Jump to content

If you find useful information here, your gift would help keep this site going. Our staff is entirely volunteer.

Photo
* * * * * 1 votes

Thyroid symptoms -- hypothyroid, Hashimoto's


  • Please log in to reply
173 replies to this topic

#37 Karma

Karma

    Gold star

  • Administrators
  • PipPipPipPip
  • 1,090 posts
  • LocationColorado

Posted 12 May 2012 - 08:44 AM

I promised on another thread to share some information about how the TSH reference range is defined. I found this article on About.com that explains the situation. http://thyroid.about...tshtestwars.htm

 

In a nutshell, the TSH range is arrived at by taking the TSH lab values of a population of people assumed to be healthy. Unfortunately, because of how they currently diagnose hypothyroidism, this population includes people who are hypothyroid, but who have not been diagnosed. This then skews the normal ranges and patients who are truly suffering are told there is nothing wrong with them.

 

As the article points out, the new range would allow many more people to be diagnosed and treated, but it hasn't been universally adopted. I argue that a single data point is not adequate for a diagnosis ... as this article indicates, one should test free T3, free T4 and antibodies in addition to an observation of the patient's clinical symptoms in order to determine a diagnosis.

 

Karma


2007 @ 375 mg Effexor - 11/29/2011 - 43.75 mg Effexor (regular) & 1 mg Xanax & 200 mg Gabapentin
Xanax taper: 3/11/12 - 0.9375 mg, 3/25/12 - 0.875 mg, 4/6/12 - 0.8125 mg, 4/18/12 - 0.75 mg - hold
Effexor taper: 1/29/12 - 40.625 mg, 4/29/12 - 39.875 mg, 5/11/12 - Switched to liquid Effexor, 5/25/12 - 38 mg, 7/6/12 - 35 mg, 8/17/12 - 32 mg, 9/14/12 - 30 mg, 10/19/12 - 28 mg, 11/9/12 - 26 mg, 11/30/12 - 24 mg, 01/14/13 - 22 mg. 02/25/13 - 20.8 mg, 03/18/13 - 19.2 mg, 4/15/13 - 17.6 mg, 8/10/13 - 16.4 mg, 9/7/13 - 15.2 mg, 10/19/13 - 14 mg, 1/15/14 - 13.2 mg, 3/1/2014 - 12.6 mg, 5/4/14 - 12 mg, 8/1/14 - 11.4 mg, 8/29/14 - 10.8 mg; 10/14/14 - 10.2 mg; 12/15/14 - 10 mg, 1/11/15 - 9.5 mg, 2/8/15 - 9 mg, 3/21/15 - 8.5 mg, 5/1/15 - 8 mg, 6/9/15 - 7.5 mg, 7/8/15 - 7 mg, 8/22/15 - 6.5 mg, 10/4/15 - 6 mg; 1/1/16 - 5.6 mg; 2/6/16 - 5.2 mg; 4/9 - 4.8 mg; 7/7 4.5 mg; 10/7 4.25 mg; 11/4 4.0 mg; 11/25 3.8 mg; 4/24 3.6 mg

I am not a medical professional - this is not medical advice. My suggestions are based on personal experience, reading, observation and anecdotal information posted by other sufferers


#38 Karma

Karma

    Gold star

  • Administrators
  • PipPipPipPip
  • 1,090 posts
  • LocationColorado

Posted 12 May 2012 - 09:08 AM

Here is a good article by a physician with citations http://hormonerestor...cement therapy.

 

My bone specialist thinks that my thyroid treatment is contributing to my bone loss, but as this article points out, I was already losing bone density (as I am post menopausal and my BHRT is not optimized) ... T3 just speeds up metabolic activity and stimulates bone cells.

 

Fortunately, my bone specialist understands that I am not changing my thyroid treatment ... I am finally optimized on T3 only therapy. I suffer no aches and pains, no fatigue, no sleep disruption, no dry skin, no excessive hair loss, and no depression. You can refer to my Karma thread for more information about what I'm doing to reverse my bone loss ... and it doesn't involve bisphosphonates or other drugs.

 

Karma


2007 @ 375 mg Effexor - 11/29/2011 - 43.75 mg Effexor (regular) & 1 mg Xanax & 200 mg Gabapentin
Xanax taper: 3/11/12 - 0.9375 mg, 3/25/12 - 0.875 mg, 4/6/12 - 0.8125 mg, 4/18/12 - 0.75 mg - hold
Effexor taper: 1/29/12 - 40.625 mg, 4/29/12 - 39.875 mg, 5/11/12 - Switched to liquid Effexor, 5/25/12 - 38 mg, 7/6/12 - 35 mg, 8/17/12 - 32 mg, 9/14/12 - 30 mg, 10/19/12 - 28 mg, 11/9/12 - 26 mg, 11/30/12 - 24 mg, 01/14/13 - 22 mg. 02/25/13 - 20.8 mg, 03/18/13 - 19.2 mg, 4/15/13 - 17.6 mg, 8/10/13 - 16.4 mg, 9/7/13 - 15.2 mg, 10/19/13 - 14 mg, 1/15/14 - 13.2 mg, 3/1/2014 - 12.6 mg, 5/4/14 - 12 mg, 8/1/14 - 11.4 mg, 8/29/14 - 10.8 mg; 10/14/14 - 10.2 mg; 12/15/14 - 10 mg, 1/11/15 - 9.5 mg, 2/8/15 - 9 mg, 3/21/15 - 8.5 mg, 5/1/15 - 8 mg, 6/9/15 - 7.5 mg, 7/8/15 - 7 mg, 8/22/15 - 6.5 mg, 10/4/15 - 6 mg; 1/1/16 - 5.6 mg; 2/6/16 - 5.2 mg; 4/9 - 4.8 mg; 7/7 4.5 mg; 10/7 4.25 mg; 11/4 4.0 mg; 11/25 3.8 mg; 4/24 3.6 mg

I am not a medical professional - this is not medical advice. My suggestions are based on personal experience, reading, observation and anecdotal information posted by other sufferers


#39 Barbarannamated

Barbarannamated

    Platinum star

  • Members
  • PipPipPipPipPip
  • 4,179 posts
  • LocationSouthern California

Posted 12 May 2012 - 09:26 AM

Karma, Great resource and good to know of a knowledgeable endocrinologist in PA. THANKS!
Pristiq tapered over 8 months ending Spring 2011 after 18 years of polydrugging that began w/Zoloft for fatigue/general malaise (not mood). CURRENT: 1mg Klonopin qhs (SSRI bruxism), 75mg trazodone qhs, various hormonesLitigation for 11 years for Work-related injury, settled 2004. Involuntary medical retirement in 2001 (age 39). 2012 - brain MRI showing diffuse, chronic cerebrovascular damage/demyelination possibly vasculitis/cerebritis. Dx w/autoimmune polyendocrine failure.<p>2013 - Dx w/CNS Sjogren's Lupus (FANA antibodies first appeared in 1997 but missed by doc).

#40 Barbarannamated

Barbarannamated

    Platinum star

  • Members
  • PipPipPipPipPip
  • 4,179 posts
  • LocationSouthern California

Posted 21 May 2012 - 05:04 PM

Looking through old labwork. My TSH was 47.62 uIU/mL when originally diagnosed w/Hashimoto's in 1996. I know that's high, but wondered if it's offthecharts high? My T3 got above normal range in 2005 - not remarkable The value that was never addressed is elevated Creating phosphokinase (CPK) in 1995 CPK = 356 IU/L [26-189] This was in bunch of labwork ordered by my pdoc. Results never discussed. It was at a time of severe pain. Husband just asked if I had a heart attack. GRRR}}} Also FANA PATTERN 1:160 HOMOGENOUS [<1:40 TITRE] (In same box as ESR - sed rate?) Also never mentioned. Why do docs get labs and never review them??? I dont think they know what they mean. Same w/Xrays. They hold them up to the light as if they know what they're looking at. BaaaHaaaa!
Pristiq tapered over 8 months ending Spring 2011 after 18 years of polydrugging that began w/Zoloft for fatigue/general malaise (not mood). CURRENT: 1mg Klonopin qhs (SSRI bruxism), 75mg trazodone qhs, various hormonesLitigation for 11 years for Work-related injury, settled 2004. Involuntary medical retirement in 2001 (age 39). 2012 - brain MRI showing diffuse, chronic cerebrovascular damage/demyelination possibly vasculitis/cerebritis. Dx w/autoimmune polyendocrine failure.<p>2013 - Dx w/CNS Sjogren's Lupus (FANA antibodies first appeared in 1997 but missed by doc).

#41 Karma

Karma

    Gold star

  • Administrators
  • PipPipPipPip
  • 1,090 posts
  • LocationColorado

Posted 25 May 2012 - 04:07 PM

Looking through old labwork. My TSH was 47.62 uIU/mL when originally diagnosed w/Hashimoto's in 1996. I know that's high, but wondered if it's offthecharts high?

My T3 got above normal range in 2005 - not remarkable


Wow Barb, that appears to be a high TSH, but it would depend on the normal ranges that are associated with it. If it is against the standard normal range we see in the US then it is off-the-charts high.

T3 on its own doesn't tell us much, but Free T3 can give us an indication of health. My FT3 runs about 6.2 which is high for the normal range in my area, but 6.2 used to be the top of the range for FT3. T3 includes both the bound hormone as well as the free hormone so that isn't really helpful. Free T3 tells us what is available to the cell receptors.

Sed rate is an indicator of inflammation in the body. I think this FANA PATTERN 1:160 HOMOGENOUS has to do with testing for Lupus - http://arthritis.abo...ostic/a/ana.htm

I'm not familiar with the significance of the other labs.


Karma

2007 @ 375 mg Effexor - 11/29/2011 - 43.75 mg Effexor (regular) & 1 mg Xanax & 200 mg Gabapentin
Xanax taper: 3/11/12 - 0.9375 mg, 3/25/12 - 0.875 mg, 4/6/12 - 0.8125 mg, 4/18/12 - 0.75 mg - hold
Effexor taper: 1/29/12 - 40.625 mg, 4/29/12 - 39.875 mg, 5/11/12 - Switched to liquid Effexor, 5/25/12 - 38 mg, 7/6/12 - 35 mg, 8/17/12 - 32 mg, 9/14/12 - 30 mg, 10/19/12 - 28 mg, 11/9/12 - 26 mg, 11/30/12 - 24 mg, 01/14/13 - 22 mg. 02/25/13 - 20.8 mg, 03/18/13 - 19.2 mg, 4/15/13 - 17.6 mg, 8/10/13 - 16.4 mg, 9/7/13 - 15.2 mg, 10/19/13 - 14 mg, 1/15/14 - 13.2 mg, 3/1/2014 - 12.6 mg, 5/4/14 - 12 mg, 8/1/14 - 11.4 mg, 8/29/14 - 10.8 mg; 10/14/14 - 10.2 mg; 12/15/14 - 10 mg, 1/11/15 - 9.5 mg, 2/8/15 - 9 mg, 3/21/15 - 8.5 mg, 5/1/15 - 8 mg, 6/9/15 - 7.5 mg, 7/8/15 - 7 mg, 8/22/15 - 6.5 mg, 10/4/15 - 6 mg; 1/1/16 - 5.6 mg; 2/6/16 - 5.2 mg; 4/9 - 4.8 mg; 7/7 4.5 mg; 10/7 4.25 mg; 11/4 4.0 mg; 11/25 3.8 mg; 4/24 3.6 mg

I am not a medical professional - this is not medical advice. My suggestions are based on personal experience, reading, observation and anecdotal information posted by other sufferers


#42 Barbarannamated

Barbarannamated

    Platinum star

  • Members
  • PipPipPipPipPip
  • 4,179 posts
  • LocationSouthern California

Posted 25 May 2012 - 04:15 PM

Thanks, Karma. Yes, the RR for TSH was 0.35 - 5.50. Just noticed it says "TSH 30 minutes" so this may have been a TRH challenge. I believe this was the first thyroid was tested. Does a TRH challenge yield a higher or different TSH than standard TSH testing? Just noticed my weight was 136 at that time. I'm at about 95 now without trying to lose. A later test by OB/GYN shows Thyroid peroxidase antibodies at >1000 High (on RR <35). Also never addressed although I was on Synthroid at time. This OB/GYN had great reputation, but treated me dismissively. The CPK is generally muscle damage, either heart or smooth muscle. I have no idea why this was never even mentioned to me. It was out of range enough that it triggered an immediate confirmatory test. I don't know if looking back at these is of any value or I just want to find someone to be angry at. :o Thanks again, Karma. HUGS!
Pristiq tapered over 8 months ending Spring 2011 after 18 years of polydrugging that began w/Zoloft for fatigue/general malaise (not mood). CURRENT: 1mg Klonopin qhs (SSRI bruxism), 75mg trazodone qhs, various hormonesLitigation for 11 years for Work-related injury, settled 2004. Involuntary medical retirement in 2001 (age 39). 2012 - brain MRI showing diffuse, chronic cerebrovascular damage/demyelination possibly vasculitis/cerebritis. Dx w/autoimmune polyendocrine failure.<p>2013 - Dx w/CNS Sjogren's Lupus (FANA antibodies first appeared in 1997 but missed by doc).

#43 Karma

Karma

    Gold star

  • Administrators
  • PipPipPipPip
  • 1,090 posts
  • LocationColorado

Posted 28 May 2012 - 05:49 PM

TRH is thyrotropin releasing hormone - and is used to stimulate TSH - usually there is a baseline TSH test and an injection of TRH is given to stimulate the pituitary to release TSH (because TSH is a pituitary hormone). You would expect the second TSH to be taken within 20-30 minutes. It isn't commonly used any more and I don't know too much about it.

 

Thyroid peroxidase antibodies at >1000 High (on RR <35) is a clear indication of Hashimoto's thyroiditis. If you want to be angry at something - be angry at the whole western allopathic medical system which is driven by profits and prevention of malpractice lawsuits which inhibits innovative doctors from treating their patients outside of the "standard of care." As long as the doc can say he used the "standard of care" ... which usually involves a pill ... then the state medical board will back them. In a lot of states the state medical boards are trying to shut down integrative medicine - they don't want us to use diet to heal ourselves.

 

Oops, let me just step down off of that soap box :rolleyes: .

 

Karma


2007 @ 375 mg Effexor - 11/29/2011 - 43.75 mg Effexor (regular) & 1 mg Xanax & 200 mg Gabapentin
Xanax taper: 3/11/12 - 0.9375 mg, 3/25/12 - 0.875 mg, 4/6/12 - 0.8125 mg, 4/18/12 - 0.75 mg - hold
Effexor taper: 1/29/12 - 40.625 mg, 4/29/12 - 39.875 mg, 5/11/12 - Switched to liquid Effexor, 5/25/12 - 38 mg, 7/6/12 - 35 mg, 8/17/12 - 32 mg, 9/14/12 - 30 mg, 10/19/12 - 28 mg, 11/9/12 - 26 mg, 11/30/12 - 24 mg, 01/14/13 - 22 mg. 02/25/13 - 20.8 mg, 03/18/13 - 19.2 mg, 4/15/13 - 17.6 mg, 8/10/13 - 16.4 mg, 9/7/13 - 15.2 mg, 10/19/13 - 14 mg, 1/15/14 - 13.2 mg, 3/1/2014 - 12.6 mg, 5/4/14 - 12 mg, 8/1/14 - 11.4 mg, 8/29/14 - 10.8 mg; 10/14/14 - 10.2 mg; 12/15/14 - 10 mg, 1/11/15 - 9.5 mg, 2/8/15 - 9 mg, 3/21/15 - 8.5 mg, 5/1/15 - 8 mg, 6/9/15 - 7.5 mg, 7/8/15 - 7 mg, 8/22/15 - 6.5 mg, 10/4/15 - 6 mg; 1/1/16 - 5.6 mg; 2/6/16 - 5.2 mg; 4/9 - 4.8 mg; 7/7 4.5 mg; 10/7 4.25 mg; 11/4 4.0 mg; 11/25 3.8 mg; 4/24 3.6 mg

I am not a medical professional - this is not medical advice. My suggestions are based on personal experience, reading, observation and anecdotal information posted by other sufferers


#44 Barbarannamated

Barbarannamated

    Platinum star

  • Members
  • PipPipPipPipPip
  • 4,179 posts
  • LocationSouthern California

Posted 28 May 2012 - 06:02 PM

Oh no... please go on, Karma. I just had blowup with DH about psychometric testing being used to determine if someone will respond to pain treatment. He said if it's "part of their personality disorder" it won't respond to pain treatment...my blood is boiling. I cant think straight.
Pristiq tapered over 8 months ending Spring 2011 after 18 years of polydrugging that began w/Zoloft for fatigue/general malaise (not mood). CURRENT: 1mg Klonopin qhs (SSRI bruxism), 75mg trazodone qhs, various hormonesLitigation for 11 years for Work-related injury, settled 2004. Involuntary medical retirement in 2001 (age 39). 2012 - brain MRI showing diffuse, chronic cerebrovascular damage/demyelination possibly vasculitis/cerebritis. Dx w/autoimmune polyendocrine failure.<p>2013 - Dx w/CNS Sjogren's Lupus (FANA antibodies first appeared in 1997 but missed by doc).

#45 alexjuice

alexjuice

    Member

  • Members
  • PipPipPipPipPip
  • 2,300 posts
  • LocationUndisclosed USA

Posted 28 May 2012 - 08:59 PM

If you want to be angry at something - be angry at the whole western allopathic medical system which is driven by profits and prevention of malpractice lawsuits which inhibits innovative doctors from treating their patients outside of the "standard of care." As long as the doc can say he used the "standard of care" ... which usually involves a pill ... then the state medical board will back them. In a lot of states the state medical boards are trying to shut down integrative medicine - they don't want us to use diet to heal ourselves.

Oops, let me just step down off of that soap box :rolleyes: .

Karma


Co-sign big time!

Alex

"Well my ship's been split to splinters and it's sinking fast
I'm drowning in the poison, got no future, got no past
But my heart is not weary, it's light and it's free
I've got nothing but affection for all those who sailed with me.

Everybody's moving, if they ain't already there
Everybody's got to move somewhere
Stick with me baby, stick with me anyhow
Things should start to get interesting right about now."

- Zimmerman


#46 xDebbiejo

xDebbiejo

    Silver star

  • Members
  • PipPipPip
  • 322 posts
  • LocationUK

Posted 19 July 2012 - 09:44 AM

Just found this interesting article about how to heal your thyroid, from Natural News. Alto, maybe you could check it out as I don't want to post incorrect information. Usually Natural News is quite ethical. Thanks Debbie
17 years on seroxat/paxil CT off - thought I was dying luckily found this site. 21st May 2012 12mg seroxat
Stable - Tapered Diazepam slowish.1st June 10mg Seroxat
2nd June 1mg Diazepam.15th June 9mg seroxat
2nd July Changed to 2.5[ml liquid diazepam]2mg=5ml. 16th July 2ml Liquid Diazepam
2nd August 8mg/4ml Seroxat/Paxil 2nd August 1.5 ml Diazepam
18th Aug 2012 1ml Diazepam 1st - 5th Sept 0.5
Diazepam Free!
13th Oct 7mg/3.5ml seroxat - 26 Jan 2013 3.25ml/6.5mg-Mar 3ml-April 2.7ml-May 2.5ml
01/07/14 very slow taper over the last year now on 0.5 ml of liquid Seroxat ......November 14 Seroat Free!!!!!!!

#47 Brandy

Brandy

    Silver star

  • Members
  • PipPipPip
  • 623 posts
  • Location...

Posted 19 July 2012 - 02:33 PM

Debbie, I think the link is missing! (I forget to add links, and attachments to emails, almost without fail lol.) Or am I just not seeing it?

I was "TryingToGetWell" (aka TTGW) on paxilprogress. I also was one of the original members here on Surviving Antidepressants

 

I had horrific and protracted withdrawal from paxil, but now am back to enjoying life with enthusiasm to the max, some residual physical symptoms continued but largely improve. The horror, severe derealization, anhedonia, akathisia, and so much more, are long over.

 

My signature is a temporary scribble from year 2013. I'll rewrite it when I can.

 

If you want to read it, click on http://survivinganti...nyone/?p=110343


#48 Shanti

Shanti

    Gold star

  • Members
  • PipPipPipPip
  • 1,091 posts
  • LocationNorthern California

Posted 23 July 2012 - 11:00 AM

I'd like to see that article :)

Has anyone tried Coconut Oil? I don't have thyroid issues but have been taking it daily for other reasons. My daughter though has hypothyroid and I'm trying to get her to take it so I can see if it helps. She just recently had to stop taking her thyroid medicine because it was causing anxiety.

Coconut Oil for Thyroid
Taper from Cymbalta, Paxil, Prozac & Antipsychotics finished June 2012.
Xanax 5% Taper - (8/12 - .5 mg) - (9/12 - .45) - (10/12 - .43) - (11/12 - .41) - (12/12 - .38)
My Paxil Website
My Intro

#49 Altostrata

Altostrata

    Administrator

  • Administrators
  • PipPipPipPipPipPip
  • 24,091 posts
  • LocationSan Francisco, CA

Posted 23 July 2012 - 11:02 AM

Debbie, we need a link for that article. I have no idea if it makes sense.
This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

#50 xDebbiejo

xDebbiejo

    Silver star

  • Members
  • PipPipPip
  • 322 posts
  • LocationUK

Posted 23 July 2012 - 06:00 PM

LOL !!! So sorry, I'll try again http://www.naturalne...n_immunity.html
17 years on seroxat/paxil CT off - thought I was dying luckily found this site. 21st May 2012 12mg seroxat
Stable - Tapered Diazepam slowish.1st June 10mg Seroxat
2nd June 1mg Diazepam.15th June 9mg seroxat
2nd July Changed to 2.5[ml liquid diazepam]2mg=5ml. 16th July 2ml Liquid Diazepam
2nd August 8mg/4ml Seroxat/Paxil 2nd August 1.5 ml Diazepam
18th Aug 2012 1ml Diazepam 1st - 5th Sept 0.5
Diazepam Free!
13th Oct 7mg/3.5ml seroxat - 26 Jan 2013 3.25ml/6.5mg-Mar 3ml-April 2.7ml-May 2.5ml
01/07/14 very slow taper over the last year now on 0.5 ml of liquid Seroxat ......November 14 Seroat Free!!!!!!!

#51 Altostrata

Altostrata

    Administrator

  • Administrators
  • PipPipPipPipPipPip
  • 24,091 posts
  • LocationSan Francisco, CA

Posted 24 July 2012 - 10:29 AM

I don't know how reliable this source is. The articles are contributed by people who might be promoting their own "natural healing" programs. Karma or someone else more knowledgeable about thyroid problems would be better able to evaluate that particular article.
This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

#52 xDebbiejo

xDebbiejo

    Silver star

  • Members
  • PipPipPip
  • 322 posts
  • LocationUK

Posted 24 July 2012 - 03:34 PM

Ok thanks alto X
17 years on seroxat/paxil CT off - thought I was dying luckily found this site. 21st May 2012 12mg seroxat
Stable - Tapered Diazepam slowish.1st June 10mg Seroxat
2nd June 1mg Diazepam.15th June 9mg seroxat
2nd July Changed to 2.5[ml liquid diazepam]2mg=5ml. 16th July 2ml Liquid Diazepam
2nd August 8mg/4ml Seroxat/Paxil 2nd August 1.5 ml Diazepam
18th Aug 2012 1ml Diazepam 1st - 5th Sept 0.5
Diazepam Free!
13th Oct 7mg/3.5ml seroxat - 26 Jan 2013 3.25ml/6.5mg-Mar 3ml-April 2.7ml-May 2.5ml
01/07/14 very slow taper over the last year now on 0.5 ml of liquid Seroxat ......November 14 Seroat Free!!!!!!!

#53 Karma

Karma

    Gold star

  • Administrators
  • PipPipPipPip
  • 1,090 posts
  • LocationColorado

Posted 11 August 2012 - 04:08 PM

In general the information in this article is valid ... John C. Lowe is a pioneer in the treatment of thyroid and I have found his guidance to be helpful. Unfortunately Dr. Lowe passed away this year and we (the thyroid group that I am a member of) are heartbroken that we have lost this pioneer in metabolic research.

 

What does concern me is the idea of increasing iodine. In a situation where the individual is "just" hypothyroid iodine could be helpful. However, if an individual has Hashimoto's thyroiditis, which is an autoimmune condition iodine can be harmful. With Hashimoto's the thyroid sputters and can go from being hypo (low) to hyper (high).

 

Hashimoto's is diagnosed by the presence of thyroid antibodies. Reducing inflammation in the body is always a good idea. Avoiding processed foods and unnecessary pharmaceuticals is sound advice. Eating organic whole foods is also good advice and since there is a correlation between Celiac Disease and Hashimoto's avoiding grains ... specifically wheat, rye and barley ... can be good advice.

 

There is nothing here that I see that is "wrong", but taking this steps may not be enough to resolve a thyroid condition. I looked at the Body Ecology links and their advice is ok, except that I would avoid the Dong Quai.

 

I hope something here is helpful and apologize for not responding sooner.

 

Karma


2007 @ 375 mg Effexor - 11/29/2011 - 43.75 mg Effexor (regular) & 1 mg Xanax & 200 mg Gabapentin
Xanax taper: 3/11/12 - 0.9375 mg, 3/25/12 - 0.875 mg, 4/6/12 - 0.8125 mg, 4/18/12 - 0.75 mg - hold
Effexor taper: 1/29/12 - 40.625 mg, 4/29/12 - 39.875 mg, 5/11/12 - Switched to liquid Effexor, 5/25/12 - 38 mg, 7/6/12 - 35 mg, 8/17/12 - 32 mg, 9/14/12 - 30 mg, 10/19/12 - 28 mg, 11/9/12 - 26 mg, 11/30/12 - 24 mg, 01/14/13 - 22 mg. 02/25/13 - 20.8 mg, 03/18/13 - 19.2 mg, 4/15/13 - 17.6 mg, 8/10/13 - 16.4 mg, 9/7/13 - 15.2 mg, 10/19/13 - 14 mg, 1/15/14 - 13.2 mg, 3/1/2014 - 12.6 mg, 5/4/14 - 12 mg, 8/1/14 - 11.4 mg, 8/29/14 - 10.8 mg; 10/14/14 - 10.2 mg; 12/15/14 - 10 mg, 1/11/15 - 9.5 mg, 2/8/15 - 9 mg, 3/21/15 - 8.5 mg, 5/1/15 - 8 mg, 6/9/15 - 7.5 mg, 7/8/15 - 7 mg, 8/22/15 - 6.5 mg, 10/4/15 - 6 mg; 1/1/16 - 5.6 mg; 2/6/16 - 5.2 mg; 4/9 - 4.8 mg; 7/7 4.5 mg; 10/7 4.25 mg; 11/4 4.0 mg; 11/25 3.8 mg; 4/24 3.6 mg

I am not a medical professional - this is not medical advice. My suggestions are based on personal experience, reading, observation and anecdotal information posted by other sufferers


#54 alexjuice

alexjuice

    Member

  • Members
  • PipPipPipPipPip
  • 2,300 posts
  • LocationUndisclosed USA

Posted 14 September 2012 - 12:45 PM

I had to switch to T3 only because my reverse T3 got so high that I was in a perpetual state of hypothyroidism.

This is so confusing to me. I have one doctor who thinks I need T3 because my T3 was too low. A second doctor thinks I will need hormone replacement but not T3 because the low T3 is a false low caused by faulty conversision. The conversion problem is due to the elevated RT3 which is primarly caused by inflamattion.

The second doctor says taking T3 will alleviate my symptoms but a preferable strategy is to reduce the RT3 using an immune modulating protocol. After RT3 is lowered I will be able to convert T4 more effectively.

Currently, my TSH/T4 have been fairly normal. TSH 1.6-3.2 usually in the 2's.

It's confusing to me that a treatment for high Rt3 is T3. Wilson's?

Alex

"Well my ship's been split to splinters and it's sinking fast
I'm drowning in the poison, got no future, got no past
But my heart is not weary, it's light and it's free
I've got nothing but affection for all those who sailed with me.

Everybody's moving, if they ain't already there
Everybody's got to move somewhere
Stick with me baby, stick with me anyhow
Things should start to get interesting right about now."

- Zimmerman


#55 Barbarannamated

Barbarannamated

    Platinum star

  • Members
  • PipPipPipPipPip
  • 4,179 posts
  • LocationSouthern California

Posted 14 September 2012 - 12:55 PM

Currently, my TSH/T4 have been fairly normal. TSH 1.6-3.2 usually in the 2's.

It's confusing to me that a treatment for high Rt3 is T3. Wilson's?

Alex


I admit that i'm thoroughly confused about rT3. Ive never had that measured nor have i seen it on a lab order.

RE: Wilson's Temperature Syndrome. I read another thread about it and it sounds a little sketchy. Is this a valid diagnosis?

While im being skeptical... the article posted says that the thyroid controls other glands, like the adrenals.. I think it's important to steer away from that cascade effect thinking and remember that the entire endocrine system is made up of feedback loops. Correct me if im wrong, but I don't *think* any one gland controls the others aside from the pituitary, master gland.
Pristiq tapered over 8 months ending Spring 2011 after 18 years of polydrugging that began w/Zoloft for fatigue/general malaise (not mood). CURRENT: 1mg Klonopin qhs (SSRI bruxism), 75mg trazodone qhs, various hormonesLitigation for 11 years for Work-related injury, settled 2004. Involuntary medical retirement in 2001 (age 39). 2012 - brain MRI showing diffuse, chronic cerebrovascular damage/demyelination possibly vasculitis/cerebritis. Dx w/autoimmune polyendocrine failure.<p>2013 - Dx w/CNS Sjogren's Lupus (FANA antibodies first appeared in 1997 but missed by doc).

#56 alexjuice

alexjuice

    Member

  • Members
  • PipPipPipPipPip
  • 2,300 posts
  • LocationUndisclosed USA

Posted 14 September 2012 - 12:59 PM

I got interrupted, but I had a question for Karma. Karma, is your Reverse T3 lowered now that you are on hormone therapy? Thanks

"Well my ship's been split to splinters and it's sinking fast
I'm drowning in the poison, got no future, got no past
But my heart is not weary, it's light and it's free
I've got nothing but affection for all those who sailed with me.

Everybody's moving, if they ain't already there
Everybody's got to move somewhere
Stick with me baby, stick with me anyhow
Things should start to get interesting right about now."

- Zimmerman


#57 alexjuice

alexjuice

    Member

  • Members
  • PipPipPipPipPip
  • 2,300 posts
  • LocationUndisclosed USA

Posted 14 September 2012 - 01:08 PM


Currently, my TSH/T4 have been fairly normal. TSH 1.6-3.2 usually in the 2's.

It's confusing to me that a treatment for high Rt3 is T3. Wilson's?

Alex


I admit that i'm thoroughly confused about rT3. Ive never had that measured nor have i seen it on a lab order.

RE: Wilson's Temperature Syndrome. I read another thread about it and it sounds a little sketchy. Is this a valid diagnosis?

While im being skeptical... the article posted says that the thyroid controls other glands, like the adrenals.. I think it's important to steer away from that cascade effect thinking and remember that the entire endocrine system is made up of feedback loops. Correct me if im wrong, but I don't *think* any one gland controls the others aside from the pituitary, master gland.

I don't know about Wilson's protocol. It does seem he attributes A LOT of health problems to elevated rT3. But I really have no informed opinion.

The good thing about Hashimoto's is that there seem to be effective treatments such that it rarely has dramatic health consequences once it is treated. I think, anyway.

And, I don't think it's a valid diagosis according to the establishment, but Barb ... we all know by now how little that means...

"Well my ship's been split to splinters and it's sinking fast
I'm drowning in the poison, got no future, got no past
But my heart is not weary, it's light and it's free
I've got nothing but affection for all those who sailed with me.

Everybody's moving, if they ain't already there
Everybody's got to move somewhere
Stick with me baby, stick with me anyhow
Things should start to get interesting right about now."

- Zimmerman


#58 Barbarannamated

Barbarannamated

    Platinum star

  • Members
  • PipPipPipPipPip
  • 4,179 posts
  • LocationSouthern California

Posted 14 September 2012 - 01:26 PM

I remember what struck me about Wilson's... it sounds like there's significant overlap with adrenal insufficiency and it's concerning that T3 be given in absence of lab values and only on 3 temperature reads/day (per other thread). I DO feel that T3 makes more sense than T4 since it is the form of thyroid used by the body (doesnt have to be converted). Also, just caught the warning about treating as HYPOthyroid if it is actually Hashimoto's..? I should know this, but I'm still confused about how Hashi is treated differently than hypothyroid. Is it because Hashi tends to go from hypo- to hyper-? Again, please correct any wrong assumptions! EDIT: My thyroid makes me cranky. :o
Pristiq tapered over 8 months ending Spring 2011 after 18 years of polydrugging that began w/Zoloft for fatigue/general malaise (not mood). CURRENT: 1mg Klonopin qhs (SSRI bruxism), 75mg trazodone qhs, various hormonesLitigation for 11 years for Work-related injury, settled 2004. Involuntary medical retirement in 2001 (age 39). 2012 - brain MRI showing diffuse, chronic cerebrovascular damage/demyelination possibly vasculitis/cerebritis. Dx w/autoimmune polyendocrine failure.<p>2013 - Dx w/CNS Sjogren's Lupus (FANA antibodies first appeared in 1997 but missed by doc).

#59 Karma

Karma

    Gold star

  • Administrators
  • PipPipPipPip
  • 1,090 posts
  • LocationColorado

Posted 14 September 2012 - 07:14 PM

I got interrupted, but I had a question for Karma.

Karma, is your Reverse T3 lowered now that you are on hormone therapy?

Thanks

Hi Alex

Sorry for delayed responses - I've been buried again this week ...

Yes ... my RT3 lowered significantly to basically nothing ... by taking T3 only to the suppression of TSH my body no longer produces its own T4 and therefore, there is nothing the body can convert to RT3. T3 only therapy over 12 weeks allowed the existing RT3 and T4 to decay and ultimately allowed my T3 receptors to free up and accept active T3.

The body converts T4 to active T3 and RT3. Low iron, adrenal issues, excessive dieting can cause the body to produce excess RT3 ... when that happens the RT3 which is a mirror image of active T3 attaches to the cell receptors and blocks active T3 from attaching to the cell receptors.

Not a medical professional ... just sharing what I've learned

Hashi's does swing from HYPER to HYPO ... when treating with natural desiccated thyroid to the suppression of TSH the body no longer produces significant thyroid and the patient no longer experiences swings form HYPER to HYPO.

I'll write more later ... cite some sources ... exhausted.

Karma

2007 @ 375 mg Effexor - 11/29/2011 - 43.75 mg Effexor (regular) & 1 mg Xanax & 200 mg Gabapentin
Xanax taper: 3/11/12 - 0.9375 mg, 3/25/12 - 0.875 mg, 4/6/12 - 0.8125 mg, 4/18/12 - 0.75 mg - hold
Effexor taper: 1/29/12 - 40.625 mg, 4/29/12 - 39.875 mg, 5/11/12 - Switched to liquid Effexor, 5/25/12 - 38 mg, 7/6/12 - 35 mg, 8/17/12 - 32 mg, 9/14/12 - 30 mg, 10/19/12 - 28 mg, 11/9/12 - 26 mg, 11/30/12 - 24 mg, 01/14/13 - 22 mg. 02/25/13 - 20.8 mg, 03/18/13 - 19.2 mg, 4/15/13 - 17.6 mg, 8/10/13 - 16.4 mg, 9/7/13 - 15.2 mg, 10/19/13 - 14 mg, 1/15/14 - 13.2 mg, 3/1/2014 - 12.6 mg, 5/4/14 - 12 mg, 8/1/14 - 11.4 mg, 8/29/14 - 10.8 mg; 10/14/14 - 10.2 mg; 12/15/14 - 10 mg, 1/11/15 - 9.5 mg, 2/8/15 - 9 mg, 3/21/15 - 8.5 mg, 5/1/15 - 8 mg, 6/9/15 - 7.5 mg, 7/8/15 - 7 mg, 8/22/15 - 6.5 mg, 10/4/15 - 6 mg; 1/1/16 - 5.6 mg; 2/6/16 - 5.2 mg; 4/9 - 4.8 mg; 7/7 4.5 mg; 10/7 4.25 mg; 11/4 4.0 mg; 11/25 3.8 mg; 4/24 3.6 mg

I am not a medical professional - this is not medical advice. My suggestions are based on personal experience, reading, observation and anecdotal information posted by other sufferers


#60 alexjuice

alexjuice

    Member

  • Members
  • PipPipPipPipPip
  • 2,300 posts
  • LocationUndisclosed USA

Posted 14 September 2012 - 07:48 PM

Thanks Karma, That explains a lot. Doc reran my labs because this last time things went way off baseline and I've been worse than ever so I expect some janky results. Frequently it's the rT3 that's been off for me, a couple times I've had a high/low TSH but never outside the labs range. What I eat seems the most critical component. Since I've been out of the house (4 weeks now) I have been eating so irregular, I'm just getting worse. I twice thought I found an apartment but am still here, the hotel. Thanks for the info on the thyroid. Alex

"Well my ship's been split to splinters and it's sinking fast
I'm drowning in the poison, got no future, got no past
But my heart is not weary, it's light and it's free
I've got nothing but affection for all those who sailed with me.

Everybody's moving, if they ain't already there
Everybody's got to move somewhere
Stick with me baby, stick with me anyhow
Things should start to get interesting right about now."

- Zimmerman


#61 Nikki

Nikki

    Platinum star

  • Members
  • PipPipPipPipPip
  • 2,425 posts
  • LocationUSA

Posted 15 October 2012 - 04:24 PM

A neighbor of mine has suffered with depression CFS and EBV for years.

Her idiot doctor put her on Effexor and abruptly took her off of it several times and tried every med under the sun. The doctor does not know about severe WD symptoms from Effexor.
So it seemed like nothing was working when it was actually WD.

Her Endocrinologist never bothered to look deeply into her thyroid issue.

She finally found a doctor who's wife has Hoshimotos.

Hoshimotos is an autoimmune disease. CFS is considered and autoimmune issue and Epstein-Barr Virus is as well.

Apparently one of the tests (deeper ones) was 99 and the normal number is 35. There are other tests and then a treatment plan will be implemented. Using meds and a holistic approach.

They discovered that she has (Barb this made me think of you) an adrenal issue which is autoimmune as well. This poor woman was being treated by a Psychiatrist who sent her for 11 ECT treatments and she was worse off. She was Baker acted for telling a psychiatrist that she wanted to end her life from the depression.

After all of these years she may finally be getting to the root of her depression which was further compromised by all of the autoimmune disorders. And like Barb, she she has little, if any adrenal function.

I believe she was properly diagnosed.

Many A/D's over the years, the biggest culprit being effexor which she is still on. she can't sleep without Ativan.

Barb you may not be alone....I will find out the name of the group she is seeing.

Very sad....

Intro: http://survivinganti...ndown-with-ads/

 

Paxil 1997-2004

Crossed over to Lexapro Paxil not available

at Pharmacies GSK halted deliveries

Lexapro 40mgs

Lexapro taper (2years)

Imipramine

Imipramine and Celexa

Now Nefazadone/Imipramine 50mgs. each

45mgs. Serzone  50mgs. Imipramine


#62 Mixter

Mixter

    Member

  • Members
  • PipPip
  • 38 posts
  • LocationStockholm, Sweden

Posted 16 October 2012 - 10:22 PM

There is something that can help, Low dose Naltrexone. Myself I am using it with some good results. It's amazing what it does to people, really. Read more here: http://www.lowdosenaltrexone.org/ Also cut caffeine, and up Magnesium, B vitamins, with Omega-3/Coconut oil, good diet etc

#63 GiaK

GiaK

    Gold star

  • Members
  • PipPipPipPip
  • 1,479 posts
  • LocationAppalachia

Posted 17 October 2012 - 02:19 AM

LDN is potentially helpful to a lot of people. Charles Whitlock MD recommends it in some cases of withdrawal as well... Just to let people know though...it MESSED me up good...total intense stimulation...AWFUL... BUT...I have a close friend with MS and her life was transformed on it... in general I'd say it's one of the safest and most truly therapeutic drugs out there...if it works for you and it's potentially very helpful for all sorts of auto-immune issues.

Beyond Meds: http://beyondmeds.com/

I withdrew from a cocktail of 6 psychiatric drugs that included every class of psych drug.

I took a bit over 6 years to do it. Finished on Feb 9 2010. I'm still recovering from iatrogenesis.


#64 Nadia

Nadia

    Silver star

  • Members
  • PipPipPip
  • 923 posts
  • LocationSomewhere

Posted 17 October 2012 - 02:58 PM

I have been really curious about LDN for a while... in the desperate search for a cure, and because I hear it can help with CFS (which I have neverbeen diagnosed with but suspect I could be... had chronic mono in my early 20s), I have wondered if there is any chance it could help me. That is very interesting that there is a doctor attempting using it for withdrawal. I am skeptical of a "cure-all" drug, but maybe it is like magnesium, which can help a bunch of issues. I wish I could get it in my country. I would be willing to try it, as it seems it is fairly innocuous. GiaK, did the bad effect it had on you last a long time? Mixter, what did you first take the LDN for? Maybe we should have an LDN thread?

'94-'08 On/off ADs. Mostly Zoloft & Wellbutrin, but also Prozac, Celexa, Effexor, etc.
6/08 quit Z & W after tapering, awful anxiety 3 mos. later, reinstated.
11/10 CTed. Severe anxiety 3 mos. later & @ 8 mos. much worse (set off by metronidazole). Anxiety, depression, anhedonia, DP, DR, dizziness, severe insomnia, high serum AM cortisol, flu-like feelings, muscle discomfort.
9/11-9/12 Waves and windows of recovery.
10/12 Awful relapse, DP/DR. Hydrocortisone?
11/12 Improved fairly quickly even though relapse was one of worst waves ever.

1/13 Best I've ever felt.

3/13 A bit of a relapse... then faster and shorter waves and windows.

4/14 Have to watch out for triggers, but feel completely normal about 80% of the time.


#65 GiaK

GiaK

    Gold star

  • Members
  • PipPipPipPip
  • 1,479 posts
  • LocationAppalachia

Posted 17 October 2012 - 03:07 PM

I think it lasted several days, but I was in the worst hell of hells when I tried it too...and most people don't get as sick as I was even among us...so my sense is if one tries it very very carefully starting at the very lowest low dose it most likely wouldn't be a huge set back...but I've also not seen it used in our communities so that is really just a wild guess...

Beyond Meds: http://beyondmeds.com/

I withdrew from a cocktail of 6 psychiatric drugs that included every class of psych drug.

I took a bit over 6 years to do it. Finished on Feb 9 2010. I'm still recovering from iatrogenesis.


#66 bubbles

bubbles

    Silver star

  • Members
  • PipPipPip
  • 282 posts
  • Locationsomewhere

Posted 17 October 2012 - 11:00 PM

I have just been to a naturopath who - next visit, after some hormonal tests come back - is planning to "treat the Hashimotos". I am a skeptic... But will see what she says. \ B

My thread here at AS: http://survivinganti...-bubbles/page-3

2001 Hashimotos diagnosis

2005 St John's Wort

2006 Lexapro 20mg

2 unsuccessful attempts to discontinue

Discontinued successfully over 5 or so months in early 2012

January 2013 started sertraline, over time worked way up to 100mg

July 2014 dropped from 100mg to 75mg, held for several months

January 2015 started to taper to 50mg over several months, held for several months

February 2016 at 35mg

6 March 2016 at 33 mg

(also takes Armour Thyroid plus a small dose T4)


#67 Barbarannamated

Barbarannamated

    Platinum star

  • Members
  • PipPipPipPipPip
  • 4,179 posts
  • LocationSouthern California

Posted 18 October 2012 - 02:42 PM

I'm very interested in LDN for autoimmunity, also. I'm an AI mess, including CNS vasculitis, and NOT tolerating even low dose hydrocortisone. The next step is to use chemo drugs to suppress immune system and I will not do that at this point. There is too much overlap with onset of withdrawal symptoms and CNS vasculitis (perceptual disturbances, mostly) that has been present for many years per MRI. Bubbles, how is your Naturopath planning to treat Hashimoto's?
Pristiq tapered over 8 months ending Spring 2011 after 18 years of polydrugging that began w/Zoloft for fatigue/general malaise (not mood). CURRENT: 1mg Klonopin qhs (SSRI bruxism), 75mg trazodone qhs, various hormonesLitigation for 11 years for Work-related injury, settled 2004. Involuntary medical retirement in 2001 (age 39). 2012 - brain MRI showing diffuse, chronic cerebrovascular damage/demyelination possibly vasculitis/cerebritis. Dx w/autoimmune polyendocrine failure.<p>2013 - Dx w/CNS Sjogren's Lupus (FANA antibodies first appeared in 1997 but missed by doc).

#68 bubbles

bubbles

    Silver star

  • Members
  • PipPipPip
  • 282 posts
  • Locationsomewhere

Posted 18 October 2012 - 04:00 PM

Barbara, I didn't ask. It was a long appointment and we went overtime as it was. I figured we'd wait until we got the saliva hormone levels and see then what she suggested and discuss it then. Next appointment is in about a month, assuming results are in by then. B

My thread here at AS: http://survivinganti...-bubbles/page-3

2001 Hashimotos diagnosis

2005 St John's Wort

2006 Lexapro 20mg

2 unsuccessful attempts to discontinue

Discontinued successfully over 5 or so months in early 2012

January 2013 started sertraline, over time worked way up to 100mg

July 2014 dropped from 100mg to 75mg, held for several months

January 2015 started to taper to 50mg over several months, held for several months

February 2016 at 35mg

6 March 2016 at 33 mg

(also takes Armour Thyroid plus a small dose T4)


#69 Barbarannamated

Barbarannamated

    Platinum star

  • Members
  • PipPipPipPipPip
  • 4,179 posts
  • LocationSouthern California

Posted 18 October 2012 - 04:54 PM

Mixter, Can you tell us more about your experience with LDN? What are you using it for? Anyone, Any information, anecdotal or other, very much appreciated. I am awaiting approval to join the Yahoo group. I'm intrigued because it works with endorphins and opiates. I never responded to serotonergics except with worsening mood over the years. I felt *normal* on opiates. I was on very low dose Suboxone (related to naltrexone) for a few years and stopped it in fall of 2011 when I ran out. It was about a month after that that protracted withdrawal really hit me. I can't imagine the low dose I was on was doing anything (1/2 tab 1-2x per week prn). But... I'm curious. My MRI showed lesions in white matter but not with MS pattern. A longshot, but worth a look.
Pristiq tapered over 8 months ending Spring 2011 after 18 years of polydrugging that began w/Zoloft for fatigue/general malaise (not mood). CURRENT: 1mg Klonopin qhs (SSRI bruxism), 75mg trazodone qhs, various hormonesLitigation for 11 years for Work-related injury, settled 2004. Involuntary medical retirement in 2001 (age 39). 2012 - brain MRI showing diffuse, chronic cerebrovascular damage/demyelination possibly vasculitis/cerebritis. Dx w/autoimmune polyendocrine failure.<p>2013 - Dx w/CNS Sjogren's Lupus (FANA antibodies first appeared in 1997 but missed by doc).

#70 Nadia

Nadia

    Silver star

  • Members
  • PipPipPip
  • 923 posts
  • LocationSomewhere

Posted 18 October 2012 - 09:18 PM

Yes, I want to know more, too. Let us know what you find out, Barb. My dad had vasculitis, but a different kin as yours,, both my sister and mom have thyroid disease, and my niece has ulcerative colitis. So autoimmune stuff is on my mind a lot. I might make a trip to California to see someone who could help me, if I can manage it financially with no health insurance.

'94-'08 On/off ADs. Mostly Zoloft & Wellbutrin, but also Prozac, Celexa, Effexor, etc.
6/08 quit Z & W after tapering, awful anxiety 3 mos. later, reinstated.
11/10 CTed. Severe anxiety 3 mos. later & @ 8 mos. much worse (set off by metronidazole). Anxiety, depression, anhedonia, DP, DR, dizziness, severe insomnia, high serum AM cortisol, flu-like feelings, muscle discomfort.
9/11-9/12 Waves and windows of recovery.
10/12 Awful relapse, DP/DR. Hydrocortisone?
11/12 Improved fairly quickly even though relapse was one of worst waves ever.

1/13 Best I've ever felt.

3/13 A bit of a relapse... then faster and shorter waves and windows.

4/14 Have to watch out for triggers, but feel completely normal about 80% of the time.


#71 Altostrata

Altostrata

    Administrator

  • Administrators
  • PipPipPipPipPipPip
  • 24,091 posts
  • LocationSan Francisco, CA

Posted 24 October 2012 - 09:04 AM

One can have thyroid inflammation, which leads to the diagnosis of Hashimoto's, until you die, without enough thyroid disruption to warrant treatment with thyroid hormone.
This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

#72 alexjuice

alexjuice

    Member

  • Members
  • PipPipPipPipPip
  • 2,300 posts
  • LocationUndisclosed USA

Posted 24 October 2012 - 04:53 PM

I've recently been diagnosed with Hashimoto's and then, by another physician, undiagnosed. Autoimmune issues recently became a big problem for me. I agree with Alto in that testing for antibodies doesn't necessarily mean that a person needs hormone replacement. It is totally possible for immune system to dysregulate and then re-regulate. There is a point for that, when glands are unable to meet demand, but antibodies should appear well before that point arrives. When I not too disoriented, I've spent time reading on various treatments and causative hypotheses. The leaky gut hypothesis is pretty popular among alt-health bloggers. But there seems to be two camps. The first, leaky gut allows food proteins to activate immune response and the second, leaky gut fosters chronic infection. I have no expertise here, but I am glad I got a stool test back in May. Unfortunately, it was misinterpreted for months and my infection is actually difficult to treat. However, it is also rare. Most early stage patients would probably do well, IMO, to examine GI for evidence of viral/bacterial/fungal infection. Down the road, like in my case, it becomes more difficult. For me, I feel uneasy about LDN and it's towards the last resort side of the curve. I don't see how it remedies any underlying, and I am personally trying to address the underlying as I am not so symptomatic that symptoms need immediate attention. Hopefully, I can treat my infection and see better what problems remain. I've been reading an interesting blog lately, perfecthealthdiet.com ... Maybe confirmation bias, but I find the writers' views compatible with my own thoughts about, for instance, the GAPS diet. perfecthealthdiet.com tends to stress the infectious component of poor health, which probably has influenced my thinking. I also tend towards the infection explanation because I am suffering from an infection which affects me every moment.

"Well my ship's been split to splinters and it's sinking fast
I'm drowning in the poison, got no future, got no past
But my heart is not weary, it's light and it's free
I've got nothing but affection for all those who sailed with me.

Everybody's moving, if they ain't already there
Everybody's got to move somewhere
Stick with me baby, stick with me anyhow
Things should start to get interesting right about now."

- Zimmerman