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Antipsychotic survivors? Interested in your stories.

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Wowzers   
Wowzers

Haven't seen or heard anything in regards to antipsychotic recovery.

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Meimeiquest   
Meimeiquest

Well, I stopped Zyprexa in 2012 and I consider myself completely recovered. But it was an 8 mo taper, not CT. If you are struggling I would really recommend reinstatement and a proper taper. 3 yrs before that a dr. tried me on 50% reductions and it was impossible.

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Marsha   
Marsha

I had to stop taking the antipsychotic geodon at 40 mgs after 12 years on high doses. Couldn't complete my taper due to tardive dyskenisia manifesting itself. I am about four months off and I am definitely recovering.

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Wowzers   
Wowzers

Thanks you all. I appreciate your personal experiences.........

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Ayaa   
Ayaa

I was taking Haloperidol  in 1992 for about 1.5 month. Risperidone and Chlorprotixen, then Quetiapine, then Saphris in 2013-2014. Both times I successfully stopped antipsychotics. I have seen other people here who also successfully quitted and recovered.

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Shep   
Shep

I'm off all meds after taking cocktails of antipsychotics, antidepressants, benzos, z-drugs, etc. for 30 years. You name it, I took it. 

 

But I'm free now, off all drugs for almost 11 months, and slowly healing. 

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Wowzers   
Wowzers

I'm off all meds after taking cocktails of antipsychotics, antidepressants, benzos, z-drugs, etc. for 30 years. You name it, I took it. 

 

But I'm free now, off all drugs for almost 11 months, and slowly healing. 

Wow......That's terrific and inspiring. Congratulations on your journey to recovery :-)

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Wowzers   
Wowzers

I was taking Haloperidol  in 1992 for about 1.5 month. Risperidone and Chlorprotixen, then Quetiapine, then Saphris in 2013-2014. Both times I successfully stopped antipsychotics. I have seen other people here who also successfully quitted and recovered.

Thanks for the enlightenment and congratulations on your journey as well.

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InvisibleUnless   
InvisibleUnless

i spent years on a variety of antipsychotics, and am in my fifth year of withdrawal post-discontinuation.  i still cannot hold down a job or drive or cook my own meals most days, and still have antipsychotic-induced psychotic symptoms.  but, i am better than every year previous.  my daily/weekly symptoms still number in the many dozens, and functioning is impaired, but i am able to do some things in life i could not before this point in recovery (or most periods of recovery), like sleep more than a few hours a night, listen to some music here and there, type with a keyboard without reversing letters in every phrase, etc.

 

i havent updated my thread in a while, and am not always active on here, but i hope to catch up sometime.  there are a good number of users on here primarily or additionally suffering from antipsychotic withdrawal, but we are the minority.  personally, antipsychotics have been worse for me in withdrawal than antidepressants, anxiolytics, benzos, and hypnotics.  topiramate probably takes the cake just because seizures and stuff are more serious than dyskinesias and dystonias, despite the greater overall problems presented by antipsychotics in my withdrawal.

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cymbaltawithdrawal5600   
cymbaltawithdrawal5600

 

but, i am better than every year previous.

 

For this, IU, you are my hero.

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Marsha   
Marsha

Yes invisibleUnless antipsychotic side effects and subsequent withdrawal is the single most difficult life experience I have ever endured.

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cymbaltawithdrawal5600   
cymbaltawithdrawal5600

You're a hero too if you manage to stay off, Marsha. I love you both and all I know is the horror of AD withdrawal. Yours is a special kind of hell I can only dimly understand.

 

Too many have lost their lives to the irresponsible use of APs by the medicos. AD not working? Here, try this!

 

Yeah, guaranteed to make you so messed up you won't remember why you even started on the drugs to begin with (or be a casualty like btdt and nz11 who WEREN'T TOLD WHAT THEY WERE TAKING).

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whitelily   
whitelily

I'm really inspired to hear of successful withdrawals from antipsychotics.  I've tried a number of times but have always so far relapsed.  

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Wowzers   
Wowzers

i spent years on a variety of antipsychotics, and am in my fifth year of withdrawal post-discontinuation.  i still cannot hold down a job or drive or cook my own meals most days, and still have antipsychotic-induced psychotic symptoms.  but, i am better than every year previous.  my daily/weekly symptoms still number in the many dozens, and functioning is impaired, but i am able to do some things in life i could not before this point in recovery (or most periods of recovery), like sleep more than a few hours a night, listen to some music here and there, type with a keyboard without reversing letters in every phrase, etc.

 

i havent updated my thread in a while, and am not always active on here, but i hope to catch up sometime.  there are a good number of users on here primarily or additionally suffering from antipsychotic withdrawal, but we are the minority.  personally, antipsychotics have been worse for me in withdrawal than antidepressants, anxiolytics, benzos, and hypnotics.  topiramate probably takes the cake just because seizures and stuff are more serious than dyskinesias and dystonias, despite the greater overall problems presented by antipsychotics in my withdrawal.

Thanks for your experience and input.

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Wowzers   
Wowzers

Yes invisibleUnless antipsychotic side effects and subsequent withdrawal is the single most difficult life experience I have ever endured.

Thanks. I was hoping it would be the least horrible but from what i have experienced personally....ARGH!!!!!!!!!!!!!!!

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Wowzers   
Wowzers

I'm really inspired to hear of successful withdrawals from antipsychotics.  I've tried a number of times but have always so far relapsed.  

I must say it's getting better for me after almost 2 months. I have windows and the waves seem to be less lengthy. Don't want to talk to fast though for i am appreciative and sometimes according to some of the stories relapse seem's right around the corner. I am hopeful and optimistic as well as staying positive not anticipating the worst, but taking it slow.........The epsom salt baths seem to calm my nerves and muscles. Didn't think anything could work but that does. Wen't out and bought a bunch of different herbs and vitamins but i have now just stuck with a good diet cutting out caffeine and sugar. Scared to put anything in my body really. Even natural herbs...............

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Shep   
Shep

 

I'm really inspired to hear of successful withdrawals from antipsychotics.  I've tried a number of times but have always so far relapsed.  

I must say it's getting better for me after almost 2 months. I have windows and the waves seem to be less lengthy. Don't want to talk to fast though for i am appreciative and sometimes according to some of the stories relapse seem's right around the corner. I am hopeful and optimistic as well as staying positive not anticipating the worst, but taking it slow.........The epsom salt baths seem to calm my nerves and muscles. Didn't think anything could work but that does. Wen't out and bought a bunch of different herbs and vitamins but i have now just stuck with a good diet cutting out caffeine and sugar. Scared to put anything in my body really. Even natural herbs...............

 

 

If you're already seeing windows, I would also be scared to start taking a lot of herbs and vitamins. Ideally, if you are going the supplement route, it's best to try one at a time at a very small dose to see how you react.

 

I'm glad you're already seeing progress. 

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CaptainJackSparrow   
CaptainJackSparrow

Hi All. 

I wanted to share my experience because I think it might be helpful. I was on antipsychotics for a very long time - years, I don't even remember how long but I would guess between 5 and 8 years. Last year I made the decision to get off them, I was at 400mg Seroquel at the time. I read a little bit online about how to taper them. From what I had read, antipsychotics had much faster half-life than antidepressants. I think the half-life of seroquel was 4-6 hours while my antidepressant was 26 hours. But from what I read, because of the short half life it was recommended antipsychotics could be weaned off less conservatively. I went from 400mg, to 300, to 200, to 100, and finally went from 100 to 0 within a 2month period. I never regretted that choice and I live fine without them. One suggestion is to not judge yourself on your sleeping patterns, that has helped me a lot. 

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RubyTuesday   
RubyTuesday

was tapering off of Seroquel already when TD & dystonia got really bad so jumped off while working for first time in 10 years. stopped working due to dystonia but have been off for 6 months now and really happy to be off. am taking ballet class again. just stopped Lamictal. medication free now for 23 days.

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Wowzers   
Wowzers

 

 

I'm really inspired to hear of successful withdrawals from antipsychotics.  I've tried a number of times but have always so far relapsed.  

I must say it's getting better for me after almost 2 months. I have windows and the waves seem to be less lengthy. Don't want to talk to fast though for i am appreciative and sometimes according to some of the stories relapse seem's right around the corner. I am hopeful and optimistic as well as staying positive not anticipating the worst, but taking it slow.........The epsom salt baths seem to calm my nerves and muscles. Didn't think anything could work but that does. Wen't out and bought a bunch of different herbs and vitamins but i have now just stuck with a good diet cutting out caffeine and sugar. Scared to put anything in my body really. Even natural herbs...............

 

 

If you're already seeing windows, I would also be scared to start taking a lot of herbs and vitamins. Ideally, if you are going the supplement route, it's best to try one at a time at a very small dose to see how you react.

 

I'm glad you're already seeing progress. 

 

Yeah thanks. Lesson learned. Started to have bad experiences with the ingestion of natural herbs so i cut that out too............

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Wowzers   
Wowzers

was tapering off of Seroquel already when TD & dystonia got really bad so jumped off while working for first time in 10 years. stopped working due to dystonia but have been off for 6 months now and really happy to be off. am taking ballet class again. just stopped Lamictal. medication free now for 23 d

Congrats on your journey to recovery........

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lanah   
lanah

Following this thread. I'm still tapering my seroquel. Feeling very sick.

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Marsha   
Marsha

Would it be possible for those of us who have gotten off or are still on or tapering to have this topic devoted to us and our experiences, both the difficulties and the improvements etc. There seems to be no other place for us to share our collective experiences. Just a thought.

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scallywag   
scallywag

Good point, Marsha. Thanks for posting that. If folks want a place to connect around their shared experience with neuroleptics, I've created a topic in the Relationships forum.
 
Being on or tapering from neuroleptic medications ("anti-psychotic" meds)
 

Let's keep this as thread for posts about successful tapers from this class of medications.

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Happy2Heal   
Happy2Heal

I was on stelazine only when forced drugged in a mental hospital in my teens. Interestingly, I dont recall them ever giving me an Rx cor when I was discharged... I always believed it was more of a chemical restraint for us wild and crazy teenagers. :/

 

I would not have recalled any WD symptoms, but I had dystonia from taking it and was given cogentin, I believe. Or artane? this was in the 70s, mind you, a long time ago

 

I was forced to take Haldol for many months while impatient in a state hospital- never took it outside the hospital. Got  akathesia from haldol when they changed my dose and was given some drug for that side effect.

no wait, I did take ONE pill of haldol outside of the hospital and was instantly suicidal, so I knew that the drug was bad for me.

 

I don't recall any WD effects although I do recall being extremely tired and sleeping for long periods, that might have been a WD symptom I don't know

 

 

I was on zyprexa for a "manic episode" and CTed off that (but also CTed off depakote at the same time) I had a crushing depression afterward where  it hurt to breathe, I also had a lot of anxiety and was taking klonopin for that. I imagine a lot of the stuff that happened when I Ct'ed were WD symptoms but I never made the connection and of course, the dr never suggested that I was in WD

 

I was on a very high dose of seroquel for at least a year, maybe two? I had severe WD symptoms from Ct'ing off that but did not know that's what it was at the time. I had to take atenalol because my heart rate was so high. I have permanent heart muscle damage from that, but not enough to impair the function of my heart (not from the atenolol but because my heart rate was so high for so long BEFORE being treated for it) Lucky for me  I have a strong  heart to begin with, so the damage is not a concern for me now.

 

I was being switched around on all sorts of different drugs at the time, risperdal, trilafon etc and so, there ware side effects and WD all happening at once

amazingly, I was raising my daughter as a single mom thru all of this and did an OK job at that!

 

I have not been on any antipsychotics for over 10yrs and I believe i recovered from even the worst of the WD in a year or less, even thought it was CT and multiple drugs

 

I was not however, drug free- I have been on an SSRI (zoloft, first, then celexa and then lexapro) since er, sometime in the 1990's

I am not yet drug free, I am tapering off of that lexapro after being on it for about 13 yrs

 

almost there, though!! almost there!!!!!!

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Bobo32   
Bobo32

Well, I stopped Zyprexa in 2012 and I consider myself completely recovered. But it was an 8 mo taper, not CT. If you are struggling I would really recommend reinstatement and a proper taper. 3 yrs before that a dr. tried me on 50% reductions and it was impossible.

How long you have been on zyprexa ? I've been on it 3 months last year and I don't feel like my usual self. Brain fog, memory loss, concentrating and thinking issues as well as depression and not feeling good emotions. Has anyone recover from this?

Thanks

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scallywag   
scallywag

I have added a tag, "antipsychotic recovery", to this topic and to Success Story threads where the original poster mentions having taken an antipsychotic medication.  If you click on the tag that appears below the title, you'll get a list of success stories on this site with that tag.

 

 

Edited to add:
Clicking on the tag brings up all topics with that tag, including Introductions and "Tips for Tapering" topics.
I ran a search for topics with tag="antipsychotic recovery" and location=Success Stories forum. Here are the

 

Partial list of "antipsychotic" medications for your site and web searches:

 

First generation medications (typical or neuroleptic)

chlorpromazine (Thorazine)

trifluoperazine (Stelazine)

perphenazine (Trilafon)

fluphenazine (Prolixin, Permitil)

mesoridazine (Serentil)

prochlorperazine (Compazine, Compro)

thioridazine (Mellaril)

thiothixene (Navane)

 

Second generation medications ("atypical")

aripiprazole (Abilify)

asenapine (Saphris)

brexpiprazole (Rexulti)

cariprazine (Vraylar)

clozapine (Clozaril)

iloperidone (Fanapt)

olanzapine (Zyprexa)

quetiapine (Seroquel)

paliperidone (Invega)

risperidone (Risperdal)

ziprasidone (Geodon)

 

Category miscellaneous "antipsychotic" drugs

haloperidol (Haldol)

lithium (many brand names)

loxapine (Loxatane, Adasuve)

molindone (Moban)

pimozide (Orap)

 

Edited by scallywag

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