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☼ Petunia: recovering from 13 years of antidepressant use


Petunia

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  • Moderator Emeritus

Wow, Petu! Just, wow!

 

I was finishing a long day and long week and tired and pissy and then I got this post and it was a great way to finish my drive home.

 

You SO deserve this!

 

So happy for you.

 

Continue your healing.

 

Best,

 

Andy

Sertraline 50mg and Clonazapam .375mg from 2000 -- symptoms of dizziness Spring 2012

increased to .5 Clonazapam and 100mg Sertraline -- no improvement

Benzo microtaper from November 2012 to November 2014 (followed benzo sites "taper benzo first")

Started Sertraline taper in December 2014 cut by 25mg to 75mg; 62.5mg 1/1/15 and 50mg on 2/1/15

Held at 50mg through April 5 to use liquid 
Reduced dosage in 10% or less drops from 50mg to 25mg -- at single tablet of 25mg on 10/5/15

Transitioned to all liquid for accuracy while tapering -- Horrible insomnia -- back to 25mg liquid and held until October 1, 2016

10/16 -- 11/18 tapered very slowly to 10.6mg.  No real improvement and never really stable so updosed to 12.5mg (1/2 a pill) for convenience and long hold.

After 8+ months of holding with no noticeable improvement decided to add .4ml of liquid Prozac (about 1.5mg) to see if that improves the situation

Supplements, Magnesium, D3, Omega 3, curcumin, Valerian, 81mg Aspirin, L-Theanine, Vit. C,

 

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Congratulations Petunia!  

1995 - 2015 antidepressants and antianxiety medicine
Multiple failed attempts to quit/taper anti d/anti anxiety meds since 2008

June 17, 2016 began prozac bridge to get off of effexor xr, stopped effexor xr on June 24, 2016, could not tolerate prozac due to severe side effects so I had to stop it  Currently...300 mg ER of lithium, 1 mg of estradiol, 60 mg propranolol ER, Fish oil 2 x a day, Magnesium Glycinate,  zinc, vitamin c, vitamin d, NAC

 

 

 

 

 

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  • Moderator Emeritus

Glad things overall seem to be going well for you, Petunia! I also admire your courage to face the CPTSD as these feelings (memories?) come up for you. It sounds like perhaps as the fog lifts some of the pieces are coming together for you (when you say it's coming together). When this happens for me, I like to try and think of it as "dual recovery" - recovery from the meds and WD process, and recovery from whatever other hardships/traumas we have faced (which perhaps drove us to the meds in the first place).

My suggestions are not medical advice. They are my opinions based on my own experience, strength and hope.

You are in charge of your own medical / healing / recovery choices.

My success story |  My introduction thread

 

ZOLOFT FREE - COMPLETELY DRUG FREE 4/28/2019! - total time on 28+ years

BENZO FREE! 4/7/2018 - total time on 27+ years

REMERON FREE! 12/11/2016 - total time on 15 months

Caffeine & Nicotine Free 2014 / 2015 - smoked for 28 years

Alcohol Free 4/1/2014 - drank for 30 years

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  • 3 weeks later...
  • Moderator Emeritus

I'm feeling a bit guilty because I haven't logged on here for so long, but its because I've been feeling a lot better and have  been busy.  Instead of spending 23 hours a day on my bed, trying to stay occupied and distracted from awful symptoms, I'm usually up, dressed and actually doing something around the house or out.

 

I had a lovely 2 - 3 week window a while back, the kind where all my symptoms completely disappeared and I was sure I was fully recovered, then I came back to baseline unfortunately and was fighting the denial for a few days. But even so, my baseline has improved such a lot and apart from a 1 - 2 hour shaky period in the mornings following the transition from sleep, most of my symptoms now are physical and annoying rather than being completely debilitating.

 

The constant, intense fear has gone, which is such a relief. And the restless, depressed irritability which often followed the fear is also mostly gone. It returns briefly at times now, along with some short surges of neuro-emotion, but nothing lasts very long now, I seem to have the capacity to think my way back to a better state of mind, something I haven't been capable of for a long time.

 

I'm still getting a bit of dp/dr at times, especially in stimulating environments, but I would still rather be out doing something interesting, even though I have to take it easy at times still. After being pretty much restricted to my house and room for most of the last 4 years, its such a sense of freedom and exhilaration to be out in the world again, feeling safe and usually quite comfortable.

 

Some dizziness remains, but it comes and goes. I still get some physical pain, mostly on the right side of my body, but it seems to be related to when I overdo any physical activity. I'm also not back to normal cognitively, with some memory issues still remaining along with vocabulary and word recall, but I'm learning new things again and retaining much more of what I learn.

 

One of the most cruel symptoms, which I was certain would never lift, has reduced a lot. I'm able to experience positive emotions again, the anhedonia is lifting at a fast pace. The impact of all my emotions feels a bit overwhelming now, at times. After being drugged, and emotionally suppressed for so long, I'm having to adjust to feeling my own natural emotions again.

 

Its difficult now to draw a line between the remaining symptoms from withdrawal and issues related to the trauma of the whole withdrawal experience and what has resulted from spending more than 3 years, basically immobile and isolated from the outside world.... its changed me and I doubt I will ever be the same person again.  I'm yet to find out who I am now, without my symptoms, they have defined me and my life for so long. I can't go back to who I was before, this experience has changed my priorities and values to an extent, so I feel like I have some integrating to do, along with finding out who I am.

 

I was sure I wasn't going to recover. Eighteen months ago, when I was still suffering badly with intense symptoms for the majority of the day, I couldn't see ahead into a future where I would feel as well as I do now. There seemed no way out, even though I was partially recovered, I still felt very much stuck inside a nightmare world of frightening emotions and negative thinking, completely incapable of doing anything to help myself.

 

It was nothing but holding onto my belief, that everyone eventually recovers, that kept me going, even though at times I didn't even believe that. But with time, lots of it, I've been getting better and now I seem to have turned a corner, even though my last window closed.

 

If I had to attribute it to anything, it would be the juicing I've been doing. I've kept it up and now my diet contains a lot more nutrition from fresh vegetables every day. I juice mostly vegetables, adding maybe an apple or a pear or a couple of kiwis.

 

But it might just be a coincidence that my accelerated recovery rate coincided with juicing, I guess I will never know.

 

Thanks Andy, dt girl and elbee for visiting my thread and your encouraging comments.

I'm not a doctor.  My comments are not medical advise. These are my opinions based on my own experience and what I've learned. Please discuss your situation with a medical practitioner who has knowledge of tapering and withdrawal...if you are lucky enough to find one.

My Introduction Thread

Full Drug and Withdrawal History

Brief Summary

Several SSRIs for 13 years starting 1997 (for mild to moderate partly situational anxiety) Xanax PRN ~ Various other drugs over the years for side effects

2 month 'taper' off Lexapro 2010

Short acute withdrawal, followed by 2 -3 months of improvement then delayed protracted withdrawal

DX ADHD followed by several years of stimulants and other drugs trying to manage increasing symptoms

Failed reinstatement of Lexapro and trial of Prozac (became suicidal)

May 2013 Found SA, learned about withdrawal, stopped taking drugs...healing begins.

Protracted withdrawal, with a very sensitized nervous system, slowly recovering as time passes

Supplements which have helped: Vitamin C, Magnesium, Taurine

Bad reactions: Many supplements but mostly fish oil and Vitamin D

June 2016 - Started daily juicing, mostly vegetables and lots of greens.

Aug 2016 - Oct 2016 Best window ever, felt almost completely recovered

Oct 2016 -Symptoms returned - bad days and less bad days.

April 2018 - No windows, but significant improvement, it feels like permanent full recovery is close.

VIDEO: Where did the chemical imbalance theory come from?



VIDEO: How are psychiatric diagnoses made?



VIDEO: Why do psychiatric drugs have withdrawal syndromes?



VIDEO: Can psychiatric drugs cause long-lasting negative effects?

VIDEO: Dr. Claire Weekes

 

 

 

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That is a wonderful update Petu.

I can so relate to everything.

What an inspiring encouraging hope-filled post.

 

nz11

Its amazing what a kiwi or two can do go the kiwis' !!

Thought for the day: Lets stand up, and let’s speak out , together. G Olsen

We have until the 14th. Feb 2018. 

URGENT REQUEST Please consider submitting  for the petition on Prescribed Drug Dependence and Withdrawal currently awaiting its third consideration at the Scottish Parliament. You don't even have to be from Scotland. By clicking on the link below you can read some of the previous submissions but be warned many of them are quite harrowing.

http://www.parliament.scot/GettingInvolved/Petitions/PE01651   

Please tell them about your problems taking and withdrawing from antidepressants and/or benzos.

Send by email to petitions@parliament.scot and quote PE01651 in the subject heading. Keep to a maximum of 3 sides of A4 and you can't name for legal reasons any doctor you have consulted. Tell them if you wish to remain anonymous. We need the numbers to help convince the committee members we are not isolated cases. You have until mid February. Thank you

Recovering paxil addict

None of the published articles shed light on what ssri's ... actually do or what their hazards might be. Healy 2013. 

This is so true, with anything you get on these drugs, dependance, tapering, withdrawal symptoms, side effects, just silent. And if there is something mentioned then their is a serious disconnect between what is said and reality! 

  "Every time I read of a multi-person shooting, I always presume that person had just started a SSRI or had just stopped."  Dr Mosher. Me too! 

Over two decades later, the number of antidepressant prescriptions a year is slightly more than the number of people in the Western world. Most (nine out of 10) prescriptions are for patients who faced difficulties on stopping, equating to about a tenth of the population. These patients are often advised to continue treatment because their difficulties indicate they need ongoing treatment, just as a person with diabetes needs insulin. Healy 2015

I believe the ssri era will soon stand as one of the most shameful in the history of medicine. Healy 2015

Let people help people ... in a natural, kind, non-addictive (and non-big pharma) way. J Broadley 2017

 

 

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Petunia.  Don't feel guilty - you deserve to enjoy this window of recovery.  :)   This is such a positive update and I'm so happy for you . I hope this is perhaps a turning point for you and that you will continue to make giant strides forward in your healing. I've been doing the juicing and green smoothies also and I think it's been a major factor in my recovery , as well as time itself. I believe it " fills in the gaps" nutritionally that the drugs and today's lifestyle deplete.

This is awesome !

Ali

Many SSRI's and SSNRI's over 20 years. Zoloft for 7 years followed by Effexor, Lexapro, Prozac, Cymbalta, Celexa, Pristiq, Valdoxan, Mianserin and more - on and off. No tapering. Cold turkey off Valdoxan - end of May 2014

 

                                                  Psych Drug - free since May 2014
.
         

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So Glad you are feeling better...I hope the improvement continues!

1995 - 2015 antidepressants and antianxiety medicine
Multiple failed attempts to quit/taper anti d/anti anxiety meds since 2008

June 17, 2016 began prozac bridge to get off of effexor xr, stopped effexor xr on June 24, 2016, could not tolerate prozac due to severe side effects so I had to stop it  Currently...300 mg ER of lithium, 1 mg of estradiol, 60 mg propranolol ER, Fish oil 2 x a day, Magnesium Glycinate,  zinc, vitamin c, vitamin d, NAC

 

 

 

 

 

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  • Moderator

This is sounding wonderful Petu. Be careful not to over do it though and trip things off again. Moderation not mania.

20 years on Paxil starting at 20mg and working up to 40mg. Sept 2011 started 10% every 6 weeks taper (2.5% every week for 4 weeks then hold for 2 additional weeks), currently at 7.9mg. Oct 2011 CTed 15oz vodka a night, to only drinking 2 beers most nights, totally sober Feb 2013.

Since I wrote this I have continued to decrease my dose by 10% every 6 weeks (2.5% every week for 4 weeks and then hold for an additional 2 weeks). I added in an extra 6 week hold when I hit 10mg to let things settle out even more. When I hit 3mgpw it became hard to split the drop into 4 parts so I switched to dropping 1mgpw (pill weight) every week for 3 weeks and then holding for another 3 weeks.  The 3 + 3 schedule turned out to be too harsh so I cut back to dropping 1mgpw every 4 weeks which is working better.

Final Dose 0.016mg.     Current dose 0.000mg 04-15-2017

 

"It's also important not to become angry, no matter how difficult life is, because you can loose all hope if you can't laugh at yourself and at life in general."  Stephen Hawking

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That's wonderful Petunia. Tears of joy for you today from me!

Lexapro: started in 2002 at 10 mgs.

Ambien: started as a as needed sleep aid in 2010.

Quit Lexapro cold turkey in June 20015 due to contributing to low sodium issues.

Restarted Lexapro in late November for a week (only 5 mgs) but quit due to dizziness side effects. Side effects worsened for 3 weeks until

12/24/15: Protracted WD hit, experienced extreme anxiety, insomnia lack of full concentration and social challenges.

Reinstated Lexapro on 1/1/16 at 5 mgs. Increased per Dr to 7.5 MG. Tapered off Lexapro in March 2016.

Started 50MG of Seroquel in late January 2016 for bedtime to help in eliminate Ambien. Tapered off both Seroquel and Ambien in March 2016.

2/14/16: Prescribed both Remeron (15 MG) and Temazapam (15 MG) for sleep. Also use Klonopin and Ambien again in place of Temazapam to avoid addiction. However I did take Temazapam 60 straight days

6/15/16: Stopped use of all benzo's and now use Belsomra 1-2 times a week. Still on 15 MG of Remeron

10/11/16: Off all psych medications

 

After kindling, trying to regain my strength suffering from severe mental and physical fatigue.

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Petunia, what a wonderful update on journey being close to recovering from this horrific experience. I can relate so much to what you have gone through. I think fellow c/t know the really low dephts of turmoil that wd can bring. I admire the way you write and express yourself on finding yourself and what has happened. I am not able to express myself the way you do because of cognitive difficulties but when I read your post I feel exactly the same way. It must be exhilarating to feel well and see light at the of tunnel on this journey. Ps22

Celexa 20mg 2008-2012 for Social Anxiety

Failed attempt to stop reinstated

1 year taper skipping doses

Celexa free 12/2013

1/2014-5/2014 took 5 htp every other day

Failed Reinstatement 5mg of Celexa on 12/2014 for 5 days only

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Brilliant Petunia - so pleased for you!

Chronic Fatigue Syndrome for 32 years, given AD for this condition alone in 2000

Zoloft 100mg for 15 years, last five of these complained about adverse effects,

unable to tolerate other meds even supplements

Slowly felt sicker, advised by different Dr maybe on ads for too long

Cut back 100 - 50 over 6 months, still getting worse, so stopped over about 6 weeks starting Dec 2014

First month, slow, emotional, useless then POW! Horrendous withdrawal symptoms, completely non-functional

for about five months, slowly started to come back to life and continue with waves and windows, still more bad than good, but bads are less bad, and goods slightly better each time

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I am so happy to read this update Petu live it... enjoy every moment you can. 

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

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Petu this is wonderful!! I'm so happy for you! You really really deserve it. You've had such a terrible time. I'm so, so, so glad things are changing at last!

The only way out is through.

 

Aug 2013 - Augmentin leading to akathisia

Sept-Nov 2013 - Citalopram 20mg, severe reaction, off at 5mg. Valium 4mg, prn

Oct 2013 - 5 zopiclone tablets, 7.5mg

End Nov 2013-end Feb 2014, Seroquel, top dose 150mg, off at 25mg

End Nov 2013-early march 2014, Zoloft 100mg top dose, off at 25mg

End Dec-2013-early April 2014, lorazepam 1mg prn

April 3rd 2014 zoloft 5mg for a few days. 18/4/14 - zoloft, 1mg. Came off at 0.35 mg,14th June 2014

29 June 2014 - 1mg lorazepam, last ever

29 June 2014 - med free

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  • Moderator Emeritus

Petu,

 

Knowing that you are showing these great signs of improvement is such an uplifting thing for so many of us.

 

Thank you and keep on healing!

 

Best,

 

Andy

Sertraline 50mg and Clonazapam .375mg from 2000 -- symptoms of dizziness Spring 2012

increased to .5 Clonazapam and 100mg Sertraline -- no improvement

Benzo microtaper from November 2012 to November 2014 (followed benzo sites "taper benzo first")

Started Sertraline taper in December 2014 cut by 25mg to 75mg; 62.5mg 1/1/15 and 50mg on 2/1/15

Held at 50mg through April 5 to use liquid 
Reduced dosage in 10% or less drops from 50mg to 25mg -- at single tablet of 25mg on 10/5/15

Transitioned to all liquid for accuracy while tapering -- Horrible insomnia -- back to 25mg liquid and held until October 1, 2016

10/16 -- 11/18 tapered very slowly to 10.6mg.  No real improvement and never really stable so updosed to 12.5mg (1/2 a pill) for convenience and long hold.

After 8+ months of holding with no noticeable improvement decided to add .4ml of liquid Prozac (about 1.5mg) to see if that improves the situation

Supplements, Magnesium, D3, Omega 3, curcumin, Valerian, 81mg Aspirin, L-Theanine, Vit. C,

 

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  • Moderator Emeritus

Thanks for the update, and good to hear you're on the up and up. It's inspiring for me to hear you were in a place of such hopelessness but that you've been able to move through that dark place, where you can now find periods of happiness and joy in the present and envision a fulfilling future. I'm happy for you :)

My suggestions are not medical advice. They are my opinions based on my own experience, strength and hope.

You are in charge of your own medical / healing / recovery choices.

My success story |  My introduction thread

 

ZOLOFT FREE - COMPLETELY DRUG FREE 4/28/2019! - total time on 28+ years

BENZO FREE! 4/7/2018 - total time on 27+ years

REMERON FREE! 12/11/2016 - total time on 15 months

Caffeine & Nicotine Free 2014 / 2015 - smoked for 28 years

Alcohol Free 4/1/2014 - drank for 30 years

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Very happy that you are experiencing relief Petunia, it's such a balm when it happens.

 

I also appreciate your honest perspective on how traumatizing withdrawal is as an experience.  That is very true and it does change us because of it.

 

I do believe in your ongoing healing and that you will have more insights to share.

 

Wishing you continued healing of the deepest kind. 

 

Hibari

9/2013-4/2014:  After moms death, was prescribed a series of meds for short periods of time that didn't work. Zoloft, Lexapro,  Nortriptyline, Liquid Prozac, Cymbalta. 

1/2014-9/2014. Clonzapam: Given Lamictal, stopped Clonzapam at .125mgs  

1/2015-4 2017 Remeron: 41.25 -0.025mgs

7/2015-11/2018 Lamictal: 200mgs-0.05 mgs Had paradoxical reaction to Lamictal wd, broke my heart to take a benzo but wasn't sleeping. 

3/28/2019 -2/5/ 2021  Clonazapam: 0.625mgs-.00115 Med Free 

July 27th, 2022**Severe Setback due to surgery/ anesthesia. 

9/7/22-10/4/22 Trazadone 50-100mgs for sleep, 10/13/22-11/13/22 Trazadone 1 mg to stabilize

10/4/22-11/20/22 Remeron 7.5mgs (for sleep doesn't work) 11/20/22 7.3 - 12/31/22 6.3 

2023: 1/18/23 6.1 - 6/6/23 3.6  6/16 3.4  6/28 3.0 7/12 2.7  7/28 2.5 8/11 2.2 8/23 2.0  9/5 1.8  9/16 1.6  9/30 1.4  10/13 1.2  10/26 1.0  11/9 0.8  11/22 0.6  12/6 0.4  12/23 0.2.

2024 1/4/24  Remeron/Mirtazapine free 

Additional Support:  Armour Thyroid 75mgs, Magnesium Glycinate 300-500mgs,  L-theanine 

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Ever since I first came to this forum I have found your posts on various threads and on your own thread to be so inspiring. I can relate to so many of your symptoms and the isolation. Everytime I come upon one of your posts I have been uplifted and inspired. I'm so glad that you had such a wonderful window and that even your baseline is improving. 

 

Thank you so much for all your insights, I'm so happy for you and wish you continued improvements.

Buspirone to 45mg, Cold Turkey St. John's Wort 600mg Jan 1, 2016. Cold Turkey Buproprion 150SR June 1 due to severe Akathisia that did not decrease with reducing the dosage.

Clonazepam 1.25mg, started daily liquid micro taper of clonazepam on Nov 1, 2016. Changed to sxs based taper 01/17. Slow and steady

11/10/16 .4104 3X day; 11/17/16 .4091 3x day; 11/28/16 .406 3x day; 12/4/16 .404 3x day; 12/11/16 .4028 3x

01/12/17 .39267 3x day holding; 02/25/17 .3902 3x day, holding. .3823mg 3x day. Tapering at .0007462mg as able;  09/21/18 .3542mg 3x day.  1/3/2019 .339mg 3x day. 6/25/19 .3307mg 3x day. 8/24/19 .317mg 3x day 2/13/20 .2886mg 3x day 3/18/21 .2388mg 3x day 06/17/21 .2239mg 3x day 09/13/22 .1682 3x day

L-theanine 200 mg, L-glycine 500mg 1x day and 1000mg 1x day, vit C 1000 mg sustained release 2x day. Fish oil 1800mg EPA + DHA. Vit E 400 IU, magnesium in various forms. Inositol 3x a day abt 14mg, Taurine 500mg.

5/20/16 Using Cranial Eletrotherapy Stimulation. 2x day 1 hour at level 1. Using Alph-Stim AID. 

 

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  • Moderator Emeritus

Wow! Thanks everyone for your support, encouragement and comments. I'm so glad that documenting my recovery journey has been helpful to others, it gives it all some extra meaning.

 

I just checked in here while drinking my morning juice, I hate knowing that others are still going through the torment of what these drugs can do to us, it makes me sad and yes, a little guilty that I'm about to head out for a day exploring a neighboring town. But I'm looking forward to a day of adventure, while the rain holds off for another day.

I'm not a doctor.  My comments are not medical advise. These are my opinions based on my own experience and what I've learned. Please discuss your situation with a medical practitioner who has knowledge of tapering and withdrawal...if you are lucky enough to find one.

My Introduction Thread

Full Drug and Withdrawal History

Brief Summary

Several SSRIs for 13 years starting 1997 (for mild to moderate partly situational anxiety) Xanax PRN ~ Various other drugs over the years for side effects

2 month 'taper' off Lexapro 2010

Short acute withdrawal, followed by 2 -3 months of improvement then delayed protracted withdrawal

DX ADHD followed by several years of stimulants and other drugs trying to manage increasing symptoms

Failed reinstatement of Lexapro and trial of Prozac (became suicidal)

May 2013 Found SA, learned about withdrawal, stopped taking drugs...healing begins.

Protracted withdrawal, with a very sensitized nervous system, slowly recovering as time passes

Supplements which have helped: Vitamin C, Magnesium, Taurine

Bad reactions: Many supplements but mostly fish oil and Vitamin D

June 2016 - Started daily juicing, mostly vegetables and lots of greens.

Aug 2016 - Oct 2016 Best window ever, felt almost completely recovered

Oct 2016 -Symptoms returned - bad days and less bad days.

April 2018 - No windows, but significant improvement, it feels like permanent full recovery is close.

VIDEO: Where did the chemical imbalance theory come from?



VIDEO: How are psychiatric diagnoses made?



VIDEO: Why do psychiatric drugs have withdrawal syndromes?



VIDEO: Can psychiatric drugs cause long-lasting negative effects?

VIDEO: Dr. Claire Weekes

 

 

 

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I just checked in here while drinking my morning juice, I hate knowing that others are still going through the torment of what these drugs can do to us, it makes me sad and yes, a little guilty that I'm about to head out for a day exploring a neighboring town. But I'm looking forward to a day of adventure, while the rain holds off for another day.

 

Let us know what pokemon`s you found ;) 

08 Cipralex 10mg for about 6 months. 11-12 Cipralex 20mg. Unsuccesful WD. 12-13 Zoloft 100mg with Diazepam 10-20mg as needed for anxiety.
Fall 13 Tapering Zoloft 100->50->25->12,5->0 in 2,5 months and CT Diazepam. 12/24/13 RI Zoloft 12,5mg
.

1/21/14 11mg

3/18/14 9,9mg

2/18/14 8mg

4/22/14 7,6mg

5/5/14 7,2mg

5/12/14 -> cutting 0,5mg per week, holding when necessary.

8/18/14 -> cutting 0,25mg per week holding when necessary.

10/20/2014 -> cutting 0,1mg per week, holding when necessary.
12/28/2014 Jump!

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Wow! Thanks everyone for your support, encouragement and comments. I'm so glad that documenting my recovery journey has been helpful to others, it gives it all some extra meaning.

 

I just checked in here while drinking my morning juice, I hate knowing that others are still going through the torment of what these drugs can do to us, it makes me sad and yes, a little guilty that I'm about to head out for a day exploring a neighboring town. But I'm looking forward to a day of adventure, while the rain holds off for another day.

Never ever feel gulity. You definitely earned it. Enjoy your adventure!!

CD off meds in July 2015, not on any medication since. Went through WD nightmare, now dealing with normal anxiety, but decided not to leave this forum yet because I want to support and give hope to others. ♡

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Wonderful news Petu!

 

After months and months of suffering in the darkness, you are now seeing the light at the end of the tunnel - you should be proud of yourself.

 

You have been incredibly brave, and are an example of what the human spirit is capable of.

 

I hope you will be able to plan more and more things to do in future as you start reclaiming your life.

Dose History: 19 Feb 2014 - Escitalopram 10mg daily June 2015 - Started taper, 5mg every other day July 2015 - 5mg every 2 days August 2015 - 5mg every 3 days September 2015 - 5mg every 4 days Sept 14th - Completed tapering, but at 7 weeks "drug free" I suffered serious WD symptoms as a consequence of "incorrect" tapering. Nov 25 2015 - Re-instated Cipralex @ 2.5mg daily. WD symptoms faded. Held at this dose and experienced "windows and waves". 12 Oct 2017 Reduced dose to 1.25mg. 13 Mar 2018 Reduced dose to 0.625mg (approx.). 16 April 2018 0mg. Windows and waves triggered by stress (IBS/reflux, headaches, sinus issues) Aug 2019 Mirena coil fitted 6 Jan 2020 MAJOR Wave hit 19 months following last dose (protracted WD).  Symptoms listed below Mar 2020 Mirena coil removal.

Therapy: Nov 15th 2016 Re-started therapy Jan 19th 2017 Started CBT Dec 2017 Started listening to Hypnotherapy CD (self-esteem). Nov 2019 Started couples therapy.

Supplements: "Bioglan" Biotic Balance Ultimate Flora 10 billion CFU, live Bacteria, Probiotic, suitable for Vegetarians, with Lactobacillus Acidophilus, Lactobacillus Rhamnosus, Bifidobacterium Longum"Pukka" Vitalise a unique blend of 30 energising botanicals.

Diet: 16 April 2018 Detox cleanse / anti-candida for 90 days. Jan 2020 Started "small plate" diet (i.e child size portions).

Exercise: Stretching, Yoga, Pilates, Spinning, Elliptical/upper body workout, walking.

Medical Test Results: 4 Jan 2017 Homeopathic Treatment starts 24 Feb 2017 Started weight loss program 24 Mar 2017 Naturopathic Treatment + anti-Candida diet started due to suspected Candida Related Complex (CRC). DETOXED for 7 weeks to "re-set" gut. April 2017 "Genova Diagnostics" Comprehensive Stool Analysis NEGATIVE; Full Blood Count (Normal) / Blood Cholesterol: 5.6 (Borderline) / Blood Sugar (Normal) / 28 Jun 2017 FSH 8.2 / 14 Nov 2017 FSH 17.7 Dec 2017 Blood Cholesterol: 3.9 (Normal) / Kidney Function (Normal) / Blood Sugar (Normal). December 2017 "Genova Diagnostics" Food panel allergy (bloodwork) analysis - a few "VERY LOW/VL" allergens; Mar 2018 "Genova Diagnostics" SIBO urine analysis: High Level of Yeast/fungal markers found in small intestine but NO SIBO.  April 2018 Thyroid (Normal) / Full Blood Count (Normal) / FSH (Normal). 16 April 2018 Started anti-Candida diet - 3 month protocol.   25 March 2020 All test results "Normal". CRP" 5 mg/L (normal range to 0-5 mg/L).

Symptoms:  Flu-like symptoms, anxiety, anhedonia, sinus headaches right-side (severe), IBS issues/reflux (severe)**, tinnitus, fatigue, inner tremor, nausea, chills/hot flushes, pounding heart, muscular issues including stiff left hip flexor, intense anger, PSSD (ongoing).  **Histhamine intolerance (suspected).

Major Life Events: 

Re-located to UK from Canada: Jan 2016

My father died: 5:05pm, Monday 5 Feb 2018 Last Lexapro dose: 16 April 2018 (its now been over a year since I quit ADs)  Moved house: Friday 23rd February 2018  "Divorced" toxic Mother: Monday 26 March 2018 Starting working again: 19 November 2018  Diagnosed with: 5th August 2021 PTSD/C-PTSD Diagnosed with: March 2022 Interstitial Cystitis (IC)/Painful bladder syndrome

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Happy travels :) 

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

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I am so glad for you too, it gives us a glimmer of hope!  I am keen to start juicing, as you seem to think that was the key!  What vegetables do you juice?

1995-2007      20mg Aropax/Paxil for pain.  Years of up and down doses

2008                Endep, Lexapro and then Esipram (hell!) CT (oh dear!)

2009                20mg Aropax.  Tried skipping doses for a year (more hell!)

                        2010                10mg.  10% taper.  Lasted 4 months. Crashed again

2011                5% taper. 9mg-7mg (hell got even worse!)

2012                2.5% taper.  6.6mg – 5.6mg (worser still & unbearable)

2013                5% taper.  Big mistake.  5.5mg – 4.6mg  (even worserer)

2014                2.5% taper.  4.9mg – 4.5mg;    2015 2.5% taper 4.4 - 4.0mg

2016                2.5% taper.  3.9mg  Feb 3.8   Mar 3.7  May 3.6   Jul 3.5

2017                2.5% taper.  Jan 3.4;   Mar 3.35;  Apr 3.3; Oct 3; Dec 2.9;

2018                2.5% taper. Jan 2.8; Mar 2.7; Mar: 2.75; Jun 2.7; Aug 2.6; Oct 2.5; Nov 2.4; Dec 2.3

2019                Jan 2.2; Feb 2.1;

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  • Moderator Emeritus

Big, disappointing sigh :( ...

 

I guess I've been putting this off a few days, because I just don't want to accept it, but a wave hit a few hours after my last post, my adventure amounted to mostly me struggling to figure out what was going wrong, wondering why I wasn't enjoying anything any more and eventually giving up and heading home.

 

Suddenly, the dark shadow of fear, doubt, confusion and foggy thinking descended on me, there was no obvious outside trigger, so I started attributing it to things... it was the way that person looked at me, the way the buildings looked, the new housing developments which had grown so fast, too many people too busy all around me... and then when I was in another area, the lack of people, there was something wrong because the playground was deserted. Everything suddenly had an ominous, gloomy feel about it and I did too, but I kept going for an hour or two, then the physical pain started and temp dysregulation and over the course of the next few hours I descended into a full on wave and spent the next day in bed... that was Wednesday and I've been 'fighting' it ever since.

 

Bad dreams, waking in fear with adrenaline surges, not wanting to leave my room. Same pattern of waiting until evening to start feeling better. I've been trying to force myself to get up and go out, hoping that I can brush of the 'bad mood', but of course, it doesn't work, instead the increased stress brings increasing symptoms and I end up feeling like I will collapse if I don't get home to rest... and its all so frustrating because a week ago I was a completely different person who has now disappeared leaving me wondering if I imagined it all.

 

I'm in shock again, wondering how I could have felt so good, confident, capable, inspired, enthusiastic about life again and so hopeful, but now, be filled with darkness and dread again... it makes no sense, none at all and even though intellectually I understand its the windows/waves thing, emotionally, its very difficult to handle. My mind is constantly struggling to find a logical cause and a way to secure some control or predictability among all this chaos.

 

So for the last week, I've been mostly back in basic, survival mode. Still juicing though and still managing to get out for a few minutes later in the day to spin a few poke stops and catch the odd pidgy or voltorb, which is all we get in our little park during the day, so I guess as far as waves go, its still an improvement on how I was 2 years ago. I just didn't want to drop below baseline again, I really didn't want another wave (does anyone)

 

I'm fighting the negative thoughts too, my strong inner critic has inflated itself again and is telling me that I should have known better to think I could start enjoying myself and having fun, 'see..... this is what happens when you try and be like other 'normal' people who deserve to be happy, this is your punishment for thinking you could escape your destiny... blah blah' :wacko:

 

Let us know what pokemon`s you found ;)

 

Its hard to remember now, probably a few pidgeys and ratatas. Nothing amazing. I mainly went because in the ingress game, its a strong 'enlightenment/green' area and I needed some higher level portals to hack, I'm surrounded by blue portals around here, its good for fast leveling, but not so good for getting good items. But now that I'm back in a wave, it all seems ridiculous and somehow a very bad idea to spend my time running around chasing invisible things which end up as nothing but pixels on a screen... I should be...... ??? Acting my age, getting a job, helping other people, doing something more worthwhile....

 

Yesterday I was dealing with increased sound sensitivity again, every noise triggered surges of heat and adreneline rushes. I was hiding in my room, trying to protect myself from the onslaught, waiting for my daughter and her boyfriend to leave so it would be a bit quieter and hating myself for wanting my daughter to leave. Then I spent the next two hours in bed, trying to distract myself, just like I have been for the last several years... I hate this, its so not fair. I feel bad, sick, and can't do anything and not being able to do anything makes me depressed and miserable and hopeless and so I got up, got dressed and went out to find a (virtual) gym to train in. But in my current state, everything is feeling too difficult, too frustrating. My normal emotions are overwhelming, I can't tolerate them, my body starts shaking and I get overheated, DP/DR starts to increase and my brain shuts down, I forget where I am as things start looking weird.

 

I gave up that plan and drove towards the beach, thinking a gentle stroll along the walking trail might be more helpful... it sort of was for a few minutes, but it was cold and windy and I seemed to be more sensitive to extremes than I was last week and I felt the panic starting to rise the further I got from my car. Eventually I accepted defeat and went home, just as a storm hit, I wouldn't have been able to stay out anyway, but last week I would have tried.... I want my happy back :mellow:

 

GrandmaD, after this little set-back, I'm not so sure juicing is as helpful as I thought it was. Apparently, I'm still in the 'normal' windows and waves pattern of recovery.  I wasn't expecting to be hit with a wave of symptoms this bad, having some of them return at a significant intensity at this stage with no obvious cause.

 

But I'm holding onto my faith in recovery, believing that a more nutritious diet and light exercise is probably helping, or at least supporting the healing process better than the alternative. I think a few posts up I listed what went into my juice recipe that day. Today I had:

 

Carrots, celery, spinach, red lettuce, lemon, ginger, kiwi, apple, pear, cucumber. I usually try and use more leafy greens, but I've run out and haven't been up to going out shopping as much as I was before the wave hit.

 

I'm sorry about this negative update, I thought about not including it, waiting until I was feeling better again before posting again, but if this is the way recovery happens, for me anyway, then I might as well continue documenting my reality as it is, hopefully this one wont last too long.

I'm not a doctor.  My comments are not medical advise. These are my opinions based on my own experience and what I've learned. Please discuss your situation with a medical practitioner who has knowledge of tapering and withdrawal...if you are lucky enough to find one.

My Introduction Thread

Full Drug and Withdrawal History

Brief Summary

Several SSRIs for 13 years starting 1997 (for mild to moderate partly situational anxiety) Xanax PRN ~ Various other drugs over the years for side effects

2 month 'taper' off Lexapro 2010

Short acute withdrawal, followed by 2 -3 months of improvement then delayed protracted withdrawal

DX ADHD followed by several years of stimulants and other drugs trying to manage increasing symptoms

Failed reinstatement of Lexapro and trial of Prozac (became suicidal)

May 2013 Found SA, learned about withdrawal, stopped taking drugs...healing begins.

Protracted withdrawal, with a very sensitized nervous system, slowly recovering as time passes

Supplements which have helped: Vitamin C, Magnesium, Taurine

Bad reactions: Many supplements but mostly fish oil and Vitamin D

June 2016 - Started daily juicing, mostly vegetables and lots of greens.

Aug 2016 - Oct 2016 Best window ever, felt almost completely recovered

Oct 2016 -Symptoms returned - bad days and less bad days.

April 2018 - No windows, but significant improvement, it feels like permanent full recovery is close.

VIDEO: Where did the chemical imbalance theory come from?



VIDEO: How are psychiatric diagnoses made?



VIDEO: Why do psychiatric drugs have withdrawal syndromes?



VIDEO: Can psychiatric drugs cause long-lasting negative effects?

VIDEO: Dr. Claire Weekes

 

 

 

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  • Moderator Emeritus

Dear Petunia,

 

it is so very precious I believe for all of us that you shared this with us. It is totally incredible how this healing happens and you are in totally unchartered territory where nobody has been before but many of us hoping to arrive at. You are telling us what it is like outside the tunel.

 

It takes an incredible amount of endurance and courage to go through this. Honestly, before you I wouldn't even think something like this wouldn't be possible. But i know that sometimes we just have no choice except to go on. I also depend on finding a cause to have  asense of contorl and can't accept that these things usually don't have rhyme or reason. These are totally unbeliavable twists and turns.

 

I believe this will be short lived and after this we again know that we can never know what to expect short term but long term healing is happening.

 

Big hugs!

Current: 9/2022 Xanax 0.08, Lexapro 2

2020 Xanax 0.26 (down from 2 mg in 2013), Lexapro 2.85 mg (down from 5 mg 2013)

Amitriptyline (tricyclic AD) and clonazepam for 3 months to treat headache in 1996 
1999. - present Xanax prn up to 3 mg.
2000-2005 Prozac CT twice, 2005-2010 Zoloft CT 3 times, 2010-2013 Escitalopram 10 mg
went from 2.5 to zero on 7 Aug 2013, bad crash 40 days after
reinstated to 5 mg Escitalopram 4Oct 2013 and holding liquid Xanax every 5 hours
28 Jan 2014 Xanax 1.9, 18 Apr  2015 1 mg,  25 June 2015 Lex 4.8, 6 Aug Lexapro 4.6, 1 Jan 2016 0.64  Xanax     9 month hold

24 Sept 2016 4.5 Lex, 17 Oct 4.4 Lex (Nov 0.63 Xanax, Dec 0.625 Xanax), 1 Jan 2017 4.3 Lex, 24 Jan 4.2, 5 Feb 4.1, 24 Mar 4 mg, 10 Apr 3.9 mg, May 3.85, June 3.8, July 3.75, 22 July 3.7, 15 Aug 3.65, 17 Sept 3.6, 1 Jan 2018 3.55, 19 Jan 3.5, 16 Mar 3.4, 14 Apr 3.3, 23 May 3.2, 16 June 3.15, 15 Jul 3.1, 31 Jul 3, 21 Aug 2.9 26 Sept 2.85, 14 Nov Xan 0.61, 1 Dec 0.59, 19 Dec 0.58, 4 Jan 0.565, 6 Feb 0.55, 20 Feb 0.535, 1 Mar 0.505, 10 Mar 0.475, 14 Mar 0.45, 4 Apr 0.415, 13 Apr 0.37, 21 Apr 0.33, 29 Apr 0.29, 10 May 0.27, 17 May 0.25, 28 May 0.22, 19 June 0.22, 21 Jun updose to 0.24, 24 Jun updose to 0.26

Supplements: Omega 3 + Vit E, Vit C, D, magnesium, Taurine, probiotic 

I'm not a medical professional. Any advice I give is based on my own experience and reading. 

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  • Moderator

Hi Petu-- That's the problem with windows, they're frequently followed with waves. I'm so glad you had such an amazing several weeks and so sorry you're back in the thick of it.  The wonderful window gives you a solid base to AAF from.  You now know for certain that things can get better, and that all the thoughts and darkness you've slipped back into are all aborations  caused by WD.  If things hold to pattern this wave won't be as severe or last as long as before. Your healing is going quite well.

 

((((((((((((((((((((((HUGS)))))))))))))))))

20 years on Paxil starting at 20mg and working up to 40mg. Sept 2011 started 10% every 6 weeks taper (2.5% every week for 4 weeks then hold for 2 additional weeks), currently at 7.9mg. Oct 2011 CTed 15oz vodka a night, to only drinking 2 beers most nights, totally sober Feb 2013.

Since I wrote this I have continued to decrease my dose by 10% every 6 weeks (2.5% every week for 4 weeks and then hold for an additional 2 weeks). I added in an extra 6 week hold when I hit 10mg to let things settle out even more. When I hit 3mgpw it became hard to split the drop into 4 parts so I switched to dropping 1mgpw (pill weight) every week for 3 weeks and then holding for another 3 weeks.  The 3 + 3 schedule turned out to be too harsh so I cut back to dropping 1mgpw every 4 weeks which is working better.

Final Dose 0.016mg.     Current dose 0.000mg 04-15-2017

 

"It's also important not to become angry, no matter how difficult life is, because you can loose all hope if you can't laugh at yourself and at life in general."  Stephen Hawking

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  • 2 weeks later...
  • Moderator Emeritus

it is so very precious I believe for all of us that you shared this with us. It is totally incredible how this healing happens and you are in totally unchartered territory where nobody has been before but many of us hoping to arrive at. You are telling us what it is like outside the tunel.

 

 

Thanks bubble, it still surprises me that anyone finds my descriptions helpful or thinks there is value in continuing what feels like an endless repetition of the same cycle over and over.

 

I doubt many people end up going through this, especially those who taper properly. I think I'm a classic case of a long term medication user who stopped too fast, crashed badly and was further harmed by more attempts at irregular medication use to manage symptoms. Now I get to endure a multi-year protracted withdrawal and slow recovery process.

 

You are tapering Bubble, please don't worry that you will end up like me, with no control over your nervous system and its stability. With careful tapering, over a long enough time, it seems possible to keep hold of the reigns of your own life and not drive it off the cliff to crash at the bottom, shattering a NS into a million pieces, which then have to find their way back into place.

 

The Humpty Dumpty analogy is perfect, I think. As long as Humpty is still sitting on the wall, even if he has a few cracks and wobbles around a bit, he's still basically an intact, identifiable egg, with a shell, holding together everything which constitutes his functioning 'eggness'.  But once he falls off, as the rhyme warns, there's no fast fix for the damage.

 

That's the problem with windows, they're frequently followed with waves.

 

Yes, this seems to be my developing pattern. Windows are a fairly new addition to my pattern. My memory is bad, but I'm pretty sure I wasn't having regular windows for the first 2 years, just a slowly improving baseline, with regular waves. My first, real, multi-day windows started towards the end of last year,  a few months past the 2 year drug free mark.

 

Thank you for your encouragement Tom. This one has been in operation for 17 days now, but I think I'm over the worst of it and heading back towards baseline. The last 2 mornings haven't been as bad and I've been feeling 'better' earlier in the day again. During this wave, I'd gone back to experiencing symptoms all day again and only having a small amount of relief late afternoon or evening. But for the last two days, I've felt better earlier in the day again. My baseline from before this latest window/wave cycle was that I was feeling better from about mid-morning, so I seem to be heading back towards that.

 

Understanding and acceptance of my situation took me a long time, it was impossible to believe there was no fix for this. But I got there eventually and resigned myself to living what has come to feel like about 10% of a life.  I told myself stories which helped me believe that even a little bit of a life was better than no life, even if this reduced version is filled with some very unpleasant states and experiences.

 

The first half of this year, after a stress caused wave, I seemed stuck for months, then my baseline started rising again, I was so relieved, then my first window for 8 months. But at the time, as usual, I didn't recognize it as a window, not emotionally anyway, it was just my new reality with what seems to be my permanent present moment only perspective.

 

I'm wondering if this wave was caused by something which could have been avoided, so I can learn from it. It may have been a combination of too much 'good' stress, from suddenly getting out and about more than I was used to, getting a lot more regular exercise and experiencing 'too much' excitement and fun from my new hobby and pushing myself a little too much because of it. Followed by the emotional stress and shock of my sister almost having her house burn down when her insurance had lapsed. She's currently staying with our parents, because she's also sick from withdrawal, along with other physical conditions which make it impossible for her to take care of herself at the moment. She's bed bound and hasn't left our parents house for months. So her house is vacant at the moment, but someone had left the bathroom extractor fan running, it had overheated, caught fire and luckily had fallen into the toilet, it could have been much worse. But there is a lot of smoke damage and she is in no state to deal with it. Withdrawal makes us vulnerable and helpless and incapable of handling most of the normal responsibilities of life, so the thought of unexpected events and crisis is quite terrifying when in this state, the fact that life still goes on, bringing with it the bad stuff, is not something to think about, it adds more stress, which seems to be one of the main things to prevent or slow recovery.

 

I've done what I can to put myself in a situation with the least stress possible... which amounts to pretty much no life for myself, but its impossible to avoid stress from having bad things happen to our loved ones, that's been the source of most of my stress over the last few years and the added guilt of not being able to be as helpful and supportive as I want to be. Losing my ability to be the person I used to be, has been one of the most devastating aspects of going through this. All my physical and emotional resources have been used up, just on my own survival and getting through this, keeping myself alive from day to day, there has been very little left for anyone else, this is a very selfish process, for me anyway, its been the only way I've been able to survive I think.

 

Turning my focus away from trying to be the person I used to be and diverting my energy towards myself, was something of a turning point in my recovery. Its the moment when I realized that if I was going to survive, it had to be for me, there just wasn't enough life energy left here for anyone but myself. I got to a point of realizing that if I was going to survive, I had to emotionally let go of every other person in my life and make myself my own priority. Its been one of the hardest things I've had to do., but I feel I need to protect myself from the added stress for my own survival.  I'm not sure if life is worth living, having no emotional connections with other people, most of the time I feel completely alone and isolated, even when around others. There's also the guilt, which eats away at me, if I let it.  I hope this is a temporary stage and I will regain my ability to reconnect emotionally again.

I'm not a doctor.  My comments are not medical advise. These are my opinions based on my own experience and what I've learned. Please discuss your situation with a medical practitioner who has knowledge of tapering and withdrawal...if you are lucky enough to find one.

My Introduction Thread

Full Drug and Withdrawal History

Brief Summary

Several SSRIs for 13 years starting 1997 (for mild to moderate partly situational anxiety) Xanax PRN ~ Various other drugs over the years for side effects

2 month 'taper' off Lexapro 2010

Short acute withdrawal, followed by 2 -3 months of improvement then delayed protracted withdrawal

DX ADHD followed by several years of stimulants and other drugs trying to manage increasing symptoms

Failed reinstatement of Lexapro and trial of Prozac (became suicidal)

May 2013 Found SA, learned about withdrawal, stopped taking drugs...healing begins.

Protracted withdrawal, with a very sensitized nervous system, slowly recovering as time passes

Supplements which have helped: Vitamin C, Magnesium, Taurine

Bad reactions: Many supplements but mostly fish oil and Vitamin D

June 2016 - Started daily juicing, mostly vegetables and lots of greens.

Aug 2016 - Oct 2016 Best window ever, felt almost completely recovered

Oct 2016 -Symptoms returned - bad days and less bad days.

April 2018 - No windows, but significant improvement, it feels like permanent full recovery is close.

VIDEO: Where did the chemical imbalance theory come from?



VIDEO: How are psychiatric diagnoses made?



VIDEO: Why do psychiatric drugs have withdrawal syndromes?



VIDEO: Can psychiatric drugs cause long-lasting negative effects?

VIDEO: Dr. Claire Weekes

 

 

 

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Hi Petunia.......I am in a bit of a wave and spent this morning in bed reading your thread and relate to so much .

Thank you for giving so generously even when you are going through the worst of it. Like you I am a long term user who stopped abruptly [ Effexor]

and has suffered ever since. However I am still on Mirtazapine and 3 mg of Diazepam. I will go very slowly with these.

 

I am not sure how to quote the last paragraph of your last post , I find tech things difficult,but that is very much where I am.

It feels wrong to be so self centred but there really is no option. I feel guilty about this particularly when it comes to supporting family  members.

 

Going back I relate to be able to go shopping but then not be able to unpack the stuff for  days. 

The Mornings being worst, waking with adrenaline surges at 5 am and not being able to sleep again etc....

 

However I am so pleased to read that you have had significant windows recently.....they will return. It is just such a frustrating and slow process.

 

With al Warmest Best Wishes 

 

Bruin..

Anti Depressants for  25 years. Valium between 2006 to 7 tapered off over a month without too bad withdrawals.

For last 15 years 150 mg of Effexor and 30 mg of Mirtazapine. Occasional short term benzo use without habituation.

March 2015 stopped Effexor after rapid taper. 6 weeks. 

One month fluoxetine June 2015...stopped CT July 2015.

October 2013 to December 2015 Zopiclone 15 mg at night,

Dec 2015 to Early March 2016 Lyrica 75 mg at night. 

Stopped too quickly as  adverse side effects.

January to May 2016 tapered Zopiclone to 7.5mg 

Crossed over to Valium and now ..March 28th 2017 Benzo Free.

Also on 30 mg Mirtazapine and holding until have finished Benzo taper.

IN protracted WD from Effexor.

 

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Petu

 

I am so sorry for this set back - just think though that you have had long and wonderful windows and they will appear again. 

 

I have been in protracted withdrawal from Zoloft for 3 years and 3 months now and very seldom have even a small window.  But a couple of weeks or so ago - I did have a small window at night - I couldn't believe it - it started at 6 pm that night and I felt almost normal, I didn't know how to be - I didn't want to go to bed because I knew the horror of waking up in a sweat, high anxiety and crying .....but I DID have a window - so I have some hope again -  but of course I am back in this horrible wave again.

 

I am so happy that you have come so far - this is just a little set back and you will be in your windows very soon again.

 

You are an inspiration giving many of us hope Petu.    You will be just fine -  Bless you and my prayers are with you

 

Love

Lee (f)

Zoloft started for 8 years - 150 mg capsules

Started tapering December 3, 2011,

Off Zoloft May 17, 2013

While tapering WDS were tolerable

Off Zoloft debilitating WDS the worst starting around 6 months off

even worse after 18 months off

Now 35 months off - still in a terrible wave for months now.

 

 

 

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  • Moderator Emeritus

Thanks Bruin and divalee for stopping by my thread, I appreciate the support. I'm sorry you are both also going through this, but at least we have each other and places online where we can get some validation and understanding.

 

I'm still not doing too well, having a hard time leaving my room until mid-afternoons. I'm right back to the same old pattern of making plans during the evenings for the next day, then waking up into waves of fear and physical sensations which keep me hiding, self-protectively in my little sanctuary until I feel comfortable enough to venture out for the day.

 

After feeling so well for a couple of weeks, then being back here, I'm also causing myself more stress by non acceptance again. I don't want to still be going through this.....

 

I just read a recent post from beyond meds, which Monica linked to in the symptoms forum, it was right on target for me today, so I wanted to copy part of it here to my thread...

 

Commenter 1: Monica…this is very vulnerable but I guess it’s the place available to ask. I hope it serves others here as well. Regarding the fractured places. I’ve been experiencing this in a very extreme and intensified way this past week. There are certain stressors and recent traumas that have activated this in a bigger way this week (the loss of a meaningful connection, the disintegrating of my relationship with my therapist and feeling a loss of total trust given what happened with her, and other things). I can feel that what is happening is too big, too much for my system and being to hold…this is what happened before and blew me open…experiencing the “unbearable” as the book excerpt refers to. I don’t typically relate to the term mental illness but the past two days I feel so fragmented and disturbed by the experience of trauma alive in me that I actually feel mentally ill. I know some of this is physical/chemical too. My brain, body, and soul still needs a lot of help to come into balance (including all the methylation and histamine issues, etc). I would like to know if this resonates with your experience and anyone elses. Have you felt so fractured/ fragmented and intolerably alone (especially in those young places) that you felt your brain collapsing in on you and a sense of disintegration? Disintegrating is what’s been part of my experience. Anyone relate? Any suggestions…I’m reaching out in different places. On some level I find myself wondering if I really do just need medication to balance myself even though in my heart of hearts I want to do this the organic way. I also feel so energetically porous that I can’t tolerate people being close by to me even though I also really need company.

 

Monica Cassani: yes, disintegrating is actually part of the waking up process and systematic elimination of ego…it ain’t fun and it can be too much for our nervous systems when we are drug injured…do what you need to do to keep yourself safe. It’s not easy and unfortunately there are few places to get reliable support at certain junctures so we do have to create it for ourselves. I am actually in a disintegrated state right now as well. I’ve learned to hang with it mostly but it’s, by nature, a challenging part of this trip, for sure. Trust yourself and do what you need to do to keep safe. Whatever that is…you will know. Also, let yourself feel the fear…really feel it…that has been the way through for me.

 

from  https://beyondmeds.com/2016/08/28/parts/

 

I'm having the same problem as the commenter with feeling energetically too open to be around other people, but needing company. I've always been somewhat like this my whole life, but its been tolerable and at times it has brought an enriching sense of closeness and connectedness in wanted relationships. But now, I'm hypersensitive and its all too overwhelming. When I'm out and around other people, I seem to be shut down and closed in, in a way which feels very wrong to me. I used to feel a kind of intimate connection with everything around me.... nature, animals, people, even inanimate objects, but now, for my own protection, I find myself encased in a thick shell, its the only way I manage to get out into the world these days.

 

Monica advises feeling the fear, that's been one of my tools for getting through this, to allow myself to feel whatever comes up. But there's so much fear which keeps arising and I wonder how much longer its going to keep coming like this. How much more is left down there to be released? It seems like I'm letting go of lifetimes of suppressed trauma, being released as ongoing waves of fear and despair.

 

Waking up and ego 'elimination', would probably be much easier without a drug damaged nervous system, as Monica suggests. I have to keep reminding myself that I don't just have one thing going on here.

I'm not a doctor.  My comments are not medical advise. These are my opinions based on my own experience and what I've learned. Please discuss your situation with a medical practitioner who has knowledge of tapering and withdrawal...if you are lucky enough to find one.

My Introduction Thread

Full Drug and Withdrawal History

Brief Summary

Several SSRIs for 13 years starting 1997 (for mild to moderate partly situational anxiety) Xanax PRN ~ Various other drugs over the years for side effects

2 month 'taper' off Lexapro 2010

Short acute withdrawal, followed by 2 -3 months of improvement then delayed protracted withdrawal

DX ADHD followed by several years of stimulants and other drugs trying to manage increasing symptoms

Failed reinstatement of Lexapro and trial of Prozac (became suicidal)

May 2013 Found SA, learned about withdrawal, stopped taking drugs...healing begins.

Protracted withdrawal, with a very sensitized nervous system, slowly recovering as time passes

Supplements which have helped: Vitamin C, Magnesium, Taurine

Bad reactions: Many supplements but mostly fish oil and Vitamin D

June 2016 - Started daily juicing, mostly vegetables and lots of greens.

Aug 2016 - Oct 2016 Best window ever, felt almost completely recovered

Oct 2016 -Symptoms returned - bad days and less bad days.

April 2018 - No windows, but significant improvement, it feels like permanent full recovery is close.

VIDEO: Where did the chemical imbalance theory come from?



VIDEO: How are psychiatric diagnoses made?



VIDEO: Why do psychiatric drugs have withdrawal syndromes?



VIDEO: Can psychiatric drugs cause long-lasting negative effects?

VIDEO: Dr. Claire Weekes

 

 

 

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Oh Petunia.....am so sorry that you are still going through it and the wave is continuing. I relate to some of your patterns. 

I feel a  bit better in the evening and make plans  for what I will do tomorrow which then are hard to execute 

without incurring intolerable stress. 

 

And yes the struggle with acceptance makes it much harder. Acceptance is key to getting through this ordeal. 

To remain positive and hopeful whilst accepting that there are going to be some rough passages that can last a long time.

 

I have been going through WD for 18 months but only begun to get educated about it 6 months ago.

This time last year I went away with a group of friends and felt like I was probably dying and not going to make it back.

I am about to go away with the same friends again and can track that I am in a marginally better place. 

I have less DP/DR and the intense nausea has left me. Though I sometimes find company impossible I have had times of feeling connected.

It is a glacial process but am celebrating the progress knowing that it will get better despite the setbacks. 

 

Cheering you on Petunia. Thank you for all that you give here. Your honest really helps ......It is so much better to tell it how it is.

 

With all best wishes for clearer waters.

 

Bruin

Anti Depressants for  25 years. Valium between 2006 to 7 tapered off over a month without too bad withdrawals.

For last 15 years 150 mg of Effexor and 30 mg of Mirtazapine. Occasional short term benzo use without habituation.

March 2015 stopped Effexor after rapid taper. 6 weeks. 

One month fluoxetine June 2015...stopped CT July 2015.

October 2013 to December 2015 Zopiclone 15 mg at night,

Dec 2015 to Early March 2016 Lyrica 75 mg at night. 

Stopped too quickly as  adverse side effects.

January to May 2016 tapered Zopiclone to 7.5mg 

Crossed over to Valium and now ..March 28th 2017 Benzo Free.

Also on 30 mg Mirtazapine and holding until have finished Benzo taper.

IN protracted WD from Effexor.

 

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 How much more is left down there to be released? It seems like I'm letting go of lifetimes of suppressed trauma, being released as ongoing waves of fear and despair.

 

 

Petunia: Just wanted to say hi and hang in there. How are you today? The quote above really got to me...I feel this way so often. Recently, have been having high anxiety and crying jags, and wonder if it is "old" emotion and trauma coming out, or whether it is "neuroemotion" that has little to do with my past. This is so very hard some days, isn't it? Anyway, thinking of you with hugs today.

Current:

 

*Abt 1995, started fluoxetine 20 mg/day, later raised to 40 mg; *Abt 1997, started Klonopin ? mg/day

*Abt [??] started first, very slow Klon taper

*Sept 2016, Klon updosed; swapped fluox for duloxetine/lamotrigine/Seroquel (very small dose of last, for sleep) cocktail

*Early 2018, stopped Seroquel; *2020, started second Klon taper

*Abt July 2022, accidental 33% Klon cut, w/no updose; have been holding for 15 mos

*Mar 2023, abrupt lamotrigine cut from 75- to 50 mg/day; *May-June 2023, abrupt dulox cut from 90 mg- to 60 mg/day

*As of June 2023, taking lamotrigine 50 mg/day, duloxetine 60 mg/day, Klonopin .25 mg/day, metoprolol 50 mg/day, Eliquis 5 mg/day, levothyroxine 75 mcg/day

 

"Forget to remember; remember to forget."

 

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Petunia.  I know and understand the feeling of having a window " shut tight " on you just as you are gaining hope, as I have experienced it many times myself during this process. Unfortunately, I'm no stranger to trauma either. As if it's not bad enough already, it gets amplified in withdrawal and the intensity of it can be overwhelming at times.

 

On a positive note, it really does get better in time but everyone's timetable of healing is different as we all know.

All I know is that it does happen. If it can for me, it can for you too.

 

I thought with my history , I would have Tardive Dysphoria forever. It seems to be dissipating and that gives me hope, not only for myself but for anyone else with this possible long term effect from the drugs. It is not always permanent.

 

I'm still finding " juicing " to be one of the things I have control over that is really helping in my recovery . I think it's assisting my body and giving it what it needs in a very concentrated way - feeding my cells with life giving nutrients !  I feel it's helping me to fight my way back . I wouldn't give up on it yet if I were you.

 

I know you are a fighter too and I hope things turn around for you. You have shown strength and courage. I admire your tenacity.

Hugs,

Ali

Many SSRI's and SSNRI's over 20 years. Zoloft for 7 years followed by Effexor, Lexapro, Prozac, Cymbalta, Celexa, Pristiq, Valdoxan, Mianserin and more - on and off. No tapering. Cold turkey off Valdoxan - end of May 2014

 

                                                  Psych Drug - free since May 2014
.
         

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  • Moderator Emeritus

Hi, Petunia.

 

 

What you wrote resonated with me, as well, especially this part:

 

 

 

 

I'm having the same problem as the commenter with feeling energetically too open to be around other people, but needing company. I've always been somewhat like this my whole life, but its been tolerable and at times it has brought an enriching sense of closeness and connectedness in wanted relationships. But now, I'm hypersensitive and its all too overwhelming. When I'm out and around other people, I seem to be shut down and closed in, in a way which feels very wrong to me. I used to feel a kind of intimate connection with everything around me.... nature, animals, people, even inanimate objects, but now, for my own protection, I find myself encased in a thick shell, its the only way I manage to get out into the world these days.

 

 

This sounds you may be experiencing depersonalization. Dp/dr is my worst symptom, but I found that as difficult as can be, when I re-framed it as a "protective force" and took the mindset that it was helping me more than hurting, it made it easier.

 

I hate the way this experience separates us from everyone around us, from nature, from animals, and even from ourselves.

 

But withdrawal hits the fear center of the brain, exposing it like an open wound in a very cold world, and somehow, I do believe this "shutting down" process is a way of shielding us from even more pain. I had a lot of PTSD flashbacks during parts of my withdrawal and the dp/dr seemed to keep me from "connecting" too much to that past trauma. Unfortunately, it also separated me from friends, nature, and my spirituality. It does come with another kind of pain, it seems. 

 

I found distraction to help. Online games, guided meditations, taking walks in a nearby park (if being outside isn't too difficult), and listening to soothing music. 

 

This is one of my go-to videos for soothing music:

 

Beethoven Moonlight Sonata with Relaxing Nature Sounds [ Sleep Music ]

 

 

Sending healing vibes your way. I hope this difficult part of the journey passes soon. Remind yourself often - this is temporary. This will pass. You will be okay. 

 

 

 

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  • Moderator Emeritus

I wasn't planning on visiting my own thread today, but have found myself here anyway. Thank you Bruin, MS, AliG and Shep, being able to share this difficult experience with others who understand is what has kept me going these last few years. I don't think I'm in depths of a wave anymore, but my pattern has taken an unfamiliar turn, something is different.

 

Like Shep suggested, it seems to be a kind of DP/DR, which also has been one of my worst symptoms. But its different from the way it was earlier in my process, it used to have a very frightening, altered reality kind of quality, but now its more like thick fog, which is an improvement, but still not pleasant.

 

Dealing with past trauma and emotional wounds seems to be happening in cycles beyond my control. Slowly, I'm starting to see it all clearly for what it really was, I'm coming out of denial and accepting just how painful much of my past life experience has been. Its emotionally overwhelming at times, but underneath, when a big chunk of darkness gets released, I keep finding little parts of myself which actually feel good.

I'm not a doctor.  My comments are not medical advise. These are my opinions based on my own experience and what I've learned. Please discuss your situation with a medical practitioner who has knowledge of tapering and withdrawal...if you are lucky enough to find one.

My Introduction Thread

Full Drug and Withdrawal History

Brief Summary

Several SSRIs for 13 years starting 1997 (for mild to moderate partly situational anxiety) Xanax PRN ~ Various other drugs over the years for side effects

2 month 'taper' off Lexapro 2010

Short acute withdrawal, followed by 2 -3 months of improvement then delayed protracted withdrawal

DX ADHD followed by several years of stimulants and other drugs trying to manage increasing symptoms

Failed reinstatement of Lexapro and trial of Prozac (became suicidal)

May 2013 Found SA, learned about withdrawal, stopped taking drugs...healing begins.

Protracted withdrawal, with a very sensitized nervous system, slowly recovering as time passes

Supplements which have helped: Vitamin C, Magnesium, Taurine

Bad reactions: Many supplements but mostly fish oil and Vitamin D

June 2016 - Started daily juicing, mostly vegetables and lots of greens.

Aug 2016 - Oct 2016 Best window ever, felt almost completely recovered

Oct 2016 -Symptoms returned - bad days and less bad days.

April 2018 - No windows, but significant improvement, it feels like permanent full recovery is close.

VIDEO: Where did the chemical imbalance theory come from?



VIDEO: How are psychiatric diagnoses made?



VIDEO: Why do psychiatric drugs have withdrawal syndromes?



VIDEO: Can psychiatric drugs cause long-lasting negative effects?

VIDEO: Dr. Claire Weekes

 

 

 

Link to comment
  • Moderator Emeritus

Thanks for sharing this, Petunia. You're ahead of me in recovery, and I really found a lot of comfort in this line - "when a big chunk of darkness gets released, I keep finding little parts of myself which actually feel good."  

 

You're handling all of this with such grace. Thanks again.  :) 

 

 

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