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#1 Altostrata

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Posted 02 May 2014 - 03:43 PM

Please post below if you live in Australia.
 
I am thinking that connecting our members geographically will enable

  • Face-to-face meetings or phone contacts for those of you who wish to meet
  • Support groups
  • Sharing information about doctors, clinics, compounding pharmacies, etc.
  • Organizing to educate physicians, hospitals, and university professors
  • Organizing to contact members of local and national government
  • Research by Australian researchers

Even if you don't wish to do any of the above, if you are in Australia, please check in here.
 
Please also click the Follow This Topic button at the top right so you will receive notices about others posting here.
 
AND -- if you've haven't introduced yourself to the rest of the community yet, please go to our Introductions and Updates forum and start a topic for yourself. You can post updates to your Intro topic to track your progress.


Edited by Altostrata, 22 March 2015 - 05:52 PM.
added link to Intro forum

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

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#2 Altostrata

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Posted 26 August 2014 - 10:48 AM

bump -- an interviewer from the Four Corners TV program is looking for Australians to interview.


This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

#3 dalsaan

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Posted 26 August 2014 - 12:53 PM

Hi Alto

Do you have details for the interviewer?

D
Please note - I am not a medical practitioner and I do not give medical advice. I offer an opinion based on my own experiences, reading and discussion with others.On Effexor for 2 months at the start of 2005. Had extreme insomnia as an adverse reaction. Changed to mirtazapine. Have been trying to get off since mid 2008 with numerous failures including CTs and slow (but not slow enough tapers)Have slow tapered at 10 per cent or less for years. I have liquid mirtazapine made at a compounding chemist.
Was on 1.6 ml as at 19 March 2014.
Dropped to 1.5 ml 7 June 2014. Dropped to 1.4 in about September.
Dropped to 1.3 on 20 December 2014. Dropped to 1.2 in mid Jan 2015.
Dropped to 1 ml in late Feb 2015. I think my old medication had run out of puff so I tried 1ml when I got the new stuff and it seems to be going ok. Sleep has been good over the last week (as of 13/3/15).
Dropped to 1/2 ml 14/11/15 Fatigue still there as are memory and cognition problems. Sleep is patchy but liveable compared to what it has been in the past.

>My intro post is here - http://survivinganti...ic/2250-dalsaan

#4 Altostrata

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Posted 26 August 2014 - 01:58 PM

The interviewer writes, in part:

 

I am a researcher with an investigative journalism program in Australia called Four Corners. I have been researching a program examining the growth of antidepressant and anti-psychotic drug use and the potential consequences.

....

A bit of background about us - we are Australia's oldest and most respected journalism programs. We make long-form television programs in the style of Frontline in the US or Panorama in the UK. If we were to make a program on this issue it would be an in depth investigation aimed at educating people while also raising awareness....

Here's our website: http://www.abc.net.au/4corners/

 

 

The interviewer is aware of acetyl's topic http://survivinganti...ithdrawal-hell/

 

Posting in this topic does not give the interviewer permission to interview you about this unless you expressly give that permission.

 

The interviewer would use our personal messaging system to protect your anonymity in initial contacts.

 

Otherwise, this topic is for the purpose stated: To allow our Australia members to find each other, etc.


This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

#5 dalsaan

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Posted 26 August 2014 - 02:29 PM

It is a reputable program. I would be interested to talk to them (via PM)
Please note - I am not a medical practitioner and I do not give medical advice. I offer an opinion based on my own experiences, reading and discussion with others.On Effexor for 2 months at the start of 2005. Had extreme insomnia as an adverse reaction. Changed to mirtazapine. Have been trying to get off since mid 2008 with numerous failures including CTs and slow (but not slow enough tapers)Have slow tapered at 10 per cent or less for years. I have liquid mirtazapine made at a compounding chemist.
Was on 1.6 ml as at 19 March 2014.
Dropped to 1.5 ml 7 June 2014. Dropped to 1.4 in about September.
Dropped to 1.3 on 20 December 2014. Dropped to 1.2 in mid Jan 2015.
Dropped to 1 ml in late Feb 2015. I think my old medication had run out of puff so I tried 1ml when I got the new stuff and it seems to be going ok. Sleep has been good over the last week (as of 13/3/15).
Dropped to 1/2 ml 14/11/15 Fatigue still there as are memory and cognition problems. Sleep is patchy but liveable compared to what it has been in the past.

>My intro post is here - http://survivinganti...ic/2250-dalsaan

#6 dalsaan

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Posted 26 August 2014 - 02:32 PM

Hello to the other Aussies,

I am in Victoria, out from Melbourne. My history is in my thread.

I'm traveling well at the moment and looking forward to spring.

Take care

D
Please note - I am not a medical practitioner and I do not give medical advice. I offer an opinion based on my own experiences, reading and discussion with others.On Effexor for 2 months at the start of 2005. Had extreme insomnia as an adverse reaction. Changed to mirtazapine. Have been trying to get off since mid 2008 with numerous failures including CTs and slow (but not slow enough tapers)Have slow tapered at 10 per cent or less for years. I have liquid mirtazapine made at a compounding chemist.
Was on 1.6 ml as at 19 March 2014.
Dropped to 1.5 ml 7 June 2014. Dropped to 1.4 in about September.
Dropped to 1.3 on 20 December 2014. Dropped to 1.2 in mid Jan 2015.
Dropped to 1 ml in late Feb 2015. I think my old medication had run out of puff so I tried 1ml when I got the new stuff and it seems to be going ok. Sleep has been good over the last week (as of 13/3/15).
Dropped to 1/2 ml 14/11/15 Fatigue still there as are memory and cognition problems. Sleep is patchy but liveable compared to what it has been in the past.

>My intro post is here - http://survivinganti...ic/2250-dalsaan

#7 Petunia

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Posted 26 August 2014 - 03:00 PM

I'm in the west, south of Perth.

At this point, I'm still in fairly severe protracted withdrawal after stopping lexapro too fast, and then further destabilizing my nervous system with irregular use of other psychotropics to try and manage symptoms.


I'm not a doctor.  My comments are not medical advise. These are my opinions based on my own experience and what I've learned. Please discuss your situation with a medical practitioner who has knowledge of tapering and withdrawal.

 

My Introduction Thread

 

Full Drug and Withdrawal History

 

Brief Summary

Several SSRIs for 13 years starting 1997 (for mild to moderate partly situational anxiety)

Xanax PRN

Various other drugs over the years for side effects

2 month 'taper' off Lexapro 2010

Short acute withdrawal, followed by 2 -3 months of improvement then delayed protracted withdrawal

DX ADHD followed by several years of stimulants and other drugs trying to manage increasing symptoms

Failed reinstatement of Lexapro and trial of Prozac (became suicidal)

May 2013 Found SA, learned about withdrawal, stopped taking drugs...healing begins.

Protracted withdrawal, with a very sensitized nervous system, slowly recovering as time passes animal25.gif

 

Supplements which seem to help:  High doses of Vitamin C, Magnesium, Garlic and Ginger.  Taurine, Vit D3, L-Theanine and Inositol. I'm one of the rare people who react badly to fish oil.

 

June 2016 - Started daily juicing, mostly vegetables and lots of greens.

 

VIDEO: Where did the chemical imbalance theory come from?



VIDEO: How are psychiatric diagnoses made?



VIDEO: Why do psychiatric drugs have withdrawal syndromes?



VIDEO: Can psychiatric drugs cause long-lasting negative effects?

VIDEO: Dr. Claire Weekes

 

 

 


#8 Fresh

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Posted 26 August 2014 - 05:52 PM

Hi all , I live in Sydney and would be interested to talk to Four Corners.

      

I've been treated with anti-depressants for around 30 years ( I just turned 50!!) and lived with serotonin syndrome for many years.    This was not recognized and the doctors I was seeing kept increasing the doses and changing me from one to another. 

I have recently been diagnosed by the Black Dog Institute as having Bipolar 2, depression (melancholic) and a panic disorder.    Am now on a mood stabiliser and feeling the best , most calm , I can remember.

  

I'd really like to be put in touch with other members in Australia.    All the best , One


1987-1997 pertofran , prothiaden , Prozac 1997-2002 Zoloft 2002-2004 effexor 2004-2010 Lexapro 40mg
2010-2012Cymbalta 120mg
Sept. 2012 -decreased 90mg in 6months. Care taken over by Dr Lucire in March 2013 , decreased last 30mg at 2mg per week over 3 months. July 21 , 2013- last dose of Cymbalta
Protracted withdrawal syndrome kicked in badly Jan.2014 Unrelenting akathisia until May 2014. Voluntary hosp. admission. Cocktail of Seroquel, Ativan and mirtazapine and I was well enough to go home after 14 days. Stopped all hosp. meds in next few months.
July 2014 felt v.depressed - couldn't stop crying. Started pristiq 50mg. Felt improvement within days and continued to improve, so stayed on 50mg for 8 months.
Began taper 28 Feb. 2015. Pristiq 50mg down to 45mg. Had one month of w/d symptoms. Started CES therapy in March. No w/d symptoms down to 30mg.
October 2015 , taking 25mg Pristiq. Capsules compounded with slow-release additive.
March 2016 , 21mg

#9 altruist

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Posted 26 August 2014 - 09:40 PM

Hi everyone, I too am from Sydney and I am a noob to tapering of the meds. I have just reduced my Cymbalta 60mg capsule by 3 beads and in about 3 days I am about to reduce my capsule by 5% and not 10%(to be on the safe side).

I too would really like to be put in touch with other members in Australia. I was also thinking that starting some anonymous support group online and possibly starting a local group where people meet to talk and support eachother in tapering of meds and anti depressants.

I would also be interested in being interviewed by Four Corners (I would prefer a face to face interview so I can see the exiting world inside the ABC studios).


1998-2003   Highest legal dose of Prozac

2003:2008   Zyprexa, Flupenthyxol, Seroquel, Lovan, Cymbalta (60mg)

2010-2014   Cymbalta (60mg) Solian/Amisulpride (400-800mg)

2014-2015   Cymbalta (60mg) Solian/Amisulpride (400mg)

 

History of withdrawals: Over the years I have gone days without all of my medication [In the first years of medication ('98-2005) therefore causing suicidal thoughts. 

 

Throughout my history above, I have had constant and recently intermittent thoughts of suicide ie 'Suicidal Ideation'.

 

For 18 years I have constantly and countlessly made attempts at going cold turkey and missing 2-7days without medication.
 

http://survivinganti.../3420-altruist/


#10 altruist

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Posted 27 August 2014 - 12:10 AM

I think that there should be a plan to secretly meet and talk about strategies to coming of psych meds and anti depressants whilst trying to support eachother. We just need to hire a venue and all chip in to pay for it each week. Or if that is impactical because we all live in different states, we could do  a Google hangout when we are logged into Google+ and talk more there.


1998-2003   Highest legal dose of Prozac

2003:2008   Zyprexa, Flupenthyxol, Seroquel, Lovan, Cymbalta (60mg)

2010-2014   Cymbalta (60mg) Solian/Amisulpride (400-800mg)

2014-2015   Cymbalta (60mg) Solian/Amisulpride (400mg)

 

History of withdrawals: Over the years I have gone days without all of my medication [In the first years of medication ('98-2005) therefore causing suicidal thoughts. 

 

Throughout my history above, I have had constant and recently intermittent thoughts of suicide ie 'Suicidal Ideation'.

 

For 18 years I have constantly and countlessly made attempts at going cold turkey and missing 2-7days without medication.
 

http://survivinganti.../3420-altruist/


#11 asha

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Posted 27 August 2014 - 01:54 AM

hiya I am in Perth and it sounds interesting. Just joined up yesterday so no history in signature yet. Here it is for now.

 

2012 - 2014 : zoloft 50mg for post natal depression

august 2014 - tapered to 25mg 

august 20th - no medication! 

 

withdrawal: anger, anxiety, faint, exhausted, spaced out. 


2012 - 2014 : zoloft 50mg for post natal depression

august 2014 - tapered to 25mg 

august 20th - no medication! 

 

withdrawal: anger, anxiety, faint, exhausted, spaced out. 


#12 dalsaan

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Posted 27 August 2014 - 01:32 PM

Hi Asha

Welcome to the forum. Can I ask you to start a thread in the introductions forum. All members have their own thread there which they use to reflect on what's happening for them, keep a journal of their symptoms and/or seek advice.

One of the reasons I'd like you to start your own thread is because I'm a little concerned that you have tapered very quickly. In your intro thread it would be good to know a bit more about your taper. How did you get to 25, when did you start, how often did you drop and the same for the 25-0 taper (which looks like it took 3 weeks max). Also, how are you feeling, and is that getting better, worse, staying the same

Dalsaan
Please note - I am not a medical practitioner and I do not give medical advice. I offer an opinion based on my own experiences, reading and discussion with others.On Effexor for 2 months at the start of 2005. Had extreme insomnia as an adverse reaction. Changed to mirtazapine. Have been trying to get off since mid 2008 with numerous failures including CTs and slow (but not slow enough tapers)Have slow tapered at 10 per cent or less for years. I have liquid mirtazapine made at a compounding chemist.
Was on 1.6 ml as at 19 March 2014.
Dropped to 1.5 ml 7 June 2014. Dropped to 1.4 in about September.
Dropped to 1.3 on 20 December 2014. Dropped to 1.2 in mid Jan 2015.
Dropped to 1 ml in late Feb 2015. I think my old medication had run out of puff so I tried 1ml when I got the new stuff and it seems to be going ok. Sleep has been good over the last week (as of 13/3/15).
Dropped to 1/2 ml 14/11/15 Fatigue still there as are memory and cognition problems. Sleep is patchy but liveable compared to what it has been in the past.

>My intro post is here - http://survivinganti...ic/2250-dalsaan

#13 dalsaan

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Posted 27 August 2014 - 01:48 PM

Hi Fresh

Can I also ask you to start a personal thread in the introductions forum and perhaps let us know what support you are looking for here. We focus on people coming off meds, are you doing this, planning too or staying where you are at? That's all up to you, just wondering how we can help

Dalsaan
Please note - I am not a medical practitioner and I do not give medical advice. I offer an opinion based on my own experiences, reading and discussion with others.On Effexor for 2 months at the start of 2005. Had extreme insomnia as an adverse reaction. Changed to mirtazapine. Have been trying to get off since mid 2008 with numerous failures including CTs and slow (but not slow enough tapers)Have slow tapered at 10 per cent or less for years. I have liquid mirtazapine made at a compounding chemist.
Was on 1.6 ml as at 19 March 2014.
Dropped to 1.5 ml 7 June 2014. Dropped to 1.4 in about September.
Dropped to 1.3 on 20 December 2014. Dropped to 1.2 in mid Jan 2015.
Dropped to 1 ml in late Feb 2015. I think my old medication had run out of puff so I tried 1ml when I got the new stuff and it seems to be going ok. Sleep has been good over the last week (as of 13/3/15).
Dropped to 1/2 ml 14/11/15 Fatigue still there as are memory and cognition problems. Sleep is patchy but liveable compared to what it has been in the past.

>My intro post is here - http://survivinganti...ic/2250-dalsaan

#14 DazedNConfused

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Posted 28 August 2014 - 02:05 AM

Hey,

 

I'm in Melbourne, for anyone who is interested.

 

Keen to contact other locals in the same predicament.

 

Amy 


Drug history
  • On and off ADs about 3 times in a 10 year period - All CT with no problems
  • 6 months of ADs during pregnancy (can't remember what type or dosage) - CT a week after birth with no problems
  • 2 years of alcohol abuse - CT with moderate withdrawals
  • Approx 3 weeks of Remeron (Mirtazapine) 15mg - CT with massive withdrawals
  • One dose of Cymbalta 30mg (?) - Caused severe panic attack and binned them
  • Clean of all drugs (except nicotine) since Jan 30 2013

#15 Zip

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Posted 28 August 2014 - 12:36 PM

Hi there.

I am off all medication now after 18 very difficult months of withdrawal. The stories and advice here has been invaluable to me. I am also in Australia and am interested in the Four Corners story.

My very best wishes to everyone still suffering.

Zip

#16 dalsaan

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Posted 28 August 2014 - 01:45 PM

Hi Zip

Welcome to the forum. Could I ask you to start a thread in the intro section to tell us about your withdrawal process, how you did it, what you experienced and how you are going now

Dalsaan
Please note - I am not a medical practitioner and I do not give medical advice. I offer an opinion based on my own experiences, reading and discussion with others.On Effexor for 2 months at the start of 2005. Had extreme insomnia as an adverse reaction. Changed to mirtazapine. Have been trying to get off since mid 2008 with numerous failures including CTs and slow (but not slow enough tapers)Have slow tapered at 10 per cent or less for years. I have liquid mirtazapine made at a compounding chemist.
Was on 1.6 ml as at 19 March 2014.
Dropped to 1.5 ml 7 June 2014. Dropped to 1.4 in about September.
Dropped to 1.3 on 20 December 2014. Dropped to 1.2 in mid Jan 2015.
Dropped to 1 ml in late Feb 2015. I think my old medication had run out of puff so I tried 1ml when I got the new stuff and it seems to be going ok. Sleep has been good over the last week (as of 13/3/15).
Dropped to 1/2 ml 14/11/15 Fatigue still there as are memory and cognition problems. Sleep is patchy but liveable compared to what it has been in the past.

>My intro post is here - http://survivinganti...ic/2250-dalsaan

#17 JanCarol

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Posted 28 August 2014 - 09:03 PM

Hi all!  I'm a Yank now living in Brisbane.

 

I am in USA right now for another week.

 

I am offering some books to ship out - I went a little crazy and ordered duplicates of books that are impossible or expensive to get in Australia.  Please see this thread and PM me ASAP if you want me to bring any of these books to OZ for you and I will ship them out from there.....

 

http://survivinganti...ychiatry-books/

 

JanCarol


Edited by Altostrata, 30 August 2014 - 03:39 PM.
changed USA to Australia

"Easy, easy - just go easy and you'll finish." - Hawaiian Kapuna

 

Holding is hard work, holding is a blessing. Give your brain time to heal before you try again.

 

My suggestions are not medical advice, you are in charge of your own medical choices.

 

A lifetime of being prescribed antidepressants that caused problems (30 years in total). At age 35 flipped to "bipolar," but was not diagnosed for 5 years. Started my journey in Midwest United States. Crossed the Pacific for love and hope; currently living in Australia.   CT Seroquel 25 mg some time in 2013.   Tapered Reboxetine 4 mg Oct 2013 to Sept 2014 = GONE (3 years on Reboxetine).     Tapered Lithium 900 to 475 MG (alternating with the SNRI) Jan 2014 - Nov 2014, tapered Lithium 475 mg Jan 2015 -  Feb 2016 = GONE (10 years  on Lithium).  Many mistakes in dry cutting dosages were made.

 

Currently Lithium Orotate 1.67 mg only.  I will re-evaluate this supplement in 2017.

 

I have been psych drug FREE since 1 Feb 2016!


#18 Angelique76

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Posted 01 September 2014 - 10:04 AM

Hi, I'm 37yo in Brisbane (via Melb & Syd). I finished tapering off Cymbalta (30mg/day 2.5yrs use) in Nov 2013. Withdrawal symptoms fully disappeared by January 2014. Trying to use exercise, mindfulness, diet & sleep to manage depression/anxiety. Definitely have kept myself in a "safe cocoon" and don't generally venture to far out of my comfort zone to keep things in balance. Happy to be included in forums with other Aussies :-) thanks for setting this up Altostrata.

Currently tapering off Cymbalta 30mg.  Adding 4 to 6 x 1000mg Omega3 Flax Oil Capsules per day, 2 to 3 litres of water and regular exercise (cycle/walk/yoga).

 

Have been on and off medication and in therapy for the past 10 years to deal with my inability to understand and react appropriately to "life" and other people. I am currently in the process of removing myself from this stressful city based corporate life and head out to a relaxed paced life in a more tranquil setting (Daintree, Far North QLD, Australia). I hope one day to work with animals in a wildlife park or in the field of marine life conservation  :)


#19 Fuzzylogic

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Posted 08 September 2014 - 04:23 AM

Hi.
I'm in Adelaide. Interested in contact. Have just joined the site and started a topic.
Nov 2012 started on pristiq 50 mg
Late Aug 2014 started taper (skipping every 2nd day)
Early Sep 2014 went back to daily dose but 75% (later realised closer to 60%)
13 Oct 14 1/2 of 50mg tablet split 2/3 in morning 1/3 in evening
14 Nov 1/4 50mg once a day
15 Dec 1/8 daily
26 Dec quit

#20 Janelee

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Posted 08 September 2014 - 05:11 AM

Hi, I'm in Adelaide too. Have just joined the site but I have been using it as a research tool for the past year. I successfully tapered off 100mg Pristiq in Feb 2014 after 6 years and a few false starts. I had terrible withdrawals and brain zaps each time I tried to stop. Eventually I had it compounded by Jeff Ramsey Pharmacy in North Adelaide into 10mg capsules and mixed with a slow release formula supplied by the chemist. I then took it at evenly spaced intervals throughout the day, gradually reducing over an 8 week period. Was doing well until I stopped using THC and alcohol in June this year. Considering further antidepressant use now given the severity of my recent depression but confused about which one to go on after having tried so many. Have been on many SSRI and SNRI over the last 20 years and am concerned about the long term effects on my brain, am wondering if my response to the lack of drugs now might be an extension of withdrawal syndrome and if maybe I should do my best to stick it out. Very grateful for this forum, I have used it a lot.



#21 seb

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Posted 08 September 2014 - 03:19 PM

Hi I live in regional Victoria and would be happy to keep in contact with other Australians.  I have tapered from 100mg to 50mg Pristiq and are looking to go to zero; however I am very frightened and can not make up my mind what is the best way to do this. 


1999 Citalopram 20mg 2000 Came off Citalopram 2002 Citalopram 20mg 2003 Came off Citalopram 2007 Citalopram 20mg 2008 Pristiq 50mg 2009 Pristiq 100mg 2014 Pristiq 50mg 19 September 2014 Switch to Effexor 75mg 28/9/2014 Removed 10 beads from Effexor 75mg 22/9/2014 Removed an extra 10 beads, total of 20 beads from Effexor 75mg 23/10/2014 Removed an extra 10 beads, total of 30 beads from Effexor 75mg 22/11/2014 Removed 10 beads from Effexor 75mg total of 40 beads.6/1/15 Dropped 10 beads, total of 50 beads from Effexor 75mg. 27/1/2015 Removed an extra 10 beads, total of 60 beads from Effexor 75mg. 8/2/2015 Removed 15 extra beads, total of 75 beads. 21/12/2015 - 130 beads from a 75mg Effexor tablet.


#22 FastidiousAssassins

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Posted 10 September 2014 - 08:23 AM

Regarding the Four Corners researcher, I'd also be interested in helping with the program.

 

SSRIs left me with permanent physical damage. Afterwards I sought to understand how this could've happened and I applied my training as a hard scientist to piece together the facts behind SSRIs & other psychopharmaceuticals.
 

I've spent the last several years trying to get this issue taken up by the broader activist subculture in Sydney as the justice issue that it is. I've given a couple of public talks on the topic, and have been involved in some mental health discussions at fairly high levels, including, recently, with a delegation to the NSW Minister for Mental Health.

Alas, it's been next to impossible to get the matter taken seriously. Too many people in activist circles have — for an identifiable set of reasons — little interest in questioning technology of the mental-health-industrial complex.

Likewise, the people with whom I met the Mental Health Minister have — for an identifiable set of reasons — little interest in either the truth, or worse, even picking up a pop-science book and learning about the scientific claims behind the technology that dominates their area of concern. They're only interested in dealing in warm, motherhood statements, not rational assessment or scientific evidence. At the meeting with the minister, this group of people made statements — predictably warm & fuzzy — that nevertheless completely contradicted one another. That's how little they actually think about their position.

For his part, the minister cracked jokes — in a conversation about suicide, no less!

I spent three years trying to tell one prominent mental health campaigner about the risks of SSRIs, only to have him ring me up one day and say "You won't believe what I just found out! [A forensic psychiatrist] just told me...." and he went on to tell me exactly what I'd been telling him for three years as though he'd only just learnt about it.

 

So, given how much effort I've put in to trying to get broader recognition of the problems with psychopharmaceuticals, and given how everyone seems to want to keep their head in the sand, I'd be more than happy to do whatever I can to facilitate this vital discussion's departure from the shadows and its expansion in to the sunlight of broad Australian discourse.


What I say isn't a medical doctor's advice. It comes from my private study of psychopharmacology & social sciences as someone trained as a physicist, who sought to understand the basis of others' standard explanations of his experiences. .

 

● April 2007, started on Zoloft

● Throughout 2007 a bleeding disorder worsened. I suspected it was the Zoloft causing it. In hindsight learned SSRIs are blood thinners, & a 2005 BMJ editorial warned of exactly risk of my experience.

● In hindsight had akathisia the whole time on Zoloft, too. 

● December 2007, started tapering off Zoloft. Within 2 days became extremely violent to others & self, including beating someone up and trashing an office, and as someone with no history of violence.

● Haven't touched SSRIs since then, after being hospitalised for severe injuries.

 

2008/09: tapered off Gabapentin & Amitriptyline (a TCA), the former entailed Benzodiazepine Withdrawal Syndrome. These were prescribed as neuropathic painkillers for injuries sustained, though they may have also been given for their purported psychiatric uses when, in hospital, I refused psych meds. The efficacy of  Gabapentin & Amitriptyline for psychiatry is probably nonsense: Joanna Moncrief's 2004 Cochrane review article showed TCAs to be no better than active placebo, and Gabapentin has a notoriously corrupt trial history. Certainly, as neuropathic pain killers, the neuropathic pain involved in quitting them was evidently a withdrawal effect that could be overcome, not a relapse in to an inherent level of pain.


#23 Altostrata

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Posted 10 September 2014 - 11:52 AM

Thank you, FastidiousAssassins. Welcome to our community. Please start a topic to tell your personal story in our Introductions forum.


This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

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#24 Fuzzylogic

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Posted 13 September 2014 - 07:11 PM

Is there a contact email for the Four Corners Journalist?
Nov 2012 started on pristiq 50 mg
Late Aug 2014 started taper (skipping every 2nd day)
Early Sep 2014 went back to daily dose but 75% (later realised closer to 60%)
13 Oct 14 1/2 of 50mg tablet split 2/3 in morning 1/3 in evening
14 Nov 1/4 50mg once a day
15 Dec 1/8 daily
26 Dec quit

#25 JanCarol

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Posted 09 October 2014 - 05:36 AM

Well, here it is "mental health week" on the ABC.  I haven't been able to face any of the programs, for fear that it's "same old same old" "awareness raising" "contact the people who will give you medicine" "no shame in being sick" "It's like diabetes" stories. 

 

Am I wrong?  Has anyone else tuned into any of the ABC programs?  I have a feeling that the Four Corners thing was for that.  Did anyone of us get interviewed? 

 

Was there anything about our side of the story in Mental Health Week on ABC?

 

Angelique, you are my nearest neighbor, provided you haven't left for the Daintree yet......There are pockets of rural bliss all around Brisbane.  It's the only Aussie City I think I could stand (besides small ones like Port Macquarie or Maleny or such).  I have 1/3 acre of solid rainforest. 

 

I'll leave it up to you, but PM me if you'd like to meet up for a coffee.  I'm on the Northside, and would go as far south as City.


"Easy, easy - just go easy and you'll finish." - Hawaiian Kapuna

 

Holding is hard work, holding is a blessing. Give your brain time to heal before you try again.

 

My suggestions are not medical advice, you are in charge of your own medical choices.

 

A lifetime of being prescribed antidepressants that caused problems (30 years in total). At age 35 flipped to "bipolar," but was not diagnosed for 5 years. Started my journey in Midwest United States. Crossed the Pacific for love and hope; currently living in Australia.   CT Seroquel 25 mg some time in 2013.   Tapered Reboxetine 4 mg Oct 2013 to Sept 2014 = GONE (3 years on Reboxetine).     Tapered Lithium 900 to 475 MG (alternating with the SNRI) Jan 2014 - Nov 2014, tapered Lithium 475 mg Jan 2015 -  Feb 2016 = GONE (10 years  on Lithium).  Many mistakes in dry cutting dosages were made.

 

Currently Lithium Orotate 1.67 mg only.  I will re-evaluate this supplement in 2017.

 

I have been psych drug FREE since 1 Feb 2016!


#26 altruist

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Posted 17 October 2014 - 06:19 AM

I didn't have much desire to watch mental health weeks tv shows being broadcast on abc and abc2,

 

but I did watch some of the posts by ABC's radio station Radio National. Radio National was putting alot of pro-Psychiatry articles and

 

content on their facebook page and, when I criticised them for pushing Psychiatry's diagnoses and drugs, I just got a bunch of

 

people comparing the Pscyhiatric pharmaceutical meds to that of other more valid drugs, ie 'you don't tell people to stop using insulin

 

when they have Diabetes';    .....but how can people even compare something a scientifically verifiable as the existence of

 

Diabetes or Asthma and then compare it to something as flimsy as pseudo scientific as psychiatric diagnoses

 

in the DSM 5 ie. 'Voyeuristic Disorder' or a diagnosis along the lines of 'Sado Masichism Disorder'?


1998-2003   Highest legal dose of Prozac

2003:2008   Zyprexa, Flupenthyxol, Seroquel, Lovan, Cymbalta (60mg)

2010-2014   Cymbalta (60mg) Solian/Amisulpride (400-800mg)

2014-2015   Cymbalta (60mg) Solian/Amisulpride (400mg)

 

History of withdrawals: Over the years I have gone days without all of my medication [In the first years of medication ('98-2005) therefore causing suicidal thoughts. 

 

Throughout my history above, I have had constant and recently intermittent thoughts of suicide ie 'Suicidal Ideation'.

 

For 18 years I have constantly and countlessly made attempts at going cold turkey and missing 2-7days without medication.
 

http://survivinganti.../3420-altruist/


#27 Zip

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Posted 17 October 2014 - 12:56 PM

I agree altruist. If I hear that diabetes analogy one more time I will have a melt down. But how do you get people to understand the impact the medications have and that the research behind them is shoddy? Unless you have had the side effects or withdrawl who would believe it? Despite the extremity of what happened to me, there are only a few people around me who see the real cause. Unfortunately having a mental illness can equal a lack of credibility to narrow minds. The play it safe and take the meds despite the side effects mentality is rife.

#28 calithebold

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Posted 08 November 2014 - 11:27 AM

HI everyone

 

I'm Cali and I'm in Brisbane too. Just wanted to poke my head in *waves* will chat some more later :)

 

Cali


All medications::

Xanax (1995-96), Aropax (1995-96), Mellaril (1997-2000), Efexor (1997-2002), Seroquel (2000-now), Lithium Carbonate (2000-now), Avanza (2002-05), Epilim (2005), Seroquel-XR (2000-now), Zyprexa (2002-14), Raberprazole (2000-now prn), Crestor (2009-15), Gabapentin (2009-12), Lamictal (2010-now), Abilify (2011-now) Lyrica (2012-now), Diazepam (2010-now prn), Saphris (2014), Respiridone (2014), Chlorpromazine (2014) Neulatil (07/2016)

 

Current medications:

Lithium Carbonate 750mg; Seroquel-XR 600mg800mg 04/16, 600mg 04/16, 400mg 04/16, 200mg 04/16, 400mg 04/16, 500mg 04/16; Lamictal 250mg 200mg150mg 04/16; Lyrica 300mg; Abilify 20mg 30mg 11/15 Zoloft 25mg 04/16 ceased after a week due to severe suicidal thoughts; Seroquel 25mg prn; Diazepam 40mg CT Jan 2013, 5mg occasionally, (massive med changes in April 2016 due to a hospital admission).

 

SupplementsFish oil 4000mgMagnesium 100mg Niacinamide 1000mgSlippery Elm 800mg , B12 1000mcg, Zinc 50mg, B6 100mg, Vitamin D 2000IU, Calcium 1200mgP5P 100mg, Vitamin C 2000mg, Vitamin E 400IU

 


#29 Pushinthroughket

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Posted 09 November 2014 - 05:52 PM

I too am in Adelaide, Fuzzylogic and Janelee- I have 'added you as friends' on the site. I am about to start tapering Pristiq for the third time. I am going to do a video diary so contacting four corners, or the like, afterwards was going to be an option for me anyway- I want to get the word out about this awful drug.


-3rd attempt at discontinuing Pristiq-

2011-Started 50mg Pristiq from gp.
After f/n no difference started 100mg. Aggression, depression and suicidal tendencies increased.
2011-first attempt at discontinuation of pristiq; Psychiatrist halved (cut in half) 100mg tablets (contrary to recommendations)to 50mg for first week, replacing with 20mg prozac and a low dosage tranquilizer (apologies I cannot remember the name) 
Withdrawal symptoms included: confusion, disassociation, anxiety, chills, tingling in the face, increased depressed state, anxiety, agitation and aggression. Confusion of what to do with body parts and facial expression and increased heart rate were also noted. 
After 10 days psychiatrist discontinued all medications and started 100mg pristiq again.
2012- Same doctor halved tablet again to 50mg first week and recommended Valium to sleep at night. 
Withdrawal symptoms were same as previous. psychiatrist once again increased dosage back to 100mg after 2 weeks of adverse side effects.
2012-present. I am still on 100mg of Pristiq. I have seen multiple psychiatrists all of whom would not assist in discontinuing pristiq as they all believed I am suffering from ptsd and bpd and needed psychological help-which I have successfully been doing however still none will help with coming off the drug- I truly believe Pristiq is the underlying reason I cannot 'get 100% better' as my aggression increased severely when starting the drug.


#30 Hopefull

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Posted 10 November 2014 - 10:05 PM

hi i am from melbourne and would love to hear from others tapering off ad's for support. is class action possible?

DRUG HISTORY:

 

November 2013- Zoloft, ( Bad reaction).

January 2014 - March 2014 Seroquel.( Quit Cold Turkey).

January2014- Mirtazapine, I was taking 15mg at one stage, reduced to 7.5mg, Pgad reactions to Mirtazapine. Doctor kept increasing it to 37.5mg, until July 2014. No improvement, experiencing panic attacks, on 37.5 mg. I had enough by October 2014. Began tapering.

October 2014- Started tapering Mirtazapine from 37.5mg.

September 2015- Down to 4mg of Mirtazapine. Crashed.

September 16th- Up dosed to 5mg. Held this dose for almost 5 months. Stabilised.

February 2016- Began tapering again. From 5mg to 4.5mg of Mirtazapine. (Rocking the boat, again)! Lol. :(


#31 Fuzzylogic

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Posted 14 November 2014 - 10:36 PM

I have not yet made a complaint to the TGA, but documenting my withdrawal and will do so once I am off Pristiq. Has anyone contacted them with a complaint and had any feedback?
Nov 2012 started on pristiq 50 mg
Late Aug 2014 started taper (skipping every 2nd day)
Early Sep 2014 went back to daily dose but 75% (later realised closer to 60%)
13 Oct 14 1/2 of 50mg tablet split 2/3 in morning 1/3 in evening
14 Nov 1/4 50mg once a day
15 Dec 1/8 daily
26 Dec quit

#32 Hopefull

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Posted 08 December 2014 - 10:39 PM

hi can someone please advise me of a top psychatrist in melbourne who is famillier with withdrawral symptoms. i am currently seeing a psychiatrist at the melbourne clinic in richmond. not sure about him.

DRUG HISTORY:

 

November 2013- Zoloft, ( Bad reaction).

January 2014 - March 2014 Seroquel.( Quit Cold Turkey).

January2014- Mirtazapine, I was taking 15mg at one stage, reduced to 7.5mg, Pgad reactions to Mirtazapine. Doctor kept increasing it to 37.5mg, until July 2014. No improvement, experiencing panic attacks, on 37.5 mg. I had enough by October 2014. Began tapering.

October 2014- Started tapering Mirtazapine from 37.5mg.

September 2015- Down to 4mg of Mirtazapine. Crashed.

September 16th- Up dosed to 5mg. Held this dose for almost 5 months. Stabilised.

February 2016- Began tapering again. From 5mg to 4.5mg of Mirtazapine. (Rocking the boat, again)! Lol. :(


#33 ang

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Posted 10 December 2014 - 09:25 PM

Well done everyone!  I live in Albany, Western Australia.  When I first got depressed, my ex did not want to call anyone locally,   (probably embarrassment).  I just didn't want to get out of bed, and drinking too much under stress, did not help.  He sent me to my sisters place, near Perth.  She introduced me to the wonders of modern psychiatry, and convinced me how unwell I was, with a genetic link, or some crap.  The old "chemical imbalance".. That was about 20 years ago.  on an off tablets, as I was pregnant three times after this.  Second baby died due to heart problems caused by the antidepressants. (Did not give em up quickly enough)....  One thing I have learnt is when I went off antidepressants while pregnant, I was quite happy and healthy, after the birth, a rebound effect... Just like what I am going through now.   It is like all the pregnancy hormones cope with everything, but once they are out of you system, it is like I just gave up the drugs yesterday.  Wish I had known that then  :)  

Anyway, yes I would be happy to participate.  If it helps others before they have to go through hell and back, and lose everything, as I have, to be their old self....


ROOT CANAL done around 1990.

1992 Dothiepin 375mg 8 weeks, exhaustion/depression.  Serotonin syndrome, oh yes!  seizures . Fell pregnant, 3rd baby, Nitrous Oxide, 3 weeks mental hospital pp psychosis. zoloft tegretol.
Feb 1996 ct tegretol, tapered Zoloft 8 weeks. as (unexpectedly)  pregnant. Steven died after 3 days.(Zolft HLHS baby).  98 had run in with Paxil, 2 tablets, 3 weeks taper, survived.
2005..menopause? exhausted again. Zyprexa, mad in three days, fallout....  Seroquol, Effexor, tegretol,   and 8 years of self destruction. Failed taper.
Damn 1/4 valium... nuts again! .fallout, zoloft 100mg  seroquol 400mg mirtazapine 45 mg  tegretol 400mg.  Mid 14 3 month taper. Nov 14 CRASH.
Mid 15 ....   75mg  seroquel,  3 x 1800mg SJW  2 week window end of December followed by 6 week wave
5/2 68mg seroquel, 2.5 x 1800mg SJW::::20/2 61mg seroquel, 2.5 x  SJW::: 26/2 54mg seroquel, 2 x SJW::::21/3 43mg seroquel, 1 x 2700SJW :::: 23/4 36mg seroquel 1 x 1800 SJW
15/5 33mg seroquel, 1 x SJW::::   28/5 30mg seroquel, 1 x SJW::::;  18/6 25mg seroquel 1/2 SJW::::, 11/7 21mg seroquel 1/2 SJW::, 26/7 18mg seroquel 1/2 SJW:::, 9/8 12mg seroquel :::, 16/8 6mg seroquel ;;;;, 12/9 0 jump.

23/9  3mg.....,                     27/9 0mg.  Reinstated, 6mg, then 12mg...............  took for about 6 days.  LIGHTBULB MOMENT,  I have  MTHFR 2x mutations.  CFS and Morgellans, testing in progress.

Started MMS protocol 3/12/16  ( 5 days, on hold now )  waiting other testing....  9/12/16  1 x SSW per day, following decent doctor.  1 x hydroxo B12 injection today.

Found dentist, who probed, infection around that tooth, Xrays show nothing much, but it is full of infection. One antibiotic and wow, I feel so much better, tooth out tomorrow!


#34 ang

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Posted 10 December 2014 - 09:28 PM

I went to a local psychiatrist to give up the antidepressants.  Outcome?  Ended up on more of em. convinced me that I would never get off em.  Anyhow I did manage to get off efexor, and my blood pressure and damaged liver went back to normal. I wish you luck.  My advice is to get what you think you may need in scripts, and rely on a good forum. 


ROOT CANAL done around 1990.

1992 Dothiepin 375mg 8 weeks, exhaustion/depression.  Serotonin syndrome, oh yes!  seizures . Fell pregnant, 3rd baby, Nitrous Oxide, 3 weeks mental hospital pp psychosis. zoloft tegretol.
Feb 1996 ct tegretol, tapered Zoloft 8 weeks. as (unexpectedly)  pregnant. Steven died after 3 days.(Zolft HLHS baby).  98 had run in with Paxil, 2 tablets, 3 weeks taper, survived.
2005..menopause? exhausted again. Zyprexa, mad in three days, fallout....  Seroquol, Effexor, tegretol,   and 8 years of self destruction. Failed taper.
Damn 1/4 valium... nuts again! .fallout, zoloft 100mg  seroquol 400mg mirtazapine 45 mg  tegretol 400mg.  Mid 14 3 month taper. Nov 14 CRASH.
Mid 15 ....   75mg  seroquel,  3 x 1800mg SJW  2 week window end of December followed by 6 week wave
5/2 68mg seroquel, 2.5 x 1800mg SJW::::20/2 61mg seroquel, 2.5 x  SJW::: 26/2 54mg seroquel, 2 x SJW::::21/3 43mg seroquel, 1 x 2700SJW :::: 23/4 36mg seroquel 1 x 1800 SJW
15/5 33mg seroquel, 1 x SJW::::   28/5 30mg seroquel, 1 x SJW::::;  18/6 25mg seroquel 1/2 SJW::::, 11/7 21mg seroquel 1/2 SJW::, 26/7 18mg seroquel 1/2 SJW:::, 9/8 12mg seroquel :::, 16/8 6mg seroquel ;;;;, 12/9 0 jump.

23/9  3mg.....,                     27/9 0mg.  Reinstated, 6mg, then 12mg...............  took for about 6 days.  LIGHTBULB MOMENT,  I have  MTHFR 2x mutations.  CFS and Morgellans, testing in progress.

Started MMS protocol 3/12/16  ( 5 days, on hold now )  waiting other testing....  9/12/16  1 x SSW per day, following decent doctor.  1 x hydroxo B12 injection today.

Found dentist, who probed, infection around that tooth, Xrays show nothing much, but it is full of infection. One antibiotic and wow, I feel so much better, tooth out tomorrow!


#35 ang

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Posted 10 December 2014 - 09:35 PM

The message some-one mentioned about highest dose legal.  I was told that any dose is fine, as long as prescribed by a psychiatrist. My doc was always ringing through for an authority script....  (Gee I thought I must be really, really bad).   My first dothiepin dose was 375 mg.  that's where it all started for me. Believing the  lies.


ROOT CANAL done around 1990.

1992 Dothiepin 375mg 8 weeks, exhaustion/depression.  Serotonin syndrome, oh yes!  seizures . Fell pregnant, 3rd baby, Nitrous Oxide, 3 weeks mental hospital pp psychosis. zoloft tegretol.
Feb 1996 ct tegretol, tapered Zoloft 8 weeks. as (unexpectedly)  pregnant. Steven died after 3 days.(Zolft HLHS baby).  98 had run in with Paxil, 2 tablets, 3 weeks taper, survived.
2005..menopause? exhausted again. Zyprexa, mad in three days, fallout....  Seroquol, Effexor, tegretol,   and 8 years of self destruction. Failed taper.
Damn 1/4 valium... nuts again! .fallout, zoloft 100mg  seroquol 400mg mirtazapine 45 mg  tegretol 400mg.  Mid 14 3 month taper. Nov 14 CRASH.
Mid 15 ....   75mg  seroquel,  3 x 1800mg SJW  2 week window end of December followed by 6 week wave
5/2 68mg seroquel, 2.5 x 1800mg SJW::::20/2 61mg seroquel, 2.5 x  SJW::: 26/2 54mg seroquel, 2 x SJW::::21/3 43mg seroquel, 1 x 2700SJW :::: 23/4 36mg seroquel 1 x 1800 SJW
15/5 33mg seroquel, 1 x SJW::::   28/5 30mg seroquel, 1 x SJW::::;  18/6 25mg seroquel 1/2 SJW::::, 11/7 21mg seroquel 1/2 SJW::, 26/7 18mg seroquel 1/2 SJW:::, 9/8 12mg seroquel :::, 16/8 6mg seroquel ;;;;, 12/9 0 jump.

23/9  3mg.....,                     27/9 0mg.  Reinstated, 6mg, then 12mg...............  took for about 6 days.  LIGHTBULB MOMENT,  I have  MTHFR 2x mutations.  CFS and Morgellans, testing in progress.

Started MMS protocol 3/12/16  ( 5 days, on hold now )  waiting other testing....  9/12/16  1 x SSW per day, following decent doctor.  1 x hydroxo B12 injection today.

Found dentist, who probed, infection around that tooth, Xrays show nothing much, but it is full of infection. One antibiotic and wow, I feel so much better, tooth out tomorrow!


#36 dcrmt

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Posted 17 December 2014 - 05:46 AM

Just saw this, I live in Brisbane, formerly Canberra.

 

The Four Corners thing sounds bloody awesome. I hope they go ahead with it.







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