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Antipsychotic survivors? Interested in your stories.

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Wowzers

Haven't seen or heard anything in regards to antipsychotic recovery.

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Meimeiquest

Well, I stopped Zyprexa in 2012 and I consider myself completely recovered. But it was an 8 mo taper, not CT. If you are struggling I would really recommend reinstatement and a proper taper. 3 yrs before that a dr. tried me on 50% reductions and it was impossible.

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Marsha

I had to stop taking the antipsychotic geodon at 40 mgs after 12 years on high doses. Couldn't complete my taper due to tardive dyskenisia manifesting itself. I am about four months off and I am definitely recovering.

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Wowzers

Thanks you all. I appreciate your personal experiences.........

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Ayaa

I was taking Haloperidol  in 1992 for about 1.5 month. Risperidone and Chlorprotixen, then Quetiapine, then Saphris in 2013-2014. Both times I successfully stopped antipsychotics. I have seen other people here who also successfully quitted and recovered.

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Shep

I'm off all meds after taking cocktails of antipsychotics, antidepressants, benzos, z-drugs, etc. for 30 years. You name it, I took it. 

 

But I'm free now, off all drugs for almost 11 months, and slowly healing. 

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Wowzers

I'm off all meds after taking cocktails of antipsychotics, antidepressants, benzos, z-drugs, etc. for 30 years. You name it, I took it. 

 

But I'm free now, off all drugs for almost 11 months, and slowly healing. 

Wow......That's terrific and inspiring. Congratulations on your journey to recovery :-)

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Wowzers

I was taking Haloperidol  in 1992 for about 1.5 month. Risperidone and Chlorprotixen, then Quetiapine, then Saphris in 2013-2014. Both times I successfully stopped antipsychotics. I have seen other people here who also successfully quitted and recovered.

Thanks for the enlightenment and congratulations on your journey as well.

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InvisibleUnless

i spent years on a variety of antipsychotics, and am in my fifth year of withdrawal post-discontinuation.  i still cannot hold down a job or drive or cook my own meals most days, and still have antipsychotic-induced psychotic symptoms.  but, i am better than every year previous.  my daily/weekly symptoms still number in the many dozens, and functioning is impaired, but i am able to do some things in life i could not before this point in recovery (or most periods of recovery), like sleep more than a few hours a night, listen to some music here and there, type with a keyboard without reversing letters in every phrase, etc.

 

i havent updated my thread in a while, and am not always active on here, but i hope to catch up sometime.  there are a good number of users on here primarily or additionally suffering from antipsychotic withdrawal, but we are the minority.  personally, antipsychotics have been worse for me in withdrawal than antidepressants, anxiolytics, benzos, and hypnotics.  topiramate probably takes the cake just because seizures and stuff are more serious than dyskinesias and dystonias, despite the greater overall problems presented by antipsychotics in my withdrawal.

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cymbaltawithdrawal5600

 

but, i am better than every year previous.

 

For this, IU, you are my hero.

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Marsha

Yes invisibleUnless antipsychotic side effects and subsequent withdrawal is the single most difficult life experience I have ever endured.

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cymbaltawithdrawal5600

You're a hero too if you manage to stay off, Marsha. I love you both and all I know is the horror of AD withdrawal. Yours is a special kind of hell I can only dimly understand.

 

Too many have lost their lives to the irresponsible use of APs by the medicos. AD not working? Here, try this!

 

Yeah, guaranteed to make you so messed up you won't remember why you even started on the drugs to begin with (or be a casualty like btdt and nz11 who WEREN'T TOLD WHAT THEY WERE TAKING).

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whitelily

I'm really inspired to hear of successful withdrawals from antipsychotics.  I've tried a number of times but have always so far relapsed.  

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Wowzers

i spent years on a variety of antipsychotics, and am in my fifth year of withdrawal post-discontinuation.  i still cannot hold down a job or drive or cook my own meals most days, and still have antipsychotic-induced psychotic symptoms.  but, i am better than every year previous.  my daily/weekly symptoms still number in the many dozens, and functioning is impaired, but i am able to do some things in life i could not before this point in recovery (or most periods of recovery), like sleep more than a few hours a night, listen to some music here and there, type with a keyboard without reversing letters in every phrase, etc.

 

i havent updated my thread in a while, and am not always active on here, but i hope to catch up sometime.  there are a good number of users on here primarily or additionally suffering from antipsychotic withdrawal, but we are the minority.  personally, antipsychotics have been worse for me in withdrawal than antidepressants, anxiolytics, benzos, and hypnotics.  topiramate probably takes the cake just because seizures and stuff are more serious than dyskinesias and dystonias, despite the greater overall problems presented by antipsychotics in my withdrawal.

Thanks for your experience and input.

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Wowzers

Yes invisibleUnless antipsychotic side effects and subsequent withdrawal is the single most difficult life experience I have ever endured.

Thanks. I was hoping it would be the least horrible but from what i have experienced personally....ARGH!!!!!!!!!!!!!!!

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Wowzers

I'm really inspired to hear of successful withdrawals from antipsychotics.  I've tried a number of times but have always so far relapsed.  

I must say it's getting better for me after almost 2 months. I have windows and the waves seem to be less lengthy. Don't want to talk to fast though for i am appreciative and sometimes according to some of the stories relapse seem's right around the corner. I am hopeful and optimistic as well as staying positive not anticipating the worst, but taking it slow.........The epsom salt baths seem to calm my nerves and muscles. Didn't think anything could work but that does. Wen't out and bought a bunch of different herbs and vitamins but i have now just stuck with a good diet cutting out caffeine and sugar. Scared to put anything in my body really. Even natural herbs...............

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Shep

 

I'm really inspired to hear of successful withdrawals from antipsychotics.  I've tried a number of times but have always so far relapsed.  

I must say it's getting better for me after almost 2 months. I have windows and the waves seem to be less lengthy. Don't want to talk to fast though for i am appreciative and sometimes according to some of the stories relapse seem's right around the corner. I am hopeful and optimistic as well as staying positive not anticipating the worst, but taking it slow.........The epsom salt baths seem to calm my nerves and muscles. Didn't think anything could work but that does. Wen't out and bought a bunch of different herbs and vitamins but i have now just stuck with a good diet cutting out caffeine and sugar. Scared to put anything in my body really. Even natural herbs...............

 

 

If you're already seeing windows, I would also be scared to start taking a lot of herbs and vitamins. Ideally, if you are going the supplement route, it's best to try one at a time at a very small dose to see how you react.

 

I'm glad you're already seeing progress. 

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CaptainJackSparrow

Hi All. 

I wanted to share my experience because I think it might be helpful. I was on antipsychotics for a very long time - years, I don't even remember how long but I would guess between 5 and 8 years. Last year I made the decision to get off them, I was at 400mg Seroquel at the time. I read a little bit online about how to taper them. From what I had read, antipsychotics had much faster half-life than antidepressants. I think the half-life of seroquel was 4-6 hours while my antidepressant was 26 hours. But from what I read, because of the short half life it was recommended antipsychotics could be weaned off less conservatively. I went from 400mg, to 300, to 200, to 100, and finally went from 100 to 0 within a 2month period. I never regretted that choice and I live fine without them. One suggestion is to not judge yourself on your sleeping patterns, that has helped me a lot. 

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RubyTuesday

was tapering off of Seroquel already when TD & dystonia got really bad so jumped off while working for first time in 10 years. stopped working due to dystonia but have been off for 6 months now and really happy to be off. am taking ballet class again. just stopped Lamictal. medication free now for 23 days.

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Wowzers

 

 

I'm really inspired to hear of successful withdrawals from antipsychotics.  I've tried a number of times but have always so far relapsed.  

I must say it's getting better for me after almost 2 months. I have windows and the waves seem to be less lengthy. Don't want to talk to fast though for i am appreciative and sometimes according to some of the stories relapse seem's right around the corner. I am hopeful and optimistic as well as staying positive not anticipating the worst, but taking it slow.........The epsom salt baths seem to calm my nerves and muscles. Didn't think anything could work but that does. Wen't out and bought a bunch of different herbs and vitamins but i have now just stuck with a good diet cutting out caffeine and sugar. Scared to put anything in my body really. Even natural herbs...............

 

 

If you're already seeing windows, I would also be scared to start taking a lot of herbs and vitamins. Ideally, if you are going the supplement route, it's best to try one at a time at a very small dose to see how you react.

 

I'm glad you're already seeing progress. 

 

Yeah thanks. Lesson learned. Started to have bad experiences with the ingestion of natural herbs so i cut that out too............

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Wowzers

was tapering off of Seroquel already when TD & dystonia got really bad so jumped off while working for first time in 10 years. stopped working due to dystonia but have been off for 6 months now and really happy to be off. am taking ballet class again. just stopped Lamictal. medication free now for 23 d

Congrats on your journey to recovery........

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lanah

Following this thread. I'm still tapering my seroquel. Feeling very sick.

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Marsha

Would it be possible for those of us who have gotten off or are still on or tapering to have this topic devoted to us and our experiences, both the difficulties and the improvements etc. There seems to be no other place for us to share our collective experiences. Just a thought.

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scallywag

Good point, Marsha. Thanks for posting that. If folks want a place to connect around their shared experience with neuroleptics, I've created a topic in the Relationships forum.
 
Being on or tapering from neuroleptic medications ("anti-psychotic" meds)
 

Let's keep this as thread for posts about successful tapers from this class of medications.

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Happy2Heal

I was on stelazine only when forced drugged in a mental hospital in my teens. Interestingly, I dont recall them ever giving me an Rx cor when I was discharged... I always believed it was more of a chemical restraint for us wild and crazy teenagers. :/

 

I would not have recalled any WD symptoms, but I had dystonia from taking it and was given cogentin, I believe. Or artane? this was in the 70s, mind you, a long time ago

 

I was forced to take Haldol for many months while impatient in a state hospital- never took it outside the hospital. Got  akathesia from haldol when they changed my dose and was given some drug for that side effect.

no wait, I did take ONE pill of haldol outside of the hospital and was instantly suicidal, so I knew that the drug was bad for me.

 

I don't recall any WD effects although I do recall being extremely tired and sleeping for long periods, that might have been a WD symptom I don't know

 

 

I was on zyprexa for a "manic episode" and CTed off that (but also CTed off depakote at the same time) I had a crushing depression afterward where  it hurt to breathe, I also had a lot of anxiety and was taking klonopin for that. I imagine a lot of the stuff that happened when I Ct'ed were WD symptoms but I never made the connection and of course, the dr never suggested that I was in WD

 

I was on a very high dose of seroquel for at least a year, maybe two? I had severe WD symptoms from Ct'ing off that but did not know that's what it was at the time. I had to take atenalol because my heart rate was so high. I have permanent heart muscle damage from that, but not enough to impair the function of my heart (not from the atenolol but because my heart rate was so high for so long BEFORE being treated for it) Lucky for me  I have a strong  heart to begin with, so the damage is not a concern for me now.

 

I was being switched around on all sorts of different drugs at the time, risperdal, trilafon etc and so, there ware side effects and WD all happening at once

amazingly, I was raising my daughter as a single mom thru all of this and did an OK job at that!

 

I have not been on any antipsychotics for over 10yrs and I believe i recovered from even the worst of the WD in a year or less, even thought it was CT and multiple drugs

 

I was not however, drug free- I have been on an SSRI (zoloft, first, then celexa and then lexapro) since er, sometime in the 1990's

I am not yet drug free, I am tapering off of that lexapro after being on it for about 13 yrs

 

almost there, though!! almost there!!!!!!

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Bobo32

Well, I stopped Zyprexa in 2012 and I consider myself completely recovered. But it was an 8 mo taper, not CT. If you are struggling I would really recommend reinstatement and a proper taper. 3 yrs before that a dr. tried me on 50% reductions and it was impossible.

How long you have been on zyprexa ? I've been on it 3 months last year and I don't feel like my usual self. Brain fog, memory loss, concentrating and thinking issues as well as depression and not feeling good emotions. Has anyone recover from this?

Thanks

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scallywag

I have added a tag, "antipsychotic recovery", to this topic and to Success Story threads where the original poster mentions having taken an antipsychotic medication.  If you click on the tag that appears below the title, you'll get a list of success stories on this site with that tag.

 

 

Edited to add:
Clicking on the tag brings up all topics with that tag, including Introductions and "Tips for Tapering" topics.
I ran a search for topics with tag="antipsychotic recovery" and location=Success Stories forum. Here are the

 

Partial list of "antipsychotic" medications for your site and web searches:

 

First generation medications (typical or neuroleptic)

chlorpromazine (Thorazine)

trifluoperazine (Stelazine)

perphenazine (Trilafon)

fluphenazine (Prolixin, Permitil)

mesoridazine (Serentil)

prochlorperazine (Compazine, Compro)

thioridazine (Mellaril)

thiothixene (Navane)

 

Second generation medications ("atypical")

aripiprazole (Abilify)

asenapine (Saphris)

brexpiprazole (Rexulti)

cariprazine (Vraylar)

clozapine (Clozaril)

iloperidone (Fanapt)

olanzapine (Zyprexa)

quetiapine (Seroquel)

paliperidone (Invega)

risperidone (Risperdal)

ziprasidone (Geodon)

 

Category miscellaneous "antipsychotic" drugs

haloperidol (Haldol)

lithium (many brand names)

loxapine (Loxatane, Adasuve)

molindone (Moban)

pimozide (Orap)

 

Edited by scallywag

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risperdalhater
On 4/5/2016 at 6:04 PM, Wowzers said:

Haven't seen or heard anything in regards to antipsychotic recovery.

 

it's annoying isn't it?  i fully recovered from risperidone (aka risperdal) withdrawal but it took over a year though.

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Plshelp
15 hours ago, risperdalhater said:

 

it's annoying isn't it?  i fully recovered from risperidone (aka risperdal) withdrawal but it took over a year though.

Risperadalhater, 

 

You've recovered? Really? How long were you originally on it for? What were your original symptoms? You can send me a pm if you'd like. Thx I appreciate your time. 

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Staz

It's good to read these stories as I've got 4 tapers to complete probably starting with seroquel (quetiapine).  I've got down to 50mg from 150mg in the last few months but need to hold to get stable again as I've pushed this too hard and too fast. My benzo will probably be next and the a/d's last as they are totally ineffective as are all the others I've tried. The last to go will be mirtazapine as it will help me with sleep during w/d's from the rest.

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Crank

I stopped flupentixol 1mg cold turkey, as advised by my ignorant psychiatrist. I suffered debilitating withdrawal and had to go on lexapro to stabilize (I also quit trazodone cold turkey at the same time). I do not know how I did not kill the stupid doctor that did this to me. Anyway one year later I am now tapering lexapro for over a year and I am in a pretty bad shape - both physically and mentally, however I can say that I have forgot about flupentixol, but do not know what part of my misery now is caused by my previous "medication" and what is caused by my current tapering of lexapro. Anyway I have quit flupentixol for the good.

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Althea

I'm following this thread, too. Just started tapering Seroquel.

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Staz

Hi Althea,

I'm trying to get off of seroquel also because it just hasn't done anything for my depression which is still bad. I've chosen seroquel to start with after being on and off many medications in the past year or so just from a harm reduction point of view after finding out way to late what the side effects are from this class of drug. I was given it for sleep and told no more than that when it was prescribed so no informed consent. However I believe it's my benzo that's the main problem for me as I think it's perpetuating my depression. Also I've been on and off of meds for the last year with no benefit to me which has added to my plight.

I'm now on 30mg Seroquel from 150mg back in the summer and finding it hard going tbh and I'm always tempted to go more quickly than 10%. My shrink had me reducing at 25mg every 2 weeks and thought this perfectly reasonable.

My symptoms are the classic ones for this drug, mainly flu type feelings, poor sleep, tinnitus and nausea.

Good luck with your taper and keep posting your progress.

Staz

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Northcoastboy

I’m tapering Seroquel too.

Dropped from 150 mgs to 25mgs since 19 Sept 17 with few symptoms.

Dropped in 25mgs until 50mgs.

Then dropped 12.5 mgs at a time.

Since getting to 25 mgs I have had increased tinnitus. Muscle tension in neck and upper back.

Awakening at around 5am with cortisol surges.

Decided to hold at 25 mgs to stabilise.

 

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ang

Was on masses of seroquel.        Did a dive after an unsuccessful attempt to stop ADs, so the ""sleeping tablet"" dose went up to a massive dose because the general practitioner said  ""oh you are only on a low dose, you can take up to ""insert amount"".          Problem being at a high dose it becomes a major antipsychotic.         The only reason I was ever psychotic was due to my adverse reactions to valium.
Long story short, hard to get off the crap, you need to recognise thoughts that are irrelevant and wrong.          Stay out of trouble, and taper slowly. 

It can be done, I was on a massive dose.              All gone now, and feeling great.    And beware, the lower the dose, the SLOWER you go in your taper.    

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Northcoastboy

I ended up on this site back in 2013 due to CT from Citalopram (Celexa).

See signature for what happened then.

 

I tapered slowly from Benzos.

I then had a rest and searched the internet for advice on tapering.

The only real advice was on here under the tapering thread Seroquel.

I spoke to various pysche drs and a prof of Pharmacology. I trawled this site for horror stories and also benzo buddies. The vast amount of horror stories online were from people who had CT.

 

There were no horror stories that I found from people who had tapered.

It also depends why you were put on it.

As we know from this site with huge problems with people suffering from sxs due to SSRI and others. Plus many more on benzo buddies coming off benzos.

There is no anti psychotic withdraw forum tellingly.

 

I was at a relatively low dose for resistant depression and insomnia. A different approach may be needed if you have had a psychosis.

I have read of people on 2000mgs if that can be believed. I have read of many on 1000mgs.

Seroquel worked. My depression and insomnia have gone. They may have gone without Seroquel, but who knows.

 

I thought about a slow Valium like taper but took advice and switched to 100XR and 50IR from 150XR and dropped 25mgs to see what happened. I was prepared for a long slow taper. I had read numerous times that last 25mgs were the hardest to taper.

After dropping 25mgs I had one night of early wakening. I waited for all hell to bake loose and nothing happened.

This is how things progressed;

 

Seroquel taper began

19th Sept 17

150mgs XR 

To 100mgs XR and 25mgs IR

17% reduction

 

26th Sept 17

125 mgs XR

To 100 mgs XR

20% reduction

 

5th Oct 17

100 XR

To 50 mgs XR and 25 mgs IR

25% reduction

 

19th Oct 17

50 mgs XR and 25 mgs IR

To 50 mgs XR and 12.5 mgs IR

 

I then dropped in 12.5mg increments to 25mgs every few weeks.

 

At 25mgs I had a lightbulb moment when I was trying to make a liquid suspension and found I could not buy Ora plus in UK or it was hugely expensive to import from USA.

 

I purchased junior/baby paracetamol (Tylenol) syrup for £2.50 a bottle. 

Total consumed very compared to adult dose!

 

I dissolve a 25mgs pill in 10mil hot (not boiling) water for a good hour. Could see hundreds of tiny bits in solution, which worried me.

I then put 20 mil of my syrup (above) into dissolved pill.

Mixed this very will with a teaspoon and licked it clean.

I now had a nice suspension of those pesky bits.

I intended to draw out 1ml for 2 nights then 2ml for 2 nights and and so on and take 60 days to taper off last 25mgs.

2nd night I thought I will draw 2ml out and continue til I get side effects and then slow down.

 

I never did get any side effects and slid off last 25mgs in 30 days.

 

What symptoms did I have during taper.

A bit of short temper, easy to anger for little reason.

A few nights of early awakening, like 5am ish.

A couple of night difficulty falling asleep.

The worst symptom by far was muscle tension in neck and upper back.

Found it difficult to sit and meditate.

 

Compared to CT from Citalopram and slow benzo taper it was not difficult.

May have been somewhat cushioned by Mirtazapine.

Some say I may not be out of the woods yet.

It took just over 3 months to taper.

I have been off for 3 weeks and feel great.

 

I have been tapering my beta blocker which is making me tired.

 

It is a huge relief to be off Seroquel.

 

I hope this helps anyone thinking of tapering Seroquel.

I think if you have suffered from psychosis it may be wise to taper slower due to the risk of a rebound psychosis. This can happen in rare cases.

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