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The Windows and Waves Pattern of Stabilization


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#469 RachelSusan

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Posted 09 November 2016 - 06:29 PM

Thanks Prohealer, that's really nice. I hope you are doing OK.

RS


Rachel

 

Find my story here:  http://survivinganti...?hl=rachelsusan

HISTORY

Feb. 2016  - 100mg - 150mg Zoloft. 

Quit Zoloft June  2016, went into withdrawal.   Reinstated 50mg of Zoloft July 2016.

After the reinstatement the following was a doctor suggested tapering schedule and was much to harsh for me. July 2016 down to to 25 mg , August down to 12.5, & then 6.25, Sept. - 5.0mg, October 2.3 mg. I was sick the entire way down and up-dosed in November to 12.5 mg.

STARTING SENSIBLE TAPERING USING GUIDELINES FROM THIS SITE

12/10/16 - switched to Liquid Zoloft @ 12.5 mg.   1/19/17 reduced to 12.0 mg (4%).   2/9/17 reduced to 11.0 mg (8%). 3/1/17 - reduced to 10.0 mg (9 %).  3/21/17 - reduced to 9.5 mg (5%). 4/1/17 - reduced to 9.0 mg (5.3%). 4/10/17 reduced to 8.5 mg (5.6%). 4/22/17 reduced to 8.25 mg (2.9%). 4/29/17 reduced to 8.0 (3.0%). 5/6/17 reduced to 7.75 mg (3.1%).  5/14/17 reduced to 7.5 mg (3.2%). 5/20/17 reduced to 7.25 mg (3.3%).

 

 

 


#470 Prohealer

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Posted 10 November 2016 - 05:57 AM

Thanks although i just shared it from earlier in the thread. Im hoping someone can help answer the question i posed at the bottom as im not doing so great atm.

2009: Put on Fluoxetine (20mg) and Risperdal (0.5mg) for OCD. Dose was increased a few weeks later to 40mg Fluoxetine and 1mg Risperdal.

2011: Began experiencing Depersonalisation and Visual Snow, general loss of energy and breast growth. Was kept on 40mg Fluoxetine until Late Dec 2015. Risperdal dosage varied and was kept on 0.5mg for a long while before Nov 2015.

Early Sep 2015: Began having symptoms of extreme anxiety, psychosis and hot flushes due to mixing illegal drugs.

Late Nov 2015: Psych doc raised Risperdal to 8mg. Began having severe and hellish Akathisia. Was kept being given Diazepam to cope.

Early Dec 2015: Began seeing a new psych doc who tapered me off Risperdal over a period of a few weeks and put me onto Quetiapine.

Late Dec 2015: Quick tapered off of everything due to little guidance.

Mid March 2016: Reinstated Fluoxetine (5mg), dose was increased to 10mg a couple of weeks later. Gave me restless legs and stopped taking immediately (RLS was unbearable).

10 May 2016: Unsuccessful Fluoxetine reinstatement at 1mg. Drug free since May 2016.

 

Diet (When Able): Low carb and sugar/low histamine, high fat & dark greens. medium protein and fruit. Taking magnesium and omega 3 supplements daily, (vitamin E during TD flare-ups). Drinking at least one mug of chamomile a day. Light exercise when able.

 

"The best you can is good enough" - Radiohead "Optimistic"


#471 Prohealer

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Posted 10 November 2016 - 06:26 AM

I guess a more simplified way of asking would be, can you undo recovery with too much stress, drama and binge eating, or does it just throw the"table" off balance every time? I seem to get conflicting answers but i guess i need to learn not to keep seeking the answer, these neuro emotions are making me obsess over this.

2009: Put on Fluoxetine (20mg) and Risperdal (0.5mg) for OCD. Dose was increased a few weeks later to 40mg Fluoxetine and 1mg Risperdal.

2011: Began experiencing Depersonalisation and Visual Snow, general loss of energy and breast growth. Was kept on 40mg Fluoxetine until Late Dec 2015. Risperdal dosage varied and was kept on 0.5mg for a long while before Nov 2015.

Early Sep 2015: Began having symptoms of extreme anxiety, psychosis and hot flushes due to mixing illegal drugs.

Late Nov 2015: Psych doc raised Risperdal to 8mg. Began having severe and hellish Akathisia. Was kept being given Diazepam to cope.

Early Dec 2015: Began seeing a new psych doc who tapered me off Risperdal over a period of a few weeks and put me onto Quetiapine.

Late Dec 2015: Quick tapered off of everything due to little guidance.

Mid March 2016: Reinstated Fluoxetine (5mg), dose was increased to 10mg a couple of weeks later. Gave me restless legs and stopped taking immediately (RLS was unbearable).

10 May 2016: Unsuccessful Fluoxetine reinstatement at 1mg. Drug free since May 2016.

 

Diet (When Able): Low carb and sugar/low histamine, high fat & dark greens. medium protein and fruit. Taking magnesium and omega 3 supplements daily, (vitamin E during TD flare-ups). Drinking at least one mug of chamomile a day. Light exercise when able.

 

"The best you can is good enough" - Radiohead "Optimistic"


#472 scallywag

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Posted 10 November 2016 - 07:35 AM

Those things can be destabilizing but they don't send you back to the start, like one of those rotten long snakes in Snakes & Ladders. Or using the metaphor you've chosen, one could say that stress, drama, and stress eating knock out that wedge of wadded paper somebody put under a table leg to keep it level and stable.


This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.
1997-1999 Effexor; 2002-2005 Effexor XR 37.5 mg linear taper, dropping same #beads/week with bad results
Cymbalta (brand name), 60 mg 2012 - 2015; 20 mg to 7 mg in 2016, exact doses and dates in this post;
2017: 6.3 (58 beads) Feb. 1; 5.6 mg (52) Feb. 22; 5.4 mg (50) Mar. 15; 5.1 mg (47) Mar. 25; 4.9 mg (45) Apr. 5; 4.5 mg (42) Apr. 14; 3.5 mg (32) Apr. 26;
Current dose: 2.6 mg (24) 2017-May-17
+ Supplements: fish oil (1500 mg EPA/500 mg DHA), Vitamins: D3, K2, C; Minerals: Mg, Se, Cr, I, V
scallywag's Introduction
Online spreadsheet for dose taper calculations and nz11's THE WORKS spreadsheet


#473 Prohealer

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Posted 10 November 2016 - 05:12 PM

Thanks scallywag i like the snakes and ladders analogy,

Its just i almost feel as bad as the beggining and am worrying about never getting fully better from all these problems i have at the moment.

2009: Put on Fluoxetine (20mg) and Risperdal (0.5mg) for OCD. Dose was increased a few weeks later to 40mg Fluoxetine and 1mg Risperdal.

2011: Began experiencing Depersonalisation and Visual Snow, general loss of energy and breast growth. Was kept on 40mg Fluoxetine until Late Dec 2015. Risperdal dosage varied and was kept on 0.5mg for a long while before Nov 2015.

Early Sep 2015: Began having symptoms of extreme anxiety, psychosis and hot flushes due to mixing illegal drugs.

Late Nov 2015: Psych doc raised Risperdal to 8mg. Began having severe and hellish Akathisia. Was kept being given Diazepam to cope.

Early Dec 2015: Began seeing a new psych doc who tapered me off Risperdal over a period of a few weeks and put me onto Quetiapine.

Late Dec 2015: Quick tapered off of everything due to little guidance.

Mid March 2016: Reinstated Fluoxetine (5mg), dose was increased to 10mg a couple of weeks later. Gave me restless legs and stopped taking immediately (RLS was unbearable).

10 May 2016: Unsuccessful Fluoxetine reinstatement at 1mg. Drug free since May 2016.

 

Diet (When Able): Low carb and sugar/low histamine, high fat & dark greens. medium protein and fruit. Taking magnesium and omega 3 supplements daily, (vitamin E during TD flare-ups). Drinking at least one mug of chamomile a day. Light exercise when able.

 

"The best you can is good enough" - Radiohead "Optimistic"


#474 Beary

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Posted 12 November 2016 - 06:17 AM

Does anyone know if I take prescribed steroids for another condition if there is any chance of making this worse?

Oct 2016 Took 10mg of amitriptyline, one per day for three days on Oct 6,7,8. Then stopped taking the medication when my legs jerked. Experiencing tingling body wide, burning in the top of my head and jerking movements at night ever since. No history of psychiatric drugs before or since.

 

Dec 2016 Jerking has lessened.  Burning in head has lessened.  Took anti inflamitories for a couple of weeks Nov 2016.  Now I have increased tingling all over my body, increased burning to my head, ear ringing and vision focusing issues.


#475 TweetyRose

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Posted 21 November 2016 - 11:59 PM

Has anyone who is in withdrawal and currently med free experienced having their memory improve, only to have it worsen later on?
Took Prozac 10 mg for 5 months.First and only psych med. Stopped cold turkey. Been in protracted withdrawal for 6 months.

#476 scallywag

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Posted 22 November 2016 - 09:35 AM

TweetyRose - what you describe is exactly the pattern of windows and waves.

 

See also: Delayed onset of symptoms .


This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.
1997-1999 Effexor; 2002-2005 Effexor XR 37.5 mg linear taper, dropping same #beads/week with bad results
Cymbalta (brand name), 60 mg 2012 - 2015; 20 mg to 7 mg in 2016, exact doses and dates in this post;
2017: 6.3 (58 beads) Feb. 1; 5.6 mg (52) Feb. 22; 5.4 mg (50) Mar. 15; 5.1 mg (47) Mar. 25; 4.9 mg (45) Apr. 5; 4.5 mg (42) Apr. 14; 3.5 mg (32) Apr. 26;
Current dose: 2.6 mg (24) 2017-May-17
+ Supplements: fish oil (1500 mg EPA/500 mg DHA), Vitamins: D3, K2, C; Minerals: Mg, Se, Cr, I, V
scallywag's Introduction
Online spreadsheet for dose taper calculations and nz11's THE WORKS spreadsheet


#477 Junglechicken

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Posted 28 November 2016 - 08:18 AM

I don't know if my experience typically follows the windows and waves pattern. I tend to get stressed or "rattled" as I call it by external events which then set of a cascade of stress responses in my body - this Is manifested almost entirely by serious muscle tension in my body. This tension will last in my body for days until I remove it either by going for a swim (sometimes will require a few sessions) or having a massage. While the tension remains in my body, no amount of positive thinking will improve my mood, it will remain low until I expunge the tension from my body. There's a strong reciprocal relationship between the body and mind I find.

This I can relate to.

If I am in a window, and I get hit with stress......then that stress will "trigger" a wave of back to back symptoms/or a number of concurrent symptoms. I have experienced this "trigger" effect twice now since reinstating this time last year.

It's like a bomb going off in my CNS.

As we haven't had the money coming in, I haven't been able to get to an osteopath to reduce the muscle tension in my body, so it's remained there; and I have remained in pain. The mind/body correlation is spot on.

19 Feb 2014 -Cipralex/Escitalopram 10mg daily June 2015 - Started taper, 5mg every other day July 2015 - 5mg every 2 days August 2015 - 5mg every 3 days September 2015 - 5mg every 4 days Sept 14th - Completed tapering, but at 7 weeks "drug free" I suffered serious WD symptoms as a consequence of "incorrect" tapering. Nov 25 2015 - Re-instated Cipralex @ 2.5mg daily. WD symptoms disappeared over a few days. Have been on this dose ever since and am experiencing "windows" and "waves". Nov 15th 2016 Re-started Therapy Jan 19th 2017 Started CBT. 4 Jan 2017 Homeopathic Treatment starts. 24 Feb 2017 Started weight loss program Mar 2017 Naturopathic Treatment starts - anti-Candida diet starts as suspected Candida Related Complex (CRC). 24 March 2017 DETOX (7 weeks) started for anti-Candida to help "re-set" my gut. April 2017 "Genova Testing 3 day stool sampling" Comprehensive Analysis. 11 May 2017 Stool sample analysis results - NEGATIVE :)  Plan to get tested for SIBO July 2017 Plan to get further health screening (mammogram, liver panel, food allergies etc.,).

Plan to re-start taper (Cipralex/Escitalopram) when feel ready.


#478 GirlfromD

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Posted 28 December 2016 - 09:33 AM

Is it possible to after almost a year, to hit a wave that is very hard! I have hit something, with anxiety etc. can't be around anybody at the moment, is bedridden all day, and my heart i pounding all day too and many other things, this wave is as bad as in the beginning  maybe even worse, so im worried! Is this possible after almost a year?? I can't funktion.


2010: 150 mg Sertraline, 50 mg Mirtzapine. I tried to quit cold turkey 28 Nov. 2014 but that was simply the worst thing i have ever experienced in my entire life! Tappered into the meds again, and started tappering out again aug. 2015. I quit Mirtzapine 28 Nov. 2015 and Sertraline 4 jan. 2016 (6 months  drugfree) Feeling a lot better. 14 months off. Hit a bad wave 25/12/16 and can't function at the moment and isolate and having many symtoms. 

 


#479 JP904

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Posted 28 December 2016 - 05:58 PM

Girl from D. I hate to hear you have hit a tough wave. From what I've read, this is definitely possible. CNS doesn't heal for a long time and stressful events can trigger symptoms. Did you have any stressful events happen to cause the wave of anxiety? 


2009 - 10/2014: 40MG Citalopram

10/2014: Started taper by liquid titration by about 5% every few weeks (1000 times harder than Benzo taper)

1/26/17: 3.5 MG

3/12/2017: 2.9 MG

 

2009 - 10/2012: 2 MG of Klonopin 

10/2012: Hit tolerance and began taper

12/2013: Finished liquid titration taper (less than 10% every few weeks)

Experienced protracted withdrawal and was about 80% healed by 10/14 when I started my citalopram taper. 


#480 GirlfromD

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Posted 29 December 2016 - 08:11 AM

Yes i was going to celebrate christmas with my family but i got some panic attacks (i do that when theres a lot of family) and had to get away home, so i actually didnt celebrate chrismas at all. But this thing i feel like have been building up since last month, this wave feels like those i the beginning. Do i have to start all over again, or can i continue where i was when this is over? This is very hard. Could this take very long? I just hope not.


2010: 150 mg Sertraline, 50 mg Mirtzapine. I tried to quit cold turkey 28 Nov. 2014 but that was simply the worst thing i have ever experienced in my entire life! Tappered into the meds again, and started tappering out again aug. 2015. I quit Mirtzapine 28 Nov. 2015 and Sertraline 4 jan. 2016 (6 months  drugfree) Feeling a lot better. 14 months off. Hit a bad wave 25/12/16 and can't function at the moment and isolate and having many symtoms. 

 


#481 GirlfromD

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Posted 29 December 2016 - 09:01 AM

Hi Joanna,   I also worry that the way I feel is the new me, and it's frightening.   I am 18 months off seroxat after 12 years, and the last few weeks have been hell.  Like you, I was not like this before.   I haven't slept well for weeks, staying awake much of the night just pulsating with waves of adrenalin through my body till I could scream, heart beating so fast.   Agitated all the time, nausea and so tired of this total body discomfort.   But reading people on this site, you have to believe that things will improve.   I am trying meditation, not very successfully but I'll keep trying.  Also having a few acupuncture sessions which seem to have helped in the past.  It's reassuring to keep visiting this site.

Im experiencing some sort of the same at the moment, it is so hard! But did yours improve again, im nervous this won't go away or take very long!


2010: 150 mg Sertraline, 50 mg Mirtzapine. I tried to quit cold turkey 28 Nov. 2014 but that was simply the worst thing i have ever experienced in my entire life! Tappered into the meds again, and started tappering out again aug. 2015. I quit Mirtzapine 28 Nov. 2015 and Sertraline 4 jan. 2016 (6 months  drugfree) Feeling a lot better. 14 months off. Hit a bad wave 25/12/16 and can't function at the moment and isolate and having many symtoms. 

 


#482 LexSuks

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Posted 07 January 2017 - 05:57 AM

I've maybe had maybe 2 windows since this almost 4 months off lexapro started . Previous waves I was able to deal with eventually but what I'm going through now is the worst . Feel like a stranger to myself , kinda feel like I'm in a dream , have anxiety about going anywhere. Pretty much lost interest in almost everything except for the withdrawals I'm going through , everything seems a lil strange to me . And in previous waves I still felt kinda like myself but now seems like my emotions n thinking is completely gone or pretty off . Pretty much feel like my personality n what makes me me is gone . Anyone else have a wave like this and get through it . I know waves are temporary but this has gone on for a lil over a week now n it worries me
Was put on Zoloft 15mg 1/17/2016 after I had my first panic attack I believe due to excessive drinking mostly .

Quit Zoloft 4/16 due to side effects and was put on lexapro 10mg

Quit lexapro 10 mg due to side effects 8/16

I don't want to reinstate any drug

Started citalopram 10mg 1/10/17

#483 Lawyerliz

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Posted 07 January 2017 - 06:39 AM

See my review of Deep nutrition. Avoid sugar and veggie oils. Eat olive.oil!

Read book.

#484 Lawyerliz

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Posted 07 January 2017 - 06:43 AM

Vegetable oils can hurt the brain. READ Deep nutrition!

#485 Chochka

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Posted 12 March 2017 - 09:08 AM

Was wondering if anyone has symptoms that have suddenly flared up again after a few months. I've been 6 months off prozac and had one window of about 3 weeks just after Christmas. My symptoms have been mainly physical - intense drowsiness, fatigue, headaches and tinnitus are the worst ones, but they have been getting very slowly better. About 3 weeks ago I started experiencing waves of intense anxiety which have settled into moderate feelings of anxiety and depression pretty much permanently now. I have a fair amount of stress at work and a stressful family situation right now. I can't afford to take any time off work but am really struggling. Can anyone offer any advice or encouragement please?


Originally went on prozac 2008 for CFS - 20mg

Finished end 2012 - extreme anxiety and insomnia for a year, reinstated Jan 2014 - 40mg.

Jan 2015 tapered to 20mg - 5 months WD

Sept 2015 - took 3 tablets for vertigo - triggered 5 months WD

Switched to sertraline Dec 2015 - didn't work so went CT Jan 2016. 6 weeks of breathing and sleep problems so reinstated sertraline.

April 2016 CT - WD started.

April - August 2016 very low dose zopiclone - made WD worse so stopped end August 2017

Since Sept 2016 WD: drowsiness and fatigue; headaches (ended Christmas 2016); numb face (ended Christmas 2016); vivid dreams; anxiety and tearfulness; dizziness; nausea; loud tinnitus; irrational feelings of fear and dread; tingling up and down the backs of my legs; some insomnia but that's getting better. 


#486 Chochka

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Posted 12 March 2017 - 09:10 AM

I've maybe had maybe 2 windows since this almost 4 months off lexapro started . Previous waves I was able to deal with eventually but what I'm going through now is the worst . Feel like a stranger to myself , kinda feel like I'm in a dream , have anxiety about going anywhere. Pretty much lost interest in almost everything except for the withdrawals I'm going through , everything seems a lil strange to me . And in previous waves I still felt kinda like myself but now seems like my emotions n thinking is completely gone or pretty off . Pretty much feel like my personality n what makes me me is gone . Anyone else have a wave like this and get through it . I know waves are temporary but this has gone on for a lil over a week now n it worries me

Hi LexSuks - I'm going through a similar thing to you right now. Let me know how you'are doing.


Originally went on prozac 2008 for CFS - 20mg

Finished end 2012 - extreme anxiety and insomnia for a year, reinstated Jan 2014 - 40mg.

Jan 2015 tapered to 20mg - 5 months WD

Sept 2015 - took 3 tablets for vertigo - triggered 5 months WD

Switched to sertraline Dec 2015 - didn't work so went CT Jan 2016. 6 weeks of breathing and sleep problems so reinstated sertraline.

April 2016 CT - WD started.

April - August 2016 very low dose zopiclone - made WD worse so stopped end August 2017

Since Sept 2016 WD: drowsiness and fatigue; headaches (ended Christmas 2016); numb face (ended Christmas 2016); vivid dreams; anxiety and tearfulness; dizziness; nausea; loud tinnitus; irrational feelings of fear and dread; tingling up and down the backs of my legs; some insomnia but that's getting better. 


#487 Bobo32

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Posted 14 March 2017 - 10:04 AM

In my days pre drugs I used to be passionate about life excited about things and loved to do stuff. Post drugs and many years of withdrawal I'm not passionate about anything. I struggle with things that used to be normal for me especially socializing or interacting with others I need to think everything over nothing comes spontaneously. Anyone experience that even many years post withdrawal?

2004-2007 paxil

2015- zoloft 3 months zyprexa 3 months lexapro 3 months xanax

Med free since Feb 28th 2017

Mostly experiencing PSSD - soft glans and difficulty maintaining erection

 


#488 Madison1

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Posted 16 March 2017 - 10:22 AM

I had never heard of this windows and waves thing but it certainly makes sense. I have been dealing with this for about three years now and I'd feel better and think, finally this is over...then a few months later feel crappy again. I didn't understand it. I thought that it was related to weather even! I tracked the dang weather for months and kept a diary. There was no rhyme or reason though. Then I found this site and reread my diary and notes. It was the waves I was feeling crappy and windows of happiness, feeling good and clarity! Right now I'm in a wave and have been for a couple of months now with days of windows in between. 


2009 - Took Paxil, first antidepressant every. Horrible shocking feelings and depression

2010 - Switched to Cymbalta 30 mg

2013 - upped to 60mg at the horrible advice of a doctor who then said quit cold turkey

2013 - Started prozac 20mg

 

*I have always been low in Vitamin B and around this time learned of Vitamin D deficiency

 

2014 - Horrible withdrawal symptoms....shocking feelings, pressure in head/tension headache almost

Had multiple tests and scans (MRI MRA CT - all normal)

Between end of 2014 to present off an on I still have symptoms. Mostly head pressure, pins and needles, sometimes shocking feelings. 


#489 ShakeyJerr

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Posted 13 April 2017 - 09:21 AM

I had never heard of this windows and waves thing but it certainly makes sense. I have been dealing with this for about three years now and I'd feel better and think, finally this is over...then a few months later feel crappy again. I didn't understand it. I thought that it was related to weather even! I tracked the dang weather for months and kept a diary. There was no rhyme or reason though. Then I found this site and reread my diary and notes. It was the waves I was feeling crappy and windows of happiness, feeling good and clarity! Right now I'm in a wave and have been for a couple of months now with days of windows in between. 

 

How are you doing now a month later, Madison?


Link to my intro/main thread: http://survivinganti...jerr-say-hello/

 

Med History
Dates are tentative (my memory is shot)...

Prozac & Lithium from 1999 to 2003 (I don't remember the dosages). Went off but developed symptoms so put back on after 4 months.

Switched to Effexor (75mg 3/day) and Seroquel (50mg 3/day) some time in 2010 (I think). Did a self-taper during 2016 after losing insurance. Been off since around the beginning of 2017.

Developed Discontinuation Syndrome beginning with uncontrolled/unexplained crying in 02/17.

Moved on to full-blow symptoms from there. Been really bad since late 03/17.


#490 Lexy

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Posted 17 April 2017 - 07:42 AM

How do you know if you are in a wave or wd symptoms from a decrease of a micro taper?
Also after a wave can one go back to the state one was prior to wave? I had been slowly getting better before this deep depression hit me again.
Started Effexor August 2012 Sept'12-150mg=extreme anxiety Oct'12 cut half-75mg severe wds
Feb 2013 68.5mg. Mar'13- 65mg. Apr'13-59mg. May'13-57mg. June '13-52mg Aug'13 49.75mg.
Sep'13-48.75. Nov'13-47mg Dec'13-45..5mg
May 2014 42mg. Jun'14 40mg (depressive mood started). Aug'14 -40mg/ started brintellix 2.5mg
Oct '14 -39 Nov'14 36.89 Dec'14 34.45
Jan 2015- 31 Feb'15 29mg. Mar'15 26.72. Apr'15 24.48. May'15 22.31mg. Jun'15 20.30mg
Aug'15-18.89. Oct'15 16.96. Nov/16- 16.10. Dec/15- 15mg
Jan 2016-14.22. May'16 11.45. Aug'16-9.60. Sep/16- 8.88mg. Oct/16- 8.39mg. Nov/16- 8.13. Dec/16- 7.89

#491 ShakeyJerr

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Posted 22 April 2017 - 04:56 AM

What do people do when a HUGE anxiety wave hits? Mine was so bad this mroning that I almost woke my wife to take me to the ER. But what would they do for me there but give me some meds? What help would that be? Sure, I might get an in-the-moment relief from them, but wouldn't I just have put myself back on the merry-go-round?

 

SJ


Link to my intro/main thread: http://survivinganti...jerr-say-hello/

 

Med History
Dates are tentative (my memory is shot)...

Prozac & Lithium from 1999 to 2003 (I don't remember the dosages). Went off but developed symptoms so put back on after 4 months.

Switched to Effexor (75mg 3/day) and Seroquel (50mg 3/day) some time in 2010 (I think). Did a self-taper during 2016 after losing insurance. Been off since around the beginning of 2017.

Developed Discontinuation Syndrome beginning with uncontrolled/unexplained crying in 02/17.

Moved on to full-blow symptoms from there. Been really bad since late 03/17.


#492 Chochka

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Posted 23 April 2017 - 05:59 AM

I don't know but I'm going through the same thing. I've had 8 months of mainly physical symptoms and now a new one has appeared out of the blue, just when I thought things were getting easier. The last couple of days I've had breathing problems - like my automatic breathing has been switched off and I have to concentrate on breathing. I'm constantly short of breath and couldn't sleep at all last night. It's continued today and now I'm having waves of panic and fear as well. I have to go back to work as a secondary school teacher tomorrow, which I've been dreading even before this started. I thought I was slowly healing and then suddenly, BANG! It's worse than it's ever been before. I don't know how long this is going to last but I've only just been able to cope with work anyway and this is going to send me over the edge


Originally went on prozac 2008 for CFS - 20mg

Finished end 2012 - extreme anxiety and insomnia for a year, reinstated Jan 2014 - 40mg.

Jan 2015 tapered to 20mg - 5 months WD

Sept 2015 - took 3 tablets for vertigo - triggered 5 months WD

Switched to sertraline Dec 2015 - didn't work so went CT Jan 2016. 6 weeks of breathing and sleep problems so reinstated sertraline.

April 2016 CT - WD started.

April - August 2016 very low dose zopiclone - made WD worse so stopped end August 2017

Since Sept 2016 WD: drowsiness and fatigue; headaches (ended Christmas 2016); numb face (ended Christmas 2016); vivid dreams; anxiety and tearfulness; dizziness; nausea; loud tinnitus; irrational feelings of fear and dread; tingling up and down the backs of my legs; some insomnia but that's getting better. 


#493 ShakeyJerr

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Posted 24 April 2017 - 05:28 AM

Hang in there, Chochka - we are going to make it.

 

I had to go to work today also. I am praying we both make it through the day. We will make it through the day!

 

SJ


Link to my intro/main thread: http://survivinganti...jerr-say-hello/

 

Med History
Dates are tentative (my memory is shot)...

Prozac & Lithium from 1999 to 2003 (I don't remember the dosages). Went off but developed symptoms so put back on after 4 months.

Switched to Effexor (75mg 3/day) and Seroquel (50mg 3/day) some time in 2010 (I think). Did a self-taper during 2016 after losing insurance. Been off since around the beginning of 2017.

Developed Discontinuation Syndrome beginning with uncontrolled/unexplained crying in 02/17.

Moved on to full-blow symptoms from there. Been really bad since late 03/17.


#494 ShakeyJerr

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Posted 24 April 2017 - 08:32 AM

Anybody have rapid symptom shift?
 
My anxiety is waning, and I am slipping immediately into depression!
 
Why can't I catch a break?
 
SJ

Link to my intro/main thread: http://survivinganti...jerr-say-hello/

 

Med History
Dates are tentative (my memory is shot)...

Prozac & Lithium from 1999 to 2003 (I don't remember the dosages). Went off but developed symptoms so put back on after 4 months.

Switched to Effexor (75mg 3/day) and Seroquel (50mg 3/day) some time in 2010 (I think). Did a self-taper during 2016 after losing insurance. Been off since around the beginning of 2017.

Developed Discontinuation Syndrome beginning with uncontrolled/unexplained crying in 02/17.

Moved on to full-blow symptoms from there. Been really bad since late 03/17.


#495 Chochka

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Posted 24 April 2017 - 09:26 AM

Hi again, SJ, and sorry to hear that you are having such an awful time. I get rapid switches of symptoms too - the intense anxiety and fear which has been building up over the last week suddenly broke last night and today I am actually symptom free. I find that is a pattern of mine - every few months I have a slow build up of anxious symptoms and my sleep slowly gets worse and worse. After about 5-6 days I am completely wired and don't sleep for a couple of nights and then have a day or so where I get waves of intense fear and panic washing over me. It just gets to the point where I think it can't get any worse and consider A and E and then it breaks and I am symptom free for a day or so and then get a period of a couple of weeks where the symptoms are very on and off. Then I go back to feeling really bad again for weeks at a time I've been off for 8 months now and this is the third time it has happened. My symptoms are usually very physical and consist mainly of drowsiness, fatigue, headaches and foggy brain so the anxious/fear/wired feelings are the opposite of what I usually feel. I have also had uncontrollable crying too and had to take a day off work in October because of this. That's the only time I've had off work - they don't know what I'm going through so I can't take time off for it. Fortunately the times when I've had the uncontrollable fear and panic have been in my holidays. (I'm a teacher and in the UK we get a break every 6 or 7 weeks.) 

 

I've been off for 8 months now and have only had 2 periods of lessened symptoms/feeling symptom free. I see that you have only been off about 4 months - it was about 4 months before I had any relief at all. When I was tapering it would take 5 months for my body to level out after any kind of reduction and now that i am off completely it's been 8 months and usually I have felt terrible. 

 

You are right - hang on in there. We will get through the day at work, and the next one, and the next one. We will feel better again at some point even though it might be what seems like a long time in the future. I've spent 4 years trying to come off so I am determined not to go back on at this point. I also resist A and E because I know that they will just dose me up again and I will be back to square one. This is one of the most difficult things I have done in my whole life and when I look back on what I've been through and how I have just struggled on and gone to work every day I feel so proud of myself. I don't have any advice on how to get through the really difficult times except to put one foot in front of the other until the journey is over. People say just take it one day at a time and the only way through hell is through it but when you're in the middle of it it's difficult to see the end. 

 

By the way, how was your day at work? 

 

Chochka


Originally went on prozac 2008 for CFS - 20mg

Finished end 2012 - extreme anxiety and insomnia for a year, reinstated Jan 2014 - 40mg.

Jan 2015 tapered to 20mg - 5 months WD

Sept 2015 - took 3 tablets for vertigo - triggered 5 months WD

Switched to sertraline Dec 2015 - didn't work so went CT Jan 2016. 6 weeks of breathing and sleep problems so reinstated sertraline.

April 2016 CT - WD started.

April - August 2016 very low dose zopiclone - made WD worse so stopped end August 2017

Since Sept 2016 WD: drowsiness and fatigue; headaches (ended Christmas 2016); numb face (ended Christmas 2016); vivid dreams; anxiety and tearfulness; dizziness; nausea; loud tinnitus; irrational feelings of fear and dread; tingling up and down the backs of my legs; some insomnia but that's getting better. 


#496 ShakeyJerr

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Posted 24 April 2017 - 09:37 AM

You're symptom free today, Chochka? Praise God! It's very encouraging to hear when people are having a good day!

 

The depression may have been situational - I'm just feeling down about my circumstances. It seems to have eased off a little, and the anxiety is coming back on. I just took a hydroxyzine - my as needed prescribed "calmer" when symptoms get too bad. It sometimes makes me very zonked, so I try not to take it, especially at work. Fortunately, I'm a proofreader and writer, so if I slow down a little it's okay; it's not like I have a physical job. Hopefully the rest of the day will go okay and I'll make it home safely. (My commute can be long with traffic - an anxiety/stress trigger for sure).

 

SJ


Link to my intro/main thread: http://survivinganti...jerr-say-hello/

 

Med History
Dates are tentative (my memory is shot)...

Prozac & Lithium from 1999 to 2003 (I don't remember the dosages). Went off but developed symptoms so put back on after 4 months.

Switched to Effexor (75mg 3/day) and Seroquel (50mg 3/day) some time in 2010 (I think). Did a self-taper during 2016 after losing insurance. Been off since around the beginning of 2017.

Developed Discontinuation Syndrome beginning with uncontrolled/unexplained crying in 02/17.

Moved on to full-blow symptoms from there. Been really bad since late 03/17.


#497 Chochka

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Posted 24 April 2017 - 09:58 AM

Yes, sometimes there are periods of feeling symptom free. And when there are you feel amazing! Keep on going.

 

I've private messaged you.

 

Chochka


Originally went on prozac 2008 for CFS - 20mg

Finished end 2012 - extreme anxiety and insomnia for a year, reinstated Jan 2014 - 40mg.

Jan 2015 tapered to 20mg - 5 months WD

Sept 2015 - took 3 tablets for vertigo - triggered 5 months WD

Switched to sertraline Dec 2015 - didn't work so went CT Jan 2016. 6 weeks of breathing and sleep problems so reinstated sertraline.

April 2016 CT - WD started.

April - August 2016 very low dose zopiclone - made WD worse so stopped end August 2017

Since Sept 2016 WD: drowsiness and fatigue; headaches (ended Christmas 2016); numb face (ended Christmas 2016); vivid dreams; anxiety and tearfulness; dizziness; nausea; loud tinnitus; irrational feelings of fear and dread; tingling up and down the backs of my legs; some insomnia but that's getting better. 


#498 Nena59

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Posted 28 April 2017 - 03:20 PM

ShakkeyJerr and Chochka,

 

It's nice to read about others coming off prozac.

 

I am finding after 7 months off, pretty much cold turkey, that the symptoms have mellowed. I don't have highs and lows, they are more generally just there and very irritating. I have anxiety and anhedonia and brain zaps. I find that I have symptoms until about 4 or 5:00 and then they lesson some. I only get about 6 hours of sleep at night. I find that I can easily be brought into feeling anxious and depressed if I encounter stress.

 

Does any of this right true for you?

 

Also, I heard from one prozac taker that she felt just fine at 13 months...after having a really hard time at 12 months. 

 

Nena


20 years of fluoxetine and bupropion. Most recent daily doses: 20 mg and 400 mg, respectively. Quit previously in the late '90s and in 2010 but reinstated after ~6 months. Ceased fluoxetine (Cold turkey...doctors advice). September 2016. Ceased bupropion October 2016 after a four week taper.
 
Extreme fatigue for latter half of October resolving into moderate fatigue and depression with occasional brain zaps and tingling skin. Easier late in the day. Symptoms deepened in February 2017 - more days without any relief.

#499 ShakeyJerr

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Posted 28 April 2017 - 03:37 PM

Prozac was in my first go around of meds. Effexor was the poison of choice the past several years. But I do see some similarities in our patterns, Nena. My symptons ramp up in the morning, irritate me all day, and then I begin to get relief around 5pm. And I am getting around 6 hours of sleep a night. Makes me think that I must have a big cortisol spike in the mornings (usually rousing me around 4:30am), and that it takes all day to flush it out of my system.

SJ

Link to my intro/main thread: http://survivinganti...jerr-say-hello/

 

Med History
Dates are tentative (my memory is shot)...

Prozac & Lithium from 1999 to 2003 (I don't remember the dosages). Went off but developed symptoms so put back on after 4 months.

Switched to Effexor (75mg 3/day) and Seroquel (50mg 3/day) some time in 2010 (I think). Did a self-taper during 2016 after losing insurance. Been off since around the beginning of 2017.

Developed Discontinuation Syndrome beginning with uncontrolled/unexplained crying in 02/17.

Moved on to full-blow symptoms from there. Been really bad since late 03/17.


#500 Chochka

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Posted 29 April 2017 - 01:54 AM

I'm finding now that after 8 months my symptoms have faded and mainly rather than being hardly able to function, most of the time I'm feeling more like I'm hungover. Listless, demotivated and sleepy rather than drowsy and fatigued. This has been the last month or so with occassional periods of going back to feeling really bad again. So more window than wave, rather than the other way round. I remember this from tapering - after feeling terrible I just felt hungover for a few weeks and then it would clear. So I'm hoping I'm in the last phase, although I am expecting bad patches again. I'm not sleeping more than 5-6 hours a night and still have nights where I don't sleep at all but I also have days, like yesterday, where i can doze off very easily. 

 

I'm hoping that this is the final phase of over 4 years of WD.


Originally went on prozac 2008 for CFS - 20mg

Finished end 2012 - extreme anxiety and insomnia for a year, reinstated Jan 2014 - 40mg.

Jan 2015 tapered to 20mg - 5 months WD

Sept 2015 - took 3 tablets for vertigo - triggered 5 months WD

Switched to sertraline Dec 2015 - didn't work so went CT Jan 2016. 6 weeks of breathing and sleep problems so reinstated sertraline.

April 2016 CT - WD started.

April - August 2016 very low dose zopiclone - made WD worse so stopped end August 2017

Since Sept 2016 WD: drowsiness and fatigue; headaches (ended Christmas 2016); numb face (ended Christmas 2016); vivid dreams; anxiety and tearfulness; dizziness; nausea; loud tinnitus; irrational feelings of fear and dread; tingling up and down the backs of my legs; some insomnia but that's getting better. 


#501 Nena59

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Posted 29 April 2017 - 10:26 AM

Thanks guys,

I wish there was a way to get the cortisol out of my system! I hate this.

I also get tingling in my legs and I'm pretty shaky in the morning. I used to love to sleep...sometimes nine hours a night.


20 years of fluoxetine and bupropion. Most recent daily doses: 20 mg and 400 mg, respectively. Quit previously in the late '90s and in 2010 but reinstated after ~6 months. Ceased fluoxetine (Cold turkey...doctors advice). September 2016. Ceased bupropion October 2016 after a four week taper.
 
Extreme fatigue for latter half of October resolving into moderate fatigue and depression with occasional brain zaps and tingling skin. Easier late in the day. Symptoms deepened in February 2017 - more days without any relief.

#502 Bluebird2009

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Posted 30 April 2017 - 02:01 AM

Thanks guys,
I wish there was a way to get the cortisol out of my system! I hate this.
I also get tingling in my legs and I'm pretty shaky in the morning. I used to love to sleep...sometimes nine hours a night.

Hi Nena59, I'm glad to talk to someone how has came off long term Prozac. I am 10mtha off now and have awful anxiety and tingling, I wake at 5am every morning with crippling anxiety. I would like to start my med again to get rid of this but my system has became so sensitised that I can't tolerate even a tiny dose. Please keep me up to date on how you cope and any methods for the anxiety. I'm having acupuncture which is keeping me health but not helping anxiety. I had reflexology on Fri and was really ill with flu type aches and pain yesterday but that has gone today. Take care. xx
Prozac for 18years with break in 1999 for pregnancy. Started to feel unwell with numerous problems 2015 and think I was in a tolerance to drug. Started to come off May 2016 and by June 2016 wasn't able to tolerate any medications at all. Was on Lansoprazole as and when need from 2001 but haven't had to take and wldnt have been able to take since June 2016

GP gave sertraline 25mg 6/04/17 loss of appetite, gut pain and then following morning whole body shaking and vomiting. Stopped tablet.

#503 peng

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Posted 30 April 2017 - 02:33 AM

Anyone withdrawing slowly from Effexor had one of those big windows where you suspect:

i - you are being a bit manic

ii - getting involved with lots of projects and doing stuff and relishing it

ii - maybe talking too much?

 

Since my last reduction (-9.1%) a few days ago to 125mg Effexor, I have felt that way.  We may move house, so adrenaline is flowing and it is not depressing me, but stimulating me to do a lot of decluttering (after 40 years in this house).

Maybe this is a flavour of what I should be like?

I suspect not.

I do remember feeling this way about 10 years ago when I dropped to nil Effexor after reducing the dose steeply and not the way SA advises, but with the oft reported "feeling fine during withdrawal" experience.

I was hit by crunching WD and soon ended back up at 150mg, then more.

 

I now know to stall reduction if feeling bad, but what if you feel more up?


1977 - Collapse of health at 32 after 12 years of irregular,stressful shift work. 1977-84 – Ativan. 1984 - 2002 Anafranil.

2002 - 13 – Effexor XL 150-187.5mg.

2014 Nov.  Raise to 225mg due external crisis. Chronic fatigue, low mood. Felt I had reached brick wall with medication. Blood test GP Prescribed 5mg Folic Acid/day.

2016 Jun- Feeling better. Supplement research. 13Jul  -  212.5mg (-5.5%). 6Aug  - 200.0mg (-5.9%). 24Aug - 187.5mg (-6.3%). 13Sep – 175.0mg (-6.7%). Feeling best for a couple of years. 3Oct  - 162.5mg (-7.1%). 26Oct - 150mg (-7.7%). off Folic Acid.  Nov - off Omeprazole after decades.

2017 9Jan - 150mg. 23Mar - 137.5mg. 24Apr - 125.0mg (-9.1%).  

 

Current supps/Vits

540mg EPA /day. 425mg Magnesium Malate. Vit D. Probiotic.  Benecol (w.plant statins). Honey instead of table sugar in tea and coffee, wef Oct16.

 


#504 ShakeyJerr

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Posted 30 April 2017 - 02:36 AM

 

 

I find myself waking around 5am also, Bluebird. I used to love mornings. I was always a relatively early riser. I loved being awake before my wife and kids and just relaxing with some reading. Now mornings are a trial for me. 1 of the things I do is try to float through my anxiety instead of fight it. It's the Claire Weekes approach. 

Read more here: http://survivinganti...nervous-system/

 

And breath!

 

SJ


Link to my intro/main thread: http://survivinganti...jerr-say-hello/

 

Med History
Dates are tentative (my memory is shot)...

Prozac & Lithium from 1999 to 2003 (I don't remember the dosages). Went off but developed symptoms so put back on after 4 months.

Switched to Effexor (75mg 3/day) and Seroquel (50mg 3/day) some time in 2010 (I think). Did a self-taper during 2016 after losing insurance. Been off since around the beginning of 2017.

Developed Discontinuation Syndrome beginning with uncontrolled/unexplained crying in 02/17.

Moved on to full-blow symptoms from there. Been really bad since late 03/17.