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Tinnitus: What does all that noise mean?


Maybe

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  • Moderator Emeritus

Tinnitus is just another withdrawal/ toxicity symptom. Some people first develop it when starting meds.

and it's an indication that there's too much drug for the person to tolerate.

 

Other people develop it as a withdrawal symptom , and it can begin up to 18 months after stopping.

See our thread on "Head Noise and other symptoms in the Head" here https://www.google.com.au/url?sa=t&rct=j&q=&esrc=s&source=web&cd=4&cad=rja&uact=8&ved=0ahUKEwjpp5Pd6fnLAhXjKqYKHdk4BowQFggvMAM&url=http%3A%2F%2Fsurvivingantidepressants.org%2Findex.php%3F%2Ftopic%2F1388-head-noise-and-other-symptoms-in-the-head%2Fpage-2&usg=AFQjCNGodZQQjJtonjRmx5IBN0r5j6pG0w&sig2=fzoP6ykmVbQMIZzP5w2CSQ&bvm=bv.118443451,d.dGY

1987-1997 pertofran , prothiaden , Prozac 1997-2002 Zoloft 2002-2004 effexor 2004-2010 Lexapro 40mg

2010-2012Cymbalta 120mg

Sept. 2012 -decreased 90mg in 6months. Care taken over by Dr Lucire in March 2013 , decreased last 30mg at 2mg per week over 3 months. July 21 , 2013- last dose of Cymbalta

Protracted withdrawal syndrome kicked in badly Jan.2014 Unrelenting akathisia until May 2014. Voluntary hosp. admission. Cocktail of Seroquel, Ativan and mirtazapine and I was well enough to go home after 14 days. Stopped all hosp. meds in next few months.

July 2014 felt v.depressed - couldn't stop crying. Started pristiq 50mg. Felt improvement within days and continued to improve, so stayed on 50mg for 8 months.

Began taper 28 Feb. 2015. Pristiq 50mg down to 45mg. Had one month of w/d symptoms. Started CES therapy in March. No w/d symptoms down to 30mg.

October 2015 , taking 25mg Pristiq. Capsules compounded with slow-release additive.

March 2016 , 21mg

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Is it common for, or has anyone else experienced evolving tinnitus? Mine changes every month or so...or roughly every 5 to 7 weeks. I get a new tinnitus sound added on each time. This is concerning to me. Can withdrawal do this?

March 2015: doctor lowered me from 60mg to 40mg Cymbalta, resulting in severe withdrawals.

April 2015: raised to 50mg Cymbalta; by end of month back up to 60mg, but didn't stabilize.

June 2015: raised to 90mg Cymbalta resulting in overdose/intolerance of drug.

July 2015: started on Neurontin (1800mg) and Seroquel (75mg)

September 2015: came off Cymbalta after weaning down 1mg per day.

October 2015: began Lexapro 5mg, then 7.5mg. Increased Neurontin to 1900mg and Seroquel to 125mg.

 

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  • Moderator Emeritus

Mine changes also.  Sometimes it's high-pitched sounds, sometimes one ear, sometimes two, sometimes a roaring ocean kind of noise.  Sometimes constant, sometimes it changes with my movements. 

 

I believe it's just my brain working through what it needs to in order to heal.

2010  Fluoxetine 20mg.  2011  Escitalopram 20mg.  2013 Tapered badly and destabilised CNS.  Effexor 150mg. 

2015 Begin using info at SurvivingAntidepressants.  Cut 10% - bad w/d 2 months, held 1 month. 

Micro-tapering: four weekly 0.4% cuts, hold 4 weeks (struggling with symptoms).

8 month hold.

2017 Micro-tapering: four weekly 1% cuts, hold 4 weeks (symptoms almost non-existent).

2020 Still micro-tapering. Just over 2/3 of the way off effexor. Minimal symptoms, - and sleeping well.
Supplements: Fish oil, vitamin C, iron, oat-straw tea, nettle tea.

2023 Now on 7 micro-beads of Effexor. Minimal symptoms but much more time needed between drops.

 'The possibility of renewal exists so long as life exists.'  Dr Gabor Mate.

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Mines been going for 9 months now.

 

It varies in intensity and pitch and also sometimes sounds like a jet engine. I have actually learned to live with it - it's pain I struggle with.

 

However thanks to SG and friends, I am now onto Mr Echart Tohl and the Pain Body. Working on my understanding of the psychology behind this.

Dose History: 19 Feb 2014 - Escitalopram 10mg daily June 2015 - Started taper, 5mg every other day July 2015 - 5mg every 2 days August 2015 - 5mg every 3 days September 2015 - 5mg every 4 days Sept 14th - Completed tapering, but at 7 weeks "drug free" I suffered serious WD symptoms as a consequence of "incorrect" tapering. Nov 25 2015 - Re-instated Cipralex @ 2.5mg daily. WD symptoms faded. Held at this dose and experienced "windows and waves". 12 Oct 2017 Reduced dose to 1.25mg. 13 Mar 2018 Reduced dose to 0.625mg (approx.). 16 April 2018 0mg. Windows and waves triggered by stress (IBS/reflux, headaches, sinus issues) Aug 2019 Mirena coil fitted 6 Jan 2020 MAJOR Wave hit 19 months following last dose (protracted WD).  Symptoms listed below Mar 2020 Mirena coil removal.

Therapy: Nov 15th 2016 Re-started therapy Jan 19th 2017 Started CBT Dec 2017 Started listening to Hypnotherapy CD (self-esteem). Nov 2019 Started couples therapy.

Supplements: "Bioglan" Biotic Balance Ultimate Flora 10 billion CFU, live Bacteria, Probiotic, suitable for Vegetarians, with Lactobacillus Acidophilus, Lactobacillus Rhamnosus, Bifidobacterium Longum"Pukka" Vitalise a unique blend of 30 energising botanicals.

Diet: 16 April 2018 Detox cleanse / anti-candida for 90 days. Jan 2020 Started "small plate" diet (i.e child size portions).

Exercise: Stretching, Yoga, Pilates, Spinning, Elliptical/upper body workout, walking.

Medical Test Results: 4 Jan 2017 Homeopathic Treatment starts 24 Feb 2017 Started weight loss program 24 Mar 2017 Naturopathic Treatment + anti-Candida diet started due to suspected Candida Related Complex (CRC). DETOXED for 7 weeks to "re-set" gut. April 2017 "Genova Diagnostics" Comprehensive Stool Analysis NEGATIVE; Full Blood Count (Normal) / Blood Cholesterol: 5.6 (Borderline) / Blood Sugar (Normal) / 28 Jun 2017 FSH 8.2 / 14 Nov 2017 FSH 17.7 Dec 2017 Blood Cholesterol: 3.9 (Normal) / Kidney Function (Normal) / Blood Sugar (Normal). December 2017 "Genova Diagnostics" Food panel allergy (bloodwork) analysis - a few "VERY LOW/VL" allergens; Mar 2018 "Genova Diagnostics" SIBO urine analysis: High Level of Yeast/fungal markers found in small intestine but NO SIBO.  April 2018 Thyroid (Normal) / Full Blood Count (Normal) / FSH (Normal). 16 April 2018 Started anti-Candida diet - 3 month protocol.   25 March 2020 All test results "Normal". CRP" 5 mg/L (normal range to 0-5 mg/L).

Symptoms:  Flu-like symptoms, anxiety, anhedonia, sinus headaches right-side (severe), IBS issues/reflux (severe)**, tinnitus, fatigue, inner tremor, nausea, chills/hot flushes, pounding heart, muscular issues including stiff left hip flexor, intense anger, PSSD (ongoing).  **Histhamine intolerance (suspected).

Major Life Events: 

Re-located to UK from Canada: Jan 2016

My father died: 5:05pm, Monday 5 Feb 2018 Last Lexapro dose: 16 April 2018 (its now been over a year since I quit ADs)  Moved house: Friday 23rd February 2018  "Divorced" toxic Mother: Monday 26 March 2018 Starting working again: 19 November 2018  Diagnosed with: 5th August 2021 PTSD/C-PTSD Diagnosed with: March 2022 Interstitial Cystitis (IC)/Painful bladder syndrome

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My story with tinnitus has been somewhat confusing. When I think about it, I might have developed some sort of tinnitus when I was younger, and most likely forgot about it. Reason why, during my second week of reinstatement until now, it might have been resurfaced when I looked into it for the first time on detail. However, Hyperacusis has been something I've never experienced before and now follows my former symptoms. Worse because this Sunday I've experienced a screeching noise during a subway trip and I'm dreading that it might have damaged my inner ears. I just don't know if this symptom had resurfaced due to the reinstatement of because of the WD. It is something I've never experienced before, and I've gone off Lexapro CT more than once.

A Doctor prescribed me with Lexapro and Ritalin during 2013
Stopped Cold-Turkey during the run of 2014 and I did leave harmless.
Reinstated in cycles during 2015 (around 10- 20mg), stopped for a couple of monhts until 2016 (Reinstated in cycles around 7.5mg) and interrupted once again.

At least I don't miss Ritalin.


03/17/2016 Reinstatement of Lexapro under: 1 mg

Feeling somewhat stable, mild physical symptoms and psychological, mostly related to memory, brain fog and an annoying tinnitus.

05/16/2016 Started Microtapering: went to 0.9.5 and going for 0.9 in a week.

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  • Moderator Emeritus

You've differentiated between tinnitus (ringing in the ears , sounds inside the head) and hyperacusis , sensitivity

to sounds outside the head. So many of us have that experiences of even small noises becoming unbearable ,

uncomfortable like nails screeching on a blackboard. I literally jump when I hear a door slam , and am particularly

sensitive to noises from neighbours where I live. Each additional time we start and stop medications , we're prone

to develop new symptoms.

 

Neither of these symptoms is permanent , so the screeching subway isn't likely to have done any permanent damage.

Perhaps you would like to start a topic about "hyperacusis" in this section?

1987-1997 pertofran , prothiaden , Prozac 1997-2002 Zoloft 2002-2004 effexor 2004-2010 Lexapro 40mg

2010-2012Cymbalta 120mg

Sept. 2012 -decreased 90mg in 6months. Care taken over by Dr Lucire in March 2013 , decreased last 30mg at 2mg per week over 3 months. July 21 , 2013- last dose of Cymbalta

Protracted withdrawal syndrome kicked in badly Jan.2014 Unrelenting akathisia until May 2014. Voluntary hosp. admission. Cocktail of Seroquel, Ativan and mirtazapine and I was well enough to go home after 14 days. Stopped all hosp. meds in next few months.

July 2014 felt v.depressed - couldn't stop crying. Started pristiq 50mg. Felt improvement within days and continued to improve, so stayed on 50mg for 8 months.

Began taper 28 Feb. 2015. Pristiq 50mg down to 45mg. Had one month of w/d symptoms. Started CES therapy in March. No w/d symptoms down to 30mg.

October 2015 , taking 25mg Pristiq. Capsules compounded with slow-release additive.

March 2016 , 21mg

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  • Moderator Emeritus
"Hyperacusis is the name for intolerance to everyday sounds that causes significant distress and affects a person's day-to-day activities.

 

The condition can vary quite a lot. For example, some people find loud noises extremely uncomfortable, some find certain noises particularly annoying, some develop a fear of certain noises, while others experience pain when hearing ordinary sounds.


 

Hyperacusis can also be a side effect of certain medications. If you're taking any medication, check the leaflet it comes with to see if hyperacusis is listed as a possible side effect".

 


The NHS Choices website has more info and links about tinnitus and Hyperacusis

2001: 20mg paroxetine
2003-2014: Switched between 20mg citalopram and 10mg escitalopram with several failed CT's
2015: Jan/ Feb-very fast taper off citalopram; Mar/ Apr-crashed; 23 Apr-reinstated 5mg; 05 May-updosed to 10mg; 15 Jul-started taper; Aug-9.0mg; Sep-8.1mg; Oct-7.6mg; Nov-6.8mg; Dec-6.2mg
2016: Jan-5.7mg; Feb-5.2mg; Mar-5.0mg;  Apr-4.5mg; May-4.05mg; Jun-3.65mg; Jul-3.3mg; Aug-2.95mg; 04Sep-2.65mg; 25Sep-2.4mg; 23Oct-2.15mg; 13Nov-1.95mg; 04Dec-1.75mg; 25Dec-1.55mg.
2017: 08Jan-1.4mg; 22Jan-1.25mg; 12Feb-1.1mg; 26Feb-1.0mg; 05Mar-0.9mg; 15Mar-0.8mg; 22Mar-0.7mg; 02Apr-0.6; 09Apr-0.5mg; 16Apr-0.4mg; 23Apr-0.3; 03May-0.2mg; 10May-0.1mg

Finished taper 17 May 2017.

Read my success story

 

I am not a medical professional. The information I provide is not medical advice. If in doubt please consult with a qualified healthcare provider.

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Mine changes too ......... for the most part I just live with it with the help of white noise from the radio or TV. I used to get a few hours break from it every few weeks (such blissful silence) but have not for a very long time. At 5 years off I figure this one may be permanent ....... not great but there are far worse things ....... like still being on these foul poisons.

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  • 9 months later...

I have a type of pulsating tinnitus in one ear. It is as if magnified heart beat that I hear in my ear. Irritating in times. Don't know if I should investigate it further or treat ad WD? I have had it for over half a year...

Has anybody have symptom like this? What could be an explanation?

- 12.03.2021- doxepin- 50mg

- 6.11.2020- 75mg

- 16.10.2020- 100mg

- 30.09.2020- doxepin- 125mg

- May 2020, omeprazole 40mg switched to esomeprazole 20mg

- 2012 re-started Doxepin 75mg, evening. Increased to 150mg

- 2012, Atenolol 25mg, twice a day

- 2016, Low dose of HRT in evening, Sandrena and Utrogestan 

- Long term of Nasal spray Otrivine

- 2012, PPI Omeprazole 40mg-evening

24.10.2014- Started ESCITALOPRAM-first 5mg and then 10mg; due to the adverse symptoms reduced on 5.01.2015- Escitalopram- 2.5mg 22.07.2016- re-started reduction by 1% at a time. Completed tappering on  19.03.2020 😇

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  • Moderator Emeritus

Hi ikam,

 

Have you had your blood pressure checked?

* NO LONGER ACTIVE on SA *

MISSION ACCOMPLISHED:  (6 year taper)      0mg Pristiq  on 13th November 2021

ADs since ~1992:  25+ years - 1 unknown, Prozac (muscle weakness), Zoloft; citalopram (pooped out) CTed (very sick for 2.5 wks a few months after); Pristiq:  50mg 2012, 100mg beg 2013 (Serotonin Toxicity)  Tapering from Oct 2015 - 13 Nov 2021   LAST DOSE 0.0025mg

Post 0 updates start here    My tapering program     My Intro (goes to tapering graph)

 VIDEO:   Antidepressant Withdrawal Syndrome and its Management

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I don't have high BP...it usually happens just before I go to sleep, in bed and when I wake up

- 12.03.2021- doxepin- 50mg

- 6.11.2020- 75mg

- 16.10.2020- 100mg

- 30.09.2020- doxepin- 125mg

- May 2020, omeprazole 40mg switched to esomeprazole 20mg

- 2012 re-started Doxepin 75mg, evening. Increased to 150mg

- 2012, Atenolol 25mg, twice a day

- 2016, Low dose of HRT in evening, Sandrena and Utrogestan 

- Long term of Nasal spray Otrivine

- 2012, PPI Omeprazole 40mg-evening

24.10.2014- Started ESCITALOPRAM-first 5mg and then 10mg; due to the adverse symptoms reduced on 5.01.2015- Escitalopram- 2.5mg 22.07.2016- re-started reduction by 1% at a time. Completed tappering on  19.03.2020 😇

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  • Moderator Emeritus

When I've had tinnitus these are the times I get it too, though mine presented differently.  I recall that turning over in bed would set it off, and lying still made it a bit better.

2010  Fluoxetine 20mg.  2011  Escitalopram 20mg.  2013 Tapered badly and destabilised CNS.  Effexor 150mg. 

2015 Begin using info at SurvivingAntidepressants.  Cut 10% - bad w/d 2 months, held 1 month. 

Micro-tapering: four weekly 0.4% cuts, hold 4 weeks (struggling with symptoms).

8 month hold.

2017 Micro-tapering: four weekly 1% cuts, hold 4 weeks (symptoms almost non-existent).

2020 Still micro-tapering. Just over 2/3 of the way off effexor. Minimal symptoms, - and sleeping well.
Supplements: Fish oil, vitamin C, iron, oat-straw tea, nettle tea.

2023 Now on 7 micro-beads of Effexor. Minimal symptoms but much more time needed between drops.

 'The possibility of renewal exists so long as life exists.'  Dr Gabor Mate.

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it seems similar with me, lying still makes it better...

- 12.03.2021- doxepin- 50mg

- 6.11.2020- 75mg

- 16.10.2020- 100mg

- 30.09.2020- doxepin- 125mg

- May 2020, omeprazole 40mg switched to esomeprazole 20mg

- 2012 re-started Doxepin 75mg, evening. Increased to 150mg

- 2012, Atenolol 25mg, twice a day

- 2016, Low dose of HRT in evening, Sandrena and Utrogestan 

- Long term of Nasal spray Otrivine

- 2012, PPI Omeprazole 40mg-evening

24.10.2014- Started ESCITALOPRAM-first 5mg and then 10mg; due to the adverse symptoms reduced on 5.01.2015- Escitalopram- 2.5mg 22.07.2016- re-started reduction by 1% at a time. Completed tappering on  19.03.2020 😇

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These last couple of weeks the ringing in my ears or tinitus or whatever it is, has gotten very intense, and the last week i almost feel like i can here birdsinging all the time, and it is making me crazy. Will this maybe fade soon, I hope the tinitus is better in a couple of days, because it was so intense today that i couldn't watch tv, I panicked because i thought i could hear birdsinging in the program i saw, and i need that to distract myself. I dont know what to do, this is so hard! Please help

2010 - 2015: 50mg Sertraline, 30mg Mirtazapine.

2015 - 2016: Last dose Mirtazapine 28.11.2015 and Sertraline 04.01.2016. (6 months taper)

2016/June: 6 months off. Feeling better but a lot of symptoms, name one and i have it.

2016/Dec: 12 months off. Hit a very bad wave, can't function at this moment, isolate and many intense symptoms. Very intense heart palpitations and very intense anxiety.

2017/June: 18 months off. Things are better, experiencing a lot of flashbacks, walking everyday.

2017/Nov: Things have finally started to improve and i'm now much better than a year ago, starting to feel a lot of improvements, but still symptoms that come in waves and windows.  

2018/June: Feeling better. Starting to do some normal things again, but still some improvements needed. All symptoms still there, just less intense.

2018/Oct: Almost 3 years off. Symptoms are milder and more manageable, but lots of anger issues at the moment. Still some depersonalization etc. Heart palpitations almost gone. There's hope.

2021/april: 5 years and 3 months off. Symptoms less intense, but still struggling, still not able to socialize much, very tired, i just want to feel normal again. In a tough and awful wave.

 

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I have found white noise cd helpful in times...

 

when you get "pre-occupied" with it (I tend to do) it becomes worse...I try o minimise this, tell myself that it will pass; any additional emotions make it worse for me...

- 12.03.2021- doxepin- 50mg

- 6.11.2020- 75mg

- 16.10.2020- 100mg

- 30.09.2020- doxepin- 125mg

- May 2020, omeprazole 40mg switched to esomeprazole 20mg

- 2012 re-started Doxepin 75mg, evening. Increased to 150mg

- 2012, Atenolol 25mg, twice a day

- 2016, Low dose of HRT in evening, Sandrena and Utrogestan 

- Long term of Nasal spray Otrivine

- 2012, PPI Omeprazole 40mg-evening

24.10.2014- Started ESCITALOPRAM-first 5mg and then 10mg; due to the adverse symptoms reduced on 5.01.2015- Escitalopram- 2.5mg 22.07.2016- re-started reduction by 1% at a time. Completed tappering on  19.03.2020 😇

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I have found white noise cd helpful in times...

 

when you get "pre-occupied" with it (I tend to do) it becomes worse...I try o minimise this, tell myself that it will pass; any additional emotions make it worse for me...

Okay I will try that thanks. 

2010 - 2015: 50mg Sertraline, 30mg Mirtazapine.

2015 - 2016: Last dose Mirtazapine 28.11.2015 and Sertraline 04.01.2016. (6 months taper)

2016/June: 6 months off. Feeling better but a lot of symptoms, name one and i have it.

2016/Dec: 12 months off. Hit a very bad wave, can't function at this moment, isolate and many intense symptoms. Very intense heart palpitations and very intense anxiety.

2017/June: 18 months off. Things are better, experiencing a lot of flashbacks, walking everyday.

2017/Nov: Things have finally started to improve and i'm now much better than a year ago, starting to feel a lot of improvements, but still symptoms that come in waves and windows.  

2018/June: Feeling better. Starting to do some normal things again, but still some improvements needed. All symptoms still there, just less intense.

2018/Oct: Almost 3 years off. Symptoms are milder and more manageable, but lots of anger issues at the moment. Still some depersonalization etc. Heart palpitations almost gone. There's hope.

2021/april: 5 years and 3 months off. Symptoms less intense, but still struggling, still not able to socialize much, very tired, i just want to feel normal again. In a tough and awful wave.

 

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I have a type of pulsating tinnitus in one ear. It is as if magnified heart beat that I hear in my ear. Irritating in times. Don't know if I should investigate it further or treat ad WD? I have had it for over half a year...

Has anybody have symptom like this? What could be an explanation?

Paxil 10mg 21/2 years to June 2012 after a 2 month taper

 

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I ve had pulsatile tinnitus for 3 years. I hear it over the left side of my head. It has got quieter generally but the volume fluctuates with head , neck and shoulder tension. I will know I am fully recovered when it goes

Paxil 10mg 21/2 years to June 2012 after a 2 month taper

 

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I'm just wondering if any of you suffer with ear congestion/ pressure as well? I have for a year now. It came on two weeks after stopping celexa.

 

I just read a lot of articles about how common tinnitus is with ssris. Just a tip that I'm sure most of you know, but white noise really helps.

 

Also this is worth a try.

http://np.reddit.com/r/WTF/comments/3l3uri/these_guys_lighting_a_mortar_shell_in_their_garage/cv3474n

 

http://www.youtube.com/watch?v=2yDCox-qKbk

Current age - 29

 

At Ages 16- 20 Celexa 40 mg 

 

2014- September through February of 2016 ( 18 months) Celexa 20 mg

 

Tapered for Several months

 

Celexa free since February of 2016

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  • Moderator Emeritus

One of my withdrawal symptoms when I have dropped too much is ear pressure and sometimes I have had pain with it.  A couple of times it was so bad that I updosed.  On a couple of other occasions I was able to put up with it and didn't updose and it improved.

 

At one time my tinnitus was really bad and was driving me nuts but I have found that as my dose has got lower it is barely there and hardly bothers me now.

* NO LONGER ACTIVE on SA *

MISSION ACCOMPLISHED:  (6 year taper)      0mg Pristiq  on 13th November 2021

ADs since ~1992:  25+ years - 1 unknown, Prozac (muscle weakness), Zoloft; citalopram (pooped out) CTed (very sick for 2.5 wks a few months after); Pristiq:  50mg 2012, 100mg beg 2013 (Serotonin Toxicity)  Tapering from Oct 2015 - 13 Nov 2021   LAST DOSE 0.0025mg

Post 0 updates start here    My tapering program     My Intro (goes to tapering graph)

 VIDEO:   Antidepressant Withdrawal Syndrome and its Management

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Mine is still going strong after 14 months.

 

That oh so lovely high pitched tone that can suddenly drop in pitch or intensity.

Dose History: 19 Feb 2014 - Escitalopram 10mg daily June 2015 - Started taper, 5mg every other day July 2015 - 5mg every 2 days August 2015 - 5mg every 3 days September 2015 - 5mg every 4 days Sept 14th - Completed tapering, but at 7 weeks "drug free" I suffered serious WD symptoms as a consequence of "incorrect" tapering. Nov 25 2015 - Re-instated Cipralex @ 2.5mg daily. WD symptoms faded. Held at this dose and experienced "windows and waves". 12 Oct 2017 Reduced dose to 1.25mg. 13 Mar 2018 Reduced dose to 0.625mg (approx.). 16 April 2018 0mg. Windows and waves triggered by stress (IBS/reflux, headaches, sinus issues) Aug 2019 Mirena coil fitted 6 Jan 2020 MAJOR Wave hit 19 months following last dose (protracted WD).  Symptoms listed below Mar 2020 Mirena coil removal.

Therapy: Nov 15th 2016 Re-started therapy Jan 19th 2017 Started CBT Dec 2017 Started listening to Hypnotherapy CD (self-esteem). Nov 2019 Started couples therapy.

Supplements: "Bioglan" Biotic Balance Ultimate Flora 10 billion CFU, live Bacteria, Probiotic, suitable for Vegetarians, with Lactobacillus Acidophilus, Lactobacillus Rhamnosus, Bifidobacterium Longum"Pukka" Vitalise a unique blend of 30 energising botanicals.

Diet: 16 April 2018 Detox cleanse / anti-candida for 90 days. Jan 2020 Started "small plate" diet (i.e child size portions).

Exercise: Stretching, Yoga, Pilates, Spinning, Elliptical/upper body workout, walking.

Medical Test Results: 4 Jan 2017 Homeopathic Treatment starts 24 Feb 2017 Started weight loss program 24 Mar 2017 Naturopathic Treatment + anti-Candida diet started due to suspected Candida Related Complex (CRC). DETOXED for 7 weeks to "re-set" gut. April 2017 "Genova Diagnostics" Comprehensive Stool Analysis NEGATIVE; Full Blood Count (Normal) / Blood Cholesterol: 5.6 (Borderline) / Blood Sugar (Normal) / 28 Jun 2017 FSH 8.2 / 14 Nov 2017 FSH 17.7 Dec 2017 Blood Cholesterol: 3.9 (Normal) / Kidney Function (Normal) / Blood Sugar (Normal). December 2017 "Genova Diagnostics" Food panel allergy (bloodwork) analysis - a few "VERY LOW/VL" allergens; Mar 2018 "Genova Diagnostics" SIBO urine analysis: High Level of Yeast/fungal markers found in small intestine but NO SIBO.  April 2018 Thyroid (Normal) / Full Blood Count (Normal) / FSH (Normal). 16 April 2018 Started anti-Candida diet - 3 month protocol.   25 March 2020 All test results "Normal". CRP" 5 mg/L (normal range to 0-5 mg/L).

Symptoms:  Flu-like symptoms, anxiety, anhedonia, sinus headaches right-side (severe), IBS issues/reflux (severe)**, tinnitus, fatigue, inner tremor, nausea, chills/hot flushes, pounding heart, muscular issues including stiff left hip flexor, intense anger, PSSD (ongoing).  **Histhamine intolerance (suspected).

Major Life Events: 

Re-located to UK from Canada: Jan 2016

My father died: 5:05pm, Monday 5 Feb 2018 Last Lexapro dose: 16 April 2018 (its now been over a year since I quit ADs)  Moved house: Friday 23rd February 2018  "Divorced" toxic Mother: Monday 26 March 2018 Starting working again: 19 November 2018  Diagnosed with: 5th August 2021 PTSD/C-PTSD Diagnosed with: March 2022 Interstitial Cystitis (IC)/Painful bladder syndrome

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I have head noise and tinnitus. The tinnitus comes and goes and mostly notice at night, but the head noise (hard to describe other than that) has been a pretty much constant companion throughout WD. Interestingly enough, it has really lessened in the last couple of weeks, almost imperceptible. I wake up in the morning and my head (brain) is quiet. First time in 16 months. 

Celexa 10 mg ( approx 5 years), reduced to 5mg (approx 10 years). Prescribed for anxiety and panic. Started tapering July 2015-2.5 mg for a month, then 2.5 every other day. Kept tapering until October when I took my last crumb.  Almost 4 years drug free and WD symptoms are evolving constantly. Some improved, some new. 

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I have head noises (seeing some improvement) and myoclonus of the stapedial muscle in the left ear.  Had it really bad after klonopin wd, and went away eventually.  Restarted after several rapid tapers/ct's.

 

Have about 10 episodes a day, sometimes it is painful and disorienting - feels like a hard slap inside the head; many times it is faint only.  Yesterday had a 5-min continuous episode and ear was smarting after :( .  I hope it goes away, only then can I resume my taper.

PAST

Gabapentin:  about 6 months in 2015, 300-900 mg, cold turkeyed Sept 2015 (at same time dc'd Klonopin)

Klonopin: June 2014- Sept 2015; 1mg tapered over 6 mths, dc'd at 0.25mg, withdrawal hellish (perhaps because of concurrent dc of gabapentin)

Mirtazepine: Jumped off at 2.4 mg. (stable in 8 months).

Seroquel:  June 14 - July 24, 2016, 25 mg alternate nights; smaller doses for shorter periods. Total use about 3 months 

Lamictal: March 19, 2018 - 1 mg; March 23 - 1.25 mg; April 6 - 2mg. Discontinued at 2 mgJuly 1, 2018 due to Steven Johnson Syndrome.

 

CURRENT

Supplements: Vit D, turmeric

Naturethroid: 65 mcg for hypothyroidism

Trazodone: Oct 2015 - June 2016; 75 mg tapered over 2 mths, intense w/d after 3 weeks. Reinstatement: 07/25/16 - 25 mg; updosed 08/03/16 - 50 mg;  10/01/16-  62mg; 03/24/17 dropped to 50 mg (stable in 2.5 months)

                           Current psych meds: Trazodone 50 mg

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I read an intersting article on pulsatile tinutis: https://www.tinnitusformula.com/library/pulsatile-tinnitus-2/

- 12.03.2021- doxepin- 50mg

- 6.11.2020- 75mg

- 16.10.2020- 100mg

- 30.09.2020- doxepin- 125mg

- May 2020, omeprazole 40mg switched to esomeprazole 20mg

- 2012 re-started Doxepin 75mg, evening. Increased to 150mg

- 2012, Atenolol 25mg, twice a day

- 2016, Low dose of HRT in evening, Sandrena and Utrogestan 

- Long term of Nasal spray Otrivine

- 2012, PPI Omeprazole 40mg-evening

24.10.2014- Started ESCITALOPRAM-first 5mg and then 10mg; due to the adverse symptoms reduced on 5.01.2015- Escitalopram- 2.5mg 22.07.2016- re-started reduction by 1% at a time. Completed tappering on  19.03.2020 😇

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  • 2 weeks later...

I've had bad ear congestion and tinnitus while taking xanax and lexapro. Congestion went away when I stopped xanax. Now I quit lexapro but tinnitus is stills there. Lower but still there. Anything helped with that? Now I'm 2 weeks off lexapro but still have tinnitus

2004-2007 paxil

2015- zoloft 3 months zyprexa 3 months lexapro 3 months xanax

Med free since Feb 28th 2017

Mostly experiencing PSSD

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- 12.03.2021- doxepin- 50mg

- 6.11.2020- 75mg

- 16.10.2020- 100mg

- 30.09.2020- doxepin- 125mg

- May 2020, omeprazole 40mg switched to esomeprazole 20mg

- 2012 re-started Doxepin 75mg, evening. Increased to 150mg

- 2012, Atenolol 25mg, twice a day

- 2016, Low dose of HRT in evening, Sandrena and Utrogestan 

- Long term of Nasal spray Otrivine

- 2012, PPI Omeprazole 40mg-evening

24.10.2014- Started ESCITALOPRAM-first 5mg and then 10mg; due to the adverse symptoms reduced on 5.01.2015- Escitalopram- 2.5mg 22.07.2016- re-started reduction by 1% at a time. Completed tappering on  19.03.2020 😇

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  • 1 month later...

I have this as well.

And like of most of others is mostly in my left ear.

Some thoughts on it :

 

-since it comes and goes away, and changes intensity, shouldn't it be related to chemical changes in the brain, instead of structural damage of it?

 

-it's mostly on one side (left). We should investigate what's the morphological/chemical difference between the two sides

 

What do you think guys?

I'm sorry, didn't write a proper diary and my memory is very bad, can't remember exactly all dosages . Here is a short summary

Drugged since i was 11 yo.

Prescribed several SSRI, neuroleptics, mood stabilizers, benzos.Last prescription was lithium, lamotrigine , 20 mg paroxetine, rivotril

Tapered fast lithium and lamotrigine with little to no symptoms 3 years ago.Since then i'm tapering paroxetine and going through withdrawal syndrome. My tapering was not   stable and that's probably the cause of a lot of acute symptoms i had .

Currently at 0.8 mg of paroxetine

Trying now a micro-taper of 0.02 cuts

15/07/2017 tapered to 0.74  (having waves and windows. Cognitive impairment, akathisia, apathy, anxiety, vision problems, depression, paranoia, obsessive toughts, extreme fatigue,  and some more: all comes in waves except vision problems wich are persistent)

08/09/2017 0.72 mg 28/09/2017 0.70 mg

 

 

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My tinnitus has become much worse since colonoscopy. I am unsure why. Maybe because of sedation. Also stress, anxiety. Possibly low iron, anemia...

I used to have only pulsstille tinnitus in one ear, now I have this high pitch sound, kind of in the middle of head. Always when it is quieter...

Trying to ignore it, which is not easy

- 12.03.2021- doxepin- 50mg

- 6.11.2020- 75mg

- 16.10.2020- 100mg

- 30.09.2020- doxepin- 125mg

- May 2020, omeprazole 40mg switched to esomeprazole 20mg

- 2012 re-started Doxepin 75mg, evening. Increased to 150mg

- 2012, Atenolol 25mg, twice a day

- 2016, Low dose of HRT in evening, Sandrena and Utrogestan 

- Long term of Nasal spray Otrivine

- 2012, PPI Omeprazole 40mg-evening

24.10.2014- Started ESCITALOPRAM-first 5mg and then 10mg; due to the adverse symptoms reduced on 5.01.2015- Escitalopram- 2.5mg 22.07.2016- re-started reduction by 1% at a time. Completed tappering on  19.03.2020 😇

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I`ve had persistent tinnitus since 18th February after commig off of Buspirone completely. Like most of other people here I have it in my left ear. I had four good days when it was completely silent but after going swimming two weeks ago everything got worse and I can hear it all day long. I joined Tinnitus Sufferers group on FB with more than 14 thousand members. Some people there have T for years after going off of ADs. From what I have learned there`s a high probability T will never go away once it`s activated.

05/06/2015-05/21/2015 Zoloft C/T, 05/2015-08/2015 Clonazepam 2x0.5mg (reduced to 0 during one month), 05/2015-08/2015 Trazodone 150mg (last month 100mg, reduced to 0 during 7 days), 09/2015-07/2016 Clonazepam reinstated after one month off to 2x0.25mg (benzo free since July 28, 2016), 09/2016 Escitalopram 5mg (10 days), 10/2015-04/2016 Venlafaxine 150mg (3 months) 75mg (3 months) C/T, 01/2016-04/2016 Olanzapine 2.5mg C/T, 04/2016-05/2016 Lamictal 100mg (5 weeks, reduced to 0 during 7 days)), 08/02/2016-08/16/2016 Valdoxan 25mg C/T,

08/23/2016-09/21/2016 Venlafaxine 75 mg (reduced to 0 during 7 days),

07/27/2016-10/10/2016 Buspirone 3x5mg (Oct. 1-3; 5mg-2.5mg-2.5mg,)(Oct.4-5; 2.5mg-2.5mg-2.5mg)(Oct. 6-8; 2.5mg-2.5mg-0)(Oct. 9; 2.5mg-0-0),

10/25/2016 - reinstated Buspirone 3x5mg (Dec.13-19; 5mg-2.5mg-5mg) (Dec.19-Jan.1; 5mg, 2.5mg, 2.5mg) (Jan.2-11; 2.5mg, 2.5mg, 2.5mg) (Jan.2-19;1.67mg, 1.67mg, 1.67mg) (Jan.20-27; 0.83mg, 0.83mg, 0.83mg) (Jan.28-Feb.05; 1mg, 1mg)(Feb.6-0mg)

08/10/2016 - Mirtazapine 30mg (01/26/2017-02/19/2017, 27mg) (02/20/2017-03/05/2017, 25.5mg) (03/06/2017-03/12/2017, 24mg) (03/12/2017-03/19/2017, 23mg) (03/20/2017-04/02/2017, 22mg) (04/03/2017-04/16/2017, 21mg) (04/17/2017-05/12/2017, 20mg) (05/13/2017-05/22/2017, 19mg) (05/23/2017-06/09/2017, 18mg) (06/10/2017-06/16/2017, 17.5mg) (06/17/2017-06/23/2017, 17mg) (06/24/2017-06/30/2017, 16.5mg) (07/01/2017-07/14/2017, 16mg) (07/15/2017-07/23/2017, 15.5mg) (07/24/2017-08/31/2017, 15mg) (09/01/2017-09/10/2017, 14.5mg) (09/11/2017-09/30/2017, 14mg) (10/01/2017-10/26/2017, 13.5mg) (10/27/2017-11/04/2017, 13mg) (11/05/2017-11/18/2017, 12.5mg) (11/19/2017-12/08/2017, 12mg) (12/09/2017-12/15/2017, 11.75mg) (12/16/2017-12/28/2017, 11.5mg) (12/29/2017-01/11/2018, 11mg) (01/12/2018-01/25/2018, 10.5mg) (01/26/2018-02/08/2018, 10mg) (02/09/2018-02/22/2018, 9.5mg) (02/23/2018-03/08/2018, 9mg) (03/09/2018-03/22/2018, 8.5mg) (03/23/2018-04/05/2018, 8mg) (04/06/2018-04/27/2018, 7.5mg) (04/28/2018-05/05/2018, 7.13mg) (05/06/2018-05/17/2018, 7mg) (05/18/201/-05/31/2018, 6.5mg) (06/01/2018-06/14/2018, 6.25mg) (06/15/2018-06/24/2018, 6mg) (06/25/2018-06/30/2018, 5.67mg) (06/31/2018-07/09/2018, 5.5mg) (07/10/2018-07/16/2018, 5.33mg) (07/17/2018-07/23/2018, 5.16mg) (07/24/2018-07/31/2018, 5mg) (08/01/2018-08/14/2018, 4.75mg) (08/15/2018-09/14/2018, 4.50mg) (09/15/2018-10/14/2018, 4.00mg) (10/15/2018-11/26/2018, 3.50mg) (11/27/2018-01/05/2019, 3.0mg) (01/06/2019-01/16/2019, 2.5mg) (01/17/2019-02/08/2019, 2.25mg) (02/09/2019-02/22/2019, 2.13 mg) (02/23/2019-03/07/2019, 2.00 mg) (03/08/2019-04/01/2019, 1.67 mg) (04/02/2019-04/13/2019, 1.5 mg) (04/14/2019-04/26/2019, 1.33 mg) (04/27/2019-05/10/2019, 1.16 mg) (05/11/2019-05/23/2019, 1.0 mg) (05/24/2019-06/02/2019, 0.88 mg) (06/03/2019-06/13/2019, 0.75 mg) (06/14/2019-06/23/2019, 0.63 mg) (06/24/2019-07/03/2019, 0.50 mg) (07/04/2019-07/08/2019, 0.00 mg) (07/09/2019, 0.50 mg) (07/10/2019, 0.00 mg)

Psych drugs free since 10th July 2019.

 

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it has been on increase with me...hissing has been moreless continuous...

- 12.03.2021- doxepin- 50mg

- 6.11.2020- 75mg

- 16.10.2020- 100mg

- 30.09.2020- doxepin- 125mg

- May 2020, omeprazole 40mg switched to esomeprazole 20mg

- 2012 re-started Doxepin 75mg, evening. Increased to 150mg

- 2012, Atenolol 25mg, twice a day

- 2016, Low dose of HRT in evening, Sandrena and Utrogestan 

- Long term of Nasal spray Otrivine

- 2012, PPI Omeprazole 40mg-evening

24.10.2014- Started ESCITALOPRAM-first 5mg and then 10mg; due to the adverse symptoms reduced on 5.01.2015- Escitalopram- 2.5mg 22.07.2016- re-started reduction by 1% at a time. Completed tappering on  19.03.2020 😇

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- 12.03.2021- doxepin- 50mg

- 6.11.2020- 75mg

- 16.10.2020- 100mg

- 30.09.2020- doxepin- 125mg

- May 2020, omeprazole 40mg switched to esomeprazole 20mg

- 2012 re-started Doxepin 75mg, evening. Increased to 150mg

- 2012, Atenolol 25mg, twice a day

- 2016, Low dose of HRT in evening, Sandrena and Utrogestan 

- Long term of Nasal spray Otrivine

- 2012, PPI Omeprazole 40mg-evening

24.10.2014- Started ESCITALOPRAM-first 5mg and then 10mg; due to the adverse symptoms reduced on 5.01.2015- Escitalopram- 2.5mg 22.07.2016- re-started reduction by 1% at a time. Completed tappering on  19.03.2020 😇

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- as I have been really bothered by this, I have researched it further finding good resource web-pages that include strategies:

https://www.takeontinnitus.co.uk/#home

https://www.tinnitus.org.uk/

- 12.03.2021- doxepin- 50mg

- 6.11.2020- 75mg

- 16.10.2020- 100mg

- 30.09.2020- doxepin- 125mg

- May 2020, omeprazole 40mg switched to esomeprazole 20mg

- 2012 re-started Doxepin 75mg, evening. Increased to 150mg

- 2012, Atenolol 25mg, twice a day

- 2016, Low dose of HRT in evening, Sandrena and Utrogestan 

- Long term of Nasal spray Otrivine

- 2012, PPI Omeprazole 40mg-evening

24.10.2014- Started ESCITALOPRAM-first 5mg and then 10mg; due to the adverse symptoms reduced on 5.01.2015- Escitalopram- 2.5mg 22.07.2016- re-started reduction by 1% at a time. Completed tappering on  19.03.2020 😇

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Hopeful:

 

Does tinnitus ever go away?

Studies have indicated that, even without any ‘treatment’, the noises disappear or at least diminish in the majority of cases, as the brain loses interest in and stops surveying the signal. This process is called ‘habituation’ and it can take several months or years.

Tinnitus can become emotionally distressing in the initial period. This is commonly due to misconceptions as to the cause, prognosis and management of tinnitus.

There is also a general feeling of not being taken seriously by the medical profession. Many are told: ‘It is not serious, there is no cure, and you have to learn to live with it’. It can be argued that this is, to a certain extent true.

In most cases there is not a serious underlying medical condition and you will gradually learn to stop paying attention to the tinnitus noises, in the same way that you ignore all the other ‘predictable’ noises of daily life. Reaction to these sounds are more dependent on your frame of mind and reaction, than the actual sound itself.

- 12.03.2021- doxepin- 50mg

- 6.11.2020- 75mg

- 16.10.2020- 100mg

- 30.09.2020- doxepin- 125mg

- May 2020, omeprazole 40mg switched to esomeprazole 20mg

- 2012 re-started Doxepin 75mg, evening. Increased to 150mg

- 2012, Atenolol 25mg, twice a day

- 2016, Low dose of HRT in evening, Sandrena and Utrogestan 

- Long term of Nasal spray Otrivine

- 2012, PPI Omeprazole 40mg-evening

24.10.2014- Started ESCITALOPRAM-first 5mg and then 10mg; due to the adverse symptoms reduced on 5.01.2015- Escitalopram- 2.5mg 22.07.2016- re-started reduction by 1% at a time. Completed tappering on  19.03.2020 😇

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  • 2 months later...

4 months off. Improved tinnitus but still there. I dont want to reinstate but im wondering if thats the only thing that will make it go away 

anyone had a relief from tinnitus without having to reinstate ?

2004-2007 paxil

2015- zoloft 3 months zyprexa 3 months lexapro 3 months xanax

Med free since Feb 28th 2017

Mostly experiencing PSSD

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  • Moderator Emeritus

Bobo: I haved moved your post from the topic "Ear Issues - Blocked Ears, ETD, and tinnitus" to this topic that is specifically about tinnitus.

 

On 2017-07-12 at 2:17 PM, Bobo32 said:

4 months off. Improved tinnitus but still there. I dont want to reinstate but im wondering if thats the only thing that will make it go away 

anyone had a relief from tinnitus without having to reinstate ?

 

Please read this topic from the first post for answers to your question.

 

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.
1997-1999 Effexor; 2002-2005 Effexor XR 37.5 mg linear taper, dropping same #beads/week with bad results

Cymbalta 60 mg 2012 - 2015; 2016: 20 mg to 7 mg exact doses and dates in this post; 2017: 6.3 mg to  0.0 mg  Aug. 12; details here


scallywag's Introduction
Online spreadsheet for dose taper calculations and nz11's THE WORKS spreadsheet

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  • 4 weeks later...

Dear all,

 

I also have tinnitus so I wanted to share with you on how nasty it is.

 

I have developped very high-pitched tinnitus since withdrawing too quickly from Sertraline 3 months ago and from stopping Xanax cold turkey 4 months ago.  I am now back on Xanax but my tinnitus is really bad. I have also pressure in the ears. It is terrible and make me very depressed. I  have also developped PGAD when I was tappering down Sertraline from a 50 to a 25 dose. I took benzos for only 4 months from January to April and at very low dose but I developped very nasty withdrawal symptoms when I was made to stop Xanax cold turkey. They developped two weeks after stopping  Xanax (earworms, burning skin, akathisia, hyperacusis, hyper sense of smell, sensitivity to light etc) At the beginning when I brought my Sertraline dose from 50 to 25, my tinnitus was very mild, (like a criket song) since it got worse, I went to a psychiatric hospital to help me with all my symptoms but instead of helping me, they put me on risperidone and anafranil and my tinnitus rocketted. I also had to take 4 courses of antibiotics (Augmentin and 3 courses of antibiotics for cystitis) and omeprazole and corticoids in june for various health issues.

 

Tinnitus is making my life a misery, I listen to white noise to help but I cannot concentrate on anything than it and I hope that we will one day get rid of this nasty withdrawal symptom.

 

Take care

 

Cathy

 

 

 

- From January 4th 2017 to April 17th 2017:  1 Xanax 0.25 mg in January, replaced by 1 Lyxansia 10 mg in February, replaced by 1 Bromazepam 6 mg a day  in March then back to 1 Xanax 0.25 mg  in April. Every pill was stopped cold turkey.

- April 17th (Easter Monday) started  Sertraline 50.  Xanax 0.25 mg  stopped cold turkey. 

- April 17th to May 4th 1 Sertraline 50, a 25 dose in the morning, a 25 dose at night and half a Zopiclone 7.5 at night

- May 4th  Reduced to 1 Sertraline  25.

-June 1st to June 8th.Tappering off Sertraline every 2 days for a week and put on 1 Risperidone 1 mg a day.June 8th Sertraline 25 replaced by 1 Anafranil 25mg, 1 Risperidone 1 mg a day and 1 zoplicone 7.5 at night, a week later, the Anafranil 25mg and Risperidone 1g was stopped cold turkey and replaced by 1 Xanax 0.25 mg 3 times a day. Since  June 17th : 1 Xanax 0.25 mg 3 times a day and 1 zoplicone 7.5 at night. Other medications  from June 1st to June 15th : Augmentin antibiotics, Chorticoid tablets,  Lanzoprazole, Toviaz. Symptoms : tremors, shaking ,suicidal thoughts, smell and light sensitivity, hyperacusis, floaters, earworms, akathisia, high pitched tinnitus, PGAD.

 

 

 

 

 

-

 

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