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The Windows and Waves Pattern of Stabilization


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#1 Healing

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Posted 22 March 2011 - 05:20 PM

In other words, when you go through a period of symptoms getting worse, and then that draws to an end, is it followed pretty obviously by a period of new gains? Are you now better than you were before the wave? People have reported this pattern. I have never been able to discern it clearly in myself, but I'm open to the possibility. What is your experience of this yourself? Or observation of others? Or opinion?
1996-97 - Paxil x 9 months, tapered, suffered 8 months withdrawal but didn't know it was withdrawal, so...
1998-2001 - Zoloft, tapered, again unwittingly went into withdrawal, so...
2002-03 - Paxil x 20 months, developed severe headaches, so...
Sep 03 - May 05 - Paxil taper took 20 months, severe physical, moderate psychological symptoms
Sep 03 - Jun 05 - took Prozac to help with Paxil taper - not recommended
Jul 05 to date - post-taper, severe psychological, moderate physical symptoms, improving very slowly

#2 Altostrata

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Posted 23 March 2011 - 04:45 AM

I've experienced the waves, or lurches. I've noticed the converse -- I'll have a window when I feel better, then a trough, which feels just as bad as ever, except a little different. Over time, the windows have gotten more frequent and longer, and the troughs not as deep and shorter. So, on the average, I've gotten slowly better. Kind of like 1 step forward and 5 steps back, then 2 steps forward and 5 steps back, then 3 steps forward and 4 steps back, then 2 steps forward and 3 steps back, then 3 steps forward and 3 steps back....uh, where was I? lurches.gif I should talk, because after 3 years of lurching forward, I took a giant lurch down -- too much stress at a critical time. But since then, it's been the same slow, lurching slog forward.
This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

#3 squirrel

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Posted 23 March 2011 - 03:13 PM

I have hit a very bad wave since last october.My symptoms have not let up since then and they almost change by the hour.it is almost like the beginning when it was relentless.Anyone else had this?
Started Seroxat(Paxil) for panic attacks in 1997 stopped the drug in 2005 tapered over 3 months ( doctors advice)
Suffered severe and protracted withdrawl ever since.
No other medication taken.

#4 Hopeful

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Posted 23 March 2011 - 06:10 PM

I've experienced the waves, or lurches. I've noticed the converse -- I'll have a window when I feel better, then a trough, which feels just as bad as ever, except a little different.

Over time, the windows have gotten more frequent and longer, and the troughs not as deep and shorter. So, on the average, I've gotten slowly better.

Kind of like 1 step forward and 5 steps back, then 2 steps forward and 5 steps back, then 3 steps forward and 4 steps back, then 2 steps forward and 3 steps back, then 3 steps forward and 3 steps back....uh, where was I?




This was my experience although I had the "holes" then the "good windows" (although for a very very long time the good was pretty bad). I still have some residual symptoms with the holes/windows, but now they do not stop me in my tracks the holes are more of a nuisance.
Began Paxil 10/97*
Paxil free 10/16/04 (tapered over 2.5 months)
Severe withdrawal
12/04 started Lexapro due to Paxil w/d symptoms (tapered over 4 months)
Lexapro free 8/2/05

2 1/2 year severe protracted withdrawal
Doing well now with a few residual symptoms

#5 Altostrata

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Posted 23 March 2011 - 06:15 PM

Yeah, exactly. "Feeling better" is only a relative term. It's only in the last 6 months or so that when I'm "better," I'm feeling normal-ish. I'm 6.5 years off Paxil.
This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

#6 Healing

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Posted 23 March 2011 - 09:15 PM

I have hit a very bad wave since last october.My symptoms have not let up since then and they almost change by the hour.it is almost like the beginning when it was relentless.Anyone else had this?



First of all, I want to sort of celebrate that you can even write a post like this, squirrel, and thank Sur again for this board.

I have heard of people having long-lasting setbacks even very far out. It's extremely upsetting. In some cases, it seems like the setback is triggered by stressful life events. My theory is that, even after we have healed a lot, we are still very fragile for a time after that. If life happens to be fairly smooth, we can function pretty well, but if life hands us a big stressor or two, we become really autonomically dysregulated. We're still more sensitive to conditions than we will be when we have healed further.

Eventually.....eventually.....we heal even more, become more robust, and stressful life events can no longer knock our nervous systems off balance so easily.
1996-97 - Paxil x 9 months, tapered, suffered 8 months withdrawal but didn't know it was withdrawal, so...
1998-2001 - Zoloft, tapered, again unwittingly went into withdrawal, so...
2002-03 - Paxil x 20 months, developed severe headaches, so...
Sep 03 - May 05 - Paxil taper took 20 months, severe physical, moderate psychological symptoms
Sep 03 - Jun 05 - took Prozac to help with Paxil taper - not recommended
Jul 05 to date - post-taper, severe psychological, moderate physical symptoms, improving very slowly

#7 Altostrata

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Posted 24 March 2011 - 08:05 AM

I agree with Healing. It's important to treat yourself gently in the midst of withdrawal syndrome. You may not be able to handle difficult situations that you've always handled before. Focus on stress reduction, it's very important. Learning how to protect your nervous system from abrasive people is a good skill to learn and will serve you well in the long run. Being pushed to take care of ourselves is, I guess you could say, one of the benefits of this awful condition.
This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

#8 stan

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Posted 08 April 2011 - 09:44 AM

Over time, the windows have gotten more frequent and longer, and the troughs not as deep and shorter. So, on the average, I've gotten slowly better.

Kind of like 1 step forward and 5 steps back, then 2 steps forward and 5 steps back, then 3 steps forward and 4 steps back, then 2 steps forward and 3 steps back, then 3 steps forward and 3 steps back....uh, where was I?


I have difficult to admit this evidence, it is not logic this rubic's cube. When i am forward, i am so optimistic (after this hell) i think i am recovered, saved, and baaammm, go in your hole !

for anxiety 

12 years paxil - cold turkey 1,5 month - switch celexa 1 year taper; total 13 years on brain meds 

66 years old - 7 years 2 months med free

 

in protracted withdrawal syndrome

 

muscles pain..fatigue...off balance and dizzy...sleep very bad...dryness syndrôme...prostate...derealization...itching psoriasis...unable to be quiet inside... to rest though improvements akathisia...dilate bronchitis ...auto-immune disorder...conversion disorder...strong back pains...permanent stress...emotions no control...my senses are false... many feelings are false since beginning...locomotor disorder ...

 


#9 Healing

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Posted 08 April 2011 - 05:44 PM

I have difficult to admit this evidence, it is not logic this rubic's cube. When i am forward, i am so optimistic (after this hell) i think i am recovered, saved, and baaammm, go in your hole !

I know! Even after all this time, I am shocked when I have a good day and then feel worse the next day!

What is that?! Why is it so hard to learn that this is the way the Rubik's cube works?! I mean, really, I should not be shocked any more.
1996-97 - Paxil x 9 months, tapered, suffered 8 months withdrawal but didn't know it was withdrawal, so...
1998-2001 - Zoloft, tapered, again unwittingly went into withdrawal, so...
2002-03 - Paxil x 20 months, developed severe headaches, so...
Sep 03 - May 05 - Paxil taper took 20 months, severe physical, moderate psychological symptoms
Sep 03 - Jun 05 - took Prozac to help with Paxil taper - not recommended
Jul 05 to date - post-taper, severe psychological, moderate physical symptoms, improving very slowly

#10 Neuroplastic

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Posted 02 May 2011 - 09:25 AM

I've experienced the waves, or lurches. I've noticed the converse -- I'll have a window when I feel better, then a trough, which feels just as bad as ever, except a little different.

Over time, the windows have gotten more frequent and longer, and the troughs not as deep and shorter. So, on the average, I've gotten slowly better.

Kind of like 1 step forward and 5 steps back, then 2 steps forward and 5 steps back, then 3 steps forward and 4 steps back, then 2 steps forward and 3 steps back, then 3 steps forward and 3 steps back....uh, where was I?

lurches.gif

I should talk, because after 3 years of lurching forward, I took a giant lurch down -- too much stress at a critical time. But since then, it's been the same slow, lurching slog forward.


Perhaps we could (when time allows) use this chart in a more "sticky" form? To incorporate it somewhere in the forum in a more permananent fashion? It would help many to rationalize what they're going through, and to know that every "dip" is just temporary? Come to think of it, the picture is worth more than a thousand words. The only change being "good/very good/healed" in the right upper corner of the picture. What do you think, SA-ers?
2000-2008 Paxil for a situational depression
2008 - Paxil c/t
Severe protracted WD syndrome ever since; improving


“The only reason for time is so that everything doesn't happen at once”
Albert Einstein

"Add signature to your profile. This way we can help you even better!"
Surviving Antidepressants ;)

And, above all, ... keep walking. Just keep walking.

#11 Healing

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Posted 02 May 2011 - 10:16 AM

We could call it the Stock Market Chart. It could be another SA meme. :) Do we have sticky capability? I've been wondering. Or maybe this could be part of the FAQs, which will be, where?, in Read First? To wit -- this is a journey. Its three central characteristics are that it is non-linear, change is minute, and it takes a long time. But it does happen! For everyone! Sur, you put it well recently, about how disheartening it is to go backward after a window. NP, I think you have said something about how the human mind is not evolutionarily designed to grasp this kind of process (non-linear, minute change)?
1996-97 - Paxil x 9 months, tapered, suffered 8 months withdrawal but didn't know it was withdrawal, so...
1998-2001 - Zoloft, tapered, again unwittingly went into withdrawal, so...
2002-03 - Paxil x 20 months, developed severe headaches, so...
Sep 03 - May 05 - Paxil taper took 20 months, severe physical, moderate psychological symptoms
Sep 03 - Jun 05 - took Prozac to help with Paxil taper - not recommended
Jul 05 to date - post-taper, severe psychological, moderate physical symptoms, improving very slowly

#12 Neuroplastic

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Posted 02 May 2011 - 10:38 AM

We could call it the Stock Market Chart. It could be another SA meme. :)

Good one!

Or maybe this could be part of the FAQs, which will be, where?, in Read First?

That's what I've been wondering about. The best would be some place where the new to the site wouldn't miss it. Let's wait what others will say.


Also, adding to this some body of explanation - about the non-linearity, changeability of the whole process, and our evolutionary non-preparedness to swiftly deal with? I would start working on it in the weeks to come. Any suggestions?
2000-2008 Paxil for a situational depression
2008 - Paxil c/t
Severe protracted WD syndrome ever since; improving


“The only reason for time is so that everything doesn't happen at once”
Albert Einstein

"Add signature to your profile. This way we can help you even better!"
Surviving Antidepressants ;)

And, above all, ... keep walking. Just keep walking.

#13 summer

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Posted 02 May 2011 - 12:54 PM

I think along the same lines... I'm in a wave of sorts. Whether it will lead to improvement is yet to be determined. It feels so good (the last several weeks), that I am hesitant to do another drop, which isn't really a good thing, b/c the desire to be off this stuff is so strong. I have to drop soon... like it or not.

Wellbutrin: 150mg.

Xanax: .5 once daily

 

Charter Member 2011


#14 Healing

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Posted 02 May 2011 - 04:52 PM

We might call this FAQ -- The Windows and Waves Pattern of Recovery subtitle: When it seems like you're not improving NP -- thanks for writing this up! Would you like to include something about how you are healing even when you are miserably symptomatic, as evidenced by the fact that, what?, you usually see progress as soon as the flare up ends, and, even if you don't immediately, eventually you do? (Summer -- I'm going to reply to this post of yours over on your tapering thread.)
1996-97 - Paxil x 9 months, tapered, suffered 8 months withdrawal but didn't know it was withdrawal, so...
1998-2001 - Zoloft, tapered, again unwittingly went into withdrawal, so...
2002-03 - Paxil x 20 months, developed severe headaches, so...
Sep 03 - May 05 - Paxil taper took 20 months, severe physical, moderate psychological symptoms
Sep 03 - Jun 05 - took Prozac to help with Paxil taper - not recommended
Jul 05 to date - post-taper, severe psychological, moderate physical symptoms, improving very slowly

#15 Neuroplastic

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Posted 03 May 2011 - 01:41 AM

We might call this FAQ --

The Windows and Waves Pattern of Recovery
subtitle: When it seems like you're not improving

Sounds good!

Would you like to include something about how you are healing even when you are miserably symptomatic, as evidenced by the fact that, what?, you usually see progress as soon as the flare up ends, and, even if you don't immediately, eventually you do?

Yes, I was also thinking of interspersing the text with a sentence or two taken from the real testimonies - this would work even better - people would get a nice uplift from those.


2000-2008 Paxil for a situational depression
2008 - Paxil c/t
Severe protracted WD syndrome ever since; improving


“The only reason for time is so that everything doesn't happen at once”
Albert Einstein

"Add signature to your profile. This way we can help you even better!"
Surviving Antidepressants ;)

And, above all, ... keep walking. Just keep walking.

#16 Neuroplastic

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Posted 03 May 2011 - 02:02 AM

I think along the same lines... I'm in a wave of sorts. Whether it will lead to improvement is yet to be determined. It feels so good (the last several weeks), that I am hesitant to do another drop, which isn't really a good thing, b/c the desire to be off this stuff is so strong. I have to drop soon... like it or not.


Keep us updated, Sum!
2000-2008 Paxil for a situational depression
2008 - Paxil c/t
Severe protracted WD syndrome ever since; improving


“The only reason for time is so that everything doesn't happen at once”
Albert Einstein

"Add signature to your profile. This way we can help you even better!"
Surviving Antidepressants ;)

And, above all, ... keep walking. Just keep walking.

#17 Brandy

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Posted 03 May 2011 - 06:27 PM

I think along the same lines... I'm in a wave of sorts. Whether it will lead to improvement is yet to be determined. It feels so good (the last several weeks), that I am hesitant to do another drop, which isn't really a good thing, b/c the desire to be off this stuff is so strong. I have to drop soon... like it or not.


If you're feeling good, I think the term is "window."

It took me years to get the terms straight (waves and windows) and I still have to consciously think about them before I use them.

I think with me at least, it's because I have a mental picture of a wave as water rising joyously upward in the ocean, and I can't shake that image!!!

Drove me nuts for years...

I was "TryingToGetWell" (aka TTGW) on paxilprogress. I also was one of the original members here on Surviving Antidepressants

 

I had horrific and protracted withdrawal from paxil, but now am back to enjoying life with enthusiasm to the max, some residual physical symptoms continued but largely improve. The horror, severe derealization, anhedonia, akathisia, and so much more, are long over.

 

My signature is a temporary scribble from year 2013. I'll rewrite it when I can.

 

If you want to read it, click on http://survivinganti...nyone/?p=110343


#18 summer

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Posted 03 May 2011 - 07:09 PM


I think along the same lines... I'm in a wave of sorts. Whether it will lead to improvement is yet to be determined. It feels so good (the last several weeks), that I am hesitant to do another drop, which isn't really a good thing, b/c the desire to be off this stuff is so strong. I have to drop soon... like it or not.


If you're feeling good, I think the term is "window."

It took me years to get the terms straight (waves and windows) and I still have to consciously think about them before I use them.

I think with me at least, it's because I have a mental picture of a wave as water rising joyously upward in the ocean, and I can't shake that image!!!

Drove me nuts for years...



Ummmm... thank you. I'll try and remember the difference. :lol:

Wellbutrin: 150mg.

Xanax: .5 once daily

 

Charter Member 2011


#19 Brandy

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Posted 03 May 2011 - 09:31 PM

Good - then you can remind me when I slip up! :D

I was "TryingToGetWell" (aka TTGW) on paxilprogress. I also was one of the original members here on Surviving Antidepressants

 

I had horrific and protracted withdrawal from paxil, but now am back to enjoying life with enthusiasm to the max, some residual physical symptoms continued but largely improve. The horror, severe derealization, anhedonia, akathisia, and so much more, are long over.

 

My signature is a temporary scribble from year 2013. I'll rewrite it when I can.

 

If you want to read it, click on http://survivinganti...nyone/?p=110343


#20 Light

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Posted 04 May 2011 - 08:42 AM

During my severe two year withdrawal from benzos I experienced the classic waves/windows pattern. After more than a year of constant 7/24 suffering I began to experience windows in which I felt amazing, sometimes a little too good (slightly hypomanic). This would be followed by a 2-3 day period of feeling almost as bad as I did in the very beginning. This repeated over and over again and with time the duration of the windows began to increase and the severity of the bad days was reduced. By 2 years I was about 90% recovered and the residual symptoms cleared over a period of several months.

With the waves/windows it seemed that my body was jumping back and forth between 1) the adapted homeostasis that was made in response to the presence of the drugs but that in the absence of the drugs gave rise to withdrawal symptoms and 2) my true drug-naive homeostasis. Why would my physiology jump between these two grooves rather than exhibit a slow more linear pattern of improvement? Could it be that normal fluctuations in gaba/endogenous benzos were detected as excessive and so my physiology overreacted as though I were taking a benzo? That my body knew what the homeostatic setting for health was but that it's "thermostat" was simply too sensitive (after being bombarded by drugs for so many years).

I do think that waves/windows were an integral part of my benzo withdrawal recovery but I haven't experienced that pattern during my AD withdrawal. Maybe my body is too confused after 5 years of polypharmacy??

BTW, just saw this link this morning?

http://www.newsweek....evie-nicks.html

#21 Healing

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Posted 04 May 2011 - 10:07 AM

Great to see you posting, Light! :)

Great interview with Stevie Nicks! Wow, she gets it.

Why would my physiology jump between these two grooves rather than exhibit a slow more linear pattern of improvement?


This is the question. Why the unlinearity of this recovery? What is the purpose served by dysautonomia? What is the body trying to do here? Why not heal smoothly and linearly?

I mean, yeah, it seems likely there is some sort of over-reaction, that alerting response in hyperdrive. But why?
1996-97 - Paxil x 9 months, tapered, suffered 8 months withdrawal but didn't know it was withdrawal, so...
1998-2001 - Zoloft, tapered, again unwittingly went into withdrawal, so...
2002-03 - Paxil x 20 months, developed severe headaches, so...
Sep 03 - May 05 - Paxil taper took 20 months, severe physical, moderate psychological symptoms
Sep 03 - Jun 05 - took Prozac to help with Paxil taper - not recommended
Jul 05 to date - post-taper, severe psychological, moderate physical symptoms, improving very slowly

#22 Soso

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Posted 25 July 2011 - 05:25 AM

Is that true ? I am so scared that crazy wave of symptoms means more damage ?

#23 Eliotsmum

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Posted 25 July 2011 - 05:57 AM

from what I read here, waves of good days and bad days, means your body is trying to heal, and it will get better over time. But I know all too well, that is hard to believe when you are having a bad day. I am having one today, morning anxiety. And it is hard to go through, that's for sure....
On antidepressants since October 1997 including: Paxil, Celexa, Cipralex, Effexor (a couple of days only, horrible stuff.....), Pristiq 50 mg.
Started to taper off Pristiq Feb 2011, last pill April 9, 2011
Take the occassional Clonazapam when morning anxiety too much to handle.
Post menopausal - started low dose BHRT 27July10
Reinstated 5mg of Escitalopram (Cipralex), 2 Aug 2010
Stopped taking BHRT 19Aug11
Increased to 10 mg Cipralex 19Aug11
Increased to 15 mg Cipralex 29Aug11

#24 Nadia

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Posted 25 July 2011 - 09:02 AM

I sure hope so!! What kind of waves of symptoms are you having?

'94-'08 On/off ADs. Mostly Zoloft & Wellbutrin, but also Prozac, Celexa, Effexor, etc.
6/08 quit Z & W after tapering, awful anxiety 3 mos. later, reinstated.
11/10 CTed. Severe anxiety 3 mos. later & @ 8 mos. much worse (set off by metronidazole). Anxiety, depression, anhedonia, DP, DR, dizziness, severe insomnia, high serum AM cortisol, flu-like feelings, muscle discomfort.
9/11-9/12 Waves and windows of recovery.
10/12 Awful relapse, DP/DR. Hydrocortisone?
11/12 Improved fairly quickly even though relapse was one of worst waves ever.

1/13 Best I've ever felt.

3/13 A bit of a relapse... then faster and shorter waves and windows.

4/14 Have to watch out for triggers, but feel completely normal about 80% of the time.


#25 Maybe

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Posted 25 July 2011 - 09:12 AM

I doubt that the waves mean healing. Though they surely do not mean new damage occurring as well (if it is a "normal" wave, that is). My opinion is, that those waves are more a sign that the system still does not work properly. Why should my body suddenly heal, when I exercised too much and I got symptoms because of that?

End of 2008: Remeron 15mg for around 2 months. Unorthodox taper, no problems.
End of August 2009: Lexapro 10mg for only 4 days. Panic attack after 3 pills. Severe gastro problems in the morning for 3 days after last pill. 2 weeks later strong w/d symptoms set in.

Acute WD lasted around 3.5 years. I am feeling much better today, 5.5 years out, but still have some symptoms left.


#26 Nadia

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Posted 25 July 2011 - 09:29 AM

Maybe it's wishful thinking, but I think that some bad feelings could be an indication that your brain and body is trying to heal... not in the sense that is getting there, but that it is on its way, making readjustments that are very uncomfortable, but that in the end will cease and desist and leave us in a better place. At the same time, I do think that we have to aid the process and help ourselves to calm down the waves. It's a really tough balancing act. Exercise, but not too much. Relax, but not too much. Work, but not too much. The hard part is finding what "too much" is!

'94-'08 On/off ADs. Mostly Zoloft & Wellbutrin, but also Prozac, Celexa, Effexor, etc.
6/08 quit Z & W after tapering, awful anxiety 3 mos. later, reinstated.
11/10 CTed. Severe anxiety 3 mos. later & @ 8 mos. much worse (set off by metronidazole). Anxiety, depression, anhedonia, DP, DR, dizziness, severe insomnia, high serum AM cortisol, flu-like feelings, muscle discomfort.
9/11-9/12 Waves and windows of recovery.
10/12 Awful relapse, DP/DR. Hydrocortisone?
11/12 Improved fairly quickly even though relapse was one of worst waves ever.

1/13 Best I've ever felt.

3/13 A bit of a relapse... then faster and shorter waves and windows.

4/14 Have to watch out for triggers, but feel completely normal about 80% of the time.


#27 Altostrata

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Posted 25 July 2011 - 09:42 AM

I'm moving this topic to the Symptoms forum. There is only one topic per member in the Intro forum. Waves mean your nervous system is struggling to heal. It moves in the right direction for a bit, then falls back a bit. This is normal. You can view the "better" part of the wave as when your nervous system is finding its balance. These periods will get more longer and more frequent as time goes on. See the other topics in Symptoms for more information about waves.
This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

#28 Nickie

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Posted 21 May 2012 - 07:38 PM

Hi there, I am pleased to say that I have seen some improvements recently, ([phew!). It's been coming in fits and spurts, but little by little it's been a bit better. Still not good, but a little better. How do I know if this is a window I'm heading into, only to be thrown into another hellish wave later, or if this is genuine improvement that will continue to continue? What's the difference, or is there one? Wishing you all well!

#29 Altostrata

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Posted 22 May 2012 - 09:38 AM

It's all waves and windows, Nickie, so don't get discouraged if you feel bad again. The windows get longer and the waves get weaker until, one day, you can say you feel normal.
This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

#30 Dani

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Posted 23 May 2012 - 04:26 PM

It's all waves and windows, Nickie, so don't get discouraged if you feel bad again.

The windows get longer and the waves get weaker until, one day, you can say you feel normal.


That's my problem...I get so discouraged. Last week, I had 5 okay days with this past Saturday feeling the most normal I'd felt in months...then sunday night, I hit the skids :(

Dec 2004 - Put on Zoloft after having a panic attack from the Birth Control Ortho Evra Patch (the doctors thought I was completely insane when I told them I think the Birth Control Patch is giving me anxiety/panic. Funny how they tell you NOW that Birth Control can indeed cause anxiety) Started at 25mg, increased to 50 mg and 100 mg in 2007. They made me too sleepy so decreased back to 50mg until 2009. Reduced to 25 mg in 2010.

Oct 2010 - Decided to come off Zoloft to try and have children. Didn't know anything about tapering because apparently, my doctor didn't know about it either. WDs included heart palpitations, dizziness, tinnitus etc. Decided to go back on Zoloft within 2 weeks of stopping.

January 2011 - Knowing a little more about tapering, I decided to stop taking taking Zoloft with my doctors help again. She told me to hurry and taper in 4 weeks because the tinnitus could become permanent. I thought this was too fast so I took another month to taper.

March 30, 2011 - Last Zoloft pill.

Had a little dizziness & sadness, but felt fine until Aug 2011 after a relative died.

Since then symptoms include brain shivers, migraine headaches on right side of head, warm/hot sensations on right side of head and ears, internal vibrations, tremor, muscle twitches, strange sensations in right side of head, anxiety, nervousness, sadness, disconnected, depersonalization, numbness on left side of body at times, neck pain, muscle/rib cage pains,  just don't feel like myself :(


#31 R187

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Posted 05 June 2012 - 10:18 AM

I'm 3 months into withdrawal and have only just started reading about windows and waves so this is really interesting. i can completely relate to the waves thing. A few weeks ago I had waves of 2 particular symptoms at any one time, e.g I'd get eye pain and hip pain together and then 3 days later the symptoms would go away and straight away I'd get a new pairing of say skin burning and back pain then that would go 3 days later and I'd then get chest pains and pain in my left arm, then nausea and terrible headaches together. I guess these are waves? I think or I hope these symptoms are lessening in intensity now although i'm not sure. It's difficult to remember the level of pain/discomfort they generated a few weeks ago and how it compares to today. Over the past couple of days I've had all symptoms seeming to last an hour or so each. Maybe the waves have changed? I've never had a day without symptoms yet. Are symptom free days windows? or are windows the days when you don't have a particular symptom? I'd be so happy if I could have just a few hours without something bothering me. It's so depressing. I guess I'm only 12 weeks into this so hopefully i will have some symptom free moments eventually. It's comforting to think the waves and elusive (at the moment) windows are all part of the process of your brain getting back to normal.
Had taken sertraline and Prozac for approx 6 weeks each in 2001 and 2006. Stopped c/t both times no prob. October 2011 started sertraline again. December 2011 started getting weird symptoms (stomach ache and numb limbs in my sleep) so decided I wanted off the 50mg sertraline. Cut in half in december and reduced to 25mg. Knew I was in trouble as went into withdrawals. Managed to stabilise quickly though and thought I could quickly come off 25mg. Stopped the 25mg in march 2012. Went into withdrawal and experiencing for almost 3 years now.

#32 Jemima

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Posted 05 June 2012 - 06:01 PM

It's comforting to think the waves and elusive (at the moment) windows are all part of the process of your brain getting back to normal.


That's exactly what is happening. Because antidepressants change brain functioning by destroying serotonin receptors, recovery goes in fits and starts as these receptors regenerate. (From what I've read, this is my understanding of what getting back to health after withdrawal is all about.)

I'm coming up on six months post-Lexapro and I still have occasional Cortisol mornings (anxiety-provoking dreams or dread upon awakening, followed by irritability), but I'm also experiencing more often the contentment and happiness I once had before my drug-related problems began. The physical aches and pains are lessening as well.

As you might guess, these things take time as the body and brain heal from what amounts to a toxic invasion. So hang in there, and believe that your sense of comfort is well justified.

Psychotropic drug history: Pristiq 50 mg. (mid-September 2010 through February 2011), Remeron (mid-September 2010 through January 2011), Lexapro 10 mg. (mid-February 2011 through mid-December 2011), Lorazepam (Ativan) 1 mg. as needed mid-September 2010 through early March 2012

"Never attribute to malice that which is adequately explained by stupidity." -Hanlon's Razor


Introduction: http://survivinganti...oducing-jemima/

 

Success Story: http://survivinganti...r-dickhead-too/

Please note that I am not a medical professional and my advice is based on personal experience, reading, and anecdotal information posted by other sufferers.

 


#33 Skyler

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Posted 16 June 2012 - 12:01 PM

Posted Image ALL, The tinnitus I have comes in waves. A little while ago I responded to someone who has neuro emotion that comes in waves. What happens on a neurological level that causes this. Does anyone know? They may be related to neuro plasticity, but then why do symptoms ebb and flow, and what causes windows. Thanks~S

As always, LISTEN TO YOUR BODY! A proud supporter of the 10% (or slower) rule.

 

Requip - 3/16 ZERO  Total time on 25 years.

 

Lyrica: 8/15 ZERO Total time on 7 or 8 yrs.

BENZO FREE 10/13 (started tapering 7/10)  Total time on 25 years.

 

Read my intro thread here, and check the about me section.  "No matter how cynical you get, it's almost impossible to keep up." Lily Tomlin

 

 


#34 Altostrata

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Posted 16 June 2012 - 12:32 PM

Merged our waves and windows topics. Our nervous systems are so complicated, they repair themselves in patches. Some parts recover, then the whole thing needs to rebalance again. Rinse and repeat.
This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

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#35 Skyler

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Posted 16 June 2012 - 12:37 PM

Merged our waves and windows topics.

Our nervous systems are so complicated, they repair themselves in patches. Some parts recover, then the whole thing needs to rebalance again. Rinse and repeat.

Posted Image Rinse, repeat. Cute. My guess is no one knows what goes on on a cellular level that brings this about but I'll read the above when I get a chance. It really is nerve wracking to have symptoms subside, then come roaring back. It also makes it difficult to track them. If I had not just had a relatively prolonged hold time on both the psychotropics, it would be difficult to know what was withdrawal from a cut and what was a wave. Argh. Two windows and counting. Thanks

As always, LISTEN TO YOUR BODY! A proud supporter of the 10% (or slower) rule.

 

Requip - 3/16 ZERO  Total time on 25 years.

 

Lyrica: 8/15 ZERO Total time on 7 or 8 yrs.

BENZO FREE 10/13 (started tapering 7/10)  Total time on 25 years.

 

Read my intro thread here, and check the about me section.  "No matter how cynical you get, it's almost impossible to keep up." Lily Tomlin

 

 


#36 Barbarannamated

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Posted 16 June 2012 - 12:40 PM

A little while ago I responded to someone who has neuro emotion that comes in waves. What happens on a neurological level that causes this. Does anyone know? They may be related to neuro plasticity, but then why do symptoms ebb and flow, and what causes windows. Thanks~S


Chaos in the neuroendocrine system as it attempts to reach homeostasis. ? Ultra sensitive to stressors that set off a cascade of events. Most of these drugs lower our stress tolerance and what may have been a mild to moderate stressor is more intense. We don't rebound as easily. I learned of this from a therapist friend (read: NON-MD) years ago when I was reacting disproportionately to "everything"! "Everything" seemed a crisis and she explained the biochemical underpinnings.
Pristiq tapered over 8 months ending Spring 2011 after 18 years of polydrugging that began w/Zoloft for fatigue/general malaise (not mood). CURRENT: 1mg Klonopin qhs (SSRI bruxism), 75mg trazodone qhs, various hormonesLitigation for 11 years for Work-related injury, settled 2004. Involuntary medical retirement in 2001 (age 39). 2012 - brain MRI showing diffuse, chronic cerebrovascular damage/demyelination possibly vasculitis/cerebritis. Dx w/autoimmune polyendocrine failure.<p>2013 - Dx w/CNS Sjogren's Lupus (FANA antibodies first appeared in 1997 but missed by doc).