☼ Junglechicken

[Junglechicken]

Hi JC

 

Can't help with your previous post re throat, mouth and gums as haven't had problems with anything like that yet.

 

The way you are feeling the past  couple of days  is just how I  feel most days with varying degrees of severity and not all at once. I know it is all WD related but I think anxiety levels play a big part in this too. 

 

I have things going on that are causing me stress and I know you are going through an awful time. I think anything you can find to relax you will help - meditation may help or whatever else works for you.

 

Are you able to take a walk. Sometimes it is so hard but it always works for me. 

 

Love and hugs

 

Flowers xxx

HI Flowers,

 

It's horrible isn't it? I guess it's a feeling of fragility. I'm sorry you're stressed out too.....can you elaborate? If it's private, then don't worry.

 

I think the cause is anxiety = sleep issues = lowered immunity = illness / infection

 

It's not such a mystery I guess, but it creeps up on us. An upset CNS.

 

I'm waiting for a herbal tincture to arrive which has plant extracts that are calming to the nervous system. Also, some flower essences. Am also taking some supplements which help calm the nervous system.

 

Flowers, the meditation works, but my concentration isn't quite there yet.

 

Yes, walking is really good...but have a dodgy lower back at the moment, so I'm trying not to overdo it.

 

Love and hugs,

JC xxx

[Flowers]

Lets hope the herb tincture and flower essences give you some relief.  I love epsom salt baths but we only have showers in the house!  I want to try yoga too but the classes here don't start until 830 at night (due to the heat) and it's too late for me.

 

My stresses at the moment are nowhere near what you are going through but in my present state they are hard to deal with and I worry endlessly and probably needlessly!

 

We have a business here  which is mainly physical work and we have always been fairly strong and fit. My husband had an accident a couple of months ago that resulted in a severe shoulder injury. He probably needs surgery and is unable to move his arm/shoulder as he should be able to. He is seeing a consultant next week to discuss this. If he has surgery he will be out of action for 6 weeks and then only light exercise/physio for a further 6 weeks. I am unable to work much at the moment due to WD. We are trying to find folk to help us out but with no dates to work on it is impossible!  So I sit and worry and wake up worrying!! Summer is our busiest season so we have to sort something out.

 

We are managing with help  at the moment so it is not too bad it is just what is going to happen over the next few months that scares me!

 

My husband doesn't worry about anything which is just as well really because it would be a nightmare if we were both like me!!

 

It will all turn out OK in the end I am sure.  I am just trying to take each day as it comes but anxiety has other ideas!!

 

Flowers xxx

[Junglechicken]

Flowers,

 

Thanks for explaining what's been going on with you guys.

 

Stress is stress, and its your livelihood.....that's important.  Definitely a good thing your hubby's laid back......lol!

 

I have no doubt it will all work out in the end, and probably the fact your hubby is laid back is also a stressor, lol?!

 

Anyway, yes...day by day and all that.

 

HUGS,

JC xxx

[Junglechicken]

Having not ventured out of the house in 2 days (to rest my back), we walked 10k today, and my body felt weak with a spaced/dizzy sensation in my head.

 

Is this my CNS again?

[Junglechicken]

Just found this website on Neurological Dissasociative symptoms.

 

This is what I think I'm experiencing at the moment:

 

http://www.neurosymptoms.org/#/causes/4533053418

 

Hopefully it'll answer other people's mystery symptoms as well.

[Flowers]

JC - you did well to walk 10k, somedays I can't walk 10 feet!

 

Seriously though and this is advice from one who found out the hard way - I know you are pretty fit but please be aware not to overtire yourself if you are having CNS symptoms. You may find it might make you worse but only you know your limitations. I have had to revise mine while in WD.

 

With best intentions and good wishes

 

Flowers xxx

[Junglechicken]

Flowers, thanks and no harm done whatsoever.

 

Its a fine balance as I have to try to get rid of excess cortisol/adrenaline by exercising; but I don't think I'm getting quality sleep these days which is causing my CNS to suffer.....as a result I feel weak, shaky, anxious and spaced/dizzy.

 

Going to talk to my Naturopath to see if she knows what's up....

 

I haven't had any nausea today, like I did yesterday....but other "stuff" is up. 

 

Hubby keeps telling me I've got my symptoms under the microscope again.

 

For all I know it could be to do with my lower back and the healing process. 

 

Flowers, I don't consider myself to be "fit" any more....I used to be.

 

HUGS,

JC xxx

[Flowers]

Yes it is about getting the right balance of exercise and rest. I have overdone it many times in WD and it just made my symptoms worse.

 

What you are getting at the moment sounds like the usual WD symptoms probably made worse by all the stress you are under and lack of sleep.

 

Maybe your Naturopath can offer up some suggestions to help you. Keep away from that microscope!!

 

Hugs right back

 

Flowers xxx

[Junglechicken]

Yes, I think the stress and poor quality sleep are causing DR/DP.

 

I'm in a state of shock at the moment (coping with my father's life ending). 

 

Fact of the matter is, I'm not coping at all.....just trying not to fall apart.

 

JC xxx

[Flowers]

Aww bless you JC. 

 

I think you are doing the best you can under the circumstances. I do understand, I went through similar with my mum and dad  many years ago now but I was young and healthy then and not in WD.

 

Having to endure all that in WD must be so hard.

 

Hugs.

 

Flowers xxx

[doggiemama]

My heart goes out to you . I went though this while in strong withdrawal . I lost my hubby on 22 October he had prostrate cancer and I was his care giver and had to work as well . Thank goodness I work for myself so it did help.This is so bad

[Junglechicken]

Still feeling spaced, slightly dizzy..........

 

Very aware of any sensations in my body, had some leg pain earlier in small areas.

 

My mum is due to call any minute now to give us an update re: Dad's hospital assessment  

 

-----------------------------------------------------------

 

Hi DM,

 

This is a horrendous situation for everyone to go through.....my poor mother I know isn't coping, but doing the best she can. 

 

Her mental anaesthetic is alcohol.

 

<<<SIGH>>>

 

Hugs,

JC xx

[AliG]

So sorry J C. Family situations can be the worst !  Try not to get too involved. You have to take care of yourself.

[Junglechicken]

Thanks Ali,

 

I'm kind of in a daze, as though none of this is really happening.

 

My father had never been ill in his life and had one hospital visit aged 72.

 

I've tried to reduce my stress levels, but seeing my father looking so ill just sends me into a stress ball.

 

I just hope he isn't in pain.

[Junglechicken]

Have gone down with a cold, I started sneezing during my therapy session this morning  

 

Have hit the Echinacea to alleviate symptoms, but the cold goes hand in hand with the canker sore in my mouth.

 

General immune system under stress issues.

[apace41]

Hi, JC.  Sorry you are sick at the moment.  Your body is under a lot of stress and it is manifesting in many different ways.

 

I read the post you wrote above with interest:

 

 

Just found this website on Neurological Dissasociative symptoms.

 

This is what I think I'm experiencing at the moment:

 

http://www.neurosymp...uses/4533053418

 

Hopefully it'll answer other people's mystery symptoms as well.

 

I've spent some time on the website and looking at the videos.

 

This is a thread started by our member Funky Baboon (RIP -- those who knew him will recall he passed in a biking incident) on the same topic.  Alto contacted the Doctor -- Jon Stone -- regarding the notion of inclusion of iatrogenic illness from drugs as an inducer of this syndrome.

 

http://survivingantidepressants.org/index.php?/topic/10827-neurologists-diagnosis-of-functional-neurological-disorder-and-referral-to-httpneurosymptomsorg/

 

In short, I found your post and the information behind it quite informative and, frankly, fascinating.  I had no idea there were so many people that were dealing with neurological symptoms of "unknown origin" but which can most likely be traced to psychological issues.  In effect, this represents a significant acknowledgment of the "mind/body" connection that has been lost in Western medicine.

 

Here's a recent paper from Emory University that addresses some of this.

 

file:///C:/Users/apace/Downloads/fneur-08-00106%20(1).pdf

 

Very, very interesting.

 

Thanks for posting.

 

Best,

 

Andy

[Junglechicken]

Hi Andy,

 

I'm glad you found the Disassociative neurological symptoms website useful.  I haven't finished reading everything on the website, but I'm sure people will recognise many of the symptoms we have all experienced at one time or another.

 

The more time I spend around doctors, the more I think they don't know that much, lol!  Its the Naturopaths and alternative medicine people that have a greater understanding of the human body as a whole as its holistic practice.

 

Thanks for your link to the pdf too, I'll check it out.

 

Yes, the cold sucks, but I baked a delicious blueberry and almond gluten free cake today......so all good with the world, lol   

 

Best,

JC

[apace41]

Yes.  Very (all too) familiar.  It all falls into a general category of "autonomic dysfunction", i.e., the nervous system has been hijacked such that the fight or flight response can't be shut off and is triggering a series of reactions in the body over which we have very little control.  Self-soothing techniques like meditation and mindfulness may help some cope but until the system heals it is hard really do much beyond that.  Stress amps up the system and causes additional issues (notably, this may be a place we differ from true DNS patients in that they frequently report randomness rather than stress response events).

 

In my reading I add to this the effects of trauma -- of being put on and trying to come off the drugs and have resonated a great deal with what Bessel Van der Kolk witnessed in traumatic events with abuse victims and war vets (and reported on in The Body Keeps the Score).  They, too, have had neurologic impairment that is very relatable when you read about it.

 

It all fits together but, unfortunately, it seems that the one overriding thing that provides relief is.... TIME.  And too much of it.

 

Best,

 

Andy

[Junglechicken]

So, from what you're saying (if I have understood correctly) much like our emotional responses to events have been exaggerated (i.e neuro emotions) , so our central nervous system responds in an exaggerated fashion as well.

 

I can relate 100% to having little or no control over our CNS responding dramatically to any stimuli.......be it environmental change, routine change, interactions with family etc.,

 

Its no wonder we feel ill much of the time as the CNS's response to stimuli are multiple symptoms.  Last year many of my body's "systems" were completely thrown out of whack due to stress.  I had NO tolerance to stress whatsoever, and became very ill quickly.  My CNS had just been broken down to the point, the tiniest thing upset it.

 

Best,

JC

[Junglechicken]

Found this website on the Autonomic nervous system:

 

http://www.holistichelp.net/dysautonomia-autonomic-nervous-system-dysfunction.html

[Junglechicken]

Saw my GP this morning.

 

I don't need to have a mammogram, my GP found no lumps despite the fact I've had left boob pain and a burning pain under my left arm.  The fact that my aunt is in remission from breast cancer doesn't pose a risk to me.

 

Am booked to have a Follicle-Stimulating Hormone (FSH) blood test. 

 

An FSH level test uses human serum taken from a blood sample to measure the body’s level of FSH. In women, the most common reasons for an FSH level test include: assessing infertility problems. assessing irregular menstrual cycles. diagnosing disorders of the pituitary gland or diseases involving the ovaries.

[Junglechicken]

Good meeting with Naturopath yesterday......very focused on diet (nutrient-rich "clean" food), building up strength again, and meditation/CBT.  Starting to see some physical improvements i.e fungal nail disappearing through consumption of coconut oil and topical application of coconut oil

 

Other tests, e.g. SIBO; on hold for now as I'm not presenting with any symptoms.  No point in having Liver panel testing done as none of the things that the test covers are applicable.

 

GP was impressed that I had gone on my own to my appointment rather than being babysat by hubby - hubby had an interview so couldn't!  I should be good going forward now, this is a big improvement. 

 

Plod on I must ......

[apace41]

Great to hear some good news, JC!

 

Best,

 

Andy

[Junglechicken]

2 minutes ago, apace41 said:

Great to hear some good news, JC!

 

Best,

 

Andy

Thanks Andy, appreciate it

 

If we don't at least celebrate the little successes, then this healing "journey" will just be one long monotonous nothingness.

 

What is good, is that I am seeing small signs that my immune system is getting stronger.  I got hit by a cold which didn't last for much more than a day......it wasn't allergy as I can tell the difference.

 

I'm bombarding my gut with tons of probiotics and prebiotics; not to mention Omega 3.6.9, Methyl Multinutrient, Very high grade Fish oil, Herbal tincture for the CNS, NT Complex (for CNS), Zinc Ascorbate.

 

Then there is all the nutrient rich food I'm eating, lol!

 

Am DETERMINED to get running again, but am resuming floor exercises tomorrow as my lower back is much improved.

 

Plod, plod, plod.

 

Best,

JC

 

 

[Flowers]

Good to read such a positive post from you JC.

 

Hopefully things will only get better.

 

Flowers xxx

[Junglechicken]

1 minute ago, Flowers said:

Good to read such a positive post from you JC.

 

Hopefully things will only get better.

 

Flowers xxx

Thank you Flowers, I really hope things will too.

 

I think the depression/anxiety are finally starting to lose their grip on me.....the reason for this is that I'm moving closer to "that place" of forgiveness, and as it alluded me for so long, then I was effectively stuck in a sort of purgatory and the grip of depression.

 

My GP is very supportive in regards the health anxiety, and won't send me for unnecessary tests.  I am sure a large part of that is NHS tight budgets!

 

Anyway, I have to keep working on my thought patterns and learn to relax my body, the "clean" eating is helping a lot too.  Am getting a sense of "wellness" on the inside, as opposed to feeling unwell.

 

JC xxx

[Junglechicken]

VERY HIGH pollen count in the southeast and southwest UK.

 

My symptoms were really bad on our walk this afternoon.

 

http://www.metoffice.gov.uk/public/weather/pollen-forecast/#?tab=map&map=Pollen&fcTime=1497006000&zoom=5&lon=-4.00&lat=54.50

[Junglechicken]

I've GOT to get a job.

 

Job market isn't working in hubby's favour, so I've got to step up to the plate.

 

Feeling a bit better these days, so have to do something.

 

watch this space.

[Flowers]

Sorry the job situation isn't improving for your husband. Hope you find something suitable soon.

 

Glad you are feeling better.

 

Flowers xx

[Junglechicken]

1 minute ago, Flowers said:

Sorry the job situation isn't improving for your husband. Hope you find something suitable soon.

 

Glad you are feeling better.

 

Flowers xx

Thank you flowers xxxx

[Junglechicken]

Have been on my own for 5 days now and doing fine (hubby away for long weekend).

 

Much, much calmer and able to sleep well.  I attribute these improvements to a high nutrition diet and all my supplements (12 in total), 3 of which are for the nervous system.  

 

Also, weeks and weeks of therapy, naturopathic consultations and doctor visits for general health screening.

 

i have been rather manically baking, lol - baked 2 gluten-free cakes (now in the freezer).  Also, hit the rowing machine this morning...managed 6k only as too hot (30 degrees C) to do any more....started to over heat.

 

Anyway, things ARE looking up and I'm trying to be more positive.  

 

It's a huge step that I am starting to feel content when alone again.

[Junglechicken]

Think the time to start tapering is drawing closer.

[Flowers]

Yay JC!  Wonderful news. I totally understand the hating being alone bit. When I am really bad I hate my husband going anywhere without me - it just fills me with fear. When I feel OK/well I don't mind being on my own at all. 

 

You have done well and filled your time with nice things like baking. Wish I lived nearer so I could sample your delicious cakes!

 

Love Flowers xxx

[Junglechicken]

Thanks dear Flowers!

 

Have decided that I'm going to try and only give updates of the positive.

 

Need to improve my cooking skills though, lol!  The cakes are a bit on the dry side despite their fillings.

 

I also made a couple of compotes from fresh fruit (cherry and raspberry).  Love those with probiotic coconut yoghurt :0)

 

My main issues are peri-menopausal :0(

 

Love JC xxx

[Junglechicken]

We're experiencing a heatwave in southern Britain 

 

Have got all the curtains cold and windows shut to try and keep the heat out, and of course with high temperatures is high pollen count so I'm trying to keep the pollen out too.

 

We'll be a "full house" with my brother arriving this afternoon.  He has an eye problem so we're headed straight to the opticians, lol.

 

Hey ho, never a dull moment.

 

Hubby returns from his long weekend with the boys (this evening).

[Junglechicken]

13 hours ago, Flowers said:

Yay JC!  Wonderful news. I totally understand the hating being alone bit. When I am really bad I hate my husband going anywhere without me - it just fills me with fear. When I feel OK/well I don't mind being on my own at all. 

 

You have done well and filled your time with nice things like baking. Wish I lived nearer so I could sample your delicious cakes!

 

Love Flowers xxx

Flowers,

 

Going back to what you were saying about hating being alone.....I had that for over 2 years. 

 

Became terrified of being alone, developed phobias too etc.,

 

Anyway, happy to say that all that "rubbish" is starting to wear off now, the damaged layers of me (like an onion skin) are falling away.

 

Its hard work getting well.

 

Love JC xxx