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Purplerain

The Guardian would like to hear from long term AD users, let’s get our voices heard!

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Purplerain

Hi all, apologies if this link has already been posted. The Guardian are interested in hearing from people who have been on antidepressants long-term. Please click the link below and submit your experiences.  

 

https://www.theguardian.com/society/2017/may/06/long-term-user-antidepressants-tell-experiences

 

I’m passionate about raising public awareness about this issue now (I’m sure my friends are all sick of hearing me banging on about the evils of medication haha) and this is a great platform to get our voices heard. For those who may not know, the Guardian is a British newspaper. 

 

x L

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nz11

Do you have to be a British citizen to submit a reply?

just had a look at it and it appears anyone can answer the questions. 

Whats the bet pharma will organize a team of fast responders .

I hope they get to hear many stories of the harm that is occurring.

 

 

27mins later.....submission 'done.'

There seems to be an awful lot of this kind of request for user experiences going on yet somehow I feel we are just treading water. Nothing is being done about this harm which is at epidemic levels. Nothing. If you read some of the 'worst of doctors' thread posts doctors still think a CT is okay. That wdl symptoms are relapse even if you never had a lapse. And for some reason every single doctor still assumes the tailoring hypothesis is right and valid.

Some bigwig turns up and trumps everything saying well these drugs have helped millions blah blah blah. Then that's the end of it.

 

Then people raise the same old argument 'Whats the alternative to ads'

I like Gotzsches reply to that ..."No ads" that's the alternative.

 

 

 

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nz11

If anything one could even argue things are going backwards

Anyone read this today

decision to close support service for patients dependent on benzodiazepines

The REST Project, based at MIND in Camden, has been providing essential support services to patients suffering from dependence and withdrawal from benzodiazepines for 30 years.  During this time it has helped thousands of clients safely withdraw from long term use of sedatives, tranquilisers and sleeping pills, through specialised group meetings and personalised support.  Around 130 clients use the service, with around 40 new clients joining each year.  The total cost of the service is £48,425 per annum, or around £372 per client each year.

REST has recently received a letter from the Commissioning Manager for Camden’s Substance Misuse Services (funded by the Camden CCG) which informs the project that its contract will be terminated at the end of March 2019.  It is understood that no alternative specialist provision will be made for these clients, and that they will be expected to access illicit drug and alcohol treatment services which are inappropriate for patients taking prescription drugs. REST’s clients have expressed shock, sadness and incomprehension at the news.

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Purplerain
11 hours ago, nz11 said:

Do you have to be a British citizen to submit a reply?

just had a look at it and it appears anyone can answer the questions. 

Whats the bet pharma will organize a team of fast responders .

I hope they get to hear many stories of the harm that is occurring.

 

 

27mins later.....submission 'done.'

There seems to be an awful lot of this kind of request for user experiences going on yet somehow I feel we are just treading water. Nothing is being done about this harm which is at epidemic levels. Nothing. If you read some of the 'worst of doctors' thread posts doctors still think a CT is okay. That wdl symptoms are relapse even if you never had a lapse. And for some reason every single doctor still assumes the tailoring hypothesis is right and valid.

Some bigwig turns up and trumps everything saying well these drugs have helped millions blah blah blah. Then that's the end of it.

 

Then people raise the same old argument 'Whats the alternative to ads'

I like Gotzsches reply to that ..."No ads" that's the alternative.

 

 

 

 

Oh yay you did it, thank you :) I know, it’s all very disheartening isn’t it. I was told by several Doctors to stay on my med for life as a diabetic wouldn’t question taking insulin. And paid £400 to see a psychiatrist who took me from 300mg Effexor to zero in one month which caused my first and only psychotic episode, I’m very lucky I recovered from that really. My hope is if enough of us can make ourselves heard the ‘professionals’ will have no choice but to start listening. I have to stay optimistic for my sanity xx

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