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#1 Altostrata

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Posted 02 May 2014 - 03:47 PM

Please post below if you live in California.

 

I am thinking that connecting our members geographically will enable

  • Face-to-face meetings or phone contacts for those of you who wish to meet
  • Support groups
  • Sharing information about doctors, clinics, compounding pharmacies, etc.
  • Organizing to educate physicians, hospitals, and university professors
  • Organizing to contact members of local and national government
  • Research by California researchers

Even if you don't wish to do any of the above, if you are in California, please check in here.

 

Please also click the Follow This Topic button at the top right so you will receive notices about others posting here.

 

AND -- if you've haven't introduced yourself to the rest of the community yet, please go to our Introductions and Updates forum and start a topic for yourself. You can post updates to your Intro topic to track your progress.


Edited by Altostrata, 22 March 2015 - 05:52 PM.
updated

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

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#2 Altostrata

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Posted 02 May 2014 - 03:47 PM

I am in San Francisco, California.


This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

#3 Barbarannamated

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Posted 02 May 2014 - 04:12 PM

I am in Redlands, CA. Inland Southern CA.
Pristiq tapered over 8 months ending Spring 2011 after 18 years of polydrugging that began w/Zoloft for fatigue/general malaise (not mood). CURRENT: 1mg Klonopin qhs (SSRI bruxism), 75mg trazodone qhs, various hormonesLitigation for 11 years for Work-related injury, settled 2004. Involuntary medical retirement in 2001 (age 39). 2012 - brain MRI showing diffuse, chronic cerebrovascular damage/demyelination possibly vasculitis/cerebritis. Dx w/autoimmune polyendocrine failure.<p>2013 - Dx w/CNS Sjogren's Lupus (FANA antibodies first appeared in 1997 but missed by doc).

#4 spectio

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Posted 02 May 2014 - 08:22 PM

I am in Reno, Nv, 25 miles from Calif. I would like to be included, if possible. Thanks, Alto.
I started withdrawing off remeron in August of 2009, with the help of a holistic physician.The reason for the withdrawal was a year or two of off and on nausea, deterioration in my thinking, and more depression. It took me a full year to work from 135 mg down to 45mg. At that point, more drops were causing more depression. Unfortuately, the nervousness that I was also feeling for the last year continued with the 45 mg. Thirty one days ago, I stopped the remeron. I am still feeling the nervousness every day and the last week, I am feeling what I think is depression but not sure. In bed in the morning, I'm already dreading another day feeling this way. I am intensely unsure of myself and find it very hard to do anything. I was a practicing veterinarian for 29 years until I found I could not practice anymore. First of all I couldn't think, or remember, and I had absolutely no confidence in anything I did. These were things I did with relative ease for twenty+ years. So, this feeling of no confidence has been during the time I was on the AD(the last 2 years) and today. I take no other medication other than my blood pressure meds. I tried supplements with my holistic dr. but they seemed to make the intense nervousness even more intense. Anyway, I truly feel stuck.

#5 Altostrata

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Posted 03 May 2014 - 10:00 AM

Of course, spectio. Thanks for posting here.


This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

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#6 Altostrata

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Posted 04 May 2014 - 12:49 PM

Northern California members I know of (please correct me if I'm wrong):
 
Olivia

hearsbirds

reluctantpharmagirl
 
Lexy
 
EternalOptimst
 
Ks1994

Nutmeg
 
Dancingcat

trouper

mkat71


This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

#7 LexAnger

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Posted 13 May 2014 - 06:41 PM

I'm in simi valley, southern California
This is a great idea. Thanks alto!
<p>2009 Mar.: lexapro 10mg for headache for 2 weeks.2009-2012: on and off 1/4 to 1/3 of 10mg2012 June--2013 Jan,: 1/4-1/3 of 10mg generic, bad jaw pain2013 Jan-Mar: 10 mg generic. severe jaw and head pain; Mar--Aug. started tapering (liquid ever since) from 10 to 5 (one step) then gradually down to 2.25 mg, first ever panic attack, severe head/jaw pain2013 Aug.: back to 2.75 mg; Nov: back to Brand Lex. 2.75mg -- 3mg, slight improvement with pain2014 June: stopped PPI, head pressure/numbness. up-dosed 4.5mg, severe reaction mental symptoms added on2014 Aug--2015 Aug: Micro taper down to 3.2mg, .025mg (<1%) cut holding 2-3 weeks.2015 Aug 15th, Accidental one dose of 4.2mg. worsening brain non-functional, swollen head, body, coma like, DR2016 Feb., started fast taper for the drug toxicity caused by the one dose of 4.2mg, dosing 10am through 11 pm everyday2/13--3.2mg, 3/15-- 2.9mg, 4/19-- 2.6mg, 6/26--2.2mg, 7/22 --1.9mg, 8/16--1.8mg,8/31--1.7m g, 9/13--1.6mg, 9/27--1.5mg, 10/8--1.4mg, 10/14--1.3mg, 11/1--1.2mg, 11/29--1.1mg, 12/12--1mg, 12/22--0.9mg2017: 1/7--0.8mg, 1/15--0.7mg, 1/17--0.6mg, 1/20--0.52, 1/21--0.4mg, 1/22--0.26, 1/23--0.2, sliding Down to 0.13mg by 2/13, then 0.07mg since 2/18, 0.06mg 2/20-3/17, 0.13mg 3/18

#8 RealityCheck

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Posted 17 May 2014 - 10:21 PM

Los Angeles

On and off SSRI and SNRI meds since 1996

1996-2001: Prozac, then Effexor (discontinued 2001)

2008-2010: Cymbalta (discontinued 2010 for pregnancy attempts)

5/2011: Started Lexapro 10 mg for anxiety/panic. Adjusted dose down to 7.5 mg and did great.

3/2014: Life is good, I am stable... time to get off the meds again -- should be no big deal, right? Such a low dose...

Lexapro taper: One month to come down from 7.5 mg by 33% decreases... 7.5 mg to 5 mg, then 5 mg to 2.5 mg, then 2.5 mg every other day (bad idea), experienced nausea and GI upset that I thought was a stomach bug... then

4/14/14: discontinued Lexapro and began several weeks of confusion, panic, nausea, dizziness, joint pain, hoarseness, etc.

5/1/14: reinstated Lexapro at 1 mg or as close to that as I can get, with 5 mg tablets and a pill splitter.  Felt improved by the next day, not great, but improved.


#9 mtnbkr

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Posted 27 May 2014 - 07:02 PM

I'm in the San Francisco Bay Area.


07.2004 Prozac. Greadually increased to 40mg. Good control of depression, but eventually developed muscle spasms and akathesia.

08.2010 Switched to Celexa. Suicidal ideation was constant.  Unable to sleep without ambien.

05.2012 Switched to Zoloft. Absolutely the BEST control of depression but caused severe bloating and rapid weight gain. Acne.

11.00.2012 Returned to Prozac 40mg

04.00.2013 Prozac 40mg + Wellbutrin 150mg

06.25.2013 Prozac 60mg and Wellbutrin 300mg

07.08.2013 GRAND MAL SEIZURE

07.09.2013 Prozac 40mg and Wellbutrin 300mg

07.26.2013 Prozac 40mg and Wellbutrin 150 mg

08.01.2014 Prozac 40mg and Wellbutrin ZERO

08.09.2013 Prozac 30.0 mg

09.13.2013 Prozac 27.5 mg

10.04.2013 Prozac 25.0 mg

10.25.2013 Prozac 22.5 mg

11.15.2013 Prozac 20.0 mg

12.06.2013 Prozac 15.0 mg

12.21.2013 Prozac 10.0 mg

 


#10 hacilar

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Posted 01 June 2014 - 01:50 AM

I'm in Garberville, CA


21 years of various psych meds.

 

Currently experiencing 'withdrawal syndrome' from 14 years of 0.5mg Klonopin: 1 q hs

 

Tapered over a year and a half dry cutting.

 

Hx of Imipramine (nightmare) (1992) Zoloft,(1992) Paxil (difficult to d/c)(2000) Effexor(2004-5) (also very difficult to d/c) Lamictal(2004-6), Neurontin(2004-6), Depakote(2006-2012), Remeron(2007) Various sleeping pills at different times...

 

I honestly cannot give an accurate timeline or even remember all the drugs I've been on.  I made a list for my son last summer, and it was long, so I know I'm forgetting something.  So sorry.


#11 summer

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Posted 28 June 2014 - 10:32 AM

I live in Marin County in CA.


Wellbutrin: 150mg.

Xanax: .5 once daily

 

Charter Member 2011


#12 erikjms

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Posted 29 July 2014 - 05:44 PM

I live in the middle of everything in San Francisco but nobody knows I am here. :)


Erik
poet. skeptic. laughs in the face of death ha!


Rx Hx: (Dates and doses 1999-2012 are approximate)
Dec 1997 started on Paxil.
thru 1999ish: every SSRI in existence, one at a time, except for Prozac...
2000: Prozac 40mg; added Zyprexa 5-10mg 

2004: began Buprenorphine, 40mg
2005: Prozac 60mg; Zyprexa 5-7.5mg; added Klonopin avg 1.5mg/day PRN
2006: Prozac 80mg; Zyprexa 5mg; Klonopin avg ~1mg PRN then down to 0.5mg by 2012
May, 2012: signs of tardive dyskinesia. Begin Zyprexa "taper": 2.5mg
late July, 2012: Zyprexa 1.25mg
early Aug, 2012: discontinued Zyprexa

     a little later Aug, 2012: GI disturbances, nausea, appetite loss, disturbed sleep, body temperature dysregulation, fatigue, sweating, headaches, beginning of rapid weight loss
Dec 2012: Prozac causing stomach pain; reduced to 60mg
Jan 2013-present: muscle pain and spasms in face, jaw, neck, shoulders, chest

5 Dec 2013: GP suggests increase in Klonopin for muscle spasms

Currently (Dec 2013): 60mg Prozac, 0.875 mg Klonopin, 40mg Buprenorphine

     nausea, headaches, muscle spasms, tardive dyskinesia continue;

     appetite back, increase in energy and in apparent metabolic rate

"mental" reactions since stopping Zyprexa: intermittent increase in obsessional thinking, extra emotional zing

     treatment: sitting meditation 50 min once or twice a day PRN


#13 Barbarannamated

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Posted 31 July 2014 - 10:21 AM

LexAnger and Reality Check,

Do you know any knowledgeable docs in LA or Southern CA? I've been off of Pristiq and Vyvanse (fast taper and CT) for over 3 years and still doing poorly. Situational/lifestyle factors are big components. Vicious circle.

My apologies if I'm using this forum inappropriately.

Dr. Shipko has not returned my messages/calls.
Pristiq tapered over 8 months ending Spring 2011 after 18 years of polydrugging that began w/Zoloft for fatigue/general malaise (not mood). CURRENT: 1mg Klonopin qhs (SSRI bruxism), 75mg trazodone qhs, various hormonesLitigation for 11 years for Work-related injury, settled 2004. Involuntary medical retirement in 2001 (age 39). 2012 - brain MRI showing diffuse, chronic cerebrovascular damage/demyelination possibly vasculitis/cerebritis. Dx w/autoimmune polyendocrine failure.<p>2013 - Dx w/CNS Sjogren's Lupus (FANA antibodies first appeared in 1997 but missed by doc).

#14 LexAnger

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Posted 31 July 2014 - 03:06 PM

Sorry Barbara, I never used any psyc doc until later year starting WD symptoms. The doc I went had no clue at all and acknowledged he does not know how to help. I also thought about dr shipko but after reading online patient review I gave up. In my opinion, there are very few docs if any are really experienced in this area as they were not trained in school and most have problems believing patients feeling about WD. I tried Point of Return program it may have helped with lessening symptoms but did not help enough for me to continue tapering at 2.5 mg lexapro. I'm now considering Road Back supplement. I will get it in couple of days and will let you know how much that helps.
so far I feel most knoledgable people are the ones with own experience of similar symptoms especially those did lots of own research like alto.


Sorry about your situation. I'm as bad as yours even still on the med. I know it's a disparate feeling but do hope you are close to the end of the tunnel. As per some other successful stories, it can take up to 4-6 years after stopping to completely heal.

I don't mind if you'd like to have direct contact with me even just for emotional support. If we are close to each other geographically, we can even meet.
<p>2009 Mar.: lexapro 10mg for headache for 2 weeks.2009-2012: on and off 1/4 to 1/3 of 10mg2012 June--2013 Jan,: 1/4-1/3 of 10mg generic, bad jaw pain2013 Jan-Mar: 10 mg generic. severe jaw and head pain; Mar--Aug. started tapering (liquid ever since) from 10 to 5 (one step) then gradually down to 2.25 mg, first ever panic attack, severe head/jaw pain2013 Aug.: back to 2.75 mg; Nov: back to Brand Lex. 2.75mg -- 3mg, slight improvement with pain2014 June: stopped PPI, head pressure/numbness. up-dosed 4.5mg, severe reaction mental symptoms added on2014 Aug--2015 Aug: Micro taper down to 3.2mg, .025mg (<1%) cut holding 2-3 weeks.2015 Aug 15th, Accidental one dose of 4.2mg. worsening brain non-functional, swollen head, body, coma like, DR2016 Feb., started fast taper for the drug toxicity caused by the one dose of 4.2mg, dosing 10am through 11 pm everyday2/13--3.2mg, 3/15-- 2.9mg, 4/19-- 2.6mg, 6/26--2.2mg, 7/22 --1.9mg, 8/16--1.8mg,8/31--1.7m g, 9/13--1.6mg, 9/27--1.5mg, 10/8--1.4mg, 10/14--1.3mg, 11/1--1.2mg, 11/29--1.1mg, 12/12--1mg, 12/22--0.9mg2017: 1/7--0.8mg, 1/15--0.7mg, 1/17--0.6mg, 1/20--0.52, 1/21--0.4mg, 1/22--0.26, 1/23--0.2, sliding Down to 0.13mg by 2/13, then 0.07mg since 2/18, 0.06mg 2/20-3/17, 0.13mg 3/18

#15 Barbarannamated

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Posted 31 July 2014 - 03:13 PM

Thanks, LexAnger. Please do feel free to PM me. I would like to be in contact.

If it helps your perspective at all, you are in a much better position because you have found this site and are still tapering. I'm off some of the drugs, but did it completely wrong. I was also on excessive polypharmacy for 15+ years. I wish I still had the option to adjust my dose, but I don't.
Pristiq tapered over 8 months ending Spring 2011 after 18 years of polydrugging that began w/Zoloft for fatigue/general malaise (not mood). CURRENT: 1mg Klonopin qhs (SSRI bruxism), 75mg trazodone qhs, various hormonesLitigation for 11 years for Work-related injury, settled 2004. Involuntary medical retirement in 2001 (age 39). 2012 - brain MRI showing diffuse, chronic cerebrovascular damage/demyelination possibly vasculitis/cerebritis. Dx w/autoimmune polyendocrine failure.<p>2013 - Dx w/CNS Sjogren's Lupus (FANA antibodies first appeared in 1997 but missed by doc).

#16 LexAnger

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Posted 31 July 2014 - 04:03 PM

I am so sorry to know your story and your feeling that way. It seems to me the psyc drug can be as damaging as withdrawing from it
Basically, once you are on, you will be in an unknown world potentially leading to various misery paths.

I'm not quite sure I know the meaning of PM. Can you explain a bit more? I can share my personal email or even phone number with you if that's What you meant.

Yeah, it seems your situation can be more complicated with multiple medications. But with the experience of dealing with
The psyc meds, we can still help/ support each other better than anyone else as its very difficult for others to even have a clue to
Understand the basics.
<p>2009 Mar.: lexapro 10mg for headache for 2 weeks.2009-2012: on and off 1/4 to 1/3 of 10mg2012 June--2013 Jan,: 1/4-1/3 of 10mg generic, bad jaw pain2013 Jan-Mar: 10 mg generic. severe jaw and head pain; Mar--Aug. started tapering (liquid ever since) from 10 to 5 (one step) then gradually down to 2.25 mg, first ever panic attack, severe head/jaw pain2013 Aug.: back to 2.75 mg; Nov: back to Brand Lex. 2.75mg -- 3mg, slight improvement with pain2014 June: stopped PPI, head pressure/numbness. up-dosed 4.5mg, severe reaction mental symptoms added on2014 Aug--2015 Aug: Micro taper down to 3.2mg, .025mg (<1%) cut holding 2-3 weeks.2015 Aug 15th, Accidental one dose of 4.2mg. worsening brain non-functional, swollen head, body, coma like, DR2016 Feb., started fast taper for the drug toxicity caused by the one dose of 4.2mg, dosing 10am through 11 pm everyday2/13--3.2mg, 3/15-- 2.9mg, 4/19-- 2.6mg, 6/26--2.2mg, 7/22 --1.9mg, 8/16--1.8mg,8/31--1.7m g, 9/13--1.6mg, 9/27--1.5mg, 10/8--1.4mg, 10/14--1.3mg, 11/1--1.2mg, 11/29--1.1mg, 12/12--1mg, 12/22--0.9mg2017: 1/7--0.8mg, 1/15--0.7mg, 1/17--0.6mg, 1/20--0.52, 1/21--0.4mg, 1/22--0.26, 1/23--0.2, sliding Down to 0.13mg by 2/13, then 0.07mg since 2/18, 0.06mg 2/20-3/17, 0.13mg 3/18

#17 Barbarannamated

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Posted 31 July 2014 - 07:33 PM

PM just means to send a Personal Message to me thru the site (should be on my profile, I think) and we can discuss details and exchange info, emails, etc.

Sorry for the confusion.
Pristiq tapered over 8 months ending Spring 2011 after 18 years of polydrugging that began w/Zoloft for fatigue/general malaise (not mood). CURRENT: 1mg Klonopin qhs (SSRI bruxism), 75mg trazodone qhs, various hormonesLitigation for 11 years for Work-related injury, settled 2004. Involuntary medical retirement in 2001 (age 39). 2012 - brain MRI showing diffuse, chronic cerebrovascular damage/demyelination possibly vasculitis/cerebritis. Dx w/autoimmune polyendocrine failure.<p>2013 - Dx w/CNS Sjogren's Lupus (FANA antibodies first appeared in 1997 but missed by doc).

#18 overcomer58

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Posted 01 August 2014 - 04:02 PM

I live in Templeton, Ca. Near San Luis Obispo, Ca. Halfway between Los Angeles and San Francisco. I LOVE this idea!! :-)



#19 overcomer58

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Posted 01 August 2014 - 04:04 PM

I live in Templeton, Ca. (Near San Luis Obispo, Ca)-- Halfway between L.A. and S.F. 



#20 zenzeno

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Posted 02 August 2014 - 06:40 AM

I'm in Chicago but later this month I'm gonna be in Monterey, CA to meet with Dr. Romeo Mariano.

 

I'm also considering going to San Diego to visit Dr. Irwin Goldstein.


3 months on 10mg Citalopram (Aug thru Oct '12)
Quit CT after 100mg 2-day binge violently ill w/brain zaps
Nov '12 nasty WD including PSSD so I reinstated at 10mg
2 month taper from Dec '12 thru Jan '13
Feb '13 2nd WD even worse w/every possible SE at once
Coping w/PSSD and Anhedonia ever since
Pleasure & Reward center of my brain remains offline

#21 Altostrata

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Posted 02 August 2014 - 03:50 PM

Why are you visiting those doctors, zenzeno?


This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

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#22 zenzeno

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Posted 16 August 2014 - 03:55 AM

Why are you visiting those doctors, zenzeno?


Essentially, I need to see a doctor who understands PSSD and can provide solid medical advice on how to manage it.
3 months on 10mg Citalopram (Aug thru Oct '12)
Quit CT after 100mg 2-day binge violently ill w/brain zaps
Nov '12 nasty WD including PSSD so I reinstated at 10mg
2 month taper from Dec '12 thru Jan '13
Feb '13 2nd WD even worse w/every possible SE at once
Coping w/PSSD and Anhedonia ever since
Pleasure & Reward center of my brain remains offline

#23 Altostrata

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Posted 16 August 2014 - 02:30 PM

Please let us know if you find any.


This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

#24 Altostrata

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Posted 24 August 2014 - 01:17 PM

Is everybody okay after the earthquake? I'm okay. It was quite the shaker in the middle of the night.


This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

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#25 mtnbkr

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Posted 24 August 2014 - 07:18 PM

Thanks for checking in.  It woke me up, but I'm far enough away that there wasn't any damage.  My heart goes out to those who are struggling to piece their lives together. 


07.2004 Prozac. Greadually increased to 40mg. Good control of depression, but eventually developed muscle spasms and akathesia.

08.2010 Switched to Celexa. Suicidal ideation was constant.  Unable to sleep without ambien.

05.2012 Switched to Zoloft. Absolutely the BEST control of depression but caused severe bloating and rapid weight gain. Acne.

11.00.2012 Returned to Prozac 40mg

04.00.2013 Prozac 40mg + Wellbutrin 150mg

06.25.2013 Prozac 60mg and Wellbutrin 300mg

07.08.2013 GRAND MAL SEIZURE

07.09.2013 Prozac 40mg and Wellbutrin 300mg

07.26.2013 Prozac 40mg and Wellbutrin 150 mg

08.01.2014 Prozac 40mg and Wellbutrin ZERO

08.09.2013 Prozac 30.0 mg

09.13.2013 Prozac 27.5 mg

10.04.2013 Prozac 25.0 mg

10.25.2013 Prozac 22.5 mg

11.15.2013 Prozac 20.0 mg

12.06.2013 Prozac 15.0 mg

12.21.2013 Prozac 10.0 mg

 


#26 Altostrata

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Posted 25 August 2014 - 11:58 AM

It was very rough on Napa.


This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

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#27 hacilar

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Posted 04 September 2014 - 09:21 AM

A piffle compared to what we have in the way of quakes up here at the triple juntion-the Pacific plate, the North American plate and the Juan de Fuca plate shaking up things on a irregular basis.   The 10.0 is 100 years overdue.  Historically, that is.

 

I've experienced quakes everywhere I've lived in California; Long Beach, the Central Valley and now up here in Humbolt County.  Hurricanes and tornados freak me out!  If an earthquake takes me out, so be it.


21 years of various psych meds.

 

Currently experiencing 'withdrawal syndrome' from 14 years of 0.5mg Klonopin: 1 q hs

 

Tapered over a year and a half dry cutting.

 

Hx of Imipramine (nightmare) (1992) Zoloft,(1992) Paxil (difficult to d/c)(2000) Effexor(2004-5) (also very difficult to d/c) Lamictal(2004-6), Neurontin(2004-6), Depakote(2006-2012), Remeron(2007) Various sleeping pills at different times...

 

I honestly cannot give an accurate timeline or even remember all the drugs I've been on.  I made a list for my son last summer, and it was long, so I know I'm forgetting something.  So sorry.


#28 RubyTuesday

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Posted 26 December 2014 - 02:09 PM

I am in Marin county. Would love to find a support group.


2002: "Situational depression" 2002-2010:Prozac.Birth Control.2011 Short trials: Paxil, Celexa, Lexipro, Wellbutrin, Xanax, Ativan- Gee, Doc never mentioned protracted AD wd syndrome. Imagine that. 2011-2015. Lamictal. Seroquel. Remiron. 2012: "Complex post traumatic stress disorder." Fast taper of Remiron jumped off June 2013. Slow tapers ever since of Seroquel & Lamictal.  crippling muscle spasms. crying fits. panic attacks. akathisia. nerve twitches. the jitters. the heebie jeebies. de-personal/realization. numbness. tingling. fatigue. lethargy. nightmares.insomnia. weird images. eye pain.vertigo. dizziness. brain zaps. and on and on and on. withdrawal? side effects? which drug? impossible to know. applied for disability. awaiting case to be settled.also back in school slowly & carefully. have not worked full time in 10 years. NOW: Seroquel 12.5 mg. Lamictal 75% of 50 mg. 

GOT DISABILITY. USING THE ROAD BACK JAMES HARPER VITAMIN SUPPLEMENTS. OFF OF SEROQUEL OCTOBER 2, 2015. Tapered off Lamictal approx 5 mg per month until Wednesday April 23 2016 jumped off at about 20 mg. (dissolved in water.) Feel great mentally & emotionally but physically like a mild flu, achey, heavy, dizzy, uncoordinated but nonetheless still better than the last few months of tapering. Worked Fall 2015 while withdrawing Seroquel then quit all school & work again February 2016 in order to get off the drugs.p.s. the worst of the morning panic disappeared the morning I stopped the Lamictal.

http://robertwhitake...n Epidemic.html

 

 


#29 brassmonkey

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Posted 26 December 2014 - 05:26 PM

Covina, California, on the far east side of LA


20 years on Paxil starting at 20mg and working up to 40mg. Sept 2011 started 10% every 6 weeks taper (2.5% every week for 4 weeks then hold for 2 additional weeks), currently at 7.9mg. Oct 2011 CTed 15oz vodka a night, to only drinking 2 beers most nights, totally sober Feb 2013.

Since I wrote this I have continued to decrease my dose by 10% every 6 weeks (2.5% every week for 4 weeks and then hold for an additional 2 weeks). I added in an extra 6 week hold when I hit 10mg to let things settle out even more. When I hit 3mg it became hard to split the drop into 4 parts so I switched to dropping 1mgpw (pill weight) every week for 3 weeks and then holding for another 3 weeks.  The 3 + 3 schedule turned out to be too harsh so I cut back to dropping 1mgpw every 4 weeks which is working better.

Current dose 0.008mg 03-17-2016

 

"It's also important not to become angry, no matter how difficult life is, because you can loose all hope if you can't laugh at yourself and at life in general."  Stephen Hawking


#30 Montebella

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Posted 16 January 2015 - 11:31 AM

I am in Sacramento  :)


Previous brief history with Celexa, Wellbutrin (2007? for smoking cessation), one month on Lamictal in 2009, one month on Remeron 2009. Prescribed Cymbalta approximately 2009 initially at 60 mg then 30 mg and finally 20 mg.  

January of 2014 was changed to generic then in February of 2014 I missed two days = severe withdrawal (suicidal thoughts, uncontrollable crying, isolation, etc). February 2014- switched back to name brand Cymbalta and started tapering from 20 mg by counting beads.  Average rate was about ten beads every 1-2 weeks

Approx July 2014 - slowed down taper, removed 3-5 beads every 1-2 weeks. 

October 9,2014 - 13 beads/ January 1, 2015 - 12 beads/ February 13, 2015 - 11 beads/March 13, 2015- 10 beads

May 17- 9 beads/ June 20, 2015 - 8 beads/ October 8, 2015 - 7 beads

 

Supplements:  Vitamin E, fish oil, magnesium. cod liver oild-ribose, sunflower lecithin, DMAE, choline, inositol, ubiquinol coQ10, B-complex vitamin D3


#31 westcoast

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Posted 18 January 2015 - 11:54 AM

Los Angeles

2009: Cancer hospital said I had adjustment disorder because I thought they were doing it wrong. Their headshrinker prescribed Effexor, and my life set on a new course. I didn't know what was ahead, like a passenger on Disneyland's Matterhorn, smiling and waving as it climbs...clink, clink, clink.

2010: Post surgical accidental Effexor discontinuation by nurses, masked by intravenous Dilaudid. (The car is balanced at the top of the track.) I get home, pop a Vicodin, and ...

Whooosh...down, down, down, down, down...goes the trajectory of my life, up goes my mood and tendency to think everything is a good idea.
2012: After the bipolar jig was up, now a walking bag of unrelated symptoms, I went crazy on Daytrana (the Ritalin skin patch by Noven), because ADHD was a perfect fit for a bag of unrelated symptoms. I was prescribed Effexor for the nervousness of it, and things got neurological. An EEG showed enough activity to warrant an epilepsy diagnosis rather than non-epileptic ("psychogenic") seizures.

:o 2013-2014: Quit everything and got worse. I probably went through DAWS: dopamine agonist withdrawal syndrome. I drank to not feel, but I felt a lot: dread, fear, regret, grief: an utter sense of total loss of everything worth breathing about, for almost two years.

I was not suicidal but I wanted to be dead, at least dead to the experience of my own brain and body.

2015: I  began to recover after adding virgin coconut oil and organic grass-fed fed butter to a cup of instant coffee in the morning.

I did it hoping for mental acuity and better memory. After ten days of that, I was much better, mood-wise. Approximately neutral.

And, I experienced drowsiness. I could sleep. Not exactly happy, I did 30 days on Wellbutrin, because it had done me no harm in the past. 

I don't have the DAWS mood or state of mind. It never feel like doing anything if it means standing up.

In fact, I don't especially like moving. I'm a brain with a beanbag body.   :unsure:


#32 indigo

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Posted 22 January 2015 - 05:50 PM

I'm in Santa Cruz.


On 20 mg of Prozac for about ten years. Sept 2012 started reducing 10% a drop using gram scale, with average of one month holds.

When I'd reached the half way mark, taking 10 mg  powder out of the 20 mg capsules, I switched over to 10 mg capsules and cutting

down from those. Withdrawals got harder the lower I dropped.  May 2013 changed to 5% drops, holding until all withdrawal symptoms gone.

January 2015 changed to liquid prozac (concentration of 20MG per 5 mL) using a 1mL oral syringe.

Current dose of fluoxetine solution equivalent 3.4 mg. Any effort to drop below this has been disastrous so for the time being I'm staying at this level.
Adding 200 mg Tryptophan and 200 GABA a day has helped with anxiety.
Also take 1,300mg Omega- 3,  875mg  Magnesium, 1800mg Curcumin, 1000mg Vit C, 5000 Vit D.
 

 


#33 NervousKitten

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Posted 19 February 2015 - 04:43 PM

I'm in the San Francisco East Bay area.


1999 Prozac with occasional Xanax 

2002 Effexor Xr with occasional Valium

2010 Off Effexor (slow taper)

2010 Prozac rx to help with Effexor withdrawal. Activating, so stopped.

2011 Zoloft rx

2013 Zoloft stops working after a few increases, decide to stop taking it

2013 October last Zoloft dose after a 6-9 month taper

2014 January, April, May, June ER inducing anxiety attacks

2014 June Ativan prescribed as needed. Last taken Nov 2014, but still have pills just in case

 


#34 JayPea

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Posted 25 February 2015 - 05:56 PM

I'm in the San Francisco East Bay area.

 

Me too


neurologically challenged

Copaxone, Baclofen Oxybutynin and L.D.N. for multiple sclerosis and on Dilatin for seizure disorder Celexa 20 then 40 for at least 7 years Started first reduction in Jan 2015, but with generic- bad idea. Lasted 3 days

Started again Feb 1 2015. 

Feb 1-  40 to 37.5

Feb 24-  37.5 to 35

March 24- 35 to 32.5

April 28- 32.5 to 30

June 9- 30 to 27.5

July 1- 27.5 to 25

July 27-25 to 22.5

Aug 18- 22.5 to 20

 


#35 daniel0708

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Posted 26 February 2015 - 11:38 PM

I'm in Orange County, CA.

<p>Successfully weaned off of Prozac, Concerta, Effexor XR, Buspar, Celexa, Lexapro, Seroquel, Geodon, Risperdal, Cogentin, Xanax, Ativan, and Depakote. Currently taking Abilify (7.5mg) and Lamictal 200mg. Hope to complete taper by mid November 2016. <p>For more information see the "About Me" link on my profile.


#36 InvisibleUnless

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Posted 14 March 2015 - 07:11 PM

 

I'm in the San Francisco East Bay area.

 

Me too

 

thirding.


from 2005-2012, i spent 7 years taking 17 different psychotropic medications covering several classes.  i would be taking 3-7 medications at a time, and 6 out of the 17 medications listed below were maxed or overmaxed in clinical dosage before i moved on to trying the next unhelpful cocktail.
 
antidepressants (SSRIs, SNRIs, NDRIs, tetracyclics): zoloft, wellbutrin, effexor, lexapro, prozac, cymbalta, remeron
antipsychotics (atypical): abilify, zyprexa, risperdal, geodon
sleep aids (benzos, off-label antidepressants & antipsychotics, hypnotics): seroquel, temazepam, trazodone, ambien
anxiolytics: buspar
anticonvulsants: topamax
 
i tapered off all psychotropics from late 2011 through early 2013, one by one.  for all 5 years since quitting, ive been cycling through severe, disabling withdrawal symptoms spanning the gamut of the serious, less serious, and rather worrisome side effects of these assorted medications.  previous cross-tapering and medication or dosage changes had also caused undiagnosed withdrawal symptoms.
 
brainpan addlepation






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