Bailey Posted April 18 Share Posted April 18 @Dee12h I long for that to happen. 1996 Effexor XR 1996-2012 Prozac and Klonipin 2012: physician took me off Prozac rapidly. Severe (unrecognized) withdrawal. Went inpatient and was poly-drugged -- rapid changes of SSRIs, antipsychotics and benzodiazepines. 2012 Paxil 40mg 2012 Xanax XR 6mg 2019 Xanax XR .5mg (tapered down to this level since being prescribed in 2012) 2014-2022 Gabapentin (tapered down to zero from 1800mg) May 2023 HRT - estriol, estradiol, testosterone, progesterone. Dec. 8, 2023 - stopped progesterone pill (started having awful reactions); inconsistent with estrogen and testosterone combined cream in confusion of severe withdrawal symptoms. Dec. 14, 2023: Estrogen/testosterone cream: Back on about 1/4 amount I was taking previously of estrogen and testosterone cream (1.5 pumps out of 4 -- full amount seemed to ignite some kind of fire in my hyper sensitive state); did not resume progesterone (b/c of bad reactions after taking in WD) December 2022: Paxil 40 to 30mg (went OK); May 2023: Paxil 30 to 20 mg (went OK); Oct. 14, 2023: Paxil 15mg; Oct. 21, 2023: Paxil 10mg Nov. 9, 2023: tried reinstating to 20mg but reacted very badly (kindling?) November 18, 2023: 7.5ml (15mg equivalent) *switch to manufacturer's liquid, Novatium* Conventional psych doc switched me to 7.5ml liquid b/c tiny pills were splitting unevenly - further destabilization by both switching to liquid and changing dose at same time. November 2023 - present: *severe* withdrawal symptoms, akathisia Dec. 6 - manufacturer change on alprazolam er (further destabilization?). Normal mfr very difficult to find now. Jan 6 2024 - stopped coffee and all forms of caffeine. Eliminated dairy, processed foods, sugar. Gluten intolerant so no gluten. Low fodmap diet for gut issues, daily leafy greens, a lot of protein to avoid blood sugar spikes after meals and also for akathisia. Feb 27 2024 - doc had me stop hormone cream. FDA-required formulation had changed and she was worried about my transition to something new. She also said that the estrogen/testosterone hormones are activating. I had already dropped a good bit in dose early in withdrawal (Dec 14 2023 above) b/c it got lost in the chaos of early withdrawal. March 2024 - doctor having me try propranolol for akathisia. First as needed starting around Mar 7 and then daily starting around Mar 23. (aka very bad in morning especially) Apr 2 2024 - stopped propranolol. Think it was interefering with sleep and causing other side effects. May keep on as prn. Link to comment
Bailey Posted April 19 Share Posted April 19 Asking for prayer today. Symptoms are so very bad and getting worse throughout day. Akathisia, feelings of electrocution, terror. Thank you. 1 1996 Effexor XR 1996-2012 Prozac and Klonipin 2012: physician took me off Prozac rapidly. Severe (unrecognized) withdrawal. Went inpatient and was poly-drugged -- rapid changes of SSRIs, antipsychotics and benzodiazepines. 2012 Paxil 40mg 2012 Xanax XR 6mg 2019 Xanax XR .5mg (tapered down to this level since being prescribed in 2012) 2014-2022 Gabapentin (tapered down to zero from 1800mg) May 2023 HRT - estriol, estradiol, testosterone, progesterone. Dec. 8, 2023 - stopped progesterone pill (started having awful reactions); inconsistent with estrogen and testosterone combined cream in confusion of severe withdrawal symptoms. Dec. 14, 2023: Estrogen/testosterone cream: Back on about 1/4 amount I was taking previously of estrogen and testosterone cream (1.5 pumps out of 4 -- full amount seemed to ignite some kind of fire in my hyper sensitive state); did not resume progesterone (b/c of bad reactions after taking in WD) December 2022: Paxil 40 to 30mg (went OK); May 2023: Paxil 30 to 20 mg (went OK); Oct. 14, 2023: Paxil 15mg; Oct. 21, 2023: Paxil 10mg Nov. 9, 2023: tried reinstating to 20mg but reacted very badly (kindling?) November 18, 2023: 7.5ml (15mg equivalent) *switch to manufacturer's liquid, Novatium* Conventional psych doc switched me to 7.5ml liquid b/c tiny pills were splitting unevenly - further destabilization by both switching to liquid and changing dose at same time. November 2023 - present: *severe* withdrawal symptoms, akathisia Dec. 6 - manufacturer change on alprazolam er (further destabilization?). Normal mfr very difficult to find now. Jan 6 2024 - stopped coffee and all forms of caffeine. Eliminated dairy, processed foods, sugar. Gluten intolerant so no gluten. Low fodmap diet for gut issues, daily leafy greens, a lot of protein to avoid blood sugar spikes after meals and also for akathisia. Feb 27 2024 - doc had me stop hormone cream. FDA-required formulation had changed and she was worried about my transition to something new. She also said that the estrogen/testosterone hormones are activating. I had already dropped a good bit in dose early in withdrawal (Dec 14 2023 above) b/c it got lost in the chaos of early withdrawal. March 2024 - doctor having me try propranolol for akathisia. First as needed starting around Mar 7 and then daily starting around Mar 23. (aka very bad in morning especially) Apr 2 2024 - stopped propranolol. Think it was interefering with sleep and causing other side effects. May keep on as prn. Link to comment
LizzieTish Posted April 19 Share Posted April 19 1 hour ago, Bailey said: Asking for prayer today. Symptoms are so very bad and getting worse throughout day. Akathisia, feelings of electrocution, terror. Thank you. Dear Bailey, The God of all grace will restore you and make you strong. 💕 May the Lord encourage you and fill you with His healing strength. I am thinking of you and praying for you. Hugs, Elizabeth 1 Lexapro: 2002-2006 (dose unknown) Sertraline: 2006-April 2021 (50 mg/day) with exception of 2 failed discontinuation attempts in previous 5 years. April - Aug 2021 (25 mg/day [half tablet]). Experienced flu-like symptoms in April. Also experienced insomnia and rage/irritability, which eventually subsided. Sept 2021 - Jan 2022 (12.5 mg/day [quarter tablet]). Feb 1-12, 2022 (~10 mg/day). Experienced depression and new onset acute anxiety. Discovered SA.org and realized I was tapering too fast. Feb 13, 2022, dose increased back to 12.5 mg/day to mitigate symptoms. April 2022 (~10 mg/day; switched to liquid formulation). May 2022 (~9 mg/day). Jun-Jul 2022 (~8 mg/day). Aug 2022 (~7 mg/day). Oct 2022 (~6.5 mg/day). Nov 2022 (~6 mg/day). Dec 2022 (~5 mg/day). Holding dose for at least 2-3 months due to crying spells and poor appetite/weight loss. Began taking Mg and fish oil supplements. March 17, 2023 - increased dose to 6 mg/day. Feeling better. May 17, 2023 - decreased dose to 5.5 mg/day. July 22, 2023 - still haven't stabilized. Experiencing excruciating and unrelenting suffering. July 28, 2023 - increased dose to 6/6.5 mg/day August 2, 2023 - increased dose to 7 mg/day due to persistent dread and panic attacks. October 2023 - increased dose to 10 mg/day. January 2024 - Still feel bad despite 10 mg/day dose. Link to comment
Bailey Posted April 19 Share Posted April 19 14 minutes ago, LizzieTish said: Dear Bailey, The God of all grace will restore you and make you strong. 💕 May the Lord encourage you and fill you with His healing strength. I am thinking of you and praying for you. Hugs, Elizabeth Thank you so very much @LizzieTish 1996 Effexor XR 1996-2012 Prozac and Klonipin 2012: physician took me off Prozac rapidly. Severe (unrecognized) withdrawal. Went inpatient and was poly-drugged -- rapid changes of SSRIs, antipsychotics and benzodiazepines. 2012 Paxil 40mg 2012 Xanax XR 6mg 2019 Xanax XR .5mg (tapered down to this level since being prescribed in 2012) 2014-2022 Gabapentin (tapered down to zero from 1800mg) May 2023 HRT - estriol, estradiol, testosterone, progesterone. Dec. 8, 2023 - stopped progesterone pill (started having awful reactions); inconsistent with estrogen and testosterone combined cream in confusion of severe withdrawal symptoms. Dec. 14, 2023: Estrogen/testosterone cream: Back on about 1/4 amount I was taking previously of estrogen and testosterone cream (1.5 pumps out of 4 -- full amount seemed to ignite some kind of fire in my hyper sensitive state); did not resume progesterone (b/c of bad reactions after taking in WD) December 2022: Paxil 40 to 30mg (went OK); May 2023: Paxil 30 to 20 mg (went OK); Oct. 14, 2023: Paxil 15mg; Oct. 21, 2023: Paxil 10mg Nov. 9, 2023: tried reinstating to 20mg but reacted very badly (kindling?) November 18, 2023: 7.5ml (15mg equivalent) *switch to manufacturer's liquid, Novatium* Conventional psych doc switched me to 7.5ml liquid b/c tiny pills were splitting unevenly - further destabilization by both switching to liquid and changing dose at same time. November 2023 - present: *severe* withdrawal symptoms, akathisia Dec. 6 - manufacturer change on alprazolam er (further destabilization?). Normal mfr very difficult to find now. Jan 6 2024 - stopped coffee and all forms of caffeine. Eliminated dairy, processed foods, sugar. Gluten intolerant so no gluten. Low fodmap diet for gut issues, daily leafy greens, a lot of protein to avoid blood sugar spikes after meals and also for akathisia. Feb 27 2024 - doc had me stop hormone cream. FDA-required formulation had changed and she was worried about my transition to something new. She also said that the estrogen/testosterone hormones are activating. I had already dropped a good bit in dose early in withdrawal (Dec 14 2023 above) b/c it got lost in the chaos of early withdrawal. March 2024 - doctor having me try propranolol for akathisia. First as needed starting around Mar 7 and then daily starting around Mar 23. (aka very bad in morning especially) Apr 2 2024 - stopped propranolol. Think it was interefering with sleep and causing other side effects. May keep on as prn. Link to comment
Chlo Posted April 20 Share Posted April 20 9 hours ago, Bailey said: Asking for prayer today. Symptoms are so very bad and getting worse throughout day. Akathisia, feelings of electrocution, terror. Thank you. @BaileyI'm praying for you right now, sweetheart. Know that God is right there with you holding you up with his strength. Father God, bless Bailey and make your presence known to her. Let her feel your peace in her mind and heart. Your child, Bailey is crying out to you, Lord, calm her nervous system with your peace that surpasses all understanding. Give her rest Lord, that she may be still and know that you are God❤️ 1 Chlo❤ •Celexa 40mg 1999-2021•COVID August 2021•Celexa stopped working•Zoloft 100mg Sept21'-Oct21'•Zoloft did not work •Lexapro 10mg Oct21'-Nov21' •Lexapro did not work •Lexapro 5mg Nov21'-1/17/22 switched to Lexapro liquid form 5mg 1/18/22•4.75mg 1/19•4.5mg 1/25•4.25mg 2/1•4.0mg 2/8 •3.75mg 3/28•3.5mg 5/23 •3.25mg 5/30•3.0mg 6/19 •2.75mg 6/26•2.50mg 7/10•2.45mg 7/18•2.40mg 7/25•2.35mg 8/1•2.33mg 8/26•2.27mg 9/15•2.21mg 9/23•2.16mg 9/30•2.10mg 10/14•2.04mg 10/24•1.99mg 11/18•1.95mg 1/02/23•1.90mg 1/09•1.80mg 1/27•1.75mg 2/21•1.70mg 3/6•1.65mg3/14•1.60mg 4/07•1.52mg 4/30•1.48mg 5/07•1.40mg 6/08•1.36mg 6/17•1.32mg 6/27•1.28mg 7/17•1.20mg 8/18•1.15mg 9/13•1.12mg 10/15•1.06mg 1/20/24•1.02mg 2/16•1mg 2/27•.98mg 3/02•.96mg3/20•D3•C• •Magnesium Glycinate Zinc•Omega3•Probiotic •Mirtazapine 15mg I don't know much, but 3 things I do. There is a God. His word is true. Stay close to Him and He will bring you through. Amen🙏 Link to comment
Sonia009 Posted April 20 Share Posted April 20 @BaileyI've been reading your beautiful prayers, I just want to say I'm sorry you are still suffering, I too will pray for you🙏😊 1 2008 10 mg Citalopram, 2.5 mg bendroflumethiazide 2021 reduced Citalopram over three years,2023 5.2 mg Citalopram for approx. 1 year Sept 2023 taken off Citalopram and bendroflumethiazide , put on Amitriptyline 10 mg and Ramipril 2.5 mg October 2023 taken off Amitriptyline and Ramipril put on Propranolol 10 mg October 2023 put on Losartan 25 mg November 2023 taken off Losartan on Propranolol 10 mg December 2023 now on 2.5 mg bendroflumethiazide + Citalopram 0.5 mg. February 2024, taken off bendroflumethiazide, on bisoprolol 1.25 mg February 2024, taken off bisoprolol, on ramipril 1.25 mg + 0.5mg Citalopram, stopped ramipril. Link to comment
Bailey Posted Saturday at 02:42 PM Share Posted Saturday at 02:42 PM 11 hours ago, Chlo said: @BaileyI'm praying for you right now, sweetheart. Know that God is right there with you holding you up with his strength. Father God, bless Bailey and make your presence known to her. Let her feel your peace in her mind and heart. Your child, Bailey is crying out to you, Lord, calm her nervous system with your peace that surpasses all understanding. Give her rest Lord, that she may be still and know that you are God❤️ thank you so very much, @Chlo ❤️ 1996 Effexor XR 1996-2012 Prozac and Klonipin 2012: physician took me off Prozac rapidly. Severe (unrecognized) withdrawal. Went inpatient and was poly-drugged -- rapid changes of SSRIs, antipsychotics and benzodiazepines. 2012 Paxil 40mg 2012 Xanax XR 6mg 2019 Xanax XR .5mg (tapered down to this level since being prescribed in 2012) 2014-2022 Gabapentin (tapered down to zero from 1800mg) May 2023 HRT - estriol, estradiol, testosterone, progesterone. Dec. 8, 2023 - stopped progesterone pill (started having awful reactions); inconsistent with estrogen and testosterone combined cream in confusion of severe withdrawal symptoms. Dec. 14, 2023: Estrogen/testosterone cream: Back on about 1/4 amount I was taking previously of estrogen and testosterone cream (1.5 pumps out of 4 -- full amount seemed to ignite some kind of fire in my hyper sensitive state); did not resume progesterone (b/c of bad reactions after taking in WD) December 2022: Paxil 40 to 30mg (went OK); May 2023: Paxil 30 to 20 mg (went OK); Oct. 14, 2023: Paxil 15mg; Oct. 21, 2023: Paxil 10mg Nov. 9, 2023: tried reinstating to 20mg but reacted very badly (kindling?) November 18, 2023: 7.5ml (15mg equivalent) *switch to manufacturer's liquid, Novatium* Conventional psych doc switched me to 7.5ml liquid b/c tiny pills were splitting unevenly - further destabilization by both switching to liquid and changing dose at same time. November 2023 - present: *severe* withdrawal symptoms, akathisia Dec. 6 - manufacturer change on alprazolam er (further destabilization?). Normal mfr very difficult to find now. Jan 6 2024 - stopped coffee and all forms of caffeine. Eliminated dairy, processed foods, sugar. Gluten intolerant so no gluten. Low fodmap diet for gut issues, daily leafy greens, a lot of protein to avoid blood sugar spikes after meals and also for akathisia. Feb 27 2024 - doc had me stop hormone cream. FDA-required formulation had changed and she was worried about my transition to something new. She also said that the estrogen/testosterone hormones are activating. I had already dropped a good bit in dose early in withdrawal (Dec 14 2023 above) b/c it got lost in the chaos of early withdrawal. March 2024 - doctor having me try propranolol for akathisia. First as needed starting around Mar 7 and then daily starting around Mar 23. (aka very bad in morning especially) Apr 2 2024 - stopped propranolol. Think it was interefering with sleep and causing other side effects. May keep on as prn. Link to comment
Bailey Posted Saturday at 02:43 PM Share Posted Saturday at 02:43 PM 6 hours ago, Sonia009 said: @BaileyI've been reading your beautiful prayers, I just want to say I'm sorry you are still suffering, I too will pray for you🙏😊 thank you so much, @Sonia009❤️ 1996 Effexor XR 1996-2012 Prozac and Klonipin 2012: physician took me off Prozac rapidly. Severe (unrecognized) withdrawal. Went inpatient and was poly-drugged -- rapid changes of SSRIs, antipsychotics and benzodiazepines. 2012 Paxil 40mg 2012 Xanax XR 6mg 2019 Xanax XR .5mg (tapered down to this level since being prescribed in 2012) 2014-2022 Gabapentin (tapered down to zero from 1800mg) May 2023 HRT - estriol, estradiol, testosterone, progesterone. Dec. 8, 2023 - stopped progesterone pill (started having awful reactions); inconsistent with estrogen and testosterone combined cream in confusion of severe withdrawal symptoms. Dec. 14, 2023: Estrogen/testosterone cream: Back on about 1/4 amount I was taking previously of estrogen and testosterone cream (1.5 pumps out of 4 -- full amount seemed to ignite some kind of fire in my hyper sensitive state); did not resume progesterone (b/c of bad reactions after taking in WD) December 2022: Paxil 40 to 30mg (went OK); May 2023: Paxil 30 to 20 mg (went OK); Oct. 14, 2023: Paxil 15mg; Oct. 21, 2023: Paxil 10mg Nov. 9, 2023: tried reinstating to 20mg but reacted very badly (kindling?) November 18, 2023: 7.5ml (15mg equivalent) *switch to manufacturer's liquid, Novatium* Conventional psych doc switched me to 7.5ml liquid b/c tiny pills were splitting unevenly - further destabilization by both switching to liquid and changing dose at same time. November 2023 - present: *severe* withdrawal symptoms, akathisia Dec. 6 - manufacturer change on alprazolam er (further destabilization?). Normal mfr very difficult to find now. Jan 6 2024 - stopped coffee and all forms of caffeine. Eliminated dairy, processed foods, sugar. Gluten intolerant so no gluten. Low fodmap diet for gut issues, daily leafy greens, a lot of protein to avoid blood sugar spikes after meals and also for akathisia. Feb 27 2024 - doc had me stop hormone cream. FDA-required formulation had changed and she was worried about my transition to something new. She also said that the estrogen/testosterone hormones are activating. I had already dropped a good bit in dose early in withdrawal (Dec 14 2023 above) b/c it got lost in the chaos of early withdrawal. March 2024 - doctor having me try propranolol for akathisia. First as needed starting around Mar 7 and then daily starting around Mar 23. (aka very bad in morning especially) Apr 2 2024 - stopped propranolol. Think it was interefering with sleep and causing other side effects. May keep on as prn. Link to comment
Dee12h Posted Monday at 11:00 PM Share Posted Monday at 11:00 PM Could you please pray for my husband? He’s a Christian, but is clueless about WD. He was great in the beginning, but apparently is running out of patience & empathy. We just started counseling, but I don’t think all these arguments , etc are good for my CNS. 😢 May 2019 started lexapro 2.5 mg; 2020 went to every other day; 2021 beginning of Mar, tried to stop but had insomnia; Mar 30, 2021 reinstated 1.25 ev other day, WD symptoms, not enough April 19, 2021 started liquid, .85 mg/day; May 1, 2021 .8 mg, May 6 .75 mg; June 6 .7 mg, June 20 .65mg, June 30 .6mg, Jul 24 .55 mg, Oct 17 .5 mg, Dec 5- .45 mg; Jan 26, 2022- 4mg, April 18- .375 ; April 24- .35; April 29- .3; Jun 12- .25 mg; Jun 28- .2 lex; Sept- .15 mg, Nov .1- long hold, never got better June ‘23- PPPD started 🙁, Jun- .09, Jul- .08, Oct- .07, Dec- .06, Jan ‘24- .05! Taking Magnesium, whole foods iron, & natural supplements as needed for sleep Link to comment
LizzieTish Posted Monday at 11:46 PM Share Posted Monday at 11:46 PM @Dee12h I'm praying for you and your husband. Hopefully your counselor isn't clueless about WD. Hugs from South Carolina. 🤗💗 1 Lexapro: 2002-2006 (dose unknown) Sertraline: 2006-April 2021 (50 mg/day) with exception of 2 failed discontinuation attempts in previous 5 years. April - Aug 2021 (25 mg/day [half tablet]). Experienced flu-like symptoms in April. Also experienced insomnia and rage/irritability, which eventually subsided. Sept 2021 - Jan 2022 (12.5 mg/day [quarter tablet]). Feb 1-12, 2022 (~10 mg/day). Experienced depression and new onset acute anxiety. Discovered SA.org and realized I was tapering too fast. Feb 13, 2022, dose increased back to 12.5 mg/day to mitigate symptoms. April 2022 (~10 mg/day; switched to liquid formulation). May 2022 (~9 mg/day). Jun-Jul 2022 (~8 mg/day). Aug 2022 (~7 mg/day). Oct 2022 (~6.5 mg/day). Nov 2022 (~6 mg/day). Dec 2022 (~5 mg/day). Holding dose for at least 2-3 months due to crying spells and poor appetite/weight loss. Began taking Mg and fish oil supplements. March 17, 2023 - increased dose to 6 mg/day. Feeling better. May 17, 2023 - decreased dose to 5.5 mg/day. July 22, 2023 - still haven't stabilized. Experiencing excruciating and unrelenting suffering. July 28, 2023 - increased dose to 6/6.5 mg/day August 2, 2023 - increased dose to 7 mg/day due to persistent dread and panic attacks. October 2023 - increased dose to 10 mg/day. January 2024 - Still feel bad despite 10 mg/day dose. Link to comment
Bailey Posted Monday at 11:56 PM Share Posted Monday at 11:56 PM I'm so sorry for the added stress. I'm praying @Dee12h for you, your husband and for the counseling. ❤️ 1 1996 Effexor XR 1996-2012 Prozac and Klonipin 2012: physician took me off Prozac rapidly. Severe (unrecognized) withdrawal. Went inpatient and was poly-drugged -- rapid changes of SSRIs, antipsychotics and benzodiazepines. 2012 Paxil 40mg 2012 Xanax XR 6mg 2019 Xanax XR .5mg (tapered down to this level since being prescribed in 2012) 2014-2022 Gabapentin (tapered down to zero from 1800mg) May 2023 HRT - estriol, estradiol, testosterone, progesterone. Dec. 8, 2023 - stopped progesterone pill (started having awful reactions); inconsistent with estrogen and testosterone combined cream in confusion of severe withdrawal symptoms. Dec. 14, 2023: Estrogen/testosterone cream: Back on about 1/4 amount I was taking previously of estrogen and testosterone cream (1.5 pumps out of 4 -- full amount seemed to ignite some kind of fire in my hyper sensitive state); did not resume progesterone (b/c of bad reactions after taking in WD) December 2022: Paxil 40 to 30mg (went OK); May 2023: Paxil 30 to 20 mg (went OK); Oct. 14, 2023: Paxil 15mg; Oct. 21, 2023: Paxil 10mg Nov. 9, 2023: tried reinstating to 20mg but reacted very badly (kindling?) November 18, 2023: 7.5ml (15mg equivalent) *switch to manufacturer's liquid, Novatium* Conventional psych doc switched me to 7.5ml liquid b/c tiny pills were splitting unevenly - further destabilization by both switching to liquid and changing dose at same time. November 2023 - present: *severe* withdrawal symptoms, akathisia Dec. 6 - manufacturer change on alprazolam er (further destabilization?). Normal mfr very difficult to find now. Jan 6 2024 - stopped coffee and all forms of caffeine. Eliminated dairy, processed foods, sugar. Gluten intolerant so no gluten. Low fodmap diet for gut issues, daily leafy greens, a lot of protein to avoid blood sugar spikes after meals and also for akathisia. Feb 27 2024 - doc had me stop hormone cream. FDA-required formulation had changed and she was worried about my transition to something new. She also said that the estrogen/testosterone hormones are activating. I had already dropped a good bit in dose early in withdrawal (Dec 14 2023 above) b/c it got lost in the chaos of early withdrawal. March 2024 - doctor having me try propranolol for akathisia. First as needed starting around Mar 7 and then daily starting around Mar 23. (aka very bad in morning especially) Apr 2 2024 - stopped propranolol. Think it was interefering with sleep and causing other side effects. May keep on as prn. Link to comment
Dee12h Posted Tuesday at 01:45 AM Share Posted Tuesday at 01:45 AM 2 hours ago, LizzieTish said: @Dee12h I'm praying for you and your husband. Hopefully your counselor isn't clueless about WD. Hugs from South Carolina. 🤗💗 He is, lol. But he’s very good, has helped me a lot with radical acceptance & self compassion, very strong Christian. I’ve been seeing him alone, and he has suggested getting back on meds but has never made me feel like it’s my fault or anything. 1 May 2019 started lexapro 2.5 mg; 2020 went to every other day; 2021 beginning of Mar, tried to stop but had insomnia; Mar 30, 2021 reinstated 1.25 ev other day, WD symptoms, not enough April 19, 2021 started liquid, .85 mg/day; May 1, 2021 .8 mg, May 6 .75 mg; June 6 .7 mg, June 20 .65mg, June 30 .6mg, Jul 24 .55 mg, Oct 17 .5 mg, Dec 5- .45 mg; Jan 26, 2022- 4mg, April 18- .375 ; April 24- .35; April 29- .3; Jun 12- .25 mg; Jun 28- .2 lex; Sept- .15 mg, Nov .1- long hold, never got better June ‘23- PPPD started 🙁, Jun- .09, Jul- .08, Oct- .07, Dec- .06, Jan ‘24- .05! Taking Magnesium, whole foods iron, & natural supplements as needed for sleep Link to comment
jeffelmexicano Posted Tuesday at 02:12 AM Share Posted Tuesday at 02:12 AM Pray for me.please 2 2021 - Seroquel 250mg and lorazepam 4,75 mg i was tapering 12,5 mg every 3 weeks and I was fine start tapering 2022 November or December I can remember now im on 187,5 mg Seroquel on hold on January on 187,5mg of Seroquel I skipped a dose of lorazepam of my 3 intakes and enter into wd. im on hold of both meds my dose of lorazepam is still on 4,75mg 03.7.23 Holding both doses May 25, 2023 - lorazepam reduced from 1,34 MG to 1,20 MG at night (total lorazepam: 1.25 morning, 1.25 afternoon, 1.20 mg evening = 3.7 mg), Seroquel still at 187.5 mg June 23 2023 down seroquel to 151 ,8 MG July 7 136 mg seroquel -july28 123 MG seroquel Hold on all meds Down from 1,25 MG to 1,20 MG lorazepam 8 am dose _8.22.23 _ Hold both meds very unstable currently 1,20 MG am 1,25 MG 2 PM 1,20 MG 8 PM 123 MG seroquel 10 pm_ total lorazepam 3,65 MG Link to comment
Bailey Posted Tuesday at 12:21 PM Share Posted Tuesday at 12:21 PM 10 hours ago, Dee12h said: He is, lol. But he’s very good, has helped me a lot with radical acceptance & self compassion, very strong Christian. @Dee12h Do you have resrouces for radical acceptance and self compasison by any chance. I want to learn these things for myself. I have terrible akathisia and am hoping this could help me survive it. 1996 Effexor XR 1996-2012 Prozac and Klonipin 2012: physician took me off Prozac rapidly. Severe (unrecognized) withdrawal. Went inpatient and was poly-drugged -- rapid changes of SSRIs, antipsychotics and benzodiazepines. 2012 Paxil 40mg 2012 Xanax XR 6mg 2019 Xanax XR .5mg (tapered down to this level since being prescribed in 2012) 2014-2022 Gabapentin (tapered down to zero from 1800mg) May 2023 HRT - estriol, estradiol, testosterone, progesterone. Dec. 8, 2023 - stopped progesterone pill (started having awful reactions); inconsistent with estrogen and testosterone combined cream in confusion of severe withdrawal symptoms. Dec. 14, 2023: Estrogen/testosterone cream: Back on about 1/4 amount I was taking previously of estrogen and testosterone cream (1.5 pumps out of 4 -- full amount seemed to ignite some kind of fire in my hyper sensitive state); did not resume progesterone (b/c of bad reactions after taking in WD) December 2022: Paxil 40 to 30mg (went OK); May 2023: Paxil 30 to 20 mg (went OK); Oct. 14, 2023: Paxil 15mg; Oct. 21, 2023: Paxil 10mg Nov. 9, 2023: tried reinstating to 20mg but reacted very badly (kindling?) November 18, 2023: 7.5ml (15mg equivalent) *switch to manufacturer's liquid, Novatium* Conventional psych doc switched me to 7.5ml liquid b/c tiny pills were splitting unevenly - further destabilization by both switching to liquid and changing dose at same time. November 2023 - present: *severe* withdrawal symptoms, akathisia Dec. 6 - manufacturer change on alprazolam er (further destabilization?). Normal mfr very difficult to find now. Jan 6 2024 - stopped coffee and all forms of caffeine. Eliminated dairy, processed foods, sugar. Gluten intolerant so no gluten. Low fodmap diet for gut issues, daily leafy greens, a lot of protein to avoid blood sugar spikes after meals and also for akathisia. Feb 27 2024 - doc had me stop hormone cream. FDA-required formulation had changed and she was worried about my transition to something new. She also said that the estrogen/testosterone hormones are activating. I had already dropped a good bit in dose early in withdrawal (Dec 14 2023 above) b/c it got lost in the chaos of early withdrawal. March 2024 - doctor having me try propranolol for akathisia. First as needed starting around Mar 7 and then daily starting around Mar 23. (aka very bad in morning especially) Apr 2 2024 - stopped propranolol. Think it was interefering with sleep and causing other side effects. May keep on as prn. Link to comment
LizzieTish Posted Tuesday at 12:22 PM Share Posted Tuesday at 12:22 PM @jeffelmexicano - You're in my thoughts and prayers. Good luck with your tapering. 🤗 1 Lexapro: 2002-2006 (dose unknown) Sertraline: 2006-April 2021 (50 mg/day) with exception of 2 failed discontinuation attempts in previous 5 years. April - Aug 2021 (25 mg/day [half tablet]). Experienced flu-like symptoms in April. Also experienced insomnia and rage/irritability, which eventually subsided. Sept 2021 - Jan 2022 (12.5 mg/day [quarter tablet]). Feb 1-12, 2022 (~10 mg/day). Experienced depression and new onset acute anxiety. Discovered SA.org and realized I was tapering too fast. Feb 13, 2022, dose increased back to 12.5 mg/day to mitigate symptoms. April 2022 (~10 mg/day; switched to liquid formulation). May 2022 (~9 mg/day). Jun-Jul 2022 (~8 mg/day). Aug 2022 (~7 mg/day). Oct 2022 (~6.5 mg/day). Nov 2022 (~6 mg/day). Dec 2022 (~5 mg/day). Holding dose for at least 2-3 months due to crying spells and poor appetite/weight loss. Began taking Mg and fish oil supplements. March 17, 2023 - increased dose to 6 mg/day. Feeling better. May 17, 2023 - decreased dose to 5.5 mg/day. July 22, 2023 - still haven't stabilized. Experiencing excruciating and unrelenting suffering. July 28, 2023 - increased dose to 6/6.5 mg/day August 2, 2023 - increased dose to 7 mg/day due to persistent dread and panic attacks. October 2023 - increased dose to 10 mg/day. January 2024 - Still feel bad despite 10 mg/day dose. Link to comment
Bailey Posted Wednesday at 02:29 PM Share Posted Wednesday at 02:29 PM On 4/2/2024 at 10:20 PM, Boges11 said: Praying for everyone and could use yalls prayers too as akathisia is doing a number on me right now I'm thinking about you this morning @Boges11 and wondering how you're doing. I'm still struggling alot with my akathisia, too. Praying. 1996 Effexor XR 1996-2012 Prozac and Klonipin 2012: physician took me off Prozac rapidly. Severe (unrecognized) withdrawal. Went inpatient and was poly-drugged -- rapid changes of SSRIs, antipsychotics and benzodiazepines. 2012 Paxil 40mg 2012 Xanax XR 6mg 2019 Xanax XR .5mg (tapered down to this level since being prescribed in 2012) 2014-2022 Gabapentin (tapered down to zero from 1800mg) May 2023 HRT - estriol, estradiol, testosterone, progesterone. Dec. 8, 2023 - stopped progesterone pill (started having awful reactions); inconsistent with estrogen and testosterone combined cream in confusion of severe withdrawal symptoms. Dec. 14, 2023: Estrogen/testosterone cream: Back on about 1/4 amount I was taking previously of estrogen and testosterone cream (1.5 pumps out of 4 -- full amount seemed to ignite some kind of fire in my hyper sensitive state); did not resume progesterone (b/c of bad reactions after taking in WD) December 2022: Paxil 40 to 30mg (went OK); May 2023: Paxil 30 to 20 mg (went OK); Oct. 14, 2023: Paxil 15mg; Oct. 21, 2023: Paxil 10mg Nov. 9, 2023: tried reinstating to 20mg but reacted very badly (kindling?) November 18, 2023: 7.5ml (15mg equivalent) *switch to manufacturer's liquid, Novatium* Conventional psych doc switched me to 7.5ml liquid b/c tiny pills were splitting unevenly - further destabilization by both switching to liquid and changing dose at same time. November 2023 - present: *severe* withdrawal symptoms, akathisia Dec. 6 - manufacturer change on alprazolam er (further destabilization?). Normal mfr very difficult to find now. Jan 6 2024 - stopped coffee and all forms of caffeine. Eliminated dairy, processed foods, sugar. Gluten intolerant so no gluten. Low fodmap diet for gut issues, daily leafy greens, a lot of protein to avoid blood sugar spikes after meals and also for akathisia. Feb 27 2024 - doc had me stop hormone cream. FDA-required formulation had changed and she was worried about my transition to something new. She also said that the estrogen/testosterone hormones are activating. I had already dropped a good bit in dose early in withdrawal (Dec 14 2023 above) b/c it got lost in the chaos of early withdrawal. March 2024 - doctor having me try propranolol for akathisia. First as needed starting around Mar 7 and then daily starting around Mar 23. (aka very bad in morning especially) Apr 2 2024 - stopped propranolol. Think it was interefering with sleep and causing other side effects. May keep on as prn. Link to comment
Boges11 Posted yesterday at 01:22 AM Share Posted yesterday at 01:22 AM @BaileyHaving a horrid time, fighting for my life with this akayhisa. I am so sorry you’re having it too, it’s beyond words and I keep praying God will take it away for all of us suffering with it. sending so many prayers your way. Lord please hear our prayers and answer them, we need aka taken away soon, this is too hard. hugs and love , 2 Prior to March 2020 - no meds in 37yr life., no anxiety or depression. mar’20- hospital with Covid like sym- panic attack- scared by reaction to ceftriaxone antibiotic - rash and tongue Never was covid, likely stomach bug Apr ‘20- told to see psychiatrist after hospital(didn’t know one panic attack shouldn’t) .75mg K and 5mg Lexapro May ‘20- switched to 25mg Sertrakine mid June ‘20- .75-.625mg K by psych in weeek spiraled ended up in ER bc so sick; 10mg Trazodone for sleep, tapered 10mg over 2wks Jul ‘20 july’20- Sertrtrakine taper 25mg-18mh - aka terrible didnt know what was ;Dr said let’s change to 5mg Prozac aug’20-tapered 5mg after taking for 2 weeks next 4 weeks, 1/4 pill a week. Aug’20- Sept 5mg ambien tapered off over a month in Sept 2020. 12mg Seroquel given and immediately tapered over 3 weeks in Oct 20. Jan 21- 2 weeks 10mg Elavil for sleep(didn’t know better), eye issues so CTd per Dr- 6wk Wd. Mar’21- Started slow K taoer .635mg to .005mg-Aug’23 ;may’22-Aug 23-drop .01mg K liquid comp a month the last .16mg Jumped at .005mg-severe acute, akathisia and in dark closet for 8 wks bc eyes severe any light caused aka worse. all beta blockers once and caused worse, spec clonidine ,severe reaction. Severe SI and attempt - Psych hosoitaks invol Nov/Dec23- multiple meds one off, Lipitor for 3 wks- forced when refused, Depakote trial 10 days 250mg, ECt twice ugh with muscle relaxer ketamine and propofol- all meds what I didn’t want used against me and forced. 12/2/23- psych hosp 7.5mg Mirtazapine for severe aka but myoclonic jolts, eye issues and no benefit . 12/10- forced me 15mg 5 days, 7.5 since 12/15/23 .home 12/18. Tested covid positive 12/22/23. Negative 12/30. nightmare traumatized and hell on mirt not knowing what’s adverse effects(severe RLS, brain racing/swirling, eye flashing, jolts) after taking Severe neuro issues 100+ symptoms thru K taper and on Link to comment
Dee12h Posted 11 hours ago Share Posted 11 hours ago On 4/23/2024 at 7:21 AM, Bailey said: @Dee12h Do you have resrouces for radical acceptance and self compasison by any chance. I want to learn these things for myself. I have terrible akathisia and am hoping this could help me survive it. I don’t have resources, sorry. It’s just about not blaming yourself, accepting things as they come & not fighting it (VERY hard w/ some symptoms), living in the moment, stopping the constant mental problem solving & relaxing into it. For the Christian, trusting Christ in everything. 1 May 2019 started lexapro 2.5 mg; 2020 went to every other day; 2021 beginning of Mar, tried to stop but had insomnia; Mar 30, 2021 reinstated 1.25 ev other day, WD symptoms, not enough April 19, 2021 started liquid, .85 mg/day; May 1, 2021 .8 mg, May 6 .75 mg; June 6 .7 mg, June 20 .65mg, June 30 .6mg, Jul 24 .55 mg, Oct 17 .5 mg, Dec 5- .45 mg; Jan 26, 2022- 4mg, April 18- .375 ; April 24- .35; April 29- .3; Jun 12- .25 mg; Jun 28- .2 lex; Sept- .15 mg, Nov .1- long hold, never got better June ‘23- PPPD started 🙁, Jun- .09, Jul- .08, Oct- .07, Dec- .06, Jan ‘24- .05! Taking Magnesium, whole foods iron, & natural supplements as needed for sleep Link to comment
Bailey Posted 9 minutes ago Share Posted 9 minutes ago On 4/24/2024 at 9:22 PM, Boges11 said: @BaileyHaving a horrid time, fighting for my life with this akayhisa. I am so sorry you’re having it too, it’s beyond words and I keep praying God will take it away for all of us suffering with it. sending so many prayers your way. Lord please hear our prayers and answer them, we need aka taken away soon, this is too hard. hugs and love , I am praying for us. Yes, fighting for life here too @Boges11. Big hug. 1996 Effexor XR 1996-2012 Prozac and Klonipin 2012: physician took me off Prozac rapidly. Severe (unrecognized) withdrawal. Went inpatient and was poly-drugged -- rapid changes of SSRIs, antipsychotics and benzodiazepines. 2012 Paxil 40mg 2012 Xanax XR 6mg 2019 Xanax XR .5mg (tapered down to this level since being prescribed in 2012) 2014-2022 Gabapentin (tapered down to zero from 1800mg) May 2023 HRT - estriol, estradiol, testosterone, progesterone. Dec. 8, 2023 - stopped progesterone pill (started having awful reactions); inconsistent with estrogen and testosterone combined cream in confusion of severe withdrawal symptoms. Dec. 14, 2023: Estrogen/testosterone cream: Back on about 1/4 amount I was taking previously of estrogen and testosterone cream (1.5 pumps out of 4 -- full amount seemed to ignite some kind of fire in my hyper sensitive state); did not resume progesterone (b/c of bad reactions after taking in WD) December 2022: Paxil 40 to 30mg (went OK); May 2023: Paxil 30 to 20 mg (went OK); Oct. 14, 2023: Paxil 15mg; Oct. 21, 2023: Paxil 10mg Nov. 9, 2023: tried reinstating to 20mg but reacted very badly (kindling?) November 18, 2023: 7.5ml (15mg equivalent) *switch to manufacturer's liquid, Novatium* Conventional psych doc switched me to 7.5ml liquid b/c tiny pills were splitting unevenly - further destabilization by both switching to liquid and changing dose at same time. November 2023 - present: *severe* withdrawal symptoms, akathisia Dec. 6 - manufacturer change on alprazolam er (further destabilization?). Normal mfr very difficult to find now. Jan 6 2024 - stopped coffee and all forms of caffeine. Eliminated dairy, processed foods, sugar. Gluten intolerant so no gluten. Low fodmap diet for gut issues, daily leafy greens, a lot of protein to avoid blood sugar spikes after meals and also for akathisia. Feb 27 2024 - doc had me stop hormone cream. FDA-required formulation had changed and she was worried about my transition to something new. She also said that the estrogen/testosterone hormones are activating. I had already dropped a good bit in dose early in withdrawal (Dec 14 2023 above) b/c it got lost in the chaos of early withdrawal. March 2024 - doctor having me try propranolol for akathisia. First as needed starting around Mar 7 and then daily starting around Mar 23. (aka very bad in morning especially) Apr 2 2024 - stopped propranolol. Think it was interefering with sleep and causing other side effects. May keep on as prn. Link to comment
Bailey Posted 8 minutes ago Share Posted 8 minutes ago 11 hours ago, Dee12h said: I don’t have resources, sorry. It’s just about not blaming yourself, accepting things as they come & not fighting it (VERY hard w/ some symptoms), living in the moment, stopping the constant mental problem solving & relaxing into it. For the Christian, trusting Christ in everything. thank you @Dee12h 1996 Effexor XR 1996-2012 Prozac and Klonipin 2012: physician took me off Prozac rapidly. Severe (unrecognized) withdrawal. Went inpatient and was poly-drugged -- rapid changes of SSRIs, antipsychotics and benzodiazepines. 2012 Paxil 40mg 2012 Xanax XR 6mg 2019 Xanax XR .5mg (tapered down to this level since being prescribed in 2012) 2014-2022 Gabapentin (tapered down to zero from 1800mg) May 2023 HRT - estriol, estradiol, testosterone, progesterone. Dec. 8, 2023 - stopped progesterone pill (started having awful reactions); inconsistent with estrogen and testosterone combined cream in confusion of severe withdrawal symptoms. Dec. 14, 2023: Estrogen/testosterone cream: Back on about 1/4 amount I was taking previously of estrogen and testosterone cream (1.5 pumps out of 4 -- full amount seemed to ignite some kind of fire in my hyper sensitive state); did not resume progesterone (b/c of bad reactions after taking in WD) December 2022: Paxil 40 to 30mg (went OK); May 2023: Paxil 30 to 20 mg (went OK); Oct. 14, 2023: Paxil 15mg; Oct. 21, 2023: Paxil 10mg Nov. 9, 2023: tried reinstating to 20mg but reacted very badly (kindling?) November 18, 2023: 7.5ml (15mg equivalent) *switch to manufacturer's liquid, Novatium* Conventional psych doc switched me to 7.5ml liquid b/c tiny pills were splitting unevenly - further destabilization by both switching to liquid and changing dose at same time. November 2023 - present: *severe* withdrawal symptoms, akathisia Dec. 6 - manufacturer change on alprazolam er (further destabilization?). Normal mfr very difficult to find now. Jan 6 2024 - stopped coffee and all forms of caffeine. Eliminated dairy, processed foods, sugar. Gluten intolerant so no gluten. Low fodmap diet for gut issues, daily leafy greens, a lot of protein to avoid blood sugar spikes after meals and also for akathisia. Feb 27 2024 - doc had me stop hormone cream. FDA-required formulation had changed and she was worried about my transition to something new. She also said that the estrogen/testosterone hormones are activating. I had already dropped a good bit in dose early in withdrawal (Dec 14 2023 above) b/c it got lost in the chaos of early withdrawal. March 2024 - doctor having me try propranolol for akathisia. First as needed starting around Mar 7 and then daily starting around Mar 23. (aka very bad in morning especially) Apr 2 2024 - stopped propranolol. Think it was interefering with sleep and causing other side effects. May keep on as prn. Link to comment
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