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Tinnitus -- What does all that noise mean?


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#37 bubble

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Posted 30 December 2014 - 12:19 AM

tinnitus leads me in 2 different directions.

1) the TMJ / Jaw, compression through bruxism grinding of teeth at night seems to be able to kick of Tinnitus. 

2) withdrawal leading to low dopamine ( in my case) kicks of tinnitus ( both ears, constant, 8mhz). ( 2 years since withdrawal so looks to be permanent)

Google "tinnitus dopaminergic pathway"

I had bruxism immediately after starting SNRi's

then tinnitus which started 1 week into the taper.

Pretty sure thats dopamine.

Not sure if to try messing with dopamine levels

 

Hi Jjnz,

 

this was posted by Moodyblues for some other member suffering from tinnitus and I believe it will help you:

 

 

Ah Tinnitus. My companion for life. Your story sounds familiar. Mine started exactly the same way, while sleeping. Fortunately it sounds like your situation is milder than mine. I know very well how crushing it is to wake up in the middle of night to your ears suddenly screaming for no reason. In addition to tinnitus I have a nasty hyperacusia. It`s even worse symptom than tinnitus.

 

What ever the reason for your tinnitus is, it probably has been there for a while. It just was brought to surface by your wd. The good news is that many have gotten rid of it once all the wd symptoms slowly fade away. It may take years. Another good thing is that if it does not go away, you can learn to live with it, no matter how bad the sounds is. Bad thing is that it is not easy. Tinnitus really is not a sound. It is just your brain misinterpreting the signals it gets from your hearing nerves. Since we are very sensitized thanks to wd these signals are magnified and makes tinnitus bad. The more you fear it the worse it gets but the tinnitus itself does not make it worse. 

 

There are a few things you can do. Most important thing is to get you to sleep again if it causes you anxiety while trying to sleep. It is common that tinnitus may be very bad in the middle of night. This was the case for me in acute withdrawal. It was like fire alarm was stuck on inside my head. There is a great app called White Noise by TMsoft. It has got loads of back round noises to distract you from it. I play it every night and I sleep well. Usually I use it day time too. Do not use it to mask the tinnitus completely. Just use it to take the fear away. That way you can teach your brain to take the tinnitus as a friendly noise and in time you will lose interest in it and you will not notice it unless you look for it. 

 

I was a very bad case thanks to burnout, ssri/benzo combo and a couple of unsuccessful wd`s. These days I can live with and I`m confident that someday it will not bother me anymore.

 

You probably have read many horror stories from the net about tinnitus. Forget them. This will not kill you and with the right attitude anyone can learn to live with it with no problem  :)

 

Br,

Moody

 

Current: Xanax 0.625 (down from 2 mg in 2013), Lexapro 3.9 mg (down from 5 mg 2013)

Amitriptyline (tricyclic AD) and clonazepam for 3 months to treat headache in 1996 (19 yrs)
1999. - present Xanax prn up to 3 mg.
2000.-2005 Prozac CT twice, 2005-2010 Zoloft CT 3 times, 2010-2013 Escitalopram 10 mg
went from 2.5 to zero on 7 Aug 2013, bad crash 40 days after
reinstated to 5 mg Escitalopram 4Oct 2013 and holding liquid Xanax: 0.4 mg every 5 hours
28 Jan 2014 Xanax 1.9, 18 Apr  2015 1 mg,  25 June Lex 4.8, 6 Aug Lexapro 4.6, 1 Jan 2016 0.64  Xanax

9 month hold

24 Sept 2016 4.​5 Lex, 17 Oct 4.4 Lex (Nov 0.63 Xanax, Dec 0.625 Xanax), 1 Jan 2017 4.3 Lex, 24 Jan 4.2 Lex, 5 Feb 4.1 Lex

24 Mar 4 mg Lex, 10 Apr 3.9 mg Lex

Supplements: Omega 3 + Vit E, Vit C, D, magnesium, Taurine, probiotic 

I'm not a medical professional. Any advice I give is based on my own experience and reading. 


#38 JayPT

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Posted 30 December 2014 - 04:00 AM

Hi all

 

I woke up at 5am a few days ago with a very distinct sound like a vibration of some sort in my right ear. I would explain it like a car engine running behind a wall type of sound, or a cell phone vibration. Very low and only perceivable during complete silence. It's sometimes continuous, some other times erratic. 

 

The worst bit is that it happened while sleeping and it just doesn't go away. I sometimes forget it's there, but it comes back just to let me know I can't fool myself. 

 

I often sit in different locations and positions just to see if I can hear it. Other times I lose focus on whatever I'm doing and concentrate on the sound. 

 

Needless to say, 1 year after withdrawal, I had built a fairly good sense of well being and was on my way to consider myself closer to being cured of Paroxetine withdrawal and all that was lost in a couple of days.

 

Now, I know I must separate Tinnitus from my Anxiety. Although they are related, one is a physical reaction, the other is a psychological reaction. Being hypocondriac (due to the depression I had 7 years ago), it doesn't help me to think about any serious condition that could cause the tinnitus. It's like a snowball effect. Especially if you search Dr.Google... an error I often commit. 

 

At this point I have very low appetite, my sleep is very, very light and wake up to any sound, possibly due to the fact that I'm hearing the hum and it prevents me to go deeper into sleep. I also have some hearing loss, or maybe it's just me focusing too much, I dunno. I went to the otorhino and he said I had no inflammation and the ear looked great, better than average. 

 

At this point, I am trying to learn how to live with this. Understanding that many people have this chronically doesn't help, but maybe I can make it go away. Who knows?


2007 - Began Paroxetine 20mg treatment after severe panic attacks.

Early 2011 - Tried tapering with nasty results. Return to normal dosage. 

Mid 2012 - Another failed tapering attempt. Return to normal dosage. 

Mid 2013 - Began alternate medicine treatment. Feeling great.

August - November 2013 - Began tappering with some success. Took a bit longer than desired but last pill taken 29th November 2013.

Christmas 2013 - Worst days of my life. All symptoms possible return with full intensity. Hard to cope.

January - November 2014 - Alternate 5HTP and Omega 3 treatment gradually improve my day-to-day life.

December 2014 - Feeling great before holidays, I woke up during one night with right ear Tinnitus. Hard time sleeping and poor motivation as a result.

December 26th 2014 - Worse panic attack in a long time. All my year of hard work in self motivation gone. Feeling like crap, worse feelings ever. 


#39 Meimeiquest

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Posted 30 December 2014 - 08:53 AM

Sort of extrapolating from the book The Mind and the Brain, and seeing (from my dear friend Dr. Google) that vagal stimulation can help some, I think it is something that can happen in a brain that senses interior danger (Alto's theory of the cause of protracted withdrawal). I think that is why you see (hear) it coming and going with meds. It must be miserable...hope it eases soon!
1st round Prozac 1989/90, clear depression symptoms. 2nd round Prozac started 1999 when admitted to dr. I was tired. Prozac pooped out, switch to Cymbalta 3/2006. Diagnosed with bipolar disorder due to mania 6/2006--then I was taken abruptly off Cymbalta and didn't know I had SSRI withdrawal. Lots of meds for my intractable "bipolar" symptoms.
Zyprexa started about 9/06, mostly 5mg. Tapered 4/12 through12/29/12
Wellbutrin. XL 300 mg started 1/07, tapered 1/18/13 through 7/8/13
Oxazepam mostly continuously since 6/06, 30mg since 12/12, tapered 1.17.14 through 8.26.15
11/06 Lithium 600mg twice daily, 2.2.14 400mg TID DIY liquid, 2.12.14 1150mg, 3.2.14 1100mg, 3.18.14 1075mg, 4/14 updose to 1100mg, 6.1.14 900 mg capsules 7.8.14 810mg, 8.17.14 725mg, 8.24.24 700mg...10.22.14 487.5mg, 3.9.15 475mg, 4.1.15 462.5mg 4.21.15 450mg 8.11.15 375mg, 11.28.15 362.5mg, back to 375mg four days later, 3.4.16 updose to 475 (too much going on to risk trouble)
9/4/13 Toprol-XL 25mg daily for sudden hypertension, tapered 11.12.13 through 5.3.14, last 10 days or so switched to atenolol
7.4.14 Started Walsh Protocol
56 years old

#40 JayPT

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Posted 30 December 2014 - 09:06 AM

In my limited experience, taking my mind of it makes it a lot less present. Still there, but not as dramatic. 

 

Ease is all I seek, for now. I have to be positive and not just believe in fairy tales, I know, but I feel I will cure this thing. I've been through so much, this is just another barrier to cross. 


2007 - Began Paroxetine 20mg treatment after severe panic attacks.

Early 2011 - Tried tapering with nasty results. Return to normal dosage. 

Mid 2012 - Another failed tapering attempt. Return to normal dosage. 

Mid 2013 - Began alternate medicine treatment. Feeling great.

August - November 2013 - Began tappering with some success. Took a bit longer than desired but last pill taken 29th November 2013.

Christmas 2013 - Worst days of my life. All symptoms possible return with full intensity. Hard to cope.

January - November 2014 - Alternate 5HTP and Omega 3 treatment gradually improve my day-to-day life.

December 2014 - Feeling great before holidays, I woke up during one night with right ear Tinnitus. Hard time sleeping and poor motivation as a result.

December 26th 2014 - Worse panic attack in a long time. All my year of hard work in self motivation gone. Feeling like crap, worse feelings ever. 


#41 clearday

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Posted 30 March 2015 - 06:58 AM

I am off Lexapro now for 14 months.

 

I have had horrible ear ringing for four months now...more like ear ROARING, worse at bedtime and immediately upon waking. 

 

It is SLOWLY getting better.

 

But in trying to figure out what is causing this infernal ear ringing, I have noticed one thing.

 

When I spend the occasional half hour smoking a cigar, the ear ringing completely disappears the entire time while having the nicotine (fast acting).

 

And within minutes of stopping the nicotine, the ear ringing comes right back.

 

Nicotine acts strongly on GABA receptors. GABA is a key player in SSRI withdrawal symptoms. Lamictal, a gabaergic player, has been mentioned as being helpful at extremely low doses to reduce SSRI withdrawal symptoms due to its gabaergic activity.

 

Or, the vasocontrictive action of nicotine reduces inflammation at the site of nerve damage repair process.

 

Whatever the mechanism, the ear ringing ALWAYS goes away when I ingest nicotine.

 

I would NEVER recommend using smoking to treat withdrawal!

 

Smoking is extremely destructive, toxic, and addictive. Of course we all know that, but it has to be said.

 

And smoking will not cure these symptoms! It will ONLY cause harm by its use, and probably hamper recovery from SSRI withdrawal. 

 

Nicotine will aggravate other withdrawal symptoms - we know to avoid nicotine during withdrawal. In fact, although my ear ringing goes away while having the cigar, I also get tachycardia, chest tightness, restlessness, anxiety, and other uncomfortable symptoms from the nicotine. Nicotine is bad!

 

In fact, the longer I stay away from nicotine, the better I feel overall. I feel much more relaxed and less anxious the longer I stay away from it. 

 

This information is provided solely to help understand the nature of SSRI withdrawal tinnitus. 

 

Does anyone have any other information to provide that can shed light on possible causes of SSRI withdrawal tinnitus?


Hell hath no fury as an SSRI scorned.....

 

Prozac:   20 mg 1996 – May 2003 CT to 0 mg; by Aug 03 CRASH then protracted WD 3 yrs

Zoloft:    2004 few weeks;, CT to 0 mg

Effexor:  2005 few months CT to 0 mg; bad withdrawal. 

Lexapro:  10 mg from 2009 – 2011; cut dose in half to:

Lexapro:    5 mg from 2011 – Feb. 2014; CT to 0 mg; 2 months of fatigue, followed by:
Aug - Oct 2014 Lexapro WD Insomnia Wave; sleeping very good from Nov 2014 - Nov 2015; broken sleep pattern Dec 2015 - Jan 2016

Dec 2014 - present: Brutal Lexapro WD ear ringing/head ringing/head pressure lasting for 14 months now.

 

24 months SSRI-free  


#42 chris111

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Posted 13 May 2015 - 06:39 PM

Currently in a zoloft withdrawal and have tinnitus in the region of my left ear (7 weeks). 

 

 

My intro: http://survivinganti...t-ringing-ears/

 

 

 

I just hate the sound that is being produced...

 

 

I read that excessive ear wax can cause this sound, therefore I stopped using cotton swabs for my ears (I have been using cotton swabs for a long time).

 

 

I remember having tinnitus on both ears (Before I took the ZOLOFT) but the sound was happening towards the edge of my ears. Now, its just my left ear, although the sound being produced right now seems to be going on "inside" my ear. I guess the medication brought it to "surface".

 

 

I am planning on buying those over the counter ear wax removal kits.

 

 

 

Has anybody had any success with removing ear wax from their ears resulting with the tinnitus disappearing? 



#43 Altostrata

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Posted 13 May 2015 - 06:42 PM

Your PCP or an otolaryngologist can remove ear wax. If you have a very bad case, it's probably safer to have someone else do it.


This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

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#44 Lovofsun

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Posted 13 May 2015 - 11:49 PM

Tinnitus can be caused by grinding of the teeth which I have been doing a lot of since WD started.... Seen the dentist if and get a night guard fitted if all else fails :)

1999: amitriptyline
2002: fluoxetine
2003: venlafaxine
2007: Paxil 20mg
2012: Paxil 30mg
2014 june: Paxil stopped working and was put on citalopram 20mg
2014 august: docs put me on Paxil 20mg still feeling bad and had to stop antihistamines for hives
2015 January: doctors put me on sertriline 50mg
2015 February March: doctors wanted me to go back on Paxil 20mg
2015 April 1st: I wanted off and dropped to 10mg
9/5/15  Feeling worse for ware!  struggling but i WILL get through this


#45 Petunia

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Posted 14 May 2015 - 12:07 AM

I went to the doctor for ear wax removal during withdrawal because of increased tinnitus.  I've had ringing in my right ear through much of withdrawal, it gets worse at times, better at other times. But one evening it was suddenly much worse and I had lost some of my hearing. Long story short, I had an ear wax blockage and it was removed, I could hear properly again and my tinnitus went back to its normal annoying levels.

 

Your doctor will be able to see if you have a wax buildup and remove it safely. I tried doing it myself using methods I found on youtube, but it didn't work.

 

If you want to read more about my ear wax removal experience you can, I documented it in my intro thread, starting from about here:

 

http://survivinganti...t-use/?p=100831


I'm not a doctor.  My comments are not medical advise. These are my opinions based on my own experience and what I've learned. Please discuss your situation with a medical practitioner who has knowledge of tapering and withdrawal...if you are lucky enough to find one.

 

My Introduction Thread

 

Full Drug and Withdrawal History

 

Brief Summary

Several SSRIs for 13 years starting 1997 (for mild to moderate partly situational anxiety)

Xanax PRN

Various other drugs over the years for side effects

2 month 'taper' off Lexapro 2010

Short acute withdrawal, followed by 2 -3 months of improvement then delayed protracted withdrawal

DX ADHD followed by several years of stimulants and other drugs trying to manage increasing symptoms

Failed reinstatement of Lexapro and trial of Prozac (became suicidal)

May 2013 Found SA, learned about withdrawal, stopped taking drugs...healing begins.

Protracted withdrawal, with a very sensitized nervous system, slowly recovering as time passes animal25.gif

 

Supplements which seem to help:  High doses of Vitamin C, Magnesium, Garlic and Ginger.  Taurine, Vit D3, L-Theanine and Inositol. I'm one of the rare people who react badly to fish oil.

 

June 2016 - Started daily juicing, mostly vegetables and lots of greens.

 

VIDEO: Where did the chemical imbalance theory come from?



VIDEO: How are psychiatric diagnoses made?



VIDEO: Why do psychiatric drugs have withdrawal syndromes?



VIDEO: Can psychiatric drugs cause long-lasting negative effects?

VIDEO: Dr. Claire Weekes

 

 

 


#46 Anxietyqueen

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Posted 03 July 2015 - 04:52 PM

I have a friend who says his Buzz buzz is not in his ears but in his brain. Is that same thing? He's had it since using zoloft and had it last 18mths. Getting to a point he wanted out of this world as he couldn't deal with the constant buzz. All day every day, driving him nuts. 

 

He was drug free for 10mths and decided to try drugs again in hope of stopping the noise, been on lexapro for a few wks, drs increasing his dose to 20mg, couldn't sleep even a min, so was put on sequel (sp?) which made him more suicidal. Now been taken off lexapro over 3 days, one day of nothing and starting prestiq.  Buzzing never stopping, now has huge anxiety and panic attacks.  A big mess. 

 

Is there a way to stop the buzz??


Was put on zoloft when 19, Didn't need it, looking back now i was managing life. I got off it a few times, didn't use it for 2 of my 3 kids, anxiety made me use it again. Got off in july 14, I was on 50mg and went to 25mg for a few weeks, then went to 12.5mg but after a few days i had bad zapps and coordination and movement was bad, so i stopped and that all eased. I was mostly ok, but at 10mths anxiety just grew and wouldn't go. Nothing was working, even valium barely tamed it in the end. 

 

At 6mths off the dr told me to start Prestiq, but i didn't want to. At 10mths a friend suggested aropax, had 1 tablet and anxiety went nuts, it was really really bad and constant just 5hrs after tablet. So went back to dr and got zoloft again.  Hate being on it but all anxiety is gone. On 50mg now. Had some 100mg tablets and when i didn't break them fully down the middle i'd have head spins. Shakes get worse too. Seem to be sensitive to small changes.

 

My withdrawls included zaps, leg spasms, major anger, dizzy, emotional. Probably memory, could be from stress. Memory still sucks. 

 


#47 clearday

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Posted 16 July 2015 - 02:38 PM

I have a friend who says his Buzz buzz is not in his ears but in his brain. Is that same thing? He's had it since using zoloft and had it last 18mths. Getting to a point he wanted out of this world as he couldn't deal with the constant buzz. All day every day, driving him nuts. 

 

Same for me, the ringing is from the brain and emanates outward to the ears.

 

I got hit with the "head ringing" ten months after stopping Lexapro, and have had it nonstop for 8 months now. It is accompanied by head and ear pressure too, and "wavy" feelings in the brain. 

 

It was worse in the right ear for 4 months, that subsided, now worse in the left ear for four months, but always the head is filled with the noise.

 

It gets worse when my other withdrawal symptoms worsen. During windows, the ear ringing is much more tolerable, but always there.

 

I suspect it is similar to akathisia/parathesia from SSRI WD, but inside the brain. 

 

It is much worse while laying in bed. As horrible and loud as it is when I lay down for bed, I have slept well almost every night during all this tinnitus. It does not really affect my sleep.  And if I am busy in the day, it usually is on the back burner. But reading and quiet time just ain't fun anymore. Best to watch TV, be active outside, or just be in noisy areas. Family gatherings are good, all that talking distracts from the tinnitus. 

 

I can hope that it will run its course and be more tolerable as overall recovery is achieved by year 3 or 4 of my Lexapro WD. So I have a ways to go.

 

For me, symptoms of the head ringing have healed and morphed similar to other WD symptoms, so as healing continues, the ringing should become more tolerable over time as windows and waves continues.

 

The ringing comes back strong during waves, just like any other SSRI WD symptom. 

 

I had two days last week, for the first time in 8 months, that my ears did not ring during the day.

 

Sorry to hear about your friend. Too bad that reinstating on these SSRIs did not stop his ringing.

 

When the ringing gets bad and lasts for long, SI is bound to happen. Been there a few times. It's a form of living hell, especially if you think it will not get better.

 

When I smoke a cigar, the nicotine always makes the ringing disappear while I am smoking it. But obviously tobacco is not an option to treat this WD tinnitus. Since nicotine acts on GABA receptors, perhaps a GABA actor such as lamictal - lamotrigine in very small amounts (less than 5 mg) would help with this. Just a guess, I have not tried that yet, and am not recommending it. 


Hell hath no fury as an SSRI scorned.....

 

Prozac:   20 mg 1996 – May 2003 CT to 0 mg; by Aug 03 CRASH then protracted WD 3 yrs

Zoloft:    2004 few weeks;, CT to 0 mg

Effexor:  2005 few months CT to 0 mg; bad withdrawal. 

Lexapro:  10 mg from 2009 – 2011; cut dose in half to:

Lexapro:    5 mg from 2011 – Feb. 2014; CT to 0 mg; 2 months of fatigue, followed by:
Aug - Oct 2014 Lexapro WD Insomnia Wave; sleeping very good from Nov 2014 - Nov 2015; broken sleep pattern Dec 2015 - Jan 2016

Dec 2014 - present: Brutal Lexapro WD ear ringing/head ringing/head pressure lasting for 14 months now.

 

24 months SSRI-free  


#48 Nextra

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Posted 08 September 2015 - 04:59 AM

I have this. One day this past week, I didn't have it. To me it sounds like a billion crickets in my head. It's very annoying and I've wondered, as well, how many others have experienced it.


Oh! I didn't know that my nightly chorus of crickets was a form of tinnitus. I actually like the sound of crickets, reminds me of summer nights in better times. But sometimes it does get annoyingly loud.
I've been getting a high pitched ringing in one or another ear periodically in recent weeks but it usually does not last very long. I wrongly thought that tinnitus produced a ringing sound only (like my more recent experiences).

I have so many weird head sounds and sensations, coupled with the anxiety the symptoms produce, that it is hard to put my finger on exactly what I am experiencing until I read someone else's description. It' hard to figure things out when I'm terrified.
So thankyou Tezza and others for making this clearer.
Zoloft 8yrs CT (for anxiety) Crashed few months later, diagnosed major depression. Reinstating did not work.
Several poorly tolerated short term meds including Effexor, Mirtazapine. Eventually stabilised on Lexapro.
Sometime in the 90's bipolar diagnosis added and seroquel. CT'd from that quickly as I didn't think I fit the diagnosis.

Lexapro 5yrs? (9 month taper 2010) - Diagnosed ADD shortly after becoming psych med free.
Dexamphetamine- 2011-July 2014 (6 month taper)
Crashed late 2014: over sensitive to light, sound, people, usual foods, caffeine and life.
{July 2014- quit smoking, Dec 2014 quit caffeine, chocolate, sugar, processed foods, don't drink}
Supplements: Magnesium Citrate, Vit C, Pro-biotic.
Feb 2015-current: intolerance to minor stimulation, terror, anxiety, doom, delirium, anhedonia, insomnia, lethargy, weakness, bodily tingling, numbness, ticks and jolts, tinnitus, back pain, gastric disturbance, facial pain, ticks and tingling, EHS.........
Oct 2015- developed frozen shoulder-ongoing

#49 KarenB

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Posted 02 October 2015 - 02:19 PM

I've been having mild tinnitus at nighttime, and I found this which appears to work for some people and not others.  Hasn't worked for me yet, but in case others might find it useful ... It involves tapping on the back of your head for a minute or so.  I'm going to look for a video clip as the written description might mean I'm not doing it quite right. 


2010 May Fluoxetine 20mg. Raging mostly stops, become more functional.
2011 February Escitalopram 10mg (sudden switch). 2012 January Escitalopram 20mg.  2013 Early June Feeling great, decide to taper. Doc advises alternate days 20mg/10mg for 4 weeks.  Late June Steady. Drop to 10mg daily. Early July Not coping, raging, flu symptoms, shaky, anxious, low, spaced-out, self-destructive.  Mid July Return to alternate days 20mg/10mg - minimal improvement. Early August Return to full dose 20mg. Lost.
2014 February Switch to Venlafaxine. (First reduced Esc. to 10mg/day for a week) Feb-April Lost, 'light' self-harm, exhausted.
April Increase Ven. to 150mg/day. Dizzy. July 75mg twice a day to improve dizziness. Deep depression remains.  2015 Feb Vigilant dose spacing partially eases dizziness. Mar Switch to Effexor 75mg 2x/day. May Cut 10% to 135mg - bad w/d 2 mths, held 1 mth.  Aug 1.3% cut - bad 1mth, held 1mth. Oct 4 wkly 0.4% cuts held 6 weeks. Jan 2016 2 wkly 0.4% cuts. 8 month hold. Sept Wkly cuts: 0.5%, 3 1% cuts.  Oct 4 wkly 1% cuts, hold 3-4 weeks.
Supplements: Fish oil, vitamins E & C, magnesium, iron, MSM, oat-straw tea, nettle tea.  My story of healing: ContinuedHealing

***I am not a doctor or counselor; please do your own research and be prepared to take responsibility for decisions you make.*** 

           'The possibility of renewal exists so long as life exists.'  Dr Gabor Mate.


#50 clearday

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Posted 03 October 2015 - 10:09 AM

Thanks, Karen -

 

I tried that, and it helped temporarily. Anything that helps even for a short duration is nice, and not only that, it helps us to try and figure out the nature of our own tinnitus.

 

I give myself deep muscle massages at the base of my skull, in the back of my head, the top of my neck, and this also sometimes reduces the ringing for a short time. 

 

It's nice to know that the tinnitus is not all-powerful, that something we can do will stop it, even for a short time. It gives us a little sense of control.

 

Hopefully our bodies will continue to heal and the tinnitus will eventually lessen and go away, as it has for those who have recovered. 


Hell hath no fury as an SSRI scorned.....

 

Prozac:   20 mg 1996 – May 2003 CT to 0 mg; by Aug 03 CRASH then protracted WD 3 yrs

Zoloft:    2004 few weeks;, CT to 0 mg

Effexor:  2005 few months CT to 0 mg; bad withdrawal. 

Lexapro:  10 mg from 2009 – 2011; cut dose in half to:

Lexapro:    5 mg from 2011 – Feb. 2014; CT to 0 mg; 2 months of fatigue, followed by:
Aug - Oct 2014 Lexapro WD Insomnia Wave; sleeping very good from Nov 2014 - Nov 2015; broken sleep pattern Dec 2015 - Jan 2016

Dec 2014 - present: Brutal Lexapro WD ear ringing/head ringing/head pressure lasting for 14 months now.

 

24 months SSRI-free  


#51 downtongirl

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Posted 12 November 2015 - 05:12 PM

I got tinnitus when I was transitioning between medicines and reducing them. It has been 2 1/2 years and at times it is better than it was.  Just wondering if anyone else has tinnitus that eventually went away.


1995 - 2015 antidepressants and antianxiety medicine
Multiple failed attempts to quit/taper anti d/anti anxiety meds since 2008

June 17, 2016 began prozac bridge to get off of effexor xr, stopped effexor xr on June 24, 2016, could not tolerate prozac due to severe side effects so I had to stop it  Currently...300 mg ER of lithium, 1 mg of estradiol, 60 mg propranolol ER, Fish oil 2 x a day, Magnesium Glycinate,  zinc, vitamin c, vitamin d, NAC

 

 

 

 

 


#52 Mart

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Posted 12 November 2015 - 05:17 PM

Unfortunately, my tinnitus and Menieres disappeared after starting Prozac. I've been tapering over 3 months and haven't experienced the tinnitus so I'm hoping it won't. Good luck.
9/11/2015 15 mg Fluoxetine/night 1 month into taper from 20 mg
11/28/2015 5 mg Fluoxetine/night, slicing tablet, measuring & placing into empty capsule to easily swallow.

#53 downtongirl

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Posted 12 November 2015 - 05:18 PM

Happy for you that it went away...are you completely off of Prozac?


1995 - 2015 antidepressants and antianxiety medicine
Multiple failed attempts to quit/taper anti d/anti anxiety meds since 2008

June 17, 2016 began prozac bridge to get off of effexor xr, stopped effexor xr on June 24, 2016, could not tolerate prozac due to severe side effects so I had to stop it  Currently...300 mg ER of lithium, 1 mg of estradiol, 60 mg propranolol ER, Fish oil 2 x a day, Magnesium Glycinate,  zinc, vitamin c, vitamin d, NAC

 

 

 

 

 


#54 KarenB

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Posted 12 November 2015 - 07:41 PM

Mine seems to be with me during waves, but be almost un-noticeable in windows. 


2010 May Fluoxetine 20mg. Raging mostly stops, become more functional.
2011 February Escitalopram 10mg (sudden switch). 2012 January Escitalopram 20mg.  2013 Early June Feeling great, decide to taper. Doc advises alternate days 20mg/10mg for 4 weeks.  Late June Steady. Drop to 10mg daily. Early July Not coping, raging, flu symptoms, shaky, anxious, low, spaced-out, self-destructive.  Mid July Return to alternate days 20mg/10mg - minimal improvement. Early August Return to full dose 20mg. Lost.
2014 February Switch to Venlafaxine. (First reduced Esc. to 10mg/day for a week) Feb-April Lost, 'light' self-harm, exhausted.
April Increase Ven. to 150mg/day. Dizzy. July 75mg twice a day to improve dizziness. Deep depression remains.  2015 Feb Vigilant dose spacing partially eases dizziness. Mar Switch to Effexor 75mg 2x/day. May Cut 10% to 135mg - bad w/d 2 mths, held 1 mth.  Aug 1.3% cut - bad 1mth, held 1mth. Oct 4 wkly 0.4% cuts held 6 weeks. Jan 2016 2 wkly 0.4% cuts. 8 month hold. Sept Wkly cuts: 0.5%, 3 1% cuts.  Oct 4 wkly 1% cuts, hold 3-4 weeks.
Supplements: Fish oil, vitamins E & C, magnesium, iron, MSM, oat-straw tea, nettle tea.  My story of healing: ContinuedHealing

***I am not a doctor or counselor; please do your own research and be prepared to take responsibility for decisions you make.*** 

           'The possibility of renewal exists so long as life exists.'  Dr Gabor Mate.


#55 NoMeaning25

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Posted 13 November 2015 - 07:20 AM

3 years still have tinnitus

#56 compsports

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Posted 13 November 2015 - 10:42 AM

Mine never did.


Drug cocktail 1995 - 2010
Started taper of Adderall, Wellbutrin XL, Remeron, and Doxepin in 2006
Finished taper on June 10, 2010

Diagnosed with sleep apnea 2012 and on pap machine

Dealing with protracted sleep issues


#57 Petunia

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Posted 13 November 2015 - 04:53 PM

After 5 years, I still have mine, but its less noticeable generally, it gets worse at times though.

 

Here is our tinnitus topic: Tinnitus -- What does all that noise mean? - Symptoms and ... *topics merged

 

~~~~~

 

When you have a question or comment about a specific symptom, please search to see if we already have a related topic, we usually do.  Then you can benefit from previously collected information and add to the discussion.  This keeps the site organized with all available knowledge in one thread, easily accessible through searches.

 

The search function on this site doesn't work very well.  The best way to search this site for specific information  is to use Google. Type in survivingantidepressants.org then the symptom or information you wish to search for.

 

If after searching, you can't find what you're looking for, please start a new topic.


Edited by Petunia, 14 November 2015 - 04:50 AM.
updated

I'm not a doctor.  My comments are not medical advise. These are my opinions based on my own experience and what I've learned. Please discuss your situation with a medical practitioner who has knowledge of tapering and withdrawal...if you are lucky enough to find one.

 

My Introduction Thread

 

Full Drug and Withdrawal History

 

Brief Summary

Several SSRIs for 13 years starting 1997 (for mild to moderate partly situational anxiety)

Xanax PRN

Various other drugs over the years for side effects

2 month 'taper' off Lexapro 2010

Short acute withdrawal, followed by 2 -3 months of improvement then delayed protracted withdrawal

DX ADHD followed by several years of stimulants and other drugs trying to manage increasing symptoms

Failed reinstatement of Lexapro and trial of Prozac (became suicidal)

May 2013 Found SA, learned about withdrawal, stopped taking drugs...healing begins.

Protracted withdrawal, with a very sensitized nervous system, slowly recovering as time passes animal25.gif

 

Supplements which seem to help:  High doses of Vitamin C, Magnesium, Garlic and Ginger.  Taurine, Vit D3, L-Theanine and Inositol. I'm one of the rare people who react badly to fish oil.

 

June 2016 - Started daily juicing, mostly vegetables and lots of greens.

 

VIDEO: Where did the chemical imbalance theory come from?



VIDEO: How are psychiatric diagnoses made?



VIDEO: Why do psychiatric drugs have withdrawal syndromes?



VIDEO: Can psychiatric drugs cause long-lasting negative effects?

VIDEO: Dr. Claire Weekes

 

 

 


#58 Martina23

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Posted 14 November 2015 - 03:56 AM

I got also tinnitus after going off meds completely. At first it was very unpleasant, but with the time it almost went away. I get it only very seldom by falling asleep when everything is so silent, but it does not bother me so much anymore.
05/2013 Lyrica 100 mg / per day for pain + PGAD resulting from caesarian delivery11/2014 started to taper: 50 mg per day/ for one week then c/tafter one month reinstated at 50 mg /per days of 10 July 2015 drug free-
symptoms OCD

#59 quitpaxil2015

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Posted 14 November 2015 - 01:13 PM

I've had it nonstop for the past few months since tapering off Paxil.

Username: quitpaxil2015 - Started antidepressants sometime in 1990. Misdiagnosed with Bipolar, but later with thyroid disease in1998 (8 years of being on several different psychiatric meds with several psychiatric hospitalizations). Total thyroidectomy in 1999. At the time, was on 85 mg of Paxil. In 2001, tried to get off Paxil and had car crash due to vertigo and w/d symptoms. Given more psychiatric meds including Prozac and Trazodone to treat SEVERE w/d from Paxil - which is the only reason I still take Paxil. Tried to taper off Paxil again in 2004  - from 25 mg to 20 mg (5 mg cuts) - had to go back on 25 mg on the 10th day of the taper due to inability to function (dizziness, vertigo, motion sickness, crying spells, depersonalization, etc). Currently on Paxil 25 mg and Trazodone 100 mg. Trying to quit Paxil in 2015. April 22, 2015 - Paxil 22.5 mg. May 13, 2015 Paxil 20 mg. June 3, 2015 - Paxil 17.5 mg. June 24, 2015 - Paxil 15 mg. Don't remember  - 12.5 mg. August 5, 2015 - Paxil 10 mg. September 16, 2015 - 7.5 mg (considering going back up - severe anxiety/panic) September 28, 2015 - back up to 10 mg. October 6, 2015  - back up to 15 mg.   :unsure:


#60 RockSie

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Posted 23 November 2015 - 12:31 AM

I got tinnitus for 16 months now. Both sides, different sounds. Sometimes it's so heavy that my ears feels like vibrating. It's so loud inside my head. The tinnitus comes if something is too stressful.

#61 caperjackie

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Posted 23 November 2015 - 02:09 AM

Almost 5 years now ...... varies in intensity, comes with the buzzing/crickets ........learning to live with it ........



#62 Alana

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Posted 05 April 2016 - 12:50 PM

I had read on another board that people have reported tinnitus and other ear symptoms 2-5 months after stopping Cymbalta. I don't know how accurate this is.

 

I developed tinnitus, along with intermittent ear pain and pressure 2 months after getting off Cymbalta, (but 2-3 weeks after starting Lexapro). I suspect the ear issues are due to either the getting off Cymbalta, or beginning Lexapro.

 

Does anyone know of delayed ear problems happening when you get off Cymbalta, or any antidepressant?


March 2015: doctor lowered me from 60mg to 40mg Cymbalta, resulting in severe withdrawals.

April 2015: raised to 50mg Cymbalta; by end of month back up to 60mg, but didn't stabilize.

June 2015: raised to 90mg Cymbalta resulting in overdose/intolerance of drug.

July 2015: started on Neurontin (1800mg) and Seroquel (75mg)

September 2015: came off Cymbalta after weaning down 1mg per day.

October 2015: began Lexapro 5mg, then 7.5mg. Increased Neurontin to 1900mg and Seroquel to 125mg.

 


#63 Fresh

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Posted 06 April 2016 - 02:42 AM

Tinnitus is just another withdrawal/ toxicity symptom. Some people first develop it when starting meds.
and it's an indication that there's too much drug for the person to tolerate.

Other people develop it as a withdrawal symptom , and it can begin up to 18 months after stopping.
See our thread on "Head Noise and other symptoms in the Head" here https://www.google.c...118443451,d.dGY
1987-1997 pertofran , prothiaden , Prozac 1997-2002 Zoloft 2002-2004 effexor 2004-2010 Lexapro 40mg
2010-2012Cymbalta 120mg
Sept. 2012 -decreased 90mg in 6months. Care taken over by Dr Lucire in March 2013 , decreased last 30mg at 2mg per week over 3 months. July 21 , 2013- last dose of Cymbalta
Protracted withdrawal syndrome kicked in badly Jan.2014 Unrelenting akathisia until May 2014. Voluntary hosp. admission. Cocktail of Seroquel, Ativan and mirtazapine and I was well enough to go home after 14 days. Stopped all hosp. meds in next few months.
July 2014 felt v.depressed - couldn't stop crying. Started pristiq 50mg. Felt improvement within days and continued to improve, so stayed on 50mg for 8 months.
Began taper 28 Feb. 2015. Pristiq 50mg down to 45mg. Had one month of w/d symptoms. Started CES therapy in March. No w/d symptoms down to 30mg.
October 2015 , taking 25mg Pristiq. Capsules compounded with slow-release additive.
March 2016 , 21mg

#64 Alana

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Posted 06 April 2016 - 04:54 AM

Is it common for, or has anyone else experienced evolving tinnitus? Mine changes every month or so...or roughly every 5 to 7 weeks. I get a new tinnitus sound added on each time. This is concerning to me. Can withdrawal do this?


March 2015: doctor lowered me from 60mg to 40mg Cymbalta, resulting in severe withdrawals.

April 2015: raised to 50mg Cymbalta; by end of month back up to 60mg, but didn't stabilize.

June 2015: raised to 90mg Cymbalta resulting in overdose/intolerance of drug.

July 2015: started on Neurontin (1800mg) and Seroquel (75mg)

September 2015: came off Cymbalta after weaning down 1mg per day.

October 2015: began Lexapro 5mg, then 7.5mg. Increased Neurontin to 1900mg and Seroquel to 125mg.

 


#65 KarenB

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Posted 07 April 2016 - 02:29 PM

Mine changes also.  Sometimes it's high-pitched sounds, sometimes one ear, sometimes two, sometimes a roaring ocean kind of noise.  Sometimes constant, sometimes it changes with my movements. 

 

I believe it's just my brain working through what it needs to in order to heal.


2010 May Fluoxetine 20mg. Raging mostly stops, become more functional.
2011 February Escitalopram 10mg (sudden switch). 2012 January Escitalopram 20mg.  2013 Early June Feeling great, decide to taper. Doc advises alternate days 20mg/10mg for 4 weeks.  Late June Steady. Drop to 10mg daily. Early July Not coping, raging, flu symptoms, shaky, anxious, low, spaced-out, self-destructive.  Mid July Return to alternate days 20mg/10mg - minimal improvement. Early August Return to full dose 20mg. Lost.
2014 February Switch to Venlafaxine. (First reduced Esc. to 10mg/day for a week) Feb-April Lost, 'light' self-harm, exhausted.
April Increase Ven. to 150mg/day. Dizzy. July 75mg twice a day to improve dizziness. Deep depression remains.  2015 Feb Vigilant dose spacing partially eases dizziness. Mar Switch to Effexor 75mg 2x/day. May Cut 10% to 135mg - bad w/d 2 mths, held 1 mth.  Aug 1.3% cut - bad 1mth, held 1mth. Oct 4 wkly 0.4% cuts held 6 weeks. Jan 2016 2 wkly 0.4% cuts. 8 month hold. Sept Wkly cuts: 0.5%, 3 1% cuts.  Oct 4 wkly 1% cuts, hold 3-4 weeks.
Supplements: Fish oil, vitamins E & C, magnesium, iron, MSM, oat-straw tea, nettle tea.  My story of healing: ContinuedHealing

***I am not a doctor or counselor; please do your own research and be prepared to take responsibility for decisions you make.*** 

           'The possibility of renewal exists so long as life exists.'  Dr Gabor Mate.


#66 Junglechicken

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Posted 10 April 2016 - 07:24 AM

Mines been going for 9 months now.

It varies in intensity and pitch and also sometimes sounds like a jet engine. I have actually learned to live with it - it's pain I struggle with.

However thanks to SG and friends, I am now onto Mr Echart Tohl and the Pain Body. Working on my understanding of the psychology behind this.

<p>Feb 2014 -Cipralex/Escitalopram 10mg daily June 2015 - Started taper, 5mg every other day July 2015 - 5mg every 2 days August 2015 - 5mg every 3 days September 2015 - 5mg every 4 days Sept 14th - Completed tapering, but at 7 weeks "drug free" I suffered serious WD symptoms as a consequence of "incorrect" tapering. Nov 25 2015 - Re-instated Cipralex @ 2.5mg daily. WD symptoms disappeared over a few days. Have been on this dose ever since and am experiencing "windows" and "waves". Nov 15th 2016 Re-started Therapy Jan 19th 2017 Started CBT. Jan 2017 Homeopathic Treatment starts 4th Jan 2017. Mar 2017 Naturopathic Treatment starts - anti-Candida diet starts as diagnosis of Candida Related Complex (CRC). 24 March 2017 DETOX (3 weeks) started for anti-Candida to help "re-set" my gut. April 2017 "Genova Testing 3 day stool sampling" Comprehensive Analysis.  Gut Cleanse - 6 weeks.  Plan to re-start taper (liquid Cipralex/Escitalopram) when feel ready.


#67 Franklander

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Posted 12 April 2016 - 09:15 PM

My story with tinnitus has been somewhat confusing. When I think about it, I might have developed some sort of tinnitus when I was younger, and most likely forgot about it. Reason why, during my second week of reinstatement until now, it might have been resurfaced when I looked into it for the first time on detail. However, Hyperacusis has been something I've never experienced before and now follows my former symptoms. Worse because this Sunday I've experienced a screeching noise during a subway trip and I'm dreading that it might have damaged my inner ears. I just don't know if this symptom had resurfaced due to the reinstatement of because of the WD. It is something I've never experienced before, and I've gone off Lexapro CT more than once.

A Doctor prescribed me with Lexapro and Ritalin during 2013
Stopped Cold-Turkey during the run of 2014 and I did leave harmless.
Reinstated in cycles during 2015 (around 10- 20mg), stopped for a couple of monhts until 2016 (Reinstated in cycles around 7.5mg) and interrupted once again.

At least I don't miss Ritalin.


03/17/2016 Reinstatement of Lexapro under: 1 mg

Feeling somewhat stable, mild physical symptoms and psychological, mostly related to memory, brain fog and an annoying tinnitus.

05/16/2016 Started Microtapering: went to 0.9.5 and going for 0.9 in a week.


#68 Fresh

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Posted 13 April 2016 - 02:34 AM

You've differentiated between tinnitus (ringing in the ears , sounds inside the head) and hyperacusis , sensitivity
to sounds outside the head. So many of us have that experiences of even small noises becoming unbearable ,
uncomfortable like nails screeching on a blackboard. I literally jump when I hear a door slam , and am particularly
sensitive to noises from neighbours where I live. Each additional time we start and stop medications , we're prone
to develop new symptoms.

Neither of these symptoms is permanent , so the screeching subway isn't likely to have done any permanent damage.
Perhaps you would like to start a topic about "hyperacusis" in this section?
1987-1997 pertofran , prothiaden , Prozac 1997-2002 Zoloft 2002-2004 effexor 2004-2010 Lexapro 40mg
2010-2012Cymbalta 120mg
Sept. 2012 -decreased 90mg in 6months. Care taken over by Dr Lucire in March 2013 , decreased last 30mg at 2mg per week over 3 months. July 21 , 2013- last dose of Cymbalta
Protracted withdrawal syndrome kicked in badly Jan.2014 Unrelenting akathisia until May 2014. Voluntary hosp. admission. Cocktail of Seroquel, Ativan and mirtazapine and I was well enough to go home after 14 days. Stopped all hosp. meds in next few months.
July 2014 felt v.depressed - couldn't stop crying. Started pristiq 50mg. Felt improvement within days and continued to improve, so stayed on 50mg for 8 months.
Began taper 28 Feb. 2015. Pristiq 50mg down to 45mg. Had one month of w/d symptoms. Started CES therapy in March. No w/d symptoms down to 30mg.
October 2015 , taking 25mg Pristiq. Capsules compounded with slow-release additive.
March 2016 , 21mg

#69 Dan998

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Posted 13 April 2016 - 04:17 AM

"Hyperacusis is the name for intolerance to everyday sounds that causes significant distress and affects a person's day-to-day activities.
 
The condition can vary quite a lot. For example, some people find loud noises extremely uncomfortable, some find certain noises particularly annoying, some develop a fear of certain noises, while others experience pain when hearing ordinary sounds.
 
Hyperacusis can also be a side effect of certain medications. If you're taking any medication, check the leaflet it comes with to see if hyperacusis is listed as a possible side effect".
 
The NHS Choices website has more info and links about tinnitus and Hyperacusis

2001: 20mg paroxetine for anxiety and depression
2003-2014: Switched between 20mg citalopram and 10mg escitalopram with several failed CT's
2015: Jan/ Feb-very fast taper off citalopram; Mar/ Apr-crashed; 23 Apr-reinstated 5mg; 05 May-updosed to 10mg; 15 Jul-started taper; Aug-9.0mg; Sep-8.1mg; Oct-7.6mg; Nov-6.8mg; Dec-6.2mg
2016: Jan-5.7mg; Feb-5.2mg; Mar-5.0mg;  Apr-4.5mg; May-4.05mg; Jun-3.65mg; Jul-3.3mg; Aug-2.95mg; 04Sep-2.65mg; 25Sep-2.4mg; 23Oct-2.15mg; 13Nov-1.95mg; 04Dec-1.75mg; 25Dec-1.55mg.
2017: 08Jan-1.4mg; 22Jan-1.25mg; 12Feb-1.1mg; 26Feb-1.0mg


#70 caperjackie

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Posted 13 April 2016 - 08:18 AM

Mine changes too ......... for the most part I just live with it with the help of white noise from the radio or TV. I used to get a few hours break from it every few weeks (such blissful silence) but have not for a very long time. At 5 years off I figure this one may be permanent ....... not great but there are far worse things ....... like still being on these foul poisons.



#71 ikam

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Posted 05 February 2017 - 10:41 AM

I have a type of pulsating tinnitus in one ear. It is as if magnified heart beat that I hear in my ear. Irritating in times. Don't know if I should investigate it further or treat ad WD? I have had it for over half a year...
Has anybody have symptom like this? What could be an explanation?

- Started various antidepresants in 1983 (doxepin, amitriptiline, anafranil), always stopped abruptly and then reintroduced; Long term use of benzos since 1983, on and off, in times prolonged use
- 2012 re-started Doxepin 75mg, evening. Atenolol 25mg, twice a day (both as a migraine prevention); Low dose of HRT (Sandrena gel +  Utrogestan 100mg)- evening; Nasal spray Otrivine for about 3 years- evening and morning (Used to abuse nasal spray for years). PPI Omeprazole 40mg-evening

- 24.10.2014- Started escitalopram-first 5mg and then 10mg; 5.01.2015- Escitalopram- 2.5mg (I had an adverse response to escitalopram and doxepin; hence I was decreasing escitalopram faster)

- June 2015- decreased Doxepin from 75mg to 50mg; 28 November- intentional over-dose (doxepin- 250mg). 1-2 April- over-dose 350mg, 17.07.2016 Doxepin 150mg- intentional over-dose(Tendency to overdose when stressed out...)

- 22.07.2016- reduced by 1%, 29.07- reduced by 2%, 2.08- reduced by 3%, 9.08- reduced by 4%. Holding for 5 weeks

- 13.09- reduced by 5%, 20.09- reduced by 6%, 27.09.2016 reduced by 7% , 4.10- reduced by 8% = 2.3mg. Holding for 5 weeks

- 14.11- reduced by 9%, 22.11- reduced by 10% = 2.25mg long holding

​- 06.04.2017- REDUCED by 2% since the last dose = 2.2mg

-20.12. 2016- changed my diet and supplements protocol; Ionic Liquid Iron twice 100ml, Liquid Zynk- twice- 50ml, MegaMag Liquid- evening 100ml, Curcumin 600mg x 3 a day Burdock Root + Epsom Baths. Changed diet to Protein one + Veg; Avoiding carbs. Protein Shake (Pure Power Protein Powder by Mercola) + Supergreens + Coconut Oils, Himalayan Salt with lemon


#72 ChessieCat

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Posted 05 February 2017 - 11:31 AM

Hi ikam,

 

Have you had your blood pressure checked?


Podcasts:    Let's Talk Withdrawal

 

Antidepressants:  25 years - 1 unknown, Prozac (caused muscle weakness), Zoloft; Cipramil CTed (very sick for 2.5 wks soon after)

Pristiq:  50mg mid 2012, 100mg beg 2014 (mild Serotonin Toxicity)     Current:  Pristiq 25mg (from 21 April 2017)

 

Tapering history & graph

My website - includes my brief history + links to videos & information on the web

 

I've still got a way to go ... but I've already come a long way!!!

 

PLEASE NOTE:  I am not a medical professional.