grandmaD: turtle here

[grandmaD]

I took Voltarin (anti-inflammatory) for 3 days (says not to take it any longer) along with osteo-panadol for pain. The following week I tried a different anti-inflammatory, Naproxen for 3 days (it also says no longer than 3 days).  Then I went on the Panadol with ibuprofen.

These didn’t seem to help much so I took Mercyndol and went to bed and the next day Panadol+codeine and that helped have a decent day that day.  Thinking it may not be inflammation but tense muscles contracting the nerve.

 

Given that the Mercyndol helped, and because I had the most high, intensive tingling/vibration thing all through my body, including my head (like it might explode) I have taken serapax the last 2 nights and that seems to help.  I am beginning to think it is a nerve related issue perhaps due to the high anxiety levels, adrenalin surges I get, etc causing tension in my muscles.  I also tried Dencorub which caused painful burning, so then Tiger balm but didn’t help and now trying Arnica cream, but honestly, I think all these things just give you something to do until nature does the healing in the long run.    Any help or advice would be most appreciated!!!!

[grandmaD]

Leading up to all this has been a huge increase in the severity of the pain I get that runs down my right leg along the inside of my foot and into my toes all day every day.  This also feels like nerve pain.  Just lately it has started up all lday every day in left leg/foot toes.  In the last 2 weeks I have had a similar pain occur in my right arm down the inside up into my thumb, and if I extend my arm, hand and thumb results in an excruciating pain similar to a muscle spasms.  All these things suddenly coming and so severe, was just too much.  I am only coping now, I believe because of the serapax calming me down somewhat!   Help!

[grandmaD]

I have been racking my brain as to why these sudden muscle spasms, aching, weak muscles, nerve pain and so on have ramped up.  I could put it down to the stress with my son, as the first spasm happened just before we went to visit him and the next one while we were there.  I know extra anxiety can affect w/d.  I had done a drop just that week, so I went back up to the previous drop where I still am.

 

The other thing I noticed, and have noticed in the past is the container I use for the weeks tablets has my vit C in it and it was dark orange, indicating it was moist/wet.  I wondered if the paxil had moisture in it and was now ineffective.  To counter that, I weighed out new tablets and discarded the others.

 

After another few days when things had not improved I began to wonder if it could be the fact I am using old tablets, ones I have cut and shaved (leftovers) and keep in envelopes and perhaps they are also ineffective, being too old.  To counter that, yesterday I weighed out brand new ones from a new script.  From now on I will store them in a bottle with a screw lid.  If this is the case, then I should see some improvement within the next few days.

 

Otherwise, I am at a total loss as to what is wrong and why and what to do about it.  I am so fed up, I don’t have a life, I can’t go anywhere without problems and paying for it afterwards, I get fed up talking to people, really, this is just too much.  All these wasted years, blah blah, I best stop or I will go and on about it!  People wonder why some people "disappear" from the site, and this would be one reason why.  You try and try for so, so long and you just seem to get worse and worse and you want to give up.  In fact, I am now seriously considering switching, but will wait at least a week before doing anything so see if my theories above help any.

 

PS I have stopped all supplements in case it was them causing it (fish oil, chamomile, peppermint tea)

[scallywag]

grandmaD -- I'm sorry that your symptoms are continuing to be so painful and distressing. I sure wish I had a magic wand to make all this go away for everyone.

[LexAnger]

Oh, dear GrandmaD, I so wish I could tell you encouraging news to cheer you up a bit, but I'm in a similar dreadful situation, feeling too much to bear and too long to continue, wanting to end it all.

 

But we have no other options, and things can still change even it doesn't feel so. Also, I need you to hang on so I have someone to look up to.

 

Big long bear hugs,

Lex

[Cherry47]

Hello GrandmaD - you poor soul, this is all so difficult to deal with at times isn't it? Here are a couple of things I have tried that may help.

 

ELMORE OIL - this is pure gold. After a hot shower, I rub it on all muscle aches and pains, all around the hip joints, in fact on any part of my body that hurts, every night without fail. I couldn't live without it. Available at the chemist (bit cheaper at Priceline).

 

CHIROPRACTOR - very gentle stretching of the spine seems to make more room for all those screaming nerves (not a very scientific description, I know!). There was a good programme on SBS a couple of weeks ago about a Dr treating people with nerve pain with gentle stretching exercises.

 

ACUPUNCTURE - good for pain and anxiety, very calming.

 

I was lucky enough to find a chiro close by who also did acupuncture. He also researched our condition so knew what not to do. These all have to be done on a regular basis for a while but I felt that at least I was doing something proactive which gave me some control however small.

[O2bhappy]

GrandmaD -

 

I have been thinking about you a lot.  I am so sorry to hear that you are in so much pain.  It breaks my heart.  I will continue to pray for you.

 

Turtle on GrandmaD...you got this!!!!

[grandmaD]

Thank you so much to my beautiful friends for your support, thoughts, prayers, help and advice it all means so much. 

 

It is 2 weeks today since the first back spasm. I have settled down somewhat but still not good, with backache that returns when I stop painkillers and still feels like it could spasm at times, which is what is the frightening part.  I am not bending over, for that reason, so not doing housework or anything that requires bending and hubby is helping with housework for which I am so grateful.

 

There is no doubt now in my mind about serapax having a calming effect.  If only there was something like this that we can take regularly to ease the symptoms of anxiety, but I suspect that it is benzos that will help in this regard and they are all addictive also.

 

The 3 nights I took it, I was so much better and without pain, however 3 nights now and then is my limit and since stopping it, the anxiety has ramped up again; the head vibrations were bad to start with but now I just have head pressure and high buzzing.  The leg pain is coming and going from mild to excruciating, so I don’t think the peppermint oil is helping, I really don’t know.  I have now developed knee pain, so that when I put weight on either knee (the right one is worse) it is painful.  The hip that was weak and felt like it might break, still feels like that from time to time.  I really don’t know what to think.  I still have the arm/hand thumb pain, but not as bad. The leg and foot pain is very bad still.  The other thing that ramped up sky high was the ear ringing and I always know things are not good when that happens.  It has gone back to moderate and goes high when in bed.

[grandmaD]

I have been to the doctor who reckons it is arthritis.  It that’s the case, I’m not looking forward to a future that I was hoping for, when I could get off this drug and enjoy life and go on trips, etc.  The doctor did mention a nerve tablet, but said he was reluctant and I wouldn’t take it anyway, as they are all most likely addictive as well.  He also keeps suggesting a switch to Prozac.

 

I had to stop typing yesterday after sitting less than 30mins when it felt like another spasm coming on.  This is going on so long.  I had thought that they were improving over the years, as there were times I had a spasm grab me in great pain, and then it just went away and I was fine!  I couldn’t believe it at the time, never happened before or since, that’s why I’ve never forgotten it!

 

It is now day 4 since switching to fresh/new tablets and I would expect if this is what might have been my problem and what is causing the spasms, I should see some improvement in the next few days.

[grandmaD]

Another bad day with pain, especially standing up and walking, so it was back to the couch.  I can tell where the main pain is now and I still don't know if it causes the spasms or it is a pinched nerve or it is the osteo or it is w/d.   Each time I stop the pain and anti-inflammatory tablets I get the pain back, so I am taking them so I can keep moving as much as as I can. 

[O2bhappy]

grandmaD -

 

I am so sorry that you are dealing with so much pain.  You continue to be in my thoughts and prayers everyday.

 

Hang in there!!!

[doggiemama]

Oh how I feel for you I've had back pain for 2 years now but only on the right side if I lay down and try to relax I feel the spasms they not sore but the pains there and yes as soon as I have more stress my back is far worse

[grandmaD]

It has been a horrendous past 5 weeks, with everything going downhill and my deteriorating and affecting mental state, etc.  I have had what I call muscle spasms throughout w/d but I still don’t know if this is a pulled muscle, a pinched nerve or w/d, or osteo as doc says, but the pain is excruciating when it grabs me.   In the past I have rested for 3 days and then slowly begin to recover, sometimes taking up to a week, but never 5 weeks and not have them continue to return every few days like this.  I could not sit for more than 5 mins so have not been able to journal here.   

 

This time, however, it has just not improved.  Painkillers and anti-inflammatorys helped a lot sometimes and other times they did nothing!  This is confusing!  Each time I went off them the pain and tremendous aching returned, in my lower back and both hips.  Also my knees got worse, and my right arm, hand and thumb were painful.  I went about 3 days and had another “spasm” which laid me up again and again several days later, another one, putting me backwards again and laid up.  I couldn’t sit for 5 mins as that also caused the painful “spasm” to return again.  During this past week  I have been gradually trying to increase my sitting time again by 5 mins each day

 

Along with all that has been increased leg pain which is unbearable, so I went back on the painkillers for that and one day it helped and another day nothing!  What is going on?  I am now using only ibuprofen instead of osteo-panadol.

 

I noticed the anxiety had ramped up sky high with the first spasm, and that was due other stress factors and I was so desperate I resorted to my migraine tablets again (with a relaxant in them)  Now I wonder if my body is “demanding” them more frequently??? 

 

 

It is so hard to know what to do from hereon.  If anyone can offer any advice, please do!  I keep thinking that if I just stay on painkillers (which I don’t like doing) and ride it out and soon the spasm/muscle aches will go, but I am now beginning to be afraid they never will!

 

I have become so desperate I am once again considering switching.  My doctor suggested going to Prozac because of its longer half life but wanted at that time for me to go on 10mg and there’s no way I want to do that.  I am also worried that a switch won’t work.  Because I have insomnia, and I read that Prozac is a stimulant, I wonder if switching to Endep (Amyltriptaline, sorry can’t spell it) would be better. 

 

Can someone inform me if Endep has a longer half life and if it would help with insomnia and with the severe leg pain and with anxiety and relax muscles?  My other concern is that my nerves are damaged, as it feels like electrical vibrations throughout my body are worse and at times go into my head and all this is unbearable.  I guess my main concern now is that I might be like this indefinitely and that I should switch.

 

It is so hard to make a decision, because for so long now I just keep thinking I must turn a corner soon, or that surely things will improve.  There has never been a time I felt even okay, except on full dose 20mg and I am not doing that, having done that 10 times in the past.

[grandmaD]

Doggie, thanks for your post.  So you have the 'spasms" ?  Are they excruciating?  Where do you get them?  What do you do for the back pain and aching?

[O2bhappy]

grandmaD -

 

I am so sorry that you are dealing with such pain.  I wish I had some suggestions to help you through this difficult time.  I just wanted to let you know that you continue to be in my prayers. 

 

Like you tell me....turtle on!!!!

[grandmaD]

Thanks O2B, I am so sorry you are also struggling along and grateful you take the time to make posts.  I have been reading your posts as I have a new phone now, very fancy pancy one I can read emails on when I am lying down which I am doing a lot of again.

 

I made a posts in the symptoms column to see if anyone experiences similar things.  I just don't undestand why it is taking so long, 5 weeks now and left with a deep, constant aching in lower spine.  Both hips are not as bad but I think the painkillers help with that.  Not game go off them yet as each time I do, the pain comes back.

 

I had another 2 spams yesterday, first one was mild but the second one moderate so I went and lie down.  This time it was the left ribcage.  Today it felt like I almost got one in the right ribcage!  I just wish I knew what was gong on.  I have felt like this before, like fragile, and like I can actually break, but it has passed in a day or two, not gone on for weeks on end.

[grandmaD]

Okay, there was probably smoke coming out of grandma’s chimney when I left the doctors just now with a script for Cymbalta and Serapax!

 

I thought this doctor understood it all when he told me a while back about a switch to Prozac being the best because of its longer half life.  I did a search on Prozac switches, bridges, etc. but the only thing I didn’t like was that it is stimulating and research said Endep is calming, but it doesn’t have much of a half life.

 

Anyway, after seeing him now for several years, he tells me the anxiety is likely causing all my other problems and that if I have anxiety, why would I want to go off the Paxil/Aropax???

 

I nearly fell off my chair!  I remained cool, calm and collected to my surprise as I told him it was the withdrawal giving me the anxiety and didn’t he think that?  He agreed it was, and said that is why I should go stay on Paxil/Aropax because it will help with the anxiety.  He couldn’t seem to grasp why I should want to go off it and suffer like this.

 

I am pretty sure I told him in the past that I was put on it for pain, never had anxiety or depression before in my life until I went off Aropax/Paxil! 

 

I told him I have got desperate enough to go on Prozac with all these muscle spasms for 5 weeks now and I mentioned Endep being calmative and he was quite happy to give me Endep!  That made me wonder if he really did know anything, because when I looked up Endep, its half life is 10-15 hours.  Then, Instead of suggesting the Prozac, he said “let’s try Cymbalta” and take them both (Paxil and Cymbalta) at the same time.  Also to take 1 Serapax/Oxazepam every night for a week. 

 

That left me very confused because I was all geared up to discuss a Prozac bridge with him and he throws this at me.  I haven’t heard of Cymbalta.  He says it has similar half life to Prozac and works in two ways, one is serotonin and the other I can’t remember, having not heard of it.  I think he said to try this combination for a month and see how I go.

 

So there you have it. HELP anyone and everyone!

[AliG]

GM. It seems your Doctor is just throwing drugs at you and hoping that something works. That is all they know.

 

Anyway, after seeing him now for several years, he tells me the anxiety is likely causing all my other problems and that if I have anxiety, why would I want to go off the Paxil/Aropax???

 

They convince you that it is you and not the drugs : that you need them long term. It is really side effects and WD effects from the drugs. You seem to be under the illusion that these drugs can help you when in fact they are harmful and the effects tend to compound yearly.

 

Have you read Anatomy Of An Epidemic ?  Robert Whittaker spells out clearly the long term effects of psych medication in all its forms. There are several You Tube videos also. Just google Robert Whittaker - You Tube. There is a 1/ 2 part on Psych Drugs Do More Harm Than Good. Dr Peter Breggin also : Psych Drugs Harm ( 7 part series )

 

I would not change course if I were you. It can always get worse. How do you know major healing is not just around the corner ?

[O2bhappy]

grandmaD -

 

Thank you for reading my post.  I greatly appreciate people taking the time to read them.  Congrats on the new phone. 

 

I am so sorry that you are in so much pain.  I wish there was something that I could do to take away the pain.  I am sure it is very frustrating.  My heart breaks for you. 

 

You have so much strength to be able to tolerate so much. 

 

Stay strong and turtle on. 

[brassmonkey]

Hi GrandmaD-- I'm so sorry to hear about your ongoing problems.  You asked about working with powdered paxil. I thought it best to answer here so you could fine it more easily in the future.  My first question is, what size capsule are you using?  I found the "00" to be the easiest to use, but it is rather big and clunky.  The "0" worked pretty well too. Anything smaller started to be a problem.  It really is a bit fiddly to get the powder into the caps. I used a similar method to the one you describe except I use a stiff piece of paper (postit note) and only folded it once with a sharp crease.  Having a block of something with a hole in it to hold the bottom of the capsule so you can use two hands on the paper might help.  Then you can line up the paper and gently tap it to cause the powder to side into the cap.  I ended up with two little slots in the paper that hooked onto the lip of the capsule that really helped to steady it in place.  They just wore in by themselves, but you could carefully cut them in to see if they help. Also no fans or open windows to cut down air currents.  Don't worry about the little bit of powder that sticks to the paper, it's not enough to matter with the dose and after two or three times no more will stick anyway.  If you want to you could put some powder on and dump it back into the pile a couple of times to "pretreat" the paper before you do the actual doses.

 

Hope that helps, and really hope you start feeling better soon.

 

((((((((((((((HUGS)))))))))))))))

 

Brass

[grandmaD]

Thanks to everyone for your help and support.  It is now 7 weeks and I am astounded by the amount of time taking to recover.  I still get little mini-type spasms, not as acute or painful of debilitating, but nonetheless have me worried about what is happening.  I am achey all over, not just lower spine, but hips (which had improve heaps over the years), knees and especially painful feet and legs and ankles.  Getting around slowly and carefully, trying not to aggravate by back and have it happen again.

 

In the meantime, researching what it could be and many symptoms are similar for pinched nerve, bulging discs, osteoarthrosis, etc.  I posted in symptoms about muscle spasms with no reply specifically to spasms, so I am thinking it is not w/d.

 

I have got my sitting time back up from 5 mins to 20mins and walking 20mins around the yard, so will keep plodding along until I get my strength and confidence back.

[grandmaD]

I am certainly not taking the Cymbalta as I have no idea how 30mg of that compares to the dose of Aropax I am on. 

 

Ali, I like your suggestion about "not knowing what is around the corner" and it is good to think about that, but I honestly thought I would get through this years ago and began thinking that in 2013 my recovery would be "just around the corner"  but after another couple of years I think I lost all hope.  I guess I am now another 4 years along the track since 2013, so in that respect, I am a lot closer to the end, one would think (and hope!).

 

I think I will just sit here for now, maybe do another 6 month hold, which I don't like doing, and will be the 3rd year in a row, but sometimes you don't have any choice with this w/d process.  I just need to feel stronger physically and get my confidence back.

[doggiemama]

Grandma I have back spasms but only when I lay down but do have constant right side back pain. This makes me very anxious as I'm to scared to go to the Dr incase it's something serous . I did c/t which I think is worse . Stay strong we going to beat this

[grandmaD]

Hi mama, when did you CT?  What were you on?  For a while there the only relief I got was lying down and had no pain or aches, but now my hip is aching when I lie down on one side and if I roll over then that side aches, it is making me very, very tired.

 

How would you describe your spasms?  How frequent and how intense are they?

 

I would encourage you to go to the doctor in case it is treatable!  They will do an x-ray or mri to find out what is wrong.  If they find NOTHING then we will ALL know that w/d CAN CAUSE SPASMS!

[DLB]

Wow, this exact same thing happened to me when I cold turkey or the last time with my successful taper. This last time it hit when I got just under 3mg. And my legs were sooo weak, thighs and calves sore as can be and feet and ankles horrifically sore especially on the bottoms. It has taken 2 1/2 years and I am finally seeing great progress with those issues. They were almost disabling. I also got the same pains when I first took these poisons and every time I reinstated. Search my thread and you will see plenty of it. I checked the web extensively and found this is quite common. It takes a loooong time but it goes away. Also I had unbelievably tight muscles too.

[doggiemama]

I was on citalopram and toolbox sleeping tablets for about 14 years . I was feeling a bit stressed out about life and went for a chat to Dr and left with citalopram. I'm sure if there was talk therapy it would have been better. And later I started sleeping tablets. After moving to a small town the Dr said I should take a rest from the tablets and I stopped in a month . I had brain zaps and a bit dizzy but 3 months later after getting a big shock all hell broke loose . I think I had a nervous breakdown. And things went really bad was in emergency rooms and they told me to go back on the tablets after taking only one I had the most horrific night and I knew then something was really very wrong and started to research a\ds and withdrawal and all the things that others were experienced I did as well. All the Drs said it was depression coming back but I never had anything like what I was experiencing . When I told them it was withdrawal they told me it was not as there is no such thing. While I was on the tabs I never had side effects only a bit of weight gain. Granma it's strange but when I have spasms they not painful only strange but the pain in my back is bad.

[grandmaD]

Wow, this exact same thing happened to me when I cold turkey or the last time with my successful taper. This last time it hit when I got just under 3mg. And my legs were sooo weak, thighs and calves sore as can be and feet and ankles horrifically sore especially on the bottoms. It has taken 2 1/2 years and I am finally seeing great progress with those issues. They were almost disabling. I also got the same pains when I first took these poisons and every time I reinstated. Search my thread and you will see plenty of it. I checked the web extensively and found this is quite common. It takes a loooong time but it goes away. Also I had unbelievably tight muscles too.

DLB, I only just saw your post, so sorry I missed it.  I will try and get to read your journal.  You have described exactly what I have with weak thighs and calves, sore muscles and my feet and ankles have got so bad it is unbearable.  It is encouraging to hear you have got better after 2.5 years and I don't understand why mine are getting worse.  I wonder if it is the dosage, as you said it was around the 3mg and I am at 3.5mg.  yes, the tight muscles also, and all that makes it difficult to get to sleep.  I find it quite disabling also, as now I am having trouble putting weight on my foot because my hip feels wobbly and it aches and feels like it might break.  Now today I have pain and aching in my lower neck and top of my shoulder!  I don't understand why it is so bad, as I have been tapering very, very slowly all these years. 

[Altostrata]

We know that withdrawal can cause muscle tension and spasms.

 

Magnesium capsule, magnesium oil, and Epsom salts (magnesium) baths can help.

 

For severe spasms, you might try acupuncture.

[grandmaD]

Tom, thanks for you help.  Yes, I did get 00.  I have found it to be very fiddly and distressing and not sure if I can cope with it, but will give your ideas a try first.  I enquired about liquid but its not available here.  I was concerned about the bit that fell over the sides, and was left on the paper, but you addressed that question for me.  I think the 1 crease might be better, too.

 

My back and hips are still unstable, like they might break and/or collapse, knees are crook and now getting mini-spasms in ribcage area at the back.  There is some improvement, but it is ever so slow, it has been 8 weeks now since that first bad spasm.  It seems to me like something has “moved” in my spine causing it to become unstable, resulting in spasms, cramps, shooting pains, and aches.

 

i don't know what to think now, as my friend told me to stop blaming everything on withdrawal and had me convinced it is the osteo.  I am so confused I just have to stop worrying about what is causing it and rest and relax as much as possible and hope it passes soon.

[O2bhappy]

grandmaD-

 

I am sorry that you are still struggling.  I also tend to blame everything going on with me as part of withdrawal, but it could be caused by a number of things.  My therapist told me it doesn't matter what causes your symptoms.  What is important is how you react to them.  It is very true that what is important is how you react, but it isn't always easy.  Some how you have to "allow" the symptoms and hopefully it will pass or you will adjust how you deal with it.  Again...easier said then done.

 

Hang in there.

 

Hugs!

[grandmaD]

I am afraid it is getting the better of me, with 6 mini spasms around left ribcage yesterday and another spasm in lower back today.  Another day, severe spasm in foot making it impossible to walk at that moment, another day hip so bad couldn’t put weight on it to walk.

 

Hubby doing most of the housework again for the last 8 weeks makes me feel useless and like it will never end and never change.  All this ended up in a huge black hole of depression for a day which took me by surprise.

 

That is good advice about how we react to it all, because I have been going to bed very, very early, I listened to some CD;s by Doctor Caroline Leaf which is very, very interesting!  She says we can change how we think in 4 days, but I must need lots more practice I think!  I am trying, anyway.  The secret is to "catch" your thoughts and decide whether to reject them, challenge them or change them.  Anyway, if I can find her link, I'll put in in here tomorrow.

[grandmaD]

GLUCOSAMINE AND CHONDROITIN

 

I thought I would copy this here as well as in symptoms in case some of my friends on my journal can help:

 

This doesn't apply to w/d I guess, but I cannot research as my sitting time is still limited from a spasm 8 weeks ago and the increase in internal vibrations from the screen, so I am hoping someone else MAY HAVE DONE SOME RESEARCH on these products for osteo and if so, the best forms (tablets, powder, capsules) or best brands?????

[Happy2Heal]

hi grammaD, I've recently read that there's very real evidence that those two things work, but I can't recall where I read that.

I was also told by my vet that they no longer recommend those for cats with pain, because there was no concrete proof that they work.

 

I will see if I can find the studies.

 

 

OK here's one link:

http://www.arthritis.org/living-with-arthritis/treatments/natural/supplements-herbs/glucosamine-chondroitin-osteoarthritis.php

 

"Chondroitin sulfate and glucosamine are popular supplements used to treat the pain and loss of function associated with osteoarthritis (OA). However, most studies assessing their effectiveness show modest to no improvement compared with placebo in either pain relief or joint damage."

 

 

I am dealing with a lot of joint? muscle? bone? pain on my right side the past few days, and don't know what is causing it. Sometimes it's so bad I wonder if I have a stress fracture (I've been doing a lot of walking and a tiny bit of running)

I also started to worry that I might have bone cancer, but then I thought, nah, if it was that, the pain would get consistently worse, and it doesn't. In fact, the pain comes in waves, so I am thinking perhaps it's WD

 

but it's also on the side of my body that is messed up from old trauma (was hit by a car, fractured bones, tissue damage etc) so while it's probably WD it's also targeted already weak and previously injured parts of my body.

 

It's so strange, this stuff!!

I hope you find relief for your pain and spasms (I have spasms too, mostly in my legs)

I am using a small dose (100mgs) of celebrex every couple of days, when the pain gets really bad.

I am not sure what to try next, as the celebrex only seems to take the edge off the pain.

 

if I find any useful information, I will post it here for you

 

wishing you relief soon, gentle cyber (((Hugs))) to you
 

[grandmaD]

Thanks H2H, will look that up later.  I have had second thoughts about the glucosamine because of so many things seem to be stimulating.  I tried a very low dose of magensium again in water (sips) and it sent everything high again.  I stopped the fish oil and had some sardines instead, but got a similar reaction - even aching in my gall that DON'T HAVE!  Then I decided to try baked beans (a spoonful) for the first time in years, and got the biggest belly ache!  Then when I researched the glucosamine side affects it said neasea, indigestion and heartbearn, so I think that did it for me on that count!

 

I am sorry to hear you have leg pain and spasms also.  It is so frustraating, isn't it!  I have had pains that come and go before, like in one shoulder that would go and then in the other shoulder, so I knew it wasn't the shoulder!    I hope you get some relief soon also.

 

I have been on painkillers and anti-inflammatorys over the last 8 weeks and then went off and back on and off again and just the other day took them again, but they didn't help.  I think you need be on them several days perhaps to get relief.  Hugs!

 

Edited March 30, 2022 by ChessieCat
changed member name

[Happy2Heal]

 

I think you need be on them several days perhaps to get relief.

 

 

yes certain ones work better if you take them for a few days in a row (pain meds)

 

sorry you are still dealing with this!!

 

I hope that things improve for you soon.

I wish I knew of something else that might help

 

 

[grandmaD]

I have a new doctor and she seems to communicate much better.  I asked her if she thought these spasms are osteo and she said it is definitely a nerve thing and has ordered a Scatscan to see what the lumbar bones are doing and will go from there.  She also said to have phsyio after the scan.  I asked her about osteopath and she said she would only trust the physio.

 

Does anyone know the actual difference between the two?

 

I have been back on painkillers for 2 now and they kicked in today so coping better despite having some aching still, but is mild, only my knees seem worse.  I just want to go for 2 days in a row without a spasm or twinge.