -> September 2023: bad generic, switched back to homemade liquid; too strong after bad generic, down to 70mg 3x a day, still bad. Adjusted slowly till at 60mg 3x a day, much better. Long hold till -> December 2023: 54mg, still feels too high after November Seroquel switch from brand name to generic, doc recommended 50mg which feels better -> January 2024: When Wellbutrin went down, Gabapentin started putting me to sleep, went down to 45mg, then 41mg to stay awake, so far so good -> February 2024: 36mg

Supplements: Multivitamin w/magnesium, probiotics, digestive enzymes, anti-viral nitric oxide nose spray as needed

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1 hour ago, littlebird said:

I know what you mean! It makes me wonder if some of these are as toxic as they smell and we're just more sensitive to the effects? So sorry to hear it's making you want to stay home, which can be hard on a person too. Masking has been helping a lot, which attracts looks sometimes, but whatever.

 

Has the sensitivity developed or worsened since tapering?


That is a good question, I definitely think those smells are toxic in the first place but since we’re way more sensitive it affects us more. 


& im not tapering lol. I’m an adverse reaction case where the symptoms hit hard & all at once. Similar to a cold turkey pretty much. I took the pill & it caused akathisia & all the other withdrawal symptoms the very next day. I go through waves & windows. Where the same symptoms come & go

@littlebird how about you?

April 2022- Only 1 celxa pill 10mg

had an adverse reaction & never took anymore again 

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  • Mentor
2 hours ago, peaceandlove said:

& im not tapering lol. I’m an adverse reaction case where the symptoms hit hard & all at once.

Oh sorry, didn't read the signature! Yikes, so sorry to hear you were thrown that hard. Celexa is a beast, didn't enjoy that one. 

 

2 hours ago, peaceandlove said:

I go through waves & windows. Where the same symptoms come & go

Feels like more waves than windows, but I have some glimmers of hope. Just gotta keep pushing!

Pronouns: they/them/theirs 

Started on Prozac in early 2000s to treat cPTSD, been on various cocktails ever since.

2002-2004, 2017-2022: Buspar, tapered down to 0

2016-present: 100mg Seroquel for sleep -> May 2023: 90mg -> June 2023: 81mg -> September 2023: 72mg -> switched to brand name, much too strong, down to 60mg -> October 2023: 54mg -> November 2023: 50mg -> January 2024: 45mg

2016-Present: 100mg Wellbutrin SR -> January 2023: 75mg IR (37.5mg 2x a day) -> February 2023 (33.75mg 2x a day) -> July 2023 (30.37mg 2x a day) -> August 2023: 27.33mg 2x a day 

2018-present: 25mg Pristiq

2015-present: 600mg Gabapentin (200mg 3x a day) -> December 2022: 300mg Gabapentin (100mg 3x a day) per GP's recommendation after side effects -> March 2023: 90mg 3x a day (switched to liquid suspension) -> April 2023: 81mg 3x a day -> September 2023: bad generic, switched back to homemade liquid; too strong after bad generic, down to 70mg 3x a day, still bad. Adjusted slowly till at 60mg 3x a day, much better. Long hold till -> December 2023: 54mg, still feels too high after November Seroquel switch from brand name to generic, doc recommended 50mg which feels better -> January 2024: When Wellbutrin went down, Gabapentin started putting me to sleep, went down to 45mg, then 41mg to stay awake, so far so good -> February 2024: 36mg

Supplements: Multivitamin w/magnesium, probiotics, digestive enzymes, anti-viral nitric oxide nose spray as needed

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@peaceandlove And, if I understand correctly, all this happened to you just after taking one single dose of Celexa? 

 

@peaceandlove and @littlebird What about food by itself? Do you feel chemically destabilized after a meal.

2009-2010: Asentra (50 mg)

2011: Cipralex (10 mg)

2009-2011: tried Zyprexa (5/2.5mg), Kventiax  (50/25mg) and Abilify (low dosage) (started refusing it - being zombie)

2012-2016: Prozac (60 mg)

2016-2017: Alventa (75 mg)

2016: just tried Cymbalta and Ludiomil

2017-2019: Mirtazapine (30/45mg)

2012-2018: Wellbutrine (300 mg)

2014-2018: Lamotrigine (50/100/150 mg)

Supplements: B12, D, Mg

 

I know I wrote a lot of nonsense here. I'm sorry, I feel shamed!

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1 hour ago, Prozack said:

@peaceandlove And, if I understand correctly, all this happened to you just after taking one single dose of Celexa? 

 

@peaceandlove and @littlebird What about food by itself? Do you feel chemically destabilized after a meal.

 The generic brand of celxa called “citorplarm” or however you spell it, yes.

 

food can cause a slight anxiety reaction for me yes. This symptom has gone away for me tho & come back. @littlebird

April 2022- Only 1 celxa pill 10mg

had an adverse reaction & never took anymore again 

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@peaceandlove So "celxa" called “citorplarm” - these are code words, you are censoring yourself? Why?

2009-2010: Asentra (50 mg)

2011: Cipralex (10 mg)

2009-2011: tried Zyprexa (5/2.5mg), Kventiax  (50/25mg) and Abilify (low dosage) (started refusing it - being zombie)

2012-2016: Prozac (60 mg)

2016-2017: Alventa (75 mg)

2016: just tried Cymbalta and Ludiomil

2017-2019: Mirtazapine (30/45mg)

2012-2018: Wellbutrine (300 mg)

2014-2018: Lamotrigine (50/100/150 mg)

Supplements: B12, D, Mg

 

I know I wrote a lot of nonsense here. I'm sorry, I feel shamed!

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On 4/26/2017 at 7:16 AM, Daisies24 said:

Hi everyone. I was just wondering . . .  Does anyone know what the difference is between having Multiple Chemical Sensitivity, versus a hypersensitized nervous system to certain foods, supplements, herbs, medications, etc.?

 

My face gets swollen, puffy, itchy and red whenever I eat certain foods or am around certain scents/chemicals (e.g, my husband’s strong-smelling shampoo and body wash, etc.). Certain chemical smells, foods, and supplements make my chest feel tight and my neck feel very sore. I get rashes from things like my own shampoos I have always used with no problem, or sometimes from my daughter’s baby food if I get some of it on my skin. And, I get rashes/hives/facial swelling/ear pressure from almost any supplement, vitamin, herb, or medication. I don’t know if this is a hypersensitized nervous system, or actual MCS?

 

Thank you in advance to anyone who can help me understand; you are much appreciated!

Ouch. I can relate. Almost everything with chemicals in the food would cause me majar issues but not rashes. Its calmed down though. 

 

But meeting with a pastor to help with spiritual issues helped me immensely whereas before i would just end up in the hospital every month or so. 

 

I think it was a combination of this and other things like herbal powders that are helping me right now. 

https://friendsforpeers.angelfire.com/Index.html - my website and discord server

Zyprexa (not sure what mg) But got off after a month of being put on in hospital. early 2007 Respirodol (experienced ackathesia so got off in 4 - 6 months from a 6mg dose) Later 2007 tried Seroquel but got offbecause didn't like it.  Later 2007 tried Abilify but had ackathesia, got off2008 - 2015 Unmedicated but on Serequel 800mg when hospitalized   Later 2015 - Unmedicated but put on Prolixyn when hospitalized (Had very uncomfortable stiffness so got off immediately when out of hospital)2016 Unmedicated but put on Haldol when hospitalized (caused Seizures and stiffness couldn't lay down for 3 days until taken off) Later 2016Tried Zyprexa irregular dosesEarly 2017 Put on Zyprexa 15mg stayed on 15 mg until 2020 January 2020 Zyprexa 15mg didn't seem to be working so increased to Zyprexa 20mgOctober - December 2020 Reduced Zyprexa from 20 mg to 15mg to 10mg to 7.5mg to 5mg to 2.5mg. Hospitalized January 1st 2021March 2021 15mg Zyprexa April 12.5mg Zyprexa  May, June and July 10mg Zyprexa, August 7.5mg Zyprexa, September 1st toOctober 23th 2021 5mg Zyprexa.  October 23rd - December 13th 3.75mg Zyprexa December 13th - January 12th 3.1mg Zyprexa HOSPITALIZED FOR 4.5 MONTHS put on 10mg then 15mg then 20mg of Zyprexa (Givenlong acting injection of Thorazine as well).  May 23rd 2022 Reduced from 20mg to 17.5mg Zyprexa, June 9th 15mg started nighttime. April 2023 taken off Zyprexa cold turkey and put on two monthly injections of Invega Sustena.

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  • Mentor
13 hours ago, Prozack said:

What about food by itself? Do you feel chemically destabilized after a meal.

No, not really, more affected by missing a meal or going too long in the morning without breakfast. 

Pronouns: they/them/theirs 

Started on Prozac in early 2000s to treat cPTSD, been on various cocktails ever since.

2002-2004, 2017-2022: Buspar, tapered down to 0

2016-present: 100mg Seroquel for sleep -> May 2023: 90mg -> June 2023: 81mg -> September 2023: 72mg -> switched to brand name, much too strong, down to 60mg -> October 2023: 54mg -> November 2023: 50mg -> January 2024: 45mg

2016-Present: 100mg Wellbutrin SR -> January 2023: 75mg IR (37.5mg 2x a day) -> February 2023 (33.75mg 2x a day) -> July 2023 (30.37mg 2x a day) -> August 2023: 27.33mg 2x a day 

2018-present: 25mg Pristiq

2015-present: 600mg Gabapentin (200mg 3x a day) -> December 2022: 300mg Gabapentin (100mg 3x a day) per GP's recommendation after side effects -> March 2023: 90mg 3x a day (switched to liquid suspension) -> April 2023: 81mg 3x a day -> September 2023: bad generic, switched back to homemade liquid; too strong after bad generic, down to 70mg 3x a day, still bad. Adjusted slowly till at 60mg 3x a day, much better. Long hold till -> December 2023: 54mg, still feels too high after November Seroquel switch from brand name to generic, doc recommended 50mg which feels better -> January 2024: When Wellbutrin went down, Gabapentin started putting me to sleep, went down to 45mg, then 41mg to stay awake, so far so good -> February 2024: 36mg

Supplements: Multivitamin w/magnesium, probiotics, digestive enzymes, anti-viral nitric oxide nose spray as needed

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Chemical sensitivities my list of things to buy that dont cause me sensitivities

 

list of chemical free non food items for those with chemical sensitivities

 

1. Ala maison French unscented olive oil bar soap. I have found it safe for use on dishes to wash them and on the body to take a shower with and on hair and even to accidentally get in the mouth in the shower. This doesn't cause me any food sensitivity.
2. Dollar tree sponges and scrub brushes with the handles (the blue handled ones) don't seem to cause me any food sensitivities for washing my dishes with. 
3. Neoflam ceramic pot on Amazon. Good for baking anything in without chemicals leaching from the bakeware. 
4. Hefty brand Ziplocks don't irritate my food sensitivities. 
5. Any glass that doesn't smell like polish or chemicals. Dollar tree seems like it has some decent ones.
6. Dash personal rice cooker on Amazon. This is safe for me to boil water for herbal tea in and make any food from organic rice organic vegetables organic meat fried eggs boiling pasta boiled eggs with sausauge. Its a push of a button and a one serving meal is created. Its very chemically safe from my experience.
7. Bayka 34 Oz French press on Amazon. Very safe chemically to make herbal teas teas and coffees in. 
8. Cool knight electric spice grinder on Amazon. Doesn't smell like chemicals or polish unlike everything else I've tried for grinders and glass blenders. From experience it doesn't cause any food sensitivities. 
9. Hamilton Beach easy clean juicer 800 watts model 67735. Very easy to use and clean and doesn't seem to cause any food sensitivities. 

 

list of chemical free food and water items for those with food sensitivities

 

1. Calorganic produce will never produce food sensitivities. Neither will earthbound produce.
2. Trader Joe's is the best place to get honest organic items and organic products and produce that won't cause food sensitivities but try to stick to the trader joes brand on non produce items. Sprouts farmers market is second best. 
3. Organic fruits from Guatemala or Ecuador in America have the best chance in my opinion to be the best quality organic fruits. Organic fruits grown anywhere except California in America in my opinion have a good chance of being fake natural produce that often causes food sensitivities. American soil has been having pesticides fertilizers sprayed on it for over 100 years and weedkiller and other chemicals sprayed on it regularly. 
4. Bob's red mill organic rolled oats doesn't cause me any food sensitivities. 
5. Just about all organic produce from trader Joe's doesn't seem to cause food sensitivities. No calorganic brand organic produce causes food sensitivities. 
6 Walmart organic avocados are good the rest of its "organic" produce I stay away from. 
7. Whole foods has some decent organic produce but not always. But the majority of it is. 
8. Aldis organic produce isn't too bad depending on what state your in because each state has its own organic standards on organic pesticides and fertilizers. Aldis meats chicken pork and beef don't cause me any food sensitivities. Aldis normal cheese blocks don't cause me any food sensitivities. 
Aldis northern catch sardines in water don't cause me any food sensitivities (I think that's the brand). 
9. Norwegian stuff many times won't cause too many food sensitivities.

10. Crystal geyser and ice mountain spring water brands are the best for me on my opinion. Florida spring water isn't bad either. But water like Microsoft brand reverse osmosis water causes me food sensitivities. Spring water is the best bet for avoiding food sensitivities. 
11. Meat from trader Joe's is excellent. Walmart brand meat has been fumugated with chemicals (the beef has) and orange chemical dye has been rubbed on it to make it look fresh. I avoid at all cost. Although free range chicken at Walmart is alright and so is its frozen fish choices but I would avoid fish from Chinese fish farms that are imported as they are overpopulated and feeding them chemicals from my suspicion. 
12. 24mantra organic rice of every kind except the processed one (samusari) you will find will most likely be a quality item. I have hit and miss on their organic Indian spices for food sensitivities. 
13. There are some nice Thai curry simmer sauce packets at Walmart that don't cause food sensitivities but if you buy the cheap ones you do at your own risk. 
14. Organic tastybite brand Indian prepared food in packets is safe for me. It's also tasty.

15. Celtic light gray sea salt (its one of the healthiest ways to get salt in my opinion)

 

 

list of restaurants that have the best chance not to cause food sensitivities.

 

I don't trust American restaurants. They use food with chemicals and spices with lots of chemicals in it. Authentic Indian buffets are the safest restaurants to eat at in America as well as Authentic Vietnamese restaurants. Authentic Chinese restaurants are somewhat trustworthy but are hit and miss for food sensitivities. Jamaican restaurants aren't that bad for food sensitivities. Chipotle which is a Latin America Authentic fast food restaurant serves decent food for avoiding food sensitivities. Authentic Thailand food restaurants are pretty good for food sensitivity avoidance as well. If you want American food I suggest a good sit down homemade hamburger and fries at a restaurant but anything else I try to avoid for the food sensitivities. If you need American fast food Arbies food seems to be decent or the chilly at Wendy's. These are my preferences to avoid food sensitivities. I have nothing against American food just that I want to avoid all those technology advanced chemicals in the food that seem to cause me food sensitivities.

 

Foods to avoid for food sensitivities from my personal experience.

 

 

Any food that has chemicals in it or has been sprayed with pesticides. I also avoid produce with wax on it and I try to stay away from seedless produce that is less natural. Machines that make products like coffee for example have been washed with soap regularly so even organic products have to be tested to see what brands don't cause you any food sensitivities. Remember at the grocery store checkout they spray the stuff with chemicals so always bag organic produce in a way the actual produce is not touching the scale. Im also sensitive to machinery that processes nuts and wheat as it's often filled with pesticides or they wash it with soap regularly or for some reason. It bothers me.

 

Other things to avoid. Cigarette smoke has thousands of chemicals on it. I avoid alcohol. I avoid all drugs or drug plants such as marajwana and of course avoid vaping if you're avoiding chemicals as well. 

 

Tips avoid as much sugar as possible its a drug. Avoid processed food as much as possible it has chemicals in it. Although pasta seems fine. 

 

Tip if you're not buying organic you're eating pesticides and unnatural fertilizers and whatever chemicals were used to make the food. However nobody can eat purely organic so test out what non-organic products don't cause you food sensitivities. 

https://friendsforpeers.angelfire.com/Index.html - my website and discord server

Zyprexa (not sure what mg) But got off after a month of being put on in hospital. early 2007 Respirodol (experienced ackathesia so got off in 4 - 6 months from a 6mg dose) Later 2007 tried Seroquel but got offbecause didn't like it.  Later 2007 tried Abilify but had ackathesia, got off2008 - 2015 Unmedicated but on Serequel 800mg when hospitalized   Later 2015 - Unmedicated but put on Prolixyn when hospitalized (Had very uncomfortable stiffness so got off immediately when out of hospital)2016 Unmedicated but put on Haldol when hospitalized (caused Seizures and stiffness couldn't lay down for 3 days until taken off) Later 2016Tried Zyprexa irregular dosesEarly 2017 Put on Zyprexa 15mg stayed on 15 mg until 2020 January 2020 Zyprexa 15mg didn't seem to be working so increased to Zyprexa 20mgOctober - December 2020 Reduced Zyprexa from 20 mg to 15mg to 10mg to 7.5mg to 5mg to 2.5mg. Hospitalized January 1st 2021March 2021 15mg Zyprexa April 12.5mg Zyprexa  May, June and July 10mg Zyprexa, August 7.5mg Zyprexa, September 1st toOctober 23th 2021 5mg Zyprexa.  October 23rd - December 13th 3.75mg Zyprexa December 13th - January 12th 3.1mg Zyprexa HOSPITALIZED FOR 4.5 MONTHS put on 10mg then 15mg then 20mg of Zyprexa (Givenlong acting injection of Thorazine as well).  May 23rd 2022 Reduced from 20mg to 17.5mg Zyprexa, June 9th 15mg started nighttime. April 2023 taken off Zyprexa cold turkey and put on two monthly injections of Invega Sustena.

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  • 1 month later...

Hi All

 

I don’t know how common this is (this thread would suggest that it happens!) but I’ve developed strong chemical sensitivities after a recent adverse reaction to a medicine. I’m off all meds now, but it’s gotten to the point where most fabrics, including my own bedsheets, are causing head rushes and dissociation, and I’m finding that I don’t tolerate most foods. 
 

Obviously this is all quite frightening. I’m wondering if anyone else has been through a similar rapid sensitization, and if they ended up getting better? How important was avoidance for your recovery? Since I’m so broadly sensitized it’s almost impossible to avoid things that trigger me. Advice and encouragement are appreciated!

SleepPls009

Current – Nothing but 

Aug-Oct -melatonin 2, nebivolol 2.5, amlodipine 2.5,, rosuvastatin, dayvigo 5mg, nefazodone 1x 25mg

July 23 – Nebivolol 1.25 mg, amlodipine 2.5 mg, budesonide, omeprazole, rosuvastatin 5mg

May-Jun 23–Nebivolol 2.5, Amlodipine 2.5, Budesonide, omeprazole, rosuvastatin 5mg

April 23- Amlodipine 2.5 mg, Omeprazole 40mg, Budesonide nasal rinse 1/day,

Feb 23-March 23- Bisoprolol 2.5 mg (1/24-2/1), Atenolol 5mg (2/12-3/1)

Nov 22-Jan23 – Metoprolol 25 mg, Ranolazine 500mg (Nov), Coreg 1.125 (Dec-Jan)

October 22 – Quviviq 25 mg, Lunesta 3mg, mirtazipine 30mg

September22 – Melatonin 1mg, Ambien 5 mg, Ramelteon 8mg, Seroquel 50-125mg

June 22 – Sertraline 100mg, seroquel 25-50 mg, Ambien 10mg, Amitryptiline 25 mg, July-Aug 22 –Melatonin 1mg nightly (July),  Dayvigo 5 mg, Ambien 5mg 

~2002-2022: Luvox 100mg daily until April 12, 2022, May 22: Prozac 20mg – May 12-June 1, Klonazepam, as needed, Trazedone (once)

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  • 4 weeks later...

Hi all,

 

I have a question. 
 

As I was brushing my teeth last night I realised by reading overleaf on the Colgate tube that benzyl alcohol is included as one of the ingredients. 
 

I have always used this Colgate before, on lexapro and in withdrawal.

 

Could anybody chime in to share some views or experiences. 
 

Is this benzyl alcohol in negligible amounts and therefore harmless or can it cause setbacks when in withdrawal?

 

Thank you 💕

Started 10mg escitalopram March 2016 and stopped CT Feb 2017.

Started 10mg citalopram May 2019

Swapped with mirtazapine mid June 2019 used for a week and then switched to Escitalopram 5mg at the end of July 2019, increased gradually to 10mg in September, 15mg in October and 20mg in January 2020. Tapered down to 15mg in April. 10mg in June then a week tapering to 5mg and then stopped CT. 
Resumed escitalopram in November 2020 at 5mg, increased to 10mg in February 2021, tapered down to 5mg in May 2021 and tapered down to 2.5 in the space of a week in September 2021. Resumed escitalopram at the end of December 2022 at 5mg, increased it to 10mg in March 2023 then tapered down to 5mg in June and down to 2.5mg in July. Started escitalopram 5mg beginning of December 2023 then stopped after 4 days. Took amytryptamine for 2 days then restarted escitalopram at 5mg, after two weeks increased it to 7.5mg, kept it for 1 week then 10mg for 1 week but two many side effects so went back to 5mg. Beginning of January 2023 stopped escitalopram for 1 day then 2.5mg for the next day. Developed  discontinuation symptoms reinstated it at 2.5 for 1 week and 1.5 for the following week then stopped. I’m currently experiencing withdrawal symptoms.

 

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  • 1 month later...

Hello @Cdav 

 

Any update on your situation? I’ve also become severely hypersensitive after trying 14 different drugs in 2022-2023, which also left me in protracted withdrawal where i have awful and progressing symptoms.

I hope you’re doing good now though. :)

08/2016-05/2018 Effexor 250mg

05/2018-04/2019 Paxil 40mg
05/2019-08/2020 Effexor 150mg

05/2019 (risperidone for 4 days)
12/2020-12/2021 Effexor 150mg
12/2021-04/2022 Prozac 40mg (cross tappered for 10 days)
02/2022 Abilify 10mg (2 weeks)
04/2022-05/2022 Anafranil 50mg (one month)
05/2022-06/2022 Strattera 40mg (one month), 07/2022 Bupropion 150mg (2 weeks)
07/2022-11/2022 Duloxetine 90mg (with Concerta 54mg and Ritalin 10-20mg)

10/2022 - 11/2022 Quetiapine 25 mg for sleep
02/2023 prozac 20 mg  (3weeks),05/2023 Anfranil 25mg (2 days), 06/2023 Effexor (1 week 37,5mg, 4 days 75mg)

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On 2/7/2024 at 5:34 PM, Giuly88 said:

Hi all,

 

I have a question. 
 

As I was brushing my teeth last night I realised by reading overleaf on the Colgate tube that benzyl alcohol is included as one of the ingredients. 
 

I have always used this Colgate before, on lexapro and in withdrawal.

 

Could anybody chime in to share some views or experiences. 
 

Is this benzyl alcohol in negligible amounts and therefore harmless or can it cause setbacks when in withdrawal?

 

Thank you 💕

 

Toothpaste now gives me mouth ulcers and can trigger mild acid reflux too. Probably due to one of the many chemicals, sweeteners, and flavourings the stuff contains.

 

I can highly recommend the Kingfisher brand of toothpaste (with fluoride). You can get them in most UK supermarkets, and other places like Holland and Barrett. They've removed most of the nasties, so it's as natural as you can get without sacrificing tooth health.

 

Interestingly, within a couple of days of using it my tooth sensitivity cleared up. I'd had that nearly all my life! So I can only assume a chemical in toothpaste had been causing sensitivity all these years.

Oct 2018 - Jun 2020: 10 mg per day generic Escitalopram in pill form.

Jul 2020 - Aug 2020: Switched to 9 mg per day of Cipralex drops to aid tapering.

Sep 2020 - Oct 2020: Taper to 8 mg.

Nov 2020 - Dec 2020: Taper to 7 mg.

Jan 2021 - Feb 2021: Taper to 6 mg.

Mar 2021 - Apr 2021: Taper to 5 mg.

May 2021 - Jun 2021: Taper to 4 mg.

Jul 2021 - Sep 2021: Taper to 3 mg.

Sep 2021 - Jan 2022: Taper to 2 mg.

Jan 2022: Stopped taking altogether.

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