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In hospital for cardiac monitoring

Barbarannamated

By Barbarannamated
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Barbarannamated Newbie

Barbarannamated

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Im in hospital with abnormality low heart rate 39-45. Being admitted for cardiac testing. Rhythms look ok, just low rate and a cough when I try to breathe deep - reminds me of the catch on in breath that Shanti described awhile back.

 

It's very interesting to feel the pounding or flutter, see the HR change on monitor and feel the associated anxious feeling.

 

They seem to be perplexed. Any ideas welcome.

 

I'm interested in how cortisol peak might translate to cardiac monitor even though I'm not experiencing cortisol mornings as I was earlier on.

 

Thanks.

Pristiq tapered over 8 months ending Spring 2011 after 18 years of polydrugging that began w/Zoloft for fatigue/general malaise (not mood). CURRENT: 1mg Klonopin qhs (SSRI bruxism), 75mg trazodone qhs, various hormonesLitigation for 11 years for Work-related injury, settled 2004. Involuntary medical retirement in 2001 (age 39). 2012 - brain MRI showing diffuse, chronic cerebrovascular damage/demyelination possibly vasculitis/cerebritis. Dx w/autoimmune polyendocrine failure.<p>2013 - Dx w/CNS Sjogren's Lupus (FANA antibodies first appeared in 1997 but missed by doc).

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alexjuice Newbie

alexjuice

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Yikes. Goodness Barb.

 

I don't know anything about cardiac issues but I seriously will be sending hugs and healing energy your way.

 

Hopefully, you are not alone. Love ya!

"Well my ship's been split to splinters and it's sinking fast
I'm drowning in the poison, got no future, got no past
But my heart is not weary, it's light and it's free
I've got nothing but affection for all those who sailed with me.

Everybody's moving, if they ain't already there
Everybody's got to move somewhere
Stick with me baby, stick with me anyhow
Things should start to get interesting right about now."

- Zimmerman

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compsports Newbie

compsports

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Im in hospital with abnormality low heart rate 39-45. Being admitted for cardiac testing. Rhythms look ok, just low rate and a cough when I try to breathe deep - reminds me of the catch on in breath that Shanti described awhile back.

 

It's very interesting to feel the pounding or flutter, see the HR change on monitor and feel the associated anxious feeling.

 

They seem to be perplexed. Any ideas welcome.

 

I'm interested in how cortisol peak might translate to cardiac monitor even though I'm not experiencing cortisol mornings as I was earlier on.

 

Thanks.

 

Barb, oh my gosh.

 

I have no ideas but am sending positive healing thoughts.

 

Get well soon.

 

CS

Drug cocktail 1995 - 2010
Started taper of Adderall, Wellbutrin XL, Remeron, and Doxepin in 2006
Finished taper on June 10, 2010

Temazepam on a PRN basis approximately twice a month - 2014 to 2016

Beginning in 2017 - Consumption increased to about two times per week

April 2017 - Increased to taking it full time for insomnia

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angie007 Newbie

angie007

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Barb,

 

Im so sorry to hear your news, i have no idea my friend, but i suspect it will be to do with psyche drugs lol.

Healing prayers and thoughts coming your way, and i wish you a speedy recovery --- ((( hugs))) thinking of you xxx

Began taking 30mg Seroxat on 15th Jan 1997 for grief issues. Remained at that dosage until Dec 05, did doctor ct, akathesia set in along with being non functional and overly emotional, brain fog. Doctor prescribed prozac, propranelol and diazeapam to counteract side effects, and told me to ct those 3 after 2.5/3 months use, induced wd seizure on 2nd day after ct. Was reinstated on seroxat 20mg in april 06, remained at that dose until Nov 07 and began a very slow taper lasting 56 months, finally DRUG FREE on 11th may 2011.

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Skyler Newbie

Skyler

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Rhythms look ok, just low rate and a cough when I try to breathe deep - reminds me of the catch on in breath that Shanti described awhile back.

 

It's very interesting to feel the pounding or flutter, see the HR change on monitor and feel the associated anxious feeling.

Thanks.

 

I thought of you during the night, and went right to my computer to see if there was an update this AM.. Barb, tell them to take good care of you? I'm getting the sense you feel reassured that you are getting the care you need.

As always, LISTEN TO YOUR BODY! A proud supporter of the 10% (or slower) rule.

 

Requip - 3/16 ZERO  Total time on 25 years.

 

Lyrica: 8/15 ZERO Total time on 7 or 8 yrs.

BENZO FREE 10/13 (started tapering 7/10)  Total time on 25 years.

 

Read my intro thread here, and check the about me section.  "No matter how cynical you get, it's almost impossible to keep up." Lily Tomlin

 

 

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jr1985 Newbie

jr1985

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Oh dear, I hope everything turns out ok!

2003-2011: Paroxetine,Citalopram,Effexor; Aug/Sept 2011: Effexor to Mirtazapine; Oct 2011: C/T Mirtazapine back to Effexor; Nov/Dec 2011: Fast Tapered Effexor - w/d hell; Feb 2012: Reinstated Effexor 37.5mg; June 2012: Dropped to 35.6mg; Jan 2016: Propranolol 2.5mg per day for general anxiety; Feb 2016: Finasteride 0.25mg per week to slow hair loss; 18th May - 8th June 2019: Started Vyvanse 7.5mg and increased by 7.5mg weekly to 30mg (lowest “therapeutic” dose for adults).; 21st June 2019 - 12th July: Cross tapered from venlafaxine brand Rodomel to Efexor (1/4 > 1/2 > 3/4 weekly before ditching Rodomel); 13th July 2019: Cut Vyvanse dose to 15mg; 15th July 2019: Akathisia returned after years of being free; 16th July 2019: Went back up to Vyvanse 30mg

Supplements: Omega-3, Vitamin D, Zinc, Phosphatidylserine 

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Barbarannamated Newbie

Barbarannamated

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KARMA !!

They are talking about ACTH stim? for adrenals. I think I recall something not good about that. ?

ER doc said "thyroid looks fine. TSH is 4.5" NOOO..That's BAD! My endocrine wants TSH at 1.

 

Hospital is supposedly good cardiac, not endocrine.

Pristiq tapered over 8 months ending Spring 2011 after 18 years of polydrugging that began w/Zoloft for fatigue/general malaise (not mood). CURRENT: 1mg Klonopin qhs (SSRI bruxism), 75mg trazodone qhs, various hormonesLitigation for 11 years for Work-related injury, settled 2004. Involuntary medical retirement in 2001 (age 39). 2012 - brain MRI showing diffuse, chronic cerebrovascular damage/demyelination possibly vasculitis/cerebritis. Dx w/autoimmune polyendocrine failure.<p>2013 - Dx w/CNS Sjogren's Lupus (FANA antibodies first appeared in 1997 but missed by doc).

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fefesmom Newbie

fefesmom

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Hi Barb. Just read your post about being in the hospital. My thoughts are with you and I hope you feel better and get better as quickly as possible. Love from me and fefe. FM

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Skyler Newbie

Skyler

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KARMA !!

They are talking about ACTH stim? for adrenals. I think I recall something not good about that. ?

ER doc said "thyroid looks fine. TSH is 4.5" NOOO..That's BAD! My endocrine wants TSH at 1.

 

Hospital is supposedly good cardiac, not endocrine.

 

Did you send Karma a PM? I don't think she is necessarily active every day, though it does seem like she is checking in on you :) . Are you using a mobi, can you send PMs, that sort of stuff? Let me know if you need help Googling, etc.

 

At least they seem to be looking under the right rock? Now all they need to do is be suitably cautious and not damage said. Sigh... always a fight. ~S

As always, LISTEN TO YOUR BODY! A proud supporter of the 10% (or slower) rule.

 

Requip - 3/16 ZERO  Total time on 25 years.

 

Lyrica: 8/15 ZERO Total time on 7 or 8 yrs.

BENZO FREE 10/13 (started tapering 7/10)  Total time on 25 years.

 

Read my intro thread here, and check the about me section.  "No matter how cynical you get, it's almost impossible to keep up." Lily Tomlin

 

 

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Nikki Newbie

Nikki

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Barb....so sorry, however you might be on the brink of a break-thru. Your thyroid isn't up to snuff and let them know what your Endo has said. Maybe you need thyroid medication and that is where the fatigue is coming from?

 

As for Adrenals I don't understand the lingo, but you being in the hospital and having the adrenals thoroughly check out will bring about an answer.

 

Please ask them to explore the matter further. Do't be afraid to speak up. Will send healing prayers your way.

 

Please say connected...want to know how you are doing

 

Many hugs

Nikki

Intro: http://survivingantidepressants.org/index.php?/topic/1902-nikki-hi-my-rundown-with-ads/

 

Paxil 1997-2004

Crossed over to Lexapro Paxil not available

at Pharmacies GSK halted deliveries

Lexapro 40mgs

Lexapro taper (2years)

Imipramine

Imipramine and Celexa

Now Nefazadone/Imipramine 50mgs. each

45mgs. Serzone  50mgs. Imipramine

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Rhiannon Rookie

Rhiannon

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Oh Barb, this is out of my depth of expertise, but I'm thinking of you, sending you love and good vibes. Get your endocrinologist to haul derriere over to the hospital and talk to those people right away! Thyroid can definitely affect heart rate.

Started on Prozac and Xanax in 1992 for PTSD after an assault. One drug led to more, the usual story. Got sicker and sicker, but believed I needed the drugs for my "underlying disease". Long story...lost everything. Life savings, home, physical and mental health, relationships, friendships, ability to work, everything. Amitryptiline, Prozac, bupropion, buspirone, flurazepam, diazepam, alprazolam, Paxil, citalopram, lamotrigine, gabapentin...probably more I've forgotten. 

Started multidrug taper in Feb 2010.  Doing a very slow microtaper, down to low doses now and feeling SO much better, getting my old personality and my brain back! Able to work full time, have a full social life, and cope with stress better than ever. Not perfect, but much better. After 23 lost years. Big Pharma has a lot to answer for. And "medicine for profit" is just not a great idea.

 

Feb 15 2010:  300 mg Neurontin  200 Lamictal   10 Celexa      0.65 Xanax   and 5 mg Ambien 

Feb 10 2014:   62 Lamictal    1.1 Celexa         0.135 Xanax    1.8 Valium

Feb 10 2015:   50 Lamictal      0.875 Celexa    0.11 Xanax      1.5 Valium

Feb 15 2016:   47.5 Lamictal   0.75 Celexa      0.0875 Xanax    1.42 Valium    

2/12/20             12                       0.045               0.007                   1 

May 2021            7                       0.01                  0.0037                1

Feb 2022            6                      0!!!                     0.00167               0.98                2.5 mg Ambien

Oct 2022       4.5 mg Lamictal    (off Celexa, off Xanax)   0.95 Valium    Ambien, 1/4 to 1/2 of a 5 mg tablet 

 

I'm not a doctor. Any advice I give is just my civilian opinion.

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Skyler Newbie

Skyler

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KARMA !!

They are talking about ACTH stim? for adrenals. I think I recall something not good about that. ?

ER doc said "thyroid looks fine. TSH is 4.5" NOOO..That's BAD! My endocrine wants TSH at 1.

 

Hospital is supposedly good cardiac, not endocrine.

 

Hey again. I'm reading on on this (not expecting this to make me an expert.. ahem). I've wondered that your symptoms rang echoes of a friend who has a pituitary tumor.. meaning the hormone/endo connection. She is an MD and was still put thru her paces. She has lived with this for 25 years, so is VERY familiar with the other side of the "lab coat". Her escapades are a cautionary tale.

 

Keep them honest, K?

 

btw.. are you at a location the your endocrinologist is close enough to reach? He has been at least contacted one would hope.

 

Hugs to ya.

As always, LISTEN TO YOUR BODY! A proud supporter of the 10% (or slower) rule.

 

Requip - 3/16 ZERO  Total time on 25 years.

 

Lyrica: 8/15 ZERO Total time on 7 or 8 yrs.

BENZO FREE 10/13 (started tapering 7/10)  Total time on 25 years.

 

Read my intro thread here, and check the about me section.  "No matter how cynical you get, it's almost impossible to keep up." Lily Tomlin

 

 

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Karma

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OMG! I was not able to read all of the notes, but saw my name and decided to post right away! Barb, a TSH of 4.5 is BAD.

 

An ACTH stim test is probably a good thing in terms that they are thinking you may have adrenal insufficiency (they are probably thinking Addison's). If you have adrenal insufficiency it would mean that you are unable to utilize any thyroid hormone you should be getting by taking Armour and that would explain the high TSH. (I get that they may think that 4.5 is within range, but you are a patient, not a lab value).

 

A slow irregular heart rate can be a sign of Addison's disease.

 

My only fear is that you may feel some side effects form the ACTH stim test such as nausea or sweating, but after it passes you may actually feel better.

 

I believe the treatment for Addison's disease is hydrocortisone and fludrocortisone. They would need to test your aldosterone in order to determine whether you needed to supplement fludrocortisone. Ideally, with hydrocortisone they mimic the body's normal diurnal pattern which means more in the AM and less throughout the day. I have experience with this if that is the path they take. You'd be surprised at the accounts of people who have gone on this treatment and had some immediate relief.

 

Have they checked your electrolytes? If you sodium is low in-range it could be a contributing factor as could be an out of balance potassium level. Just a thought ...

 

I'm sending you healing energy, love and light ... and a Karma hug Posted Image or two Posted Image or three Posted Image

2007 @ 375 mg Effexor - 11/29/2011 - 43.75 mg Effexor (regular) & .625 mg Xanax

200 mg Gabapentin 2/27/21 - 194.5 mg, 5/28/21 - 183 mg, 8/2/21 - 170 mg, 11/28/21 - 150 mg, 4/19/22 - 122 mg; 8//7/22 - 100 mg; 12/17 - 75mg; 8/17 - 45 mg; 10/16 40 mg
Xanax taper: 3/11/12 - 0.9375 mg, 3/25/12 - 0.875 mg, 4/6/12 - 0.8125 mg, 4/18/12 - 0.75 ; 10/16 40mg;

1/16 0.6875 mg; at some point 0.625 mg
Effexor taper: 1/29/12 - 40.625 mg, 4/29/12 - 39.875 mg, 5/11/12 - Switched to liquid Effexor, 5/25/12 - 38 mg, 7/6/12 - 35 mg, 8/17/12 - 32 mg, 9/14/12 - 30 mg, 10/19/12 - 28 mg, 11/9/12 - 26 mg, 11/30/12 - 24 mg, 01/14/13 - 22 mg. 02/25/13 - 20.8 mg, 03/18/13 - 19.2 mg, 4/15/13 - 17.6 mg, 8/10/13 - 16.4 mg, 9/7/13 - 15.2 mg, 10/19/13 - 14 mg, 1/15/14 - 13.2 mg, 3/1/2014 - 12.6 mg, 5/4/14 - 12 mg, 8/1/14 - 11.4 mg, 8/29/14 - 10.8 mg; 10/14/14 - 10.2 mg; 12/15/14 - 10 mg, 1/11/15 - 9.5 mg, 2/8/15 - 9 mg, 3/21/15 - 8.5 mg, 5/1/15 - 8 mg, 6/9/15 - 7.5 mg, 7/8/15 - 7 mg, 8/22/15 - 6.5 mg, 10/4/15 - 6 mg; 1/1/16 - 5.6 mg; 2/6/16 - 5.2 mg; 4/9 - 4.8 mg; 7/7 4.5 mg; 10/7 4.25 mg; 11/4 4.0 mg; 11/25 3.8 mg; 4/24 3.6 mg; 5/27 3.4 mg; 7/8 3.2 mg ... 10/18 2.8 mg; 1/18 2.6 mg; 4/7 2.4 mg; 5/26 2.15mg; 8/18 1.85 mg; 10/7 1.7 mg; 12/1 1.45 mg; 3/2 1.2 mg; 5/4 0.90 mg; 6/1 0.80 mg; 6/22 0.65 mg; 08/03 0.50 mg, 08/10 0.45 mg, 10/05 0.325 mg, 11/23 0.2 mg, 12/14 0.15 mg, 12/21 0.125 mg, 02/28 0.03125 mg, 2/15 0.015625 mg, 2/29/20 0.00 mg - OFF Effexor

I am not a medical professional - this is not medical advice. My suggestions are based on personal experience, reading, observation and anecdotal information posted by other sufferers

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Jemima Newbie

Jemima

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Maybe this is why you've been feeling so fatigued and out of sorts the past few weeks. In any event, keep an eye on the doctors and get well soon!

Psychotropic drug history: Pristiq 50 mg. (mid-September 2010 through February 2011), Remeron (mid-September 2010 through January 2011), Lexapro 10 mg. (mid-February 2011 through mid-December 2011), Lorazepam (Ativan) 1 mg. as needed mid-September 2010 through early March 2012

"Never attribute to malice that which is adequately explained by stupidity." -Hanlon's Razor


Introduction: http://survivingantidepressants.org/index.php?/topic/1588-introducing-jemima/

 

Success Story: http://survivingantidepressants.org/index.php?/topic/6263-success-jemima-survives-lexapro-and-dr-dickhead-too/

Please note that I am not a medical professional and my advice is based on personal experience, reading, and anecdotal information posted by other sufferers.

 

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Barbarannamated Newbie

Barbarannamated

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Thanks for everyone's messages. :)

 

Doing alot of bloodwork, EKG s, and echocardiogram so far. No results yet.

 

Although not directly related to withdrawal, Im sharing because of the effect of SS/NRIs and neuroleptics on endocrine and cardiometabolic system.

 

Thanks for clarification on ACTH challenge/adrenal insufficiency/Addison's/cortisol and also pituitary. Hopefully someone will connect the dots. My endocrinologist is about 90 miles away but husband has talked to him. He agrees with ACTH challenge and that TSH is way too high at 4.5 even though within reference range.

 

You all rock!!

Pristiq tapered over 8 months ending Spring 2011 after 18 years of polydrugging that began w/Zoloft for fatigue/general malaise (not mood). CURRENT: 1mg Klonopin qhs (SSRI bruxism), 75mg trazodone qhs, various hormonesLitigation for 11 years for Work-related injury, settled 2004. Involuntary medical retirement in 2001 (age 39). 2012 - brain MRI showing diffuse, chronic cerebrovascular damage/demyelination possibly vasculitis/cerebritis. Dx w/autoimmune polyendocrine failure.<p>2013 - Dx w/CNS Sjogren's Lupus (FANA antibodies first appeared in 1997 but missed by doc).

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xDebbiejo Newbie

xDebbiejo

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Oh barb

 

I've been checking your intro thread waiting for you to post!

Didn't think of looking else where, glad I've found you

 

Think of you

 

Love

 

Debbie x

17 years on seroxat/paxil CT off - thought I was dying luckily found this site. 21st May 2012 12mg seroxat

Stable - Tapered Diazepam slowish.1st June 10mg Seroxat

2nd June 1mg Diazepam.15th June 9mg seroxat

2nd July Changed to 2.5[ml liquid diazepam]2mg=5ml. 16th July 2ml Liquid Diazepam

2nd August 8mg/4ml Seroxat/Paxil 2nd August 1.5 ml Diazepam

18th Aug 2012 1ml Diazepam 1st - 5th Sept 0.5

Diazepam Free!

13th Oct 7mg/3.5ml seroxat - 26 Jan 2013 3.25ml/6.5mg-Mar 3ml-April 2.7ml-May 2.5ml

01/07/14 very slow taper over the last year now on 0.5 ml of liquid Seroxat ......November 14 Seroat Free!!!!!!!

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Altostrata Grand Master

Altostrata

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Barb, healing thoughts coming your way.

 

Also have them look at every one of the drugs you're taking to find adverse reactions and drug-drug interactions.

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

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Brandy Newbie

Brandy

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Adding my healing thoughts to the others. Altogether, you have a lot of healing energy and caring coming from your SA friends!

 

So very sorry you had to be hospitalized, but maybe good that you're finally getting all the tests and evaluation you need.

 

Sending big healing hugs to you!

I was "TryingToGetWell" (aka TTGW) on paxilprogress. I also was one of the original members here on Surviving Antidepressants

 

I had horrific and protracted withdrawal from paxil, but now am back to enjoying life with enthusiasm to the max, some residual physical symptoms continued but largely improve. The horror, severe derealization, anhedonia, akathisia, and so much more, are long over.

 

My signature is a temporary scribble from year 2013. I'll rewrite it when I can.

 

If you want to read it, click on http://survivingantidepressants.org/index.php?/topic/209-brandy-anyone/?p=110343

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Skyler Newbie

Skyler

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So very sorry you had to be hospitalized, but maybe good that you're finally getting all the tests and evaluation you need.

 

I'm with Brandy, sorry the problem had to get so bad you ended up in the hospital but glad you are finally getting the care you need. Are you starting to feel better on the drugs they have you on now, or maybe you need to wait until they finish the eval and can give you targeted meds?

 

Do keep us informed!

 

Hugs, Schuyler

As always, LISTEN TO YOUR BODY! A proud supporter of the 10% (or slower) rule.

 

Requip - 3/16 ZERO  Total time on 25 years.

 

Lyrica: 8/15 ZERO Total time on 7 or 8 yrs.

BENZO FREE 10/13 (started tapering 7/10)  Total time on 25 years.

 

Read my intro thread here, and check the about me section.  "No matter how cynical you get, it's almost impossible to keep up." Lily Tomlin

 

 

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Barbarannamated Newbie

Barbarannamated

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Hi everyone and many thanks for your messages.

 

I'm still on telemetry unit being monitored and doing cardiac tests/scans/labwork. Did the ACTH Challenge yesterday to determine if adrenals and/or pituitary is involved. They have no idea yet what is causing the low heart rate or blood pressure (especially at nite - waking me up to give fluids). No other treatment has been started. They've TRIED to begin drugs "just in case" but I've refused until someone can tell me what we're treating. EX: The doc ordered Pepcid IV "just in case" anything bothered my stomach, BUT I'm not on any new meds and have NO problems with stomach acid! Thought you'd appreciate that one - a way to add charges, perhaps?? The other one they "offered" is Nitropaste (?). But it LOWERS BP.

They dont seem to know what to do with low HR, low BP, and low bodyweight. They asked if I'm a marathon runner. Apparently low HR is seen in very physically fit people. I assure all, that's NOT me!

 

The Charge Nurse is an old equestrian friend. She's making sure I get good care from her staff.

 

Schuyler, I'd love to hear more about your friend dx with pituitary tumor. I know a bit about that because my horse has Cushings. It's HIS fault :o

Pristiq tapered over 8 months ending Spring 2011 after 18 years of polydrugging that began w/Zoloft for fatigue/general malaise (not mood). CURRENT: 1mg Klonopin qhs (SSRI bruxism), 75mg trazodone qhs, various hormonesLitigation for 11 years for Work-related injury, settled 2004. Involuntary medical retirement in 2001 (age 39). 2012 - brain MRI showing diffuse, chronic cerebrovascular damage/demyelination possibly vasculitis/cerebritis. Dx w/autoimmune polyendocrine failure.<p>2013 - Dx w/CNS Sjogren's Lupus (FANA antibodies first appeared in 1997 but missed by doc).

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Skyler Newbie

Skyler

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The Charge Nurse is an old equestrian friend. She's making sure I get good care from her staff.

 

Schuyler, I'd love to hear more about your friend dx with pituitary tumor. I know a bit about that because my horse has Cushings. It's HIS fault :o

 

Horse sense strikes again! Sounds like the nurse's presence is a much needed comfort.

 

I can't tell you any specifics about the woman who has the pituitary tumor. She does not talk about the complete picture very often (it's VERY complicated). Just deals with the associated problems as they crop up. From what you said, your symptom constellation is not as involved (hard to believe I'm sure.. she really is incredible though).

 

I thought one of your hormone or endocrine systems might be the culprit because so many different organ constellations were involved.. your complaints were so varied. Functioning in any consistent way was impossible because you never knew where the next onslaught would hit. Merdre. One day it was one organ system, the next another, there was no way you could get a rhythm. I think this is where some of your depression factored in. (While a good bit was hormonal, some was situational.) You would just start to get motivated, and bam.. your legs were taken out from under you yet again. What a disincentive. Good things start to look threatening because these too would be taken away. Dreadful.

As always, LISTEN TO YOUR BODY! A proud supporter of the 10% (or slower) rule.

 

Requip - 3/16 ZERO  Total time on 25 years.

 

Lyrica: 8/15 ZERO Total time on 7 or 8 yrs.

BENZO FREE 10/13 (started tapering 7/10)  Total time on 25 years.

 

Read my intro thread here, and check the about me section.  "No matter how cynical you get, it's almost impossible to keep up." Lily Tomlin

 

 

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Barbarannamated Newbie

Barbarannamated

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Yes, Schuyler. VERY true that the situational factors/lack of support makes it far more difficult to continue fighting an unexplained/unrecognized illness - for anyone.

 

I need Dr. Fava - Giovanna!

Pristiq tapered over 8 months ending Spring 2011 after 18 years of polydrugging that began w/Zoloft for fatigue/general malaise (not mood). CURRENT: 1mg Klonopin qhs (SSRI bruxism), 75mg trazodone qhs, various hormonesLitigation for 11 years for Work-related injury, settled 2004. Involuntary medical retirement in 2001 (age 39). 2012 - brain MRI showing diffuse, chronic cerebrovascular damage/demyelination possibly vasculitis/cerebritis. Dx w/autoimmune polyendocrine failure.<p>2013 - Dx w/CNS Sjogren's Lupus (FANA antibodies first appeared in 1997 but missed by doc).

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Karma Contributor

Karma

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Just checkin' in to see how you are doing Barb. It doesn't look like you have any test results (well, useful test results -> TSH 4.5, in-range - you're thyroid is fine - NOT) back yet. Bravo for not letting them just start pumping you full of drugs! Posted Image

 

However, I do anticipate that they have to have a diagnosis at some point in order to justify your stay at the hospital ... so I guess they will have to get some test results and start sticking diagnosis codes in your chart, but keep asking about what the drug is for and what the side effects are.

 

I'm so glad that the Charge Nurse is an old equestrian friend ... now I feel like someone is looking out for you.

 

Thinking of you and continuing to send healing energy Posted Image

Karma

2007 @ 375 mg Effexor - 11/29/2011 - 43.75 mg Effexor (regular) & .625 mg Xanax

200 mg Gabapentin 2/27/21 - 194.5 mg, 5/28/21 - 183 mg, 8/2/21 - 170 mg, 11/28/21 - 150 mg, 4/19/22 - 122 mg; 8//7/22 - 100 mg; 12/17 - 75mg; 8/17 - 45 mg; 10/16 40 mg
Xanax taper: 3/11/12 - 0.9375 mg, 3/25/12 - 0.875 mg, 4/6/12 - 0.8125 mg, 4/18/12 - 0.75 ; 10/16 40mg;

1/16 0.6875 mg; at some point 0.625 mg
Effexor taper: 1/29/12 - 40.625 mg, 4/29/12 - 39.875 mg, 5/11/12 - Switched to liquid Effexor, 5/25/12 - 38 mg, 7/6/12 - 35 mg, 8/17/12 - 32 mg, 9/14/12 - 30 mg, 10/19/12 - 28 mg, 11/9/12 - 26 mg, 11/30/12 - 24 mg, 01/14/13 - 22 mg. 02/25/13 - 20.8 mg, 03/18/13 - 19.2 mg, 4/15/13 - 17.6 mg, 8/10/13 - 16.4 mg, 9/7/13 - 15.2 mg, 10/19/13 - 14 mg, 1/15/14 - 13.2 mg, 3/1/2014 - 12.6 mg, 5/4/14 - 12 mg, 8/1/14 - 11.4 mg, 8/29/14 - 10.8 mg; 10/14/14 - 10.2 mg; 12/15/14 - 10 mg, 1/11/15 - 9.5 mg, 2/8/15 - 9 mg, 3/21/15 - 8.5 mg, 5/1/15 - 8 mg, 6/9/15 - 7.5 mg, 7/8/15 - 7 mg, 8/22/15 - 6.5 mg, 10/4/15 - 6 mg; 1/1/16 - 5.6 mg; 2/6/16 - 5.2 mg; 4/9 - 4.8 mg; 7/7 4.5 mg; 10/7 4.25 mg; 11/4 4.0 mg; 11/25 3.8 mg; 4/24 3.6 mg; 5/27 3.4 mg; 7/8 3.2 mg ... 10/18 2.8 mg; 1/18 2.6 mg; 4/7 2.4 mg; 5/26 2.15mg; 8/18 1.85 mg; 10/7 1.7 mg; 12/1 1.45 mg; 3/2 1.2 mg; 5/4 0.90 mg; 6/1 0.80 mg; 6/22 0.65 mg; 08/03 0.50 mg, 08/10 0.45 mg, 10/05 0.325 mg, 11/23 0.2 mg, 12/14 0.15 mg, 12/21 0.125 mg, 02/28 0.03125 mg, 2/15 0.015625 mg, 2/29/20 0.00 mg - OFF Effexor

I am not a medical professional - this is not medical advice. My suggestions are based on personal experience, reading, observation and anecdotal information posted by other sufferers

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Barbarannamated Newbie

Barbarannamated

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They are calling it sinus bradycardia and attributing it to thyroid, although yesterday they said my thyroid was fine (I know it's not, just being facetious). Nothing showed in the echocardiogram, chest CT, or gallons of bloodwork, so attributing cardiac anomalies to endocrine. Heart rate is running in low 40s. The only cardiac treatment they vaguely mentioned was pacemaker - not recommending, but saying that some people with low HR and no arrhythmias or structural problems go that route.

 

They said cortisol was "normal" but im not sure if it's the same way that a TSH of 4.5 is "normal". Baseline cortisol was 2.2, which is lower than Ref Range. They neglected to measure ACTH, which is what would indicate pituitary dysfunction/tumor. I requested CAT Scan of head for pituitary which they did immediately. ACTH Test was done in afternoon, non-fasting, which I believe is not correct procedure.

 

If head CT comes back ok, i'm discharged with the same symptoms that were "emergent" 2 days ago, little additional info and no treatment. But a huge bill.

 

I'm very confused and frustrated. And cranky. Very cranky.

 

Alex and Karma and others who have great perseverance in pursuing answers, I dont know how you do it.

Pristiq tapered over 8 months ending Spring 2011 after 18 years of polydrugging that began w/Zoloft for fatigue/general malaise (not mood). CURRENT: 1mg Klonopin qhs (SSRI bruxism), 75mg trazodone qhs, various hormonesLitigation for 11 years for Work-related injury, settled 2004. Involuntary medical retirement in 2001 (age 39). 2012 - brain MRI showing diffuse, chronic cerebrovascular damage/demyelination possibly vasculitis/cerebritis. Dx w/autoimmune polyendocrine failure.<p>2013 - Dx w/CNS Sjogren's Lupus (FANA antibodies first appeared in 1997 but missed by doc).

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cinephile Newbie

cinephile

Posted
Posted

Barb --

 

I'm late to this thread but I really want to take this opportunity to thank you for all the kind words you've said to me over the months. Trust me, they mean a lot. You really didn't have to take the time to say those things, but you did, and I thank you.

 

And about your current situation: I can only imagine what it's like, but I CAN tell you I've seen my family get fed through the hospital meat grinder recently (my dad had double hip replace,ent surgery and lost his ear to cancer all within a 2 year period) and my god was it an ordeal. It's a labyrinth. In one day he cancelled FOUR doctors appointments! Nightmare.

 

And believe me, everyone on this board knows what a colossal failure western medicine is with chronic diseases. You do the best you can, Barb. We all know you are. Life takes us on unexpected (sometimes excruciating) paths, but know that your health issues ARE NOT YOUR FAULT and, to echo alexjice, you deserve to get better.

 

In my recent hell I've come to realize that love conquers all, and in confusing/horrifying situations like this, try to focus on the love you have here. I know I've been doing that myself these last few days.

Been on SSRIs since 1998:

1998-2005: Paxil in varying doses

2005-present: Lexapro.

2006-early '08: Effexor AND Lexapro! Good thing I got off the Effexor rather quickly (within a year).

 

**PSYCHIATRY: TAKE YOUR CHEMICAL IMBALANCE AND CHOKE ON IT!

APA=FUBAR

FDA=SNAFU

NIMH=LMFAO

 

Currently tapering Lexapro ~10% every month:

 

STARTING: 15 mg

11/7/10: 13.5 mg

12/7/10: 12.2 mg

1/6/11: 10.9 mg

2/3/11: 9.8 mg

3/3/11: 8.8 mg

4/1/11: 7.8 mg

4/29/11: 7 mg

5/27/11: 6.4 mg

6/24/11: 5.7 mg

7/22/11: 5 mg

8/18/11: 4.5 mg

9/14/11: 4 mg

10/13/11: 3.6 mg

11/9/11: 3.2 mg

12/7/11: 2.6 mg

1/3/12: 2.1 mg

2/2/12: 1.8 mg

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Barbarannamated Newbie

Barbarannamated

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Thanks, Cine. {{{HUGS}}}

 

I'm home now. No treatment. Bradycardia arrtirbuted to thyroid that they said was normal yesterday.

 

Sigh.

Pristiq tapered over 8 months ending Spring 2011 after 18 years of polydrugging that began w/Zoloft for fatigue/general malaise (not mood). CURRENT: 1mg Klonopin qhs (SSRI bruxism), 75mg trazodone qhs, various hormonesLitigation for 11 years for Work-related injury, settled 2004. Involuntary medical retirement in 2001 (age 39). 2012 - brain MRI showing diffuse, chronic cerebrovascular damage/demyelination possibly vasculitis/cerebritis. Dx w/autoimmune polyendocrine failure.<p>2013 - Dx w/CNS Sjogren's Lupus (FANA antibodies first appeared in 1997 but missed by doc).

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alexjuice Newbie

alexjuice

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Posted

I'm home now. No treatment. Bradycardia arrtirbuted to thyroid that they said was normal yesterday.

 

Sigh.

 

I'm sorry you had to go through it, seemingly with no gain. I am glad youre back in your own bed rather than the hospital.

 

At least you got some hospital food! It's not quite airplane food but still a treat!

 

Hang in there, Barb. We love you.

 

Alex

"Well my ship's been split to splinters and it's sinking fast
I'm drowning in the poison, got no future, got no past
But my heart is not weary, it's light and it's free
I've got nothing but affection for all those who sailed with me.

Everybody's moving, if they ain't already there
Everybody's got to move somewhere
Stick with me baby, stick with me anyhow
Things should start to get interesting right about now."

- Zimmerman

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Skyler Newbie

Skyler

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Thanks, Cine. {{{HUGS}}}

 

I'm home now. No treatment. Bradycardia arrtirbuted to thyroid that they said was normal yesterday.

 

Sigh.

 

Gosh... the pits. You were collapsing so you are told to use a pacemaker because the think your thyroid was behind the episode. Very comforting.

 

Huge HUG to You Posted Image

As always, LISTEN TO YOUR BODY! A proud supporter of the 10% (or slower) rule.

 

Requip - 3/16 ZERO  Total time on 25 years.

 

Lyrica: 8/15 ZERO Total time on 7 or 8 yrs.

BENZO FREE 10/13 (started tapering 7/10)  Total time on 25 years.

 

Read my intro thread here, and check the about me section.  "No matter how cynical you get, it's almost impossible to keep up." Lily Tomlin

 

 

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Goose Newbie

Goose

Posted
Posted

Hi Barb

Im new on the site and I feel your pain as far as the hospital not doing anything for you!

 

I was inntwo hospitals wit tachycardia My heart was racing to 170 bpm They said i was out of shape I am heavy but i get alot of excercise so i know that wasnt it

 

Well anyway they sent me home the same way I came in

 

I hope you get better There are natural things that can help thyroid I have been doing lots of research as i believe my thyroid is messed up Take care Im praying for you!!!

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Barbarannamated Newbie

Barbarannamated

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Thank you all. I just have to put this behind me. I've had such a difficult time just getting necessary tests done because I am incredibly weak. When they found this very low heart rate and sent me direct to ER and admitted me, I thought finally might get things moving in any direction. But they sent me home exactly as I entered - HR still in 40s, very low BP (40 diastolic at nite).

 

They blamed my condition on endocrine but never called an endocrinologist in. Although I would never go to an ER for endocrine issues.

 

I know my echocardiogram was ok. I know why thinking seems impossible. Trying to find the positive of that very expensive circus.

Pristiq tapered over 8 months ending Spring 2011 after 18 years of polydrugging that began w/Zoloft for fatigue/general malaise (not mood). CURRENT: 1mg Klonopin qhs (SSRI bruxism), 75mg trazodone qhs, various hormonesLitigation for 11 years for Work-related injury, settled 2004. Involuntary medical retirement in 2001 (age 39). 2012 - brain MRI showing diffuse, chronic cerebrovascular damage/demyelination possibly vasculitis/cerebritis. Dx w/autoimmune polyendocrine failure.<p>2013 - Dx w/CNS Sjogren's Lupus (FANA antibodies first appeared in 1997 but missed by doc).

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Skyler Newbie

Skyler

Posted
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Posted

Trying to find the positive of that very expensive circus.

 

Think of all the hugs folks here send to you? Barb, you got a boat load comin' your way.Posted Image

As always, LISTEN TO YOUR BODY! A proud supporter of the 10% (or slower) rule.

 

Requip - 3/16 ZERO  Total time on 25 years.

 

Lyrica: 8/15 ZERO Total time on 7 or 8 yrs.

BENZO FREE 10/13 (started tapering 7/10)  Total time on 25 years.

 

Read my intro thread here, and check the about me section.  "No matter how cynical you get, it's almost impossible to keep up." Lily Tomlin

 

 

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Nikki Newbie

Nikki

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Posted

Barb when can you go to see the Endocrinologist? Bring all your test results or ask the hospital to fax them to her.

 

From what I am getting out of this is that your Thyroid is low. Your heart rate is low too.

Can low thyroid levels induce the low heart rate?

 

Do you suspect Addison's disease? If so, what is the test for that and have your Endocrinologist send you for it.

 

You poor kid you've been thru the ringer this week. Barb get yourself an appointment for next week with the Endo doctor. We need some answers here ;) We want you well....

 

Hugs

Nikki

Intro: http://survivingantidepressants.org/index.php?/topic/1902-nikki-hi-my-rundown-with-ads/

 

Paxil 1997-2004

Crossed over to Lexapro Paxil not available

at Pharmacies GSK halted deliveries

Lexapro 40mgs

Lexapro taper (2years)

Imipramine

Imipramine and Celexa

Now Nefazadone/Imipramine 50mgs. each

45mgs. Serzone  50mgs. Imipramine

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Karma Contributor

Karma

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Barb

 

I think you need to run your symptoms by my Adrenal patient advocate group http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/ ... the owner of the list literally saved herself from heart failure. You don't have to take treatment into your own hands, but they may be able to arm you with information that you can use with your Endocrinologist. I just really think that your symptoms point to something that western medicine doesn't recognize and if they do recognize it they don't know how to treat it ... as evidenced by your recent stay at the hospital.

 

I just feel such a deep connection to you and I worry about you. Sure, maybe I'm a bit off the other end what with taking my thyroid and adrenal treatment into my own hands, but I'd rather have energy, be able to sleep, and be able to cope well with whatever comes up than dragging from fatigue, brain fog, and chronic low grade depression.

 

It is your choice, but I think the mods on the Adrenal board may be able to give you some meaningful information.

 

Feel better, my friend. Posted Image

Karma

2007 @ 375 mg Effexor - 11/29/2011 - 43.75 mg Effexor (regular) & .625 mg Xanax

200 mg Gabapentin 2/27/21 - 194.5 mg, 5/28/21 - 183 mg, 8/2/21 - 170 mg, 11/28/21 - 150 mg, 4/19/22 - 122 mg; 8//7/22 - 100 mg; 12/17 - 75mg; 8/17 - 45 mg; 10/16 40 mg
Xanax taper: 3/11/12 - 0.9375 mg, 3/25/12 - 0.875 mg, 4/6/12 - 0.8125 mg, 4/18/12 - 0.75 ; 10/16 40mg;

1/16 0.6875 mg; at some point 0.625 mg
Effexor taper: 1/29/12 - 40.625 mg, 4/29/12 - 39.875 mg, 5/11/12 - Switched to liquid Effexor, 5/25/12 - 38 mg, 7/6/12 - 35 mg, 8/17/12 - 32 mg, 9/14/12 - 30 mg, 10/19/12 - 28 mg, 11/9/12 - 26 mg, 11/30/12 - 24 mg, 01/14/13 - 22 mg. 02/25/13 - 20.8 mg, 03/18/13 - 19.2 mg, 4/15/13 - 17.6 mg, 8/10/13 - 16.4 mg, 9/7/13 - 15.2 mg, 10/19/13 - 14 mg, 1/15/14 - 13.2 mg, 3/1/2014 - 12.6 mg, 5/4/14 - 12 mg, 8/1/14 - 11.4 mg, 8/29/14 - 10.8 mg; 10/14/14 - 10.2 mg; 12/15/14 - 10 mg, 1/11/15 - 9.5 mg, 2/8/15 - 9 mg, 3/21/15 - 8.5 mg, 5/1/15 - 8 mg, 6/9/15 - 7.5 mg, 7/8/15 - 7 mg, 8/22/15 - 6.5 mg, 10/4/15 - 6 mg; 1/1/16 - 5.6 mg; 2/6/16 - 5.2 mg; 4/9 - 4.8 mg; 7/7 4.5 mg; 10/7 4.25 mg; 11/4 4.0 mg; 11/25 3.8 mg; 4/24 3.6 mg; 5/27 3.4 mg; 7/8 3.2 mg ... 10/18 2.8 mg; 1/18 2.6 mg; 4/7 2.4 mg; 5/26 2.15mg; 8/18 1.85 mg; 10/7 1.7 mg; 12/1 1.45 mg; 3/2 1.2 mg; 5/4 0.90 mg; 6/1 0.80 mg; 6/22 0.65 mg; 08/03 0.50 mg, 08/10 0.45 mg, 10/05 0.325 mg, 11/23 0.2 mg, 12/14 0.15 mg, 12/21 0.125 mg, 02/28 0.03125 mg, 2/15 0.015625 mg, 2/29/20 0.00 mg - OFF Effexor

I am not a medical professional - this is not medical advice. My suggestions are based on personal experience, reading, observation and anecdotal information posted by other sufferers

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Barbarannamated Newbie

Barbarannamated

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Thank you, Karma. I will do that. My intuition tells me there's more going on, too. My symptoms don't add up to just hypothyroidism. I'm rail thin and cant gain weight.

 

I appreciate your guidance, Karma. You're a very special person.

 

{{{HUGS}}}

Pristiq tapered over 8 months ending Spring 2011 after 18 years of polydrugging that began w/Zoloft for fatigue/general malaise (not mood). CURRENT: 1mg Klonopin qhs (SSRI bruxism), 75mg trazodone qhs, various hormonesLitigation for 11 years for Work-related injury, settled 2004. Involuntary medical retirement in 2001 (age 39). 2012 - brain MRI showing diffuse, chronic cerebrovascular damage/demyelination possibly vasculitis/cerebritis. Dx w/autoimmune polyendocrine failure.<p>2013 - Dx w/CNS Sjogren's Lupus (FANA antibodies first appeared in 1997 but missed by doc).

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