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JanCarol - undiagnosed! Off all "bipolar" drugs!

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JanCarol

One more comment about the feeling I got in the doctor's surgery.

It felt like I was in the marketing arm of various medical device and pharmaceutical companies.  Posters on the wall for dentures and free hearing tests, weight loss programs and "women's health," blah blah.  At least there were no drug posters - I remember the Pfizer "Nerve Pain" poster I found in another surgery that was so offensive.  Even the info form I was filling out asked me questions about "maintenance" I have had done like PAP smears and mammograms (Peter Goetzsche says mammograms probably do more harm than good). 

I laughed when I saw that I had one line for "all your medications and supplements."  LOL my supplement list is a 2 page Excel document!  So I just listed medications.  

And one line for "your complete medical history,"  egads.  Hubby laughed at that, too, so I just put down hysterectomy and thyroidectomy.  It was a new office so I didn't list the "bipolar" thingy, but did say: DO NOT GIVE ME ANY SEROTONIN BASED DRUGS (because I was there for pain, and there was a good chance they would try and Tramadol me).  

As I sat there, with these loud Ad posters on the wall - and some Current Affairs show on TV blaring at me, it was shocking that people put up with this stuff all the time.  It's even worse in the USA where you get all the Direct to Consumer drug ads.  That would make me throw my TV away forever.

In Shaman Circle, one of the ladies asked me about my own practice,  Nobody drums for me - so how do I practice shamanism?

I'd have to say the first thing I do is eliminate all these chaotic awful controlling and manipulative messages.  They assault and confuse my senses.  (I got a similar assault when we went to see the new Star Wars movie, and the ads beforehand came blaring at me in full big-screen colour and 3D sound - egads!)

There's a lot to be said for a simple life.

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Shep
3 hours ago, JanCarol said:

So - just to let you know - there is still hardship.  It's still a hassle.  And it feels like I'm back on the ground again.  What is keeping me optimistic is:  "This, too, will pass."  Whether it is a week or 3 months, it will pass.

 

Sending healing vibes your way for your back pain. I hope this resolves soon and I love your attitude and the float-and-breathe vibe.

 

3 hours ago, JanCarol said:

I recommend doing your own body scan!

 

This is intriguing. I am nowhere near your level of being able to do these things, so I appreciate how you give explanations and links. Very helpful for us following along.

 

3 hours ago, JanCarol said:

Okay - that was 2 pages of stuff in my journal.  And not all of it was good, but not all of it was bad, either.  But here's what blew me away:  the range and variety of emotions expressed here!  OMG - I'm FEELING lots of things, I'm engaged with my life, and having feelings "of an almost human nature!"  (Pink Floyd, "The Wall") and - it's okay!  I got this!

 

Sounds like an awakening to the "Full Catastrophe of Living", as Dr. Jon Kabat-Zinn puts it. And hey, listening to Pink Floyd is what got me through cold turkey / rapid taper benzo withdrawal, so I highly recommend Floyd.

 

It's wonderful you're waking up, being able to fully embrace the body scan and do it on your own terms, guided by your own body. After being assaulted by chemicals and doctors for years, this is a powerful thing to be able to take control and agency over your own mind and body. 

 

Lots of insight here amidst a lot of pain. Yes, this is the Full Catastrophe but you are embracing the good and the bad without judgement. It has an insightful Observer quality. What I really enjoy about reading this is you don't embrace the "detached" observer - you are fully participating. I'm learning from your journey. 

 

 

3 hours ago, JanCarol said:

There's a lot to be said for a simple life.

 

Amen to that. 

 

Hope you see the sun today. 

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Frogie

Hi JanCarol:

 

Long time no talk.

 

You know I have been watching my thyroid for over a year.

 

Well... This morning the dr called and said my TSH was 7.30 (normal is .04-4.0). A few months ago it had gone from 4.10 to 5.10 and now it's in the 7's.

 

He is putting me on the lowest dose of Aurmor.

 

I know you take thyroid medication, can you help me out?

 

I'm in tears. 😥😥😥 I really thought I could beat it.

 

Thanks.

 

Take care,

Frogie xx

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JanCarol

Hey Frogie - you may beat it yet.  It's really too early in your taper to tell if this is a permanent thing.

You're still on Lexapro, right?


Do you know about Hashimoto's antibodies?  Or have you just tested TSH only?

You won't know what your native state is until you've been off the drugs for at least 3 years.  

 

Now is the time to get the fluoride out of your water, to stop eating gluten.  These two things might make a big difference.  If you have Hashi's, consider a Low Histamine Diet.  Seriously - that can improve your numbers, can even reduce the Hashi's antibodies.  http://www.histamineintolerance.org.uk/about/the-food-diary/the-food-list/  

I'm here today because I fought with an ignorant **** of a doctor today.   I'm out with severe back pain.

My osteopath interpreted the CT scan report for me yesterday - I'm grateful for the time he took to explain what the terms meant, and to show me the pictures that matched the findings, and I'm grateful for his recommendations for non-surgical interventions.  I was armed with this knowledge when I went to the GP today (he ordered the films).

The GP read the report to me - blah blah as if I can't read for myself.  The only words he interpreted were "severe bilateral facetal arthropathy" which he called "osteoarthritis."  He gave me a referral to a surgeon.  

We talked about pain management, and I emphasized to him that I could not have any drugs which had serotonin in them.  He said he would give me something stronger than Endone, called "Targin," which is oxycodone mixed with naloxone to make it "non-addictive" (and also non-effective - so the "stronger than Endone" was a bald faced lie.).  When I asked him to repeat the drug name please, he looked at me and said, "You don't need to know the name of the drug.  It's an opiate, that's all you need to know."  I said, "Tramadol is an opiate, and I cannot have that drug, so it is very important for me to know the name of the drug."

Hubby witnessed all of this - and was able to compare the osteopath's caring report and description to this guy's lame performance.  A doctor, telling a patient, "I'm giving you a drug, but you don't need to know what it is!"  OMG.  I told him I couldn't have the Targin, either (it's completely ineffective when bundled with naloxone).  Then he recommended a neurosurgeon.  Is it any wonder that the average "client/patient/etc." just goes along with what the doctor says - it was like pulling teeth to get him to tell me what he was doing, prescribing, etc.  "Some tablets," is just not good enough for me.

I'm minimizing the use of the oxycontin and endone that he gave me - using castor oil packs and magnesium baths.  This is a holiday weekend, so my hopes of getting to the "next stage" of care within the next 10 days is slim.  Hubby says he will push to get attention, first from the non-surgical GP, and then - if necessary, the neurosurgeon.   Before this happened, I was 104 hours average in between pain doses.  Now it is more like 52 hours average between pain doses.  Still good (not addicted), but I was really proud to get up over 100 hours.

Last week I was marvelling at regaining productivity and passion for my work.  Now, I have a choice between severe crippling pain - or the fuzzy headedness of pain drugs.  I spend about 18-20 hours a day in bed where I can relieve the pressure on my lower back (4 bulging joints, and nasty arthritic changes in about 3 of those joints, and one joint is bone-on-bone.)  It's hard to be productive from this standpoint.  I don't even like using the tablet in bed - I have to twist my body to use it, and that's not an option. 

So - all it takes is one twist, one turn, and I'm back to square one (or so it feels).  But it's not really square one because I have a better toolkit, I'm not afraid of pain, I can go into the pain and work through it as much as possible (as long as I don't have to walk, stand, sit, or do any of the behaviours that flare it up).  My osteopath wants me on strict bed rest.

 

Next week we find out what these non-surgical (likely injections) interventions are.  I'm afraid of steroid shots, but that supposedly makes the intervention more effective. I've already had trigger-point anaesthetic injections (twice) from the osteopath.  He really wants to break the cycle of this before it gets really bad.  I'm fortunate in that none of the nerves are cut off (yet), and I have the opportunity to make the best of this before it gets any worse.

I'm not even allowed to walk, until I see the next specialist.  No yoga, no walking, no weightlifting, no karate.  And that GP was - so typical - and so difficult.  I can imagine how someone less fighting than myself would just go along with whatever - in fact - that's how I ended up losing my thyroid, and more.  The surgeon always sounds so reasonable when he describes how much better he can make things with his snips and stitches....

So I will try and touch sunlight, even if I can't walk in it.

Edited by JanCarol

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apace41

JC, 

 

Sorry you are having such a struggle with the back and the docs.  Did you not get the "they are gods" memo?

 

Have you considered stem cell therapy?  The following is a documentary that will be free all weekend that might give you some additional thoughts:

 

http://www.thehealingmiracle.com/replay-weekend-guide/?inf_contact_key=asd@asdf.com&view_key=348a4dt4a61702e3a131e0f9459c740wacd48&inf_contact_key=6de3c579762636160bcdf79e477bcee12b75cbcd601c8648609b9840eb7a6a24

 

You have done so well in dealing with so many things I am sad to see you derailed by your back.  Have you tried inversion therapy?  It saved me from an L3/L4 disaster and corresponding sciatic pain that was truly debilitating.  I bought an inversion table and used it 2x a day for 15 minutes at a time and in about a month I was 80% better and healing.

 

Just some thoughts.

 

I hope you feel better.

 

Best,

 

Andy

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Frogie
On January 27, 2018 at 6:35 AM, JanCarol said:

Hey Frogie - you may beat it yet.  It's really too early in your taper to tell if this is a permanent thing.

You're still on Lexapro, right?


Do you know about Hashimoto's antibodies?  Or have you just tested TSH only?

You won't know what your native state is until you've been off the drugs for at least 3 years.  

 

Now is the time to get the fluoride out of your water, to stop eating gluten.  These two things might make a big difference.  If you have Hashi's, consider a Low Histamine Diet.  Seriously - that can improve your numbers, can even reduce the Hashi's antibodies.  http://www.histamineintolerance.org.uk/about/the-food-diary/the-food-list/  

I'm here today because I fought with an ignorant **** of a doctor today.   I'm out with severe back pain.

My osteopath interpreted the CT scan report for me yesterday - I'm grateful for the time he took to explain what the terms meant, and to show me the pictures that matched the findings, and I'm grateful for his recommendations for non-surgical interventions.  I was armed with this knowledge when I went to the GP today (he ordered the films).

The GP read the report to me - blah blah as if I can't read for myself.  The only words he interpreted were "severe bilateral facetal arthropathy" which he called "osteoarthritis."  He gave me a referral to a surgeon.  

We talked about pain management, and I emphasized to him that I could not have any drugs which had serotonin in them.  He said he would give me something stronger than Endone, called "Targin," which is oxycodone mixed with naloxone to make it "non-addictive" (and also non-effective - so the "stronger than Endone" was a bald faced lie.).  When I asked him to repeat the drug name please, he looked at me and said, "You don't need to know the name of the drug.  It's an opiate, that's all you need to know."  I said, "Tramadol is an opiate, and I cannot have that drug, so it is very important for me to know the name of the drug."

Hubby witnessed all of this - and was able to compare the osteopath's caring report and description to this guy's lame performance.  A doctor, telling a patient, "I'm giving you a drug, but you don't need to know what it is!"  OMG.  I told him I couldn't have the Targin, either (it's completely ineffective when bundled with naloxone).  Then he recommended a neurosurgeon.  Is it any wonder that the average "client/patient/etc." just goes along with what the doctor says - it was like pulling teeth to get him to tell me what he was doing, prescribing, etc.  "Some tablets," is just not good enough for me.

I'm minimizing the use of the oxycontin and endone that he gave me - using castor oil packs and magnesium baths.  This is a holiday weekend, so my hopes of getting to the "next stage" of care within the next 10 days is slim.  Hubby says he will push to get attention, first from the non-surgical GP, and then - if necessary, the neurosurgeon.   Before this happened, I was 140 hours average in between pain doses.  Now it is more like 52 hours average between pain doses.  Still good (not addicted), but I was really proud to get up over 100 hours.

Last week I was marvelling at regaining productivity and passion for my work.  Now, I have a choice between severe crippling pain - or the fuzzy headedness of pain drugs.  I spend about 18-20 hours a day in bed where I can relieve the pressure on my lower back (4 bulging joints, and nasty arthritic changes in about 3 of those joints, and one joint is bone-on-bone.)  It's hard to be productive from this standpoint.  I don't even like using the tablet in bed - I have to twist my body to use it, and that's not an option. 

So - all it takes is one twist, one turn, and I'm back to square one (or so it feels).  But it's not really square one because I have a better toolkit, I'm not afraid of pain, I can go into the pain and work through it as much as possible (as long as I don't have to walk, stand, sit, or do any of the behaviours that flare it up).  My osteopath wants me on strict bed rest.

 

Next week we find out what these non-surgical (likely injections) interventions are.  I'm afraid of steroid shots, but that supposedly makes the intervention more effective. I've already had trigger-point anaesthetic injections (twice) from the osteopath.  He really wants to break the cycle of this before it gets really bad.  I'm fortunate in that none of the nerves are cut off (yet), and I have the opportunity to make the best of this before it gets any worse.

I'm not even allowed to walk, until I see the next specialist.  No yoga, no walking, no weightlifting, no karate.  And that GP was - so typical - and so difficult.  I can imagine how someone less fighting than myself would just go along with whatever - in fact - that's how I ended up losing my thyroid, and more.  The surgeon always sounds so reasonable when he describes how much better he can make things with his snips and stitches....

So I will try and touch sunlight, even if I can't walk in it.

I'm so sorry to hear about your back. About 3-4 years ago, my fiancé ended up in the hospital because he couldn't walk. We got a really good non-surgical dr that did the injections. We bought an inversion table, he uses that, a Pilates machine that he stretches on and a roller foam that he stretches on. As long as he stretches, he's ok. But it's been bothering him lately which is making me nervous.

 

It's only my TSH level that is high. I had all the other tests done and the antibodies showed no Hashimoto disease. :)

 

My dr and I talked at length and because from May, 2017 it was 4.1, September, 2017, it was 5.1 and now it's 7.3, we decided to start on the lowest dosage of Armour 15mg. Natural. And he did say it could be from tapering. So, I guess we shall see. But he said something had to be done now or I would continue to get worse.

 

I hope you get some relief with your back.

 

Keep me posted and good luck.

 

Take care,

Frogie xx

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powerback
On ‎27‎/‎01‎/‎2018 at 1:35 PM, JanCarol said:

Hey Frogie - you may beat it yet.  It's really too early in your taper to tell if this is a permanent thing.

You're still on Lexapro, right?


Do you know about Hashimoto's antibodies?  Or have you just tested TSH only?

You won't know what your native state is until you've been off the drugs for at least 3 years.  

 

Now is the time to get the fluoride out of your water, to stop eating gluten.  These two things might make a big difference.  If you have Hashi's, consider a Low Histamine Diet.  Seriously - that can improve your numbers, can even reduce the Hashi's antibodies.  http://www.histamineintolerance.org.uk/about/the-food-diary/the-food-list/  

I'm here today because I fought with an ignorant **** of a doctor today.   I'm out with severe back pain.

My osteopath interpreted the CT scan report for me yesterday - I'm grateful for the time he took to explain what the terms meant, and to show me the pictures that matched the findings, and I'm grateful for his recommendations for non-surgical interventions.  I was armed with this knowledge when I went to the GP today (he ordered the films).

The GP read the report to me - blah blah as if I can't read for myself.  The only words he interpreted were "severe bilateral facetal arthropathy" which he called "osteoarthritis."  He gave me a referral to a surgeon.  

We talked about pain management, and I emphasized to him that I could not have any drugs which had serotonin in them.  He said he would give me something stronger than Endone, called "Targin," which is oxycodone mixed with naloxone to make it "non-addictive" (and also non-effective - so the "stronger than Endone" was a bald faced lie.).  When I asked him to repeat the drug name please, he looked at me and said, "You don't need to know the name of the drug.  It's an opiate, that's all you need to know."  I said, "Tramadol is an opiate, and I cannot have that drug, so it is very important for me to know the name of the drug."

Hubby witnessed all of this - and was able to compare the osteopath's caring report and description to this guy's lame performance.  A doctor, telling a patient, "I'm giving you a drug, but you don't need to know what it is!"  OMG.  I told him I couldn't have the Targin, either (it's completely ineffective when bundled with naloxone).  Then he recommended a neurosurgeon.  Is it any wonder that the average "client/patient/etc." just goes along with what the doctor says - it was like pulling teeth to get him to tell me what he was doing, prescribing, etc.  "Some tablets," is just not good enough for me.

I'm minimizing the use of the oxycontin and endone that he gave me - using castor oil packs and magnesium baths.  This is a holiday weekend, so my hopes of getting to the "next stage" of care within the next 10 days is slim.  Hubby says he will push to get attention, first from the non-surgical GP, and then - if necessary, the neurosurgeon.   Before this happened, I was 140 hours average in between pain doses.  Now it is more like 52 hours average between pain doses.  Still good (not addicted), but I was really proud to get up over 100 hours.

Last week I was marvelling at regaining productivity and passion for my work.  Now, I have a choice between severe crippling pain - or the fuzzy headedness of pain drugs.  I spend about 18-20 hours a day in bed where I can relieve the pressure on my lower back (4 bulging joints, and nasty arthritic changes in about 3 of those joints, and one joint is bone-on-bone.)  It's hard to be productive from this standpoint.  I don't even like using the tablet in bed - I have to twist my body to use it, and that's not an option. 

So - all it takes is one twist, one turn, and I'm back to square one (or so it feels).  But it's not really square one because I have a better toolkit, I'm not afraid of pain, I can go into the pain and work through it as much as possible (as long as I don't have to walk, stand, sit, or do any of the behaviours that flare it up).  My osteopath wants me on strict bed rest.

 

Next week we find out what these non-surgical (likely injections) interventions are.  I'm afraid of steroid shots, but that supposedly makes the intervention more effective. I've already had trigger-point anaesthetic injections (twice) from the osteopath.  He really wants to break the cycle of this before it gets really bad.  I'm fortunate in that none of the nerves are cut off (yet), and I have the opportunity to make the best of this before it gets any worse.

I'm not even allowed to walk, until I see the next specialist.  No yoga, no walking, no weightlifting, no karate.  And that GP was - so typical - and so difficult.  I can imagine how someone less fighting than myself would just go along with whatever - in fact - that's how I ended up losing my thyroid, and more.  The surgeon always sounds so reasonable when he describes how much better he can make things with his snips and stitches....

So I will try and touch sunlight, even if I can't walk in it.

Hi JC ,just reading your post here has put an idea in my head ,how about these doctors go on a list like other trades ,like the building trades ,if I talked to a customer like this in there house I would be destroyed .when are these people ever going to get it .the problem is we keep going back to them [not a judgement] .

Even if we report them to the relevant body ,I don't even  trust they would be  non biased .

besides  the fact he's rude ,he's blatantly lying to your face .

Sorry about your back .may it heal soon .

 

 

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JanCarol

Hey Andy - 

 

This is Australia - I have watched the first 1/2 hour of the Healing Miracle - mostly about the Texas lawmakers and spinal cord injuries.  But it gives me something to do while doing bedrest.  I can't really surf from in bed, but I can hook up earphones and watch a little video (awkward, but it works).

This is Australia - "questionable" therapies which are available (marginally) in the USA will be highly iillegal here.  MOst people here do "medical tourism" to Thailand or Mexico for alternate cancer therapies.  I can't even get B17 or CBD here (I investigated this when hubby had prostate cancer).  

Powerback - you are right - we should be able to report.  There are doctor review sites - like Trip Advisor for doctors, but they are not very well used here in Australia.  Most people just go to the doctor and trust him/her with whatever s/he says.  When I ask people to question their docs - or ask for more detail ("what tablets?  what's in the injection? What are the successes and risks of this or that therapy?") people think I've grown a 3rd head, because, like Andy said, they got the "Doctor is God" memo (that I apparently missed!)

The good news today is that I have found a new non-invasive practitioner.  He is an MD (recommended by my Osteopath, who is also an MD)  He was not in a hurry to inject me, was instead concerned about hip alignment problems.  He gave me very specific Finch Therapy muscle activation exercises which will release the twist in my hips.  He said (smart doc) that all of the awful stuff that was on my CT scan - was there 3 weeks ago, but that whatever happened last week is what we need to address, not the stuff on the scan.  In other words, the awful stuff seen on the scan was there before - when the pain was manageable.  (I won't say absent).  He did inject some anaesthetic into the muscles around the rotated hip.  He asked if I wanted cortisone, but was not fussed when I said "no cortisone," and why (worried it will spin me out).

His qualifications:  MBBS (Bachelor of Medicine and Surgery), FRACGP (Fellowship of Royal Australian College of GP's), FACRRM (Fellowship of College of Rural and Remote Medicine - maybe he was a Flying Doctor at some point), DRANZCOG (Obstetrics and Gynecology!), PGDipMSM (Post Graduate Diploma in Muscular-Skeletal Medicine) from Otago, NZ.  So - he's not a lightweight, even though he's young.  Heck, at my age all the docs look young.

 

He considered all of the invasive things - injections, etc., to be far more than I need at this point.  He was pro my getting an inversion table or chair - and he said, it won't hurt me.  

He spoke a lot about "what won't hurt me."  He said my TENS machine may give relief and won't hurt me.  He was focused on things that would help without hurting - not with the power of "I can do this and so that's what I want to do" like most arrogant docs.  I guess he didn't get the memo, either.


He was very reassuring, felt very strongly that if I can get the hip rotated correctly, that the pain will resolve itself.  This gives me hope.

The bummer news is that this is wearing me down.  My toolkit has been ripped out from under me, and I need to take things back to basic basic basics.  So - no yoga or karate for awhile.  I may be trying to get back into Tai Chi.  Back to daily sun walks, even though it's stinking hot here in Queensland now.  It's essential to keep those joints moving.


So that big D depression is nagging at me again.  This feels like a steep learning curve (again) and that I will have to work very hard just to get close to where I was before.  It's good that I'm familiar with "sitting with it." and surviving pain, discomfort - but it is stressful and wearing to be forbearing all of this.

We had a domestic trip planned at the end of next month - involving flying and car rental and driving - and I was hoping - miles and miles of walking through beautiful forests...these plans may be stuffed, and may need to be cancelled.  I was so looking forward to those forests and ocean and fresh food.  (if you must know, it was a trip to Tasmania - it's still a goal, but it seems so much further down the horizon than it did before.)  Tasmania is like heaven on earth - almost as nice as New Zealand (it's tough for me to decide, but it is my understanding that when I get to the South Island, Tasmania will pale by comparison).

Hubby wants to travel.  I'm not being a very good travelling companion right now.

The big D - if I can't get it back on track in the next week or two - I will probably get counselling for it.  It's situational, not chemical.  It's not withdrawal - I've been past all that for years now, just living with the damage that docs have done to me via drugs and surgeries.


So - new routine.

Morning sun-walk.  Daily mag bath (2x a day, if possible), Finch therapy exercises, and then castor oil pack.  Right now, I'm having difficulty with the heat - it makes me not want to leave the room where the AC is.

None of this is withdrawal related, none of it is relevant really, to this website.  But it is about coping with life beyond drugs (and I'm angry about the pain drugs I seem to be back on a squirrel wheel of a sorts with them - but I also know that coming off of them is a piece of cake compared to psych drugs)...and managing my mood and well being under duress.

I got this (said reluctantly, but said).
 

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JanCarol
12 hours ago, Frogie said:

I'm so sorry to hear about your back. About 3-4 years ago, my fiancé ended up in the hospital because he couldn't walk. We got a really good non-surgical dr that did the injections. We bought an inversion table, he uses that, a Pilates machine that he stretches on and a roller foam that he stretches on. As long as he stretches, he's ok. But it's been bothering him lately which is making me nervous.

 

It's only my TSH level that is high. I had all the other tests done and the antibodies showed no Hashimoto disease. :)

 

My dr and I talked at length and because from May, 2017 it was 4.1, September, 2017, it was 5.1 and now it's 7.3, we decided to start on the lowest dosage of Armour 15mg. Natural. And he did say it could be from tapering. So, I guess we shall see. But he said something had to be done now or I would continue to get worse.

 

 

Hey Frogie - the good news is, if you start with thyroid supplementation - you can prevent damage later.  So don't resist it, think of it as a health supplement like magnesium, that's good for you.  I think that 15 mg is too low, but if it gets your TSH down again, that will be good.

I think that much of my cardiac problems are from decades of hypothyroidism, whether drug induced or otherwise.  So - better to take the thyroid now, instead of those awful cardiac drugs later (all of which, I'm convinced, deteriorate health instead of improving it).

It's good to hear that your fiance was able to manage with an inversion table.  I don't have room for a Pilates, but I think I can figure out the inversion table (or chair, depending on what I find).  As you see from my above post, I do have hope that I can do this, get through this, get better.

I hope you see the sun today!  I have and man is it hot!

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JanCarol
Just now, apace41 said:

 

http://www.globalstemcelltherapy.com/stem-cell-destinations/australia/amp/

 

It may be super expensive but they do it there

 

HOLY MOLY Apace!!  That's more than I got for my house in the USA.  (and the website doesn't say whether that's in US$ or AU$ - I suspect it is US$, which is even more outrageous)

 

I'm afraid that's out of the question now.  I'd love to see about fixing my knee with it, but - egads.  Who's got that kind of money?

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apace41
47 minutes ago, JanCarol said:

 

HOLY MOLY Apace!!  That's more than I got for my house in the USA.  (and the website doesn't say whether that's in US$ or AU$ - I suspect it is US$, which is even more outrageous)

 

I'm afraid that's out of the question now.  I'd love to see about fixing my knee with it, but - egads.  Who's got that kind of money?

 

I wasn't suggesting you could afford that or would.  Just pointing out that stem cells have made their way into Oz.

 

Best,

 

Andy

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JanCarol
3 hours ago, apace41 said:

I wasn't suggesting you could afford that or would.  Just pointing out that stem cells have made their way into Oz.

 

Yar, but they may as well not be. 

It's typical Oz - it's here - but it's not accessible.  The barrier is not only money, but "Health Ministry approval" as well.  This means you have to know someone who is doing research.

I do know that at the research level, a lot of cutting edge stuff is happening here - when Dubya banned stem cell research, Aussies were full speed ahead.  I think it was Aussies who discovered - in concert with a scientific team from China - that infants or placenta were not needed for stem cells to work.

Watch this space - it's what I want to do for my knee.  Maybe in 10 years it will be affordable.

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JanCarol

So - my daily routine is now about 3 hours of maintenance on the back - mag baths (2 x 20 minutes), exercises (2 x 10 minutes), castor oil packs (2x15 minutes - could be longer but it's too hot for castor oil packs), daily sun walk 10 minutes, daily yoga / meditation 15 minutes (taking it easy, easy) and daily tai chi 10 minutes.  Plus about an hour nap in the afternoon to take the pressure off my lower back.

I managed almost 48 hours with no pain control at all!  Awesome!  I'm back on it now, but not the strong stuff.  I'm happy to leave the strong stuff in the cupboard for those emergency times (like when hubby had his kidney stone).  

 

I've been studying prolotherapy for my knee - there's a good chance that it will respond well to prolotherapy.  Apparently the achilles tendinitis that I regularly get when my thyroid is not right - is another thing that prolotherapy is good for.  Strengthening tendons.  But I'm reluctant to do it on a thing like the achilles - as I consider that to be a symptom of thyroid troubles. 

If I could get the knee working better, that would help with my back too.


But one thing at a time.  Right now, it's nap time to take the pressure off my sacrum.

 

And I did see the sun today - egads it was hot!

(note on sunshine:  I've been listening to Dr. Jack Wolfson, D.O., the "Paleo Cardiologist" (board certified).  He says that to reduce your cholesterol, get out in the sunshine so that you convert your cholesterol to vitamin D.  He says this is far more effective than Vitamin D supplementation, and works on a number of metabolic pathways, as well.

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Frogie
On January 28, 2018 at 10:09 PM, JanCarol said:

 

Hey Frogie - the good news is, if you start with thyroid supplementation - you can prevent damage later.  So don't resist it, think of it as a health supplement like magnesium, that's good for you.  I think that 15 mg is too low, but if it gets your TSH down again, that will be good.

I think that much of my cardiac problems are from decades of hypothyroidism, whether drug induced or otherwise.  So - better to take the thyroid now, instead of those awful cardiac drugs later (all of which, I'm convinced, deteriorate health instead of improving it).

It's good to hear that your fiance was able to manage with an inversion table.  I don't have room for a Pilates, but I think I can figure out the inversion table (or chair, depending on what I find).  As you see from my above post, I do have hope that I can do this, get through this, get better.

I hope you see the sun today!  I have and man is it hot!

Thanks Jan:

 

That's what everyone tells me. Think of it as a supplement, not a medication. They say sometimes Lexapro can do this and once you get off of the Lexapro, your thyroid will go back to normal. Let's hope so.

 

My dr started me on a really low dose. I have to go back in and get tested again. I'm sure he will up it.

 

I see you are doing better with the back. That's great! You can get a foam roller cheap at a sporting good store. It looks like one of those foam things for the swimming pool, but shorter and harder. It's helps my fiancé a lot with the inversion table. The table folded up is a little bigger than an ironing board.

 

I wish you luck! I know it's the hardest thing to have, back issues. I watch my poor fiancé go through it everyday.

 

Thanks for the information on the thyroid medication. You help me a lot.

 

Take care,

Frogie xx

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JanCarol

I haven't warmed to foam rollers - too many issues - if it's not my back, it's my hips or my knees.  I'm scared of falling off of them!

But I will be looking into inversion tables.

The good news is - in less than a week, I've kicked the hard drugs, and am doing non-drug management!

 

The funny news is - the neurosurgeon (and his office) got snippy with me!

They called.  I've never had a referral to specialist pursue me like this.  They called and called until we connected.  The neurosurgery business must be having doldrums or something.

So I finally connected, and told them that I was going to a pain management GP.  I was informed that this was a "rejection of referral," and they asked me if I told my GP.  Since it wasn't MY GP, but was a doc-in-a-box, I said it didn't really matter, but that I would tell them the course of action I was pursuing.

Then today - I got a letter.  It was a letter notifying me that I had rejected my consultation with a neurosurgeon, with a cc: copy of what they sent to the referring GP.  They told the GP that, against all recommendations I have rejected the referral to the GP and refused an appointment.

This is like bullying - trying to intimidate me into thinking that my refusal is a form of "non-compliance" and is dangerous and they need to cover-their-arse and notify me and the doctor of my choice to not go to a neurosurgeon.  This is not making me feel attracted to the neurosurgeon in any way!

If this were a psych issue there might be people at my door addressing my "oppositional defiance disorder" and ready to inject me with psychoactive drugs to ensure my compliance!

I'm stunned, I'm really stunned at how hard this neurosurgeon's office has worked to get me in their office.  It's not a good look - kind of like when you are dating, and the guy is desperate to get laid.  It is very unattractive, and generally drives away prospects.

There may be a liability issue here - but - here's the thing.  I have never received such a letter or admonition from not calling a specialist ever before.  Why now?

 

My back turnaround is starting to feel miraculous.  I'm not opposed to doctors - but I'm more and more shy of trusting everything I'm told.  And the right doctors - like my osteopath, and now this guy - can be amazing!  I reckon I'm going to ask him if there's anything we can do about the knee (as I think that's causing the hip/pelvic/sacroiliac problem).

I hope you see the sun today.  I had a cloud walk today, with a sigh of rain.  I can now do my tai chi, and will start tai chi classes next week.

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apace41

JC,

 

Great news that you are getting the back in order without a surgical intervention or anything more invasive.

 

10 hours ago, JanCarol said:

It's not a good look - kind of like when you are dating, and the guy is desperate to get laid.  It is very unattractive, and generally drives away prospects.

 

Interesting analogy -- LOL.  Larry the lounge lizard meet Marcus Welby?  

 

Best,

 

Andy

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JanCarol

Hey Andy!

:lol: Maybe not Marcus Welby - he's too kindly.

 

Leisure Suit Larry meets - Hannibal Lechter?   Josef Mengele?

 

I'm thinking the Doctor in charge of the hospital in Patch Adams - the one who talks about Doctors being right and Gods and all that....character is called "Dean Walcott" - or maybe John Hurt in "The Doctor" before he got his compassion on....

 

 

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JanCarol

In looking for inversion tables - I found this.

 

It's supposed to be like a chiro treatment (without the chiro.  I don't like bone crunching)

 

I'm guessing that my yoga does some of this - but - this is a smaller footprint than an inversion table:

POSTURE PUMP, from:  https://posturepump.com/posture-pump-products/neck-pain/deluxe-full-spine-posture-pumpr-model-4100.html 
model_4100-s_1200_x_630.jpg

 

There are air pockets that inflate to extend the spine - especially the lumbar and the neck (my neck isn't the best from all the computer use, it's recommended for computer users which is - all of us!) in order to oxygenate the discs.  Comes highly recommended. 

About the same price as an inversion table...I haven't found any inversion chairs here in the land downunder yet.  I don't know if the "posture pump" is available here, either (it's probably not), so I may just be dreaming.

But I'm learning!

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apace41

JC,

 

I had a unit that was just the neck/lumbar portion of that.  It worked pretty well.  Kind of functioned more as a traction device.

 

I think it might help but it's slightly different than inverting.

 

See if you can get one with a 30 day return policy and then if it doesn't work you are covered.

 

Best,

 

Andy

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JanCarol

Yeah - I'd be looking in the used market.  I have a thing about "new" - it's like asking them to fire up a bunch of manufacturing, carbon footprint, petroleum use, and plastics for a fresh manufacture, when there are always a bunch of used, discarded things laying around.  (this negates return policies, though).

 

I do a bit of traction with my yoga, using straps and blocks and support.

 

Okay - the news.  On the intermittent fasting, the action we decided to add for February was a 30 minute walk at the end of the fasting period and just before breaking the fast.  I'm seeing great results, and hubby has gotten an "all clear" from the cardio - so - dodged a drug there!  I've lost a bit of weight - but the amazing thing is how my appetite is changing.  More water, I love just plain water now.  Fewer carbs, I'm seeing less in the way of sugar spikes and carb binges.  (LOL a binge for me is a piece of toast).

 

In other news, I bought a juicer (used, of course).  It's a basic juicer, not one of those fancy $$$$ kind.  After all, I want to try it before I invest my life savings in one.  It's been good!  I've gotten hubby to enjoy an orange, lime, kale and ginger juice.  My favourites are beet apple ginger, and carrot orange ginger.  I'm only doing a bit of greens or cabbage (reminder to thyroid people:  steam kale, cabbage, cruciferous veggies before juicing!), because I'm trying to make the juices palatable to hubby.  I've been having about 1/2 litre a day, he's been having just 200 mils a day, and he's doing well not to make faces about it.

 

The pain is - manageable.  I can fall off so easily!  My last visit to the Muscuoloskeletal MD, he injected my back, shifted my exercises, and decided that my knee is the source of all my troubles, and so he did a full prolotherapy on that.  OMG.  It knocked my knee out of commission!  For the first 24 hours, I wanted crutches!  I had a cane, but it wasn't really enough.  After 48 hours, I could walk again.  I have been taking it easy because of my back, so I haven't really tested my knee with anything like hiking or karate to see if it is improving.  We're still going to Tasmania, so I will give the knee a good test then.  I return to the Pain MD guy after we return from Tasmania.

Because my knee got totally knocked out from under me - it has caused a bit more pain in my back.  I think it maybe (given my sensitivity) would have been a good idea to get the back in better shape before doing the prolotherapy on my knee.  But as usual, the doc seemed so confident.  I should've listened to my intuition!  My average between pain drugs is about 36 hours (yeah, that went to heck and back), which is too close.  I had a painful day today, but a good day - managed to deal with it using non-drug techniques.  (There's a little log of it here, in my "What's Next" post to Callie:  http://survivingantidepressants.org/topic/15834-callie-venlafaxine-xr-or-effexor-xr-hoping-to-be-well-someday/?do=findComment&comment=333319 ) So now it is late at night, and after 2 tai chi sessions, walking, meditating, mag bath, castor oil packs, and dinner - I'm okay!

 

More news:  I got my HeartMath EmWave2.  

th?id=OIP.TXOpw8gbf7uB9IXZoKATmgHaF7&pid

 

I got a used one, for a song.  Someone I know got the new "InnerBalance" one, and was happy to sell me her old one.  It has pretty flashing lights on it, the lower blue one is for heart rate, the upper green one is for "coherence" - it's red for "fight or flight," blue for calming, and green for "coherent" (brain and heart in coherence).  The big button is also a sensor, I can use my thumb on it, and it will sense my biofeedback info from that, or I can use an ear clip.

The blue slider lights in the middle can either pace my breathing (up for inhale, down for exhale) or I can go to advanced mode for "Heart Rate Variability" (exciting!  Yes!).  On my first meditation session today, as soon as I dropped into my body for my body scan, the light went green, and the HRV went to the highest score.  Huzzah!  (however when I synced it to my computer, it didn't give me as high a score as the handheld device did - so I'm still confused and there is a learning curve here).

This is great feedback, and I'm hoping to get hubby to take it up, to manage his heart and blood pressure, too.

NOTE:  I think I can have my PVC's while in the "green zone," there were some moments in meditation when the heart beat got funny (I can now feel bigeminy - 2 beats on lower heart for 1 beat in upper heart) but it still registered as good on the HeartMath device.

 

Here's to resonance and coherence!

 

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JanCarol

Oh yes, one other bit of news.  My orthomolecular doctor just took a 6 month leave with no notice.  She called to tell me the clinic was closed (left a message, I was asleep), and that she would be reopening her practice somewhere in the Brisbane area in the next 12 months...

 

I called my compounding pharmacist to see if any other doctors would help me with my thyroid.  He suggested that my MD/osteopath might help, and he would help with my labs if need be.  My osteopath doesn't really like doing management things right now, as he's caring for a sick relative, and only works one week a month - that's fine for getting adjustments - but - harsher if I have a thyroid problem and need counselling.

 

I'm not angry enough to leave the orthomolecular doctor a scathing review on ratemd's.com but - I'm a little lost.  I do have about 6 months to figure out what's next. At least my thyroid - while not optimal (my hair is still falling out, my nails are now cracked and broken below the cuticle, and my collagen / joint issue has caused me about 6 months of severe pain in 2017).

 

Overall, I reckon her prescribing of the phenibut was a brilliant move - the side effects have been much more subtle than the metaprolol, and gave me time to get other things in order - hawthorn/motherwort/magnesium taurate, as well as meditation and other supportive practices.  I'll start tapering the phenibut in a few months time.

 

But - loss of a rare practitioner - and with no notice!  For me, a professional thing to do would've been to send notice on January 1, that the clinic would be closing in 45 days, to give her patients time to get their ducks in a row if they needed it.  Not call the day after the clinic closed.

 

It's my hope that she's taking the 6 months to go abroad and widen and/or deepen her training.  I live in hope.  It's also my hope that maybe she will be closer to town so that - some of my Brissy friends can take advantage of her expertise!  I do know a naturopath on the other side of town who might be able to recommend someone...

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JanCarol

LOL Andy!  I checked into this - Pacific Time is like - the middle of the night for me.  It's great - but - as always these seminars are at the wrong time for Australia.  We're on our own little planet down here.

 

There are always cool seminars - there's a Shades of Awakening Valentine's Day group phone call I'd love to be in on - and MIA holds webinars, and Sounds True has them too - but always at the wrong time for Australians. I'm still off my rocker enough to not commit to a seminar in the middle of the night.  I might be awake!  But I might be out of commission.  If I were 20 years younger?  I'd be on it.  But if I were 20 years younger I wouldn't be so interested in the HeartMath which might save my life!

 

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