I have read this before and I have been in contact with one of the authors, Peter Groot. I read his article about tapering in a well known Dutch paper and was very surprised to read a few of my own posts in his article, which he had cited from the website of "Tros Radar", a well known Dutch consumers TV program.
I wrote him a mail early 2013 and he mailed me back and was very kind. He even stated that I could have contributed to this initiative. Indeed I am not fully confident about the tapering schedule of tapering off paroxetine in one month and I wrote him last month to tell him that. He has not reacted to that mail, but indeed is is a good start, albeit 20 years too late.
Maybe you are interested in the mail he sent me, as well as my original email to him, I will post a Google translation below:
Dear Mr. van G, dear Klaas ,
Thanks for your email. Nice to hear from one of those we have listed . Citations in our report something Those stories on the Internet make it very clear what problems patients themselves have to make , and that they therefore sometimes found the medical profession itself better solutions.
It must be before a change takes place as long as I try to see as a fact- of-life as possible. Itself Myself excited about ( and I can very well ) leads me in the pratice only that I ruined my mood . Therefore , I'm trying to consciously do as much as possible in every case rather to the future. That I can not always , but it helps me and asked me at least be able to write as I have written bottlenecks note : focus on change and improvement . I experience more satisfying if I can contribute to change than when I myself - how justified it might be - for example winding lawsuits against pharmaceutical companies . I understand the anger and indignation , but also see that these lawsuits is a whole industry holding back on expensive lawyers to work. There is a cynical man easily and that is for someone with a depressive impact not useful emotion . What is more, it is often not achieved much . Because even if a pharmacist must ultimately pay a fine, what does that mean ? Patients would be better served with a generous confession and sincere apologies than with x - amount after so many years of litigation . That amount they might receive , but those excuses , I do not expect much . You write at the end of your e-mail ' Your research will hopefully change that here . " I hope with you that that will happen . A first step would be actually made available to ' outfitting packages " can be. Paroxetine There is a concrete initiative in this direction where i can say. Much more at this time For you, that is unfortunately too late, but maybe it's a ( poor ) consolation for you to know you are there to have contributed . Indirectly with your comments on the Internet with warm regards , Peter Groot
From: Klaas van G [ mailto : klaasg@xxxxxxx ]
Sent : Saturday, January 5, 2013 12:52
To: x.x.groot @ xxxxx ; info@xxxxxxxx
Cc : redactie@xxxxxxxxx
Subject : Article Finishing antidepressants and experience Seroxat / Paroxetine
to: Dr . And Dr. Peter Groot . Jan van Ingen Schenau
Utrecht , January 5, 2013
Dear Sirs Groot and van Ingen Schenau ,
I recently read the article " Finishing antidepressants could be much better " in Medical Help from December 14, 2012 , I received from my sister who works at the KNMG . The article immediately aroused my interest and on the website of Medical Help , I have also extensive article " Antidepressants better taper , Plea for a directive : discontinuation of antidepressants , a bottleneck " read.
First of all I would like to compliment you on the detailed and clear analysis of the problems especially the SSRI and SNRI antdepressiva which have hardly been exposed and even to the absurd denied within the medical and pharmaceutical world . And then I was surprised to read this article which I have posted. As " expert by experience " in the course of the past 3 years on various forums some of my own contributions back These are the following amounts which of my hand : 5 . .... GPs and psychiatrists have no idea majority the terrible withdrawal symptoms these resources and the need to very , very slowly winding down .
I would be a kill for it if I could turn back but unfortunately I This site only when I found one and a half years in my cold turkey was and it was too late to build according to the only correct schedule. 11. .... However, the scheme as described above is still not completely times correctly . The highly skilled website is Paxilxxxxx.org leading in terms of knowledge in this area . The site focuses primarily on withdrawal from Paxil ( Paroxetine / Seroxat ) , but also many Members who want to quit venlafaxine or any of the other crap SSRI drugs. The site recommends a dose reduction of 5-10 % by 3-6 weeks. So no half rings ! And indeed means This count granules or pills filing and weigh .
It is encouraging to read that finally doctors / researchers who take note of the reports of ( ex ) users of these resources is often no other platform than internet forums to share their experiences and support in the often excruciating process together of reducing and stopping . For me, stopping Paxil ( Paroxetine / Paxil ) was absolutely the most horrific experience of my life and it was even very nearly it had been .
The last two years of my total five -year Paxil use had been a dramatic period of quit attempts followed by forced to start the absolutely intolerable withdrawal symptoms , which work and function perfectly normal daily made it impossible to disappear again. Although I called the doctor and a psychiatrist visited was never explained to me about the risks of stopping this means , right then and reduction protocols hindsight I totally misinformed as said with disastrous consequences .
Finally I decided to quit the drug because lifelong swallow was totally unacceptable to me and I still had no idea what was waiting for me after final cessation of intake of daily 10 mg ( package insert advises even after repeated failed attempts however, a question still to be built in increments of 10 mg and because I " only" 10 mg used so this was a step, and I have therefore followed the official protocol ) . Among others I was told that the drug was " not addictive " ( which thus in my opinion very misleading pharmaceutical definition is used where addiction is completely disconnected from withdrawal symptoms , irrespective of the duration and severity ) , that withdrawal symptoms " are mild and within a few weeks on " should be the dose of 10 mg" homeopathic "and " I do not swallow " which was totally ignores the nature and severity of withdrawal symptoms , both physical , psychological and neurological and no relationship for nothing had a reason for writing , although let himself in such a way apply during the withdrawal my rather traumatic ( plague) past that I myself believed for some time that the traumatic memory , which came back as if it had happened yesterday, had made me sick because each associated with paroxetine was denied and was also said to be " out of my body was long " after so many weeks / months .
After the last stop , in September 2007 , I refused to start with and it has become the most hellish ride of my life . The terrible diarrhea and stomach cramps were after about twenty months the first " withdrawal symptom " that disappeared even though I do in all other respects still a living corpse felt with a range of piece by piece unbearable physical and mental symptoms including temper tantrums and endless crying for nothing , overall cognitive loss , tingling and electricity shoots through skin and heart region , eye muscle spasms , waves of nausea , headaches and electrically charged scalp to name but a few.
About the same time I discovered the then largest support site http://www.paxilxxxxxx.org and then finally the scales fell from my eyes. Now, five years after stopping there is much restoration but my job , I have long been lost because I was not very long able to work . Happy to work again for 50 % away from home that I get a small addition to the WIA and I hope my career in IT due time yet again to resume . At least as bad as the horrible symptoms was the wall of ignorance and denial that I was against it , both GPs , psychiatrists and occupational physicians . Even after I had found , among other reputable and independent researchers and authors of several books on the subject of many publications as Prof. David Healy , Prof. Dr. Peter Breggin and a astronomical number of reports of patients especially Seroxat ( paroxetine ) and Effexor ( venlafaxine ) was allowed to persist in this denial , they tried to get me to the pills again or gave several psychiatrists that I immediately asked " not to be available " when they heard what it was about . via email for help By now I had learned that because the damage was precisely due to the much too soon, in my case cold-turkey withdrawal that especially in the case of Paxil, also from 10 mg , a great drain on your body and mind is that this has nothing to do with waste material but rather to the abrupt stop of an agent whose chemical signals between nerve cells become total ( arguing that " it is already out of your body " is so totally disabled ) and to stimulate the for me it was too late to secure, ie to phase very slow , gradual and consistent ( the doctors mentioned above recommend in consultation with the major online support site 5-10 % reduction per line 3-6 weeks ) and I could do nothing more than recovery wait and this could ever going to be a matter of years (the term of 4-7 years is often called ) without any possibility to speed up this process. All this time I've been in fear that my payment would be withdrawn because I was accused of " not listening to doctors , did not want to swallow my medication and did not want to deal with me," and knowing that even psychiatrists often not height and still rely on the guidelines of the drug manufacturers .
And while I had also discovered that Paxil manufacturer GlaxoSmithKline long and macabre history of concealment of information , " ghostwriting " and been convicted multiple times as massive fines , about 10 years ago already been two documentary series about Seroxat - scandal were broadcast on the BBC , but where apparently the manufacturer unfortunately still more lucrative to persist in denial, pay the fines and continue to go through. on the same footing In the case of Paxil now seem many doctors in the Western world to be the extreme risks of this agent still slowly penetrated and less frequently prescribe what bijkbaar response has been to bring the means now to the man for GlaxoSmithKline 's far East to still milking , including the last penny profit out clear from this publication : http://truthman30.wo...roxat-in-china/
Many of the problems I read back into your article and I hope this is the start will be in a situation where patients are informed honestly and assisted where necessary by safely dismantle these resources where the costs can be recovered from the manufacturers who have such juggled the definition of addictive and knowingly withheld information and manipulated so there is absolutely no question of a responsible and well- informed decision about a drug as Seroxat / Paroxetine / Paxil go swallow , nor proper guidance in phasing / stop . Unfortunately, it seems that this manufacturer has no interest to their means of an " exit strategy " to provide . And as Paxil , I still can not understand that this means at all is allowed , after all reports , lawsuits , TV reports and thousands of deceased children (who received the drug while GSK knew that this was absolutely unsafe , see in the 90s include below mentioned article) has still not been removed from the market and manufacturer GSK despite the fines it stays here and get away with the responsible criminals are still at large . See also the article on http://www.psy.nl/me...miljard-dollar/
I have , therefore , perhaps unnecessarily , in this mail are enclosed a copy of the petition Paxil site where thousands of victims to notify them that Paxil / Seroxat has done with them , especially during the withdrawal / withdrawal . If things are not true , and I myself had not experienced it I would perhaps also can not believe that this horror the bitter reality for hundreds of thousands of innocent people who are in a difficult period of their lives, sought help from a doctor to a "safe and not to get addictive " remedy their stress , anxiety or depression prescribed.
Finally, I would like to say that , now 5 years ill due to their habit , but now so does recovering , still do not have a formal diagnosis because the SSRI withdrawal syndrome still does not officially exist and is recognized only by very few physicians ( h ) . And I am also fallen to the level of benefits because of the extension of the WIA benefit a diagnosis of a medical specialist is needed now. Although money is not the only one, I find it incomprehensible that so far no doctor willing / has been able to establish that all information about Paxil, including patient reports , TV reports and the numerous lawsuits and the shameless correct diagnosis cheats manufacturer GlaxoSmithKline are included in the comparison. Not to mention a compensation for the fact that these "non - addictive wonder drug " has made inadequate and erroneous information to physicians and the deceit of the years of my life , and that of hundreds of thousands with me , to an unbearable hell manufacturer .
Therefore, I would also resolve to ask if you could recommend who is aware of this matter in all its facets to come . Establish a correct diagnosis to find a good doctor in the me My doctor , after an official complaint fro my side accompanied by a bulky suit publications finally tends me to believe has unfortunately mean because it falls outside the scope of general practice and psychiatry ( exceptions but I have this little could not find it ) in the Netherlands, all too often an extension of the pharmaceutical industry and has so far not been here I totally helpful.
I also hope that my mail still contributes to knowledge in this field and questions I am always willing to answer . Incidentally, I have been through several online support sites reach a large number of people, warned of the consequences of the withdrawal , and pointed to the need to be extremely cautious and slow to do so. Unfortunately, it's the year 2013 apparently still need people to sort this yourself via the Internet, which many never get the truth because their doctors remain confident and that would not be like that. I still get very often emails from people who hear their doctor got that you can just quit Paxil , or the most bizarre and dangerous reduction schedules apply , including phasing in a few weeks or , worse , skipping doses , and thus are at risk of coming . same hell I give these people explain the 5-10 % reduction rule and some have already let me know that I probably saved their lives ... Many have thus lost all confidence in the regular medical care . Your research will hopefully change anything here .
Sincerely , Klaas van G
Edited by Altostrata, 15 June 2014 - 10:56 AM.