Pugknows Posted February 10, 2015 Share Posted February 10, 2015 We will get better, JDM. I look like most of the science experiments growing in my fridge. January 2012 - Prescribed 900mg gabapentin and 30mg Norco for lower lumber spinal stenosis pain. September 2013 - Spinal fusion surgery, 6 levels. Hospital ramped up meds 1500mg gabapentin, 100mg Norco, 80mg Oxycontin, 25mg Fentanyl patch. January 2014 - Sever nausea daily and with back pain every 4 hours. 2 trips to ER. First endoscopy found ulcer. Treated with Sucralfate and PPI. Second endo in May found no ulcers. Doctors said it was the opiates causing the nausea. CT'd Oxycontin, Fentanyl patch. July 2014 - Lost 48 lbs. due to not eating because of severe nausea. GP prescribed Prozac 20mg and Ativan 2mg prn. Tried for 4 days, quit. Two week followup GP said keep taking Prozac. 4 days, quit again. Ativan taken rarely prn for anxiety and appetite. August 2014 - Went to detox. Off opiates. Still nauseous, helmet head, drugged feeling. Doctor CT'd gabapentin. Ended up in ER. Found 2 gallstones. Gabapentin reinstated at 900mg. Tried botched up and down taper to get off Gabapentin. No tapering advice from doctor. Said to just CT again. September 2014 - Coded on table during gallbladder surgery. Developed liver biloma due to CPR by doctor. Had bile bulb inserted for 2 wks to drain. October 2014 - Gallbladder removed. Still nauseous, 3am cortisol surging, drugged helmet head, vertigo, breathlessness, whooshing head, heart palps. November 8th, 2014 - CT'd gabapentin suggested by family and 4 different doctors. Was told no withdrawal is associated with gabapentin. Have been in hell ever since. No windows, just one big tsunami every day with same symptoms for 4 months. December 26, 2014 - Found SA. At least I know I'm not insane. My family thinks I'm doing this to myself. Akathesia has become unbearable. March 10, 2015 - In absolute daily hell with no relief. Currently taking magnesium 200mg before bedtime. Link to comment
Wildflower0214 Posted February 10, 2015 Author Share Posted February 10, 2015 We will get better, JDM. I look like most of the science experiments growing in my fridge. We will!!! I'm just so tired of the food situation. We need the nutrients to get better. I just want this to be over. Btw... I look like crap too. 2005-Zoloft bad reaction.....2006-Lexepro......2012-Upped Lexepro.......2013-Upped Lexepro......2/2014- Attempted Taper Lexepro...2/2014- Updosed Lexepro.......3/2014-Ativan.....5/2014- CT switch from Lexpro to Effexor..... 5/2014-7/2014-Tapered Ativan from 1mg to .25mg.....6/2014-Bad reaction to Effexor........7/2014- Rapid taper Effexor every other day......7/5/2014- Off Effexor.......7/2014-12/2014 - Ativan .25mg.......12/25/2014 -Taper Ativan by 4% due to paradoxical reaction .24mg...11/18/2015-Taper Ativan 1% CURRENTLY ON: .2376mg Ativan taken in 6 .0396mg doses. Link to comment
Pugknows Posted February 10, 2015 Share Posted February 10, 2015 Years ago I went out with a couple of guys I met on AOL. One had a toupee and lived in a trailer. One was a midget with a fat tongue. Even in our debilitated current state, JDM, we'd be considered prize hogs to those dudes. January 2012 - Prescribed 900mg gabapentin and 30mg Norco for lower lumber spinal stenosis pain. September 2013 - Spinal fusion surgery, 6 levels. Hospital ramped up meds 1500mg gabapentin, 100mg Norco, 80mg Oxycontin, 25mg Fentanyl patch. January 2014 - Sever nausea daily and with back pain every 4 hours. 2 trips to ER. First endoscopy found ulcer. Treated with Sucralfate and PPI. Second endo in May found no ulcers. Doctors said it was the opiates causing the nausea. CT'd Oxycontin, Fentanyl patch. July 2014 - Lost 48 lbs. due to not eating because of severe nausea. GP prescribed Prozac 20mg and Ativan 2mg prn. Tried for 4 days, quit. Two week followup GP said keep taking Prozac. 4 days, quit again. Ativan taken rarely prn for anxiety and appetite. August 2014 - Went to detox. Off opiates. Still nauseous, helmet head, drugged feeling. Doctor CT'd gabapentin. Ended up in ER. Found 2 gallstones. Gabapentin reinstated at 900mg. Tried botched up and down taper to get off Gabapentin. No tapering advice from doctor. Said to just CT again. September 2014 - Coded on table during gallbladder surgery. Developed liver biloma due to CPR by doctor. Had bile bulb inserted for 2 wks to drain. October 2014 - Gallbladder removed. Still nauseous, 3am cortisol surging, drugged helmet head, vertigo, breathlessness, whooshing head, heart palps. November 8th, 2014 - CT'd gabapentin suggested by family and 4 different doctors. Was told no withdrawal is associated with gabapentin. Have been in hell ever since. No windows, just one big tsunami every day with same symptoms for 4 months. December 26, 2014 - Found SA. At least I know I'm not insane. My family thinks I'm doing this to myself. Akathesia has become unbearable. March 10, 2015 - In absolute daily hell with no relief. Currently taking magnesium 200mg before bedtime. Link to comment
Pugknows Posted February 10, 2015 Share Posted February 10, 2015 I only brush my teeth at night time so I have plenty to eat throughout the day. January 2012 - Prescribed 900mg gabapentin and 30mg Norco for lower lumber spinal stenosis pain. September 2013 - Spinal fusion surgery, 6 levels. Hospital ramped up meds 1500mg gabapentin, 100mg Norco, 80mg Oxycontin, 25mg Fentanyl patch. January 2014 - Sever nausea daily and with back pain every 4 hours. 2 trips to ER. First endoscopy found ulcer. Treated with Sucralfate and PPI. Second endo in May found no ulcers. Doctors said it was the opiates causing the nausea. CT'd Oxycontin, Fentanyl patch. July 2014 - Lost 48 lbs. due to not eating because of severe nausea. GP prescribed Prozac 20mg and Ativan 2mg prn. Tried for 4 days, quit. Two week followup GP said keep taking Prozac. 4 days, quit again. Ativan taken rarely prn for anxiety and appetite. August 2014 - Went to detox. Off opiates. Still nauseous, helmet head, drugged feeling. Doctor CT'd gabapentin. Ended up in ER. Found 2 gallstones. Gabapentin reinstated at 900mg. Tried botched up and down taper to get off Gabapentin. No tapering advice from doctor. Said to just CT again. September 2014 - Coded on table during gallbladder surgery. Developed liver biloma due to CPR by doctor. Had bile bulb inserted for 2 wks to drain. October 2014 - Gallbladder removed. Still nauseous, 3am cortisol surging, drugged helmet head, vertigo, breathlessness, whooshing head, heart palps. November 8th, 2014 - CT'd gabapentin suggested by family and 4 different doctors. Was told no withdrawal is associated with gabapentin. Have been in hell ever since. No windows, just one big tsunami every day with same symptoms for 4 months. December 26, 2014 - Found SA. At least I know I'm not insane. My family thinks I'm doing this to myself. Akathesia has become unbearable. March 10, 2015 - In absolute daily hell with no relief. Currently taking magnesium 200mg before bedtime. Link to comment
Pugknows Posted February 10, 2015 Share Posted February 10, 2015 Figure what I ate at 9am should be safe to eat again at noon or 4. January 2012 - Prescribed 900mg gabapentin and 30mg Norco for lower lumber spinal stenosis pain. September 2013 - Spinal fusion surgery, 6 levels. Hospital ramped up meds 1500mg gabapentin, 100mg Norco, 80mg Oxycontin, 25mg Fentanyl patch. January 2014 - Sever nausea daily and with back pain every 4 hours. 2 trips to ER. First endoscopy found ulcer. Treated with Sucralfate and PPI. Second endo in May found no ulcers. Doctors said it was the opiates causing the nausea. CT'd Oxycontin, Fentanyl patch. July 2014 - Lost 48 lbs. due to not eating because of severe nausea. GP prescribed Prozac 20mg and Ativan 2mg prn. Tried for 4 days, quit. Two week followup GP said keep taking Prozac. 4 days, quit again. Ativan taken rarely prn for anxiety and appetite. August 2014 - Went to detox. Off opiates. Still nauseous, helmet head, drugged feeling. Doctor CT'd gabapentin. Ended up in ER. Found 2 gallstones. Gabapentin reinstated at 900mg. Tried botched up and down taper to get off Gabapentin. No tapering advice from doctor. Said to just CT again. September 2014 - Coded on table during gallbladder surgery. Developed liver biloma due to CPR by doctor. Had bile bulb inserted for 2 wks to drain. October 2014 - Gallbladder removed. Still nauseous, 3am cortisol surging, drugged helmet head, vertigo, breathlessness, whooshing head, heart palps. November 8th, 2014 - CT'd gabapentin suggested by family and 4 different doctors. Was told no withdrawal is associated with gabapentin. Have been in hell ever since. No windows, just one big tsunami every day with same symptoms for 4 months. December 26, 2014 - Found SA. At least I know I'm not insane. My family thinks I'm doing this to myself. Akathesia has become unbearable. March 10, 2015 - In absolute daily hell with no relief. Currently taking magnesium 200mg before bedtime. Link to comment
Pugknows Posted February 10, 2015 Share Posted February 10, 2015 JDM, I'll be thinking of you when my cortisol surges at 3am. January 2012 - Prescribed 900mg gabapentin and 30mg Norco for lower lumber spinal stenosis pain. September 2013 - Spinal fusion surgery, 6 levels. Hospital ramped up meds 1500mg gabapentin, 100mg Norco, 80mg Oxycontin, 25mg Fentanyl patch. January 2014 - Sever nausea daily and with back pain every 4 hours. 2 trips to ER. First endoscopy found ulcer. Treated with Sucralfate and PPI. Second endo in May found no ulcers. Doctors said it was the opiates causing the nausea. CT'd Oxycontin, Fentanyl patch. July 2014 - Lost 48 lbs. due to not eating because of severe nausea. GP prescribed Prozac 20mg and Ativan 2mg prn. Tried for 4 days, quit. Two week followup GP said keep taking Prozac. 4 days, quit again. Ativan taken rarely prn for anxiety and appetite. August 2014 - Went to detox. Off opiates. Still nauseous, helmet head, drugged feeling. Doctor CT'd gabapentin. Ended up in ER. Found 2 gallstones. Gabapentin reinstated at 900mg. Tried botched up and down taper to get off Gabapentin. No tapering advice from doctor. Said to just CT again. September 2014 - Coded on table during gallbladder surgery. Developed liver biloma due to CPR by doctor. Had bile bulb inserted for 2 wks to drain. October 2014 - Gallbladder removed. Still nauseous, 3am cortisol surging, drugged helmet head, vertigo, breathlessness, whooshing head, heart palps. November 8th, 2014 - CT'd gabapentin suggested by family and 4 different doctors. Was told no withdrawal is associated with gabapentin. Have been in hell ever since. No windows, just one big tsunami every day with same symptoms for 4 months. December 26, 2014 - Found SA. At least I know I'm not insane. My family thinks I'm doing this to myself. Akathesia has become unbearable. March 10, 2015 - In absolute daily hell with no relief. Currently taking magnesium 200mg before bedtime. Link to comment
Moderator Emeritus WiggleIt Posted February 10, 2015 Moderator Emeritus Share Posted February 10, 2015 I look soooo gross, too! I don't know why I put an exclamation point after that. Probably 'cause I'm just happy to bond with you guys. *I'm not a doctor and don't give medical advice, just personal experience **Off all meds since Nov. 2014. Mentally & emotionally recovered; physically not-Dual cold turkeys off TCA & Ativan in Oct 2014. Prescribed from 2011-2014 -All meds were Rxed off-label for an autoimmune illness. It was a MISDIAGNOSIS, but I did not find out until AFTER meds caused damage. All med tapers/cold turkeys directed by doctors -Nortriptyline May 2012 - Dec 2013. Cold turkey off nortrip & cold switched to desipramine -Desipramine Jan 2014 - Oct. 29, 2014 (rapid taper/cold turkey) -Lorazepam 1 mg per night during 2011 -Lorazepam 1 mg per month in 2012 (or less) -Lorazepam on & off, Dec 2013 through Aug 2014. Didn't exceed 3x a week -Lorazepam again in Oct. 2014 to help get off of desipramine. Last dose lzpam was 1 mg, Nov. 2, 2014. Immediate paradoxical reactions to benzos after stopping TCAs -First muscle/dystonia side effects started on nortriptyline, but docs too stupid to figure it out. On desipramine, muscle tremors & rigidity worsened -Two weeks after I got off all meds, I developed full-blown TD. Tardive dystonia, dyskinesia, myoclonic jerks ALL over body, ribcage wiggles, facial tics, twitching tongue & fingers, tremors/twitches of arms, legs, cognitive impairment, throat muscles semi-paralyzed & unable to swallow solid food, brain zaps, ears ring, dizzy, everything looks too far away, insomnia, numbness & electric shocks everywhere when I try to fall asleep, jerk awake from sleep with big, gasping breaths, wake with terrors & tremors, severely depressed. NO HISTORY OF DEPRESSION, EVER. Meds CREATED it. -Month 7: hair falling out; no vision improvement; still tardive dystonia; facial & tongue tics returned -Month 8: back to acute, incl. Grand Mal seizure-like episodes. New mental torment, PGAD, worse insomnia -Month 9: tardive dystonia worse, dyskinesia returned. Unable to breathe well due to dystonia in stomach, chest, throat -Month 13: Back to acute, brain zaps back, developed eczema & stomach problems. Left leg no longer works right due to dystonia, meaning both legs now damaged -7 years off: Huge improvements, incl. improved dystonia Link to comment
luv2knit Posted February 10, 2015 Share Posted February 10, 2015 Yep! Same here! I don't have the food sensitivity issues (just supplements), but I have now lost 30 pounds since September, and my skin is just hanging. Zoloft 100 mg. daily for Chronic Fatigue Syndrome since Oct. 1994 / Synthroid 88 mcg. daily / Supplements: Neptune Krill Oil-1,000 mg. twice daily/Astaxanthin 10 mg. twice daily/Ubiquinol 100 mg. twice daily (These 3 have allowed me to discontinue (approved by doctor) bp meds I was on. Calcium Citrate 500 mg. daily/Vitamin D3 2,400 iu daily/K2 (MK7) 100 mcg daily (osteopenia and fam. hist. of severe osteoporosis). Stress B Complex (1/2 dose)/Quercetin (for allergies/asthma)/Magnesium (400 mg. oral glycinate and about 50 mg. magnesium chloride spray oil a day, divided throughout day). Tapered Zoloft about 6 wks. Totally off since the end of July (25-29, 2014). 3 wks. vertigo at end of taper, then 3-4 wks. OK, followed by withdrawal symptoms increasing in severity (nausea, gastric disturbances, loss of appetite, insomnia, restlessness, jitters, anxiety, agitation--jumping out of my skin--possible akathisia?) Seem to have paradoxical reactions to everything new, even Vitamin C. Severity of akathisia comes and goes, but is constant to some degree. Hard to leave house, and cannot be home alone. (Retired) Link to comment
btdt Posted February 10, 2015 Share Posted February 10, 2015 I've done some research. I have histamine intolerance. I've had it for years, ever since they messed with my med a few years ago. And now it is out of control. Food problem explained.... But, now, what to do... there is a thread about histamine intolerance One time I was reading it I thought I would have done better to have found this information years earlier then later I thought that wasn't it... I don't know some things seem to fit me but not all I am not a perfect case of histamine intolerance perhaps for a time it applied but not any longer... it is not that for me. I don't think. I had started to take a look at how these drugs affect our glands that control our digestion... started a thread about it meaning to get back to it and work on a full understanding of it... exocrine glands they are called... like a lot of things I seem to start and then fail.. it is around here some place waiting for attention I was hoping some others with digestive issues would help with it but nobody seems interested in it. I have a certain amount of attention span or times I can focus on such things in one day some days that is zero. depending on the day... when digestion is an issue for me I tend to look... Like everything else in the world we first have to understand how it works before we can make any attempts to repair it. I don't think it is rocket science as kids learn these things.. from wikipedia... it can be done. It is just like pulling teeth alone sick and confused. I have laid the runs to rest with peto bismol... I know a drug of some sort but I was out of ideas and caved... really that is all it was I gave up. I could not leave my house the issue was so bad and did not want to be wearing diapers. So for now this solved it.. and I did not finish the exocrine glad thread or really even start it very well but I know digestive issues will be back and pepto is not a long term answer. peace all WARNING THIS WILL BE LONG Had a car accident in 85 Codeine was the pain med when I was release from hosp continuous use till 89 Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above. One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking. As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/ There is a crack in everything ..That's how the light gets in Link to comment
Meimeiquest Posted February 10, 2015 Share Posted February 10, 2015 Sorry it is all so hard! Beyondmeds.com also has a lot of info about histamine intolerance and the low-histamine diet. So smart of you to figure that out! 1st round Prozac 1989/90, clear depression symptoms. 2nd round Prozac started 1999 when admitted to dr. I was tired. Prozac pooped out, switch to Cymbalta 3/2006. Diagnosed with bipolar disorder due to mania 6/2006--then I was taken abruptly off Cymbalta and didn't know I had SSRI withdrawal. Lots of meds for my intractable "bipolar" symptoms. Zyprexa started about 9/06, mostly 5mg. Tapered 4/12 through12/29/12 Wellbutrin. XL 300 mg started 1/07, tapered 1/18/13 through 7/8/13 Oxazepam mostly continuously since 6/06, 30mg since 12/12, tapered 1.17.14 through 8.26.15 11/06 Lithium 600mg twice daily, 2.2.14 400mg TID DIY liquid, 2.12.14 1150mg, 3.2.14 1100mg, 3.18.14 1075mg, 4/14 updose to 1100mg, 6.1.14 900 mg capsules 7.8.14 810mg, 8.17.14 725mg, 8.24.24 700mg...10.22.14 487.5mg, 3.9.15 475mg, 4.1.15 462.5mg 4.21.15 450mg 8.11.15 375mg, 11.28.15 362.5mg, back to 375mg four days later, 3.4.16 updose to 475 (too much going on to risk trouble) 9/4/13 Toprol-XL 25mg daily for sudden hypertension, tapered 11.12.13 through 5.3.14, last 10 days or so switched to atenolol 7.4.14 Started Walsh Protocol 56 years old Link to comment
Wildflower0214 Posted February 10, 2015 Author Share Posted February 10, 2015 Sorry it is all so hard! Beyondmeds.com also has a lot of info about histamine intolerance and the low-histamine diet. So smart of you to figure that out! Yes, I figured it out vaguely months ago. The problem is I have such a sensitivity to food I can't change anything or adopt a new diet. So, I'm essentially in a bit of a tough spot. But, I trust God to work it out in time. 2005-Zoloft bad reaction.....2006-Lexepro......2012-Upped Lexepro.......2013-Upped Lexepro......2/2014- Attempted Taper Lexepro...2/2014- Updosed Lexepro.......3/2014-Ativan.....5/2014- CT switch from Lexpro to Effexor..... 5/2014-7/2014-Tapered Ativan from 1mg to .25mg.....6/2014-Bad reaction to Effexor........7/2014- Rapid taper Effexor every other day......7/5/2014- Off Effexor.......7/2014-12/2014 - Ativan .25mg.......12/25/2014 -Taper Ativan by 4% due to paradoxical reaction .24mg...11/18/2015-Taper Ativan 1% CURRENTLY ON: .2376mg Ativan taken in 6 .0396mg doses. Link to comment
WinningThrough Posted February 10, 2015 Share Posted February 10, 2015 Just saying hello and I hope you're coping. The only way out is through. Aug 2013 - Augmentin leading to akathisia Sept-Nov 2013 - Citalopram 20mg, severe reaction, off at 5mg. Valium 4mg, prn Oct 2013 - 5 zopiclone tablets, 7.5mg End Nov 2013-end Feb 2014, Seroquel, top dose 150mg, off at 25mg End Nov 2013-early march 2014, Zoloft 100mg top dose, off at 25mg End Dec-2013-early April 2014, lorazepam 1mg prn April 3rd 2014 zoloft 5mg for a few days. 18/4/14 - zoloft, 1mg. Came off at 0.35 mg,14th June 2014 29 June 2014 - 1mg lorazepam, last ever 29 June 2014 - med free Link to comment
westcoast Posted February 10, 2015 Share Posted February 10, 2015 Hi JD, just thinking of you, and hoping you are making progress on the food problems. 2009: Cancer hospital said I had adjustment disorder because I thought they were doing it wrong. Their headshrinker prescribed Effexor, and my life set on a new course. I didn't know what was ahead, like a passenger on Disneyland's Matterhorn, smiling and waving as it climbs...clink, clink, clink. 2010: Post surgical accidental Effexor discontinuation by nurses, masked by intravenous Dilaudid. (The car is balanced at the top of the track.) I get home, pop a Vicodin, and ... Whooosh...down, down, down, down, down...goes the trajectory of my life, up goes my mood and tendency to think everything is a good idea.2012: After the bipolar jig was up, now a walking bag of unrelated symptoms, I went crazy on Daytrana (the Ritalin skin patch by Noven), because ADHD was a perfect fit for a bag of unrelated symptoms. I was prescribed Effexor for the nervousness of it, and things got neurological. An EEG showed enough activity to warrant an epilepsy diagnosis rather than non-epileptic ("psychogenic") seizures. 2013-2014: Quit everything and got worse. I probably went through DAWS: dopamine agonist withdrawal syndrome. I drank to not feel, but I felt a lot: dread, fear, regret, grief: an utter sense of total loss of everything worth breathing about, for almost two years. I was not suicidal but I wanted to be dead, at least dead to the experience of my own brain and body. 2015: I began to recover after adding virgin coconut oil and organic grass-fed fed butter to a cup of instant coffee in the morning. I did it hoping for mental acuity and better memory. After ten days of that, I was much better, mood-wise. Approximately neutral. And, I experienced drowsiness. I could sleep. Not exactly happy, I did 30 days on Wellbutrin, because it had done me no harm in the past. I don't have the DAWS mood or state of mind. It never feel like doing anything if it means standing up. In fact, I don't especially like moving. I'm a brain with a beanbag body. Link to comment
Muddles Posted February 10, 2015 Share Posted February 10, 2015 I have not seen ONE person on this forum with the food sensitivities I have. NOT ONE!!!! God help me! I do unfortunately and it sucks. I Also have big chemical sensitivites. I would love to know why this is. Somebody did tell me it has something to do with neurotransmitters. I just don't know but I feel your pain. Can't even comfort ourselves with comfort food - how unfair is that?! 2008 - Doctors appointment with stress induced anxiety led to Citalopram prescription. Severe adverse reaction Mirtazapine prescribed - adverse reaction but told to stay on. Poop out - December 2013 15mg Currently on 13.5mg, April 12mg May 10th - 11mg June 10th - 10mg July 8th - 9mg September - 0mg Link to comment
westcoast Posted February 10, 2015 Share Posted February 10, 2015 I don't have the sensitivities JD and Muddles have, but I have lost interest in food, which is one of the great pleasures of life. I wouldn't eat at all if I didn't have to. 2009: Cancer hospital said I had adjustment disorder because I thought they were doing it wrong. Their headshrinker prescribed Effexor, and my life set on a new course. I didn't know what was ahead, like a passenger on Disneyland's Matterhorn, smiling and waving as it climbs...clink, clink, clink. 2010: Post surgical accidental Effexor discontinuation by nurses, masked by intravenous Dilaudid. (The car is balanced at the top of the track.) I get home, pop a Vicodin, and ... Whooosh...down, down, down, down, down...goes the trajectory of my life, up goes my mood and tendency to think everything is a good idea.2012: After the bipolar jig was up, now a walking bag of unrelated symptoms, I went crazy on Daytrana (the Ritalin skin patch by Noven), because ADHD was a perfect fit for a bag of unrelated symptoms. I was prescribed Effexor for the nervousness of it, and things got neurological. An EEG showed enough activity to warrant an epilepsy diagnosis rather than non-epileptic ("psychogenic") seizures. 2013-2014: Quit everything and got worse. I probably went through DAWS: dopamine agonist withdrawal syndrome. I drank to not feel, but I felt a lot: dread, fear, regret, grief: an utter sense of total loss of everything worth breathing about, for almost two years. I was not suicidal but I wanted to be dead, at least dead to the experience of my own brain and body. 2015: I began to recover after adding virgin coconut oil and organic grass-fed fed butter to a cup of instant coffee in the morning. I did it hoping for mental acuity and better memory. After ten days of that, I was much better, mood-wise. Approximately neutral. And, I experienced drowsiness. I could sleep. Not exactly happy, I did 30 days on Wellbutrin, because it had done me no harm in the past. I don't have the DAWS mood or state of mind. It never feel like doing anything if it means standing up. In fact, I don't especially like moving. I'm a brain with a beanbag body. Link to comment
btdt Posted February 11, 2015 Share Posted February 11, 2015 I have not seen ONE person on this forum with the food sensitivities I have. NOT ONE!!!! God help me!I do unfortunately and it sucks. I Also have big chemical sensitivites. I would love to know why this is. Somebody did tell me it has something to do with neurotransmitters. I just don't know but I feel your pain. Can't even comfort ourselves with comfort food - how unfair is that?! I have been getting mail on this site recently from a person called Mary Kay who has mito disorder and has all this .. same as we do . Think I was mailed because of my interest in mitochondria just now I am not of sound mind to follow all that is said in those posts but I do wonder if this is the cause of the food problems and not histamine at all. As she has the same thing from a mito disorder she thinks her entire family have been born with. WARNING THIS WILL BE LONG Had a car accident in 85 Codeine was the pain med when I was release from hosp continuous use till 89 Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above. One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking. As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/ There is a crack in everything ..That's how the light gets in Link to comment
btdt Posted February 11, 2015 Share Posted February 11, 2015 I don't have the sensitivities JD and Muddles have, but I have lost interest in food, which is one of the great pleasures of life. I wouldn't eat at all if I didn't have to. It is odd different drugs I have been on I was just like that when I first started effexor I lost weight and my muscles and fat seem to re position themselves.... really tight calves and definition that even 18 year olds envied ... I was stripping remember so that sort of talk was common who did your boobs what program gets your calf muscles to be so defined... I did nothing .. they hated that and always thought I was holding out but I wasn't I did nothing I think it was the effexor. when I stopped a day program and went ct off lorazapam and respiradol ... I did not eat for a couple of months... I laid in bed and did not move my poor well loved dog spent the entire summer watching me lay in bed... if it were not for family dropping food off i would not have eaten anything I kept waiting for it to pass... I did not want the food they tossed in my cage... I lost a ton of weight was a size 4......... that is tiny even for me I was mostly bones I could eat a tin of cookies a day on zoloft... and be at the ice cream shop when it opened... It is the drugs the stopping the starting .. ect.. they can for sure control our food intake. WARNING THIS WILL BE LONG Had a car accident in 85 Codeine was the pain med when I was release from hosp continuous use till 89 Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above. One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking. As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/ There is a crack in everything ..That's how the light gets in Link to comment
Wildflower0214 Posted February 12, 2015 Author Share Posted February 12, 2015 I am so tired of this. I just don't have words.... At least not today. 2005-Zoloft bad reaction.....2006-Lexepro......2012-Upped Lexepro.......2013-Upped Lexepro......2/2014- Attempted Taper Lexepro...2/2014- Updosed Lexepro.......3/2014-Ativan.....5/2014- CT switch from Lexpro to Effexor..... 5/2014-7/2014-Tapered Ativan from 1mg to .25mg.....6/2014-Bad reaction to Effexor........7/2014- Rapid taper Effexor every other day......7/5/2014- Off Effexor.......7/2014-12/2014 - Ativan .25mg.......12/25/2014 -Taper Ativan by 4% due to paradoxical reaction .24mg...11/18/2015-Taper Ativan 1% CURRENTLY ON: .2376mg Ativan taken in 6 .0396mg doses. Link to comment
luv2knit Posted February 12, 2015 Share Posted February 12, 2015 You are continually in my prayers, JDM. I have no words either. Zoloft 100 mg. daily for Chronic Fatigue Syndrome since Oct. 1994 / Synthroid 88 mcg. daily / Supplements: Neptune Krill Oil-1,000 mg. twice daily/Astaxanthin 10 mg. twice daily/Ubiquinol 100 mg. twice daily (These 3 have allowed me to discontinue (approved by doctor) bp meds I was on. Calcium Citrate 500 mg. daily/Vitamin D3 2,400 iu daily/K2 (MK7) 100 mcg daily (osteopenia and fam. hist. of severe osteoporosis). Stress B Complex (1/2 dose)/Quercetin (for allergies/asthma)/Magnesium (400 mg. oral glycinate and about 50 mg. magnesium chloride spray oil a day, divided throughout day). Tapered Zoloft about 6 wks. Totally off since the end of July (25-29, 2014). 3 wks. vertigo at end of taper, then 3-4 wks. OK, followed by withdrawal symptoms increasing in severity (nausea, gastric disturbances, loss of appetite, insomnia, restlessness, jitters, anxiety, agitation--jumping out of my skin--possible akathisia?) Seem to have paradoxical reactions to everything new, even Vitamin C. Severity of akathisia comes and goes, but is constant to some degree. Hard to leave house, and cannot be home alone. (Retired) Link to comment
Wildflower0214 Posted February 12, 2015 Author Share Posted February 12, 2015 You are continually in my prayers, JDM. I have no words either. Thx u. 2005-Zoloft bad reaction.....2006-Lexepro......2012-Upped Lexepro.......2013-Upped Lexepro......2/2014- Attempted Taper Lexepro...2/2014- Updosed Lexepro.......3/2014-Ativan.....5/2014- CT switch from Lexpro to Effexor..... 5/2014-7/2014-Tapered Ativan from 1mg to .25mg.....6/2014-Bad reaction to Effexor........7/2014- Rapid taper Effexor every other day......7/5/2014- Off Effexor.......7/2014-12/2014 - Ativan .25mg.......12/25/2014 -Taper Ativan by 4% due to paradoxical reaction .24mg...11/18/2015-Taper Ativan 1% CURRENTLY ON: .2376mg Ativan taken in 6 .0396mg doses. Link to comment
Wildflower0214 Posted February 12, 2015 Author Share Posted February 12, 2015 How am I to get better when I can barely eat? 2005-Zoloft bad reaction.....2006-Lexepro......2012-Upped Lexepro.......2013-Upped Lexepro......2/2014- Attempted Taper Lexepro...2/2014- Updosed Lexepro.......3/2014-Ativan.....5/2014- CT switch from Lexpro to Effexor..... 5/2014-7/2014-Tapered Ativan from 1mg to .25mg.....6/2014-Bad reaction to Effexor........7/2014- Rapid taper Effexor every other day......7/5/2014- Off Effexor.......7/2014-12/2014 - Ativan .25mg.......12/25/2014 -Taper Ativan by 4% due to paradoxical reaction .24mg...11/18/2015-Taper Ativan 1% CURRENTLY ON: .2376mg Ativan taken in 6 .0396mg doses. Link to comment
Wildflower0214 Posted February 12, 2015 Author Share Posted February 12, 2015 I've spoken to others and they say they have issues too. But, I'm not talking about eating cake and it giving you anxiety. I have been eating the same 15 foods going in five months!!!!!!!!!!!!! This isn't just about sugar and dairy and gluten. I would kiss the ground if that were all it was. I am sick of finding myself the exception to the rule in more ways than one. 2005-Zoloft bad reaction.....2006-Lexepro......2012-Upped Lexepro.......2013-Upped Lexepro......2/2014- Attempted Taper Lexepro...2/2014- Updosed Lexepro.......3/2014-Ativan.....5/2014- CT switch from Lexpro to Effexor..... 5/2014-7/2014-Tapered Ativan from 1mg to .25mg.....6/2014-Bad reaction to Effexor........7/2014- Rapid taper Effexor every other day......7/5/2014- Off Effexor.......7/2014-12/2014 - Ativan .25mg.......12/25/2014 -Taper Ativan by 4% due to paradoxical reaction .24mg...11/18/2015-Taper Ativan 1% CURRENTLY ON: .2376mg Ativan taken in 6 .0396mg doses. Link to comment
Wildflower0214 Posted February 12, 2015 Author Share Posted February 12, 2015 I don't have the sensitivities JD and Muddles have, but I have lost interest in food, which is one of the great pleasures of life. I wouldn't eat at all if I didn't have to. It is odd different drugs I have been on I was just like that when I first started effexor I lost weight and my muscles and fat seem to re position themselves.... really tight calves and definition that even 18 year olds envied ... I was stripping remember so that sort of talk was common who did your boobs what program gets your calf muscles to be so defined... I did nothing .. they hated that and always thought I was holding out but I wasn't I did nothing I think it was the effexor. when I stopped a day program and went ct off lorazapam and respiradol ... I did not eat for a couple of months... I laid in bed and did not move my poor well loved dog spent the entire summer watching me lay in bed... if it were not for family dropping food off i would not have eaten anything I kept waiting for it to pass... I did not want the food they tossed in my cage... I lost a ton of weight was a size 4......... that is tiny even for me I was mostly bones I could eat a tin of cookies a day on zoloft... and be at the ice cream shop when it opened... It is the drugs the stopping the starting .. ect.. they can for sure control our food intake. I had hideous hypoglycemia on Lexepro. So I think you are right. all the stipping and starting, I wish I had known. 2005-Zoloft bad reaction.....2006-Lexepro......2012-Upped Lexepro.......2013-Upped Lexepro......2/2014- Attempted Taper Lexepro...2/2014- Updosed Lexepro.......3/2014-Ativan.....5/2014- CT switch from Lexpro to Effexor..... 5/2014-7/2014-Tapered Ativan from 1mg to .25mg.....6/2014-Bad reaction to Effexor........7/2014- Rapid taper Effexor every other day......7/5/2014- Off Effexor.......7/2014-12/2014 - Ativan .25mg.......12/25/2014 -Taper Ativan by 4% due to paradoxical reaction .24mg...11/18/2015-Taper Ativan 1% CURRENTLY ON: .2376mg Ativan taken in 6 .0396mg doses. Link to comment
Wildflower0214 Posted February 12, 2015 Author Share Posted February 12, 2015 I have not seen ONE person on this forum with the food sensitivities I have. NOT ONE!!!! God help me!I do unfortunately and it sucks. I Also have big chemical sensitivites. I would love to know why this is. Somebody did tell me it has something to do with neurotransmitters. I just don't know but I feel your pain. Can't even comfort ourselves with comfort food - how unfair is that?! I have been getting mail on this site recently from a person called Mary Kay who has mito disorder and has all this .. same as we do . Think I was mailed because of my interest in mitochondria just now I am not of sound mind to follow all that is said in those posts but I do wonder if this is the cause of the food problems and not histamine at all. As she has the same thing from a mito disorder she thinks her entire family have been born with. Ya know, I wouldn't even know what to do to find out if I had it. And then what....? I'm all out of money. I'm just tired and worn out. How did she get tested? 2005-Zoloft bad reaction.....2006-Lexepro......2012-Upped Lexepro.......2013-Upped Lexepro......2/2014- Attempted Taper Lexepro...2/2014- Updosed Lexepro.......3/2014-Ativan.....5/2014- CT switch from Lexpro to Effexor..... 5/2014-7/2014-Tapered Ativan from 1mg to .25mg.....6/2014-Bad reaction to Effexor........7/2014- Rapid taper Effexor every other day......7/5/2014- Off Effexor.......7/2014-12/2014 - Ativan .25mg.......12/25/2014 -Taper Ativan by 4% due to paradoxical reaction .24mg...11/18/2015-Taper Ativan 1% CURRENTLY ON: .2376mg Ativan taken in 6 .0396mg doses. Link to comment
Wildflower0214 Posted February 12, 2015 Author Share Posted February 12, 2015 I have not seen ONE person on this forum with the food sensitivities I have. NOT ONE!!!! God help me! I do unfortunately and it sucks. I Also have big chemical sensitivites. I would love to know why this is. Somebody did tell me it has something to do with neurotransmitters. I just don't know but I feel your pain. Can't even comfort ourselves with comfort food - how unfair is that?! It is unfair. But I have figured I might as well kiss fair goodbye. Not gonna be fair this side of eternity. How bad are your food problems? What can you not eat? 2005-Zoloft bad reaction.....2006-Lexepro......2012-Upped Lexepro.......2013-Upped Lexepro......2/2014- Attempted Taper Lexepro...2/2014- Updosed Lexepro.......3/2014-Ativan.....5/2014- CT switch from Lexpro to Effexor..... 5/2014-7/2014-Tapered Ativan from 1mg to .25mg.....6/2014-Bad reaction to Effexor........7/2014- Rapid taper Effexor every other day......7/5/2014- Off Effexor.......7/2014-12/2014 - Ativan .25mg.......12/25/2014 -Taper Ativan by 4% due to paradoxical reaction .24mg...11/18/2015-Taper Ativan 1% CURRENTLY ON: .2376mg Ativan taken in 6 .0396mg doses. Link to comment
Wildflower0214 Posted February 12, 2015 Author Share Posted February 12, 2015 Just saying hello and I hope you're coping. I'm not coping. Lol but thank you. 2005-Zoloft bad reaction.....2006-Lexepro......2012-Upped Lexepro.......2013-Upped Lexepro......2/2014- Attempted Taper Lexepro...2/2014- Updosed Lexepro.......3/2014-Ativan.....5/2014- CT switch from Lexpro to Effexor..... 5/2014-7/2014-Tapered Ativan from 1mg to .25mg.....6/2014-Bad reaction to Effexor........7/2014- Rapid taper Effexor every other day......7/5/2014- Off Effexor.......7/2014-12/2014 - Ativan .25mg.......12/25/2014 -Taper Ativan by 4% due to paradoxical reaction .24mg...11/18/2015-Taper Ativan 1% CURRENTLY ON: .2376mg Ativan taken in 6 .0396mg doses. Link to comment
btdt Posted February 13, 2015 Share Posted February 13, 2015 I have not seen ONE person on this forum with the food sensitivities I have. NOT ONE!!!! God help me!I do unfortunately and it sucks. I Also have big chemical sensitivites. I would love to know why this is. Somebody did tell me it has something to do with neurotransmitters. I just don't know but I feel your pain. Can't even comfort ourselves with comfort food - how unfair is that?!I have been getting mail on this site recently from a person called Mary Kay who has mito disorder and has all this .. same as we do . Think I was mailed because of my interest in mitochondria just now I am not of sound mind to follow all that is said in those posts but I do wonder if this is the cause of the food problems and not histamine at all. As she has the same thing from a mito disorder she thinks her entire family have been born with. Ya know, I wouldn't even know what to do to find out if I had it. And then what....? I'm all out of money. I'm just tired and worn out. How did she get tested? I can't recall what she said let me go read it ... nope I can't too long and hard... but I will on another day... I don't know if she got tested or not I can't recall what she said.. now i feel bad hope she is not reading this but if she is I am far from perfect she may as well know now my memory is now too good just now. I see you not coping... well that is part of this isn't it... try not to hurt anyone and be as kind to yourself as you know how. That is what I try to do but don't always manage it peace WARNING THIS WILL BE LONG Had a car accident in 85 Codeine was the pain med when I was release from hosp continuous use till 89 Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above. One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking. As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/ There is a crack in everything ..That's how the light gets in Link to comment
westcoast Posted February 13, 2015 Share Posted February 13, 2015 I could wear a size 2 at 5'7" when I was starving in late 2012. Now I wear a size 12. My handyman brought me tamales which I nibbled and let rot. I couldn't even make a cup of coffee. Anytime I started to, I forgot and let the kettle boil dry. I could eat Haagen Dasz ice cream and microwaved macaroni and cheese. I also started a practice of drinking hot water with Mexican chocolate, cinnamon, and red chile. Maybe I should try that again. I am not suggesting it by the way. But more to the point, I hate to hear of your suffering, JD. You did nothing to deserve this, and you seem like a perfectly good person. I've decided to try Eastern Medicine and will make an appointment today. If I get any relief I will let you know. I can't find a western doc who takes me seriously. Eastern ones listen, and they diagnose based on your pulse. When I first went in 2013 they said my pulse indicated a sick liver, which makes sense given that Effexor is metabolized in the liver. I wasn't drinking at all at the time, and my cancer was long gone, too. They also said something about this energy field in our bodies, and that mine was over active and whooshing around 24/7. They said it is nothing that western medicine understands or discusses, can't be related to heart rate or anything like that. It matches how I feel, all whooshed with invisible energy that I can't direct to useful purposes, meanwhile lacking any physical energy to speak of. I mentions that I always had some small object clasped in my right hand, and they said it was me trying to anchor myself in the energy storm. Trying to hold onto something. I am going to try to make efforts on all fronts today. By that I mean health and finance and school. I might have to quit my volunteering, too. I am tired of politics and the news cycle, which my work involves. I just want to think about pretty flowers and fashion. I hope you see some flowers today. They are miracles, even when we are falling a part. And God wants us to be as lovely as flowers. He just didn't reckon on Pharma. 2009: Cancer hospital said I had adjustment disorder because I thought they were doing it wrong. Their headshrinker prescribed Effexor, and my life set on a new course. I didn't know what was ahead, like a passenger on Disneyland's Matterhorn, smiling and waving as it climbs...clink, clink, clink. 2010: Post surgical accidental Effexor discontinuation by nurses, masked by intravenous Dilaudid. (The car is balanced at the top of the track.) I get home, pop a Vicodin, and ... Whooosh...down, down, down, down, down...goes the trajectory of my life, up goes my mood and tendency to think everything is a good idea.2012: After the bipolar jig was up, now a walking bag of unrelated symptoms, I went crazy on Daytrana (the Ritalin skin patch by Noven), because ADHD was a perfect fit for a bag of unrelated symptoms. I was prescribed Effexor for the nervousness of it, and things got neurological. An EEG showed enough activity to warrant an epilepsy diagnosis rather than non-epileptic ("psychogenic") seizures. 2013-2014: Quit everything and got worse. I probably went through DAWS: dopamine agonist withdrawal syndrome. I drank to not feel, but I felt a lot: dread, fear, regret, grief: an utter sense of total loss of everything worth breathing about, for almost two years. I was not suicidal but I wanted to be dead, at least dead to the experience of my own brain and body. 2015: I began to recover after adding virgin coconut oil and organic grass-fed fed butter to a cup of instant coffee in the morning. I did it hoping for mental acuity and better memory. After ten days of that, I was much better, mood-wise. Approximately neutral. And, I experienced drowsiness. I could sleep. Not exactly happy, I did 30 days on Wellbutrin, because it had done me no harm in the past. I don't have the DAWS mood or state of mind. It never feel like doing anything if it means standing up. In fact, I don't especially like moving. I'm a brain with a beanbag body. Link to comment
Pugknows Posted February 13, 2015 Share Posted February 13, 2015 JDM ((hugs)) I feel your pain, literally. I'm having ulcer pain in my stomach today that I've never had before. My food list is about 16 safe items too. Sigh. January 2012 - Prescribed 900mg gabapentin and 30mg Norco for lower lumber spinal stenosis pain. September 2013 - Spinal fusion surgery, 6 levels. Hospital ramped up meds 1500mg gabapentin, 100mg Norco, 80mg Oxycontin, 25mg Fentanyl patch. January 2014 - Sever nausea daily and with back pain every 4 hours. 2 trips to ER. First endoscopy found ulcer. Treated with Sucralfate and PPI. Second endo in May found no ulcers. Doctors said it was the opiates causing the nausea. CT'd Oxycontin, Fentanyl patch. July 2014 - Lost 48 lbs. due to not eating because of severe nausea. GP prescribed Prozac 20mg and Ativan 2mg prn. Tried for 4 days, quit. Two week followup GP said keep taking Prozac. 4 days, quit again. Ativan taken rarely prn for anxiety and appetite. August 2014 - Went to detox. Off opiates. Still nauseous, helmet head, drugged feeling. Doctor CT'd gabapentin. Ended up in ER. Found 2 gallstones. Gabapentin reinstated at 900mg. Tried botched up and down taper to get off Gabapentin. No tapering advice from doctor. Said to just CT again. September 2014 - Coded on table during gallbladder surgery. Developed liver biloma due to CPR by doctor. Had bile bulb inserted for 2 wks to drain. October 2014 - Gallbladder removed. Still nauseous, 3am cortisol surging, drugged helmet head, vertigo, breathlessness, whooshing head, heart palps. November 8th, 2014 - CT'd gabapentin suggested by family and 4 different doctors. Was told no withdrawal is associated with gabapentin. Have been in hell ever since. No windows, just one big tsunami every day with same symptoms for 4 months. December 26, 2014 - Found SA. At least I know I'm not insane. My family thinks I'm doing this to myself. Akathesia has become unbearable. March 10, 2015 - In absolute daily hell with no relief. Currently taking magnesium 200mg before bedtime. Link to comment
Pugknows Posted February 13, 2015 Share Posted February 13, 2015 Feels like a donkey kicked me in the gut. January 2012 - Prescribed 900mg gabapentin and 30mg Norco for lower lumber spinal stenosis pain. September 2013 - Spinal fusion surgery, 6 levels. Hospital ramped up meds 1500mg gabapentin, 100mg Norco, 80mg Oxycontin, 25mg Fentanyl patch. January 2014 - Sever nausea daily and with back pain every 4 hours. 2 trips to ER. First endoscopy found ulcer. Treated with Sucralfate and PPI. Second endo in May found no ulcers. Doctors said it was the opiates causing the nausea. CT'd Oxycontin, Fentanyl patch. July 2014 - Lost 48 lbs. due to not eating because of severe nausea. GP prescribed Prozac 20mg and Ativan 2mg prn. Tried for 4 days, quit. Two week followup GP said keep taking Prozac. 4 days, quit again. Ativan taken rarely prn for anxiety and appetite. August 2014 - Went to detox. Off opiates. Still nauseous, helmet head, drugged feeling. Doctor CT'd gabapentin. Ended up in ER. Found 2 gallstones. Gabapentin reinstated at 900mg. Tried botched up and down taper to get off Gabapentin. No tapering advice from doctor. Said to just CT again. September 2014 - Coded on table during gallbladder surgery. Developed liver biloma due to CPR by doctor. Had bile bulb inserted for 2 wks to drain. October 2014 - Gallbladder removed. Still nauseous, 3am cortisol surging, drugged helmet head, vertigo, breathlessness, whooshing head, heart palps. November 8th, 2014 - CT'd gabapentin suggested by family and 4 different doctors. Was told no withdrawal is associated with gabapentin. Have been in hell ever since. No windows, just one big tsunami every day with same symptoms for 4 months. December 26, 2014 - Found SA. At least I know I'm not insane. My family thinks I'm doing this to myself. Akathesia has become unbearable. March 10, 2015 - In absolute daily hell with no relief. Currently taking magnesium 200mg before bedtime. Link to comment
Frustrated Posted February 13, 2015 Share Posted February 13, 2015 I get the most horrible pain in my stomach. It even shoots into my back between my shoulder blades. I had myself off alot of foods and lately ate gluten and tomato so I wonder if I should cut back my foods again. Perhaps it might explain my leg pain too. I really wish I had the answer. If you told me standing on my head while reciting the alphabet would work I would it. Lol. 2002-put on amitryptiline for fibromyalgia. 10mg.2004-stopped abruptly. Didn't think it helped.2006 approx.-put on Paxil for mild anxiety 20 mg.2007 upped to 40 mg. not sure why.2011- tapered from 40 to 10. went nuts and went back to 20mg2014- tapered from 20mg to 0 from April to The end of June.current meds- Metformin(type 2 diabetic) and low dose aspirin.Take multi vitamin and vit b12, vit. D and magnesium. 5 months off Paxil. Still suffering.recently added 1.2mg of Paxil to alleviate withdrawals.(Nov 30)Dropped to .9mg because having symptoms from reinstatement.(dec 23)<p>taper to .76mg-.8mg (Feb 3) approx. weight .010 to about .008-.009 on scale..6mg (march 19th.) .5mg(April 19th).4mg(April 27th).2 (June 27th) 0mg. done taper at beginning of August. Link to comment
Moderator Emeritus WiggleIt Posted February 13, 2015 Moderator Emeritus Share Posted February 13, 2015 I had my first food reaction: kiwi. Immediate tongue zaps afterward and I remembered that the last time I tried kiwi, the same thing happened, but worse, way worse. I didn't realize there was a connection until it happened a second time. I will ******* die if I've developed sensitivities that keep me from having a healthy, balanced diet. *I'm not a doctor and don't give medical advice, just personal experience **Off all meds since Nov. 2014. Mentally & emotionally recovered; physically not-Dual cold turkeys off TCA & Ativan in Oct 2014. Prescribed from 2011-2014 -All meds were Rxed off-label for an autoimmune illness. It was a MISDIAGNOSIS, but I did not find out until AFTER meds caused damage. All med tapers/cold turkeys directed by doctors -Nortriptyline May 2012 - Dec 2013. Cold turkey off nortrip & cold switched to desipramine -Desipramine Jan 2014 - Oct. 29, 2014 (rapid taper/cold turkey) -Lorazepam 1 mg per night during 2011 -Lorazepam 1 mg per month in 2012 (or less) -Lorazepam on & off, Dec 2013 through Aug 2014. Didn't exceed 3x a week -Lorazepam again in Oct. 2014 to help get off of desipramine. Last dose lzpam was 1 mg, Nov. 2, 2014. Immediate paradoxical reactions to benzos after stopping TCAs -First muscle/dystonia side effects started on nortriptyline, but docs too stupid to figure it out. On desipramine, muscle tremors & rigidity worsened -Two weeks after I got off all meds, I developed full-blown TD. Tardive dystonia, dyskinesia, myoclonic jerks ALL over body, ribcage wiggles, facial tics, twitching tongue & fingers, tremors/twitches of arms, legs, cognitive impairment, throat muscles semi-paralyzed & unable to swallow solid food, brain zaps, ears ring, dizzy, everything looks too far away, insomnia, numbness & electric shocks everywhere when I try to fall asleep, jerk awake from sleep with big, gasping breaths, wake with terrors & tremors, severely depressed. NO HISTORY OF DEPRESSION, EVER. Meds CREATED it. -Month 7: hair falling out; no vision improvement; still tardive dystonia; facial & tongue tics returned -Month 8: back to acute, incl. Grand Mal seizure-like episodes. New mental torment, PGAD, worse insomnia -Month 9: tardive dystonia worse, dyskinesia returned. Unable to breathe well due to dystonia in stomach, chest, throat -Month 13: Back to acute, brain zaps back, developed eczema & stomach problems. Left leg no longer works right due to dystonia, meaning both legs now damaged -7 years off: Huge improvements, incl. improved dystonia Link to comment
Wildflower0214 Posted February 13, 2015 Author Share Posted February 13, 2015 I had my first food reaction: kiwi. Immediate tongue zaps afterward and I remembered that the last time I tried kiwi, the same thing happened, but worse, way worse. I didn't realize there was a connection until it happened a second time. I will ******* die if I've developed sensitivities that keep me from having a healthy, balanced diet. Wiggle, I've been living off the same 15 items for four months. It sucks. 2005-Zoloft bad reaction.....2006-Lexepro......2012-Upped Lexepro.......2013-Upped Lexepro......2/2014- Attempted Taper Lexepro...2/2014- Updosed Lexepro.......3/2014-Ativan.....5/2014- CT switch from Lexpro to Effexor..... 5/2014-7/2014-Tapered Ativan from 1mg to .25mg.....6/2014-Bad reaction to Effexor........7/2014- Rapid taper Effexor every other day......7/5/2014- Off Effexor.......7/2014-12/2014 - Ativan .25mg.......12/25/2014 -Taper Ativan by 4% due to paradoxical reaction .24mg...11/18/2015-Taper Ativan 1% CURRENTLY ON: .2376mg Ativan taken in 6 .0396mg doses. Link to comment
Wildflower0214 Posted February 13, 2015 Author Share Posted February 13, 2015 I get the most horrible pain in my stomach. It even shoots into my back between my shoulder blades. I had myself off alot of foods and lately ate gluten and tomato so I wonder if I should cut back my foods again. Perhaps it might explain my leg pain too. I really wish I had the answer. If you told me standing on my head while reciting the alphabet would work I would it. Lol. I would too!!!! Lol I wouldn't eliminate any food unless you know for sure it is doing something. That is how I got into this situation. I did an elimination diet and got stuck on ten items. It has taken months to work in the additional 5. 2005-Zoloft bad reaction.....2006-Lexepro......2012-Upped Lexepro.......2013-Upped Lexepro......2/2014- Attempted Taper Lexepro...2/2014- Updosed Lexepro.......3/2014-Ativan.....5/2014- CT switch from Lexpro to Effexor..... 5/2014-7/2014-Tapered Ativan from 1mg to .25mg.....6/2014-Bad reaction to Effexor........7/2014- Rapid taper Effexor every other day......7/5/2014- Off Effexor.......7/2014-12/2014 - Ativan .25mg.......12/25/2014 -Taper Ativan by 4% due to paradoxical reaction .24mg...11/18/2015-Taper Ativan 1% CURRENTLY ON: .2376mg Ativan taken in 6 .0396mg doses. Link to comment
Wildflower0214 Posted February 13, 2015 Author Share Posted February 13, 2015 Feels like a donkey kicked me in the gut. I get that. I call it anxiety gut. It's awful. Like a big ball of cortisol and anxiety sitting in my lower abdomen 2005-Zoloft bad reaction.....2006-Lexepro......2012-Upped Lexepro.......2013-Upped Lexepro......2/2014- Attempted Taper Lexepro...2/2014- Updosed Lexepro.......3/2014-Ativan.....5/2014- CT switch from Lexpro to Effexor..... 5/2014-7/2014-Tapered Ativan from 1mg to .25mg.....6/2014-Bad reaction to Effexor........7/2014- Rapid taper Effexor every other day......7/5/2014- Off Effexor.......7/2014-12/2014 - Ativan .25mg.......12/25/2014 -Taper Ativan by 4% due to paradoxical reaction .24mg...11/18/2015-Taper Ativan 1% CURRENTLY ON: .2376mg Ativan taken in 6 .0396mg doses. Link to comment
Wildflower0214 Posted February 14, 2015 Author Share Posted February 14, 2015 I could wear a size 2 at 5'7" when I was starving in late 2012. Now I wear a size 12. My handyman brought me tamales which I nibbled and let rot. I couldn't even make a cup of coffee. Anytime I started to, I forgot and let the kettle boil dry. I could eat Haagen Dasz ice cream and microwaved macaroni and cheese. I also started a practice of drinking hot water with Mexican chocolate, cinnamon, and red chile. Maybe I should try that again. I am not suggesting it by the way. But more to the point, I hate to hear of your suffering, JD. You did nothing to deserve this, and you seem like a perfectly good person. I've decided to try eastern medicine and will make an appointment today. If I get any relief I will let you know. I can't find a western doc who takes me seriously. Eastern ones listen, and they diagnose based on your pulse. When I first went in 2013 they said my pulse indicated a sick liver, which makes sense given that Effexor is metabolized in the liver. I wasn't drinking at all at the time, and my cancer was long gone, too. They also said something about this energy field in our bodies, and that mine was over active and whooshing around 24/7. They said it is nothing that western medicine understands or discusses, can't be related to heart rate or anything like that. It matches how I feel, all whooshed with invisible energy that I can't direct to useful purposes, meanwhile lacking any physical energy to speak of. I mentions that I always had some small object clasped in my right hand, and they said it was me trying to anchor myself in the energy storm. Trying to hold onto something. I am going to try to make efforts on all fronts today. By that I mean health and finance and school. I might have to quit my volunteering, too. I am tired of politics and the news cycle, which my work involves. I just want to think about pretty flowers and fashion. I hope you see some flowers today. They are miracles, even when we are falling a part. And God wants us to be as lovely as flowers. He just didn't reckon on Pharma. Thx you for your thoughtful response. I wake up every morning and wonder how the hell this happened. And it takes me till mid afternoon to accept it again. This happens everyday. I hope eastern medicine leads you to an answer. I kniw what is wrong with me. I have complex PTSD from childhood, I'm insecure, and I have hormonal imbalances and endocrine problems. But, I'm too sick and crazy to fix any of it and that is what is so frustrating. All of this could have been managed and dealt with without meds. I didn't see any flowers today. But, I did go to the chiropractor and it made me feel better. 2005-Zoloft bad reaction.....2006-Lexepro......2012-Upped Lexepro.......2013-Upped Lexepro......2/2014- Attempted Taper Lexepro...2/2014- Updosed Lexepro.......3/2014-Ativan.....5/2014- CT switch from Lexpro to Effexor..... 5/2014-7/2014-Tapered Ativan from 1mg to .25mg.....6/2014-Bad reaction to Effexor........7/2014- Rapid taper Effexor every other day......7/5/2014- Off Effexor.......7/2014-12/2014 - Ativan .25mg.......12/25/2014 -Taper Ativan by 4% due to paradoxical reaction .24mg...11/18/2015-Taper Ativan 1% CURRENTLY ON: .2376mg Ativan taken in 6 .0396mg doses. Link to comment
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