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Tips to help sleep -- so many of us have that awful withdrawal insomnia


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#433 grandmaD

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Posted 16 May 2016 - 07:57 PM

Hi CS,

So sorry to hear of your sleep issues.  As you can see mine have been getting worse each year.  I hope this trend doesn't continue as I still have quite a way to go before I get off.

 

I see you did a 4 year taper.  What percentage and how often did you taper?

 

Now you have been finished for 4 years and still having sleep problems!  This is awful. 

 

What does narcopleptic issues mean?

 

What is your insomnia like?  How often?  What sort of hours are you awake?  How much sleep do you get?

 

Do you see any improvement in that 4 years? 

 

Do you hope to see any change, what are the prospects in that?


1995                20mg Aropax/Paxil for pain.  2000-2004 - Years of tapering and up-dosing (fast) (resultant suffering)

2004-2007       Daily 20mg

2008                Switching to Endep, Lexapro and then Esipram (hell!)

2009                20mg Aropax.  Tried skipping doses for a year (more hell!)

                        2010                10mg.  10% taper.  Lasted 4 months. Crashed again

2011                5% taper. 9mg-7mg (hell got even worse!)

2012                2.5% taper.  6.6mg – 5.6mg (worser still & unbearable)

2013                5% taper.  Big mistake.  5.5mg – 4.6mg  (even worserer)

2014                2.5% taper.  4.9mg – 4.5mg (worst year ever for w/d by far, plus gall surgery-developed arrythmia

2015                2.5% taper.  4.4mg - 4.0mg (gall surgery/anaesthetic continued to make things even worse)

2016                2.5% taper.  3.9mg  Feb 3.8   Mar 3.7  May 3.6   Jul 3.5 (finally imp. from gall surgery)

2017                2.5% taper.  Jan 3.4;   Mar 3.35;


#434 grandmaD

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Posted 16 May 2016 - 07:58 PM

Hi CS,

So sorry to hear of your sleep issues.  As you can see mine have been getting worse each year.  I hope this trend doesn't continue as I still have quite a way to go before I get off.

 

I see you did a 4 year taper.  What percentage and how often did you taper?

 

Now you have been finished for 4 years and still having sleep problems!  This is awful. 

 

What does narcopleptic issues mean?

 

What is your insomnia like?  How often?  What sort of hours are you awake?  How much sleep do you get?

 

Do you see any improvement in that 4 years? 

 

Do you hope to see any change, what are the prospects in that?

I forgot to ask whether you have any other w/d symptoms still, or just the isomnia?


1995                20mg Aropax/Paxil for pain.  2000-2004 - Years of tapering and up-dosing (fast) (resultant suffering)

2004-2007       Daily 20mg

2008                Switching to Endep, Lexapro and then Esipram (hell!)

2009                20mg Aropax.  Tried skipping doses for a year (more hell!)

                        2010                10mg.  10% taper.  Lasted 4 months. Crashed again

2011                5% taper. 9mg-7mg (hell got even worse!)

2012                2.5% taper.  6.6mg – 5.6mg (worser still & unbearable)

2013                5% taper.  Big mistake.  5.5mg – 4.6mg  (even worserer)

2014                2.5% taper.  4.9mg – 4.5mg (worst year ever for w/d by far, plus gall surgery-developed arrythmia

2015                2.5% taper.  4.4mg - 4.0mg (gall surgery/anaesthetic continued to make things even worse)

2016                2.5% taper.  3.9mg  Feb 3.8   Mar 3.7  May 3.6   Jul 3.5 (finally imp. from gall surgery)

2017                2.5% taper.  Jan 3.4;   Mar 3.35;


#435 btdt

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Posted 16 May 2016 - 10:55 PM

8 years 6 months back into insomnia 

 

I no longer take much notice of it 

 

I try to do what I have to do 

 

often dragging myself around like a dead weight 

 

no real life can be had on the days sleep is gone 

 

I no longer worry about it too much 

 

I guess I have adapted to not sleeping 

 

After years of sleeping every 4th day and then getting a solid 1-3 hrs a night I found I could fake being human enough to keep those closest to me from worry.  That was not enough sleep to actually live a life I survived by developing other strategies to improve my experience of down time.  First don't worry about it as it did not help so why bother... rest as much as possible when you can't sleep via deep relaxation I used videos and head phones with ocean sounds as I could not get there by myself. I just could not.  

 

Melatonin I tried in recent months was a huge mistake for me which threw off my limited sleep since that tail spin I have not fully recovered I took .5 mg and I will not be trying it again.  I became quite strange to myself for days after taking it.  Magnesium I can tolerate now in ground up bits ... tiny amounts.  It sometimes helps me rest and even sleep now it has taken this many years to make peace with tiny doses of mag. Epson salt baths are still the best sleep enhancer I have found but I don't like how my skin feels when I do these baths... hate it actually.  I will bow down and do them when I really need to the chlorine in the water bothers me so I would rather shower now as I have a shower filter... filling the tub from the shower has been tried it is not a worthwhile option .  

 

Maybe in more time... 

peace all 


WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivinganti...ng-myself-btdt/

There is a crack in everything ..That's how the light gets in :)


#436 OCDee

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Posted 17 May 2016 - 07:59 AM

I have not been able to fall asleep for an entire month. Can someone please give me a recommendation as tonwhat can help? I have tried valerian, benadryl, forte's calm, melatonin, hot baths none of it worked. I had to go to the er and they gave me ambien it wirked well for the first day and then stopped working. Altostrata can you tell me what worked for you and how long this persisted? It is so painful to be without sleep it makes the anxiety so much worse

#437 Altostrata

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Posted 17 May 2016 - 10:30 AM

Please read this topic, there are dozens of suggestions.


This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

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#438 grandmaD

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Posted 18 May 2016 - 07:16 PM

8 years 6 months back into insomnia 

Do you mean that it went away for a while?  If so, how long?

I no longer take much notice of it 

Easier said than done, but this is they key.  I spent years getting annoyed, frustrated and angry about it, which didn't help.

I try to do what I have to do 

I agree we should still try and do things we need to do

often dragging myself around like a dead weight 

It is awful feeling tired, but I tell myself at least it doesn't hurt (I've had a lot of physical pain)

no real life can be had on the days sleep is gone 

Maybe not, but what is "real life"?  I am learning to just sit outside in the sun, learning to relax and telling myself to enjoy it!

 don't worry about it as it did not help so why bother... rest as much as possible when you can't sleep via deep relaxation I used videos and head phones with ocean sounds as I could not get there by myself. I just could not.  

Good advice.  I am learning to lie down instead of pushing myself and surprised that sometimes (not long after getting up) I have dropped off for 5-15mins.

Melatonin I tried in recent months was a huge mistake for me which threw off my limited sleep since that tail spin I have not fully recovered I took .5 mg and I will not be trying it again.  I became quite strange to myself for days after taking it.

I almost got a script for this, but I already had all the side effects, so decided against it.  I have since read that it increases the serotonin, so that doesn't help when you are trying to reduce it!

 Magnesium I can tolerate now in ground up bits ... tiny amounts.  It sometimes helps me rest and even sleep now it has taken this many years to make peace with tiny doses of mag.

I have taken many years to try and take magnesium too.   I couldn't say it helped me sleep any better.  I was grinding 1/4 a tablet in 2L of water and drinking it over 2 days.

Epson salt baths are still the best sleep enhancer I have found but I don't like how my skin feels when I do these baths... hate it actually.  I will bow down and do them when I really need to the chlorine in the water bothers me so I would rather shower now as I have a shower filter... filling the tub from the shower has been tried it is not a worthwhile option .  

I found you can have too much epsom salts in the bath.  I must try it again.  1 cup caused me problems, so I tried 1/2 cup and I think I need to try 1/4 next time.

Maybe in more time... 

I sure hope sleep will improve for all of us, including you - you certainly had it a lot worse

peace all

Peace to you also


1995                20mg Aropax/Paxil for pain.  2000-2004 - Years of tapering and up-dosing (fast) (resultant suffering)

2004-2007       Daily 20mg

2008                Switching to Endep, Lexapro and then Esipram (hell!)

2009                20mg Aropax.  Tried skipping doses for a year (more hell!)

                        2010                10mg.  10% taper.  Lasted 4 months. Crashed again

2011                5% taper. 9mg-7mg (hell got even worse!)

2012                2.5% taper.  6.6mg – 5.6mg (worser still & unbearable)

2013                5% taper.  Big mistake.  5.5mg – 4.6mg  (even worserer)

2014                2.5% taper.  4.9mg – 4.5mg (worst year ever for w/d by far, plus gall surgery-developed arrythmia

2015                2.5% taper.  4.4mg - 4.0mg (gall surgery/anaesthetic continued to make things even worse)

2016                2.5% taper.  3.9mg  Feb 3.8   Mar 3.7  May 3.6   Jul 3.5 (finally imp. from gall surgery)

2017                2.5% taper.  Jan 3.4;   Mar 3.35;


#439 compsports

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Posted 20 May 2016 - 02:22 AM

Hi CS,

So sorry to hear of your sleep issues.  As you can see mine have been getting worse each year.  I hope this trend doesn't continue as I still have quite a way to go before I get off.

 

I see you did a 4 year taper.  What percentage and how often did you taper?

 

Now you have been finished for 4 years and still having sleep problems!  This is awful. 

 

What does narcopleptic issues mean?

 

What is your insomnia like?  How often?  What sort of hours are you awake?  How much sleep do you get?

 

Do you see any improvement in that 4 years? 

 

Do you hope to see any change, what are the prospects in that?

Grandma D,

 

Before I respond, keep in mind that my sleep apnea could be complicating the picture.

 

Anyway, narcoleptic like issues mean I can fall asleep any time during the day due to feeling like I consumed alot of ambiens even when I didn't.   This started about a year before I finished tapering and has only gotten worse.    

 

Waiting to see if a dental device for sleep apnea that I am expecting in 7 to 10 days helps with sleep which hopefully would prevent the sleep attacks.   If not, I am not sure what my next move will be.

 

I have both hypersomnia and insomnia.  If I avoid the sleep attacks, I only sleep about three to four hours at night on the machine.  If I don't, the total hours can be split into about 6 to 7.   But the quality of sleep is horrible.

 

Regarding taper, I started it at 10% of current dose and ended up at a 5% rate.  I did cold turkey Wellbutrin without any problem.

 

I don't think I have any other withdrawal issues.  

 

Yeah, I hope to have improvement but I seriously doubt it will be with the pap machine.  If the dental appliance doesn't work, the surgery for sleep apnea would be the next step.

 

Of course, my chances of getting doctors to adequately sort out these issues is as great as my winning the lottery.


Drug cocktail 1995 - 2010
Started taper of Adderall, Wellbutrin XL, Remeron, and Doxepin in 2006
Finished taper on June 10, 2010

Diagnosed with sleep apnea 2012 and on pap machine

Dealing with protracted sleep issues


#440 grandmaD

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Posted 22 May 2016 - 04:50 PM

Thanks for your reply, I wish you all the best and hope you find an answer as there is nothing so basic and necessary as a decent nights sleep.


1995                20mg Aropax/Paxil for pain.  2000-2004 - Years of tapering and up-dosing (fast) (resultant suffering)

2004-2007       Daily 20mg

2008                Switching to Endep, Lexapro and then Esipram (hell!)

2009                20mg Aropax.  Tried skipping doses for a year (more hell!)

                        2010                10mg.  10% taper.  Lasted 4 months. Crashed again

2011                5% taper. 9mg-7mg (hell got even worse!)

2012                2.5% taper.  6.6mg – 5.6mg (worser still & unbearable)

2013                5% taper.  Big mistake.  5.5mg – 4.6mg  (even worserer)

2014                2.5% taper.  4.9mg – 4.5mg (worst year ever for w/d by far, plus gall surgery-developed arrythmia

2015                2.5% taper.  4.4mg - 4.0mg (gall surgery/anaesthetic continued to make things even worse)

2016                2.5% taper.  3.9mg  Feb 3.8   Mar 3.7  May 3.6   Jul 3.5 (finally imp. from gall surgery)

2017                2.5% taper.  Jan 3.4;   Mar 3.35;


#441 compsports

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Posted 23 May 2016 - 02:12 AM

Thanks for your reply, I wish you all the best and hope you find an answer as there is nothing so basic and necessary as a decent nights sleep.

Thanks, I hope you find answers too.


Drug cocktail 1995 - 2010
Started taper of Adderall, Wellbutrin XL, Remeron, and Doxepin in 2006
Finished taper on June 10, 2010

Diagnosed with sleep apnea 2012 and on pap machine

Dealing with protracted sleep issues


#442 grandmaD

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Posted 23 May 2016 - 07:57 PM

Well I have read so many good reports about blacking out the bedroom, but never opted to do this as I did not think it was my problem.  I do wake with palpitions, rapid pulse and anxiety and at times fear around the time they say the cortisone kicks in.  It is usually difficult if not impossible to get back to sleep.

 

However, I also wake at 1am with the same symptoms and can be up for 1- 3 hours, so I didn't think it was a problem with the light, so never bothered with blackout.

 

Hubby has just decided to install some shutters that are for keeping out the heat in summer and cold in winter.  They also block out about 99% of the light, so it has been interesting to see the results.

 

The first night was no different, but there was light coming in through the hall and ensuite.  next night I shut those doors and as usual it took 2 hours to fall asleep and I slept for 2 hours but THEN I SLEPT FOR 3 HOURS!  That's a first!  Then I slept another 2 hours!  That meant 7 hours, so I was very pleased!

 

The next time was pretty similar, so I thought this is working!  However, last night after 2 hours of trying to get to sleep, I woke after 1 hour then 2 hours and was up for 3 hours.  By this time, is when I normally find it impossible to get back to sleep because it is close to getting light.  This is when I have discovered the benefit of blockout, because with the room very dark, I was able to get back to sleep for another 2 hours.

 

I suspect its greatest benefit for me is going to be this area of waking around 4am and now with blockout being able to get back to sleep instead of being awake too soon.


1995                20mg Aropax/Paxil for pain.  2000-2004 - Years of tapering and up-dosing (fast) (resultant suffering)

2004-2007       Daily 20mg

2008                Switching to Endep, Lexapro and then Esipram (hell!)

2009                20mg Aropax.  Tried skipping doses for a year (more hell!)

                        2010                10mg.  10% taper.  Lasted 4 months. Crashed again

2011                5% taper. 9mg-7mg (hell got even worse!)

2012                2.5% taper.  6.6mg – 5.6mg (worser still & unbearable)

2013                5% taper.  Big mistake.  5.5mg – 4.6mg  (even worserer)

2014                2.5% taper.  4.9mg – 4.5mg (worst year ever for w/d by far, plus gall surgery-developed arrythmia

2015                2.5% taper.  4.4mg - 4.0mg (gall surgery/anaesthetic continued to make things even worse)

2016                2.5% taper.  3.9mg  Feb 3.8   Mar 3.7  May 3.6   Jul 3.5 (finally imp. from gall surgery)

2017                2.5% taper.  Jan 3.4;   Mar 3.35;


#443 flowerpower

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Posted 26 May 2016 - 05:08 AM

I didn't have trouble sleeping before I'm afraid that my normal sleep patterns or my nervous system has become sensitive or deteriorated from an antipsychotic (invega sustenna injectable) which I've taken for 3 to 4 months and I have restlessness/trouble falling asleep and staying asleep. I feel or have felt activated or aroused while on the medication (even though I'm not that drug anymore). I can't sleep-in or even take a nap, what is going on? I got akathisia from it. I have found that I can only get to sleep with an Ambien and i don't even feel well rested on that,

 

I want to be able to get to sleep without an Ambien at night. Please HELP. My prolactin levels are a somewhat elevated to 183.9 does it have abything to do with that, if that means anything???



#444 grandmaD

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Posted 26 May 2016 - 04:19 PM

Sorry Flowerpot to hear you have very similar sleep issues as me.  It takes me 2 hours to fall asleep so I just accept that now.  I know mine is from withdrawal, but I am not familiar with the injection you had, perhaps someone else can you with this.


1995                20mg Aropax/Paxil for pain.  2000-2004 - Years of tapering and up-dosing (fast) (resultant suffering)

2004-2007       Daily 20mg

2008                Switching to Endep, Lexapro and then Esipram (hell!)

2009                20mg Aropax.  Tried skipping doses for a year (more hell!)

                        2010                10mg.  10% taper.  Lasted 4 months. Crashed again

2011                5% taper. 9mg-7mg (hell got even worse!)

2012                2.5% taper.  6.6mg – 5.6mg (worser still & unbearable)

2013                5% taper.  Big mistake.  5.5mg – 4.6mg  (even worserer)

2014                2.5% taper.  4.9mg – 4.5mg (worst year ever for w/d by far, plus gall surgery-developed arrythmia

2015                2.5% taper.  4.4mg - 4.0mg (gall surgery/anaesthetic continued to make things even worse)

2016                2.5% taper.  3.9mg  Feb 3.8   Mar 3.7  May 3.6   Jul 3.5 (finally imp. from gall surgery)

2017                2.5% taper.  Jan 3.4;   Mar 3.35;


#445 grandmaD

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Posted 27 May 2016 - 08:59 PM

In the last week I have been able to get 7 hours sleep instead of 5-6, which is a result of the blackout blind, meaning when I am up from 4am and go back to bed when it is light, I can get another hour or 2 sleep.


1995                20mg Aropax/Paxil for pain.  2000-2004 - Years of tapering and up-dosing (fast) (resultant suffering)

2004-2007       Daily 20mg

2008                Switching to Endep, Lexapro and then Esipram (hell!)

2009                20mg Aropax.  Tried skipping doses for a year (more hell!)

                        2010                10mg.  10% taper.  Lasted 4 months. Crashed again

2011                5% taper. 9mg-7mg (hell got even worse!)

2012                2.5% taper.  6.6mg – 5.6mg (worser still & unbearable)

2013                5% taper.  Big mistake.  5.5mg – 4.6mg  (even worserer)

2014                2.5% taper.  4.9mg – 4.5mg (worst year ever for w/d by far, plus gall surgery-developed arrythmia

2015                2.5% taper.  4.4mg - 4.0mg (gall surgery/anaesthetic continued to make things even worse)

2016                2.5% taper.  3.9mg  Feb 3.8   Mar 3.7  May 3.6   Jul 3.5 (finally imp. from gall surgery)

2017                2.5% taper.  Jan 3.4;   Mar 3.35;


#446 Area1255

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Posted 03 June 2016 - 06:48 PM

Binaural beats may help. Try lemon balm extract, it helped me.

Maybe exercise during the afternoon and early evening, so that you are tired more to go to sleep at night?


Past AD Experiences : (Fluvoxamine 3 years, D/C'd @ age 15).

Light thinks it travels faster than anything but it is wrong. No matter how fast light travels, it finds the darkness has always got there first, and is waiting for it

~Terry Pratchett~


WITHDRAWAL REGIMEN/STORY

Originally for OCD, the luvox took about 6 months to taper off.

Withdrawal supplements; lemon balm, Vitamin B3, black water/fulvic acid, high-protein diet to restore neurotransmitters, aniracetam to counter memory issues, deprenyl for persisting anhedonia.

Regimen still maintained til this day. Lemon balm, generally as capsules, however, as I suffer chronic Insomnia, I often use essential oil or as aromatherapy before bed , in combination with magnesium and lysine on bad nights.


#447 adrianctn

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Posted 16 June 2016 - 02:12 AM

Propranolol or clonidine or cyproheptadine, along with melatonin and 0.5mg of lamotrigine have helped me sleep 7 hours per night.

Also, dosing 4mg of cyproheptadine and 0.15mg of clonidine will make me sleep in the middle of the day as well.

I hope this will help people out.

Also, I use all other recommendations posted here.

December 2015 One month Prozac at 10mg/day and every other day for MILD Anxiety ( What the hell??? No prior illness of any sort.)

Horrible side effects. Finally Cold Turkey.
May 2016 - Lamotrigine 0.5mg. Going up slowly. Sleep back to 8-9 hours normal (complete insomnia after Prozac).
June 2016 - 2 weeks 2.5mg Diazepam for Akathisia. Then lowered to 0.6mg/day.

Also Propranolol, Clonidine, occasional antihistamine, magnesium, B6 - for akathisia.

Experiencing severe protracted withdrawal. Symptoms got worse and changed each month. 

Last symptom remaining - Severe Akathisia since May with (mostly) waves and (some) windows. (When worse: pacing, can't concentrate or even speak, difficulty eating, driving, getting out of the house, horrible pain, restlessness, headache, exhaustion)

 

 


#448 Prozac20

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Posted 16 June 2016 - 06:51 AM

I want to try taurine tonight after an Epsom salt bath . For those who have tried it can you tell me the recommended dose is ? I don't know the amount doses it comes in . Thanks in advance
Xanax PRN ( 1/2 of .25mg approximately 2-3 a month when needed ) since May 2015
In April 2016 started birth control and in my opinion it triggered anxiety for almost a week straight and took 1/2 .25mg Xanax everyday for that week ( never had taken that many in a row before )
Saw the family MD and gave me Prozac 20 mg.
took it for 6 days and could not handle the side effects and had to stop working
Went back to the dr on the 7 day and told me to stop CT . I told him that I was scared to stop so suddenly so he gave me 10mg to take to see if the side effects decreased
Took the 10mg that night and the next day felt so much worse . After that did take anything any more except and antibiotic due to UTI
It's been almost 7 weeks and I have a lot of weakness ( comes and goes) anxiety , cortisol urges at night and worse in the morning which usually lessens throughout the day , tinnitus , heavy leg feeling , fatigue and burning skin mostly my left arm, face and neck mainly when I fee the cortisol surges .

#449 apace41

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Posted 13 July 2016 - 06:40 AM

For those suffering with sleep issues, there will be a free online summit from August 8-15.

 

Here is the link:  http://sleepsuccesssummit.com/

 

Best,

 

Andy


Started Sertraline 50mg and Clonazapam .375mg circa 2000; Sx Spring 2012. increased to .5 Clonazapam - no improvement; Started taper of K November 2012 (benzo sites said "taper benzo first"); increased Sert to100mg no improvement; Finished K microtaper in November 2014
Started Sertraline taper from 100mg in December 2014 by reducing to 75mg; Reduced to 62.5mg on January 1, 2015 and 50mg on February 1, 2015; Held at 50mg through April 5 when I got Rx for liquid Sertraline
Reduced dosage in 10% or less drops from 50mg to 25mg -- at single tablet on 10/5

Held through February with no noticeable change

March 2016 attempted to begin taper again but miscalculated into 1 week accidental updose to 32.5mg; dropped back to 25mg for 1 week; tapered to 22.5mg the following week; hit with symptoms and tried to stabilize between 22.5mg and 25mg.  Transitioned to all liquid for accuracy. Was dealing with horrible insomnia which had me sleeping once every other day.  Went back to 25mg liquid and held until October 1, 2016.  October 1 cut 4% to 24mg.  November 1 cut 8.3% to 22mg. December 1 cut 9% to 20mg.  Not great but functional. 2/1/17 cut 5% to 19mg.  Taking Spray-on Magnesium, Magnesium supplements, D3, Omega 3, curcumin, Co-Q10, Valerian, 81mg Aspirin, L-Theanine


#450 DaddyCee

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Posted 13 July 2016 - 06:44 AM

For those suffering with sleep issues, there will be a free online summit from August 8-15.

 

Here is the link:  http://sleepsuccesssummit.com/

 

Best,

 

Andy

 

Interesting.... I will take a look. Thanks for sharing Andy.


1997 - 2001 Seroxat 10mg

2001 - 2013 Escitalopram 10mg

Gradual taper from 10mg to 5mg over 2.5 years (between 2011 - 2013)

Last taper from 5mg to 0 under advice from doctor done in 1 month (too damn fast!) - included missing out days.

Have been drug free since Oct 2013.  - Yep 41 months med free  :D  :D  :D


#451 compsports

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Posted 13 July 2016 - 07:25 AM

I also wanted to add my thanks Andy.   Very interesting.


Drug cocktail 1995 - 2010
Started taper of Adderall, Wellbutrin XL, Remeron, and Doxepin in 2006
Finished taper on June 10, 2010

Diagnosed with sleep apnea 2012 and on pap machine

Dealing with protracted sleep issues


#452 grandmaD

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Posted 13 July 2016 - 11:31 PM

I tried switching taking the tablet at night instead of morning but it didn't affect the insomnia at all.


1995                20mg Aropax/Paxil for pain.  2000-2004 - Years of tapering and up-dosing (fast) (resultant suffering)

2004-2007       Daily 20mg

2008                Switching to Endep, Lexapro and then Esipram (hell!)

2009                20mg Aropax.  Tried skipping doses for a year (more hell!)

                        2010                10mg.  10% taper.  Lasted 4 months. Crashed again

2011                5% taper. 9mg-7mg (hell got even worse!)

2012                2.5% taper.  6.6mg – 5.6mg (worser still & unbearable)

2013                5% taper.  Big mistake.  5.5mg – 4.6mg  (even worserer)

2014                2.5% taper.  4.9mg – 4.5mg (worst year ever for w/d by far, plus gall surgery-developed arrythmia

2015                2.5% taper.  4.4mg - 4.0mg (gall surgery/anaesthetic continued to make things even worse)

2016                2.5% taper.  3.9mg  Feb 3.8   Mar 3.7  May 3.6   Jul 3.5 (finally imp. from gall surgery)

2017                2.5% taper.  Jan 3.4;   Mar 3.35;


#453 Christian

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Posted 14 July 2016 - 07:32 PM

Hi,
I'm sorry but I can't find the insomnia topic so maybe someone can put this in there if it's not too much trouble.

I have seen various posts from folks saying that you don't have to be actually asleep to get rest during insomnia spells. Well here is proof. Today I had an EEG done on my brain. They encourage patients to sleep during the procedure. I expressed my doubts of that happening today with me due to my insomnia. Well the tech said after she came back into the room, by looking at the waves, I did, in fact, sleep. But the funny thing is is that I didn't. I was awake with my eyes closed the entire time. So there you have it. We do get rest by just closing our eyes though we think we aren't sleeping.


Edited by KarenB, 14 July 2016 - 09:45 PM.
merged similar topics

Lexapro: started in 2002 at 10 mgs.
Ambien: started as a as needed sleep aid in 2010.
Quit Lexapro cold turkey in June 20015 due to contributing to low sodium issues.
Restarted Lexapro in late November for a week (only 5 mgs) but quit due to dizziness side effects. Side effects worsened for 3 weeks until
12/24/15: Protracted WD hit, experienced extreme anxiety, insomnia lack of full concentration and social challenges.
Reinstated Lexapro on 1/1/16 at 5 mgs. Increased per Dr to 7.5 MG. Tapered off Lexapro in March 2016.
Started 50MG of Seroquel in late January 2016 for bedtime to help in eliminate Ambien. Tapered off both Seroquel and Ambien in March 2016.
2/14/16: Prescribed both Remeron (15 MG) and Temazapam (15 MG) for sleep. Also use Klonopin and Ambien again in place of Temazapam to avoid addiction. However I did take Temazapam 60 straight days
6/15/16: Stopped use of all benzo's and now use Belsomra 1-2 times a week. Still on 15 MG of Remeron
10/11/16: Off all psych medications

After kindling, trying to regain my strength suffering from severe mental and physical fatigue.

#454 Ibid

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Posted 14 July 2016 - 09:11 PM

 I did, in fact, sleep. But the funny thing is is that I didn't. I was awake with my eyes closed the entire time. So there you have it. We do get rest by just closing our eyes though we think we aren't sleeping.

Maybe the mods can move this too.

 

So glad to hear this and thanks for posting it. I do this too, quite often lately. But time passes much more quickly than I think it's passing so I must have conked out. And I feel pretty rested usually. Having been reading about sleep deprivation and dementia I've often worried about insomnia. Your EEG makes me feel better. 


Diagnosed w/ ADD and minor depression in 1990. Fluoxetine 20 mg/day. Also methylphenidate, but hated it and quit after about a week. Quit fluoxetine cold turkey (ignorance) 18 January 2013. Experienced brain zaps, flu symptoms, heart palpitations. Nothing after August 2013. Mirtazapine 15 mg/day for sleep beginning around 1999. Began tapering August 2013.  As of March 2015 I'm off mirtazapine and antidepressant free. Don't sleep well after sunrise, feel anxious and sad some of the time, still have tinnitus. Still occasionally take lorazepam for anxiety but never more than 1 mg.  Prescribed metoprolol (beta blocker) for atrial fibrillation diagnosed June 2013. Medical  opinion (two cardiologists) is that it's not caused by fluoxetine w/drawal and is a dangerous, chronic condition requiring lifelong medication. As of Aug 2013 heart palpitations for the most part ceased. Tapered beta blocker and am off of it as of Jan 2015. No wd symptoms or recurring afib at all so far. Maybe it was wd after all, but doctors don't think so, surprise surprise. However, a small victory: the last doctor I related this to shrugged her shoulders. Getting lots of exercise, which has me physically pretty robust at age 71 in spite of persistence of mirt wd symptoms, mainly insomnia and anxiety, but also jaw-clenching annoyance at noises of a certain pitch and timbre. Incessant media fixation on the presidential campaign has ruined my disposition and my faith in the future. My Introduction.


#455 scallywag

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Posted 15 July 2016 - 01:07 PM

Christian thanks for that information; this is the best place for it. 

 

It's good to know that even though we think we're not sleeping, we could actually be sleeping.  Nice to have a medical tech's input and your actual experience. :)


This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.
1997-1999 Effexor; 2002-2005 Effexor XR 37.5 mg linear taper, dropping same #beads/week with bad results
Cymbalta (brand name), 60 mg 2012 - 2015; 20 mg to 7 mg in 2016, taper details in this post;
2017: 7.0 (65 beads) Dec.10; 6.3 (58 beads) Feb. 1; 5.6 mg (52) Feb. 22;
Current dose: 5.4 mg (50 beads) 2017-Mar-15
+ Supplements: fish oil (1500 mg EPA/500 mg DHA), Vitamins: D3, K2, C; Minerals: Mg, Se, Cr, I, V
scallywag's Introduction Post
Online spreadsheet for dose taper calculations and nz11's THE WORKS spreadsheet


#456 Purplestars22

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Posted 19 July 2016 - 09:26 PM

The importance of sleep and tips to sleep better:

Celexa 20mg 2008-2012 for Social Anxiety
Failed attempt to stop reinstated
1 year taper skipping doses
Celexa free 12/2013
1/2014-5/2014 took 5 htp every other day
Failed Reinstatement 5mg of Celexa on 12/2014 for 5 days only

#457 herewego

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Posted 23 July 2016 - 08:22 PM

Wondering if this can be fixed? When I click on "Tips to help sleep - so many of us have withdrawal insomnia" my screen keeps telling me "Sorry, we couldn't find that!"


Medicine History
June 2011 I was put on 10 mg Olanzapine. I stayed on that for 7 months then went down to 5 mg for 3 months and then went down to 2.5mg and slowly went down to less than .3 every few days. I have tried to come off 4 times, each time getting down to less than .3 before having to go back on at 5mg or 2.5mg. I would cut by 50% each taper. From Jan 2015 to June 2015 I reduced from about 5mg to .3 mg. This last time I went on 2.5 mg last June 2015 until July 2, 2016. July 3, 2016 I went down to 1.25mg - withdrawal hit. Up dosed to liquid 2 mg July 23, 2016.
Medicine Current
2 mg Olanzapine as of July 23, 2016
Supplements
Omega 3 1000mg, Vitamin E 400 UI, Vitamin C 1000 mg Time Released, 200 mg Magnesium Bisglycinate, Multi Probiotic, .25 mg melatonin for 3-5 days as needed

#458 KarenB

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Posted 23 July 2016 - 08:28 PM

The original link should work now.  I hope :).


2010 May Fluoxetine 20mg. Raging mostly stops, become more functional.
2011 February Escitalopram 10mg (sudden switch). 2012 January Escitalopram 20mg.  2013 Early June Feeling great, decide to taper. Doc advises alternate days 20mg/10mg for 4 weeks.  Late June Steady. Drop to 10mg daily. Early July Not coping, raging, flu symptoms, shaky, anxious, low, spaced-out, self-destructive.  Mid July Return to alternate days 20mg/10mg - minimal improvement. Early August Return to full dose 20mg. Lost.
2014 February Switch to Venlafaxine. (First reduced Esc. to 10mg/day for a week) Feb-April Lost, 'light' self-harm, exhausted.
April Increase Ven. to 150mg/day. Dizzy. July 75mg twice a day to improve dizziness. Deep depression remains.  2015 Feb Vigilant dose spacing partially eases dizziness. Mar Switch to Effexor 75mg 2x/day. May Cut 10% to 135mg - bad w/d 2 mths, held 1 mth.  Aug 1.3% cut - bad 1mth, held 1mth. Oct 4 wkly 0.4% cuts held 6 weeks. Jan 2016 2 wkly 0.4% cuts. 8 month hold. Sept Wkly cuts: 0.5%, 3 1% cuts.  Oct 4 wkly 1% cuts, hold 3-4 weeks.
Supplements: Fish oil, vitamins E & C, magnesium, iron, MSM, oat-straw tea, nettle tea.  My story of healing: ContinuedHealing

***I am not a doctor or counselor; please do your own research and be prepared to take responsibility for decisions you make.*** 

           'The possibility of renewal exists so long as life exists.'  Dr Gabor Mate.


#459 Christian

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Posted 24 July 2016 - 11:34 AM

I found this article/study interesting. It describes how people that are dependent on benzo's for sleep have a difficult time justifying going off of them due to the reduced sleep they get. What the study found was that even though the sleep was reduced the REM sleep increased. The user bases their decision on the duration not knowing their quality sleep has improved by quitting.

https://binged.it/2a8dPpT
Lexapro: started in 2002 at 10 mgs.
Ambien: started as a as needed sleep aid in 2010.
Quit Lexapro cold turkey in June 20015 due to contributing to low sodium issues.
Restarted Lexapro in late November for a week (only 5 mgs) but quit due to dizziness side effects. Side effects worsened for 3 weeks until
12/24/15: Protracted WD hit, experienced extreme anxiety, insomnia lack of full concentration and social challenges.
Reinstated Lexapro on 1/1/16 at 5 mgs. Increased per Dr to 7.5 MG. Tapered off Lexapro in March 2016.
Started 50MG of Seroquel in late January 2016 for bedtime to help in eliminate Ambien. Tapered off both Seroquel and Ambien in March 2016.
2/14/16: Prescribed both Remeron (15 MG) and Temazapam (15 MG) for sleep. Also use Klonopin and Ambien again in place of Temazapam to avoid addiction. However I did take Temazapam 60 straight days
6/15/16: Stopped use of all benzo's and now use Belsomra 1-2 times a week. Still on 15 MG of Remeron
10/11/16: Off all psych medications

After kindling, trying to regain my strength suffering from severe mental and physical fatigue.

#460 compsports

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Posted 24 July 2016 - 01:11 PM

I found this article/study interesting. It describes how people that are dependent on benzo's for sleep have a difficult time justifying going off of them due to the reduced sleep they get. What the study found was that even though the sleep was reduced the REM sleep increased. The user bases their decision on the duration not knowing their quality sleep has improved by quitting.

https://binged.it/2a8dPpT

These folks are making the same mistake that many people make in equating how well they slept to the amount of time they were asleep when it is the quality that counts.   


Drug cocktail 1995 - 2010
Started taper of Adderall, Wellbutrin XL, Remeron, and Doxepin in 2006
Finished taper on June 10, 2010

Diagnosed with sleep apnea 2012 and on pap machine

Dealing with protracted sleep issues


#461 OCDee

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Posted 25 July 2016 - 10:57 AM

I have a question for all insomniacs here? How many have chronic onset insomnia? Meaning you cannot fall asleep at all? Mine started with anxiety/ panic upon waking and graduated to chronic onset insomnia. Just wondering if this is a common issue with those who are in wd. Love and light to all



#462 Christian

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Posted 25 July 2016 - 07:37 PM

My issue is non restorative sleep. Of course I take mirtazapine but they say Mirtz helps slow wave sleep. Whatever the case I'm getting a sleep study next week. Can hardly wait as this isnt sustainable
Lexapro: started in 2002 at 10 mgs.
Ambien: started as a as needed sleep aid in 2010.
Quit Lexapro cold turkey in June 20015 due to contributing to low sodium issues.
Restarted Lexapro in late November for a week (only 5 mgs) but quit due to dizziness side effects. Side effects worsened for 3 weeks until
12/24/15: Protracted WD hit, experienced extreme anxiety, insomnia lack of full concentration and social challenges.
Reinstated Lexapro on 1/1/16 at 5 mgs. Increased per Dr to 7.5 MG. Tapered off Lexapro in March 2016.
Started 50MG of Seroquel in late January 2016 for bedtime to help in eliminate Ambien. Tapered off both Seroquel and Ambien in March 2016.
2/14/16: Prescribed both Remeron (15 MG) and Temazapam (15 MG) for sleep. Also use Klonopin and Ambien again in place of Temazapam to avoid addiction. However I did take Temazapam 60 straight days
6/15/16: Stopped use of all benzo's and now use Belsomra 1-2 times a week. Still on 15 MG of Remeron
10/11/16: Off all psych medications

After kindling, trying to regain my strength suffering from severe mental and physical fatigue.

#463 Altostrata

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Posted 26 July 2016 - 09:47 AM

OCDee and Christian, I hope you have updated your Intro topics with the above posts because responding to them requires going into your particular situations, which would be off-topic in this topic.


This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

#464 Christian

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Posted 02 August 2016 - 02:10 PM

Hello,

 

I found this article online that discusses how meds destroy sleep. There is a specific mention of my current issue of being stuck in a permanent,, non restorativ,e REM dreaming state due to abrupt WD. More the reason to do slow tapers. I am paying the price.  

 

http://www.medmerits...ep_disorders/P4

 

"Antidepressants. Sleep disturbances are generally more prevalent among patients with depression. These disturbances may improve with antidepressant treatment, but there may also be adverse effects due to antidepressant drugs. Some antidepressants adversely affect the physiological structure of sleep, whereas others restore it. Most antidepressants cause REM sleep reduction, generally with increased serotonin function (Aszalos 2006). Intense and prolonged dreams often accompany abrupt withdrawal from antidepressant drugs as a manifestation of REM sleep rebound after drug-induced REM sleep deprivation (Costa e Silva 2006). Investigations suggest patterns of NREM disturbances associated with depression and antidepressants, which may result in a disturbance of the stability of NREM sleep that may predispose to 1 or more parasomnias (Kierlin and Littner 2011).

Tricyclic antidepressants promote sleep in patients with insomnia due to depression and are likely to cause drowsiness. Tricyclic antidepressants also disturb REM sleep and are likely to cause nightmares.

Monoamine oxidase inhibitors have also been shown to suppress REM sleep in patients with depression, even eliminating REM sleep in some patients. This class of antidepressants also appears to reduce total sleep time and may decrease sleep efficiency.

Serotonin/norepinephrine reuptake inhibitors and selective serotonin-reuptake inhibitors can derange sleep architecture and decrease restorative sleep (Holshoe 2009). Selective serotonin reuptake inhibitors are more likely to cause insomnia. Fluoxetine significantly reduces sleep efficiency as well as REM time. The mechanism responsible for this is not known, but it may be due to a general increase in central arousal."


Lexapro: started in 2002 at 10 mgs.
Ambien: started as a as needed sleep aid in 2010.
Quit Lexapro cold turkey in June 20015 due to contributing to low sodium issues.
Restarted Lexapro in late November for a week (only 5 mgs) but quit due to dizziness side effects. Side effects worsened for 3 weeks until
12/24/15: Protracted WD hit, experienced extreme anxiety, insomnia lack of full concentration and social challenges.
Reinstated Lexapro on 1/1/16 at 5 mgs. Increased per Dr to 7.5 MG. Tapered off Lexapro in March 2016.
Started 50MG of Seroquel in late January 2016 for bedtime to help in eliminate Ambien. Tapered off both Seroquel and Ambien in March 2016.
2/14/16: Prescribed both Remeron (15 MG) and Temazapam (15 MG) for sleep. Also use Klonopin and Ambien again in place of Temazapam to avoid addiction. However I did take Temazapam 60 straight days
6/15/16: Stopped use of all benzo's and now use Belsomra 1-2 times a week. Still on 15 MG of Remeron
10/11/16: Off all psych medications

After kindling, trying to regain my strength suffering from severe mental and physical fatigue.

#465 Altostrata

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Posted 02 August 2016 - 05:07 PM

That is correct, SSRIs and SNRIs are known to be destructive to the sleep cycle.

 

Sleep disruption is a well-known withdrawal symptom.


This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

#466 Cheryl

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Posted 25 February 2017 - 04:04 PM

I found this blog on sleeping interesting. A portion of it is selling their supplements. I found the section in "Food and Sleep" with raw honey and CCT oil interesting. I plan to try raw honey first and I will update everyone.

https://blog.bulletp...ce-of-sleeping/
I was on Lexapro 10mg, once a day for about 8 yrs combined with Abilify 2mg, once per day and Klonopin ,25-.50mg up to 4 times a day. Prior to that multiple trials of various SSRIs and low doses of unsuccessful various mood stabilizers in anticonvulsant category with the same dose of Klonopin for a total of over 16 yrs.[/font][/size]Withdrawal from Abilify around Aug. 2015 and slow taper of Lexapro began late Jan. 2016. As of January 2017 I am 11 months full withdrawal from Lexapro and was .25mg of Klonopin at night.(went to .25 klonopin at night only somewhere in October)<p>**Update with my Klonopin taper. I was on .25mg at night and .25mg in AM with varying doses of .125mg during day, maybe once or twice on as needed basis. Starting in early September 2016 reduction of .125mg day dose was decreased to only .25mg AM. Over 2-3 weeks was down to .125mg AM for about 3-4 weeks. As of sometime in October down to only .25mg at night. As of 1/7/17 I am updosed to an additional .25mg at night, for a total of .5mg**

#467 UnfoldingSky

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Posted 19 March 2017 - 05:04 AM

I'm having sleep difficulties lately, I am all over the place, sometimes I can sleep long periods, other times I wake up midway through the night and can't get back to sleep.  I'm finding this hypnosis video to be helpful though when I recall to use it:

 

 

It's also great as an active "change the channel" program, I had a massive stressor lately and it's all I can do to think about anything other than what happened, when I put this on though I can stop focusing on it so much.  Oddly I don't even have to pay attention to what the speaker says to get benefits. 


Partly recovered from AD withdrawal/reactions as well as issues with other psych drugs.  Also, I am not a medical professional and nothing I say is a medical opinion or meant to be medical advice, please seek a competent and trusted medical professional to consult for all medical decisions. Also due to the withdrawal/reactions I have had I may at times have cognitive problems so please keep this in mind when reading my posts (also please note, these issues are improving as I recover).

 


#468 Kestrel777

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Posted 23 March 2017 - 12:46 PM

I am tapering off of Lexapro and have trouble finding more than three hours of sleep per night. This was the case before I started the drug also. I am dealing with a great deal of health related anxiety, financial anxiety and CPTSD. Getting help with all of the above but I feel that if I could get a good solid 4 for 5 hours of sleep that I could deal with life more successfully.

 

Recently I read that Benadryl has been found to contribute to dementia. It crosses the blood brain barrier. I used to take Benadryl 25mg for sleep no more than 3 times a week, about two weeks ago stopped after I discovered a link between the drug and back pain not to mention the dementia news. 

 

QUESTION: What can I take to help me relax and fall asleep? Any herbal teas? I have hot flashes several times in the early morning but I am used to them. I won't take hormones. Sleep is of utmost importance to me right now. Sleep is healing. 

 

I am starting a cardio routine 45 minutes a day now. I am practicing Mindfulness also each day. 

 

Your advice is greatly appreciated. 

 

Kestrel


Tapering off of Lexapro after starting at 2.5mg 3/12/17, having bad side effects (nightmares, extreme fatigue, can't work). On 1.25mg today, 3/23/17 and hoping to quit soon. 

 

Other medications: Tylenol Arthritis 8 hour 2 X's a day maximum, Probiotic supplement, 1200 mg liquid filled calcium, 5,000 mcg D3, flax seed oil, B Complex sublingual. 

 

CPTSD, anxiety. 

 

I consider myself a Survivor and a pretty durable person.