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The Windows and Waves Pattern of Stabilization


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#469 RachelSusan

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Posted 09 November 2016 - 06:29 PM

Thanks Prohealer, that's really nice. I hope you are doing OK.

RS


Rachel

 

Find my story here:  http://survivinganti...?hl=rachelsusan

HISTORY

Feb. 2016  - 100mg - 150mg Zoloft. 

Quit Zoloft June  2016, went into withdrawal.   Reinstated 50mg of Zoloft July 8 2016.

After the reinstatement the following was a doctor suggested tapering schedule and was much to harsh for me. July 2016 down to to 25 mg , August   down to 12.5, & then 6.25, Sept. - 5.0mg, October 2.3 mg. I was sick the entire way down and up-dosed in November to 12.5 mg.

STARTING SENSIBLE TAPERING USING GUIDELINES FROM THIS SITE

12/10/16 - switched to Liquid Zoloft @ 12.5 mg.   1/19/17 reduced to 12.0 mg (4%).   2/9/17 reduced to 11.0 mg (8%). 3/1/17 - reduced to 10.0 mg (9 %).  3/21/17 - reduced to 9.5 mg (5%). 4/1/17 - reduced to 9.0 mg (5.3%).

 

Currently on: Gabapentin - Started July of 2016, 900 mg.

Wellbutrin from about 2005 to about 2010 - went off cold turkey with no problems - don't remember dosage


#470 Prohealer

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Posted 10 November 2016 - 05:57 AM

Thanks although i just shared it from earlier in the thread. Im hoping someone can help answer the question i posed at the bottom as im not doing so great atm.

2009: Put on Fluoxetine (20mg) and Risperdal (0.5mg) for OCD. Dose was increased a few weeks later to 40mg Fluoxetine and 1mg Risperdal.

2011: Began experiencing Depersonalisation and Visual Snow, general loss of energy and breast growth. Was kept on 40mg Fluoxetine until Late Dec 2015. Risperdal dosage varied and was kept on 0.5mg for a long while before Nov 2015.

Early Sep 2015: Began having symptoms of extreme anxiety, psychosis and hot flushes due to mixing illegal drugs.

Late Nov 2015: Psych doc raised Risperdal to 8mg. Began having severe and hellish Akathisia. Was kept being given Diazepam to cope.

Early Dec 2015: Began seeing a new psych doc who tapered me off Risperdal over a period of a few weeks and put me onto Quetiapine.

Late Dec 2015: Quick tapered off of everything due to little guidance.

Mid March 2016: Reinstated Fluoxetine (5mg), dose was increased to 10mg a couple of weeks later. Gave me restless legs and stopped taking immediately (RLS was unbearable).

10 May 2016: Unsuccessful Fluoxetine reinstatement at 1mg. Drug free since May 2016.

 

Diet (When Able): Low carb and sugar/low histamine, high fat & dark greens. medium protein and fruit. Taking magnesium and omega 3 supplements daily, (vitamin E during TD flare-ups). Drinking at least one mug of chamomile a day. Light exercise when able.

 

"The best you can is good enough" - Radiohead "Optimistic"


#471 Prohealer

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Posted 10 November 2016 - 06:26 AM

I guess a more simplified way of asking would be, can you undo recovery with too much stress, drama and binge eating, or does it just throw the"table" off balance every time? I seem to get conflicting answers but i guess i need to learn not to keep seeking the answer, these neuro emotions are making me obsess over this.

2009: Put on Fluoxetine (20mg) and Risperdal (0.5mg) for OCD. Dose was increased a few weeks later to 40mg Fluoxetine and 1mg Risperdal.

2011: Began experiencing Depersonalisation and Visual Snow, general loss of energy and breast growth. Was kept on 40mg Fluoxetine until Late Dec 2015. Risperdal dosage varied and was kept on 0.5mg for a long while before Nov 2015.

Early Sep 2015: Began having symptoms of extreme anxiety, psychosis and hot flushes due to mixing illegal drugs.

Late Nov 2015: Psych doc raised Risperdal to 8mg. Began having severe and hellish Akathisia. Was kept being given Diazepam to cope.

Early Dec 2015: Began seeing a new psych doc who tapered me off Risperdal over a period of a few weeks and put me onto Quetiapine.

Late Dec 2015: Quick tapered off of everything due to little guidance.

Mid March 2016: Reinstated Fluoxetine (5mg), dose was increased to 10mg a couple of weeks later. Gave me restless legs and stopped taking immediately (RLS was unbearable).

10 May 2016: Unsuccessful Fluoxetine reinstatement at 1mg. Drug free since May 2016.

 

Diet (When Able): Low carb and sugar/low histamine, high fat & dark greens. medium protein and fruit. Taking magnesium and omega 3 supplements daily, (vitamin E during TD flare-ups). Drinking at least one mug of chamomile a day. Light exercise when able.

 

"The best you can is good enough" - Radiohead "Optimistic"


#472 scallywag

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Posted 10 November 2016 - 07:35 AM

Those things can be destabilizing but they don't send you back to the start, like one of those rotten long snakes in Snakes & Ladders. Or using the metaphor you've chosen, one could say that stress, drama, and stress eating knock out that wedge of wadded paper somebody put under a table leg to keep it level and stable.


This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.
1997-1999 Effexor; 2002-2005 Effexor XR 37.5 mg linear taper, dropping same #beads/week with bad results
Cymbalta (brand name), 60 mg 2012 - 2015; 20 mg to 7 mg in 2016, taper details in this post;
2017: 6.3 (58 beads) Feb. 1; 5.6 mg (52) Feb. 22; 5.4 mg (50) Mar. 15;
Current dose: 5.1 mg (47 beads) 2017-Mar-25
+ Supplements: fish oil (1500 mg EPA/500 mg DHA), Vitamins: D3, K2, C; Minerals: Mg, Se, Cr, I, V
scallywag's Introduction
Online spreadsheet for dose taper calculations and nz11's THE WORKS spreadsheet


#473 Prohealer

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Posted 10 November 2016 - 05:12 PM

Thanks scallywag i like the snakes and ladders analogy,

Its just i almost feel as bad as the beggining and am worrying about never getting fully better from all these problems i have at the moment.

2009: Put on Fluoxetine (20mg) and Risperdal (0.5mg) for OCD. Dose was increased a few weeks later to 40mg Fluoxetine and 1mg Risperdal.

2011: Began experiencing Depersonalisation and Visual Snow, general loss of energy and breast growth. Was kept on 40mg Fluoxetine until Late Dec 2015. Risperdal dosage varied and was kept on 0.5mg for a long while before Nov 2015.

Early Sep 2015: Began having symptoms of extreme anxiety, psychosis and hot flushes due to mixing illegal drugs.

Late Nov 2015: Psych doc raised Risperdal to 8mg. Began having severe and hellish Akathisia. Was kept being given Diazepam to cope.

Early Dec 2015: Began seeing a new psych doc who tapered me off Risperdal over a period of a few weeks and put me onto Quetiapine.

Late Dec 2015: Quick tapered off of everything due to little guidance.

Mid March 2016: Reinstated Fluoxetine (5mg), dose was increased to 10mg a couple of weeks later. Gave me restless legs and stopped taking immediately (RLS was unbearable).

10 May 2016: Unsuccessful Fluoxetine reinstatement at 1mg. Drug free since May 2016.

 

Diet (When Able): Low carb and sugar/low histamine, high fat & dark greens. medium protein and fruit. Taking magnesium and omega 3 supplements daily, (vitamin E during TD flare-ups). Drinking at least one mug of chamomile a day. Light exercise when able.

 

"The best you can is good enough" - Radiohead "Optimistic"


#474 Beary

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Posted 12 November 2016 - 06:17 AM

Does anyone know if I take prescribed steroids for another condition if there is any chance of making this worse?

Oct 2016 Took 10mg of amitriptyline, one per day for three days on Oct 6,7,8. Then stopped taking the medication when my legs jerked. Experiencing tingling body wide, burning in the top of my head and jerking movements at night ever since. No history of psychiatric drugs before or since.

 

Dec 2016 Jerking has lessened.  Burning in head has lessened.  Took anti inflamitories for a couple of weeks Nov 2016.  Now I have increased tingling all over my body, increased burning to my head, ear ringing and vision focusing issues.


#475 TweetyRose

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Posted 21 November 2016 - 11:59 PM

Has anyone who is in withdrawal and currently med free experienced having their memory improve, only to have it worsen later on?
Took Prozac 10 mg for 5 months.First and only psych med. Stopped cold turkey. Been in protracted withdrawal for 6 months.

#476 scallywag

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Posted 22 November 2016 - 09:35 AM

TweetyRose - what you describe is exactly the pattern of windows and waves.

 

See also: Delayed onset of symptoms .


This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.
1997-1999 Effexor; 2002-2005 Effexor XR 37.5 mg linear taper, dropping same #beads/week with bad results
Cymbalta (brand name), 60 mg 2012 - 2015; 20 mg to 7 mg in 2016, taper details in this post;
2017: 6.3 (58 beads) Feb. 1; 5.6 mg (52) Feb. 22; 5.4 mg (50) Mar. 15;
Current dose: 5.1 mg (47 beads) 2017-Mar-25
+ Supplements: fish oil (1500 mg EPA/500 mg DHA), Vitamins: D3, K2, C; Minerals: Mg, Se, Cr, I, V
scallywag's Introduction
Online spreadsheet for dose taper calculations and nz11's THE WORKS spreadsheet


#477 Junglechicken

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Posted 28 November 2016 - 08:18 AM

I don't know if my experience typically follows the windows and waves pattern. I tend to get stressed or "rattled" as I call it by external events which then set of a cascade of stress responses in my body - this Is manifested almost entirely by serious muscle tension in my body. This tension will last in my body for days until I remove it either by going for a swim (sometimes will require a few sessions) or having a massage. While the tension remains in my body, no amount of positive thinking will improve my mood, it will remain low until I expunge the tension from my body. There's a strong reciprocal relationship between the body and mind I find.

This I can relate to.

If I am in a window, and I get hit with stress......then that stress will "trigger" a wave of back to back symptoms/or a number of concurrent symptoms. I have experienced this "trigger" effect twice now since reinstating this time last year.

It's like a bomb going off in my CNS.

As we haven't had the money coming in, I haven't been able to get to an osteopath to reduce the muscle tension in my body, so it's remained there; and I have remained in pain. The mind/body correlation is spot on.
<p>Feb 2014 -Cipralex/Escitalopram 10mg daily June 2015 - Started taper, 5mg every other day July 2015 - 5mg every 2 days August 2015 - 5mg every 3 days September 2015 - 5mg every 4 days Sept 14th - Completed tapering, but at 7 weeks "drug free" I suffered serious WD symptoms as a consequence of "incorrect" tapering. Nov 25 2015 - Re-instated Cipralex @ 2.5mg daily. WD symptoms disappeared over a few days. Have been on this dose ever since and am experiencing "windows" and "waves". Nov 15th 2016 Re-started Therapy Jan 19th 2017 Started CBT. Jan 2017 Homeopathic Treatment starts 4th Jan 2017. Mar 2017 Naturopathic Treatment starts - anti-Candida diet starts as diagnosis of Candida Related Complex (CRC). 24 March 2017 DETOX started for anti-Candida to help "re-set" my gut. April 2017 Gut Cleanse - 6 weeks.Plan to re-start taper (liquid Cipralex/Escitalopram)

#478 GirlfromD

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Posted 28 December 2016 - 09:33 AM

Is it possible to after almost a year, to hit a wave that is very hard! I have hit something, with anxiety etc. can't be around anybody at the moment, is bedridden all day, and my heart i pounding all day too and many other things, this wave is as bad as in the beginning  maybe even worse, so im worried! Is this possible after almost a year?? I can't funktion.


2010: 150 mg Sertraline, 50 mg Mirtzapine. I tried to quit cold turkey 28 Nov. 2014 but that was simply the worst thing i have ever experienced in my entire life! Tappered into the meds again, and started tappering out again aug. 2015. I quit Mirtzapine 28 Nov. 2015 and Sertraline 4 jan. 2016 (6 months  drugfree) Feeling a lot better. 14 months off. Hit a bad wave 25/12/16 and can't function at the moment and isolate and having many symtoms. 

 


#479 JP904

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Posted 28 December 2016 - 05:58 PM

Girl from D. I hate to hear you have hit a tough wave. From what I've read, this is definitely possible. CNS doesn't heal for a long time and stressful events can trigger symptoms. Did you have any stressful events happen to cause the wave of anxiety? 


2009 - 10/2014: 40MG Citalopram

10/2014: Started taper by liquid titration by about 5% every few weeks (1000 times harder than Benzo taper)

1/26/17: 3.5 MG

3/12/2017: 2.9 MG

 

2009 - 10/2012: 2 MG of Klonopin 

10/2012: Hit tolerance and began taper

12/2013: Finished liquid titration taper (less than 10% every few weeks)

Experienced protracted withdrawal and was about 80% healed by 10/14 when I started my citalopram taper. 


#480 GirlfromD

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Posted 29 December 2016 - 08:11 AM

Yes i was going to celebrate christmas with my family but i got some panic attacks (i do that when theres a lot of family) and had to get away home, so i actually didnt celebrate chrismas at all. But this thing i feel like have been building up since last month, this wave feels like those i the beginning. Do i have to start all over again, or can i continue where i was when this is over? This is very hard. Could this take very long? I just hope not.


2010: 150 mg Sertraline, 50 mg Mirtzapine. I tried to quit cold turkey 28 Nov. 2014 but that was simply the worst thing i have ever experienced in my entire life! Tappered into the meds again, and started tappering out again aug. 2015. I quit Mirtzapine 28 Nov. 2015 and Sertraline 4 jan. 2016 (6 months  drugfree) Feeling a lot better. 14 months off. Hit a bad wave 25/12/16 and can't function at the moment and isolate and having many symtoms. 

 


#481 GirlfromD

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Posted 29 December 2016 - 09:01 AM

Hi Joanna,   I also worry that the way I feel is the new me, and it's frightening.   I am 18 months off seroxat after 12 years, and the last few weeks have been hell.  Like you, I was not like this before.   I haven't slept well for weeks, staying awake much of the night just pulsating with waves of adrenalin through my body till I could scream, heart beating so fast.   Agitated all the time, nausea and so tired of this total body discomfort.   But reading people on this site, you have to believe that things will improve.   I am trying meditation, not very successfully but I'll keep trying.  Also having a few acupuncture sessions which seem to have helped in the past.  It's reassuring to keep visiting this site.

Im experiencing some sort of the same at the moment, it is so hard! But did yours improve again, im nervous this won't go away or take very long!


2010: 150 mg Sertraline, 50 mg Mirtzapine. I tried to quit cold turkey 28 Nov. 2014 but that was simply the worst thing i have ever experienced in my entire life! Tappered into the meds again, and started tappering out again aug. 2015. I quit Mirtzapine 28 Nov. 2015 and Sertraline 4 jan. 2016 (6 months  drugfree) Feeling a lot better. 14 months off. Hit a bad wave 25/12/16 and can't function at the moment and isolate and having many symtoms. 

 


#482 LexSuks

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Posted 07 January 2017 - 05:57 AM

I've maybe had maybe 2 windows since this almost 4 months off lexapro started . Previous waves I was able to deal with eventually but what I'm going through now is the worst . Feel like a stranger to myself , kinda feel like I'm in a dream , have anxiety about going anywhere. Pretty much lost interest in almost everything except for the withdrawals I'm going through , everything seems a lil strange to me . And in previous waves I still felt kinda like myself but now seems like my emotions n thinking is completely gone or pretty off . Pretty much feel like my personality n what makes me me is gone . Anyone else have a wave like this and get through it . I know waves are temporary but this has gone on for a lil over a week now n it worries me
Was put on Zoloft 15mg 1/17/2016 after I had my first panic attack I believe due to excessive drinking mostly .

Quit Zoloft 4/16 due to side effects and was put on lexapro 10mg

Quit lexapro 10 mg due to side effects 8/16

I don't want to reinstate any drug

Started citalopram 10mg 1/10/17

#483 Lawyerliz

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Posted 07 January 2017 - 06:39 AM

See my review of Deep nutrition. Avoid sugar and veggie oils. Eat olive.oil!

Read book.

#484 Lawyerliz

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Posted 07 January 2017 - 06:43 AM

Vegetable oils can hurt the brain. READ Deep nutrition!

#485 Chochka

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Posted 12 March 2017 - 09:08 AM

Was wondering if anyone has symptoms that have suddenly flared up again after a few months. I've been 6 months off prozac and had one window of about 3 weeks just after Christmas. My symptoms have been mainly physical - intense drowsiness, fatigue, headaches and tinnitus are the worst ones, but they have been getting very slowly better. About 3 weeks ago I started experiencing waves of intense anxiety which have settled into moderate feelings of anxiety and depression pretty much permanently now. I have a fair amount of stress at work and a stressful family situation right now. I can't afford to take any time off work but am really struggling. Can anyone offer any advice or encouragement please?


Originally went on prozac 2008 for CFS - 20mg

Finished end 2012 - extreme anxiety and insomnia for a year, reinstated Jan 2014 - 40mg.

Jan 2015 tapered to 20mg - 5 months WD

Sept 2015 - took 3 tablets for vertigo - triggered 5 months WD

Switched to sertraline Dec 2015 - didn't work so went CT Jan 2016. 6 weeks of breathing and sleep problems so reinstated sertraline.

April 2016 CT - WD started.

April - August 2016 very low dose zopiclone - made WD worse so stopped end August 2017

Since Sept 2016 WD: drowsiness and fatigue; headaches (ended Christmas 2016); numb face (ended Christmas 2016); vivid dreams; anxiety and tearfulness; dizziness; nausea; loud tinnitus; irrational feelings of fear and dread; tingling up and down the backs of my legs; some insomnia but that's getting better. 


#486 Chochka

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Posted 12 March 2017 - 09:10 AM

I've maybe had maybe 2 windows since this almost 4 months off lexapro started . Previous waves I was able to deal with eventually but what I'm going through now is the worst . Feel like a stranger to myself , kinda feel like I'm in a dream , have anxiety about going anywhere. Pretty much lost interest in almost everything except for the withdrawals I'm going through , everything seems a lil strange to me . And in previous waves I still felt kinda like myself but now seems like my emotions n thinking is completely gone or pretty off . Pretty much feel like my personality n what makes me me is gone . Anyone else have a wave like this and get through it . I know waves are temporary but this has gone on for a lil over a week now n it worries me

Hi LexSuks - I'm going through a similar thing to you right now. Let me know how you'are doing.


Originally went on prozac 2008 for CFS - 20mg

Finished end 2012 - extreme anxiety and insomnia for a year, reinstated Jan 2014 - 40mg.

Jan 2015 tapered to 20mg - 5 months WD

Sept 2015 - took 3 tablets for vertigo - triggered 5 months WD

Switched to sertraline Dec 2015 - didn't work so went CT Jan 2016. 6 weeks of breathing and sleep problems so reinstated sertraline.

April 2016 CT - WD started.

April - August 2016 very low dose zopiclone - made WD worse so stopped end August 2017

Since Sept 2016 WD: drowsiness and fatigue; headaches (ended Christmas 2016); numb face (ended Christmas 2016); vivid dreams; anxiety and tearfulness; dizziness; nausea; loud tinnitus; irrational feelings of fear and dread; tingling up and down the backs of my legs; some insomnia but that's getting better. 


#487 Bobo32

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Posted 14 March 2017 - 10:04 AM

In my days pre drugs I used to be passionate about life excited about things and loved to do stuff. Post drugs and many years of withdrawal I'm not passionate about anything. I struggle with things that used to be normal for me especially socializing or interacting with others I need to think everything over nothing comes spontaneously. Anyone experience that even many years post withdrawal?

#488 Madison1

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Posted 16 March 2017 - 10:22 AM

I had never heard of this windows and waves thing but it certainly makes sense. I have been dealing with this for about three years now and I'd feel better and think, finally this is over...then a few months later feel crappy again. I didn't understand it. I thought that it was related to weather even! I tracked the dang weather for months and kept a diary. There was no rhyme or reason though. Then I found this site and reread my diary and notes. It was the waves I was feeling crappy and windows of happiness, feeling good and clarity! Right now I'm in a wave and have been for a couple of months now with days of windows in between. 


2009 - Took Paxil, first antidepressant every. Horrible shocking feelings and depression

2010 - Switched to Cymbalta 30 mg

2013 - upped to 60mg at the horrible advice of a doctor who then said quit cold turkey

2013 - Started prozac 20mg

 

*I have always been low in Vitamin B and around this time learned of Vitamin D deficiency

 

2014 - Horrible withdrawal symptoms....shocking feelings, pressure in head/tension headache almost

Had multiple tests and scans (MRI MRA CT - all normal)

Between end of 2014 to present off an on I still have symptoms. Mostly head pressure, pins and needles, sometimes shocking feelings.