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PSSD Post SSRI sexual dysfunction.

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theelt712   
theelt712

After using some Isochronic Tones, I noticed a 40% relief in my PSSD and that was after one use.

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amiss   
amiss

After using some Isochronic Tones, I noticed a 40% relief in my PSSD and that was after one use.

 

Whoa! Sweet!

 

The things I have found to help were Buspar, which actually makes me kind of hypersexual. When I was underweight, intense exercise for awhile, and eating a lot of food improved it by like 10%. :/

 

Other ideas are choline + piracetam, huperzine, cabergoline, and as a last resort maybe wellbutrin. These are things that are pretty much proven to help. I haven't tried them though. 

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theelt712   
theelt712

I've been asked to possibly try Buspar, Remeron, Welbutrin, or ginseg, which is a supplement.

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elbillingino   
elbillingino

 

Currently my PSSD is terrible. I had sexual side effects on zoloft for years which were just ignored by doctors when I mentioned them. They're fairly similar to what I am experiencing now - premature ejaculation, pleasureless orgasms, anaesthesia - but not quite as bad, and I cared less about them. Strangely, erections are now far more frequent than when I was on meds - which is good, I suppose, but fairly pointless as nothing works as normal after this.

 

Like most people, I'm pretty scared the PSSD will be permanent. The only real glimmer of hope is that for the first 3 or so months after stopping zoloft - before withdrawal kicked in, in fact - my sexual functioning returned to about 80% - in fact, each decrease in dosage over my too quick 3 month taper brought a big increase in functioning.

 

I know nobody can say whether it will go away, but is the fact it did almost recover previously any kind of good sign? Or just another unpredictable aspect of the withdrawal rollercoaster?

 

(Apologies if the above is a bit explicit for some people!)

Hi,

 

I too have experienced severe PSSD. About 8 months ago I could not get an erection at all. Had major premature ejaculation issues, delayed ejaculation, major loss of sensation and pleasure less orgasms. Thankfully a lot of that has improved. However my erections still aren't hard enough for intercourse or hard enough all the time, morning erections are back but not as strong as they used to be. I am just wondering if you are still experiencing troubles with your erections, maintaining them, having one strong enough for intercourse as you mentioned your sexual function is at about 80%?

 

thanks.

 

I got to 80% at the 0-3 month point after discontinuing my AD. I'm now at about 10 months out and things worsened after the 3 month point when withdrawal kicked in.

 

Erections are about the only thing that do work for me sexually. Virtually everything else is dysfunctional.

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theelt712   
theelt712

Things worsen before they get better, don't forget.

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SlimNm   
SlimNm

SlimNum, we support  a lot of people here who have taken various supplements in the hopes they might help, and gotten worse instead. People with withdrawal syndrome often have very sensitive systems. Even a small alteration in aldosterone could have serious effects.

 

Anything should be tried very cautiously, in very small amounts. If you wish to urge people to try licorice root, I hope you stay around to support those who have a bad result.

 

Of course.  My only problem was with you telling people to stay away from it, ignoring the evidence that it may offer relief.

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SlimNm   
SlimNm

From the above linked website:

 

 

In this thread I intend on posting all the most useful anecdotal evidence of what is known so far about PSSD. I will try to find common denominators among sufferers. I hope to do this in such a fashion as has never been seen before on the internet.

 

Alrighty then!

If you have a problem using anecdotal evidence, that's fine.  But it looks like anecdotal evidence is all that you got.  I don't see any scientific studies revealing any potential cures for SSRI withdrawal.

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alexjuice   
alexjuice

Slim,

Is the licorice root still working for you? Do you have any idea WHY this would help with PSSD? What specifics problems has this best found to help -- anorgasma?, impotence?, arousal disorders?

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johnson   
johnson

 

SlimNum, we support  a lot of people here who have taken various supplements in the hopes they might help, and gotten worse instead. People with withdrawal syndrome often have very sensitive systems. Even a small alteration in aldosterone could have serious effects.

 

Anything should be tried very cautiously, in very small amounts. If you wish to urge people to try licorice root, I hope you stay around to support those who have a bad result.

 

Of course.  My only problem was with you telling people to stay away from it, ignoring the evidence that it may offer relief.

 

Alto is correct, we don't really know the long term effects of this supplement are, and what if it makes things worse then what? Then you are worse

off then when you started, more depressed and miserable. Is it worth the risk?

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cymbaltawithdrawal5600   
cymbaltawithdrawal5600

 

ignoring the evidence that it may offer relief

 

There is a link in the first post in this topic. That is what I researched and commented upon. I should have kept my big fat fingers shut.

 

I did a little more research on the topic yesterday and I was shocked at what I found. I am definitely keeping my big fat fingers shut on THAT one.

 

Out of all of the bajillion results my search term returned, why in the world did I click on the one I did? Gah.....

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elbillingino   
elbillingino

True.

 

How often is this permanent? I took zoloft for more than 8 years.

 

It's so cruel, because with each dosage decrease, I gained more and more functioning. Logically, I thought this would mean functioning would return completely when I stopped them - and it almost did. Only for it to then disappear again! Yes, I get erections, but there's not much point to them when nothing else functions.

 

I know there's no real research data on PSSD, but anecdotally from here and the other forum, I'm presuming most people do recover sexual functioning (to a greater or lesser degree?) Can anyone add anything to this? The internet is littered with stories of people who still have PSSD years out - actually, how common is this?

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theelt712   
theelt712

Although I have no idea how common this is, most people improve within a period of 1-5 years. However, that is an average and your recovery may vary.

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Altostrata   
Altostrata

What is your source for that information, theelt?

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theelt712   
theelt712

Just an average of success stories I've read on places like PP.

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theelt712   
theelt712

According to a study, Ginkgo may be helpful:

 

http://ajp.psychiatryonline.org/article.aspx?articleID=174132

 

"A 1-month trial of ginkgo biloba was prescribed for 22 consecutive patients (nine men and 13 women) seen in a private psychiatric office who complained of SSRI-induced sexual dysfunction. The gingko biloba was purchased at a local health store, and the prescribed dose was 300 mg t.i.d. Oral consent was obtained; written consent was not obtained because the results of this study were not initially for publication. SSRI-induced sexual dysfunction was defined as a new impairment in sexual desire, arousal, or orgasm appearing within 4 weeks of beginning treatment with an SSRI. Ratings of improvement were based on clinical interviews by the patient’s treating psychiatrist."

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johnson   
johnson

True.

 

How often is this permanent? I took zoloft for more than 8 years.

 

It's so cruel, because with each dosage decrease, I gained more and more functioning. Logically, I thought this would mean functioning would return completely when I stopped them - and it almost did. Only for it to then disappear again! Yes, I get erections, but there's not much point to them when nothing else functions.

 

I know there's no real research data on PSSD, but anecdotally from here and the other forum, I'm presuming most people do recover sexual functioning (to a greater or lesser degree?) Can anyone add anything to this? The internet is littered with stories of people who still have PSSD years out - actually, how common is this?

I would read the recovery stories on this site. There are two stories specifically which should help regarding PSSD.

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Altostrata   
Altostrata

Like withdrawal syndrome in general, I assume the rate of recovery from PSSD is a bell curve. At the left side, a small number of people who recover quickly. At the right side, a small number of people who take a very long time to recover (and at the very end, a small number of people whose recovery is indefinite). The majority are in the middle, recovering in some number of months to a few years.

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fj929   
fj929

Any update? I wish people wouldn't post something that really helped and then just dissapear.

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Nella   
Nella

Hello,

 

I'm suffering from PSSD, I wrote this in my introduction:

 

http://survivingantidepressants.org/index.php?/topic/5250-nella-can-only-3-pills-ruin-life/?p=67642

 

My symptoms are having no libido (really not a little bit, no arousal possible for me, feeling completely asexual) and its really painfull if we try to have sex. So we didn't have sex since 6 month and it doesn't seem to get better. I love my husband so much and it's hard not to have erotic feelings any more with him. I hope really that we can handle this, losing him would be very painful for me..

 

is it possible to recover, even if there is no improvement after several month?

 

If there will never be an improvement, can a relationship last and be happy without having sex, how do you live with it? are there any experiences from PSSD sufferers?

 

-Nella

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Altostrata   
Altostrata

I had sexual dysfunction while taking SSRIs and complete PSSD after I stopped taking Paxil in 2004.

 

At that time, I was 54 and post-menopausal.

 

Gradually, sexual sensation did come back. In the last year or so, I would say orgasm is close to normal.

 

Libido, not so much -- but I am post-menopausal. I believe my age also caused recovery to be slow.

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Nella   
Nella

that makes hope, thank you! So perhaps it takes a while untill I can see first improvements. I really hope my husband can wait no matter how long it will take..

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Maxbeta   
Maxbeta

Hi, I'm a 39-year-old male. Was on Cymbalta for just over a month. Started on 30mg (which helped lift my mood a little), then was put on 60mg. I had the usual symptoms: headache, dry mouth, tired, manic, insomnia, no appetite. As soon as I was on 60mg my sex drive disappeared. No sexual thoughts or desire, not turned on by visual stimulation, no erections and unable to relieve myself for two weeks. That was a deal-breaker for me.

 

Then I recently met a lovely lady. I want to be with her completely and match her level of passion, but the drugs have neutralized all sexual desire and function. I flushed the rest of the Cymbalta out of frustration to try and get my mojo back as soon as possible. There's no way a full relationship is possible with a penis that does not work.

 

It's been two weeks since I stopped taking Cymbalta. For the first week I had terrible vertigo and didn't feel like myself at all. I masturbated with great difficulty (and no hardness) by the end of week two because I needed to know something was still working. Sometimes at night I get semi-erections, but nothing much to speak of. This second week I still have no real sexual desire or thoughts, and even pornography is just a bunch of pictures. When I'm with my lady friend intimately, I cannot get aroused and I'm just very aware of nothing happening down there. All I can do is apologize and give the (true) excuse of the drugs affecting my ability, this isn't me normally.

 

I'm concerned the Cymbalta has done permanent damage to my sexual function and that in itself is very depressing; that I'll never be a whole man again. I don't know if I just need to give the withdrawal more time. But by then I think I will have lost my new relationship.

 

I hate these drugs.

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alex   
alex

Hello Maxbeta; you were on the poison a short time.

You've been off a short time too.

Give it time;witdrawal can be cruel but it is not forever.

Try not to resist it.

Be patient, it will be alright.

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Maxbeta   
Maxbeta

Hello Maxbeta; you were on the poison a short time.

You've been off a short time too.

Give it time;witdrawal can be cruel but it is not forever.

Try not to resist it.

Be patient, it will be alright.

 

Thank you, I need to hear that. I feel I've lost part of myself at the moment. Annoyed with myself for taking the stuff in the first place. And worried because I think I've done damage.

 

I'll just have to give it more time, as you said.

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Altostrata   
Altostrata

Give it time, Max. Please start a topic for yourself in the Introductions forum so you can track your progress in it.

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greenwell3977   
greenwell3977

Hi Altostrata,

 

You mention that "Probably most people recover functioning fairly quickly". Just curious, do you happen have any evidence that backs up your statement?

 

I am tapering off my meds and have not seen a consistent improvement in sexual performance yet. I am starting to be concerned that when I am off these drugs I will have pssd. To be honest, it is giving me some suicidal thoughts and would love to know that chances are I will not have pssd.

 

Thank you in advance.

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Altostrata   
Altostrata

greenwell, given the millions on these drugs, and the millions who go off them, it's a fraction who end up looking for answers on the Web. Most have few problems going off drugs. We have to accept this.

 

Most likely, the amount of difficulty going off psychiatric drugs is a normal curve, with a fraction at the left side having no problems at all, a fraction on the right side having almost insurmountable difficulty, and the largest population in the middle with symptoms that do not last long.

 

However, the fraction who do have great difficulty are not insignificant, and this demands more recognition by medicine.

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alex   
alex

At almost 18 months since my last dose of Effexor, I've hit a plateau regarding my wd symptoms.

Today is my 5th day in a row of clear window regarding anxiety, neuro-fear and dysphoria.

With very low levels of anxiety, the levels of tiredness wax and wane, but much better.

Almost no physical symptoms, just a little tinnitus.

What really concerns me right now is broken sleep and PSSD.

I wake up constantly; I've learned to cope with it, but it is very annoying to say the least.

PSSD in the form of premature ejaculation, is really bad.

I just hope that with time, it will improve too.

It's really incredble the damage these damn drugs do.

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elbillingino   
elbillingino

Alto - do you think irreversible PSSD is very rare? (I know, for example, that Healy seems quite pessimistic about its reversibility). Sometimes, I THINK it's improving, but the improvements seem so slight and transient that I question whether they were ever really there. Maybe that just mirrors withdrawal in general.

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forexworld12   
forexworld12

Lately as suffering from lots of adverese/reaction withdrawal and got a Lot of hope from you guys thank you so much and i understand it will take time to go away but at the same time one symtoms seems to be troubling and it makes me feel depressed of how i may not be able to ever have a realtionship,marriage or kids in life(I'm 19)..... Just wanting to hear some positive vibes from people who were suffering from PSSD and it got back normal. How long does it normally take to heal. I have been suffering for this pssd dead libido and numb gential from Going cold turkey on ssri on march 2013....

I was reading a bit here and there and on pssd forums for how some people it is permenent and never goes away for them .

 

I have read here too for many people it took years to get it back but what is the probability of pssd being permanent like people say out there ?

Thank you

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btdt   
btdt

I don't think anybody can answer that as I don't think there have been any studies on how many recover and how many don't.  Some people do.  I am not completely numb any more but I was for years.  Still sex is not an issue for me seemingly does not exist in my world any longer feels strange to say that. I did not have function even after the numbness left when occassional function returned kind of with a lot of work... if you know what I mean orgasm came forgive the pun can't resist with a horrid head pain...to the point that it put of sex altogether... yes if you give pain on a particular action the action will decrease and likely stop.  After that brief time of working with pain the feeling just kind of went away again.  I am female not sure if this helps much but I have seen people on boards like this who have regain their sex lives I have been basically celibate for almost 8 years now. 

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elbillingino   
elbillingino

I think it can. My sexual functioning has gradually improved since I discontinued (although it sometimes doesn't feel like it) and I now get almost daily morning erections. Numbness and orgasm strength are still a problem but can be somewhat variable.

 

I think it depends on many things - time spent on the drugs, dosage, etc. If you read one Healy's most recent articles on rxisk he is a bit more nuanced about recovery than previously, whereas before he seemed to think it was permanent.

 

There are stories on the web from people who have recovered 90-100%. It can take a long time though, and the worst thing is the uncertainty.

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forexworld12   
forexworld12

I don't think anybody can answer that as I don't think there have been any studies on how many recover and how many don't.  Some people do.  I am not completely numb any more but I was for years.  Still sex is not an issue for me seemingly does not exist in my world any longer feels strange to say that. I did not have function even after the numbness left when occassional function returned kind of with a lot of work... if you know what I mean orgasm came forgive the pun can't resist with a horrid head pain...to the point that it put of sex altogether... yes if you give pain on a particular action the action will decrease and likely stop.  After that brief time of working with pain the feeling just kind of went away again.  I am female not sure if this helps much but I have seen people on boards like this who have regain their sex lives I have been basically celibate for almost 8 years now. 

Hi btdt thanks for sharing your story. well you were on drugs for such a long time probably from 89 to 07 ? Wow that's like almost two decades ... This is the first time I'm hearing someone being on drugs for so long ...

I believe you must be quite older than  me so age can play a factor here being on ssri.. That long being on drugs can seriously fudge around with anyone.

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forexworld12   
forexworld12

I think it can. My sexual functioning has gradually improved since I discontinued (although it sometimes doesn't feel like it) and I now get almost daily morning erections. Numbness and orgasm strength are still a problem but can be somewhat variable.

 

I think it depends on many things - time spent on the drugs, dosage, etc. If you read one Healy's most recent articles on rxisk he is a bit more nuanced about recovery than previously, whereas before he seemed to think it was permanent.

 

There are stories on the web from people who have recovered 90-100%. It can take a long time though, and the worst thing is the uncertainty.

Hi,elbillingino. Thank for posting by ... well good to hear you have improved,.. Yes heard a lot of story of people recoving even after years....well these guys you know when they have it for like 3-4 years go posting around on the internet that its permanent and when they recover they aren't on the forum anymore to post that.. Well I have seen this on pssd forums.....

 

I hope we completely recover man..Admin Altostrata did leaving it naturally and If I'm not wrong it took 6 years ..............I did see your history 8 years on drugs. oh Man  .. But Since you are letting it heal naturally and aren't taking any treamtment for pssd I am sure you'll heal since you're improving. Some ex-pssd sufferer told me the body and brain has amazing healing powers  give it time to get back to its natural state yes it may take years but when it does it'll be permanent on the other hand there are many treatments out there that can give us back our sex life and completely make us normal and horny again . but those are like cancer...as long as we are taking them we'll be ok as we leave them the symtoms will return much worse as the dopamine & norepinephrine receptors build tolerance and stop producing it naturally.. probably these drugs have to be taken for life for sex life to be normal but then they come with their own hellish side effects.. Probably we don't cure the side effect of a drug with another drug. this cycle Goes on .....

 

Since I am 19 and was lexapro,paxil and trifluoperazine(I was mis-diagnosied for schizophrenia) From october 2012 to march 2013 and quit cold turkey(later had an adverse reaction to 1 pill paxil(24th january 2014) -still suffering from side effects of it) I am hoping for complete recovery on pssd and I am very glad I did my own re-search on internet and found this forum as I was going back on ssri due to adverse reaction of 1 pill that caused my anxiety and depression but I didn't thanks to this forum..

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