I wish you the best and I hope you know people do get better, it doesn't happen over night but people do get better when they do the right things.
I very much agree that healing happens, and that we need to fully participate by finding and doing the right things. A number of years ago, I recovered from a brain injury by going back to school shortly after my MVA. It was very difficult, as I had a lot of the same issues as WD, combined with PTSD. When I finally got in to see a neurologist, he told me I'd done the best thing I could do, by challenging my brain.
I haven't felt through wd that sitting and waiting was even a remote option for me. I've had some days where I was too ill to do a lot, but I've always tried to do something. Even very small achievements are something to build on...I started off riding my indoor bike 10 minutes a day, 3 or 4 days a week. I'm up to riding 2 or 2 1/2 hours outside now..and that happened over about 8 months. I'm doing my best to build a life while I'm healing, not waiting to do it when healing is complete.
Again, thanks for your inspiration and for staying around to carry on the conversation. I know sometimes when you leave something behind, you have zero desire to revisit it...I hope in some way, that this part helps you on your journey too.
It is my privilege and honor to stick around. I didn't think I would stick around more than a week because I didn't realize how beneficial I could be for people and people here could be for me, a lot more the latter as well. The people here are amazing and I love hearing everyone's stories.
I remember when I needed someone to tell me it was going to be ok and even then I thought I would be the doomed case. At times, I couldn't see a future for myself that didn't include extreme pain and misery-which obviously would make one question living at all.
So yes, this has helped me on my journey. I have found I love helping people and that caring is never a sign of weakness, only strength.
I am not immune to needing love and support, despite how self reliant I have seemingly become. I rarely accept any support from family who do know about what happened to me, I tell them that I appreciate what they did, but it is my time to help them. It is amazing how much comfort we can find in complete strangers even when compared to close family members. There is something to be said about anyone who has gone through something this horrific. We see the world differently, through a lens of true appreciation.
I could easily see how some people could become soured by this experience, but why? Why let this take away any more of your life? I don't see me helping as WD taking away my valuable time now, I see it as increasing my worth to people who need the support. In a way, I feel incredibly lucky to be here, allowed to help others through the worst time of their life, to sit here and let them know it will be ok because I went through it, I suffered, I cried, I crawled, and I am here on the other side so god damn happy I am alive.
So you are welcome but I want you and just about everyone I have come into contact with how very lucky and happy I am to have your feedback and your input. Ideally, I would like to find a better solution to this than just waiting and time. If we can't cure WD I want to at least shorten it by crowdsourcing ideas and methodologies. I like challenging conventional notions in a responsible way.
I think we can learn a lot from each other and I hope more people who have beaten WD come back and know it is ok to proclaim victory, you don't have to look over your shoulder for the next wave.