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PSSD Post-SSRI sexual dysfunction


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Folks, I would much rather you discuss potential treatments or cures on sites specializing in PSSD rather than here, where there will be more people who can knowledgeably discuss your posts.

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

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Just relax man. It's not permanent.

Denying that PSSD can be permanent is degrading for PSSD victims whose PSSD is permanent, indeed.

It's very important that this does not get downplayed. Very, very often this gets downplayed. Even in this forum. My impression is that nearly nobody recovers from PSSD. And I say this after keeping track of dozens or hundreds of PSSD experiences.

I took Escitalopram for 6 days, nothing changed after nearly 2 years.

Ghost took Escitalopram for 4 days, he still has PSSD after 2 years.

Akakoom took Paxil for a few days, 10 months later he reported "no progess".

Celexahell took Celexa for about a week. Nearly two years later the user celexahell at pssdforum.com reported "virtually no improvements".

These 4 cases even happened just in the last 2-3 years! And I mention these cases because they took it just for a few days. Otherwise the list would be much longer.

There is no evidence that most or at least 10% of the people with PSSD recover completely when you exclude the 99.99% majority that recovers within a few days/weeks.

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I've had PSSD for 3 years (was on Lexapro for 3.5 months). After the first year post-withdrawal, I recovered about 10% of my function (the horrible electrical zap sensations from stimulation to my genitals stopped and I can now have a muted, short orgasm by using a vibrator - but still cannot orgasm from manual or oral stimulation). I've had no further improvement in 2 years. My sex drive has completely gone away because there's no point. 

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Hi all, I've been on Zoloft for a few months at 50mg once a day. I did a quick taper by removing 12.5mg each week. I am off for 2 weeks now. During the time I took Sertraline, I had pretty much all of the sexual symptoms. When I was tapering, everything returned back to normal, and stayed that way for 4 days of being off.

 

But then a lot of bad things started happening: I had a breakup, I guess my withdrawal picked up at that point as well. I started getting extremely anxious and panicky, overthinking everything. I barely ate, and still barely do. Today I had a cheeseburger at work and I am not planning to eat anymore soon.

 

But the most scary and terrifying part is the fear of PSSD. After that 4 day mark I lost my drive, except for 2 occasions late at night when I was feeling calm. Now there's no drive whatsoever, I don't even feel like looking at girls in the street or at porn. I am still able to get hard and reach an orgasm fairly quickly and effortlessly, but it took some concentration to get hard last night and it wasn't the hardest of erections. I'm quite sure if I fall into a state of permanent PSSD, I might do the most irrational thing, or at least will never be able to accept myself.

 

Is it just stress, onsetting PSSD or what? Any help would be hugely appreciated, because I'm losing my sh*t..

Edited by ChessieCat
SW para breaks/CC changed obscenity
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Try to forget you ever heard about pssd. You'll be alright, just try to find peace in your life again. Stop worrying and stressing! Hit the gym, go for a run.. Everything will return to normal. And most important, stay away from conversing with others stuck in the same state of mind.

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Djderek, thanks for the encouraging words. It'll be easier said than done though. I had read about PSSD while on Zoloft and was sooo happy when my sexual abilities returned, and now I feel like in limbo, not knowing is hard. All I have left is hope. But I can't imagine accepting having permanent damage and moving on to a full life sadly :(

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Sorry for all the panic from my side, but if I had 2 weeks of completely normal function during tapering, is that a positive sign that my brain and genitals and everything between them are ok, or it does not make a difference and it can go both ways?

Thanks

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I'll paste my comment from a reddit thread:

 

So an update to my situation: the more time passes, the worse my functioning becomes apparently. I'm still stressed and anxious in general, but far less. I have been quite successfully pushing pssd thoughts awayfor the past two days. Talked to my therapist (who is also a neurologist) about pssd, and he really dismisses this idea obviously. I did another "test" today, and the erection had to be built up and was very limp (60% I'd say). I ejaculated really quickly, with low pleasure. Not sure about the sensitivity, seems ok. Though I'm still not eating well, not sleeping well and, if it's not biological pssd, I am putting way too much pressure on trying and failing to become aroused and the whole functioning.

 

The SSRI I was put on was very pointless in retrospect. But now I'm quite afraid of becoming asexual and impotent... I guess the best thing to do, is to try and not think about it as much as possible, not test myself, try to eliminate stress, eat healthier, exercise, take some ginko biloba... and see where a month or so gets me. But damn this is scary to think I might be in the small percentage of unlucky ones... I don't know what to do now.

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  • Moderator Emeritus

Because of the scarcity of research on PSSD, it's difficult to make an evidence-based conclusive statement about PSSD -- causes, prognosis, factors that affect recovery, and what treatments work for whom.

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.
1997-1999 Effexor; 2002-2005 Effexor XR 37.5 mg linear taper, dropping same #beads/week with bad results

Cymbalta 60 mg 2012 - 2015; 2016: 20 mg to 7 mg exact doses and dates in this post; 2017: 6.3 mg to  0.0 mg  Aug. 12; details here


scallywag's Introduction
Online spreadsheet for dose taper calculations and nz11's THE WORKS spreadsheet

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  • 4 weeks later...

Hi all.  I have been completely off meds for about three months now.  Here's the weird thing - sexual functioning has gotten worse in some ways, I've experienced some genital anesthesia post meds in a way I didn't experience on meds.  I'm hoping it's just my nervous system rewiring itself.  Has anyone else experienced this?  Thanks!

2003 - 9/2016 - Cymbalta, 20 mg

8/2016 -10/2016 - Prozac, 10 mg to ease Cymbalta w/d

1/2017 - back on Cymbalta, 20 mg

2/20 - 5/22 gradual Cymbalta taper (15, 10, then 5 mg)

5/12/22 - final 5 mg Cymbalta dose

2/20 - present Bupropion 150 mg

 

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Hi Karla,

 

I had the same issue. The numbness was most pronounced during the first 3 months of withdrawal and then gradually got better. I'm 15 months off now. I'm not fully healed by any means, but there isn't an intense feeling of numbness like before. Libido is slowly coming back, but not fully yet. Hope this helps! 

Celexa 10 mg ( approx 5 years), reduced to 5mg (approx 10 years). Prescribed for anxiety and panic. Started tapering July 2015-2.5 mg for a month, then 2.5 every other day. Kept tapering until October when I took my last crumb.  Almost 4 years drug free and WD symptoms are evolving constantly. Some improved, some new. 

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Yes It's been over 6 years since I came off my 'medications' and it is permanent harm I will have to be violated by my 'doctors'/'experts's' forever. It is often reffered to as PSSD. Thats Post-SSRI Sexual Dysfunction. There is a PSSD forum and thousands registered on an old yahoo group too.

 

Some ahole that goes round in the interests of drug companies got PSSD with over 57 references deleted from wikipedia (the english version)

 

I was a teenager when it started happening. I am now 27 soon. 

 

I wish I could scream help or something. I obviously don't matter anymore if other human beings have the right to violate my body like this. 

Cocktail drugged since 9

Genitals went numb

Extreme intestinal gas and pain

Extreme anxiety cant concentrate

All permanent

 

Post-SSRI Sexual Dysfunction (PSSD)

http://pssdblog.blogspot.com

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  • Moderator Emeritus

There is a discussion topic about PSSD here on this site: Post SSRI Sexual Dysfunction (PSSD). Please continue the discussion there.

 

I will move these posts to that topic in a day or two.

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.
1997-1999 Effexor; 2002-2005 Effexor XR 37.5 mg linear taper, dropping same #beads/week with bad results

Cymbalta 60 mg 2012 - 2015; 2016: 20 mg to 7 mg exact doses and dates in this post; 2017: 6.3 mg to  0.0 mg  Aug. 12; details here


scallywag's Introduction
Online spreadsheet for dose taper calculations and nz11's THE WORKS spreadsheet

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I'll paste my comment from a reddit thread:

 

So an update to my situation: the more time passes, the worse my functioning becomes apparently. I'm still stressed and anxious in general, but far less. I have been quite successfully pushing pssd thoughts awayfor the past two days. Talked to my therapist (who is also a neurologist) about pssd, and he really dismisses this idea obviously. I did another "test" today, and the erection had to be built up and was very limp (60% I'd say). I ejaculated really quickly, with low pleasure. Not sure about the sensitivity, seems ok. Though I'm still not eating well, not sleeping well and, if it's not biological pssd, I am putting way too much pressure on trying and failing to become aroused and the whole functioning.

 

The SSRI I was put on was very pointless in retrospect. But now I'm quite afraid of becoming asexual and impotent... I guess the best thing to do, is to try and not think about it as much as possible, not test myself, try to eliminate stress, eat healthier, exercise, take some ginko biloba... and see where a month or so gets me. But damn this is scary to think I might be in the small percentage of unlucky ones... I don't know what to do now.

I struggle to see how I could just be one of the extremely rare unlucky ones. I was on a cocktail since years as a kid. I struggle to see how I am an unlucky co-incidence of all the people. It just doesn't feel like a rare co-incidence. There is probably a lot more, especially on cocktails for long times.

 

Maybe I couldn't have come out of all those drugs for so long okay, it probably isn't a co-incidence. This is my body, no other human should be violating it so personally and in a way that is supposed to be private, and mine.

Cocktail drugged since 9

Genitals went numb

Extreme intestinal gas and pain

Extreme anxiety cant concentrate

All permanent

 

Post-SSRI Sexual Dysfunction (PSSD)

http://pssdblog.blogspot.com

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I was reading on the Rxisk website that Dr Healy thinks although people who have PSSD can recover to a certain degree, he thinks full recovery from PSSD is unlikely. As someone who suffers from PSSD and has only seen small improvements, this has got me quite worried. I was wondering what other people on surviving antidepressants think about Dr Healy's stance on PSSD. Do you think he is right? Why do you think he has such a pessimistic outlook on PSSD?

Edited by scallywag
merged topics

Last took an SSRI January 2009.

Last took a benzodiazepine May 2015.

Free from all prescription medication since May 2015.

Everything has mostly healed apart from PSSD which is still very bad, and is my most distressing symptom. Also i have developed some allergy problems/ sensitivities to things in the environment which i believe was possibly caused by the prescription medications (SSRI's and benzos).

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Hi everyone; wanted to share my feedback regarding lexapro (escilatopramt) withdrawal. 29 years old, male, workout, normal weight.

 

First i would like to say i am NOT recommending what i did, i am just giving feedback on what i did and how i approached the situation. I work 2 jobs, 1 managing over 40 people and 5 teams and the other as a personal trainer so i really couldnt afford to have side effects.

 

Been taking ambien and lexapro (20mg) the past 7-8 months for depression and insomnia. Past 3 months since i was getting annoyed with all the sexual side effects of lexapro so my doctor added wellbutrin 300mg.

 

Wellbutrin helped a bit but not the point i wanted to. About a week ago i got really pissed off as one more time my gf wanted to have sex but again i wasnt in the mood so i cut the lexapro cold turkey and increased the wellbutrin to 450mg (i told my doctor) hoping to counter attack the side effects. I am aware that lexapro and wellbutrin are quite different anti-depressants.

 

First two days i felt kind off down and zoned out but i tried to be positive and noticed that talking to people all the time helped rather than isolating myself. Third day a REALLY pleasant effect came into play. Libido came back hard and touch wood is still going excellently. It's been a week without lexapro i feel kind off zoned out and slightly depressed on occasion but i am noticing daily improvements. My energy is also much better. Because of wellbutrin? I dont really know.

 

I just wanted to share the above and want to say that i believe the mentality/mood we approach any situation is very, very important. If i quit lexapro and already doomed myself that i would suffer before even quitting (pygmalion effect) than probably i would suffer more. I actually tried to quit before by going from 20mg to 10mg but i was so obsessed that i would suffer and was worried that actually the side effects were much more! 

 

Trying to be as positive as possible and have faith that there will be light at the end of the tunnel really helps in my opinion. And of course only associating with positive people. 

 

Please do not get me wrong i understand the suffering of many people and by no means am i saying that withdrawal is all mental and easy. Of course it is not, i have gone through my fair bit of suffering and addictions. All i am saying is that we should always believe we will get better, we should visualize our selves already being better and we should have faith we will become better.

 

Thank you

Likesoup

 

 

 

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I was reading on the Rxisk website that Dr Healy thinks although people who have PSSD can recover to a certain degree, he thinks full recovery from PSSD is unlikely. As someone who suffers from PSSD and has only seen small improvements, this has got me quite worried. I was wondering what other people on surviving antidepressants think about Dr Healy's stance on PSSD. Do you think he is right? Why do you think he has such a pessimistic outlook on PSSD?

 

Yes.  It's not pessimism, it's realism.  He indicates that up to 90% of people who take antidepressants may experience sexual dysfunction.  Sexual dysfunction is a very easy symptom to be in denial about - as there are psychological ways to "compensate" for sensory numbness - so it's possible to still function highly and just say "nah that can't be true".  The spellbinding effects of withdrawal and the blunting of emotions make it difficult to accurately remember previous versus current sexual performance - as such, it's hard to objectively state if you're back to normal, and I think this results in people who are in denial or honestly do not remember how much better it used to be.

 

In my opinion, anhedonia / emotional blunting and sexual dysfunction work together and act synergistically to make our lives miserable.

 

I'm 3.5 years out and I still cannot feel any emotions whatsoever.

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I know sex was about a million times better for me before taking SSRI's. The difference is so obvious. I don't think I can continue with this inability to experience sexual pleasure forever. My life is miserable. It has to end at some point. Doesn't it?

Last took an SSRI January 2009.

Last took a benzodiazepine May 2015.

Free from all prescription medication since May 2015.

Everything has mostly healed apart from PSSD which is still very bad, and is my most distressing symptom. Also i have developed some allergy problems/ sensitivities to things in the environment which i believe was possibly caused by the prescription medications (SSRI's and benzos).

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This mental health marketing is taking the p***, they are mass drugging and harming people and throwing the insults in our face. This is the worst insults they couldn't be more obscene with it.

 

You'll never hear those they injured from these pharma sponsored  'mental health' charities. We need to hold them to account.

Cocktail drugged since 9

Genitals went numb

Extreme intestinal gas and pain

Extreme anxiety cant concentrate

All permanent

 

Post-SSRI Sexual Dysfunction (PSSD)

http://pssdblog.blogspot.com

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Rethink mental health charity is sponsered by drug companies. I don't think National MIND is, but I wouldn't't be surprised if they are.

Last took an SSRI January 2009.

Last took a benzodiazepine May 2015.

Free from all prescription medication since May 2015.

Everything has mostly healed apart from PSSD which is still very bad, and is my most distressing symptom. Also i have developed some allergy problems/ sensitivities to things in the environment which i believe was possibly caused by the prescription medications (SSRI's and benzos).

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Also the MHRA who regulate the drugs in the UK (much like the FDA does in the USA) is in a way controlled by the drug companies. Thetop people who work in the MHRA are ex drug company CEO's etc. This is fact, you can look it up.

Last took an SSRI January 2009.

Last took a benzodiazepine May 2015.

Free from all prescription medication since May 2015.

Everything has mostly healed apart from PSSD which is still very bad, and is my most distressing symptom. Also i have developed some allergy problems/ sensitivities to things in the environment which i believe was possibly caused by the prescription medications (SSRI's and benzos).

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Oskcaja. According to David Healy it might end up ending when I die. I.e I never recover. So let's say I live out a full life. That's another 50 years of not being able to have an orgasm, feel my penis, or enjoy sex in any way shape or form.

Edited by ChessieCat
Removed obscenity

Last took an SSRI January 2009.

Last took a benzodiazepine May 2015.

Free from all prescription medication since May 2015.

Everything has mostly healed apart from PSSD which is still very bad, and is my most distressing symptom. Also i have developed some allergy problems/ sensitivities to things in the environment which i believe was possibly caused by the prescription medications (SSRI's and benzos).

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Oskcaja. According to David Healy it might end up ending when I die. I.e I never recover. So let's say I live out a full life. That's another 50 years of not being able to have an orgasm, feel my penis, or enjoy sex in any way shape or form.

 

Living with this condition is not easy for anyone, one must find alternative reasons for living besides those we enjoyed for most of our lives prior to this point.

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Anyone currently suffering from PSSD-when you drink alcohol are you able to get the pleasurable effects? That buzzed feeling or a feeling of drunkeness? I can't help but think the two are related with respect to dopamine levels. 

Celexa 10 mg ( approx 5 years), reduced to 5mg (approx 10 years). Prescribed for anxiety and panic. Started tapering July 2015-2.5 mg for a month, then 2.5 every other day. Kept tapering until October when I took my last crumb.  Almost 4 years drug free and WD symptoms are evolving constantly. Some improved, some new. 

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I'm just now able to drink alcohol again after not being able to for 4.5 years after a horrific protracted benzo withdrawal. I haven't noticed any return of pleasurable sexual sensations when I drink alcohol, but I haven't really tried mixing the two either. Is this working for you? Being buzzed or drunk always lessened my sensations previously but I'll give it a try. 

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I'm not suggesting to mix the two, but wondering if when you drink, you're able to feel a buzz and feel drunk? I find this sensation has been reduced for me since I stopped taking my SSRI 15 months ago. I'm sure it will creep it's way back, just as I'm hopeful that full sexual responsiveness comes back. 

Celexa 10 mg ( approx 5 years), reduced to 5mg (approx 10 years). Prescribed for anxiety and panic. Started tapering July 2015-2.5 mg for a month, then 2.5 every other day. Kept tapering until October when I took my last crumb.  Almost 4 years drug free and WD symptoms are evolving constantly. Some improved, some new. 

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I have PSSD for 4 years and the buzz of alcohol has definitely been reduced. No improvements on that. I'm sure the two are linked.

September 2011 - 75 mg Effexor, 15 mg Mirtazapine
September 2012 - CT. Developed PSSD (mostly erectile dysfunction and diminished enjoyment of sex).
January 2016 - Symptoms persist, no improvements. In fact, things seem worse now than they were in the first year.

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Ah okay. Yes, I'm able to feel a buzz/drunk. I'm not the best person to answer this because I was completely alcohol intolerant for years after benzo withdrawal (caused severe neurological symptoms). But since my alcohol ability came back, maybe my sexual ability will too. 

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I think that's a very good sign Rainy! 

Celexa 10 mg ( approx 5 years), reduced to 5mg (approx 10 years). Prescribed for anxiety and panic. Started tapering July 2015-2.5 mg for a month, then 2.5 every other day. Kept tapering until October when I took my last crumb.  Almost 4 years drug free and WD symptoms are evolving constantly. Some improved, some new. 

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Im way too scared to drink alchohol or anything after this... I won't even touch caffiene in tea.

Cocktail drugged since 9

Genitals went numb

Extreme intestinal gas and pain

Extreme anxiety cant concentrate

All permanent

 

Post-SSRI Sexual Dysfunction (PSSD)

http://pssdblog.blogspot.com

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Me and fema4psychiatrists are going to try and petition panorama to make a program about PSSD. I have started a thread in the events, controversies, actions section and you can find the email to send your information to there. Please get involved people.

Last took an SSRI January 2009.

Last took a benzodiazepine May 2015.

Free from all prescription medication since May 2015.

Everything has mostly healed apart from PSSD which is still very bad, and is my most distressing symptom. Also i have developed some allergy problems/ sensitivities to things in the environment which i believe was possibly caused by the prescription medications (SSRI's and benzos).

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I have a question about ejaculation during withdrawal. When i tried to get off of citalopram last year I noticed that I had a very high libido (wanted sex with my wife daily) but noticed that I didn't last more than a couple minutes before reaching orgasm, when I penetrated. When she was on top I didn't ejaculate prematurely. Anyone else have a similar experience? What do you do to overcome it? Thanks!

June-Current Started Pristiq 50mg 

March-June Discontinued Wellbutrin. 

February 15-March 1 2017: Taper Wellbutrin. 

December 24, 2016- Feb. 15 2017: Switched to Wellbutrin 150mg 2x/day after Genesight testing; 

August 4-December 23, 2016: Reinstate celexa

March 18-August 3, 2016: Switched to Prozac 

Feb-March 2016   Reinstate celexa

Jan-Feb 2016  Tapered 5mg/every week to 0mg

August 2015-Jan. 2016: Celexa 30mg

2008-2016: Celexa 30-40mg/day for anxiety

2006-2007: Strattera ?80mg/day + xanax

 

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I have a question about ejaculation during withdrawal. When i tried to get off of citalopram last year I noticed that I had a very high libido (wanted sex with my wife daily) but noticed that I didn't last more than a couple minutes before reaching orgasm, when I penetrated. When she was on top I didn't ejaculate prematurely. Anyone else have a similar experience? What do you do to overcome it? Thanks!

Yes it is called PGAD that happens on withdrawal. For some people.It happened to me too. Before it went to just numb again. I ejaculated on the bus during withdrawal.

Edited by ChessieCat
removed blasphemy

Cocktail drugged since 9

Genitals went numb

Extreme intestinal gas and pain

Extreme anxiety cant concentrate

All permanent

 

Post-SSRI Sexual Dysfunction (PSSD)

http://pssdblog.blogspot.com

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Hi all, I've been on Zoloft for a few months at 50mg once a day. I did a quick taper by removing 12.5mg each week. I am off for 2 weeks now. During the time I took Sertraline, I had pretty much all of the sexual symptoms. When I was tapering, everything returned back to normal, and stayed that way for 4 days of being off.

 

But then a lot of bad things started happening: I had a breakup, I guess my withdrawal picked up at that point as well. I started getting extremely anxious and panicky, overthinking everything. I barely ate, and still barely do. Today I had a cheeseburger at work and I am not planning to eat anymore soon.

 

But the most scary and terrifying part is the fear of PSSD. After that 4 day mark I lost my drive, except for 2 occasions late at night when I was feeling calm. Now there's no drive whatsoever, I don't even feel like looking at girls in the street or at porn. I am still able to get hard and reach an orgasm fairly quickly and effortlessly, but it took some concentration to get hard last night and it wasn't the hardest of erections. I'm quite sure if I fall into a state of permanent PSSD, I might do the most irrational thing, or at least will never be able to accept myself.

 

 

 

 

Is it just stress, onsetting PSSD or what? Any help would be hugely appreciated, because I'm losing my sh*t..

My two cents - don't mess with porn - that in itself can lead to ED due to desensitizion and creating unrealistic expectations! Good luck!

June-Current Started Pristiq 50mg 

March-June Discontinued Wellbutrin. 

February 15-March 1 2017: Taper Wellbutrin. 

December 24, 2016- Feb. 15 2017: Switched to Wellbutrin 150mg 2x/day after Genesight testing; 

August 4-December 23, 2016: Reinstate celexa

March 18-August 3, 2016: Switched to Prozac 

Feb-March 2016   Reinstate celexa

Jan-Feb 2016  Tapered 5mg/every week to 0mg

August 2015-Jan. 2016: Celexa 30mg

2008-2016: Celexa 30-40mg/day for anxiety

2006-2007: Strattera ?80mg/day + xanax

 

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Hello everyone,

 

Former paxil user here between 2005 and 2009 male 33yo

I would like to know how you would describe pssd? I do have morning etections, can masturbate and have orgasm while watching my favorite porn. it only becomes a problem when i'm with a partner. I find it really hard to connect with someone, not enough connection and arousal to keep erection for intercourse.

To ejaculate, i need to have played out in my mind my favorite porn sene without any connection with my partner.

In life in general i feel i cannot connect with people like i used to and i'm starting to wonder whether it is my AD use a few years back thats causing all this.

Thank you

2004-2007 paxil

2015- zoloft 3 months zyprexa 3 months lexapro 3 months xanax

Med free since Feb 28th 2017

Mostly experiencing PSSD

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