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SURVEY CLOSED Prescribed Drug Dependence & Withdrawal Survey

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nz11   
nz11

Im not one to pm the owner of this site so heres an open pm.

 

Alto  just wanted to say thanks heaps for that terrific email you sent out.

I have a feeling it will stir a fantastic outcome and probably arouse a sleeping giant - members who are in a prolonged season of silence.

SA i see is already getting responses.

Not that the mods need any more work but i think this is going to cause a surge in survey completions hoorah!...and sa updates!

Im so excited about what will occur this week leading up to 24th aug.

Thanks heaps.

nz11

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nz11   
nz11
2 hours ago, Songbird said:

Thanks for the email, I've filled out the survey.

Thanks Songbird ....lovely to hear from you.

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nz11   
nz11
1 hour ago, Katamari said:

Without that email I would have missed this. Thanks!

Thank you for completing it.

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nz11   
nz11

Thanks

grandma, gigi, and marsha.

so glad you added your voice to this survey.

nz11

 

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sstansky   
sstansky

I took the survey.  I smiled all evening knowing that a university is studying the problem.  I am notifying both my therapist and my disbelieving physician team about this survey as more validation of SSRI and benzo withdrawal.

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pinkfairy   
pinkfairy

All signed An done 💐

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pinkfairy   
pinkfairy

Just a thought here...all those people on benzo buddies could some one send the link over to that site?

my brain is mush,sorry if am not making much sense!!

baylissa as posted it on her face book..An the benzo recovery groups are all signing it too...

 

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Bokart   
Bokart

Just answered.

 

Hoping this will make a positive impact in the world :)

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keepinghope   
keepinghope

Done - it's great that some people are finally starting to sit up and take notice! From little acorns and all that. 

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nz11   
nz11

Well done Sstansky, Mourad, Pinkfairy, Bokart and KH

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bomo   
bomo

Completed the survey

it took a few minutes, thats all, and it was a good thing to contribute to by way of recording this situation.

symptoms becoming more manageable past 3 days.

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elbee   
elbee

I've run into an issue on one of the questions . . . it asked if I was still taking the drugs and the response options were something like this . . .

 

Yes, don't plan on getting off

Yes, considering getting off

No, getting off

No, off

 

The correct answer for me would be "Yes, getting off" and it seems that would be true for anyone here tapering? Maybe I'm just too fuzzy headed right now and missed something, but I selected no, getting off but the follow up questions are:

 

Which class of drug(s) have you withdrawn from? Select as many as are applicable.

and . . .

How long ago did you stop taking the drug(s)?

 

These questions of course assume that I've completed the withdrawal / dc process. Hmmm?

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Bokart   
Bokart
3 hours ago, elbee said:

I've run into an issue on one of the questions . . . it asked if I was still taking the drugs and the response options were something like this . . .

 

Yes, don't plan on getting off

Yes, considering getting off

No, getting off

No, off

 

The correct answer for me would be "Yes, getting off" and it seems that would be true for anyone here tapering? Maybe I'm just too fuzzy headed right now and missed something, but I selected no, getting off but the follow up questions are:

 

Which class of drug(s) have you withdrawn from? Select as many as are applicable.

and . . .

How long ago did you stop taking the drug(s)?

 

These questions of course assume that I've completed the withdrawal / dc process. Hmmm?

 

Yes, there are 2 options "yes, I have withdrawn from some" & "Yes, I have withdrawn from all", don't choose them, choose that you're considering withdrawing.. Don't worry - there will still be questions about withdrawal symptoms & if you have experienced them.

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divegrl   
divegrl

Hi!

 

I just filled out this survey.  I hope it enables further support and research to be done in the area of psych meds and withdrawal. :D

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nz11   
nz11

Great stuff bomo, dj, elbee and divegrl.

Elbee I found some qu also needed further explanation   I used the explanation boxes either before or after the qu to clarify.

eg I said , "In the next qu you ask  ......I would like to say  that......"

 

Good going people. 

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Shep   
Shep
On 8/13/2017 at 7:50 PM, Shep said:

Thanks for posting this link, Marmite.

 

I have a friend who's active in advocacy for benzo withdrawal and she was in contact with the researchers Friday and they said so far, they have received 220 responses, 80 from the UK. And that was over two days. Hopefully, more will come in over the next week. 

 

Just an FYI that the survey will close soon:  

 

The survey opens at 9am on 10 August 2017 will close at 5pm on 24 August 2017 BST.

 

 

 

 

Another update on the count of people who've completed it:

 

The survey now has 1,000 responses, 250 of these  from the UK. 

 

Just a reminder:  The survey will close at 5pm on 24 August 2017 BST.

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nz11   
nz11

Thanks for posting that update Shep.

Great stuff.

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Alpha23   
Alpha23

I completed the survey. Fingers crossed it helps!

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JenJen   
JenJen

I just did it.  The survey asked the right questions and it is my guess that the authors understand that withdrawal pains exist and that their is a need for more information and support.  It is the doctors and staff that need the education most.  

 

I realized how helpful this site and all of you have been!  I have a strong feeling of gratitude for everyone here.  

Edited by JenJen
add opinion on the survey

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freespirit   
freespirit

Completed the survey. I hope it helps make some changes.

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nz11   
nz11

Alpha,  jenjen and freespirit well done on getting the job done! 

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nz11   
nz11

I assume that its a given all moderators will be completing this survey.

 

 

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Rob66   
Rob66

Survey completed!  Happy to do my part in hopes it will make a difference :)

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TryingToHoldOn   
TryingToHoldOn

Done!

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Flowers   
Flowers

Completed the survey - lets hope some good comes out of it.

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Shep   
Shep
On 8/13/2017 at 7:50 PM, Shep said:

Thanks for posting this link, Marmite.

 

I have a friend who's active in advocacy for benzo withdrawal and she was in contact with the researchers Friday and they said so far, they have received 220 responses, 80 from the UK. And that was over two days. Hopefully, more will come in over the next week. 

 

Just an FYI that the survey will close soon:  

 

The survey opens at 9am on 10 August 2017 will close at 5pm on 24 August 2017 BST.

 

 

 

On 8/21/2017 at 7:10 PM, Shep said:

Another update on the count of people who've completed it:

 

The survey now has 1,000 responses, 250 of these  from the UK. 

 

Just a reminder:  The survey will close at 5pm on 24 August 2017 BST.

 

 

Continuing on with the updates, here is the latest:

 

The survey now has 1,400 responses, 300 from the UK and 660 from the US and there is now just under 24 hours left to respond. 

 

Excellent work! And hopefully more will come in over the next 24 hours. 

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hacilar   
hacilar

I can't get the survey to load on my computer.  Not being a computer whiz, I'm not sure what the problem is...

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nz11   
nz11

Thanks for the update Shep. 

Theres a certain kiwi holidaying on the Gold Coast at the moment who promised me he would do it.....so some more to come for sure.

 

Come on guys lets get survey wise!!

 

Remember silence is not acceptance!

So have your say today without being intimidated, unacknowledged, spoken over, belittled, dismissed, power imbalanced on, voice raised against you on,  labelled...oh yeah I could I forget ...or referred!! 

nz11

Hey Nick I hope you do the survey or coming down the Raglan looing for you buddy...!! lol

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Beached   
Beached

Thanks for the email announcement.  I just completed it.  There is a possibility of it helping, so it was worth my time to fill it out!

 

Thanks!

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mammaP   
mammaP
On 20/08/2017 at 4:53 PM, pinkfairy said:

Just a thought here...all those people on benzo buddies could some one send the link over to that site?

my brain is mush,sorry if am not making much sense!!

baylissa as posted it on her face book..An the benzo recovery groups are all signing it too...

 

The link is at the top of the page over at BB, just as it is here. :)

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mammaP   
mammaP
On 23/08/2017 at 4:51 AM, nz11 said:

I assume that its a given all moderators will be completing this survey.

 

 

 

Of course, and shared with everyone and anyone on farcebook (got that name from Dan ;)

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bubble   
bubble

8 more hours before it closes.

 

14 days is really a short time to mobilise people...

 

I wish they would extend the deadline and advertise it more broadly.

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mammaP   
mammaP
1 minute ago, bubble said:

8 more hours before it closes.

 

14 days is really a short time to mobilise people...

 

I wish they would extend the deadline and advertise it more broadly.

Me too Bubble, it is no time at all, I just hope they use that fact to emphasise how huge the problem is. That they had so many responses in such a short time it must be a huge problem.

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Marsha   
Marsha

I did my utmost in the survey to explain that even though the numbers of responses may not be huge, there are millions  affected by use and withdrawal of these drugs who have not even come across the survey and so their voices have not been heard. Just wanted to bring attention to the magnitude of this situation. 

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