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januaryeve

Success after severe problems

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januaryeve   
januaryeve

I am wondering if there is anyone in the world who has successfully quit SSRIs or benzodiazapines, AFTER:

1)longterm use

AND

2)serious withdrawal problems

 

I searched on this site and another and found nothing helpful. I found people who said they'd never had a serious problem, or who were on the drugs briefly and withdrew with no problem.

 

Those are NOT the people I want to hear from.

 

I am talking about people whose lives were seriously affected with withdrawal symptoms. And particularly people whose withdrawal problems lasted a long time. That is me. I am looking for evidence that there is proof that this will end.

 

For instance, I read something by altostrata that she has been in withdrawal for 6 years and is not yet really successful.

 

Is there someone who has had success AFTER SEVERE PROBLEMS? I am happy for those of you who have had no or few or light problems, but you are not the ones who can help me here.

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Happy2Heal   
Happy2Heal

well I don't know what you would call severe problems......what symptoms are you having?

I am tapering off of lexapro. I was on it since 2002. (as you can see in my signature, I've been on a lot of psych drugs for decades)

I tried to get off the lexapro a couple of times, but the withdrawal symptoms were so awful, I went back on.

 

In June 2015, I decided I'd try again. I did not know that I needed to taper a lot slower than I was, so I went down quite quickly from 20 mgs in June to 2.5mgs by Dec.

When I got down that low, I wasn't able to sleep at all- and I got these awful rages, where I was yelling at ppl and couldn't stop.

My dr (an internist) told me to take the 2.5mgs every other day and then stop.
Thankfully, I found this forum and realized that was the wrong thing to do.

So I stayed at 2.5 mgs from Dec 2015 til late May 2106.  It was then that I made a big mistake. I didn't think the WD symptoms were all that bad, and I'd forgotten to take the lexapro for a couple of days due to having company from out of town.
I decided to just stop taking it, and basically "jumped off" at 2.5mg

 

I seemed to do ok for awhile, except for some severe muscle spasms and trouble sleeping, and awful night sweats, but then in late Sept, I "crashed" and ended up with almost 50 different symptoms, all severe.

You can read my thread if you like, to see what they were and to see if it compares to what you are going thru.

 

I reinstated at a tiny dose of lexapro and have been gradually improving since then.

each day, I got a tiny bit better. I had some waves of bad symptoms and I made some mistakes, adding supplements that didn't help and other things like that, but overall, my progress has been pretty steady in the positive direction.

 

I now only have a few symptoms, mostly I just don't sleep as much as I'd like to but I am finally getting some restful sleep.

 

I am still on a tiny dose of lexapro, 0.25mgs, so I am not a success story by any means, but I can tell you that, even though I messed up, going on and off the drug too many times, and up and down in the dose,

I HAVE been healing and getting better, and I expect that I will recover fully in time.

 

I am 61yrs old and have been on psych meds for decades. I was on SSRIs (zoloft, celexa and lexapro) for about 20 yrs

 

I have a lot of faith that most if not all people will heal eventually.

 

There ARE other stories of members with an even longer med history than mine, who have healed or who are healing now.

I will try to find some links for you.

 

 

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Happy2Heal   
Happy2Heal
Madeleine   
Madeleine

I think what January eve is looking for is people who were on a long time wnd had a rough time and now are drug free and feeling fine and no longer suffering.

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manymoretodays   
manymoretodays

Could be Madeline. 

 

Windows are great and do get longer.  I feel like I had some pretty severe stuff going on.......I mean I think most of us long termers of usage have......that are here anyway.  I found for a time that not reading so many of the stories actually helped me.........when I was in the thick of it........it just seemed to make it harder.  And then......there were times when I didn't know I was in W/D and suffered pretty badly unawares of what was going on really.   Be careful with expectations too.  Somebody has in their signature something like........expectations can be part of the cause of suffering.  I struggle from time to time.......I no longer suffer..........seems to make a difference to me.

 

I am wondering what januaryeve means by successful?  Perhaps we all have a little bit of a different take on that?  What's a good day?  Is success defined by society or by each individual?  I just know for myself.

 

I haven't had the experience of W/D from Xanax though......just a lot of AD's and others..........SSRI's, yes on that one.  Brief usages of klonopin and ativan only.

 

Hope you ARE having a good enough day everybody and finding some relief januaryeve.

 

Best, health and healing,

 

mmt

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manymoretodays   
manymoretodays

Oh hey.....just thinking.......and on the other hand(regarding my first post).......in the beginning after I was here and in the throes of W/D symptoms someone shared how they just stayed signed in and I did that a few times......and read a little or just hung out somewhere on the site.  It sure helped, as far as that feeling of being so alone sometimes with this stuff, in a world where there just aren't many in "real life" who "get it" or acknowledge it.......the whole W/D thing.

 

So there is that.

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Cipramillion   
Cipramillion

I was in hell, felt suicidal, braindead and totalle messed up, but the light got through the cracks eventually. Im now off lexapro and working 100%. 

 

People do get better over time with the right tapering schedule. 

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januaryeve   
januaryeve

Catnapt,

 

Thank you for your post. It is very helpful to me. Your symptoms sound more severe than mine, although it all depends on description.

 

Your post definitely gives me hope, which is what I am looking for.

 

I haven't read your post with links yet, but I will soon.

 

I am 68. I am almost off Prozac taken for 27 years so far. I had symptoms, but I didn't know that's what they were. (I just thought I was crazy.) So I went on a small dose of Xanax to treat what were probably Prozac withdrawal effects. When I went off the Xanax on Nov. 6, 2016, I got severe muscle pain 1 to 2 days later. And I thought that was my only Xanax problem.

 

After that began getting better, mid Feb., 2017, I got or realized I had memory, cognition and focus problems.  Plus I have had insomnia since the 1980s or before.

 

Here is something that might help you with insomnia. I tried it several years ago, quit, and now I am doing again, started 3 days/2 nights ago: a lightbox, the kind used for seasonal affective disorder. They are apparently now used for insomnia, depression, SAD, and regular depression. They say you have to be careful with them if you have mania, because they can cause that. Also, there are some other health reasons not to use them, some types of eye problems, I believe. So check out the information on them before you try one. If you haven't already tried this.

 

The first day I used it, it helped me even before nighttime, because it reduced my strong daytime sleepiness. I am sleepy during the day almost all the time.

 

After 2 nights and 3 days use, I am still feeling somewhat more cheerful and less sleepy during the day. My nighttime sleep is definitely better. Last night I slept well from 10:15 pm to 6 am.

 

The brand/model I am using is Carex Daylight Sky. Before I had the Carex model with the skinny legs. I wouldn't recommend that one, because it is hard to keep it in place; it is wobbly and the knobs to control the angle don't hold

 

Thanks again for your encouraging post!

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januaryeve   
januaryeve

Chessie Cat,

 

Thank you so much for the link to GiaK's website. I watched one of her videos. She is inspiring and seems like a real leader. I will be spending more time on her site.

 

I would also like to say to others who responded to my question about "success" that I will be reading and responding to your posts soon. I am not ignoring you, I just have to do this a few at a time. I don't even know how many posts there are. But I am already excited and encouraged, and I have more belief that I will get better.

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januaryeve   
januaryeve

Madeleine,

 

Yes, that's similar to what I am asking. What happened is, I saw  a question like mine on another site, and the only responses were people saying, "Well, I never really had a problem."

 

I wanted to make it clear that this is not going to help me deal with my fear that I may never get better, even though I am glad for people who never had a problem.

 

I really don't care how long a person was on, as long as they thought it was difficult coming off their drug or drugs. Then I want to hear from them if they succeeded.

 

 

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januaryeve   
januaryeve

 

Could be Madeline. 

 

Windows are great and do get longer.  I feel like I had some pretty severe stuff going on.......I mean I think most of us long termers of usage have......that are here anyway.  I found for a time that not reading so many of the stories actually helped me.........when I was in the thick of it........it just seemed to make it harder.  And then......there were times when I didn't know I was in W/D and suffered pretty badly unawares of what was going on really.   Be careful with expectations too.  Somebody has in their signature something like........expectations can be part of the cause of suffering.  I struggle from time to time.......I no longer suffer..........seems to make a difference to me.

 

I am wondering what januaryeve means by successful?  Perhaps we all have a little bit of a different take on that?  What's a good day?  Is success defined by society or by each individual?  I just know for myself.

 

I haven't had the experience of W/D from Xanax though......just a lot of AD's and others..........SSRI's, yes on that one.  Brief usages of klonopin and ativan only.

 

Hope you ARE having a good enough day everybody and finding some relief januaryeve.

 

Best, health and healing,

 

mmt

 

Thanks for your post, mmt. I'm not sure how I would define overall success. What I was thinking of most when I started this thread is my muscle pain.

 

I've had "depression" and "anxiety" my whole life. I'd like them to go away, and I'm working on that, and improving. This muscle pain is new, and started between 24 and 48 hours after going off a small dose of Xanax. It's interfering with some of the things I do to deal with other problems.

 

That is what I was wondering about when I made the post. But also, I just wanted to know if other people felt they ever got back to their normal selves, whatever normal means to them. That is, did the problems caused by drug treatment go away.

 

What's so surprising is to me is that in the last 4 days or so my muscle pain has decreased to an amazing extent. And it happened pretty much exactly concurrently with use of a light box.

 

What I think is happening is that my body couldn't heal because I wasn't sleeping. (Insomnia is a long term problem for me. I had it for many, many years, but it strongly worsened in 1990, the very first night I took Prozac. I also have severe daytime sleepiness, also very longterm.) I have slept well the last three nights. The daytime sleepiness problem is continuing, with varying intensity.

 

Now, that I may not have to worry about muscle pain, I can find other symptoms to worry about! :D

 

(quote from mmt:) . . . there were times when I didn't know I was in W/D and suffered pretty badly unawares of what was going on really.

 

Yes! I think that's what happened to me, mmt, and also the reason I thought I needed Xanax. Because I was acting and feeling very strange and awful and I didn't know why. You would think the psychiatrist and psychologist treating me while I was tapering slowly off most of my Prozac dose could have mentioned "withdrawal symptoms."

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januaryeve   
januaryeve

I was in hell, felt suicidal, braindead and totalle messed up, but the light got through the cracks eventually. Im now off lexapro and working 100%. 

 

People do get better over time with the right tapering schedule. 

 

Wow, that is really exciting! I especially like the "100%" bit. :)

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