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Great Britain members, please check in here

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#37 clarabella79

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Posted 18 May 2015 - 07:58 AM

I'm in North East Derbyshire :)


1st Sep '14 - reduced to 18mg from 20mg; 15th Sep - 17mg; 29th Sep -16mg; 21st Oct - 15mg; 10th Nov - 13.5mg; 1st Dec - 13mg;

11th Dec - 12.5mg; 5th Jan '15 - 12mg; 20th Jan - 11.5mg; 11th Feb  - 11mg; 26th Feb - 10.5mg; 5th Mar - 10mg; 1st Apr - 9mg; 29th Apr - 8.5mg; 29th May - 8mg; 18th Jun - 7.7mg; 9th July - 7.4mg; 11th Aug - 6.8mg; 2nd Sep - 6.5mg; 12th Sep - 6.3mg; 26th Sep - 6mg; 10th Oct - 5.7mg; 30th Oct - 5.3mg; 28th Nov - 4.8mg; 20th Dec - 4.4mg. 

Medication History:

January 1997: 20mg Paroxetine (Seroxat) daily for depression with anxiety. CT withdrawal attempted 1997 and 1999. Dividing pills withdrawal attempted 2002. Liquid/pill 13 month tapered withdrawal 2007/8. Started to become very ill days after CTing at 2mg. Prescribed other antidepressants (CitalopramMirtazipine) but neither were as effective and had more side effects, so Paroxetine 20mg reinstated June 2008.


#38 englishman

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Posted 31 May 2015 - 12:13 AM

I'm in the south east in sussex.


2000 put on amisulpride for psychosis

got fatter

2007 put on prozac

loss of libido

flat emotions

got obese

2014 offered testosterone to counter side effects of amisulpride

still obese

2015 abruptly came off testosterone AND prozac

still on anti-psychotic


#39 darktimes

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Posted 14 June 2015 - 01:14 PM

Im not in the uk im from across the irish sea southern ireland

#40 Mikey1975

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Posted 29 June 2015 - 08:38 AM

I'm in Bridgend South Wales

#41 greenpulse

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Posted 29 June 2015 - 10:44 AM

Im in Nottingham at the moment :)
Also have a base in Cheshire, near Crewe
Began Prozac oct 2013 increasing up to 60mg for 5 months before beginning reduction in jumps of 20, stopped at 20mg in Jan 2015 ( total 14 months)
Antipsychotic for 1 month 2011
Sertraline for 3 months in 2009
Prozac up to 60 for 6 months 2005

#42 Katy91

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Posted 30 June 2015 - 11:50 AM

Service user needed to join the Programme Advisory Group for the Research into Antipsychotic Discontinuation And Reduction (RADAR) study Introduction We are looking for a mental health service user to join the Programme Advisory Group for a new and exciting six year study. The study is about the process of discontinuing or reducing antipsychotic medication. The study lead is Dr Joanna Moncrieff from UCL. The research will take place in London and Essex. What is the Programme Advisory Group? The function of the Advisory Group is to provide external scrutiny to this NIHR Programme Grant for Applied Health funded research study. The chair of the group is Prof Tom Craig from the Institute of Psychiatry Psychology and Neuroscience (IOPPN). The Programme Advisory Group will meet twice a year in London. What will be required? The following will be required of Advisory Group members:  Attending face to face meetings of the group in London twice a year. Meetings will last between three and four hours (with breaks)  Reading papers ahead of meetings and with other group members holding the study team to account.  Constructively raising any concerns that you might have and offering possible solutions.  Responding to occasional correspondence between meetings of the group by email. Reimbursement for your time will be offered and all reasonable travel expenses will be covered. Applicants will need to be comfortable in using email and have some experience of sitting on similar groups for other mental health research studies. Some knowledge of mental health research will also be required. Experience of taking anti-psychotic medication is essential. The research will focus on people with a diagnosis of schizophrenia and so we are looking for people with relevant lived experience. How to apply To apply please complete the application form and return it to Thomas Kabir (email: thomaskabir@mcpin.org) by 5pm on July 17th 2015. For more information please contact the study lead Dr Joanna Moncrieff (email: j.moncrieff@ucl.ac.uk)


Olanzapine 10mg  Dec 2007 - Jun 2008

Olanzapine 10mg Sep 2009 - Apr 2010

Olanzapine 10mg Aug 2010 - April 2011

Olanzapine 10mg Jan 2012 - Jun 2012

Lithium 800mg Jun 2012 - Dec 2013

Lorazapam 1mg Nov 2012 - Dec 2013

Diazepam 2mg Nov 2012 - Dec 2013

Olanzapine 20mg Jan 2014 to May 2014

Olanzapine 5mg May 2014 - May 2015

tapering 0.1mg every 7 days

 

1mg melatonin


#43 Katy91

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Posted 30 June 2015 - 11:52 AM

I got the above from the bulletin which anyone can sign up for here if you're interested in mental health research generally:

 

http://mcpin.org/res...s/our-bulletin/


Olanzapine 10mg  Dec 2007 - Jun 2008

Olanzapine 10mg Sep 2009 - Apr 2010

Olanzapine 10mg Aug 2010 - April 2011

Olanzapine 10mg Jan 2012 - Jun 2012

Lithium 800mg Jun 2012 - Dec 2013

Lorazapam 1mg Nov 2012 - Dec 2013

Diazepam 2mg Nov 2012 - Dec 2013

Olanzapine 20mg Jan 2014 to May 2014

Olanzapine 5mg May 2014 - May 2015

tapering 0.1mg every 7 days

 

1mg melatonin


#44 btdt

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Posted 30 June 2015 - 08:56 PM

If there is a UK thread maybe it would be a good idea to post it there since people have to live in the UK to participate. 


WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivinganti...ng-myself-btdt/

There is a crack in everything ..That's how the light gets in :)


#45 Altostrata

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Posted 01 July 2015 - 10:58 AM

merged with the Great Britain topic.


This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

#46 Rosie20yearsago

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Posted 19 July 2015 - 01:30 PM

Hi I am based in the Wirral, near Liverpool
<p>Became depressed and anxious after persistent bulliying at school. started with fluoxetine 20 years ago(1995), when I was 21, was changed to seroxat(citalopram) 20 mg after a couple of years or so because of side effects. This enabled me to get through university and beyond but whenever I tried to stop, usually tapering, I never got past one year off meds. This time I stopped around Christmas 2014. I did taper but very fast I guess, from 40 to 30 to 20, then 10, then 5(I think), over a few months. I cannot remember precisely. I stopped while moving from the Netherland to Holland so am no longer under any medical supervision. However I am trying a reinstatement; I tried 1mg from the 29th of June for ten days, 2 mg from the 11 th July 2015, 1.8mg from 10th Aug, 1.6mg from 16th Sept.

#47 Rosie20yearsago

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Posted 19 July 2015 - 01:31 PM

Hi I am based in the Wirral, near Liverpool
<p>Became depressed and anxious after persistent bulliying at school. started with fluoxetine 20 years ago(1995), when I was 21, was changed to seroxat(citalopram) 20 mg after a couple of years or so because of side effects. This enabled me to get through university and beyond but whenever I tried to stop, usually tapering, I never got past one year off meds. This time I stopped around Christmas 2014. I did taper but very fast I guess, from 40 to 30 to 20, then 10, then 5(I think), over a few months. I cannot remember precisely. I stopped while moving from the Netherland to Holland so am no longer under any medical supervision. However I am trying a reinstatement; I tried 1mg from the 29th of June for ten days, 2 mg from the 11 th July 2015, 1.8mg from 10th Aug, 1.6mg from 16th Sept.

#48 302zoloft

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Posted 25 August 2015 - 02:45 PM

I am in Hertfordshire and I found life works in Surrey to be an amazing help getting off ads and I called the Bristol tranquilliser project too for support. Good this helps some UK residents!

50mg daily Zoloft (Sertraline) since March 2011 (For Panic Attacks/Anxiety)
25mg since Nov 2014
0mg since 21st Jan 2015 
Thurs 29th jan; took a one-off dose 20mg fluoxetine in an effort to get rid of withdrawal side effects
Sat 31st jan; in desperation took one off dose 50mg sertraline. Got very anxious and spiraled, so was given 5mg Valium to take every four hours for the weekend until psych appt mon
Mon 2nd feb; psych told me to take 75mg venlafaxine and 1mg lorazepam three times a day
Tuesday 3rd feb; took 12.5mg sertraline and 1mg lorazepam but couldn't take it the full day as instructed by doc.
Plan to follow advice from here and take 12.5mg sertraline daily. I also take b vitamin complex and omega fish oils daily (stopped fish oils and b vits 4th feb as advised. Continuing with 12.5mg sertraline)


#49 Obstacle1

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Posted 19 September 2015 - 01:14 PM

I am in Hertfordshire and I found life works in Surrey to be an amazing help getting off ads and I called the Bristol tranquilliser project too for support. Good this helps some UK residents!

 

That sounds interesting. What kind of help do they offer? It always seemed to be me that places like that recognise how real addictions to recreational drugs are but didn't offer much help for people affected by psychiatric drugs?


Began paxil/seroxat 20mg in 2001 for social anxiety, age 14

Switched to liquid and at some point tapered down to around 7ml(14mg)

2007 tapered too rapidly down to 4ml had severe depression and anxiety for a year, stabilised at 6.6ml(13.2mg), same dose ever since

Have had 2 negative reactions then, one in 2010 and one in 2014. Currently recovering from this latest one, whole array of symptoms that come and go


#50 pocketnurse

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Posted 20 September 2015 - 06:40 AM

Count me in on this. will help in any way I can. 

 

I am in Hampshire not too far from Southampton.

 

 

x



#51 Georgina

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Posted 22 September 2015 - 11:40 AM

Hi all, I am from London. Thanks
<p><p><p><p>Efexor at age 16 for a few years. I am now 35. Took a 'street' drug at 18 and suffered massive panic attacks. Epilim for approximately one year. At age 22 put on to Sertraline 100mg - took that for approx. 8 years. Dropped to 50mg around age 30. No problems. Tried to taper off 50 mg at age 32 (3 months taper). Was fine for a few months and then had massive panic, anxiety, depersonalisation, health anxiety etc. Went to 100mg for a few months. Dropped back to 50mg. Been on 50mg for past three years. Tried to taper again; went to 37.5 mg, then 25mg and started feeling weird so went back to 50mg. Tried 37.5mg again, found this site and read it's best to taper in 10% increments so put myself up to 45mg on Monday. <p>40mg since April 2015. Dropped to 36mg 06 Sept 2015. Dropped to 34mg 18 October (5% drop). Going to stay on for six weeks. Dropped to 32mg 29 November (5% drop). Dropped to 30mg 10 January 2016 (5% drop). Dropped to 28mg 31 January (5% drop). Dropped to 26mg 20 March (5% drop). Dropped to 25mg 08 April. Dropping to 24mg 17 April. Drop to 23mg 08 May. Drop to 22mg 21 May. Drop to 21mg 02 June 2016. Dropped to 20mg 17 June. Dropped to 19mg 09 July. Dropped to 18mg 20th July. Dropped to 17mg 18th August. Dropped to 16mg 25th September 2016. Back up to 17mg 10 October 2016. Back up to 19mg 20th October 2016. Back up to 20mg 27 October 2016.

#52 Minny

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Posted 29 September 2015 - 11:59 PM

Hi I am from Lancashire

On Citalopram since approx. 2003. Started on 10 mg and gradually increased to 60mg.  Tried to come off many times but without the knowledge of tapering and always told that there should be no problem coming off these drugs!!!!!!  Overdose on this drug in 2011 but still stayed on them but decreased to 40mg.  2012-13 30mg -20mg.  Since October last year started cutting down by taking 10mg one day and 20mg the next this is what my GP advised.  I started FINALLY doing my own research.  Am now on approx. 8mg a day . Currently on 3mg Cipramil


#53 Tilly

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Posted 01 October 2015 - 03:23 PM

Hi,

 

I am on the border of Derbyshire, Leicestershire & Nottinghamshire.

 

I would like to set up a support group in the new year. Please PM me if you would be interested in attending.

 

Tilly x


1999 - 2004 Paroxetine 20mg  -> 2004 - 2007 Citalopram 20mg -> 2007 -  short term Trazedone use (insomnia) -> 2007 - 2009 Fluoxetine 20mg  ->

2009 - Jan 2012 Citalopram 20mg  (Spring / Summer 2012 protracted withdrawal & related agoraphobia) -> 2012 - September Restarted Citalopram - unbearable start up effects. Discontinued in under 1 week -> Oct 12 -   October 2014 Escitalopram - 10mg prescribed. Started on 5mg and worked up to 10mg in 2.5mg increments  -> Oct 2014  - 5mg; 30/03/15 2.5mg; 15/04/15 3.5mg; 20/05/15 2.9mg;  19/09/15 2.8mg; 30/10/15 2.7mg; 13/11/15 2.6mg. Holding until March.

Diet:  mostly pescatarianl & lots of veg. Weekly offal for b vitamins.  Turmeric, nigella seeds, avocados, apple cider vinegar, coconut products daily. Lots of fluids: water, lemon juice, coconut water, herbal & green tea (decaffeinated).

Supplements: vitamin C 4000mg, Omega 3 fish oil - high DPA & EHA, vitamin E 400iu, vitamin D3 5000mg (Winter only - from sun in Spring / Summer), probiotics.

Current Symptoms: chronic fatigue, erratic sleep, extreme photophobia, eye floaters, noise sensitivity, tinnitus, cognitive & speech difficulties, dizziness, irregular gait, poor co ordination, severe facial and upper body muscle tension, head and neck pressure.

Coping Strategies: good nutrition, cooking, gardening & growing my own food, cycling, dancing, yoga, photography, sewing & creative pursuits, self massage, pampering, meditation, journalling, nature, cuddling cats & humans, laughter & humour, gratitude, self care, aromatherapy, audio books, word games & believing in myself, my potential and my future.

 

"Everything I need is within me" - Shakti Gawain


#54 Cooper

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Posted 20 October 2015 - 09:09 AM

Hi

I live in Haslemere on the Hampshire/ Surrey border, would be pleased to meet up with anyone who would like to share their experiences. Would be great to meet someone who can actually relate to my own situation
Been on citalopram 40mg for 10 years then 25mg sertraline for just under a year

#55 Julz82

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Posted 25 November 2015 - 07:02 AM

Another member from Lancashire  :)  (North East England)


2004: Anorexia & Depression -> polydrugged as a result  :wacko:
 
Venlafaxine(MR): 75mg
Escitalopram: 60mg ...
Diazepam: 10mg bedtime prescribed, no c/o
Clonazepam: 4mg
 
2010: New Life in the UK - psychologically much better
GP wants to lower Escitalopram (side effects on heart) -> 2011 to 2014: come down from 60 to 15mg in 5mg steps (I had no idea)
January 2014 coming 20mg to 15mg: withdrawal symptoms seem to disappear but plagued with exhaustion ever since.
 
December 2014 I tell my GP I want to withdraw from clonazepam (bz) - found BenzoBuddy Forum and tapering since
 
K Direct Taper 2 doses/day
 
12 Dec 2014 to 18 Feb 2015 down to  3mg K (Cut'n'hold method)
20 Mar:   start Daily Dry Micro Taper
8 July:    2.00mg Hold
Oct:         symptoms revving up
25 Oct:   Micro-tapering here we go again!
22 May:  1.00mg (Holding)
 
No longer anorexic nor depressed, just flat and exhausted.
 
Varied balanced diet, no processed/refined foods. Plenty water.
Multivitamins - B and C supplements - D3 55 micrograms
Magnesium Citrate: 400mg 
 
 
 

#56 Julz82

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Posted 26 November 2015 - 12:44 AM

Woops Lancashire that's North West...  :D


2004: Anorexia & Depression -> polydrugged as a result  :wacko:
 
Venlafaxine(MR): 75mg
Escitalopram: 60mg ...
Diazepam: 10mg bedtime prescribed, no c/o
Clonazepam: 4mg
 
2010: New Life in the UK - psychologically much better
GP wants to lower Escitalopram (side effects on heart) -> 2011 to 2014: come down from 60 to 15mg in 5mg steps (I had no idea)
January 2014 coming 20mg to 15mg: withdrawal symptoms seem to disappear but plagued with exhaustion ever since.
 
December 2014 I tell my GP I want to withdraw from clonazepam (bz) - found BenzoBuddy Forum and tapering since
 
K Direct Taper 2 doses/day
 
12 Dec 2014 to 18 Feb 2015 down to  3mg K (Cut'n'hold method)
20 Mar:   start Daily Dry Micro Taper
8 July:    2.00mg Hold
Oct:         symptoms revving up
25 Oct:   Micro-tapering here we go again!
22 May:  1.00mg (Holding)
 
No longer anorexic nor depressed, just flat and exhausted.
 
Varied balanced diet, no processed/refined foods. Plenty water.
Multivitamins - B and C supplements - D3 55 micrograms
Magnesium Citrate: 400mg 
 
 
 

#57 Laura1981

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Posted 11 December 2015 - 12:52 PM

Hi all, 

 

I made a "Europe check in thread" where we can post European updates. 

 

Feel free to subscribe. 

 

http://survivinganti...-check-in-here/

 

Cheers, 

 

Laura


Feb 2015 Took venlafaxine for 5 days only... experienced withdrawal that made me completely non-functional

Mar 2015 took under 1mg of Sertraline for 10 days in an attempt to combat Venlafaxine withdrawal. Got adverse reactions. 

After stopping Sertraline, withdrawal got much worse. New, horrific symptoms. 

June 2015 Still non-functional but slowly getting better. Still brain zaps, migraines, sweating, heart racing, depression, crying spells

September 2015: 24/7 brain zaps, twitches in the face, no concentration, bad memory, language skills deteriorating. 

 

Profile feed: http://goo.gl/3g2GRn

 

Sign this petition for a blackbox warning on Prozac in Ireland:

https://www.change.o...g-no_src-no_msg


#58 AprilShowers

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Posted 11 December 2015 - 03:58 PM

I'm near London. Probably won't be into meeting up (too anxious to get out at the moment anyway) but happy to share info about any UK issues. 


2000: Use of venlafaxine for moderate depression for two years. Tapered off with no major problems. 

2010: Venlafaxine 5 years, doses between 75-150-300. Tolerated but only partially stabilised the severe depression & escallating side effects. 

Adverse reactions to citalopram (tried before venlafaxine), sertraline & mirtazapine (tried after venlafaxine became problematic) with suicidal ideation caused. 

2014: Adverse reaction to one prozac pill which I tried to begin taking in order to stabilise the withdrawal and actually made it horrendously worse. My body & brain went on fire two hours after taking the pill and severe WD began.

Spring 2014: CEASED ALL ANTIDEPRESSANTS. Did take occasional lorazepam (two weeks at first followed by the occasional half tablet at night sometimes.

2014: WD: living hell for five months, gradually improved a little by little for almost a year and a half but with frequent heart palpitations, weakness and anxiety and very poor sleep. Struggled to do things both physically & mentally but was improving slowly. 

2015: Currently having a WD relapse with full symptoms caused by anxiety/panic and possibly triggered beyond initial anxiety resurgence by a couple of small half doses of Lorazepam that seem to have restarted all the WD symptoms I had in the beginning & ruined all the progress I had made. 

 

Current Supplements: Omega 3 & Vitamin E & Vitamin C (some magnesium in tiny doses or very mild epsom salt baths) & pre/probiotics. 

 


#59 Juwel

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Posted 10 January 2016 - 09:10 AM

Hovering close between staffordshire and derbyshire.

 

So many in the Midlands (so near and yet so far)


RECENTLY: Stopped quetiapine 50 m/r CT 28th October 2015 (Tried one again end of December2015 - couldnt tolerate effect);

Tried to taper 2mg Diazepam on and off during October/November 2015: unsuccessful so stopped CT December 2015;

 

JANUARY 2015 was 50 days drug-free from effexor (tapered over 6 months - between July 2013 and January 2014) and depakote (CT in December2014/January 2015- I think);

 

Continued thru 2014 to use over the counter antihistamines for sleep,occasional Temazepam and Zopiclone;

Summer 2014 Citalopram for 6 weeks (caused burning hands and blunted emotions); stopped pretty abruptly, on advice of the then psychiatrist (still had no idea about tapering and WD)

PREVIOUSLY: on about 50 antidepressants, antispychotics and mood stabilisers, sedatives and sleepers from 1989. ALL OF THIS LONG BEFORE WD AND TAPERING WERE MUCH OF A KNOWN ENTITY

 

Diagnoses/labels: anorexia +depression; morphed into bipolar; morphed into personailty disorder(s)


#60 Africa

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Posted 10 January 2016 - 10:42 AM

Hi, I live in Devon which is in the South West


<p>February 2009 started taking Paroxetine 10 mg everyday. Started reducing very slowly in February 2015.15 December 2015 Was on 5 mg Paroxetine 4 days a week and 7.5 mg 3 days a week. Severe withdrawal. Back to 7.5mg everyday from today 25 March 2016 starting 7.1 mg everyday (stayed on this dose for 8 weeks) 23 May 2016 starting 6.7 mg everyday (stayed on this dose for 6 weeks) 4 July 2016 starting 6.3 mg everyday (stayed on this dose for 8 weeks). 2 September 2016 starting 5.9 mg (stayed on this dose for 10 weeks) 9 November 2016 starting 5.6 mg (stayed on this dose for 8 weeks) 4 January 2017 starting 5.3 mg

#61 Terry4949

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Posted 13 January 2016 - 10:46 AM

I am very interested in any support group and any up dates via email , am in bedfordshire
100mg Effexor 2000 untill jan 2015 severe withdrawals . Tapered 4weeks.
Jan to end of Feb 4 weeks on 15mg mirtazapine 20mg quetiapine , tapered of both 2 weeks , severe withdrawals , still some from Effexor possibly
End of Feb 2015 to end of July 30mg citolapram tapered 2weeks severe withdrawal , anxiety high , bouts of sever depression , severe emotional moods
Currently on 30mg mirtazapine appx 5 months , high anxiety, March cut dose 22.5 mg going on to liquid still no improvements with the depression , also started sept 2015 200mg pregabalin , currently on 22.5mg mirtazapine tablet form doing really badly. Cut beginning of May remeron 20mg still bad anxiety,August 15mg remeron ,100mg pregablin , severe depression headaches anxiety , oct 2016 doctor stoped pregablin c/t , 15mg mirtazapine still no let up in physical symptoms ,high anxiety ,Nov 2016 remeron 13.5 mg

#62 Gumboot

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Posted 13 January 2016 - 12:55 PM

I'm in Liverpool.


Citalopram 2006 to Nov 2015, initially 10mg, mostly 20mg.
Stopped in early Nov 2015, much more anxious afterwards.
Jan 2016, reinstated Citalopram at 10mg.
March 2016, upped dose to its former level of 20mg daily.
April 2016, Propranolol 40mg prescribed as needed.
June 2016, Diazepam 2mg prescribed as needed.
July 2016, Citalopram stopped, replaced with Venlafaxine 75mg daily.
August 2016, Venlafaxine upped to 150mg daily.

#63 kiki2015

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Posted 27 February 2016 - 11:31 PM

I'm in London- central. Very interested

#64 Junglechicken

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Posted 04 March 2016 - 09:12 AM

Just moved back from Canada.

 

Now living in the Southwest - Somerset, near Yeovil.


Feb 2014 -Cipralex/Escitalopram 10mg dailyJune 2015 - Started taper, 5mg every other day July 2015 - 5mg every 2 days August 2015 - 5mg every 3 days September 2015 - 5mg every 4 daysSept 14th - Completed tapering, but at 7 weeks "drug free" I suffered serious WD symptoms as a consequence of "incorrect" tapering.Nov 25 2015 - Re-instated Cipralex @ 2.5mg daily. WD symptoms disappeared over a few days.Have been on this dose ever since and am experiencing "windows" and "waves".Nov 15th 2016 Re-start regular counsellingJan 19th 2017 Start CBT<p>Plan to re-start taper (liquid Cipralex/Escitalopram) Jan 2017 Homeopathic Treatment starts 4th Jan 2017.

#65 Marmite

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Posted 26 March 2016 - 12:43 PM

Check out the current events forum on here!

http://survivinganti...uk/#entry215784

 

Following an investigation into dependency caused by prescribed medications, The Council for Evidence Based Psychiatry in the UK have convinced the British Medical Association that they need to consider providing withdrawal clinics and several other key measures for people wishing to withdraw from prescribed medications such as benzos, z drugs and antidepressants.

 

The article which comments on the BMA investigation can be found on the CEP website at www.cep.org.uk  and also in the Events forum on here under my post.

Check it out!

 

As this has been debated in parliament and championed by the All Party Parliamentary Group for this matter, it would be helpful if we could all write to our MPs offering our own stories and peer support.  The article on the CEP website talks about finding peer supporters to tell their stories and to offer support to others in similar situations.  This practice is used a lot by the NHS in mental health atm, with peer supporters being recruited into many areas of mental health care. You may have seen the roles advertised? Perhaps this will be the avenue explored for withdrawal support ?  It seems likely....

 

IMO I think that the NHS will need more than peer support for people trying to get off these drugs - they will need expert advice from calm, well informed professionals who know a lot about withdrawal. It would be helpful if people withdrawing could have informed medical advice too, for those situations which put us in some form of danger or harm!   Those of us who have been able to draw on the expert advice given out on this website are uniquely placed to advocate the advice on offer here, which - in my opinion - cannot be equalled or found anywhere else in the UK currently.

 

 Writing to the CEP or your MP to advocate that SA might be used as a "model" for good practice is a suggestion I would like to make to my MP.  Obviously, this is only my opinion.... you may have other suggestions?  

 

I will be sending a letter to the commissioner for mental health services in my local NHS Trust and asking him for his comments on how the trust could respond to this. I gave my story to my local recovery college last year, which my local commissioner knew about.  The recovery college were, at the time, considering running a course on "withdrawing from psych meds".  Needless to say, it didn't happen but maybe I will refresh their memories.  Do any of you have recovery colleges near you who might be interested in running courses?

 

It would be worth finding out who the Mental Health Commissioner is for your area and writing to him/her too if you feel able. Perhaps you might also like to consider asking your local MP to back you, given that parliament have discussed and endorsed further action into the issue of prescription drug dependency?

 

The mental health commissioners choose how budgets are allocated and make decisions on how trust funds are spent as well as following up on any parliamentary actions suggested.  They recently had responsibility for the Parity of Esteem work which looked at why people with mental health issues had their physical health overlooked, and also commissioned structured action plans for Crisis Care under the Crisis Care Concordat planning rules.  This issue is likely to land on the mental health commissioners desk for each health trust up and down the UK and now would be a good time to offer your support if you can give it.  

 

It would be incredibly helpful if you could all look at what is being proposed and consider how you could help. We have a fair geographic spread across the UK on this site and we have all been "educated" by SA in the safest known ways to withdraw from these drugs. We all therefore have a potential role to play in moving things forward.

 

Please think about how you could help.  We know from experience that without endorsement from the public these schemes can fall flat on their faces. Please do what you can to help.

 

x


5 yrs on Escitalopram 10mg, 2 week taper resulting in serious protracted w/d
Cardiac and autonomic nervous system w/d effects resulted in hospital admission - low & erratic pulse
Re-instated to 10mg Citalopram after several months - bit better
Tapered after 6 months (2008) over 3 months using liquid drops - gave up when w/d started at 2 mg as didn't know better.
Cardiac symptoms - no improvement - pacemaker implanted.
Placed on corticosteroid for autonomic nervous system issue - caused deep depression/suicidal thoughts on top of w/d symptoms
Placed back on Citalopram 10mg for 12 months - 2009/10
Taken off - 2 week taper again - worse w/d, paranoia and intense anxiety developed. Referred to psychiatry
Placed back on Citalopram 10mg - 2012 - refused higher dose
Taken off after 6 months - 2 week taper again - serious anxiety, dissociation, in a mess
Therapist, peer support and education on psych drug w/d got me through more serious w/drawal effects.
Drug free since 2012, but still have bradycardia, recently tachycardia and pacemaker plus minor legacy effects. No MH symptoms

#66 Terry4949

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Posted 27 March 2016 - 04:29 AM

Great article marmite , this is good news and is a step forward , I shall for one will be writing my story and sending it on , in hope that it may one day save someone going through what I have gone through in w/d , through practisioners truly understanding and treating w/d properly , in stead of just stopping meds with out proper tapers and support
100mg Effexor 2000 untill jan 2015 severe withdrawals . Tapered 4weeks.
Jan to end of Feb 4 weeks on 15mg mirtazapine 20mg quetiapine , tapered of both 2 weeks , severe withdrawals , still some from Effexor possibly
End of Feb 2015 to end of July 30mg citolapram tapered 2weeks severe withdrawal , anxiety high , bouts of sever depression , severe emotional moods
Currently on 30mg mirtazapine appx 5 months , high anxiety, March cut dose 22.5 mg going on to liquid still no improvements with the depression , also started sept 2015 200mg pregabalin , currently on 22.5mg mirtazapine tablet form doing really badly. Cut beginning of May remeron 20mg still bad anxiety,August 15mg remeron ,100mg pregablin , severe depression headaches anxiety , oct 2016 doctor stoped pregablin c/t , 15mg mirtazapine still no let up in physical symptoms ,high anxiety ,Nov 2016 remeron 13.5 mg

#67 mammaP

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Posted 13 April 2016 - 07:25 AM

Is anyone going to see the Speakmans? They are amazing and help people overcome phobias, PTSD, OCD, anxiety etc. No meds just retraining your brain. I am going to Nottingham and hoping to put my PTSD behind me . Many of us here need to find ways of coping with the stuff that led us to drugs, it's worth a shot and means a weekend away too ;)

 

http://www.speakman.tv/#!/page_home


**I am not a medical professional, if in doubt please consult a doctor with withdrawal knowledge.

 

See how to create a signature here http://survivingantidepressants.org/index.php?/topic/12364-please-put-your-withdrawal-history-in-your-signature/

 

Many drugs for many years, prescribed diazepam first 1973, took occasionally. 3 or 4 tricyclics  for short periods.

1993 had a breakdown leading to 10 years of drug experiments with all classes of psych drugs.

2002  effexor. 

Tapered by counting beads from March 2012 to March 2013, ending with 5 beads.

Withdrawal April 2013 . Reinstated 5 beads reduced to 4 beads May 2013

Restarted taper  Nov 2013  

OFF EFFEXOR Feb 2015    :D 

 

Also tapered atenolol and omeprazole Dec 2013 - May 2014

 

Tapering tramadol, Feb 2015 100mg , March 2015 50mg -hold- Feb2016 46mg  March 8 2016 45 April 44mg  May 11  43mg June 14 42mg

Taking fish oil, magnesium, pro biotic.

 

My story http://survivinganti...king-in/page-33

 

Lesson learned, slow down taper at lower doses. Taper no more than 10% of CURRENT dose if possible

 

Following every sunset is a brand new day


#68 fema4psychiatrists

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Posted 18 July 2016 - 02:04 PM

Im from colindale, London. saw a south west but not an south east


Cocktail drugged since 9

Genitals went numb

Extreme intestinal gas and pain

Extreme anxiety cant concentrate

All permanent

 

Post-SSRI Sexual Dysfunction (PSSD)

http://pssdblog.blogspot.com


#69 nz11

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Posted 04 October 2016 - 09:20 AM

This came into the intro threads this morning.

 

I'm a British BBC TV reporter and I want to make a film about the problems of withdrawing from antidepressants. I'm keen to hear from people who've struggled with SSRIs, particularly if you like in the UK. Also what you think about the lack of support groups, or if you HAVE a support group, how do you help?

Please email me your stories, confidentially at first, of course, although ultimately I'm looking for people who will be willing to stand up and speak about what's happened to them.  I think few people know or report this sort of problem and I know many of you are really really struggling for help.  My BBC2 programme wants to expose all this, so please get in touch.

Lesley.ashmall@bbc.co.uk

 

Thank you very much.  This forum has been recommended to me by several long-term members, so forgive my intrusion.

 

Please send them your stories

nz11


2000 amitryptaline, nortriptaline venlafaxine clonazepam for  arm pain from keyboard use, told I had a chemical imbalance it would fix my arm was just a matter of finding the right med for me not informed of the nature of these drugs assured safe and not addictive, CT off Effexor after being told to double the dose on reporting adverse effects...later ..uncharacteristic psych panic tearful presented to doctor to get answers. Given paroxetine no questions asked 'safe and not addictive' next please.2001-2010 paroxetine (paxil) 2 failed attempts to quit, a learned helplessness set in. Feb 10 - Sept 10,  8 month clueless taper, hell. Doc said I had underlying depression .. I said that's not right' then found online support group and the truth!...overcome with inconceivable humiliation and outrage. 28 Sept 10 drug free ...  daily psych and emotional torture beginning in the waking hours of the morning receding somewhat in the evening only to start up again the next day. 28 Sept 12 (24 months) Stabilizing  (What an indescribable unimaginable non-functional nightmare). sleep issues start up at 3 yrs  waking daily at 2am -4.30am)28 Sept 15 (5yrs drug free), cf, cmw, insomnia  horrifying pssd continues, still feel Rip van Winkle-ish, cognitively doing heaps better. 28 Sept 16 after 6 yrs start working again on a casual basis.

 

The doctor of the future will give no medicine but will interest his patients in the care of the human frame, in diet, and in the cause and prevention of disease.' - Thomas A. Edison

 

“Paroxetine is not safe, it is not effective and it meets every known definition of addictive.” McLaren, N, (2016) 'Psychiatry as bullsh*t’ p55..."Psychiatry is stuffed full of 'deep nonsense' better known as bullsh*t." McLaren 2016

 

"Within the first week of when you go on an antidepressant you may have a sexual dysfunction, it can go on forever, often only appearing when you go off the drug ...its extraordinarily common" Healy 2015

 

See  my intro post #451 for the xanax back story and for a CV -GSKs.  Come on guys get taperwise see a TaperMe Schedule

 For a staggeringly shocking 'prozac back story' see the truth post #523

 

"If I were an enemy combatant and the NZ army did this to me someone would be dragged to the Hague and jailed!"  nz11


#70 Junglechicken

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Posted 22 October 2016 - 11:48 PM

Just moved back from Canada.
 
Now living in the Southwest - Somerset, near Yeovil.


I have since moved to Reading, Berks but still meet with the SA Southwest UK Support Group once a month.
Feb 2014 -Cipralex/Escitalopram 10mg dailyJune 2015 - Started taper, 5mg every other day July 2015 - 5mg every 2 days August 2015 - 5mg every 3 days September 2015 - 5mg every 4 daysSept 14th - Completed tapering, but at 7 weeks "drug free" I suffered serious WD symptoms as a consequence of "incorrect" tapering.Nov 25 2015 - Re-instated Cipralex @ 2.5mg daily. WD symptoms disappeared over a few days.Have been on this dose ever since and am experiencing "windows" and "waves".Nov 15th 2016 Re-start regular counsellingJan 19th 2017 Start CBT<p>Plan to re-start taper (liquid Cipralex/Escitalopram) Jan 2017 Homeopathic Treatment starts 4th Jan 2017.

#71 Ria

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Posted 25 October 2016 - 11:40 PM

Hi Folks

I'm new to this site

I have a diagnosis of bipolar disorder and am slowly tapering off all sorts of meds (venlafaxine, lthium and quatiapine)

I'd like to attend or set up a support group in or around greater Manchester

Any takers?

 


I've been on meds for 11 years for bipolar disorder.

Venlafaxine, sertraline, citalapram, lithium, depakote, olanzaoine, quatiapine and are few others are what 've relucantly taken.

I came off all meds 2 years ago but withdrew too quickly and had a relapse.

family and psychiatrist gave the old 'I told you so'!!!!!!!!!!!!

Im in the process of building a upport network for my journy of reducing meds in a more supportive way.

Venlafaxine and lithium are the two meds I'm slowly tapering at the moment


#72 MattUK

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Posted 27 October 2016 - 12:21 PM

Just joined here
Going through hell

I'm in SE London
http://survivinganti...re/#entry257333

20yrs on and off many ADs last stretch was 8-10yrs on fluoxetine 40mg daily
Cold turkey since December 2015 after a traumatic event in my wife's life
Depersonalisation episodes
Depression
Panic attacks
Anxiety
Diazepam Propranolol 40mg x3 daily for 2 months tried tapering made me ill so cold turkey
Now loosing everyone that ever mattered to me

I don't know who or what I am no more ....... or even if I want to be





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