mammaP

Akathisia nightmare

18 posts in this topic

A young man tortured with Akathisia side effects from meds

 

"ARIZONA CITY — Josh Jensen walks 5 miles a day. Up and down the hall. Across the living room. To the kitchen and back.

He can’t stop.

“He paces until 4 o’clock in the morning, until he’s exhausted,” said Aimee Jensen, his wife.

He catches six to seven hours of restless sleep. Then he gets up and starts again.

Aimee, 28, sat across from me on their living room couch. Two or three of their five kids were at her side. The rest were in their bedrooms. They range in age from 1 to 7.

Josh, 27, did not sit on the couch. He paced. It was not a shuffle. It was not a stroll. It was a power walk. Like he was trying to get somewhere in a hurry. In this case, the other side of the living room.

Josh could speak as he walked. In that regard, he was fine. Articulate.

He found others like him online. They said they felt imprisoned by their own skin. They wanted to escape. They couldn’t, but kept trying. They kept walking.

I turned to Mylee, the 7-year-old. I asked her what she thought about her father. Always walking, never stopping.

“It’s sad,” she said.

 

Read the full story here.. http://m.trivalleycentral.com/mobile/opinion/columns/family-says-depression-med-triggered-a-walk-without-end/article_dd8c0ed6-111d-11e5-b453-a364258056fe.html

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Any way of sending this family a link to our website, maybe highlighting some of our members who have suffered through akasthisia and recovered? (I am thinking of Fresh and her videos).

 

They have a fundraising page, possible contact? (I did not read it yet.)

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Good idea CW , there's a contact email for the author/editor at the bottom.

 

It would probably help them to know others have recovered.  

There are a few videos when you search "akathisia" on youtube (including "How Much can a Koala Bear"), not sure if that would be

helpful or not.    

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I will be sending ...have sent ..this link to a family member who would mock me and say sit down and stop walking around like a caged lion...and i would also be shaking and experiencing tremors wow this is exactly how it is. Yep right down to complaining and then being told to double the dose. Its a living nightmare alright!

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This is the young man's video.. 

 

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Yes if they came to this site they would be BELIEVED 100%

 

One thing we might accomplish by a campaign of some kind is that lack of research on akathisia. The fact that many of us are past it and others didn't have it would be powerful, I think. No one could call us hypochondriacs. Yeah, they would: Tardive Hypochondrosis. But still.

 

https://clinicaltrials.gov/ct2/results?term=&recr=&rslt=&type=&cond=akathisia&intr=&titles=&outc=&spons=&lead=&id=&state1=&cntry1=&state2=&cntry2=&state3=&cntry3=&locn=&gndr=&safe=Y&rcv_s=&rcv_e=&lup_s=&lup_e=

 

That's all I found--4 studies, only one a treatment, and they didn't post results.

 

1 Completed Prophylaxis Against Metoclopramide-Induced Akathisia Condition: Akathisia Intervention: Drug: midazolam

 

2 Completed Efficacy and Akathisia Incidence of Slow Infusion Metoclopramide Conditions: Akathisia;   Nausea Intervention: Drug: metoclopramide 10 mg 3

 

3 Completed

in 2008

NO RESULTS

Treatment of Neuroleptic Induced Acute Akathisia With Trazodone

 

4 Condition: Schizophrenia Interventions: Drug: Placebo;    4 Recruiting The Effect of Paliperidone Palmitate in Schizophrenia Condition: Schizophrenia Intervention: Drug: paliperidone palmitate

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"Akathisia

 

Akathisia is a disorder, induced by SSRI medications, which can cause a person to experience such intense inner restlessness that the sufferer is driven to violence and/or suicide. It has been said, "Death can be a welcome result." For reasons related to the strong political and lobbying power of pharmaceutical companies, akathisia is rarely explained as a possible side effect of SSRIs, and medical professionals and the general public know very little of the existence of this disorder.

 

In fact, the drug lobby would like you to believe that akathisia is simply "restless leg syndrome." As a result, sufferers of akathisia, as well as the medical professionals with whom they consult, are not able to recognize the symptoms of akathisia and therefore take the steps necessary to stop it. This lack of knowledge has tragically resulted in akathisia sufferers taking their own lives, and leaving behind devastated loved ones.

 

MISSD is not anti-drug. We know that prescription drugs have been life-saving for so many individuals who struggle with mental health issues. We are for truth in disclosure, honesty in reporting and legitimate drug trialsAkathisiand medical professionals and the general public know very little of the existence of this disorder.

 

 

 

Akathisia: What to look for

 

Are you experiencing an increase in any of the following symptoms: anxiety, agitation, panic attacks, insomnia, irritability, hostility, aggressiveness, impulsivity, or physical/inner restlessness, which have in turn caused suicidal thoughts or feelings?

 

Perhaps a friend or loved-one, shortly after starting a new medication, has engaged in strange, unusual or violent behavior, or without warning has even taken his/her own life.

 

You or your loved-one may be suffering from akathisia.

 

If medication-induced suicide or akathisia has affected your life – or you would simply like to learn more – we would love to hear from you. To send us your stories, articles, questions or comments, please drop us a line:

 

share@missd.co

 

 

Stewart Dolin 1952-2010

 

Stewart Dolin had the perfect life. He was married to his high school sweetheart for 36 years. He was the father of two grown children with whom he had a very close and meaningful relationship. He was a senior partner of a large international law firm, managing hundreds of corporate lawyers. He enjoyed his work and derived satisfaction from cultivating relationships with his clients, as well as helping them achieve the results they desired. He enjoyed travel, skiing, dining, joking around with his family and friends and an occasional cigar. He was 57 years old, and high on life.

 

In the summer of 2010, Stewart developed some anxiety regarding work. He was prescribed Paxil (paroxetine), a selective serotonin reuptake inhibitor ("SSRI"). Stewart's prescription was filled with a generic version of Paxil, manufactured by Mylan. Within days, Stewart's anxiety became worse. He felt restless, had trouble sleeping, even asked his wife to listen to a meditation tape with him (hardly typical behavior). He kept saying, "I still feel so anxious."

 

On July 15, 2010, (six days after beginning the medication), following a regular lunch with a business associate, Stewart left his office and walked to a nearby train platform. A registered nurse who was also on the platform later reported seeing Stewart pacing back and forth and looking very agitated. As a train approached, Stewart took his own life. This happy, funny, loving, wealthy, dedicated husband and father who loved life left no note and no logical reason why he would suddenly want to end it all. Neither Paxil nor the generic version listed suicidal behavior as a potential side effect for men of Stewart's age.

 

We did not know it then, but Stewart was suffering from akathisia.

 

MISSD (The Medication-Induced Suicide Prevention and Education Foundation in Memory of Stewart Dolin) is a unique non-profit organization dedicated to honoring the memory of Stewart and other victims of akathisia by raising awareness and educating the public about the dangers of akathisia. MISSD aims to ensure that people suffering from akathisia's symptoms are accurately diagnosed so that needless deaths are prevented. A website, the creation of educational materials and support of conferences such as Selling Sickness, will help to raise awareness and knowledge of akathisia and medication-induced suicides. Again, we feel it's important to note that we are not anti-drug, and recognize that prescription drugs can be positive and life-saving for many individuals. We are for truth in disclosure, honesty in reporting and legitimate drug trials.

 

If this could happen to Stewart, then it could happen to anyone. MISSD will make a difference."

 

 

The above has been transcribed from the MISSD website here http://missd.co/

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I am in touch with Josh and his lovely wife.

 

Such a lovely family and I am devestated for them.

 

I will ask them to visit the forum.

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We have members who have suffered through this and come out the other side and some members that are still going through it. I myself had it in early protracted wd.  I would hope the idea gets transmitted to Josh that medicine had no clue and that medication only makes it worse. He'll need lots of support staying away from the medicos if he is going to get better (in my opinion).

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Fresh thanks for that great find .

 

in summary its a 3  pronged defn...'an uncontrollable restlessness, an uncontrollable pschological panic, a trigger and overwhelming push to commit suicide'

 

I have never heard the medical profession use this word.

 

CW totally  agree the only way to get through this is to keep away from doctors and take nothing. I kept away from them for 2 years...then i launched many complaints ..now they are arguing well why did you wait 2 yrs to complain why if you had trouble didnt you see the doctor....oh boy!!

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Fresh thanks for that great find .

 

in summary its a 3  pronged defn...'an uncontrollable restlessness, an uncontrollable pschological panic, a trigger and overwhelming push to commit suicide'

 

I have never heard the medical profession use this word.

 

CW totally  agree the only way to get through this is to keep away from doctors and take nothing. I kept away from them for 2 years...then i launched many complaints ..now they are arguing well why did you wait 2 yrs to complain why if you had trouble didnt you see the doctor....oh boy!!

You don't hear doctors use the word much.. but there are lots of words they don't use.. kickback... malpractice...akathisia 

There is one lady in this list who sued.. 

WE know the word well here.. a search of SA bring up 10 such posts all about akathisia 

 

https://www.google.ca/search?q=survivingantidepressants.org+Akathisia&oq=survivingantidepressants.org+Akathisia&aqs=chrome..69i57j69i60l3.11695j0j4&sourceid=chrome&es_sm=0&ie=UTF-8

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great article by Yolanda...

http://psychrights.org/articles/newdrugsnewproblems.htm

 

in what seems to be an attempt to relieve the "living hell” that the worst and most dangerous side effect, akathisia, creates. Akathisia may present as a diffuse psychomotor restlessness, which affects the patient’s entire body, an increased tenseness, insomnia and a feeling of being very uncomfortable, frequently verbalised, as "I don’t feel like myself, weird, strange, not me." Patients feel they are going mad, in turmoil, and numb as if nothing matters. Embarrassed, they do not confess their impulses. Eliciting them needs careful questioning. These experiences can go on for hours or years, or can be acted on very quickly, in a matter of minutes. Acute akathisia is a psychiatric emergency. [as if any doctor would know or care]. Recurrent episodes of hallucinatory delirium along violent or sexual themes with colourful visual, voice and tactile hallucinations may be misdiagnosed as a schizophrenic illness. Sexual craving has been reported.

 

Akathisia has a strong association with violence, self-harm, suicide and homicide.  It is an inner restlessness or jitteriness, accompanied by a subjective as well as objective compulsion to move, abscond, pace or run, or drive long distances in a somewhat dissociated state. [wow this is exactly what i did ] Akathisia can lead to suicide because it is intolerable. Preoccupation with unwelcome, obsessively violent thoughts is pathognomonic.

 

First recognised in users of reserpine for high blood pressure, it became prominent in the forensic literature of the 1970s and 1980s as an effect of haloperidol and, later, of flupenthixon. The above syndromes often appear in combination with each other. They may recede within days of stopping the medication or persist, requiring hospitalisation and additional treatment over subsequent weeks or months. They occur in individuals with no prior history of violence, suicidality, psychomotor agitation or manic-like symptoms. Some patients cannot easily stop taking these medicines without going into a state of withdrawal. They are, technically, addicted.

 

I reckon this thread should be a stick somewhere.

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Just out. Abstract only

One author is with the VA. I guess they have a lot of this with all the ADs they use.

 

Ann Pharmacother. 2015 Jul 16. pii: 1060028015594812.
Extrapyramidal Reactions Associated With Serotonergic Antidepressants: A Follow-up Literature Review.
  • 1Providence VA Medical Center, Providence, RI, USA.
  • 2University of Connecticut, Storrs, CT, USA c.caley@uconn.edu
Abstract
OBJECTIVE:

Extrapyramidal reactions (EPRs) associated with serotonergic antidepressant treatments have been reported since 1958. These reactions can be distressing for patients and complicate treatment. Our objective was to complete a follow-up review of published EPR cases reported for serotonergic antidepressants.

DATA SOURCES:

Published cases between January 1998 and May 2015 were collected through a medical literature search. Citation reference lists were also searched manually.

STUDY SELECTION AND DATA EXTRACTION:

Identified cases were reviewed for patient age, gender, psychiatric diagnosis, dosage, time to reaction onset, concurrent medications, and EPR description. Cases were excluded when there was not a clear description, if descriptions were not consistent with accepted definitions, or if the written English was poor. We included cases of akathisia, dystonia, dyskinesia, parkinsonism, or mixed EPRs. Authors scored each case using the Naranjo adverse drug reaction probability scale.

DATA SYNTHESIS:

We identified 86 published reports involving 91 patients; selective serotonin reuptake inhibitors were implicated in 80.2% of cases. All EPR types were reported: 17 akathisia cases, 18 dyskinesia cases, 27 dystonia cases, 19 parkinsonism cases, and 10 mixed EPR cases. EPRs typically occurred within 30 days of either treatment initiation or dose increase. Age, gender, antidepressant dosing, or concurrent antipsychotic treatment did not appear to broadly contribute to EPR risk. Naranjo scores ranged from 2 to 8.

CONCLUSIONS:

Case reports associating serotonergic antidepressants with EPRs continue to be published. Practitioners are advised that monitoring for such is important. Rigorous research efforts are needed to better understand the clinical risk factors for these adverse drug reactions.

© The Author(s) 2015.

KEYWORDS:

akathisia; antidepressive agents; dyskinesia; dystonia; humans; parkinsonism; serotonin reuptake inhibitors

 

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I think the doctors and psychiatrists know akathisia, they see people living it in the hospital after their medications, in France a neurologist explained that hospital sent him regular people who could no more move, or others who do not stop to move, you must not take them for more idiots they are, but there is denial to save their job, money, the system...and they make as they know nothing and prescribe you benzo, betablockers etc

i had akathisia long time, at 6 years and 4 months of any medicine, the level of akathisia is very low, but still here with nasty residuals, for example to be unable to rest in street, sitting, be quiet against a wall, so for me akathisia do not go totally away, a stress and hop, it is back, hopefully not so severe than first years,

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I'm experiencing this as well.

 

First, it was just a constant feeling of doom, fear. During and after the AD usage.

 

After 4 months, I started to have the need to walk alot. That helped.

 

At 6 months, horrible mental torment. Meds offer little relief. Pacing offers little relief.

Luckily, I am sleeping well now.

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My god that is scary as hell.

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Just now saw this thread.

You all are so sweet to be concerned.

Unfortunately its been over 3 years and Josh is still suffering.

He has a new video he made in October for anyone that is interested

Thank you all for your support

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So heartbreaking. I had variants of akathisia for a long time, and they are now thankfully long gone, and never recurred. I hope Josh recovers ASAP. 

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