Jump to content
elizabeth11

Getting help with hormones for mood

Recommended Posts

elizabeth11

I have been struggling with feeling of completely hopelessness. :( This is so unlike me, something that I never have experienced to this point before. We are talking about the bottom of the barrel level of despair.

 

I indirectly sweet talked another dr into ordering a pelvic ultrasound, only to discover today, when I had it done, that the day before I should be having my period my uterus has practically nothing to shed with a 3 mm lining. Heck, I may not even get a period. My ovaries are on hiatus too and tiny. I just turned 40.

 

I've told my pdoc(who is a pnurse) what a hard time I am having and she has now labeled me "severely depressed".

 

I'm thinking that it may be hormonal and that hormones could bring back the post AD person I know and want to be.

 

Has anyone had any luck getting the hormone solution? And how did you handle it? How did you convince them to let you try HRT? What HRT did you use?

 

I pay for the pnurse 100% out of pocket so that the records are always private and mine. I cannot go to my regular dr for help because I use insurance to pay her bill and then my "issues" would be forever public.

 

I really freaked myself out the other day really being concerned about wanting to end it all. I know the real me, with no ADs is waiting to come out.

 

Thanks for listening.

Share this post


Link to post
Share on other sites
Barbarannamated

Elizabeth ~

Without reading your history I will say that this absolutely sounds like a hormonal issue causing your very low mood ~

Your ovaries produce estrogen which is critical for positive mood +++

Can you get to an endocrinologist or good gynecologist to do a complete endocrine/hormone workup ~ to look at a scan is only part of the picture - they can measure hormone levels and supplement accordingly - unlike the mythical neurotransmitter imbalance„this is something that CAN be measured and treated directly - PLEASE don't listen to any garbage about needing antidepressants for a hormone issue that is measureable -

My endocrinologist used FSH as one of the markers of ovarian/estrogen dysfunction - I'm on low dose Vivelle dot patch estrogen -

A few others are more familiar with endocrine testing -

Ovarian insufficiency is NOT the same as menopause

 

It's a good thing that you insisted on the scans and found a probable underlying cause of your mood -

Share this post


Link to post
Share on other sites
elizabeth11

barbara-

 

Thanks so much for your reply. I believe you are the second person who has told me that they are on estrogen supplementation and that it helps. :rolleyes:

 

1. Do you feel better with the vivelle?

 

2. Do you remember what they tested for when you went through the same process? FSH, Estradiol, etc.?? Something else? This info maybe helpful also to a future member of surving antidepressants.

 

THANKS!!!

 

Elizabeth

 

I've discovered that, as I age, I have to do more of the background work on my medical issues to know what to do because each specialist just wants to pop their own pills into the patient.

Share this post


Link to post
Share on other sites
Barbarannamated

barbara-

 

Thanks so much for your reply. I believe you are the second person who has told me that they are on estrogen supplementation and that it helps. :rolleyes:

 

1. Do you feel better with the vivelle?

 

2. Do you remember what they tested for when you went through the same process? FSH, Estradiol, etc.?? Something else? This info maybe helpful also to a future member of surving antidepressants.

 

THANKS!!!

 

Elizabeth

 

I've discovered that, as I age, I have to do more of the background work on my medical issues to know what to do because each specialist just wants to pop their own pills into the patient.

 

Elizabeth,

My endocrinologist did EXTENSIVE testing on HPA axis, reproductive system, CBC, metabolic, special lipid profile, etc. I believe it was the FSH level that showed my particular ovarian failure, but I'm sure there are other tests and values that are all interrelated. It's important to look at the whole picture because supplementing one hormone will throw others off.

A reproductive endocrinologist may be a place to start. I hesitate to suggest specific tests because the endocrine system is so complex. Are you near the U of VA?

 

I can't say that I feel a tremendous difference yet, but I have alot of contributors to my health picture and probably more to be identified - thyroid, ovarian, liver, autoimmune disorders, a gene mutation (MTHFR - not sure how important that is, but seems to be common), etc. I mention those only to say "it's complicated" for EVERYONE.

I'm quite passionate about ruling out medical causes before treating with any psychotropics which are HORMONE/ENDOCRINE DISRUPTORS. Some docs test thyroid function and that's a start, but there are so many places that may be malfunctioning and contribute to depression, 'bipolar', hallucinations, etc.

Off my soapbox!

 

I'll do a bit more research and post any info that may be helpful.

Share this post


Link to post
Share on other sites
Nikki

You came to the right place:)

 

 

Elizabeth in 1999 I had a Total Hysterectomy. At that time just Estrogen (synthetic) was administered in the Recovery Room. After the surgery, I was somewhat depressed.My psych at the time said "why wouldn't you be depressed, your young and there is a grieving process women go thru after a hysterectomy."

 

You may be feeling the same way. This makes you normal not 'severely depressed. In conjunction with not being hormonally balanced.

 

I was on Paxil and Synthetic Estrogen and started to really gain weight. And then, Suzanne Somers wrote her book The Sexy Years, which explored and clarified using Bio-identical hormones.

 

I got off Premarin and onto Bio-identical Estradiol in a small dose. I then added Bio-Identical Pregesterone Cream and Testosterone Cream with a trace amount of DHEA Cream. I no long use DHEA because it very often causes anxiety (the A word). All of this is in one syringe. Creams by pass the liver. There was an immediate difference in how I felt and looked. Estrogen alonr can cause hair loss, progesterone/teststerone brought it back.

 

I have my hormones tested with a blood test. A Saliva test is more accurate. There are kits online for saliva testing. Google Bio-identical Hormones. You can order bio-identicals without an Rx thru some of the companies on line. But you need to know where you are deficient.

 

And yes....they do make a difference.

 

Hugs

Share this post


Link to post
Share on other sites
elizabeth11

How long did it take for your hormone pills, especially estrogen, to kick in? Fast, I hope???

 

Thanks!

Share this post


Link to post
Share on other sites
Barbarannamated

Im suspecting the estrogen patch may be related to the intensified anger/rage I've been experiencing - I never had significant PMS but have witnessed it in others -

Share this post


Link to post
Share on other sites
elizabeth11

thank you to both responders to my post.

 

Where does someone go to find out about bio-identical hormones?

 

Hormones play such a huge role in mood.

 

There is so much info on the web but I don't know who knows what is really the "right" thing to do, which site is for real and which site just wants to sell $$. I live in a big city, so would be happy to buy stuff from a major store instead of online.

 

Thanks again to the responders and everyone on this site who reads this. This site is a lifesaver!!

 

Elizabeth

Share this post


Link to post
Share on other sites
Barbarannamated

You might start with a very reputable nutrition store - we have Clarks in CA -

Not a GNC type (no offense as they might have knowledgeable people) - they may be able to recommend -

Hormones are a BIG business so you're wise to be cautious of that - many are not covered by insurance -

Share this post


Link to post
Share on other sites
Nikki

I may have forgot to mention that the progesterone is a 'calming hormone' and are made by compounding pharmacies. Insurances stopped covering them several years back.

 

Log onto Dr. John Lee's website. He was a pioneer in this field. Died not too long ago.

He wrote books on the subject.

 

Hugs

Share this post


Link to post
Share on other sites
elizabeth11

Is anyone comfortable with sharing estrogen level results which made your mood feel better? I know each body is different

 

I just got my blood test results on the weekend. I'm at the bottom of the reference range, so I don't know what the pnurse will say. I don't know if she'll say forget it, you're IN (even at the bottom) of the reference range. I know the reference range for vitamin d is wide and most mds will supplement if you are at the bottom of this range.

 

I ending up with an extremely low TSH, less than .01, which means I'm hyperthyroid. Geeze.

 

I wish I had an endocrinoligist. Mine left and I thought the pdoc could handle it. Have never had the levels where they should be.

 

Thanks so much!!!

 

-Elizabeth

Share this post


Link to post
Share on other sites
Altostrata

elizabeth, if you're going through menopause, that can indeed complicate withdrawal symptoms. One outcome might be low mood, but it's hard to say what causes it.

 

If your nervous system is hypersensitive, you might have difficulty with progesterone, so go very carefully there.

 

I went through menopause more than 10 years ago. I've had a Menostar mini-estrogen patch for a couple of years for my withdrawal-induced sleep disorder. It did help. It delivers a daily dose of .14mcg estrogen, about half the usual Vivelle patch. Because the dosage is so small, it apparently doesn't need opposition by progesterone. My gyn followed me with uterine ultrasound for 2 years to make sure it wasn't doing anything suspicious, and it wasn't.

 

It's best to use the absolute minimum dosage of any hormone treatment. This will vary from person to person. It's not one-size-fits-all by any means.

 

It also sounds to me like you need a good endocrinologist, one who will take everything into consideration. Don't jump into HRT without looking into a possible thyroid issue.

Share this post


Link to post
Share on other sites
Nikki

Elizabeth to be honest I do't know what my ranges are in terms of hormones. Two physician's told me that on my current HRT I am fine.

 

I have read a few articles on TSH, that if levels are on the low/normal range, they treat.

You said you are hyper....I thought if the numbers were low, it was hypo.

 

I wonder how much a/d's affect the other systems on our bodies.

 

Hugs

Share this post


Link to post
Share on other sites
Barbarannamated

Elizabeth to be honest I do't know what my ranges are in terms of hormones. Two physician's told me that on my current HRT I am fine.

 

I have read a few articles on TSH, that if levels are on the low/normal range, they treat.

You said you are hyper....I thought if the numbers were low, it was hypo.

 

I wonder how much a/d's affect the other systems on our bodies.

 

SS/NRIs have numerous effects throughout the body, only some are known. They are neurohormones so effect the entire endocrine system that regulates every body system.

Low TSH indicates overactive/hyperthyroid. When Thyroid Stimulating Hormone is high, it indicates that the pituitary is working hard to activate the underactive thyroid. TSH alone is not a good indicator of thyroid function although it is the most common value still used. It is also a fluctuating value so to use it to catch thyroid dysfunction is very unreliable.

Share this post


Link to post
Share on other sites
Nikki

Totally agree Alto, after what we have experienced the least amount/smalles dose is the way to go.

Share this post


Link to post
Share on other sites
elizabeth11

Barbara is correct that TSH is not the best value to use for thryoid.

 

But the endocrinologists I've seen in the past have just tended to only use this value to watch things. Probably just doing what they were taught to do in school. But it sucks.

 

I had my thyroid removed in 2004 for what turned out to just be hashimotos. I blindly thought that they would be able to regulate things once it came out. Big mistake for me. The MDs have always been like here is your rx, take your drug and see you in a year. They think one pill can replace a complicated hormonal organ. The thyroid replacement market, generic vs. name brand, t3 vs t4, desicated pig thyroid verse synthetic is just about as confusing as the AD world.

 

In AD we have the "you need it like a diabetic" speech which we know is not true, the risks we took when agreeing to take ADs without knowing all of the side effects, and the horrible suffering we go thru to get off of these poisons. Just as confusing... :o As a patient, you know you feel like crap, you want to feel better, but who can you trust?? And how can you find relief?

 

Thanks for listening. I've noticed that thyroid problems can cause anxiety and depression. Humm....

Share this post


Link to post
Share on other sites
Barbarannamated

Yes it is so complicated and even endocrinologists don't agree or have same testing - I believe my edoc is exceptional but I do wonder why he did not measure T3 or reverse T3 (rT3) in my recent $3000 battery of tests when Hashimoto's was my known problem -

So true that different thyroid formulations work differently - on Armour now and not noticing improvement -

Elizabeth - knowing what you do now about thyroid„what would you advise someone facing Thyroidectomy (not certain - pending scan of nodules/goiter)

Share this post


Link to post
Share on other sites
elizabeth11

About thyroidectomy-

 

If I could go back in time-ha ha-I might not have done it. I had what turned out to just be goiter/hashimotos.

 

I've never been able to get my thryoid hormones stable post surgery. They are okay for a while, then change drastically and I have no idea why. When they do replacement, most docs want to give you synthetic t4, when I understand that the thryoid has many other t types (like t3 and more). They give you the script and expect you to come back maybe one or tops twice a year. As I understand it, it takes about 4 weeks for any change in meds to show up in blood work.

 

So if you decide to do it, educate yourself about everything that the thyroid does and the different replacement meds, synthetic vs dessicated pig thyroid hormone (which is Armour that some people love), name brand vs generic (there are serious concerns that all generics are not the same as the name brand.)

 

Also, I think having my thyroid out has probably contributed to my fertility problems. Don't know if this would be a topic of interest to you or not. I'm sure plenty of women without thyroids have gotten pregnant but for me it didn't work to date.

 

Make sure that you have a doctor who will listen and be sensitive to how you feel, because many are not. I've always felt the doctor thinks this is like adding salt to a soup...that it doesn't matter what kind or make of salt. I personally believe the type of salt is crucial, like dead sea salt, french mineral, kosher, etc...

 

My two cents....hope it helps.

 

Elizabeth

Share this post


Link to post
Share on other sites
Prestorb

This is an old topic but I'm just curious if anyone else is dealing with hormonal issues. I am perimenopausal I guess but almost 49 so getting very close to menopause. A year ago - while I was still on 10 mg of Paxil - I got started on bioidentical estrogen and progesterone. I've been completely off Paxil now - 4 months out. I'm still not sure that the hormones have helped me at all and am not at all convinced that they aren't making matters worse. My inclination is to gradually wean off of them because frankly, I just don't trust them after everything I've been through with SSRIs. I wish I had never gotten started because I know I will experience some withdrawal. I was desperate at the time with anxiety and insomnia (probably more from the Paxil than my hormones). Just wondering if anyone else here has recent experience with the "bioidentical hormones" and getting off of them?

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

×

Important Information

By using this site, you agree to our Terms of Use.