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PSSD Post-SSRI sexual dysfunction


Altostrata

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Hello everyone,

 

Former paxil user here between 2005 and 2009 male 33yo

I would like to know how you would describe pssd? I do have morning etections, can masturbate and have orgasm while watching my favorite porn. it only becomes a problem when i'm with a partner. I find it really hard to connect with someone, not enough connection and arousal to keep erection for intercourse.

To ejaculate, i need to have played out in my mind my favorite porn sene without any connection with my partner.

In life in general i feel i cannot connect with people like i used to and i'm starting to wonder whether it is my AD use a few years back thats causing all this.

Thank you

Hi,

First thing you should do is immediately cut porn. From what i understand you seem pretty addicted to it. Check out dopamine and porn and this http://yourbrainonporn.com/ 

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Cmon' man

 

Hello everyone,

Former paxil user here between 2005 and 2009 male 33yo
I would like to know how you would describe pssd? I do have morning etections, can masturbate and have orgasm while watching my favorite porn. it only becomes a problem when i'm with a partner. I find it really hard to connect with someone, not enough connection and arousal to keep erection for intercourse.
To ejaculate, i need to have played out in my mind my favorite porn sene without any connection with my partner.
In life in general i feel i cannot connect with people like i used to and i'm starting to wonder whether it is my AD use a few years back thats causing all this.
Thank you

 

Yeah probably, these effects last for a very long time and pop up at the most inconvenient times many years later - leading many to blame themselves and seek alternative treatments or beat up on themselves for their lack of performance, etc.

 

This is FAR more common than people realize and it's prevalent in society especially in those who took antidepressants "one time" back many years ago, etc.

 

One time use of antidepressants in college for example, can leave people with sub acute PSSD for many many years to come.

 

This is what the psychiatrists and doctors do not tell you, and let us battle it out in our minds, confusing other doctors and causing so much harm in the long term that it's really difficult to fully calculate.  What does appear to be certain is that these drugs are remarkably effective at disrupting society, and individual/family lives.

 

This is also true for adolescents or pre pubescent people who take antidepressants, say for a couple of years in highschool or in middle school - as an adult they cannot perform adequately, and they beat themselves up, turn to drugs, addictions, etc - all because their doctor was too ignorant to understand the long term harmful effects of the poison they prescribe.

 

Sub acute effects of antidepressants in general - that is effects that people notice but not in a fully conscious way that directly thwarts their ambitions, are likely QUITE prevalent in a large % of the population (who knows, it could be as large as 75% - the same % of people who actually experience sexual dysfunction as a side effect) who at one point in their life took antidepressants- because even just a 1-2 month trial on these drugs can leave sub acute symptoms in the brain and the peripheral nervous system for an awfully long time.

 

So the next time you hear a parent tell you their child is "trying" antidepressants for a period of time, you may wish to forward them to this forum and PSSD information.

 

The long term effects of just a short term trial of these drugs is breathtaking, really.

 

 

 

This quote comes to mind (not exact quote but close):

 

A dance with the devil can last you a lifetime.

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Hello everyone,

Former paxil user here between 2005 and 2009 male 33yo

I would like to know how you would describe pssd? I do have morning etections, can masturbate and have orgasm while watching my favorite porn. it only becomes a problem when i'm with a partner. I find it really hard to connect with someone, not enough connection and arousal to keep erection for intercourse.

To ejaculate, i need to have played out in my mind my favorite porn sene without any connection with my partner.

In life in general i feel i cannot connect with people like i used to and i'm starting to wonder whether it is my AD use a few years back thats causing all this.

Thank you

 

Hi,

 

First thing you should do is immediately cut porn. From what i understand you seem pretty addicted to it. Check out dopamine and porn and this http://yourbrainonporn.com/ 

I agree. I had two friends in college who were daily porn 'users' (addicted). One could not have sex without imaging some porn scene.

Sadly he later died from opioids... I would say talk to a professional...it may take time to get aroused by real sex but I believe it's possible. I don't think it's caused by AD withdrawal.

June-Current Started Pristiq 50mg 

March-June Discontinued Wellbutrin. 

February 15-March 1 2017: Taper Wellbutrin. 

December 24, 2016- Feb. 15 2017: Switched to Wellbutrin 150mg 2x/day after Genesight testing; 

August 4-December 23, 2016: Reinstate celexa

March 18-August 3, 2016: Switched to Prozac 

Feb-March 2016   Reinstate celexa

Jan-Feb 2016  Tapered 5mg/every week to 0mg

August 2015-Jan. 2016: Celexa 30mg

2008-2016: Celexa 30-40mg/day for anxiety

2006-2007: Strattera ?80mg/day + xanax

 

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Hello,
I unfortunately have pssd and visit the pssd-forum daily. Unfortunately  for me and other people with pssd is it not possible to join the forum. But why?? The forum does not want new patients? Me and other well-known people have been trying to join the forum for months, and we get no confirmation(no email and the account is still inactive). Maybe someone here has experience with the forum. I read there that a study in Germany(in Ulm) is about pssd in planning and still volunteers with pssd are needed. Very glad I would contact other people with pssd. If interest exists please write to me. Kind regards

 

jescowhite

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Hello,

I've read in the PSSD-Forum that there is a new study about PSSD in planning! That will take place in Ulm, Germany. Unfortunately for me and other people i know its impossible to join the pssd forum. Maybe someone of you has experience with the PSSD-Forum. I would like to get in contact with other people who are suffering from pssd and maybe find some volunteers for the study! Just answer me here!

 

Best greets, jescowhite

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It's already clear what PSSD is to anyone who understands how antidepressants work on a general level.  Hint:  probably a neuropathy to the C fibers and the 5HT projections from the Raphe nucleus in the brain.  Probably also the projections from the Locus Coeruleus, cholinergic projections - and possibly glutamanergic toxicity.  In summary:  It's probably a freaking mess, and the only way to know if you're going to recover is to just never take another psych med and be patient and hope your body can heal the damage that has taken place.

 

I highly doubt the PSSD study is going to investigate the mechanistic underpinnings of how PSSD works, but that's what this community really needs - because only when one understands how something works can they propose treatments and a long term prognoses.

 

I've posted this in other places but watch this video, Dr. Healy is the leading expert on this sort of stuff:

 

START AT 29:00

 

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Why are here so many people against porn? It is the way how to get erected, better than have no sex at all. For everybody is stimulating something other. I dont think it is harming.

05/2013 Lyrica 100 mg / per day for pain + PGAD resulting from caesarian delivery11/2014 started to taper: 50 mg per day/ for one week then c/tafter one month reinstated at 50 mg /per days of 10 July 2015 drug free-

symptoms OCD

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  • Moderator Emeritus

Why are here so many people against porn? It is the way how to get erected, better than have no sex at all. For everybody is stimulating something other. I dont think it is harming.

 

You might want to take a look at this:  8-harmful-effects-of-pornography-on-individuals

 

See especially the paragraph Porn can lead to sexual dysfunction

* NO LONGER ACTIVE on SA *

MISSION ACCOMPLISHED:  (6 year taper)      0mg Pristiq  on 13th November 2021

ADs since ~1992:  25+ years - 1 unknown, Prozac (muscle weakness), Zoloft; citalopram (pooped out) CTed (very sick for 2.5 wks a few months after); Pristiq:  50mg 2012, 100mg beg 2013 (Serotonin Toxicity)  Tapering from Oct 2015 - 13 Nov 2021   LAST DOSE 0.0025mg

Post 0 updates start here    My tapering program     My Intro (goes to tapering graph)

 VIDEO:   Antidepressant Withdrawal Syndrome and its Management

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How has PSSD been kept out of the media for so long? It is a horrible condition with many thousands of people suffering from it. I don't understand how there is not more awareness about it.

Last took an SSRI January 2009.

Last took a benzodiazepine May 2015.

Free from all prescription medication since May 2015.

Everything has mostly healed apart from PSSD which is still very bad, and is my most distressing symptom. Also i have developed some allergy problems/ sensitivities to things in the environment which i believe was possibly caused by the prescription medications (SSRI's and benzos).

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Do you think PSSD has to do with sexual sensitivity or something else like a mental thing ?

Thanks

2004-2007 paxil

2015- zoloft 3 months zyprexa 3 months lexapro 3 months xanax

Med free since Feb 28th 2017

Mostly experiencing PSSD

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Do you think PSSD has to do with sexual sensitivity or something else like a mental thing ?

Thanks

I think it's both of these things.

 

Our minds and bodies have both been affected by these drugs, overlay any hormonal issues and it's the perfect cocktail for PSSD.

 

After a year of this, I finally feel as though that part of me is returning to normal function (with help from Daminana tea).

Dose History: 19 Feb 2014 - Escitalopram 10mg daily June 2015 - Started taper, 5mg every other day July 2015 - 5mg every 2 days August 2015 - 5mg every 3 days September 2015 - 5mg every 4 days Sept 14th - Completed tapering, but at 7 weeks "drug free" I suffered serious WD symptoms as a consequence of "incorrect" tapering. Nov 25 2015 - Re-instated Cipralex @ 2.5mg daily. WD symptoms faded. Held at this dose and experienced "windows and waves". 12 Oct 2017 Reduced dose to 1.25mg. 13 Mar 2018 Reduced dose to 0.625mg (approx.). 16 April 2018 0mg. Windows and waves triggered by stress (IBS/reflux, headaches, sinus issues) Aug 2019 Mirena coil fitted 6 Jan 2020 MAJOR Wave hit 19 months following last dose (protracted WD).  Symptoms listed below Mar 2020 Mirena coil removal.

Therapy: Nov 15th 2016 Re-started therapy Jan 19th 2017 Started CBT Dec 2017 Started listening to Hypnotherapy CD (self-esteem). Nov 2019 Started couples therapy.

Supplements: "Bioglan" Biotic Balance Ultimate Flora 10 billion CFU, live Bacteria, Probiotic, suitable for Vegetarians, with Lactobacillus Acidophilus, Lactobacillus Rhamnosus, Bifidobacterium Longum"Pukka" Vitalise a unique blend of 30 energising botanicals.

Diet: 16 April 2018 Detox cleanse / anti-candida for 90 days. Jan 2020 Started "small plate" diet (i.e child size portions).

Exercise: Stretching, Yoga, Pilates, Spinning, Elliptical/upper body workout, walking.

Medical Test Results: 4 Jan 2017 Homeopathic Treatment starts 24 Feb 2017 Started weight loss program 24 Mar 2017 Naturopathic Treatment + anti-Candida diet started due to suspected Candida Related Complex (CRC). DETOXED for 7 weeks to "re-set" gut. April 2017 "Genova Diagnostics" Comprehensive Stool Analysis NEGATIVE; Full Blood Count (Normal) / Blood Cholesterol: 5.6 (Borderline) / Blood Sugar (Normal) / 28 Jun 2017 FSH 8.2 / 14 Nov 2017 FSH 17.7 Dec 2017 Blood Cholesterol: 3.9 (Normal) / Kidney Function (Normal) / Blood Sugar (Normal). December 2017 "Genova Diagnostics" Food panel allergy (bloodwork) analysis - a few "VERY LOW/VL" allergens; Mar 2018 "Genova Diagnostics" SIBO urine analysis: High Level of Yeast/fungal markers found in small intestine but NO SIBO.  April 2018 Thyroid (Normal) / Full Blood Count (Normal) / FSH (Normal). 16 April 2018 Started anti-Candida diet - 3 month protocol.   25 March 2020 All test results "Normal". CRP" 5 mg/L (normal range to 0-5 mg/L).

Symptoms:  Flu-like symptoms, anxiety, anhedonia, sinus headaches right-side (severe), IBS issues/reflux (severe)**, tinnitus, fatigue, inner tremor, nausea, chills/hot flushes, pounding heart, muscular issues including stiff left hip flexor, intense anger, PSSD (ongoing).  **Histhamine intolerance (suspected).

Major Life Events: 

Re-located to UK from Canada: Jan 2016

My father died: 5:05pm, Monday 5 Feb 2018 Last Lexapro dose: 16 April 2018 (its now been over a year since I quit ADs)  Moved house: Friday 23rd February 2018  "Divorced" toxic Mother: Monday 26 March 2018 Starting working again: 19 November 2018  Diagnosed with: 5th August 2021 PTSD/C-PTSD Diagnosed with: March 2022 Interstitial Cystitis (IC)/Painful bladder syndrome

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Do you think PSSD has to do with sexual sensitivity or something else like a mental thing ?

Thanks

 

Check my previous post and watch Dr. Healy's video, that might help you understand what's actually going on.

 

IDK why people complicate PSSD, it's really not as complicated as I've seen some people try to make it.

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Has anyone recovered from soft glans after using lexapro? I'm having this symptom while I'm tapering and I would like to know whether this is reversible?

Thank you

2004-2007 paxil

2015- zoloft 3 months zyprexa 3 months lexapro 3 months xanax

Med free since Feb 28th 2017

Mostly experiencing PSSD

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Do you think PSSD has to do with sexual sensitivity or something else like a mental thing ?

Thanks

 

Check my previous post and watch Dr. Healy's video, that might help you understand what's actually going on.

 

IDK why people complicate PSSD, it's really not as complicated as I've seen some people try to make it.

 

If it really was so simple, someone would have found a cure for it.  If Dr. Healy knew exactly whats going on, he'd also have a solution.

The brain is too complicated for current science to comprehend.  

People have theories , and thats where it stops. No one, I repeat "NO ONE" really knows why PSSD happens.

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Do you think PSSD has to do with sexual sensitivity or something else like a mental thing ?

Thanks

 

 

Check my previous post and watch Dr. Healy's video, that might help you understand what's actually going on.

 

IDK why people complicate PSSD, it's really not as complicated as I've seen some people try to make it.

If it really was so simple, someone would have found a cure for it.  If Dr. Healy knew exactly whats going on, he'd also have a solution.

The brain is too complicated for current science to comprehend.  

People have theories , and thats where it stops. No one, I repeat "NO ONE" really knows why PSSD happens.

It isn't complicated (and is well established as a mental health problem) that someone with depression would lose their libido, and given that SSRIs effect every cell in our bodies, then why wouldn't PSSD occur?

Dose History: 19 Feb 2014 - Escitalopram 10mg daily June 2015 - Started taper, 5mg every other day July 2015 - 5mg every 2 days August 2015 - 5mg every 3 days September 2015 - 5mg every 4 days Sept 14th - Completed tapering, but at 7 weeks "drug free" I suffered serious WD symptoms as a consequence of "incorrect" tapering. Nov 25 2015 - Re-instated Cipralex @ 2.5mg daily. WD symptoms faded. Held at this dose and experienced "windows and waves". 12 Oct 2017 Reduced dose to 1.25mg. 13 Mar 2018 Reduced dose to 0.625mg (approx.). 16 April 2018 0mg. Windows and waves triggered by stress (IBS/reflux, headaches, sinus issues) Aug 2019 Mirena coil fitted 6 Jan 2020 MAJOR Wave hit 19 months following last dose (protracted WD).  Symptoms listed below Mar 2020 Mirena coil removal.

Therapy: Nov 15th 2016 Re-started therapy Jan 19th 2017 Started CBT Dec 2017 Started listening to Hypnotherapy CD (self-esteem). Nov 2019 Started couples therapy.

Supplements: "Bioglan" Biotic Balance Ultimate Flora 10 billion CFU, live Bacteria, Probiotic, suitable for Vegetarians, with Lactobacillus Acidophilus, Lactobacillus Rhamnosus, Bifidobacterium Longum"Pukka" Vitalise a unique blend of 30 energising botanicals.

Diet: 16 April 2018 Detox cleanse / anti-candida for 90 days. Jan 2020 Started "small plate" diet (i.e child size portions).

Exercise: Stretching, Yoga, Pilates, Spinning, Elliptical/upper body workout, walking.

Medical Test Results: 4 Jan 2017 Homeopathic Treatment starts 24 Feb 2017 Started weight loss program 24 Mar 2017 Naturopathic Treatment + anti-Candida diet started due to suspected Candida Related Complex (CRC). DETOXED for 7 weeks to "re-set" gut. April 2017 "Genova Diagnostics" Comprehensive Stool Analysis NEGATIVE; Full Blood Count (Normal) / Blood Cholesterol: 5.6 (Borderline) / Blood Sugar (Normal) / 28 Jun 2017 FSH 8.2 / 14 Nov 2017 FSH 17.7 Dec 2017 Blood Cholesterol: 3.9 (Normal) / Kidney Function (Normal) / Blood Sugar (Normal). December 2017 "Genova Diagnostics" Food panel allergy (bloodwork) analysis - a few "VERY LOW/VL" allergens; Mar 2018 "Genova Diagnostics" SIBO urine analysis: High Level of Yeast/fungal markers found in small intestine but NO SIBO.  April 2018 Thyroid (Normal) / Full Blood Count (Normal) / FSH (Normal). 16 April 2018 Started anti-Candida diet - 3 month protocol.   25 March 2020 All test results "Normal". CRP" 5 mg/L (normal range to 0-5 mg/L).

Symptoms:  Flu-like symptoms, anxiety, anhedonia, sinus headaches right-side (severe), IBS issues/reflux (severe)**, tinnitus, fatigue, inner tremor, nausea, chills/hot flushes, pounding heart, muscular issues including stiff left hip flexor, intense anger, PSSD (ongoing).  **Histhamine intolerance (suspected).

Major Life Events: 

Re-located to UK from Canada: Jan 2016

My father died: 5:05pm, Monday 5 Feb 2018 Last Lexapro dose: 16 April 2018 (its now been over a year since I quit ADs)  Moved house: Friday 23rd February 2018  "Divorced" toxic Mother: Monday 26 March 2018 Starting working again: 19 November 2018  Diagnosed with: 5th August 2021 PTSD/C-PTSD Diagnosed with: March 2022 Interstitial Cystitis (IC)/Painful bladder syndrome

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Do you think PSSD has to do with sexual sensitivity or something else like a mental thing ?

Thanks

 

Check my previous post and watch Dr. Healy's video, that might help you understand what's actually going on.

 

IDK why people complicate PSSD, it's really not as complicated as I've seen some people try to make it.

If it really was so simple, someone would have found a cure for it.  If Dr. Healy knew exactly whats going on, he'd also have a solution.

The brain is too complicated for current science to comprehend.  

People have theories , and thats where it stops. No one, I repeat "NO ONE" really knows why PSSD happens.

It isn't complicated (and is well established as a mental health problem) that someone with depression would lose their libido, and given that SSRIs effect every cell in our bodies, then why wouldn't PSSD occur?

 

 

 

Im sorry my libido was sky high during depression and came to 0 when I started taking these pills. Attributing PSSD to depression is so typical of psychiatry.If it was really just depression, why wasnt my libido or sexual function affected while I was not on the pills ? 

Are you trying to say sexual dysfunction is not caused by SSRIs ?  You've got to be kidding

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UK Drug Regulator Sends Out PSSD Letter

 

If you Haven't reported continual sexual adverse harms NOW is the time to do it!

 

"Dear Mr (removed),

Yellow Card Registration Number: (removed)

Thank you for sending us a suspected Adverse Drug Reaction (ADR) report.

It would be helpful if you could provide us with some additional details if they are available by email (yellow.card@mhra.gsi.gov.uk or by letter (Freepost Yellow Card). Please quote the above reference number with all correspondence.

We appreciate that you may have submitted this report some time ago but by way of background, I should explain that we are currently investigating all Yellow Card (YC) reports where sexual dysfunction has been reported in association with a type of antidepressant drug called Selective Serotonin Reuptake Inhibitors (SSRIs).

This issue remains under close surveillance and we are keen to gather as much information as we can about each reported incident. In particular it would be useful if you could provide the following additional information to shed further light on this issue:

- Have you recovered from sexual dysfunction or is it still continuing?
- If you recovered could you indicate whether it stopped before, on stopping or after the Sertraline was stopped. If you remember please provide the date on which the reaction stopped or roughly indicate how long it took for you to recover?
- If you have not recovered yet but do in the future could you inform us so that our records are up to date?
- Do you have any previous history of sexual dysfunction?

If you are worried about the suspected side effect, and need medical advice, please contact a doctor or pharmacist, or call the NHS 111 service.

Your contribution to the UK’s Adverse Drug Reaction Reporting Scheme is greatly appreciated. This provides an important early warning of previously unrecognised adverse effects which allows us to take appropriate action to improve the safe use of medicines.

Yours sincerely

(removed name)
Vigilance and Risk Management of Medicines"

Cocktail drugged since 9

Genitals went numb

Extreme intestinal gas and pain

Extreme anxiety cant concentrate

All permanent

 

Post-SSRI Sexual Dysfunction (PSSD)

http://pssdblog.blogspot.com

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Do you think PSSD has to do with sexual sensitivity or something else like a mental thing ?

Thanks

 

Check my previous post and watch Dr. Healy's video, that might help you understand what's actually going on.

 

IDK why people complicate PSSD, it's really not as complicated as I've seen some people try to make it.

 

If it really was so simple, someone would have found a cure for it.  If Dr. Healy knew exactly whats going on, he'd also have a solution.

The brain is too complicated for current science to comprehend.  

People have theories , and thats where it stops. No one, I repeat "NO ONE" really knows why PSSD happens.

 

 

 

PSSD does not relate to the brain (well part of it is brain, the psychological component of sexuality - which is certainly damaged by SSRIS in some people) as much as it does the peripheral nerves (specifically the C fibers) that are suspected to be damaged through the toxic effects of SSRIs and other psych meds (excitotoxicity through glutamanergic over stimulation may be a mechanism).  If you're going to dismiss a theory at least pay attention to what this theory states. 

 

Just because you understand something does not mean you can cure it.  This is nonsense.  As far as I am aware, there is no known cure for a neuropathy, other than tender loving care, and time.

 

I didn't really want to respond to this comment, but this is the dismissive attitude that many in the mainstream use towards psych meds in general and it comes with a great deal of antipathy.  This same dismissive attitude is used by psychiatrists to tell their patients that the side effects they are experiencing from their neurotoxic medications is "all in their head" when in fact the drugs are in the process of wrecking havoc on their brain and peripheral nerves.

 

Depression can certainly cause issues with libido in some people - but as the above poster accurately stated, this is usually just one of many talking points that psychiatrists use to convince their patients that the toxic effects of SSRIs are "all in your head". 

 

Psychiatry rant:

I would also like to add that the pharmaceutical companies are not stupid and definitely understand that their drugs cause tremendous damage to people who take them - the doctors on the other hand, typically really are stupid and honestly do not realize the drugs are causing such damage in their patients - I have not yet met a single psychiatrist who came close to truly appreciating the damage that these drugs are doing to society.  Maybe "stupid" isn't the right word, but they're all in this "pro psychiatry" trance that's buoyed by the fact that they're all making a crapload of money at the expense of their patients sexual and personal lives.  Psychiatrists are also rather antisocial people for the most part - and in some cases honestly dislike their patients, become frustrated with them and cause irreversible harm to their bodies because they realize that the patients cannot counter attack and hold them liable for any of their negligent and harmful decisions. 

 

None of this should be all that surprising, considering how psychiatrists have always essentially served to torture, dismember, abuse and maimed their patients for as long as the profession existed.  It's just that in years past psychiatry served to handle an incredibly small fraction of society - but in the past 50 years or so, this industry has been propelled into the mainstream.  In the old days (say the 1950s-1970) only the most extremely non conforming members of society would complain about having sexual dysfunction from taking trycyclic antidepressants or antispycotic medications - which would usually fall on deaf ears - as so few people ever went to a psych ward or ever saw a psychiatrist.  However, now large swaths of the general population are being subjected to these harsh treatments that were previously only reserved for truly disturbed and non-conforming members of society.

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I hate PSSD. It has made my life a misery for almost 10 years. I last took an SSRI about 8 years ago, and my sexual desires and functioning have never gone back to normal. As i am writing this now, my genitals almost ache with numbness. People dont understand how mentally distressing the condition is. It is horrible. Almost on a weekly basis i consider suicide.

Last took an SSRI January 2009.

Last took a benzodiazepine May 2015.

Free from all prescription medication since May 2015.

Everything has mostly healed apart from PSSD which is still very bad, and is my most distressing symptom. Also i have developed some allergy problems/ sensitivities to things in the environment which i believe was possibly caused by the prescription medications (SSRI's and benzos).

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I hate PSSD. It has made my life a misery for almost 10 years. I last took an SSRI about 8 years ago, and my sexual desires and functioning have never gone back to normal. As i am writing this now, my genitals almost ache with numbness. People dont understand how mentally distressing the condition is. It is horrible. Almost on a weekly basis i consider suicide.

 

Spruce,

 

I'm so sorry you're feeling this way :( 

 

Have you considered going to a specialist clinic / explored all options, to see if there is anything that can be done to help you?

 

I think as its been ongoing and you're having to live with it, you can try looking into specialist treatment maybe?

 

TC,

JC

Dose History: 19 Feb 2014 - Escitalopram 10mg daily June 2015 - Started taper, 5mg every other day July 2015 - 5mg every 2 days August 2015 - 5mg every 3 days September 2015 - 5mg every 4 days Sept 14th - Completed tapering, but at 7 weeks "drug free" I suffered serious WD symptoms as a consequence of "incorrect" tapering. Nov 25 2015 - Re-instated Cipralex @ 2.5mg daily. WD symptoms faded. Held at this dose and experienced "windows and waves". 12 Oct 2017 Reduced dose to 1.25mg. 13 Mar 2018 Reduced dose to 0.625mg (approx.). 16 April 2018 0mg. Windows and waves triggered by stress (IBS/reflux, headaches, sinus issues) Aug 2019 Mirena coil fitted 6 Jan 2020 MAJOR Wave hit 19 months following last dose (protracted WD).  Symptoms listed below Mar 2020 Mirena coil removal.

Therapy: Nov 15th 2016 Re-started therapy Jan 19th 2017 Started CBT Dec 2017 Started listening to Hypnotherapy CD (self-esteem). Nov 2019 Started couples therapy.

Supplements: "Bioglan" Biotic Balance Ultimate Flora 10 billion CFU, live Bacteria, Probiotic, suitable for Vegetarians, with Lactobacillus Acidophilus, Lactobacillus Rhamnosus, Bifidobacterium Longum"Pukka" Vitalise a unique blend of 30 energising botanicals.

Diet: 16 April 2018 Detox cleanse / anti-candida for 90 days. Jan 2020 Started "small plate" diet (i.e child size portions).

Exercise: Stretching, Yoga, Pilates, Spinning, Elliptical/upper body workout, walking.

Medical Test Results: 4 Jan 2017 Homeopathic Treatment starts 24 Feb 2017 Started weight loss program 24 Mar 2017 Naturopathic Treatment + anti-Candida diet started due to suspected Candida Related Complex (CRC). DETOXED for 7 weeks to "re-set" gut. April 2017 "Genova Diagnostics" Comprehensive Stool Analysis NEGATIVE; Full Blood Count (Normal) / Blood Cholesterol: 5.6 (Borderline) / Blood Sugar (Normal) / 28 Jun 2017 FSH 8.2 / 14 Nov 2017 FSH 17.7 Dec 2017 Blood Cholesterol: 3.9 (Normal) / Kidney Function (Normal) / Blood Sugar (Normal). December 2017 "Genova Diagnostics" Food panel allergy (bloodwork) analysis - a few "VERY LOW/VL" allergens; Mar 2018 "Genova Diagnostics" SIBO urine analysis: High Level of Yeast/fungal markers found in small intestine but NO SIBO.  April 2018 Thyroid (Normal) / Full Blood Count (Normal) / FSH (Normal). 16 April 2018 Started anti-Candida diet - 3 month protocol.   25 March 2020 All test results "Normal". CRP" 5 mg/L (normal range to 0-5 mg/L).

Symptoms:  Flu-like symptoms, anxiety, anhedonia, sinus headaches right-side (severe), IBS issues/reflux (severe)**, tinnitus, fatigue, inner tremor, nausea, chills/hot flushes, pounding heart, muscular issues including stiff left hip flexor, intense anger, PSSD (ongoing).  **Histhamine intolerance (suspected).

Major Life Events: 

Re-located to UK from Canada: Jan 2016

My father died: 5:05pm, Monday 5 Feb 2018 Last Lexapro dose: 16 April 2018 (its now been over a year since I quit ADs)  Moved house: Friday 23rd February 2018  "Divorced" toxic Mother: Monday 26 March 2018 Starting working again: 19 November 2018  Diagnosed with: 5th August 2021 PTSD/C-PTSD Diagnosed with: March 2022 Interstitial Cystitis (IC)/Painful bladder syndrome

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yes, oskcajga...But it seems that the "time solution" doensn't work or works for few (almost minimal percentage ) people. I 've seen 1-2 FULL (without "sauces'') recovery stories in whole internet. The theory that people recover from this and they don't write again on the web about this is nonsense for me. I can't imagine one human  who get through this, he recovered and ...simply disappeared after the recovery. Come on guys, this is the truth and we MUST  see the truth.

 

I have seen much more than two full recovery stories, here you have two 

http://www.bluelight.org/vb/threads/554388-SSRIs-and-libido-there-is-hope!?highlight=SSRIs+libido

http://www.depressionforums.org/forums/topic/52393-curing-pssd-getting-off-all-meds-and-feeling-fantastic/

 

In this website you have some more.

 

Changing the subject, has anybody tried serious meditation (daily and doing it with dedication) to treat pssd and the anhedonia that goes with it? I personally think it can be very useful as it is scientifically proven that it makes real changes in the brain and increase neuro-plasticity.

 

 

I don't know if the first instance is considered PSSD.  There seem to be two types of SSRI related sexual dysfunction that overlap to some degree.  The first consists of problems while on meds, which persist after cessation of the meds.  The second consists of problems that only START after the meds have been STOPPED.

various SSRI for years

 

20 mg Lyrica 2010

30 mg to 0 mg Prozac 2012

Reinstate 20 mg Prozac 2012

Drop to 19 mg Prozac 2013

Reinstate 20 mg Prozac 1 month later (2013)

Gradual decrease of Prozac dosage starting in late summer of 2015, currently at 11.2 mg/day

 

use of vitamin D3, fish oil, and magnesium at various times

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I hate to beat a dead horse, but after withstanding a year of PSSD including ejaculatory anhedonia and genital anesthesia; shouldn't I at least give Wellbutrin a try?
 
So far, diet, exercise, supplements and time have proven ineffective and I've seen so many people online talk about how Wellbutrin cured them of their PSSD.
 
:unsure:

 

 

I'm sure that this particular poster is long gone.  For the benefit of others though, I'd say that a year is not enough time.  I know a woman that recovered to about 90% after about 3 years off.  To go on Wellbutrin is to jump on another painted wooden horse of the chemical merry-go-round.  Just say no to drugs, kids!  

various SSRI for years

 

20 mg Lyrica 2010

30 mg to 0 mg Prozac 2012

Reinstate 20 mg Prozac 2012

Drop to 19 mg Prozac 2013

Reinstate 20 mg Prozac 1 month later (2013)

Gradual decrease of Prozac dosage starting in late summer of 2015, currently at 11.2 mg/day

 

use of vitamin D3, fish oil, and magnesium at various times

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To what degree was she affected from PSSD? Was it just libido?

 

After a year I've only have gotten worse, I'm becoming more numb day after day. It's hell to sit back and see yourself fall deeper in Pssd. Why? I've taken two pill of lexpro and Im suffering worse than people who take it for years.. I didn't even enjoy years of relief from depression from the pill, if there was anything. Numbness is also spreading throughout my body along side of my PSSD. Is so hard to deal... what's going to happen in another year.. how worse can it get..?

 

Structural changes in the brain, neurotransmitter unable to heal, chemical imbalance, whatever it is a system in my brain has altered. The question is how, we have to reverse engineer our PSSD. Only by reading and learning can we solve it, not by drugs its too unpredictable. Scientific papers, funding research, and awareness of our pain and struggle are some solutions, or stepping stones. If people talk about opioids killing people, we talk to them about Ssri and benzos. If marijuana is under scrutiny, talk about the deadly alternative with link and facts like placebo work better than SSRI. Creatively spread awareness throughout social media via Reddit, twitter, Facebook, 4chan whatever.

 

Right now, the only thing that can help is diet, excerise, sleep, yoga, meditation, or rather the alternatives that don't risk set backs.

 

Here is some of my history. 3 months is when my penis started to sting, after that periodically it's become numbness month after month followed after stinging. Than my legs started to sting, now my arms at a year and 3-4 months. Also my face along with my legs and arms. It's not stopping.

 

Personally I with oskcajga, it's a neuropathy the nerve are not being supported, maybe do to the reversing process, whatever the reason, idk. Stinging, numbness sound like neuropathy to me, stem cell reasearch in a decade by heal us from that of lucky it resolves itself with healthy living.

Short Term Case: 7 pill of 10 mg of Modafinil in a 3 month span, but last 3 I took back to back causing severe withdrawals, lasting 3 weeks. Than 2 pills lexapro to help withdrawal lead to more withdrawal.  I have most symptoms Pssd, emotional loss, cognitive issues, nerve damage in legs.  Also 2 benzodiazepines.  Not much to damage me long term...

 

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There arent any specialists who deal with PSSD junglechicken. According to medicine the condition doesnt exist. You cant get help from a doctor for a condition that the doctors dont believe exists. I have talked to about 15 different doctors about this over the years. None of them have believed me or took me seriously; apart from one. He was an ex psychiatrist. He told me he had a number of ex patients who took SSRI's and it took them years to recover their sexual functioning/ desire after stopping SSRI's. He told me he couldnt tell me how long it would take for me to recover, but that if i did recover, it would take years. I tried to get him to talk to my psychiatrist but he refused to do so, and when i pressed the subject about PSSD it became clear he didnt want to talk about it, and felt very uncomftable talking about it. The few doctors who know about this condition dont like talking about it. It is like a dirty secret. I have been refered to a psychosexual therapist (who also knew nothing about PSSD), had my testosterone levels checked (came back normal), and reported the problem to the MHRA (who are also disputing whether the condition exists). I have tried almost every avenue to help myself with this condition.  There is very little known about PSSD, and the few people who do know something about it, basically tell you they also know almost nothing about it. You cant get funding for research for a condition that medicine and the drug companies say doesnt exist. It is a very lonely place to be to have this condition, especially as a young man. The only possible cure seems to be lots and lots of time, and allowing your body to heal itself by treating it well (i.e good diet, exercise, cutting out other drugs which might affect recovery, etc etc).

Last took an SSRI January 2009.

Last took a benzodiazepine May 2015.

Free from all prescription medication since May 2015.

Everything has mostly healed apart from PSSD which is still very bad, and is my most distressing symptom. Also i have developed some allergy problems/ sensitivities to things in the environment which i believe was possibly caused by the prescription medications (SSRI's and benzos).

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I have also seen a urologist about PSSD RE the severe premature ejaculation i suffered after stopping citalopram. He also knew nothing about PSSD, and was at a loss as to how to help.

Last took an SSRI January 2009.

Last took a benzodiazepine May 2015.

Free from all prescription medication since May 2015.

Everything has mostly healed apart from PSSD which is still very bad, and is my most distressing symptom. Also i have developed some allergy problems/ sensitivities to things in the environment which i believe was possibly caused by the prescription medications (SSRI's and benzos).

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There arent any specialists who deal with PSSD junglechicken. According to medicine the condition doesnt exist. You cant get help from a doctor for a condition that the doctors dont believe exists. I have talked to about 15 different doctors about this over the years. None of them have believed me or took me seriously; apart from one. He was an ex psychiatrist. He told me he had a number of ex patients who took SSRI's and it took them years to recover their sexual functioning/ desire after stopping SSRI's. He told me he couldnt tell me how long it would take for me to recover, but that if i did recover, it would take years. I tried to get him to talk to my psychiatrist but he refused to do so, and when i pressed the subject about PSSD it became clear he didnt want to talk about it, and felt very uncomftable talking about it. The few doctors who know about this condition dont like talking about it. It is like a dirty secret. I have been refered to a psychosexual therapist (who also knew nothing about PSSD), had my testosterone levels checked (came back normal), and reported the problem to the MHRA (who are also disputing whether the condition exists). I have tried almost every avenue to help myself with this condition.  There is very little known about PSSD, and the few people who do know something about it, basically tell you they also know almost nothing about it. You cant get funding for research for a condition that medicine and the drug companies say doesnt exist. It is a very lonely place to be to have this condition, especially as a young man. The only possible cure seems to be lots and lots of time, and allowing your body to heal itself by treating it well (i.e good diet, exercise, cutting out other drugs which might affect recovery, etc etc).

 

 

I have also seen a urologist about PSSD RE the severe premature ejaculation i suffered after stopping citalopram. He also knew nothing about PSSD, and was at a loss as to how to help.

 

 

I see  :( 

 

My p-doc was uncomfortable talking about that kind of thing as well.  Ridiculous really given that they are medics.  Did you talk to all those p-docs in the UK or Oz spruce?

 

I wonder if there is a better understanding of this in the US?

Dose History: 19 Feb 2014 - Escitalopram 10mg daily June 2015 - Started taper, 5mg every other day July 2015 - 5mg every 2 days August 2015 - 5mg every 3 days September 2015 - 5mg every 4 days Sept 14th - Completed tapering, but at 7 weeks "drug free" I suffered serious WD symptoms as a consequence of "incorrect" tapering. Nov 25 2015 - Re-instated Cipralex @ 2.5mg daily. WD symptoms faded. Held at this dose and experienced "windows and waves". 12 Oct 2017 Reduced dose to 1.25mg. 13 Mar 2018 Reduced dose to 0.625mg (approx.). 16 April 2018 0mg. Windows and waves triggered by stress (IBS/reflux, headaches, sinus issues) Aug 2019 Mirena coil fitted 6 Jan 2020 MAJOR Wave hit 19 months following last dose (protracted WD).  Symptoms listed below Mar 2020 Mirena coil removal.

Therapy: Nov 15th 2016 Re-started therapy Jan 19th 2017 Started CBT Dec 2017 Started listening to Hypnotherapy CD (self-esteem). Nov 2019 Started couples therapy.

Supplements: "Bioglan" Biotic Balance Ultimate Flora 10 billion CFU, live Bacteria, Probiotic, suitable for Vegetarians, with Lactobacillus Acidophilus, Lactobacillus Rhamnosus, Bifidobacterium Longum"Pukka" Vitalise a unique blend of 30 energising botanicals.

Diet: 16 April 2018 Detox cleanse / anti-candida for 90 days. Jan 2020 Started "small plate" diet (i.e child size portions).

Exercise: Stretching, Yoga, Pilates, Spinning, Elliptical/upper body workout, walking.

Medical Test Results: 4 Jan 2017 Homeopathic Treatment starts 24 Feb 2017 Started weight loss program 24 Mar 2017 Naturopathic Treatment + anti-Candida diet started due to suspected Candida Related Complex (CRC). DETOXED for 7 weeks to "re-set" gut. April 2017 "Genova Diagnostics" Comprehensive Stool Analysis NEGATIVE; Full Blood Count (Normal) / Blood Cholesterol: 5.6 (Borderline) / Blood Sugar (Normal) / 28 Jun 2017 FSH 8.2 / 14 Nov 2017 FSH 17.7 Dec 2017 Blood Cholesterol: 3.9 (Normal) / Kidney Function (Normal) / Blood Sugar (Normal). December 2017 "Genova Diagnostics" Food panel allergy (bloodwork) analysis - a few "VERY LOW/VL" allergens; Mar 2018 "Genova Diagnostics" SIBO urine analysis: High Level of Yeast/fungal markers found in small intestine but NO SIBO.  April 2018 Thyroid (Normal) / Full Blood Count (Normal) / FSH (Normal). 16 April 2018 Started anti-Candida diet - 3 month protocol.   25 March 2020 All test results "Normal". CRP" 5 mg/L (normal range to 0-5 mg/L).

Symptoms:  Flu-like symptoms, anxiety, anhedonia, sinus headaches right-side (severe), IBS issues/reflux (severe)**, tinnitus, fatigue, inner tremor, nausea, chills/hot flushes, pounding heart, muscular issues including stiff left hip flexor, intense anger, PSSD (ongoing).  **Histhamine intolerance (suspected).

Major Life Events: 

Re-located to UK from Canada: Jan 2016

My father died: 5:05pm, Monday 5 Feb 2018 Last Lexapro dose: 16 April 2018 (its now been over a year since I quit ADs)  Moved house: Friday 23rd February 2018  "Divorced" toxic Mother: Monday 26 March 2018 Starting working again: 19 November 2018  Diagnosed with: 5th August 2021 PTSD/C-PTSD Diagnosed with: March 2022 Interstitial Cystitis (IC)/Painful bladder syndrome

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I talked to the doctors i mentioned in the UK. I hate what happened to me with PSSD. I was a good looking young man with a lot going for him. A lot of things were ruined for me because of psychiatric drugs. Even if i eventually recover i feel permanently psychologically affected from not being able to feel my penis/ have any sexual feelings for 8 years. People dont understand how unpleasant this condition is. I can never forgive what happened to me.

Last took an SSRI January 2009.

Last took a benzodiazepine May 2015.

Free from all prescription medication since May 2015.

Everything has mostly healed apart from PSSD which is still very bad, and is my most distressing symptom. Also i have developed some allergy problems/ sensitivities to things in the environment which i believe was possibly caused by the prescription medications (SSRI's and benzos).

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I talked to the doctors i mentioned in the UK. I hate what happened to me with PSSD. I was a good looking young man with a lot going for him. A lot of things were ruined for me because of psychiatric drugs. Even if i eventually recover i feel permanently psychologically affected from not being able to feel my penis/ have any sexual feelings for 8 years. People dont understand how unpleasant this condition is. I can never forgive what happened to me.

I recently met someone in a similar situation to you, also young, and also feels extremely angry at losing several years to these drugs.

 

As it is, I lost my libido for over a year, and it's gradually starting to return, but not by any means 100% there.

Dose History: 19 Feb 2014 - Escitalopram 10mg daily June 2015 - Started taper, 5mg every other day July 2015 - 5mg every 2 days August 2015 - 5mg every 3 days September 2015 - 5mg every 4 days Sept 14th - Completed tapering, but at 7 weeks "drug free" I suffered serious WD symptoms as a consequence of "incorrect" tapering. Nov 25 2015 - Re-instated Cipralex @ 2.5mg daily. WD symptoms faded. Held at this dose and experienced "windows and waves". 12 Oct 2017 Reduced dose to 1.25mg. 13 Mar 2018 Reduced dose to 0.625mg (approx.). 16 April 2018 0mg. Windows and waves triggered by stress (IBS/reflux, headaches, sinus issues) Aug 2019 Mirena coil fitted 6 Jan 2020 MAJOR Wave hit 19 months following last dose (protracted WD).  Symptoms listed below Mar 2020 Mirena coil removal.

Therapy: Nov 15th 2016 Re-started therapy Jan 19th 2017 Started CBT Dec 2017 Started listening to Hypnotherapy CD (self-esteem). Nov 2019 Started couples therapy.

Supplements: "Bioglan" Biotic Balance Ultimate Flora 10 billion CFU, live Bacteria, Probiotic, suitable for Vegetarians, with Lactobacillus Acidophilus, Lactobacillus Rhamnosus, Bifidobacterium Longum"Pukka" Vitalise a unique blend of 30 energising botanicals.

Diet: 16 April 2018 Detox cleanse / anti-candida for 90 days. Jan 2020 Started "small plate" diet (i.e child size portions).

Exercise: Stretching, Yoga, Pilates, Spinning, Elliptical/upper body workout, walking.

Medical Test Results: 4 Jan 2017 Homeopathic Treatment starts 24 Feb 2017 Started weight loss program 24 Mar 2017 Naturopathic Treatment + anti-Candida diet started due to suspected Candida Related Complex (CRC). DETOXED for 7 weeks to "re-set" gut. April 2017 "Genova Diagnostics" Comprehensive Stool Analysis NEGATIVE; Full Blood Count (Normal) / Blood Cholesterol: 5.6 (Borderline) / Blood Sugar (Normal) / 28 Jun 2017 FSH 8.2 / 14 Nov 2017 FSH 17.7 Dec 2017 Blood Cholesterol: 3.9 (Normal) / Kidney Function (Normal) / Blood Sugar (Normal). December 2017 "Genova Diagnostics" Food panel allergy (bloodwork) analysis - a few "VERY LOW/VL" allergens; Mar 2018 "Genova Diagnostics" SIBO urine analysis: High Level of Yeast/fungal markers found in small intestine but NO SIBO.  April 2018 Thyroid (Normal) / Full Blood Count (Normal) / FSH (Normal). 16 April 2018 Started anti-Candida diet - 3 month protocol.   25 March 2020 All test results "Normal". CRP" 5 mg/L (normal range to 0-5 mg/L).

Symptoms:  Flu-like symptoms, anxiety, anhedonia, sinus headaches right-side (severe), IBS issues/reflux (severe)**, tinnitus, fatigue, inner tremor, nausea, chills/hot flushes, pounding heart, muscular issues including stiff left hip flexor, intense anger, PSSD (ongoing).  **Histhamine intolerance (suspected).

Major Life Events: 

Re-located to UK from Canada: Jan 2016

My father died: 5:05pm, Monday 5 Feb 2018 Last Lexapro dose: 16 April 2018 (its now been over a year since I quit ADs)  Moved house: Friday 23rd February 2018  "Divorced" toxic Mother: Monday 26 March 2018 Starting working again: 19 November 2018  Diagnosed with: 5th August 2021 PTSD/C-PTSD Diagnosed with: March 2022 Interstitial Cystitis (IC)/Painful bladder syndrome

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The problem I have is that even if I eventually recover I don't think I will ever be able to accept or feel close to feeling OK about what has happened to me. It has been so bad, for so long, and I lost so much. I feel the psychiatric drugs almost chipped away a bit of my soul that I can never get back. So I either never recover and live in misery. Or I do recover and have all this resentment and anger about what I missed out on as a young man. Time and experiences which can never be had again, or be compensated for (no amount of money can truly compensate you for not having any sexual feelings in the prime of your youth). Its a lose lose situation for me. Also it is unlikely there will ever be any form of compensation, justice, or even an acknowledgement for what happened to me. And to add the cherry on top the drug companies and the psychiatrists have made huge amounts of money off of our misery. The sense of injustice is enormous.

Last took an SSRI January 2009.

Last took a benzodiazepine May 2015.

Free from all prescription medication since May 2015.

Everything has mostly healed apart from PSSD which is still very bad, and is my most distressing symptom. Also i have developed some allergy problems/ sensitivities to things in the environment which i believe was possibly caused by the prescription medications (SSRI's and benzos).

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The problem I have is that even if I eventually recover I don't think I will ever be able to accept or feel close to feeling OK about what has happened to me. It has been so bad, for so long, and I lost so much. I feel the psychiatric drugs almost chipped away a bit of my soul that I can never get back. So I either never recover and live in misery. Or I do recover and have all this resentment and anger about what I missed out on as a young man. Time and experiences which can never be had again, or be compensated for (no amount of money can truly compensate you for not having any sexual feelings in the prime of your youth). Its a lose lose situation for me. Also it is unlikely there will ever be any form of compensation, justice, or even an acknowledgement for what happened to me. And to add the cherry on top the drug companies and the psychiatrists have made huge amounts of money off of our misery. The sense of injustice is enormous.

 

I understand.

Dose History: 19 Feb 2014 - Escitalopram 10mg daily June 2015 - Started taper, 5mg every other day July 2015 - 5mg every 2 days August 2015 - 5mg every 3 days September 2015 - 5mg every 4 days Sept 14th - Completed tapering, but at 7 weeks "drug free" I suffered serious WD symptoms as a consequence of "incorrect" tapering. Nov 25 2015 - Re-instated Cipralex @ 2.5mg daily. WD symptoms faded. Held at this dose and experienced "windows and waves". 12 Oct 2017 Reduced dose to 1.25mg. 13 Mar 2018 Reduced dose to 0.625mg (approx.). 16 April 2018 0mg. Windows and waves triggered by stress (IBS/reflux, headaches, sinus issues) Aug 2019 Mirena coil fitted 6 Jan 2020 MAJOR Wave hit 19 months following last dose (protracted WD).  Symptoms listed below Mar 2020 Mirena coil removal.

Therapy: Nov 15th 2016 Re-started therapy Jan 19th 2017 Started CBT Dec 2017 Started listening to Hypnotherapy CD (self-esteem). Nov 2019 Started couples therapy.

Supplements: "Bioglan" Biotic Balance Ultimate Flora 10 billion CFU, live Bacteria, Probiotic, suitable for Vegetarians, with Lactobacillus Acidophilus, Lactobacillus Rhamnosus, Bifidobacterium Longum"Pukka" Vitalise a unique blend of 30 energising botanicals.

Diet: 16 April 2018 Detox cleanse / anti-candida for 90 days. Jan 2020 Started "small plate" diet (i.e child size portions).

Exercise: Stretching, Yoga, Pilates, Spinning, Elliptical/upper body workout, walking.

Medical Test Results: 4 Jan 2017 Homeopathic Treatment starts 24 Feb 2017 Started weight loss program 24 Mar 2017 Naturopathic Treatment + anti-Candida diet started due to suspected Candida Related Complex (CRC). DETOXED for 7 weeks to "re-set" gut. April 2017 "Genova Diagnostics" Comprehensive Stool Analysis NEGATIVE; Full Blood Count (Normal) / Blood Cholesterol: 5.6 (Borderline) / Blood Sugar (Normal) / 28 Jun 2017 FSH 8.2 / 14 Nov 2017 FSH 17.7 Dec 2017 Blood Cholesterol: 3.9 (Normal) / Kidney Function (Normal) / Blood Sugar (Normal). December 2017 "Genova Diagnostics" Food panel allergy (bloodwork) analysis - a few "VERY LOW/VL" allergens; Mar 2018 "Genova Diagnostics" SIBO urine analysis: High Level of Yeast/fungal markers found in small intestine but NO SIBO.  April 2018 Thyroid (Normal) / Full Blood Count (Normal) / FSH (Normal). 16 April 2018 Started anti-Candida diet - 3 month protocol.   25 March 2020 All test results "Normal". CRP" 5 mg/L (normal range to 0-5 mg/L).

Symptoms:  Flu-like symptoms, anxiety, anhedonia, sinus headaches right-side (severe), IBS issues/reflux (severe)**, tinnitus, fatigue, inner tremor, nausea, chills/hot flushes, pounding heart, muscular issues including stiff left hip flexor, intense anger, PSSD (ongoing).  **Histhamine intolerance (suspected).

Major Life Events: 

Re-located to UK from Canada: Jan 2016

My father died: 5:05pm, Monday 5 Feb 2018 Last Lexapro dose: 16 April 2018 (its now been over a year since I quit ADs)  Moved house: Friday 23rd February 2018  "Divorced" toxic Mother: Monday 26 March 2018 Starting working again: 19 November 2018  Diagnosed with: 5th August 2021 PTSD/C-PTSD Diagnosed with: March 2022 Interstitial Cystitis (IC)/Painful bladder syndrome

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The problem I have is that even if I eventually recover I don't think I will ever be able to accept or feel close to feeling OK about what has happened to me. It has been so bad, for so long, and I lost so much. I feel the psychiatric drugs almost chipped away a bit of my soul that I can never get back. So I either never recover and live in misery. Or I do recover and have all this resentment and anger about what I missed out on as a young man. Time and experiences which can never be had again, or be compensated for (no amount of money can truly compensate you for not having any sexual feelings in the prime of your youth). Its a lose lose situation for me. Also it is unlikely there will ever be any form of compensation, justice, or even an acknowledgement for what happened to me. And to add the cherry on top the drug companies and the psychiatrists have made huge amounts of money off of our misery. The sense of injustice is enormous.

 

Have you tried having sex at all during the past 8 years?  Do you even get an erection or anything?  What have people said when you told them your deal?  Do they just look at you like you're crazy or laugh or something?  Like girls I mean.

June 2013 - Vyvanse 40mgs and Adderall 20mgs

 

March 2015 - Concerta 36mgs and Seroquel 50mgs

 

August 2016 - Vyvanse 50mgs

 

November 2016 - Current - Vyvanse 60mgs, Seroquel 50mgs (I cut them in half and only take 25mgs), Wellbutrin 450gs (I hardly ever take it)

 

Current Withdrawal Symptoms: Very abnormal pins and needles/bubble feeling on the right and backside of my head (thought it was a brain tumor, so got both an MRI and CT Scan that came back normal), random waves of extreme depression sometimes with suicidal thoughts, tired most of the time, get anxious for seemingly no reason, sometimes hard to sleep. 

 

September 6, 2021 - Completely off all drugs.  Still smoke a lot of cannabis.  Take Animal Pak, L Tyrosine, and Organic Mucana as supplements.

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Hi everyone,

 

Question for mostly men and maybe women. Have you guys checked all anabolic hormones after SSRI treatment? Talking about hormones that are in charge of libido, drive, motivation such as testosterone, HGH, DHT, DHEA-S, estradiol? Is there documented research that SSRI might affect these hormones? For example if your SSRI treatment caused your hormones to tank and stay there thats 100% a factor contributing in your low libido. I am on TRT (testosterone replacement therapy) so i can talk from experience. Also people still experiencing low libido, are you overweight, do you workout, do you smoke, do you drink alcohol, do you take loads of caffeine? Maybe before the treatment you were overweight and did not workout but did have libido but that doesnt mean anything. Your body and brain is different now especially after treatment so i truly believe you should be normal weight (bodyfat in range), workout consistently, drink rarely and of course not smoke. For the people that are overweight and not active i really doubt your libido will come magically again without any effort.

 

Thanks

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yes i have had sex with about 8 or 9 women in the last 8 years. I can get an erection, but nearly no sensitivity, almost pleasureless orgasms, and non existant libido. I only bother to have sex when a woman initiates it. When i do have sex it is an almost pleasureless event. Most of the women i have had sex with i havent mentioned about PSSD, and just went through the motions when having sex because they wanted sex. Recently over the last two years i have told two different women i had sex with about it. Surprisingly they were very understanding, and didnt try to mock me in any way. I have made the mistake of mentioning it to one or two people (men) who have mocked me, and i am now very careful about who i talk to about it. In my social circle only my parents know about it, and one close friend. I think the stigma of having sexual problems is one of the reasons awareness about PSSD has been slow to develop etc.

 

Edited by ChessieCat
removed member name

Last took an SSRI January 2009.

Last took a benzodiazepine May 2015.

Free from all prescription medication since May 2015.

Everything has mostly healed apart from PSSD which is still very bad, and is my most distressing symptom. Also i have developed some allergy problems/ sensitivities to things in the environment which i believe was possibly caused by the prescription medications (SSRI's and benzos).

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Likesoup- I had my testosterone levels checked after i had PSSD, and most other hormones that can affect sexual desire/ function. All came back normal. I also dont smoke, i get regular exercise (judo and powerlifting), i dont drink alcohol, and i only occasionally have caffeine by drinking tea and coffee. I dont take any other form of drug, prescription or otherwise, apart from occasionally taking paracetamol. I have a fairly healthy diet. Despite this i still suffer from PSSD. Even Dr David Healy who is probably one of the few people who knows a bit about PSSD has stated that no one really knows or understands the mechanism of action for PSSD. There has been no research, or much of an appetite for research, as the medical community are disputing its existence, and the drug companies are actively trying to deny its existence. Dr David Healy has suggested caress fibres ( a recently discovered type of nerve fibre responsible for tactile sensation may be involved with PSSD). If you go on you tube and put in "Yale symposium 2015 Dr David Healy", you can listen to Dr David Healy talk about PSSD and caress fibres. He talks about PSSD in the mid/ end section of his talk.

Last took an SSRI January 2009.

Last took a benzodiazepine May 2015.

Free from all prescription medication since May 2015.

Everything has mostly healed apart from PSSD which is still very bad, and is my most distressing symptom. Also i have developed some allergy problems/ sensitivities to things in the environment which i believe was possibly caused by the prescription medications (SSRI's and benzos).

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Has anyone had soft glans syndrome post SSRI? Did they ever recover? Thank you I really want to hear your stories

2004-2007 paxil

2015- zoloft 3 months zyprexa 3 months lexapro 3 months xanax

Med free since Feb 28th 2017

Mostly experiencing PSSD

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Much as I don't want to, I have to agree with Spruce30. I was going to write a big update post but Spruce30 already did it for me. He wrote what I've been thinking and feeling.  I lost and am loosing so much in the prime of my life. My sense of pleasure has been taken away and with it a part of my soul.   I am going into my fourth year with having this and no end in sight.   Some people recover and some don't - plain cold hard fact.  

There is no clinic or no physician for something that most all think does not exist, and those who do believe it possible, have no idea how it all works on the biochemical level.  

Mid 2006-Early 2013  Celexa 40 MG, Xanax .50, Trazadone 50 MG - No problems with side effects

Very fast-few weeks taper in Early 2013 off all medication.

Crashed summer 2013 Went back on all meds same dosage (different brand of Celexa) Sept 2013. 

 

Sexual Side Effects (which I never had before) begun December 2013.  Off Celexa February 2014.  Xanax remained while Trazadone done in August 2014.

Continue to experience complete PSSD to this day with sadly no signs of improvement yet.

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