Jump to content

DMV64: reinstate Saphris?


DMV64

Recommended Posts

  • Moderator Emeritus

Hey D!

 

If the Saphris is your demon, so be it!  I know you came here wanting off of that one.

 

I acknowledge that it will be hard to hold the Geodon at 81% of 20 mg = 16.2 mg (please use 16.2 mg in your signature, it's easier for mods to follow, and it's shorter!) while you are tapering Saphris.  Just the physical act of making a liquid and weighing the crumbs of Saphris will be a lot of "science lab stuff" in your day!  I was hoping that you could get the Geodon to a dry cut amount (like 50% of your 20 mg or even 75%) before getting to the Saphris - but - it is what it is.

If you get tired of making up your liquid, let us know and we'll look at options.  75% is not so far away - you could make it up with 1x10 mg Geodon + 1/2 of a 10 mg Geodon and that would be pretty accurate.

Remember to Keep notes on paper so that you know how this is going for you.  It's vitally important that you keep yourself safe during this process, and don't let the symptoms stack up!

Thanks for keeping us posted - and I hope you see the sun today!
 

"Easy, easy - just go easy and you'll finish." - Hawaiian Kapuna

 

Holding is hard work, holding is a blessing. Give your brain time to heal before you try again.

 

My suggestions are not medical advice, you are in charge of your own medical choices.

 

A lifetime of being prescribed antidepressants that caused problems (30 years in total). At age 35 flipped to "bipolar," but was not diagnosed for 5 years. Started my journey in Midwest United States. Crossed the Pacific for love and hope; currently living in Australia.   CT Seroquel 25 mg some time in 2013.   Tapered Reboxetine 4 mg Oct 2013 to Sept 2014 = GONE (3 years on Reboxetine).     Tapered Lithium 900 to 475 MG (alternating with the SNRI) Jan 2014 - Nov 2014, tapered Lithium 475 mg Jan 2015 -  Feb 2016 = GONE (10 years  on Lithium).  Many mistakes in dry cutting dosages were made.


The tedious thread (my intro):  JanCarol ☼ Reboxetine first, then Lithium

The happy thread (my success story):  JanCarol - Undiagnosed  Off all bipolar drugs

My own blog:  https://shamanexplorations.com/shamans-blog/

 

 

I have been psych drug FREE since 1 Feb 2016!

Link to comment
2 hours ago, JanCarol said:

16.2 mg

Hi JanCarol!

I am going to change my signature, I have a math friend who is doing all the mathy stuff for me. I also have those spreadsheets. It is kind of a lot to do the lab work for two things but I feel pretty committed. It makes it easier that I am holding steady on Geoden so there's not calculating involved right now. Thanks for the keeping notes reminder, it has been slipping my mind lately, as have many things. Brain fog is real. Somedays I cannot remember if I have taken my fish oil or not. Among other things.

-D

2001- Klonopin 0.125 mg.  2011- increase to 1 mg.  2018- increase to 1.5 mg. Taper 2023-2024. Taper complete!

2010- Trials of SSRI's, several.

2011- Saphris 5 mg. CT. 6/2017- retry Saphris 5 mg sublingual, begin taper August 2020 10% taper with scale, and final taper liquid sublingual, August 2019- taper complete!

2011- Geodon 20 mg. Begin taper Sept 2019. 10% liquid taper. 2020: December-5 mg. 2021: Jan-4.5mg. (held Feb.for vacation). March-4mg. Apr-3.6mg. May-3.2mg. June-2.8mg. (Held July for vacation). Aug-2.4mg. Sept.- 2.2mg. Oct. 2mg. Dec 2022 - Taper complete!

2011- Gabapentin 300 mg to present- 2020. Increase 2023 to 400mg.

2014- Vyvanse 20 mg, 2020- Vyvanse 5 mg. Increase August 2022 20mg. CT (unavailable) 4/2023

2016- Lithium 300 mg, June 2016 - FT.

2017- Cogentin 0.5 mg. June-August 2019- off Cogentin.

2018- Lamictal 300mg. Holding

2021 - Hydroxyzine 30mg. Holding.

2014 Omeprazole 20 mg and holding, Omega 3's/fish oil, Magnesium

 

Link to comment

I would like to try the Geoden dry dose but it is a capsule. I wonder if they make a tablet form?

2001- Klonopin 0.125 mg.  2011- increase to 1 mg.  2018- increase to 1.5 mg. Taper 2023-2024. Taper complete!

2010- Trials of SSRI's, several.

2011- Saphris 5 mg. CT. 6/2017- retry Saphris 5 mg sublingual, begin taper August 2020 10% taper with scale, and final taper liquid sublingual, August 2019- taper complete!

2011- Geodon 20 mg. Begin taper Sept 2019. 10% liquid taper. 2020: December-5 mg. 2021: Jan-4.5mg. (held Feb.for vacation). March-4mg. Apr-3.6mg. May-3.2mg. June-2.8mg. (Held July for vacation). Aug-2.4mg. Sept.- 2.2mg. Oct. 2mg. Dec 2022 - Taper complete!

2011- Gabapentin 300 mg to present- 2020. Increase 2023 to 400mg.

2014- Vyvanse 20 mg, 2020- Vyvanse 5 mg. Increase August 2022 20mg. CT (unavailable) 4/2023

2016- Lithium 300 mg, June 2016 - FT.

2017- Cogentin 0.5 mg. June-August 2019- off Cogentin.

2018- Lamictal 300mg. Holding

2021 - Hydroxyzine 30mg. Holding.

2014 Omeprazole 20 mg and holding, Omega 3's/fish oil, Magnesium

 

Link to comment

Ugh. Horrible shaky crying morning. Then night comes and I am a typical person and all is well.

2001- Klonopin 0.125 mg.  2011- increase to 1 mg.  2018- increase to 1.5 mg. Taper 2023-2024. Taper complete!

2010- Trials of SSRI's, several.

2011- Saphris 5 mg. CT. 6/2017- retry Saphris 5 mg sublingual, begin taper August 2020 10% taper with scale, and final taper liquid sublingual, August 2019- taper complete!

2011- Geodon 20 mg. Begin taper Sept 2019. 10% liquid taper. 2020: December-5 mg. 2021: Jan-4.5mg. (held Feb.for vacation). March-4mg. Apr-3.6mg. May-3.2mg. June-2.8mg. (Held July for vacation). Aug-2.4mg. Sept.- 2.2mg. Oct. 2mg. Dec 2022 - Taper complete!

2011- Gabapentin 300 mg to present- 2020. Increase 2023 to 400mg.

2014- Vyvanse 20 mg, 2020- Vyvanse 5 mg. Increase August 2022 20mg. CT (unavailable) 4/2023

2016- Lithium 300 mg, June 2016 - FT.

2017- Cogentin 0.5 mg. June-August 2019- off Cogentin.

2018- Lamictal 300mg. Holding

2021 - Hydroxyzine 30mg. Holding.

2014 Omeprazole 20 mg and holding, Omega 3's/fish oil, Magnesium

 

Link to comment

Yesterday was a beautiful window. Today so far seems ok!

2001- Klonopin 0.125 mg.  2011- increase to 1 mg.  2018- increase to 1.5 mg. Taper 2023-2024. Taper complete!

2010- Trials of SSRI's, several.

2011- Saphris 5 mg. CT. 6/2017- retry Saphris 5 mg sublingual, begin taper August 2020 10% taper with scale, and final taper liquid sublingual, August 2019- taper complete!

2011- Geodon 20 mg. Begin taper Sept 2019. 10% liquid taper. 2020: December-5 mg. 2021: Jan-4.5mg. (held Feb.for vacation). March-4mg. Apr-3.6mg. May-3.2mg. June-2.8mg. (Held July for vacation). Aug-2.4mg. Sept.- 2.2mg. Oct. 2mg. Dec 2022 - Taper complete!

2011- Gabapentin 300 mg to present- 2020. Increase 2023 to 400mg.

2014- Vyvanse 20 mg, 2020- Vyvanse 5 mg. Increase August 2022 20mg. CT (unavailable) 4/2023

2016- Lithium 300 mg, June 2016 - FT.

2017- Cogentin 0.5 mg. June-August 2019- off Cogentin.

2018- Lamictal 300mg. Holding

2021 - Hydroxyzine 30mg. Holding.

2014 Omeprazole 20 mg and holding, Omega 3's/fish oil, Magnesium

 

Link to comment

Hi DMV. Glad you had a good day~ Such a perfect example of windows and waves. That must be encouraging for you.

 

What times do you take the klonopin?

Many SSRI's and SSNRI's over 20 years. Zoloft for 7 years followed by Effexor, Lexapro, Prozac, Cymbalta, Celexa, Pristiq, Valdoxan, Mianserin and more - on and off. No tapering. Cold turkey off Valdoxan - end of May 2014

 

                                                  Psych Drug - free since May 2014
.
         

Link to comment

Hello!

I take it at 9 and 11. About there, sometimes due to teaching it is a little later or earlier. 

The windows are sooooo encouraging! It helps me keep going, feeling like I CAN I CAN!

2001- Klonopin 0.125 mg.  2011- increase to 1 mg.  2018- increase to 1.5 mg. Taper 2023-2024. Taper complete!

2010- Trials of SSRI's, several.

2011- Saphris 5 mg. CT. 6/2017- retry Saphris 5 mg sublingual, begin taper August 2020 10% taper with scale, and final taper liquid sublingual, August 2019- taper complete!

2011- Geodon 20 mg. Begin taper Sept 2019. 10% liquid taper. 2020: December-5 mg. 2021: Jan-4.5mg. (held Feb.for vacation). March-4mg. Apr-3.6mg. May-3.2mg. June-2.8mg. (Held July for vacation). Aug-2.4mg. Sept.- 2.2mg. Oct. 2mg. Dec 2022 - Taper complete!

2011- Gabapentin 300 mg to present- 2020. Increase 2023 to 400mg.

2014- Vyvanse 20 mg, 2020- Vyvanse 5 mg. Increase August 2022 20mg. CT (unavailable) 4/2023

2016- Lithium 300 mg, June 2016 - FT.

2017- Cogentin 0.5 mg. June-August 2019- off Cogentin.

2018- Lamictal 300mg. Holding

2021 - Hydroxyzine 30mg. Holding.

2014 Omeprazole 20 mg and holding, Omega 3's/fish oil, Magnesium

 

Link to comment

You mean 9 am and 11 pm ?

 

Yes ~ windows are great ~  they are life and hope ! 

Many SSRI's and SSNRI's over 20 years. Zoloft for 7 years followed by Effexor, Lexapro, Prozac, Cymbalta, Celexa, Pristiq, Valdoxan, Mianserin and more - on and off. No tapering. Cold turkey off Valdoxan - end of May 2014

 

                                                  Psych Drug - free since May 2014
.
         

Link to comment

I found this video on Facebook on GROUNDING from Uplifted Life but I can't figure out how to place it here! It was so interesting!

2001- Klonopin 0.125 mg.  2011- increase to 1 mg.  2018- increase to 1.5 mg. Taper 2023-2024. Taper complete!

2010- Trials of SSRI's, several.

2011- Saphris 5 mg. CT. 6/2017- retry Saphris 5 mg sublingual, begin taper August 2020 10% taper with scale, and final taper liquid sublingual, August 2019- taper complete!

2011- Geodon 20 mg. Begin taper Sept 2019. 10% liquid taper. 2020: December-5 mg. 2021: Jan-4.5mg. (held Feb.for vacation). March-4mg. Apr-3.6mg. May-3.2mg. June-2.8mg. (Held July for vacation). Aug-2.4mg. Sept.- 2.2mg. Oct. 2mg. Dec 2022 - Taper complete!

2011- Gabapentin 300 mg to present- 2020. Increase 2023 to 400mg.

2014- Vyvanse 20 mg, 2020- Vyvanse 5 mg. Increase August 2022 20mg. CT (unavailable) 4/2023

2016- Lithium 300 mg, June 2016 - FT.

2017- Cogentin 0.5 mg. June-August 2019- off Cogentin.

2018- Lamictal 300mg. Holding

2021 - Hydroxyzine 30mg. Holding.

2014 Omeprazole 20 mg and holding, Omega 3's/fish oil, Magnesium

 

Link to comment

Walked around barefoot on vacation in Florida. It was really nice. Also reading "Radical Acceptance" by Tata Brach and finding it very helpful on this path. Yesterday was a little hard because I was so tired. Yoga helped. Today is starting out better. Being around my mom can be a little triggering because she is so critical and has a way of belittling things that are important to me like TAPERING. So just trying to let critical words roll right off me. 

2001- Klonopin 0.125 mg.  2011- increase to 1 mg.  2018- increase to 1.5 mg. Taper 2023-2024. Taper complete!

2010- Trials of SSRI's, several.

2011- Saphris 5 mg. CT. 6/2017- retry Saphris 5 mg sublingual, begin taper August 2020 10% taper with scale, and final taper liquid sublingual, August 2019- taper complete!

2011- Geodon 20 mg. Begin taper Sept 2019. 10% liquid taper. 2020: December-5 mg. 2021: Jan-4.5mg. (held Feb.for vacation). March-4mg. Apr-3.6mg. May-3.2mg. June-2.8mg. (Held July for vacation). Aug-2.4mg. Sept.- 2.2mg. Oct. 2mg. Dec 2022 - Taper complete!

2011- Gabapentin 300 mg to present- 2020. Increase 2023 to 400mg.

2014- Vyvanse 20 mg, 2020- Vyvanse 5 mg. Increase August 2022 20mg. CT (unavailable) 4/2023

2016- Lithium 300 mg, June 2016 - FT.

2017- Cogentin 0.5 mg. June-August 2019- off Cogentin.

2018- Lamictal 300mg. Holding

2021 - Hydroxyzine 30mg. Holding.

2014 Omeprazole 20 mg and holding, Omega 3's/fish oil, Magnesium

 

Link to comment

Well how interesting I was practically symptom free on vacation. I notice in getting back simple triggers...like a post it note stuck on a board. How about that? And bigger ones like responsibilities pending. I wonder about further simplifying my life, if it is possible, if it would help. I did also sign up for a knitting class to get both sides of the brain engaged.

2001- Klonopin 0.125 mg.  2011- increase to 1 mg.  2018- increase to 1.5 mg. Taper 2023-2024. Taper complete!

2010- Trials of SSRI's, several.

2011- Saphris 5 mg. CT. 6/2017- retry Saphris 5 mg sublingual, begin taper August 2020 10% taper with scale, and final taper liquid sublingual, August 2019- taper complete!

2011- Geodon 20 mg. Begin taper Sept 2019. 10% liquid taper. 2020: December-5 mg. 2021: Jan-4.5mg. (held Feb.for vacation). March-4mg. Apr-3.6mg. May-3.2mg. June-2.8mg. (Held July for vacation). Aug-2.4mg. Sept.- 2.2mg. Oct. 2mg. Dec 2022 - Taper complete!

2011- Gabapentin 300 mg to present- 2020. Increase 2023 to 400mg.

2014- Vyvanse 20 mg, 2020- Vyvanse 5 mg. Increase August 2022 20mg. CT (unavailable) 4/2023

2016- Lithium 300 mg, June 2016 - FT.

2017- Cogentin 0.5 mg. June-August 2019- off Cogentin.

2018- Lamictal 300mg. Holding

2021 - Hydroxyzine 30mg. Holding.

2014 Omeprazole 20 mg and holding, Omega 3's/fish oil, Magnesium

 

Link to comment
  • Moderator Emeritus

Hey D - thinking of you - 

 

On 22/12/2017 at 8:28 PM, DMV64 said:

I found this video on Facebook on GROUNDING from Uplifted Life but I can't figure out how to place it here! It was so interesting!

 

Oh YES PLEASE we love this kind of stuff.

 

I'm less good about Facebook, but on YouTube, if you click the "SHARE" button, you get a link, all you have to do is paste that link here and voila!  you get an embedded video.  The new software is so much easier for this!  (I can't begin to tell you how I did it on the old software!).  I don't know how it works on Vimeo.

Here's one from the "Uplifted Life" channel (I couldn't find the GROUNDING one)
 

 

I'm glad to hear you are having windows!  This gives me great hope!


So you have dropped your first 10% of Saphris, how is that going?  How is the mechanical stuff of weighing your Geodon and dry-cutting Saphris going?  Do you make it up a week at a time in gel-caps?  (you can buy these cheap, and do all your weighing on a slow day - say a Sunday, and then not think about it for a week)  Or are you doing your lab work every day?

 

I was just reading about another drug - not one you are on - which prolongs QT interval in the heart, and I just checked Saphris and Geodon.  Yes, both of these drugs are implicated in prolonging QT interval.  This is a heart thing which can be quite serious, and while it is rare on one drug, it is more common on two.  

 

Yep:  

 

Quote

Interactions between your selected drugs

Major

ziprasidone  asenapine

Applies to: Geodon (ziprasidone), Saphris (asenapine)

Using ziprasidone together with asenapine is not recommended. Combining these medications can increase the risk of an irregular heart rhythm that may be serious and potentially life-threatening, although it is a relatively rare side effect. You may be more susceptible if you have a heart condition called congenital long QT syndrome, other cardiac diseases, conduction abnormalities, or electrolyte disturbances (for example, magnesium or potassium loss due to severe or prolonged diarrhea or vomiting). Talk to your doctor if you have any questions or concerns. Your doctor may be able to prescribe alternatives that do not interact. You should seek immediate medical attention if you develop sudden dizziness, lightheadedness, fainting, shortness of breath, or heart palpitations during treatment with either of these medications. It is important to tell your doctor about all other medications you use, including vitamins and herbs. Do not stop using any medications without first talking to your doctor.

 

Stay the course!  Slow and steady wins the race!

It is CRIMINAL that these were prescribed for you off-label for depression!

This concerns me - have we done a full drug interaction check for you?

Please put all your drugs into the drug interaction checker:   Drugs.com Drug Interaction checker and copy-paste your interaction report here.

 

Many of us have been helped by Tara Brach - it sounds like the beach time you got was very healing, too.  So - knitting AND dancing?  Or is the dance class finished?

 

Ah, the struggle to simplify!  I came here today to write on my own thread about how this is challenging me, too!

 

I hope you see the sun today!
 

"Easy, easy - just go easy and you'll finish." - Hawaiian Kapuna

 

Holding is hard work, holding is a blessing. Give your brain time to heal before you try again.

 

My suggestions are not medical advice, you are in charge of your own medical choices.

 

A lifetime of being prescribed antidepressants that caused problems (30 years in total). At age 35 flipped to "bipolar," but was not diagnosed for 5 years. Started my journey in Midwest United States. Crossed the Pacific for love and hope; currently living in Australia.   CT Seroquel 25 mg some time in 2013.   Tapered Reboxetine 4 mg Oct 2013 to Sept 2014 = GONE (3 years on Reboxetine).     Tapered Lithium 900 to 475 MG (alternating with the SNRI) Jan 2014 - Nov 2014, tapered Lithium 475 mg Jan 2015 -  Feb 2016 = GONE (10 years  on Lithium).  Many mistakes in dry cutting dosages were made.


The tedious thread (my intro):  JanCarol ☼ Reboxetine first, then Lithium

The happy thread (my success story):  JanCarol - Undiagnosed  Off all bipolar drugs

My own blog:  https://shamanexplorations.com/shamans-blog/

 

 

I have been psych drug FREE since 1 Feb 2016!

Link to comment
6 hours ago, JanCarol said:

So you have dropped your first 10% of Saphris, how is that going?

Hey! thanks for visiting! I have dropped and now am on to the second drop. So far it is going well, I am getting really good with the scale, even bought an extra and had it shipped to Florida for my vacation! I have symptoms but they pass and are manageable. The Hope and Help for your Nerves book has been a GODSEND.

I did the drug interaction thing awhile ago-it is on here somewhere pasted in. I know about the heart thing, in fact it may have been you that mentioned it? I have not had anything like that thankfully. Still I cannot wait to be OFF all this junk. 

I am going to look to drop every three weeks if it is going well.

My dance class ended so I signed up for knitting! I am pretty excited about it.

How are you doing? 

xo

-D

2001- Klonopin 0.125 mg.  2011- increase to 1 mg.  2018- increase to 1.5 mg. Taper 2023-2024. Taper complete!

2010- Trials of SSRI's, several.

2011- Saphris 5 mg. CT. 6/2017- retry Saphris 5 mg sublingual, begin taper August 2020 10% taper with scale, and final taper liquid sublingual, August 2019- taper complete!

2011- Geodon 20 mg. Begin taper Sept 2019. 10% liquid taper. 2020: December-5 mg. 2021: Jan-4.5mg. (held Feb.for vacation). March-4mg. Apr-3.6mg. May-3.2mg. June-2.8mg. (Held July for vacation). Aug-2.4mg. Sept.- 2.2mg. Oct. 2mg. Dec 2022 - Taper complete!

2011- Gabapentin 300 mg to present- 2020. Increase 2023 to 400mg.

2014- Vyvanse 20 mg, 2020- Vyvanse 5 mg. Increase August 2022 20mg. CT (unavailable) 4/2023

2016- Lithium 300 mg, June 2016 - FT.

2017- Cogentin 0.5 mg. June-August 2019- off Cogentin.

2018- Lamictal 300mg. Holding

2021 - Hydroxyzine 30mg. Holding.

2014 Omeprazole 20 mg and holding, Omega 3's/fish oil, Magnesium

 

Link to comment
6 hours ago, JanCarol said:

Here's one from the "Uplifted Life" channel (I couldn't find the GROUNDING one)
 

I love this video! Thank you!

2001- Klonopin 0.125 mg.  2011- increase to 1 mg.  2018- increase to 1.5 mg. Taper 2023-2024. Taper complete!

2010- Trials of SSRI's, several.

2011- Saphris 5 mg. CT. 6/2017- retry Saphris 5 mg sublingual, begin taper August 2020 10% taper with scale, and final taper liquid sublingual, August 2019- taper complete!

2011- Geodon 20 mg. Begin taper Sept 2019. 10% liquid taper. 2020: December-5 mg. 2021: Jan-4.5mg. (held Feb.for vacation). March-4mg. Apr-3.6mg. May-3.2mg. June-2.8mg. (Held July for vacation). Aug-2.4mg. Sept.- 2.2mg. Oct. 2mg. Dec 2022 - Taper complete!

2011- Gabapentin 300 mg to present- 2020. Increase 2023 to 400mg.

2014- Vyvanse 20 mg, 2020- Vyvanse 5 mg. Increase August 2022 20mg. CT (unavailable) 4/2023

2016- Lithium 300 mg, June 2016 - FT.

2017- Cogentin 0.5 mg. June-August 2019- off Cogentin.

2018- Lamictal 300mg. Holding

2021 - Hydroxyzine 30mg. Holding.

2014 Omeprazole 20 mg and holding, Omega 3's/fish oil, Magnesium

 

Link to comment
  • Moderator Emeritus

Hey D!

 

I'm excited about this new year.  Normally, I don't think that much about the flipping of numbers on a calendar, but I've got goals this year, and I'm using the calendar to tie them down.  Knitting would probably be good for my hand strength, but I've never been attracted to needlework, even if I love the results.  I have a friend who was more polydrugged than you - and she runs a knitting group now!

 

Remember, tapers can stack up, so if you do accelerate to 3 weeks, you may want to take a month off every so often just to make sure there aren't any symptoms backed up and waiting for you.  Any time there's stress or challenges is a good time to hold.  Listen carefully to your body, and don't let the symptoms stack up.   I've seen people get into trouble accelerating a taper - the first symptom doesn't  seem like much, the second symptom no big deal, but after 4-6 months, it can become overwhelming.  The fastest way to taper is slowly, so that you don't end up in crisis.

 

I'll say that again, just because it's paradoxical:  the fastest way to taper is slowly.  

 

You're gonna be fine!

"Easy, easy - just go easy and you'll finish." - Hawaiian Kapuna

 

Holding is hard work, holding is a blessing. Give your brain time to heal before you try again.

 

My suggestions are not medical advice, you are in charge of your own medical choices.

 

A lifetime of being prescribed antidepressants that caused problems (30 years in total). At age 35 flipped to "bipolar," but was not diagnosed for 5 years. Started my journey in Midwest United States. Crossed the Pacific for love and hope; currently living in Australia.   CT Seroquel 25 mg some time in 2013.   Tapered Reboxetine 4 mg Oct 2013 to Sept 2014 = GONE (3 years on Reboxetine).     Tapered Lithium 900 to 475 MG (alternating with the SNRI) Jan 2014 - Nov 2014, tapered Lithium 475 mg Jan 2015 -  Feb 2016 = GONE (10 years  on Lithium).  Many mistakes in dry cutting dosages were made.


The tedious thread (my intro):  JanCarol ☼ Reboxetine first, then Lithium

The happy thread (my success story):  JanCarol - Undiagnosed  Off all bipolar drugs

My own blog:  https://shamanexplorations.com/shamans-blog/

 

 

I have been psych drug FREE since 1 Feb 2016!

Link to comment

Just checking in to say I am in a wave. But I have had a really nice string of windows and so I am just trying to remember that right now as the fear comes. It comes just like a wave and I have to float above it, swimming. I cannot give in to any of the thoughts, but at the same time I must accept them all, as Tara Brach says: This, too. 

I also had a really weird dream that I woke up in the middle of. And I had two births in one week, plus an invasive procedure that I did not want to have and honestly I do not feel I needed but the doc pushed it and I feel pulled power by saying she would not write for my hormone prescription if I did not do the procedure. It didn't work anyway because of a variety of factors too much to go into here and I wound up in tears. She then suggested surgery. I left and she called me when I was in the car and backed off her plan, and became willing to go with the plan I had originally presented. But that was after all this had happened. 

Anyway, I think it left a mark.

: (

On another note I sprained my ACL and I guess I am not supposed to run but I am so mistrustful of the medical community that I don't even know if I should believe that or I can run a little bit.

Sigh.

Every day is a new beginning.

2001- Klonopin 0.125 mg.  2011- increase to 1 mg.  2018- increase to 1.5 mg. Taper 2023-2024. Taper complete!

2010- Trials of SSRI's, several.

2011- Saphris 5 mg. CT. 6/2017- retry Saphris 5 mg sublingual, begin taper August 2020 10% taper with scale, and final taper liquid sublingual, August 2019- taper complete!

2011- Geodon 20 mg. Begin taper Sept 2019. 10% liquid taper. 2020: December-5 mg. 2021: Jan-4.5mg. (held Feb.for vacation). March-4mg. Apr-3.6mg. May-3.2mg. June-2.8mg. (Held July for vacation). Aug-2.4mg. Sept.- 2.2mg. Oct. 2mg. Dec 2022 - Taper complete!

2011- Gabapentin 300 mg to present- 2020. Increase 2023 to 400mg.

2014- Vyvanse 20 mg, 2020- Vyvanse 5 mg. Increase August 2022 20mg. CT (unavailable) 4/2023

2016- Lithium 300 mg, June 2016 - FT.

2017- Cogentin 0.5 mg. June-August 2019- off Cogentin.

2018- Lamictal 300mg. Holding

2021 - Hydroxyzine 30mg. Holding.

2014 Omeprazole 20 mg and holding, Omega 3's/fish oil, Magnesium

 

Link to comment

Much much better day today. Funny how it feels like it will never end and then it does. I felt able to handle my life today. Everything felt manageable. Fear was way down. I did spend a little time obsessing about my body but it passed pretty quickly. A good day,

2001- Klonopin 0.125 mg.  2011- increase to 1 mg.  2018- increase to 1.5 mg. Taper 2023-2024. Taper complete!

2010- Trials of SSRI's, several.

2011- Saphris 5 mg. CT. 6/2017- retry Saphris 5 mg sublingual, begin taper August 2020 10% taper with scale, and final taper liquid sublingual, August 2019- taper complete!

2011- Geodon 20 mg. Begin taper Sept 2019. 10% liquid taper. 2020: December-5 mg. 2021: Jan-4.5mg. (held Feb.for vacation). March-4mg. Apr-3.6mg. May-3.2mg. June-2.8mg. (Held July for vacation). Aug-2.4mg. Sept.- 2.2mg. Oct. 2mg. Dec 2022 - Taper complete!

2011- Gabapentin 300 mg to present- 2020. Increase 2023 to 400mg.

2014- Vyvanse 20 mg, 2020- Vyvanse 5 mg. Increase August 2022 20mg. CT (unavailable) 4/2023

2016- Lithium 300 mg, June 2016 - FT.

2017- Cogentin 0.5 mg. June-August 2019- off Cogentin.

2018- Lamictal 300mg. Holding

2021 - Hydroxyzine 30mg. Holding.

2014 Omeprazole 20 mg and holding, Omega 3's/fish oil, Magnesium

 

Link to comment
  • Moderator Emeritus

Hey D - Happy Roman New Year!

 

I'm glad to hear you are having windows!  That's so gooooooood!  Remember this, because if/when the next wave comes, you might think it's the end of the world.  Re-read your thread and remind yourself:  it's not forever, there are windows!!!!


Have you fired up the 2018 Yoga Schedule Yet?  I am agonizing over mine, as my "advanced" ladies requested Saturday afternoon, but everyone else wanted Friday nights.  The Yogini who runs the Studio said, well then, mix it up - sometimes Saturday, sometimes Friday.  

Alrighty then, but it makes setting the schedule harder!

 

On 08/01/2018 at 12:26 AM, DMV64 said:

s an invasive procedure that I did not want to have and honestly I do not feel I needed but the doc pushed it and I feel pulled power by saying she would not write for my hormone prescription if I did not do the procedure. It didn't work anyway because of a variety of factors too much to go into here and I wound up in tears. She then suggested surgery. I left and she called me when I was in the car and backed off her plan, and became willing to go with the plan I had originally presented. But that was after all this had happened. 

Anyway, I think it left a mark.

 

Time for a new doctor, my friend.  Anytime you are bullied by a doctor, you have the right to quit them and find another.

If it was this extreme, then - time for a new doctor.  Really.  Cast your vote that you don't appreciate the bullying by moving to a different provider.  Then, years from now, when you are feeling strong and have the perspective of hindsight - write her a letter and tell her, calmly and clearly, that you left her because of this.

 

On 08/01/2018 at 12:26 AM, DMV64 said:

I sprained my ACL and I guess I am not supposed to run but I am so mistrustful of the medical community that I don't even know if I should believe that or I can run a little bit.


I'm not big on running, anyway.  I think that walking is better.  Just my opinion.

 

But I picked up on this because I have a TORN ACL, and you don't want to go there.  

Sprained - it might be too late to put ice on it.  Every hour after an injury that you don't ice, is another day of recovery.  If you can get the ice on immediately after the injury, you will have the quickest possible recovery time.  I sprained my lateral collateral ligament (on the knee without an ACL) just before Christmas, and iced it right away.  It was still tender a week later, but now (a month later) it's good as it can be (without an ACL).  

After that - it's best to keep it moving.

The esteemed Peter Gotzsche did a thesis on recovery of soft tissue injury.  He concluded that bracing and restricting movement increased healing times.  He believed this so much that when he sprained his ankle, he was hobbling around a conference, and the other doctors were making fun of him - "why aren't you using crutches?"  "why not tape that?" and he knew he was right, even though it was painful to keep hobbling on.

I am fond of KT tape (kinesiology tape). My favourite brand is Rock Tape, but CVS has one that is cheap ($7 a roll) and quite good (pre-cut, comes in colors).  It's a springy tape which supports and doesn't restrict movement.  This is how Australians win Olympic events!
 

 

Plus, you get to listen to an authentic Aussie accent.

 

There are days, with my tendonitis, that I cannot walk without tape.  I'm pleased to have been tape free for about 3 weeks now, I find that it's a nice compromise between Gotzsche's painful hobbling about, and using braces and crutches.  

Anyhow, was just checking in to see how you are going.

I hope you see the sun today (even if you are just walking!)

"Easy, easy - just go easy and you'll finish." - Hawaiian Kapuna

 

Holding is hard work, holding is a blessing. Give your brain time to heal before you try again.

 

My suggestions are not medical advice, you are in charge of your own medical choices.

 

A lifetime of being prescribed antidepressants that caused problems (30 years in total). At age 35 flipped to "bipolar," but was not diagnosed for 5 years. Started my journey in Midwest United States. Crossed the Pacific for love and hope; currently living in Australia.   CT Seroquel 25 mg some time in 2013.   Tapered Reboxetine 4 mg Oct 2013 to Sept 2014 = GONE (3 years on Reboxetine).     Tapered Lithium 900 to 475 MG (alternating with the SNRI) Jan 2014 - Nov 2014, tapered Lithium 475 mg Jan 2015 -  Feb 2016 = GONE (10 years  on Lithium).  Many mistakes in dry cutting dosages were made.


The tedious thread (my intro):  JanCarol ☼ Reboxetine first, then Lithium

The happy thread (my success story):  JanCarol - Undiagnosed  Off all bipolar drugs

My own blog:  https://shamanexplorations.com/shamans-blog/

 

 

I have been psych drug FREE since 1 Feb 2016!

Link to comment
On 1/9/2018 at 11:14 PM, JanCarol said:

Anyhow, was just checking in to see how you are going.

Hey! Thanks for checking in! I appreciate it ALOT! And also agree about that doctor. She belongs to a large "well respected" university group around here and I think I need to get away from that.

I bought a knee brace! Compression. It's funny you mention walking, I have just replaced the running with a walk, although my body still really wants to run, I can tell it would be a bad idea. I just am trying my best to take it easy on the knee, but keep it moving.

Today I feel ok. Having little shards of anxiety but also something new-real feelings of happiness popping up. A kind of clarity, a new window. 

I will remember to read this when I am in the other place.

xoxo

D

2001- Klonopin 0.125 mg.  2011- increase to 1 mg.  2018- increase to 1.5 mg. Taper 2023-2024. Taper complete!

2010- Trials of SSRI's, several.

2011- Saphris 5 mg. CT. 6/2017- retry Saphris 5 mg sublingual, begin taper August 2020 10% taper with scale, and final taper liquid sublingual, August 2019- taper complete!

2011- Geodon 20 mg. Begin taper Sept 2019. 10% liquid taper. 2020: December-5 mg. 2021: Jan-4.5mg. (held Feb.for vacation). March-4mg. Apr-3.6mg. May-3.2mg. June-2.8mg. (Held July for vacation). Aug-2.4mg. Sept.- 2.2mg. Oct. 2mg. Dec 2022 - Taper complete!

2011- Gabapentin 300 mg to present- 2020. Increase 2023 to 400mg.

2014- Vyvanse 20 mg, 2020- Vyvanse 5 mg. Increase August 2022 20mg. CT (unavailable) 4/2023

2016- Lithium 300 mg, June 2016 - FT.

2017- Cogentin 0.5 mg. June-August 2019- off Cogentin.

2018- Lamictal 300mg. Holding

2021 - Hydroxyzine 30mg. Holding.

2014 Omeprazole 20 mg and holding, Omega 3's/fish oil, Magnesium

 

Link to comment
  • Moderator Emeritus

LOL D - 

 

When I have friends here who may have a health problem - cardio, thyroid, arthritis, etc. - they will tell me, "I found this doctor, and it's GREAT!  He's a Professor!"  And this is said with awe.....

 

I grit my teeth, because the Professors are more likely to be right down the line, middle-of-the-road conformist doctors!

 

I've been walking around with a torn ACL for nearly 30 years now.  

 

I gave up on braces, because in order to support my knee, it had to be too tight on the rest of my leg (compression straps, velcro, etc.)  I got the good ones, too, with the steel sides for lateral support.

I've since decided that the stretchy kinesiology tape is superior - not only does it support and give compression, but it lifts the skin just that little bit and improves circulation to the area for healing.

 

Hopefully, you will only need to brace for another month or so, and then you'll be feeling fine.  Bone Broth helps a little with collagen, and it's also awesome for soothing and healing your digestive system, too.

Walking is good.  I thought of you today as I was forest bathing/walking in a beautiful rainforest.  Oh, my (and plenty of little wildlife, too)!  Anyhow, I thought about how awesome walking is, and I meditated on the compulsion to run.  I wonder if it's a way to work out akathisia?  Or maybe it's just that I'm older and tired-er than you, and feel no compulsion to make things harder (like moving faster or pounding the pavement) than they already are for me.  I get no pleasure in that!

I have a friend who has been drugged longer than you (and at times has been drugged as much as you were at your worst)  - who has dyskinesia and akathisia, and she HAS to run, to "work out" all that inner restlessness.   As we get your drug load down, akathisia will be less an issue.   And inner peace will help, too!

 

I hope you see the sun today! 

"Easy, easy - just go easy and you'll finish." - Hawaiian Kapuna

 

Holding is hard work, holding is a blessing. Give your brain time to heal before you try again.

 

My suggestions are not medical advice, you are in charge of your own medical choices.

 

A lifetime of being prescribed antidepressants that caused problems (30 years in total). At age 35 flipped to "bipolar," but was not diagnosed for 5 years. Started my journey in Midwest United States. Crossed the Pacific for love and hope; currently living in Australia.   CT Seroquel 25 mg some time in 2013.   Tapered Reboxetine 4 mg Oct 2013 to Sept 2014 = GONE (3 years on Reboxetine).     Tapered Lithium 900 to 475 MG (alternating with the SNRI) Jan 2014 - Nov 2014, tapered Lithium 475 mg Jan 2015 -  Feb 2016 = GONE (10 years  on Lithium).  Many mistakes in dry cutting dosages were made.


The tedious thread (my intro):  JanCarol ☼ Reboxetine first, then Lithium

The happy thread (my success story):  JanCarol - Undiagnosed  Off all bipolar drugs

My own blog:  https://shamanexplorations.com/shamans-blog/

 

 

I have been psych drug FREE since 1 Feb 2016!

Link to comment
2 hours ago, JanCarol said:

Professors are more likely to be right down the line, middle-of-the-road conformist doctors!

OMG yes. A giant grinding machine. I have had a bit of trouble with my new psych doc since they are hooked into the same system, but so far I am feeling heard. I do feel sometimes they treat me like I am trying to work the system, maybe they get a lot of people abusing drugs doing that. I told them how I felt.

I think the running does help work out the restlessness. The doc said I could bike. Husband has a racing bike with one of those stands you can make stationary so maybe I can do that.

I missed the icing window, so now it's just a matter of time and care and movement.

Everyday is a new opportunity for acceptance.

<3

2001- Klonopin 0.125 mg.  2011- increase to 1 mg.  2018- increase to 1.5 mg. Taper 2023-2024. Taper complete!

2010- Trials of SSRI's, several.

2011- Saphris 5 mg. CT. 6/2017- retry Saphris 5 mg sublingual, begin taper August 2020 10% taper with scale, and final taper liquid sublingual, August 2019- taper complete!

2011- Geodon 20 mg. Begin taper Sept 2019. 10% liquid taper. 2020: December-5 mg. 2021: Jan-4.5mg. (held Feb.for vacation). March-4mg. Apr-3.6mg. May-3.2mg. June-2.8mg. (Held July for vacation). Aug-2.4mg. Sept.- 2.2mg. Oct. 2mg. Dec 2022 - Taper complete!

2011- Gabapentin 300 mg to present- 2020. Increase 2023 to 400mg.

2014- Vyvanse 20 mg, 2020- Vyvanse 5 mg. Increase August 2022 20mg. CT (unavailable) 4/2023

2016- Lithium 300 mg, June 2016 - FT.

2017- Cogentin 0.5 mg. June-August 2019- off Cogentin.

2018- Lamictal 300mg. Holding

2021 - Hydroxyzine 30mg. Holding.

2014 Omeprazole 20 mg and holding, Omega 3's/fish oil, Magnesium

 

Link to comment

So a few days of depression. I think part of it situational as we deal out the workings of the yoga studio and just trying to keep it running. But some of it is the taper and I just have to read and remember that even though I might have a hard few days there are always window. Saw my docs today. It was a pretty good visit. We have been discussing Transcranial Magnetic Stimulation. I am interested in any of your ideas. I am open to non pharmacuetical help. I appreciated they treated me with respect and really listened to me. 

But today was a hard day, depression wise. I have to go teach now, hopefully that will pick me up.

2001- Klonopin 0.125 mg.  2011- increase to 1 mg.  2018- increase to 1.5 mg. Taper 2023-2024. Taper complete!

2010- Trials of SSRI's, several.

2011- Saphris 5 mg. CT. 6/2017- retry Saphris 5 mg sublingual, begin taper August 2020 10% taper with scale, and final taper liquid sublingual, August 2019- taper complete!

2011- Geodon 20 mg. Begin taper Sept 2019. 10% liquid taper. 2020: December-5 mg. 2021: Jan-4.5mg. (held Feb.for vacation). March-4mg. Apr-3.6mg. May-3.2mg. June-2.8mg. (Held July for vacation). Aug-2.4mg. Sept.- 2.2mg. Oct. 2mg. Dec 2022 - Taper complete!

2011- Gabapentin 300 mg to present- 2020. Increase 2023 to 400mg.

2014- Vyvanse 20 mg, 2020- Vyvanse 5 mg. Increase August 2022 20mg. CT (unavailable) 4/2023

2016- Lithium 300 mg, June 2016 - FT.

2017- Cogentin 0.5 mg. June-August 2019- off Cogentin.

2018- Lamictal 300mg. Holding

2021 - Hydroxyzine 30mg. Holding.

2014 Omeprazole 20 mg and holding, Omega 3's/fish oil, Magnesium

 

Link to comment
  • Moderator Emeritus

My bro-in-law has been taking TMS for his "ADD" or "PTSD" or whatever he's calling it now.  He's had about 8 sessions, and this disturbed me, so I went looking for information - today!  (just your luck, or the synchronicity is working)

I've closed all those windows, so I will summarize what I've found.

 

Here's what I wrote to my bro-in-law:  

Quote

I’m sorry ****,

 

I can’t recommend this to anyone or get excited about it.  It’s brain-fiddling, and even if your scientists are conscientious, it has the potential to have long lasting damaging effects.  All it takes is a mm this way or that, and you’ve lost a memory, or changed the wrong thing, or induced a seizure.   It’s a softer, kinder ECT, in my view.  Additionally, unlike ECT, which affects are longer lasting – TMS needs be repeated indefinitely in order to maintain results.  It’s a different addiction than a drug one.

http://www.cochrane.org/CD003387/DEPRESSN_transcranial-magnetic-stimulation-tms-for-the-treatment-of-obsessive-compulsive-disorder-ocd 

 

At the bottom of the page, the Cochrane reports the same for depression, anxiety and schizophrenia. “Not enough data.”

 

I just did a search on it, and none of the articles came up with the mood altering problems that some of the people at Surviving Antidepressants have experienced.  Now – they are often in drug withdrawal, which is an acute problem, so it is contraindicated for them – but when such a huge proportion of humanity has been on the drugs, I would be extremely cautious about recommending it.  Most of the articles are by proponents of the equipment/treatment – conflict of interest.

 

I hope you do well with it, but I can’t recommend it to anyone. 

Medical studies are 80% corrupt.  This procedure still very new, and long term results are not available.  I’m all for neurofeedback – training the brain to be better (I’m looking into HeartMath, another way of doing this with the heart’s electrical field), but inducing states via magnetic current still seems too risky for me.


https://www.heartmath.org

 

7 Minute video explaining Heart Math (the tip of the iceberg, there are mountains of science)

 



It is "ECT" lite, and has the possibility to induce seizures.  It, like ECT, interferes with the electrical field of the brain. The field that is produced by TMS is not very precise, and a millimetre of difference in placement can produce a different result.  They use a QEEG to figure out the regions of the brain that are most "unhappy," and use that to guide the magnets.  It all looks very good on paper, charts and graphs - but these charts and graphs are produced by the people who are doing the procedure (conflict of interest).  But this is your brain we are talking about!   There are no long term studies as to mood shifts, etc,, but it does seem to be shorter acting than ECT (because ECT causes brain damage), which means that - you start the series, and like Rogaine, you have to keep using it or your hair falls out again - you go back to your "native state."

 

It also bothers me that the magnets are the type that make my induction stove work.  Using the same technology on your brain that I use to make popcorn.  Hmmm.


So I see it as brain fiddling - and you are not in your native state - you are overdrugged, and fiddling your brain while you are overdrugged is like trying to pee on a forest fire - or - striking it with lightning!  You might get great results - or - it might change the way your drugs work.  It's a crap shoot.

The people I know who have tried it while in withdrawal have run into trouble, as it appears to disrupt the healing process.   We have a discussion about it here:  Transcranial Magnetic Stimulation and here's a good summary on Mad In America:  TMS on MIA

 

We have had people react badly to Neurofeedback - which is a retraining of the brain to produce more "positive waves."  It's something you do, not something that is done to you.  TMS is something that is done to you.  You might also read about people's experience with  home devices, some of which are similar to the TMS:  http://survivingantidepressants.org/topic/4829-alpha-stim-fisher-wallace-sota-biotuner-pons-and-similar-devices/

 

Overall, I see it as your doctor wanting to "do something," and you really don't know your native state.  You won't know your native state until you are a few years off of the drugs.  I know that sounds like forever to hold on, but as we get you down on your doses, the sun will come out again, and you'll have a clearer head for making decisions like these.

Honestly, asking you if you want TMS in your drugged state is not "informed consent," it's asking you to do something desperate when your brain is filled with fog.  It is possible that - if someone were drug naive (as in, the drugs didn't cause the unrelenting depression) it might be a drug-free alternative to consider - but only as a last resort.  It's kind of a paradox - a last resort (but before you've tried drugs).  

Also being "depressed" while on the drugs you are on - is normal and natural.  That's what these drugs do, they depress your functioning so that you don't have "intrusive thoughts."

 

Again, I see your doctors reaching out to do something, when really, this is a time of waiting, slowly tapering.  The emotions you are feeling - are they different from the emotions that drove you to the drugs in the first place?  Your doctors are thinking "relapse," but here at SA we are thinking "withdrawal."  Is It Withdrawal or Relapse? Or Something Else? 

If it were my brain, I wouldn't do it.  If I was on the neuroleptics that you are - I would look to getting off (or at least reducing) them first to ease your depression.  You are tapering, this will take time.

I wonder if you are oversharing to your psychiatrist.  S/he is not your friend, it is his/her job to intervene - so if you present a problem, s/he will look for interventions.  Psychologists are somewhat safer - my psychologist (and my p-doc too) was good about suggesting behaviours, patterns, ways of changing my state from within.  But if your psychologist reports to your psychiatrist - it's possible to overshare there, too.
 

It's fine to overshare here, or among friends.  Just remember - the doctor is not your friend.  The doctor is the person who did this to you.

Edited by JanCarol

"Easy, easy - just go easy and you'll finish." - Hawaiian Kapuna

 

Holding is hard work, holding is a blessing. Give your brain time to heal before you try again.

 

My suggestions are not medical advice, you are in charge of your own medical choices.

 

A lifetime of being prescribed antidepressants that caused problems (30 years in total). At age 35 flipped to "bipolar," but was not diagnosed for 5 years. Started my journey in Midwest United States. Crossed the Pacific for love and hope; currently living in Australia.   CT Seroquel 25 mg some time in 2013.   Tapered Reboxetine 4 mg Oct 2013 to Sept 2014 = GONE (3 years on Reboxetine).     Tapered Lithium 900 to 475 MG (alternating with the SNRI) Jan 2014 - Nov 2014, tapered Lithium 475 mg Jan 2015 -  Feb 2016 = GONE (10 years  on Lithium).  Many mistakes in dry cutting dosages were made.


The tedious thread (my intro):  JanCarol ☼ Reboxetine first, then Lithium

The happy thread (my success story):  JanCarol - Undiagnosed  Off all bipolar drugs

My own blog:  https://shamanexplorations.com/shamans-blog/

 

 

I have been psych drug FREE since 1 Feb 2016!

Link to comment
  • Moderator Emeritus

One of the comments in the Mad In America Thread suggested instead of TMS to go to an Osteopath  instead.

"Easy, easy - just go easy and you'll finish." - Hawaiian Kapuna

 

Holding is hard work, holding is a blessing. Give your brain time to heal before you try again.

 

My suggestions are not medical advice, you are in charge of your own medical choices.

 

A lifetime of being prescribed antidepressants that caused problems (30 years in total). At age 35 flipped to "bipolar," but was not diagnosed for 5 years. Started my journey in Midwest United States. Crossed the Pacific for love and hope; currently living in Australia.   CT Seroquel 25 mg some time in 2013.   Tapered Reboxetine 4 mg Oct 2013 to Sept 2014 = GONE (3 years on Reboxetine).     Tapered Lithium 900 to 475 MG (alternating with the SNRI) Jan 2014 - Nov 2014, tapered Lithium 475 mg Jan 2015 -  Feb 2016 = GONE (10 years  on Lithium).  Many mistakes in dry cutting dosages were made.


The tedious thread (my intro):  JanCarol ☼ Reboxetine first, then Lithium

The happy thread (my success story):  JanCarol - Undiagnosed  Off all bipolar drugs

My own blog:  https://shamanexplorations.com/shamans-blog/

 

 

I have been psych drug FREE since 1 Feb 2016!

Link to comment
5 hours ago, JanCarol said:

So I see it as brain fiddling

Thank you so much for all of this information. I haven't clicked through to the links yet but will do! FYI--My doc is not pushing this, my daughter is in school for psychology and mentioned it and I asked him. 

2001- Klonopin 0.125 mg.  2011- increase to 1 mg.  2018- increase to 1.5 mg. Taper 2023-2024. Taper complete!

2010- Trials of SSRI's, several.

2011- Saphris 5 mg. CT. 6/2017- retry Saphris 5 mg sublingual, begin taper August 2020 10% taper with scale, and final taper liquid sublingual, August 2019- taper complete!

2011- Geodon 20 mg. Begin taper Sept 2019. 10% liquid taper. 2020: December-5 mg. 2021: Jan-4.5mg. (held Feb.for vacation). March-4mg. Apr-3.6mg. May-3.2mg. June-2.8mg. (Held July for vacation). Aug-2.4mg. Sept.- 2.2mg. Oct. 2mg. Dec 2022 - Taper complete!

2011- Gabapentin 300 mg to present- 2020. Increase 2023 to 400mg.

2014- Vyvanse 20 mg, 2020- Vyvanse 5 mg. Increase August 2022 20mg. CT (unavailable) 4/2023

2016- Lithium 300 mg, June 2016 - FT.

2017- Cogentin 0.5 mg. June-August 2019- off Cogentin.

2018- Lamictal 300mg. Holding

2021 - Hydroxyzine 30mg. Holding.

2014 Omeprazole 20 mg and holding, Omega 3's/fish oil, Magnesium

 

Link to comment
  • Moderator Emeritus

Well, the studies "look good," just like antidepressant studies, and combination drugs studies - but they are done by people with profit entanglements with the research.  If you read the first Mad In America article, you'll see all kinds of differences between how the studies were presented, and the actual results - and how bad it can be.  If one in a hundred has an experience like the people in the article - it's more harm than good (in my book).

 

Oh dear, daughter in psychology?  Look out! She'll get conditioned to believe all that diagnosis stuff.  Many people have had problems with their families not being able to understand the price these drugs exact.

"Easy, easy - just go easy and you'll finish." - Hawaiian Kapuna

 

Holding is hard work, holding is a blessing. Give your brain time to heal before you try again.

 

My suggestions are not medical advice, you are in charge of your own medical choices.

 

A lifetime of being prescribed antidepressants that caused problems (30 years in total). At age 35 flipped to "bipolar," but was not diagnosed for 5 years. Started my journey in Midwest United States. Crossed the Pacific for love and hope; currently living in Australia.   CT Seroquel 25 mg some time in 2013.   Tapered Reboxetine 4 mg Oct 2013 to Sept 2014 = GONE (3 years on Reboxetine).     Tapered Lithium 900 to 475 MG (alternating with the SNRI) Jan 2014 - Nov 2014, tapered Lithium 475 mg Jan 2015 -  Feb 2016 = GONE (10 years  on Lithium).  Many mistakes in dry cutting dosages were made.


The tedious thread (my intro):  JanCarol ☼ Reboxetine first, then Lithium

The happy thread (my success story):  JanCarol - Undiagnosed  Off all bipolar drugs

My own blog:  https://shamanexplorations.com/shamans-blog/

 

 

I have been psych drug FREE since 1 Feb 2016!

Link to comment
1 hour ago, JanCarol said:

Oh dear, daughter in psychology? 

Yes. It is hard enough to have a 19 year old daughter with the usual battles. I have chosen to hold back on getting into certain conversations because my system just cannot go there right now.

Today is a medium day. Some traces of depression, but I feel like I am doing a pretty good job of floating through. Some real stressors with the studio, will we make, won't we make it, cut teacher, keep teachers...but just trying to take it a moment at a time.

-D

2001- Klonopin 0.125 mg.  2011- increase to 1 mg.  2018- increase to 1.5 mg. Taper 2023-2024. Taper complete!

2010- Trials of SSRI's, several.

2011- Saphris 5 mg. CT. 6/2017- retry Saphris 5 mg sublingual, begin taper August 2020 10% taper with scale, and final taper liquid sublingual, August 2019- taper complete!

2011- Geodon 20 mg. Begin taper Sept 2019. 10% liquid taper. 2020: December-5 mg. 2021: Jan-4.5mg. (held Feb.for vacation). March-4mg. Apr-3.6mg. May-3.2mg. June-2.8mg. (Held July for vacation). Aug-2.4mg. Sept.- 2.2mg. Oct. 2mg. Dec 2022 - Taper complete!

2011- Gabapentin 300 mg to present- 2020. Increase 2023 to 400mg.

2014- Vyvanse 20 mg, 2020- Vyvanse 5 mg. Increase August 2022 20mg. CT (unavailable) 4/2023

2016- Lithium 300 mg, June 2016 - FT.

2017- Cogentin 0.5 mg. June-August 2019- off Cogentin.

2018- Lamictal 300mg. Holding

2021 - Hydroxyzine 30mg. Holding.

2014 Omeprazole 20 mg and holding, Omega 3's/fish oil, Magnesium

 

Link to comment

Loved this Brene Brown

 

2001- Klonopin 0.125 mg.  2011- increase to 1 mg.  2018- increase to 1.5 mg. Taper 2023-2024. Taper complete!

2010- Trials of SSRI's, several.

2011- Saphris 5 mg. CT. 6/2017- retry Saphris 5 mg sublingual, begin taper August 2020 10% taper with scale, and final taper liquid sublingual, August 2019- taper complete!

2011- Geodon 20 mg. Begin taper Sept 2019. 10% liquid taper. 2020: December-5 mg. 2021: Jan-4.5mg. (held Feb.for vacation). March-4mg. Apr-3.6mg. May-3.2mg. June-2.8mg. (Held July for vacation). Aug-2.4mg. Sept.- 2.2mg. Oct. 2mg. Dec 2022 - Taper complete!

2011- Gabapentin 300 mg to present- 2020. Increase 2023 to 400mg.

2014- Vyvanse 20 mg, 2020- Vyvanse 5 mg. Increase August 2022 20mg. CT (unavailable) 4/2023

2016- Lithium 300 mg, June 2016 - FT.

2017- Cogentin 0.5 mg. June-August 2019- off Cogentin.

2018- Lamictal 300mg. Holding

2021 - Hydroxyzine 30mg. Holding.

2014 Omeprazole 20 mg and holding, Omega 3's/fish oil, Magnesium

 

Link to comment

So much going on with starting a new business and wondering if we are going to make it. Plus struggling with various degrees of depression/anxiety etc, for various reasons. I don't know you guys, I am lonely. Maybe I am not meant for suburbia. But I have not got it in me to move right now. I am so much one moment at a time. I know it will not always be so hard as it feels right now. Friends reminded me of this today. But now it feels like forever. Plus, I really really miss son and I don't feel like its normal to miss one's child this much. Maybe I should not judge that. Sigh.

I am weary and I have a long way to go.

2001- Klonopin 0.125 mg.  2011- increase to 1 mg.  2018- increase to 1.5 mg. Taper 2023-2024. Taper complete!

2010- Trials of SSRI's, several.

2011- Saphris 5 mg. CT. 6/2017- retry Saphris 5 mg sublingual, begin taper August 2020 10% taper with scale, and final taper liquid sublingual, August 2019- taper complete!

2011- Geodon 20 mg. Begin taper Sept 2019. 10% liquid taper. 2020: December-5 mg. 2021: Jan-4.5mg. (held Feb.for vacation). March-4mg. Apr-3.6mg. May-3.2mg. June-2.8mg. (Held July for vacation). Aug-2.4mg. Sept.- 2.2mg. Oct. 2mg. Dec 2022 - Taper complete!

2011- Gabapentin 300 mg to present- 2020. Increase 2023 to 400mg.

2014- Vyvanse 20 mg, 2020- Vyvanse 5 mg. Increase August 2022 20mg. CT (unavailable) 4/2023

2016- Lithium 300 mg, June 2016 - FT.

2017- Cogentin 0.5 mg. June-August 2019- off Cogentin.

2018- Lamictal 300mg. Holding

2021 - Hydroxyzine 30mg. Holding.

2014 Omeprazole 20 mg and holding, Omega 3's/fish oil, Magnesium

 

Link to comment

Well, I took a knitting class last night. Sadly I feel slightly traumatized. The teacher was moving fast and my brain was struggling to get it. Probably part withdrawal and part learning differences. Kinda bringing up old feelings of being the last one picked for the team. I felt like everyone was getting it but me. I have never knit before, I thought this would be good for me, both sides of the brain and all. But not if I feel terrible about it. Ugh. We learned to cast on, to knit stitch, purl stitch and then to do something with a marker. By the marker part of the show I could not pay attention anymore. My brain was full. So today I am struggling not to feel stupid and obsess about it. The woman across from me was considerably younger (most were) and she was totally getting it. In fact she had knit a small piece! Trying to stay on my own mat as we say in yoga and not compare. I guess I will try to practice what I can remember this week.

2001- Klonopin 0.125 mg.  2011- increase to 1 mg.  2018- increase to 1.5 mg. Taper 2023-2024. Taper complete!

2010- Trials of SSRI's, several.

2011- Saphris 5 mg. CT. 6/2017- retry Saphris 5 mg sublingual, begin taper August 2020 10% taper with scale, and final taper liquid sublingual, August 2019- taper complete!

2011- Geodon 20 mg. Begin taper Sept 2019. 10% liquid taper. 2020: December-5 mg. 2021: Jan-4.5mg. (held Feb.for vacation). March-4mg. Apr-3.6mg. May-3.2mg. June-2.8mg. (Held July for vacation). Aug-2.4mg. Sept.- 2.2mg. Oct. 2mg. Dec 2022 - Taper complete!

2011- Gabapentin 300 mg to present- 2020. Increase 2023 to 400mg.

2014- Vyvanse 20 mg, 2020- Vyvanse 5 mg. Increase August 2022 20mg. CT (unavailable) 4/2023

2016- Lithium 300 mg, June 2016 - FT.

2017- Cogentin 0.5 mg. June-August 2019- off Cogentin.

2018- Lamictal 300mg. Holding

2021 - Hydroxyzine 30mg. Holding.

2014 Omeprazole 20 mg and holding, Omega 3's/fish oil, Magnesium

 

Link to comment

Feeling ok. Some insomnia. Hope it goes away. But real moments of ok-ness. Recovery is possible!

2001- Klonopin 0.125 mg.  2011- increase to 1 mg.  2018- increase to 1.5 mg. Taper 2023-2024. Taper complete!

2010- Trials of SSRI's, several.

2011- Saphris 5 mg. CT. 6/2017- retry Saphris 5 mg sublingual, begin taper August 2020 10% taper with scale, and final taper liquid sublingual, August 2019- taper complete!

2011- Geodon 20 mg. Begin taper Sept 2019. 10% liquid taper. 2020: December-5 mg. 2021: Jan-4.5mg. (held Feb.for vacation). March-4mg. Apr-3.6mg. May-3.2mg. June-2.8mg. (Held July for vacation). Aug-2.4mg. Sept.- 2.2mg. Oct. 2mg. Dec 2022 - Taper complete!

2011- Gabapentin 300 mg to present- 2020. Increase 2023 to 400mg.

2014- Vyvanse 20 mg, 2020- Vyvanse 5 mg. Increase August 2022 20mg. CT (unavailable) 4/2023

2016- Lithium 300 mg, June 2016 - FT.

2017- Cogentin 0.5 mg. June-August 2019- off Cogentin.

2018- Lamictal 300mg. Holding

2021 - Hydroxyzine 30mg. Holding.

2014 Omeprazole 20 mg and holding, Omega 3's/fish oil, Magnesium

 

Link to comment

Been a rough few days. Lots of DR and general deep anxiety after last drop. Usually just lasts a few days. Hoping it lessens soon. Meanwhile I am knitting!

2001- Klonopin 0.125 mg.  2011- increase to 1 mg.  2018- increase to 1.5 mg. Taper 2023-2024. Taper complete!

2010- Trials of SSRI's, several.

2011- Saphris 5 mg. CT. 6/2017- retry Saphris 5 mg sublingual, begin taper August 2020 10% taper with scale, and final taper liquid sublingual, August 2019- taper complete!

2011- Geodon 20 mg. Begin taper Sept 2019. 10% liquid taper. 2020: December-5 mg. 2021: Jan-4.5mg. (held Feb.for vacation). March-4mg. Apr-3.6mg. May-3.2mg. June-2.8mg. (Held July for vacation). Aug-2.4mg. Sept.- 2.2mg. Oct. 2mg. Dec 2022 - Taper complete!

2011- Gabapentin 300 mg to present- 2020. Increase 2023 to 400mg.

2014- Vyvanse 20 mg, 2020- Vyvanse 5 mg. Increase August 2022 20mg. CT (unavailable) 4/2023

2016- Lithium 300 mg, June 2016 - FT.

2017- Cogentin 0.5 mg. June-August 2019- off Cogentin.

2018- Lamictal 300mg. Holding

2021 - Hydroxyzine 30mg. Holding.

2014 Omeprazole 20 mg and holding, Omega 3's/fish oil, Magnesium

 

Link to comment
On 1/3/2018 at 1:04 AM, JanCarol said:

Here's one from the "Uplifted Life" channel (I couldn't find the GROUNDING one)
 

I am thinking of switching the dosage times of my Klonopin and Geoden. The Geoden almost always (when it kicks in) helps with the terror/panic. But I don't take it until midday. I would rather take it in the morning, or at least give it a try and see if it helps morning dread/panic. Thoughts?

2001- Klonopin 0.125 mg.  2011- increase to 1 mg.  2018- increase to 1.5 mg. Taper 2023-2024. Taper complete!

2010- Trials of SSRI's, several.

2011- Saphris 5 mg. CT. 6/2017- retry Saphris 5 mg sublingual, begin taper August 2020 10% taper with scale, and final taper liquid sublingual, August 2019- taper complete!

2011- Geodon 20 mg. Begin taper Sept 2019. 10% liquid taper. 2020: December-5 mg. 2021: Jan-4.5mg. (held Feb.for vacation). March-4mg. Apr-3.6mg. May-3.2mg. June-2.8mg. (Held July for vacation). Aug-2.4mg. Sept.- 2.2mg. Oct. 2mg. Dec 2022 - Taper complete!

2011- Gabapentin 300 mg to present- 2020. Increase 2023 to 400mg.

2014- Vyvanse 20 mg, 2020- Vyvanse 5 mg. Increase August 2022 20mg. CT (unavailable) 4/2023

2016- Lithium 300 mg, June 2016 - FT.

2017- Cogentin 0.5 mg. June-August 2019- off Cogentin.

2018- Lamictal 300mg. Holding

2021 - Hydroxyzine 30mg. Holding.

2014 Omeprazole 20 mg and holding, Omega 3's/fish oil, Magnesium

 

Link to comment
  • Moderator Emeritus

Hey D - 

 

If this moves your morning klonopin further away from the later dose, this is good.

If it moves it closer, you run the risk of interdose dropout.

First, split your klonopin (with a goal of 12 hours apart, moving a few hours at a time), then you can move the geodon where it fits best.  You may find that you don't need to move the Geodon, once your klonopin levels out.

Remember - as few moves as possible, as slowly as feasible.  Nice and gentle.

 

How's the Saphris taper going?  Smoothly?


I hope you see the sun today!

 

"Easy, easy - just go easy and you'll finish." - Hawaiian Kapuna

 

Holding is hard work, holding is a blessing. Give your brain time to heal before you try again.

 

My suggestions are not medical advice, you are in charge of your own medical choices.

 

A lifetime of being prescribed antidepressants that caused problems (30 years in total). At age 35 flipped to "bipolar," but was not diagnosed for 5 years. Started my journey in Midwest United States. Crossed the Pacific for love and hope; currently living in Australia.   CT Seroquel 25 mg some time in 2013.   Tapered Reboxetine 4 mg Oct 2013 to Sept 2014 = GONE (3 years on Reboxetine).     Tapered Lithium 900 to 475 MG (alternating with the SNRI) Jan 2014 - Nov 2014, tapered Lithium 475 mg Jan 2015 -  Feb 2016 = GONE (10 years  on Lithium).  Many mistakes in dry cutting dosages were made.


The tedious thread (my intro):  JanCarol ☼ Reboxetine first, then Lithium

The happy thread (my success story):  JanCarol - Undiagnosed  Off all bipolar drugs

My own blog:  https://shamanexplorations.com/shamans-blog/

 

 

I have been psych drug FREE since 1 Feb 2016!

Link to comment
31 minutes ago, JanCarol said:

Hey D - 

 

If this moves your morning klonopin further away from the later dose, this is good.

If it moves it closer, you run the risk of interdose dropout.

First, split your klonopin (with a goal of 12 hours apart, moving a few hours at a time), then you can move the geodon where it fits best.  You may find that you don't need to move the Geodon, once your klonopin levels out.

Remember - as few moves as possible, as slowly as feasible.  Nice and gentle.

 

How's the Saphris taper going?  Smoothly?


I hope you see the sun today!

 

 I’m dictating from my phone so I hope this comes out OK. I’m just trying to understand the Klonopin move and moving closer or further away. Currently my Clonopin is only a little bit apart. The Geoden  is more powerful or perhaps more sedating and so I thought it would do a better job of handling the morning dread and terror.  The Saphris is going OK. It has its good. And it’s bad periods windows and waves. 

2001- Klonopin 0.125 mg.  2011- increase to 1 mg.  2018- increase to 1.5 mg. Taper 2023-2024. Taper complete!

2010- Trials of SSRI's, several.

2011- Saphris 5 mg. CT. 6/2017- retry Saphris 5 mg sublingual, begin taper August 2020 10% taper with scale, and final taper liquid sublingual, August 2019- taper complete!

2011- Geodon 20 mg. Begin taper Sept 2019. 10% liquid taper. 2020: December-5 mg. 2021: Jan-4.5mg. (held Feb.for vacation). March-4mg. Apr-3.6mg. May-3.2mg. June-2.8mg. (Held July for vacation). Aug-2.4mg. Sept.- 2.2mg. Oct. 2mg. Dec 2022 - Taper complete!

2011- Gabapentin 300 mg to present- 2020. Increase 2023 to 400mg.

2014- Vyvanse 20 mg, 2020- Vyvanse 5 mg. Increase August 2022 20mg. CT (unavailable) 4/2023

2016- Lithium 300 mg, June 2016 - FT.

2017- Cogentin 0.5 mg. June-August 2019- off Cogentin.

2018- Lamictal 300mg. Holding

2021 - Hydroxyzine 30mg. Holding.

2014 Omeprazole 20 mg and holding, Omega 3's/fish oil, Magnesium

 

Link to comment
38 minutes ago, JanCarol said:

Hey D - 

 

If this moves your morning klonopin further away from the later dose, this is good.

If it moves it closer, you run the risk of interdose dropout.

First, split your klonopin (with a goal of 12 hours apart, moving a few hours at a time), then you can move the geodon where it fits best.  You may find that you don't need to move the Geodon, once your klonopin levels out.

Remember - as few moves as possible, as slowly as feasible.  Nice and gentle.

 

How's the Saphris taper going?  Smoothly?


I hope you see the sun today!

 

 I am sorry if I am quoting this whole post because I’m trying to “just a piece of it. Anyway I think I need a more detailed explanation because my brain is only partially working. I never did get the Klonopin very far apart only an hour. And so I take it at nine and 10 o’clock. I was taking the G it in at noon in one does. But I am thinking of moving it to take in the morning and then also at dinner time. How does that sound 

2001- Klonopin 0.125 mg.  2011- increase to 1 mg.  2018- increase to 1.5 mg. Taper 2023-2024. Taper complete!

2010- Trials of SSRI's, several.

2011- Saphris 5 mg. CT. 6/2017- retry Saphris 5 mg sublingual, begin taper August 2020 10% taper with scale, and final taper liquid sublingual, August 2019- taper complete!

2011- Geodon 20 mg. Begin taper Sept 2019. 10% liquid taper. 2020: December-5 mg. 2021: Jan-4.5mg. (held Feb.for vacation). March-4mg. Apr-3.6mg. May-3.2mg. June-2.8mg. (Held July for vacation). Aug-2.4mg. Sept.- 2.2mg. Oct. 2mg. Dec 2022 - Taper complete!

2011- Gabapentin 300 mg to present- 2020. Increase 2023 to 400mg.

2014- Vyvanse 20 mg, 2020- Vyvanse 5 mg. Increase August 2022 20mg. CT (unavailable) 4/2023

2016- Lithium 300 mg, June 2016 - FT.

2017- Cogentin 0.5 mg. June-August 2019- off Cogentin.

2018- Lamictal 300mg. Holding

2021 - Hydroxyzine 30mg. Holding.

2014 Omeprazole 20 mg and holding, Omega 3's/fish oil, Magnesium

 

Link to comment

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
×
×
  • Create New...

Important Information

Terms of Use Privacy Policy