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Chronic Fatigue - Prozac


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#73 btdt

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Posted 28 January 2015 - 08:47 PM

I believe it is  :D beach it is! 


WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivinganti...ng-myself-btdt/

There is a crack in everything ..That's how the light gets in :)


#74 btdt

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Posted 28 January 2015 - 08:49 PM

How are the beaches in somewhere lol... bet they are great... I will go there..


WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivinganti...ng-myself-btdt/

There is a crack in everything ..That's how the light gets in :)


#75 UnfoldingSky

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Posted 29 January 2015 - 04:47 AM

How are the beaches in somewhere lol... bet they are great... I will go there..

 

lol I read this and thought, "Where's this somewhere she's talking about? "

 

I forgot I lived there. :lol:


Partly recovered from AD withdrawal/reactions as well as issues with other psych drugs.  Also, I am not a medical professional and nothing I say is a medical opinion or meant to be medical advice, please seek a competent and trusted medical professional to consult for all medical decisions. Also due to the withdrawal/reactions I have had I may at times have cognitive problems so please keep this in mind when reading my posts (also please note, these issues are improving as I recover).

 


#76 btdt

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Posted 29 January 2015 - 09:42 AM

Everyone on fb is posting pict of beaches lately Bahamas Cancun Jamaica other places too... I have ideas of where my hammock would fit and have placed it in my best spots in my mind... that is where it will say. In a way it is somewhere beach... 


WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivinganti...ng-myself-btdt/

There is a crack in everything ..That's how the light gets in :)


#77 UnfoldingSky

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Posted 04 February 2015 - 04:55 PM

Well I think I need to borrow your hammock btdt, I'm so tired and so tired of being tired...

 

I am declaring my herb experiment an official failure at least for chronic fatigue.  It seems to help cog fog but does nothing to make me feel more energetic.

 

New plan is to try to address sleep, I need something to help me stay asleep.  I think that's a big part of this, not sleeping properly.

 

Forgive me as I'm so spaced out today but is your sleep all broken up lately?  I recall you said you had sleep state misperception so they say your brain is asleep but you're not feeling it, has there been any recent changes to that? 

 

I just don't know what to do about this anymore.  Today is so, so bad in terms of fatigue and I went to bed at a proper hour and "slept" through but I kept waking up here and there.  I can barely hold myself upright today it's just awful.  If this gets any worse I'm going to be in bed all the time.  I just can't take it.  There has to be a solution to this.


Partly recovered from AD withdrawal/reactions as well as issues with other psych drugs.  Also, I am not a medical professional and nothing I say is a medical opinion or meant to be medical advice, please seek a competent and trusted medical professional to consult for all medical decisions. Also due to the withdrawal/reactions I have had I may at times have cognitive problems so please keep this in mind when reading my posts (also please note, these issues are improving as I recover).

 


#78 btdt

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Posted 04 February 2015 - 10:35 PM

I am not sure about the sleep state misperception... I have not had testing recently.  It requires testing to see how the electricity in your brain is behaving it requires nothing of you... just sit or lay there the machine does the work if you wanted to look into it.. if you searching for other with this or want to read more pp it was iwowi who had it too...

 

you can find things from pp at wayback machine. 

 

I doubt there is anything they can do about it other than drug you... and I am NOT going there again... I react badly to everything so it is no longer in the cards for me... I have reached my drugging saturation point. 

 

I had a paradoxical reaction to a benzo in 2008 and there will never be another benzo or anything like it in my body.....never and yes that is a long time.  

I have thought about this about the day they put me in care as it will likely happen and I need to hire a hit man to come and off me when that happens and I am not staying here to be tortured by any further drug experiments. So I guess I have better save up my money or a bottle or two of pills and do it myself. 

 

I keep looking for answers think there is one don't know what it is. 

 

I don't sleep now I have times I sleep and times I don't sleep... i am in a bout of time I don't sleep. 

 

just how it is 


WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivinganti...ng-myself-btdt/

There is a crack in everything ..That's how the light gets in :)


#79 btdt

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Posted 05 February 2015 - 02:09 AM

adrenals and cfs I have heard I think but not kidneys

http://survivinganti...s-sex-hormones/


WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivinganti...ng-myself-btdt/

There is a crack in everything ..That's how the light gets in :)


#80 UnfoldingSky

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Posted 06 February 2015 - 04:11 PM

I am not sure about the sleep state misperception... I have not had testing recently.  It requires testing to see how the electricity in your brain is behaving it requires nothing of you... just sit or lay there the machine does the work if you wanted to look into it.. if you searching for other with this or want to read more pp it was iwowi who had it too...

 

you can find things from pp at wayback machine. 

 

I doubt there is anything they can do about it other than drug you... and I am NOT going there again... I react badly to everything so it is no longer in the cards for me... I have reached my drugging saturation point. 

 

I had a paradoxical reaction to a benzo in 2008 and there will never be another benzo or anything like it in my body.....never and yes that is a long time.  

I have thought about this about the day they put me in care as it will likely happen and I need to hire a hit man to come and off me when that happens and I am not staying here to be tortured by any further drug experiments. So I guess I have better save up my money or a bottle or two of pills and do it myself. 

 

I keep looking for answers think there is one don't know what it is. 

 

I don't sleep now I have times I sleep and times I don't sleep... i am in a bout of time I don't sleep. 

 

just how it is 

 

I can't tolerate benzos either, no way I'd take them ever again. I don't blame you.

 

I was so out of it when I posted this it didn't even occur to me that of course they likely can't give me anything other than drugs.  Thanks for the reminder.  Looks like bad sleep is hitting me worse than I thought it was.

 

I am sorry you are having a no sleep bout.  I find mine is lots one day and the next very little.  Usually anyway. 

 

I really hope you don't ever wind up needing to be put in care, I hope and pray you find solutions to your health problems before it comes to that. I worry about winding up there too.  Although years ago I know there were a few for people with little money where they didn't drug people a lot.  Who knows if they still exist though.  I don't want to be in one anyway, drugs or no drugs.


Partly recovered from AD withdrawal/reactions as well as issues with other psych drugs.  Also, I am not a medical professional and nothing I say is a medical opinion or meant to be medical advice, please seek a competent and trusted medical professional to consult for all medical decisions. Also due to the withdrawal/reactions I have had I may at times have cognitive problems so please keep this in mind when reading my posts (also please note, these issues are improving as I recover).

 


#81 btdt

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Posted 06 February 2015 - 06:53 PM

I doubt anyone wants to go... but it is not what you want but what you get.  Today the supreme court here decided it was unconstitutional to forbid doctor assisted suicide so that is one out if your sick enough terminal and going to die in 6 months it goes back to parliament for them to work out a new law they have a year to fix it.  So that is 6 months off the suffering sentence thing is how do people drugged out of their heads decide such things... tricky situation.  

 

I have been having trouble with sleep a long time again... 

I broke down yesterday and took a kids gravol I usually take half but I was at a bad spot ... wanted to just break stuff... all and any stuff... so it was time.  It does work to help me sleep but I can't take any more now for at least a wk that is the deal I made with me... I have used maybe two this year.  I have had T3 and am always  in pain so they usually help me sleep now with no T3 doc said no... due to stomach ect... so I have to deal I guess... or go see her again... have not decided waiting to see how it goes hoping for the best. 

 

I know this type of drug does cause dementia and so don't like to play with any of them... but there comes a time I have to reach... as it gets too out of hand.  I slept 6 hours that is a start... hope I sleep tonight on my own.  I think sometimes one small helper like that resets the time to sleep.  It doesn't always work.  

 

That is what I have learned in 7 years of this crap.  Really tho I am much better than the early days and I can only be thankful for that as I see others there .. it reminds me how very grueling it was.  

peace


WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivinganti...ng-myself-btdt/

There is a crack in everything ..That's how the light gets in :)


#82 westcoast

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Posted 07 February 2015 - 08:46 AM

There is a difference between insomnia due to excessive worrying, and what we experience. I feel like my brain does not make the right chemicals that cause sleepiness anymore. Constant vigil. I try to imagine what it would feel like not to be in meerkat mode all day and night. To just cruise around doing stuff without thinking about it. And to just go to bed and fall asleep. It's been two years of this now, and I feel worn out. But I must add that I feel as though I am improving. I start a 7am to noon class on. Monday, for 16 weeks, five days a week, plus a Saturday class from 9am to 2pm. Having to get up at 5am might turn out to be good for me. Having a lot of work to do is bound to be good, too.

Btdt, I hope you do experience a bout of decent sleep soon.

2009: Cancer hospital said I had adjustment disorder because I thought they were doing it wrong. Their headshrinker prescribed Effexor, and my life set on a new course. I didn't know what was ahead, like a passenger on Disneyland's Matterhorn, smiling and waving as it climbs...clink, clink, clink.

2010: Post surgical accidental Effexor discontinuation by nurses, masked by intravenous Dilaudid. (The car is balanced at the top of the track.) I get home, pop a Vicodin, and ...

Whooosh...down, down, down, down, down...goes the trajectory of my life, up goes my mood and tendency to think everything is a good idea.
2012: After the bipolar jig was up, now a walking bag of unrelated symptoms, I went crazy on Daytrana (the Ritalin skin patch by Noven), because ADHD was a perfect fit for a bag of unrelated symptoms. I was prescribed Effexor for the nervousness of it, and things got neurological. An EEG showed enough activity to warrant an epilepsy diagnosis rather than non-epileptic ("psychogenic") seizures.

:o 2013-2014: Quit everything and got worse. I probably went through DAWS: dopamine agonist withdrawal syndrome. I drank to not feel, but I felt a lot: dread, fear, regret, grief: an utter sense of total loss of everything worth breathing about, for almost two years.

I was not suicidal but I wanted to be dead, at least dead to the experience of my own brain and body.

2015: I  began to recover after adding virgin coconut oil and organic grass-fed fed butter to a cup of instant coffee in the morning.

I did it hoping for mental acuity and better memory. After ten days of that, I was much better, mood-wise. Approximately neutral.

And, I experienced drowsiness. I could sleep. Not exactly happy, I did 30 days on Wellbutrin, because it had done me no harm in the past. 

I don't have the DAWS mood or state of mind. It never feel like doing anything if it means standing up.

In fact, I don't especially like moving. I'm a brain with a beanbag body.   :unsure:


#83 btdt

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Posted 07 February 2015 - 10:58 AM

Me too WC and thanks. Last night was bust... up till 5am got up yesterday at 6am no naps nothing slept till about 9 so it was something just not really enough... sleep is different when it is right you wake up feeling like you slept... not getting that yet hope it is soon. 


WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivinganti...ng-myself-btdt/

There is a crack in everything ..That's how the light gets in :)


#84 UnfoldingSky

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Posted 07 February 2015 - 05:03 PM

I doubt anyone wants to go... but it is not what you want but what you get.  Today the supreme court here decided it was unconstitutional to forbid doctor assisted suicide so that is one out if your sick enough terminal and going to die in 6 months it goes back to parliament for them to work out a new law they have a year to fix it.  So that is 6 months off the suffering sentence thing is how do people drugged out of their heads decide such things... tricky situation.  

 

I have been having trouble with sleep a long time again... 

I broke down yesterday and took a kids gravol I usually take half but I was at a bad spot ... wanted to just break stuff... all and any stuff... so it was time.  It does work to help me sleep but I can't take any more now for at least a wk that is the deal I made with me... I have used maybe two this year.  I have had T3 and am always  in pain so they usually help me sleep now with no T3 doc said no... due to stomach ect... so I have to deal I guess... or go see her again... have not decided waiting to see how it goes hoping for the best. 

 

I know this type of drug does cause dementia and so don't like to play with any of them... but there comes a time I have to reach... as it gets too out of hand.  I slept 6 hours that is a start... hope I sleep tonight on my own.  I think sometimes one small helper like that resets the time to sleep.  It doesn't always work.  

 

That is what I have learned in 7 years of this crap.  Really tho I am much better than the early days and I can only be thankful for that as I see others there .. it reminds me how very grueling it was.  

peace

 

Sounds like we caved on the same night, I had had it too and took a herb to help sleep.

 

It used to work but now I find it will bite back after the first night...sure enough tried it again last "night" (couldn't get to sleep until the sun came up) and woke up with a panic attack.  :wacko:

 

I hope you have better luck tonight...This sleep issue is so much nonsense I'm starting to get really mad about it, in the past two years I've had very few nights of proper sleep, and now I am thinking that accounts for why my immune function is so awful (have many problems that link to immune function being a problem.)

 

I wonder how it's contributing to your issues too.

 

Thanks for the head's up regarding the Supreme Court ruling, I don't get the news what with my new living arrangement under a rock but that was an issue I was interested in following.  Not sure what to make of it, will have to investigate further. 

 

Hope your night goes well,

 

US


Partly recovered from AD withdrawal/reactions as well as issues with other psych drugs.  Also, I am not a medical professional and nothing I say is a medical opinion or meant to be medical advice, please seek a competent and trusted medical professional to consult for all medical decisions. Also due to the withdrawal/reactions I have had I may at times have cognitive problems so please keep this in mind when reading my posts (also please note, these issues are improving as I recover).

 


#85 UnfoldingSky

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Posted 07 February 2015 - 05:09 PM

Also I found out just recently, apparently both low and high iron can cause fatigue, which makes me wonder if supplementing iron pushed me too high?

 

I didn't think I took a lot, but wonder if maybe something is wrong that pushed it too high?  I don't seem to have many of the other symptoms though, however I don't know how much of what I read about symptoms was true.  Of course for all I know high iron doesn't cause fatigue, I heard that on a TV show...Not really into the idea of seeing the doctor at the moment to get this sorted out.  I need more energy to do that...


Partly recovered from AD withdrawal/reactions as well as issues with other psych drugs.  Also, I am not a medical professional and nothing I say is a medical opinion or meant to be medical advice, please seek a competent and trusted medical professional to consult for all medical decisions. Also due to the withdrawal/reactions I have had I may at times have cognitive problems so please keep this in mind when reading my posts (also please note, these issues are improving as I recover).

 


#86 UnfoldingSky

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Posted 07 February 2015 - 05:19 PM

Well I just looked up high iron again seems it includes weight loss, if what I read was true...That's not me if it is then.

 

Why can't there be an easy solution to this? :(


Partly recovered from AD withdrawal/reactions as well as issues with other psych drugs.  Also, I am not a medical professional and nothing I say is a medical opinion or meant to be medical advice, please seek a competent and trusted medical professional to consult for all medical decisions. Also due to the withdrawal/reactions I have had I may at times have cognitive problems so please keep this in mind when reading my posts (also please note, these issues are improving as I recover).

 


#87 btdt

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Posted 07 February 2015 - 09:00 PM

It likely is fairly easy I will bet it is. I bet people know all about it inside and out.  They are just not going to tell us. 

Ok it is not going to be easy like a person in wd who can't think can figure it out but if you had an education in chemistry and biology and your brain was still working fine I would bet dollars to donuts it is already known... just not public. Just my take on it all.  yep cynic.


WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivinganti...ng-myself-btdt/

There is a crack in everything ..That's how the light gets in :)


#88 btdt

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Posted 07 February 2015 - 10:41 PM

Link I want to check out may be helpful

http://survivinganti...e-prozac/page-3

 

don't have the brain for it  now

The neurotransmitters GABA and glutamate both appear to be dysregulated in fibromyalgia (FMS) andchronic fatigue syndrome (ME/CFS). This may contribute to symptoms; altering activity of these substances may help alleviate symptoms. (For a look at the roles of GABA and glutamate in FMS and ME/CFS and the related symptoms, see: GABA & Glutamate: Part 1.)


WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivinganti...ng-myself-btdt/

There is a crack in everything ..That's how the light gets in :)


#89 rainy

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Posted 08 February 2015 - 07:33 AM

I absolutely agree with this line of theory. I'm not sure if these links below have been posted yet, but they make sense to me. I believe that CFS is probably caused by exposure to toxicants. It makes sense to me that fibromyalgia, CFS, kindling from the iatrogenic use of antidepressants and benzodiazepines and withdrawal, as well as kindling from repeated withdrawals after substance abuse are all neurological maladaptations that manifest as hypersensitivities. People with protracted withdrawal share so many of the same symptoms as people with CFS, as noted in this link: http://www.cortjohns...y-series-pt-ii/

 

This doctor proposes the TILT theory (toxicant-induced loss of tolerance) to explain the kindling that occurs in withdrawal and autoimmune diseases: http://www.tldp.com/...oxicantin.htm. 

 

Perhaps further research in this area will point to a way to help us overcome these neurological maladaptations. I'm going to try the neurological retraining and see if it helps me. 



#90 btdt

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Posted 08 February 2015 - 11:04 PM

I absolutely agree with this line of theory. I'm not sure if these links below have been posted yet, but they make sense to me. I believe that CFS is probably caused by exposure to toxicants. It makes sense to me that fibromyalgia, CFS, kindling from the iatrogenic use of antidepressants and benzodiazepines and withdrawal, as well as kindling from repeated withdrawals after substance abuse are all neurological maladaptations that manifest as hypersensitivities. People with protracted withdrawal share so many of the same symptoms as people with CFS, as noted in this link: http://www.cortjohns...y-series-pt-ii/

 

This doctor proposes the TILT theory (toxicant-induced loss of tolerance) to explain the kindling that occurs in withdrawal and autoimmune diseases: http://www.tldp.com/...oxicantin.htm. 

 

Perhaps further research in this area will point to a way to help us overcome these neurological maladaptations. I'm going to try the neurological retraining and see if it helps me. 

 

I hope it works for you please report back 

http://phoenixrising...-syndrome-mecfs

 

I read about it here and feel I have many of these things in my tool box or have had.. it is difficult to maintain at times when life makes more extreme demands... likely just when we need it most .. we stop using it.  

I have doubts this will actually heal cfs but may help manage it .

Looking forward to hearing your take oh how it went. 

peace


WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivinganti...ng-myself-btdt/

There is a crack in everything ..That's how the light gets in :)


#91 UnfoldingSky

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Posted 11 February 2015 - 06:34 AM

westcoast posted a link to an article about CFS being renamed just recently:

 

http://survivinganti...ets-a-new-name/


Partly recovered from AD withdrawal/reactions as well as issues with other psych drugs.  Also, I am not a medical professional and nothing I say is a medical opinion or meant to be medical advice, please seek a competent and trusted medical professional to consult for all medical decisions. Also due to the withdrawal/reactions I have had I may at times have cognitive problems so please keep this in mind when reading my posts (also please note, these issues are improving as I recover).

 


#92 UnfoldingSky

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Posted 11 February 2015 - 06:38 AM

The new name is “systemic exertion intolerance disease”.

 

I don't think I like it very much, it sounds like a psych label.  Or like you are allergic to work. 


Partly recovered from AD withdrawal/reactions as well as issues with other psych drugs.  Also, I am not a medical professional and nothing I say is a medical opinion or meant to be medical advice, please seek a competent and trusted medical professional to consult for all medical decisions. Also due to the withdrawal/reactions I have had I may at times have cognitive problems so please keep this in mind when reading my posts (also please note, these issues are improving as I recover).

 


#93 clearday

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Posted 12 February 2015 - 09:01 AM

After six years of Prozac, I stopped cold turkey out of ignorance in 2003. Four months later, I suffered acute catastrophic WD, followed by three years of Chronic Fatigue. It was a living hell.

 

Among so many other possible causes, I considered Chronic Fatigue Syndrome. But I was able to rule that out. 

 

It is clear that my case involved debilitating chronic fatigue, but that it was different than Chronic Fatigue Syndrome; it was Protracted SSRI Withdrawal Syndrome, which often includes chronic fatigue. For me, the fatigue was in part due to the destruction of restorative sleep patterns due to SSRI use. I knew this because I had only two types of days during WD: tolerable or miserable. And the miserable days happened when I did not get restorative sleep, regardless of sleep duration. I quickly realized that sleep was a major player in my WD syndrome.

 

This would become even more clear to me when sadly I went back on an SSRI many years after the Prozac ordeal, still not knowing that Prozac had caused all that fatigue. This time it would be Lexapro, which also interfered with my restorative sleep. 

 

I went through a recent insomnia wave during WD, and came out of it with my deep sleep patterns finally restored after not having them for years. Being off the Lexapro restored the REM sleep to better levels than during all those years on Lexapro.


Hell hath no fury as an SSRI scorned.....

 

Prozac:   20 mg 1996 – May 2003 CT to 0 mg; by Aug 03 CRASH then protracted WD 3 yrs

Zoloft:    2004 few weeks;, CT to 0 mg

Effexor:  2005 few months CT to 0 mg; bad withdrawal. 

Lexapro:  10 mg from 2009 – 2011; cut dose in half to:

Lexapro:    5 mg from 2011 – Feb. 2014; CT to 0 mg; 2 months of fatigue, followed by:
Aug - Oct 2014 Lexapro WD Insomnia Wave; sleeping very good from Nov 2014 - Nov 2015; broken sleep pattern Dec 2015 - Jan 2016

Dec 2014 - present: Brutal Lexapro WD ear ringing/head ringing/head pressure lasting for 14 months now.

 

24 months SSRI-free  


#94 btdt

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Posted 12 February 2015 - 07:27 PM

westcoast posted a link to an article about CFS being renamed just recently:

 

http://survivinganti...ets-a-new-name/

 alex3619 January 30, 2015 at 9:21 pm

I don't think the name will change to anything good till we have a biomarker or cause. If anyone comes up with a new name that sticks without having a biomarker or cause it will be tainted within a year. Zero gain. The science will have to come first for a new name to have real value. At that point it will be the experts who give it to us, although it would be nice if we could be consulted for a change.

http://phoenixrising.me/archives/26201

I could not say it better so just copied it.


WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivinganti...ng-myself-btdt/

There is a crack in everything ..That's how the light gets in :)


#95 btdt

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Posted 12 February 2015 - 07:29 PM

I absolutely agree with this line of theory. I'm not sure if these links below have been posted yet, but they make sense to me. I believe that CFS is probably caused by exposure to toxicants. It makes sense to me that fibromyalgia, CFS, kindling from the iatrogenic use of antidepressants and benzodiazepines and withdrawal, as well as kindling from repeated withdrawals after substance abuse are all neurological maladaptations that manifest as hypersensitivities. People with protracted withdrawal share so many of the same symptoms as people with CFS, as noted in this link: http://www.cortjohns...y-series-pt-ii/

 

This doctor proposes the TILT theory (toxicant-induced loss of tolerance) to explain the kindling that occurs in withdrawal and autoimmune diseases: http://www.tldp.com/...oxicantin.htm. 

 

Perhaps further research in this area will point to a way to help us overcome these neurological maladaptations. I'm going to try the neurological retraining and see if it helps me. 

Rain did you happen to keep a copy of the information at this link

http://www.tldp.com/...oxicantin.htm. 

 

the link has gone 404 something that happens all the time if you find something you think it important make a hard copy on a USB as a lot of stuff that is not in favor of pharma disappears off the net... 

If you happen to have a copy would you please post it here 

thanks and peace


WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivinganti...ng-myself-btdt/

There is a crack in everything ..That's how the light gets in :)


#96 btdt

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Posted 12 February 2015 - 07:34 PM

video on it...TILT

not sure it is exactly the same..


WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivinganti...ng-myself-btdt/

There is a crack in everything ..That's how the light gets in :)


#97 UnfoldingSky

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Posted 12 February 2015 - 07:47 PM

After six years of Prozac, I stopped cold turkey out of ignorance in 2003. Four months later, I suffered acute catastrophic WD, followed by three years of Chronic Fatigue. It was a living hell.

 

Among so many other possible causes, I considered Chronic Fatigue Syndrome. But I was able to rule that out. 

 

It is clear that my case involved debilitating chronic fatigue, but that it was different than Chronic Fatigue Syndrome; it was Protracted SSRI Withdrawal Syndrome, which often includes chronic fatigue. For me, the fatigue was in part due to the destruction of restorative sleep patterns due to SSRI use. I knew this because I had only two types of days during WD: tolerable or miserable. And the miserable days happened when I did not get restorative sleep, regardless of sleep duration. I quickly realized that sleep was a major player in my WD syndrome.

 

This would become even more clear to me when sadly I went back on an SSRI many years after the Prozac ordeal, still not knowing that Prozac had caused all that fatigue. This time it would be Lexapro, which also interfered with my restorative sleep. 

 

I went through a recent insomnia wave during WD, and came out of it with my deep sleep patterns finally restored after not having them for years. Being off the Lexapro restored the REM sleep to better levels than during all those years on Lexapro.

 

Thank you so much for posting this clearday, it gives me some hope that maybe there will be an end to this for us. 


Partly recovered from AD withdrawal/reactions as well as issues with other psych drugs.  Also, I am not a medical professional and nothing I say is a medical opinion or meant to be medical advice, please seek a competent and trusted medical professional to consult for all medical decisions. Also due to the withdrawal/reactions I have had I may at times have cognitive problems so please keep this in mind when reading my posts (also please note, these issues are improving as I recover).

 


#98 UnfoldingSky

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Posted 12 February 2015 - 07:50 PM

I don't think the name will change to anything good till we have a biomarker or cause. If anyone comes up with a new name that sticks without having a biomarker or cause it will be tainted within a year. Zero gain. The science will have to come first for a new name to have real value. At that point it will be the experts who give it to us, although it would be nice if we could be consulted for a change.

http://phoenixrising.me/archives/26201

I could not say it better so just copied it.

 

 

Agree, think I need a like button for this.


Partly recovered from AD withdrawal/reactions as well as issues with other psych drugs.  Also, I am not a medical professional and nothing I say is a medical opinion or meant to be medical advice, please seek a competent and trusted medical professional to consult for all medical decisions. Also due to the withdrawal/reactions I have had I may at times have cognitive problems so please keep this in mind when reading my posts (also please note, these issues are improving as I recover).

 


#99 btdt

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Posted 12 February 2015 - 08:25 PM

After six years of Prozac, I stopped cold turkey out of ignorance in 2003. Four months later, I suffered acute catastrophic WD, followed by three years of Chronic Fatigue. It was a living hell.

 

Among so many other possible causes, I considered Chronic Fatigue Syndrome. But I was able to rule that out. 

 

It is clear that my case involved debilitating chronic fatigue, but that it was different than Chronic Fatigue Syndrome; it was Protracted SSRI Withdrawal Syndrome, which often includes chronic fatigue. For me, the fatigue was in part due to the destruction of restorative sleep patterns due to SSRI use. I knew this because I had only two types of days during WD: tolerable or miserable. And the miserable days happened when I did not get restorative sleep, regardless of sleep duration. I quickly realized that sleep was a major player in my WD syndrome.

 

This would become even more clear to me when sadly I went back on an SSRI many years after the Prozac ordeal, still not knowing that Prozac had caused all that fatigue. This time it would be Lexapro, which also interfered with my restorative sleep. 

 

I went through a recent insomnia wave during WD, and came out of it with my deep sleep patterns finally restored after not having them for years. Being off the Lexapro restored the REM sleep to better levels than during all those years on Lexapro.

 

Not being picky but how do you know what was going on in your sleep cycle ... sleep tests?  

 

Did you have testing that showed you did not get restorative sleep?  

 

I am not saying you did not have all this I just wonder if testing was done.  I sure hope your right and I hope your sleep is fine now that would be amazingly wonderful... restorative sleep... 

I have come to think of it as something for kids... or "elite others"  I have had some good sleeps since this started but not that many and NONE like I use to have where I just wake up feeling good in the morning... 

 

can't imagine for instance wanting sex on waking bad enough to forget morning breath .. but I know I have.. lol 

 

waking now is a grudging time.. not sure if that works but feels right so I am leaving it. 


WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivinganti...ng-myself-btdt/

There is a crack in everything ..That's how the light gets in :)


#100 clearday

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Posted 13 February 2015 - 07:42 AM

UnfoldingSky, on 12 Feb 2015 - 10:47 PM, said: Thank you so much for posting this clearday, it gives me some hope that maybe there will be an end to this for us. 

 

 

It has been three months now that I have this new restorative sleep. I hope it lasts! The course of WD and recovery is so mysterious and unique for each of us - but at least there are some common patterns, I guess that is what we are all trying to find here - hope that the good things which happen to others happens to us too, and hoping that the bad things which happen to others doesn't happen to us - but bracing ourselves in case it does;

 

sadly the main thing we have in common is that we are going through hell and trying to get through it as best as we can -

 

have you read this very inspiring post?

 

http://survivinganti...zoloft +success


Hell hath no fury as an SSRI scorned.....

 

Prozac:   20 mg 1996 – May 2003 CT to 0 mg; by Aug 03 CRASH then protracted WD 3 yrs

Zoloft:    2004 few weeks;, CT to 0 mg

Effexor:  2005 few months CT to 0 mg; bad withdrawal. 

Lexapro:  10 mg from 2009 – 2011; cut dose in half to:

Lexapro:    5 mg from 2011 – Feb. 2014; CT to 0 mg; 2 months of fatigue, followed by:
Aug - Oct 2014 Lexapro WD Insomnia Wave; sleeping very good from Nov 2014 - Nov 2015; broken sleep pattern Dec 2015 - Jan 2016

Dec 2014 - present: Brutal Lexapro WD ear ringing/head ringing/head pressure lasting for 14 months now.

 

24 months SSRI-free  


#101 btdt

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Posted 05 March 2015 - 06:02 PM

Doctor who wrote a book lists 23 drugs to treat this.... 

 

"At the height of my worst episode of ME/CFS, I took a 10 mg tablet of isosorbide dinitrate (Isordil), which is essentially a longer acting form of nitroglycerin. I went from being bed bound to working full time in three days. Within three more weeks, I had achieved complete remission of all symptoms, and I remained that way for almost all of the next eight years. I didn't even need the Isordil during that time.


However, as you may have gathered, I had a major relapse eight years later, a day after some minor surgery. And tolerance to nitroglycerin or isosorbide dinitrate can develop quickly; it never worked the same for me. However, some people are able to derive great benefits from it for long periods of time.

@zzz, that is an extraordinary story! I read your above-quoted post, and then started reading several more of you forum posts (some of which I have quoted below) on your ME/CFS remission for 8 years after taking just one isosorbide dinitrate tablet. I am amazed. It seems that there could be much to learn here; your remission could shed a lot of light on the nature of ME/CFS.

May I ask, did any physical ME/CFS symptoms you may have had also go into remission after taking the single dose of isosorbide dinitrate? Physical symptoms such as cardiac problems, orthostatic intolerance, bowel symptoms, muscle weakness or pain, cold hands and feet, swollen lymph nodes, recurrent sore throat, blurred vision.




zzz said: 
Dr. Jay Goldstein published Betrayal by the Brain, in which he listed 23 medications that either singly or in combination could produce either partial or full remission of ME/CFS in most people, often in a matter of a day or two - just as I had experienced. Nitroglycerin was #2 on his list. In a section called "Limbic Regulation by Nitric Oxide," he spends eight pages answering your question about how nitric oxide works. That's a little much for me to type in here, but the first sentence is quite revealing: "Nitric oxide (NO) is the primary vasodilator in the brain."

This book plus its successor, Tuning the Brain, published in 2003, effectively form a single volume where the Goldstein protocol is defined. I finally figured out how to follow it a few months ago, and I've had excellent results so far.

For anyone interested, Dr Goldstein's list of 23 best ME/CFS medications is to be found here. I will just copy this list below:


Dr Jay Goldstein's Top 23 Drugs For ME/CFS Treatment

Drug | Time to Onset of Action | Duration of Action

(1) Naphazoline HCL 0.01% eye drops | 2 - 3 seconds | 3 - 6 hours
(2) Nitroglycerin 0.04 mg sublingual | 2 - 3 minutes | 3 - 6 hours
(3) Nimodipine 30 mg oral | 20 - 40 minutes | 4 - 8 hours
(4) Gabapentin 100 to 800 mg oral | 30 minutes | 8 hours
(5) Baclofen 10 mg | 30 minutes | 8 hours
(6) Oxytocin 5 to 10 U intramuscular, or twice daily;
OR: Syntocinon 1 or 2 puffs three times a day | 15 minutes - 72 hrs | 12 - 24 hours
(7) Pyridostigmine 30 to 60 mg oral | 30 minutes | 4 - 6 hours
(8) Hydralazine 10 to 25 mg oral | 30 - 45 minutes | 6 - 12 hours
(9) Mexiletine 150 mg oral | 30 - 45 minutes | 6 - 8 hours
(10) Tacrine 10 mg | 30 minutes | 4 - 6 hours
(11) Risperidone 0.25 to 0.5 mg | 45 - 60 minutes | 8 - 12 hours
(12) Pindolol 5 mg twice a day | 15 minutes - 7 days | 12 hours
(13) Lamotrigine 25 to 50 mg four times a day | 30 - 45 minutes | 24 hours
(14) Sumatriptan 3 - 6 mg subcutaneous | 15 - 30 minutes | 16 hours
(15) Ranitidine 150 mg twice a day | 1 hour - 1 week | 12 - 24 hours
(16) Doxepin HCL elixir 2 - 20 mg at bedtime | 1 hour | variable
(17) Sertraline 25 to 50 mg every day before noon;
OR: Paroxetine 10 to 20 mg every day before noon | 1 hour - 8 weeks | 1 - 2 days
(18) Bupropion 100 mg three times a day | 30 minutes - 8 weeks | 8 - 24 hours
(19) Nefazodone 100 to 300 mg twice a day | 2 - 8 weeks | 24 hours
(20) Venlafaxine 37.5 to 75 mg twice a day | 1 - 4 weeks | 24 hours
(21) Glycine powder 0.4 grams per Kg of body weight daily in juice;
OR: Cycloserine 15 to 20 mg four times a day | 1 hour | 24 hours
(22) Felbamate 400 mg | 30 minutes | 6 - 8 hours
(23) Lidocaine 200 to 300 mg"
 

from the cfs site 

http://forums.phoeni...16/#post-533495


WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivinganti...ng-myself-btdt/

There is a crack in everything ..That's how the light gets in :)


#102 btdt

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Posted 05 March 2015 - 06:04 PM

I have tried and sufferred thru many of those drugs already..seems odd drugs that do the opposite could treat the same thing. another goof trying to make a buck... 

I don't know. 


WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivinganti...ng-myself-btdt/

There is a crack in everything ..That's how the light gets in :)


#103 UnfoldingSky

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Posted 08 March 2015 - 07:50 PM

 

UnfoldingSky, on 12 Feb 2015 - 10:47 PM, said: Thank you so much for posting this clearday, it gives me some hope that maybe there will be an end to this for us. 

 

 

 

It has been three months now that I have this new restorative sleep. I hope it lasts! The course of WD and recovery is so mysterious and unique for each of us - but at least there are some common patterns, I guess that is what we are all trying to find here - hope that the good things which happen to others happens to us too, and hoping that the bad things which happen to others doesn't happen to us - but bracing ourselves in case it does;

 

 

sadly the main thing we have in common is that we are going through hell and trying to get through it as best as we can -

 

 

have you read this very inspiring post?

 

 

http://survivinganti...zoloft +success

 

 

clearday, I don't know how I missed your post.  I'll have to check out that link.  Is your sleep still on track?


Partly recovered from AD withdrawal/reactions as well as issues with other psych drugs.  Also, I am not a medical professional and nothing I say is a medical opinion or meant to be medical advice, please seek a competent and trusted medical professional to consult for all medical decisions. Also due to the withdrawal/reactions I have had I may at times have cognitive problems so please keep this in mind when reading my posts (also please note, these issues are improving as I recover).

 


#104 UnfoldingSky

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Posted 08 March 2015 - 07:51 PM

I have tried and sufferred thru many of those drugs already..seems odd drugs that do the opposite could treat the same thing. another goof trying to make a buck... 

I don't know. 

 

I think you're right, sounds like a goof to me too. 

 

I mean, Risperdal for CFS?  If anything it causes it...


Partly recovered from AD withdrawal/reactions as well as issues with other psych drugs.  Also, I am not a medical professional and nothing I say is a medical opinion or meant to be medical advice, please seek a competent and trusted medical professional to consult for all medical decisions. Also due to the withdrawal/reactions I have had I may at times have cognitive problems so please keep this in mind when reading my posts (also please note, these issues are improving as I recover).

 


#105 westcoast

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Posted 08 March 2015 - 08:17 PM

^ What UF said. Holy cow. That takes the cake.


2009: Cancer hospital said I had adjustment disorder because I thought they were doing it wrong. Their headshrinker prescribed Effexor, and my life set on a new course. I didn't know what was ahead, like a passenger on Disneyland's Matterhorn, smiling and waving as it climbs...clink, clink, clink.

2010: Post surgical accidental Effexor discontinuation by nurses, masked by intravenous Dilaudid. (The car is balanced at the top of the track.) I get home, pop a Vicodin, and ...

Whooosh...down, down, down, down, down...goes the trajectory of my life, up goes my mood and tendency to think everything is a good idea.
2012: After the bipolar jig was up, now a walking bag of unrelated symptoms, I went crazy on Daytrana (the Ritalin skin patch by Noven), because ADHD was a perfect fit for a bag of unrelated symptoms. I was prescribed Effexor for the nervousness of it, and things got neurological. An EEG showed enough activity to warrant an epilepsy diagnosis rather than non-epileptic ("psychogenic") seizures.

:o 2013-2014: Quit everything and got worse. I probably went through DAWS: dopamine agonist withdrawal syndrome. I drank to not feel, but I felt a lot: dread, fear, regret, grief: an utter sense of total loss of everything worth breathing about, for almost two years.

I was not suicidal but I wanted to be dead, at least dead to the experience of my own brain and body.

2015: I  began to recover after adding virgin coconut oil and organic grass-fed fed butter to a cup of instant coffee in the morning.

I did it hoping for mental acuity and better memory. After ten days of that, I was much better, mood-wise. Approximately neutral.

And, I experienced drowsiness. I could sleep. Not exactly happy, I did 30 days on Wellbutrin, because it had done me no harm in the past. 

I don't have the DAWS mood or state of mind. It never feel like doing anything if it means standing up.

In fact, I don't especially like moving. I'm a brain with a beanbag body.   :unsure:


#106 btdt

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Posted 08 March 2015 - 11:09 PM

It does seem like he was using the ideas of what shrinks at the time were doing.. same pattern give a drug and see what it does but he had kind of a plan... some people claimed to have been healed instantly. 

One person said nitroglicerine... heart drug likely spelled wrong.  That would make sense if like what somebody else said about their brain scan the blood was not flowing in their brain maybe that drug fixed it... the other drugs... some seem ridiculous.  Seriously is that not the same thing shirnks did in the 90s just keep trying different drugs seems it was a accepted practice then maybe it still is... and if it is ok for shrinks why not other docs... 

 

Could you see it... any time there is not a test for something to know what drug to give just throw the entire pharmacy at them... see what sticks. 

I am taking vitmain E liver doc said to... I think maybe that could help blood flow to the brain but it would be sticky... I feel sticky... sounds mad I know as it is suppose to help blood flow I think... but it makes me feel sticky on my skin in a odd way. 

 

I read a new site tonight that claims a cure... well a lot of things to try for a cure... including probiotics. 

 

http://www.cortjohns...-series-begins/

 

says not to to take lacotbacillius probiotics except l reuteri and to take a specific one... Mutaflor... says he has had three bouts of cfs... 

each time cured it for awhile... at least seems like a smart guy may read it again sometime there was another prebiotic too he said prescript or something... not going back again I am going to bed.... 

not sure about any of it...

 

I graze by sites and pick up what may be useful here and there... not one to try much too chicken. 

peace all


WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivinganti...ng-myself-btdt/

There is a crack in everything ..That's how the light gets in :)


#107 UnfoldingSky

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Posted 14 March 2015 - 05:42 PM

btdt, I think they probably do throw drugs and see which one sticks...

 

Some of us seem to be teflon though so not much help for us it seems.


Partly recovered from AD withdrawal/reactions as well as issues with other psych drugs.  Also, I am not a medical professional and nothing I say is a medical opinion or meant to be medical advice, please seek a competent and trusted medical professional to consult for all medical decisions. Also due to the withdrawal/reactions I have had I may at times have cognitive problems so please keep this in mind when reading my posts (also please note, these issues are improving as I recover).

 


#108 btdt

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Posted 14 March 2015 - 05:55 PM

There are some things that may be partly right like drugs to increase blood flow the brain... I wish I was teflon

What seems like a summer shower to some is sandblasting to me... oh to be teflon coated... what a dream. 

"Some of us seem to be teflon though so not much help for us it seems."


WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivinganti...ng-myself-btdt/

There is a crack in everything ..That's how the light gets in :)