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Spruce30

Request to people with PSSD to speak to pharmacists about PSSD.

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Spruce30

This is a request to all people with PSSD to try and raise awareness about the condition by talking to pharmacists in your local area about PSSD. All you need to do is print off the Rxisk page on PSSD given here, https://rxisk.org/post-ssri-sexual-dysfunction-pssd/

 

Then all you have to do is go into your local pharmacies and ask to speak to the pharmacist in private. Then you give him/ her the article on PSSD, and explain a little bit about the condition (you don't have to say you have the condition yourself), you can just say you are trying to raise awareness as part of the Rxisk campaign etc. If everyone with PSSD spoke to 10 pharmacists about PSSD, it would raise a lot of awareness about the condition. Rxisk is asking people with PSSD to take action themselves and raise awareness by talking to pharmacists (and doctors if you can). Please get on board and be brave, and make the effort to speak toyour local pharmacists about PSSD. I know talking about PSSD is not easy, but we really need to make the effort to get the word out there about it.

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Spruce30

Just a note to say i have myself spoken to about 50 pharmacists about PSSD in the last two months. About 45 of these were sympathetic and understanding, and believed PSSD existed.

 

About 5 responded in a hostile way, or were on the fence about PSSD. It was surprisingly easy to talk to the pharmacists about PSSD once i had done it once or twice.

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potions

Spruce, I 100% agree with this and think everyone should do this. We need to get professionals aware of the fact that these drugs can cause permanent sexual dysfunction. The more people are aware, the more likely a cure will be found for it.

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Spruce30

Too true potions. Are you up for speaking to some pharmacists then potions?

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nz11

Maybe this is a sign that a cure is not on the way and no pssd prize winners!

 

I'm not sure what talking to a pharmacist will do. What is the point of that...sorry if that's a silly question. But they have no voice.

Ive even had a pharmacist whisper ....I'm not supposed to tell you this but....

So even if they know about pssd they are not legally allowed to tell patients.

 

Talk to doctors....forget it!

Some of the most extraordinarily insulting comments have come from that even my new doctor raised his voice to me and thumped the desk..'what evidence, what evidence...

When I asked him if he was aware of pssd and to sign off the complaint form against my ex doctor. He finally signed the form when I pointed out time was almost up... didn't want to argue any more I guess actually he even said I'm not going to argue about this with you....but I hadn't even said anything about it...

I then went home and put together a spiral bound compilation of evidence from the Danish warnings to journal articles warnings from Mind etc and sent them to the doc and to the centre for adverse reaction management The doctor at CARM wrote back and commended me on a well put together piece with tabs to attached journal articles to back up my statements in my letter.....as for my new doctor ...never heard a word back. Just deafening silence. 

Funny I kid you not today my doctors clinic secretary rang me to check to see if I still want to remain on their books as I hadn't had an appointment for over 5 years now. I felt like saying I'm just keeping myself safe. But I didn't I just said I'm still on the books. 

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potions
On 1/15/2018 at 4:21 AM, Spruce30 said:

Too true potions. Are you up for speaking to some pharmacists then potions?

Yes, absolutely. I'm also planning on calling multiple doctors from preferably wealthy areas (such as Boston, Manhattan, etc) to survey them about PSSD, mostly with the intention of informing them about the condition. I really think people need to stop being shy about this.

 

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Spruce30

Potions we need to find a way of mass emailing doctors and pharmacists about PSSD. If we can somehow get access to a data base of pharmacists and doctors emails, and then send the emails to Rxisk, then Rxisk will email them about PSSD. We could raise a huge amount of awareness about PSSD if we were able to do this. There must be a way to do it somehow. If we could inform most of the pharmacists and doctors in the western world, say UK, USA, and Australia, then the rest of the world would hopefully follow suit in knowing about PSSD. It is an ambitious task, but there must be a way to achieve it with the technology we have in this day and age. Please if anyone has any idea how this could be achieved, let me know on here.

 

And yes Nz11 I do think doing this will make a difference, although I understand your frustrations

 

Thanks

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nz11

Are you guys printing out all 11 pages and giving it to pharmacists or just page one in the hope they will read the rest for themselves online?

I'm going to send it anonymously to my doctors clinic and one other.

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Spruce30

Printing out all pages, highlighting the studies and that its been reviewed by Rxisks medical team. Nearly all the pharmacists I have spoken to believed PSSD exists, which is surprising, as most doctors I have spoken to don't believe it exists.

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