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kesh

Aria. I don't know if you are still reading this, but I searched the recovery forum with the word "akathisia" as I have it bad right now.

 

The big unknown is will the aka increase if I reduce the antidepressants (withdrawal akathisia) or get better (drug induced akathisia). Or possibly both as I'm so sensitised.

 

Anyway, that people get better from akathisia gives me hope when I'm in a wave.

 

All the best.

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aberdeen
On 1/4/2018 at 6:32 AM, kesh said:

Aria. I don't know if you are still reading this, but I searched the recovery forum with the word "akathisia" as I have it bad right now.

 

The big unknown is will the aka increase if I reduce the antidepressants (withdrawal akathisia) or get better (drug induced akathisia). Or possibly both as I'm so sensitised.

 

Anyway, that people get better from akathisia gives me hope when I'm in a wave.

 

All the best.

Hi there! I dont post much anymore but I do lurk now and then and saw your post. I just wanted you to know that I recovered from akathesia, 100% gone. It was at the beginning stages of wd for me (hopefully my signature tells most of my story). I was fresh from a 2 month "taper" from a high dose of effexor, and newly on another med (at the time I didnt know what was going on otherwise I wouldnt have taken a different med, I would have instead updosed and resumed a proper taper ) anyway my akathesia would start around 3 or 4am. It was terrible. Mainly in my torso, shoulders and legs, a constant compulsion to squirm and rock and kick out/run fast. It would gradually improve by mid day. I would pace (fast), or stretch, even rocking back and forth helped a little. It was awful, I know. It makes you feel like screaming. I had this for a few weeks, maybe a couple of months, and it seemed worse when I was rapidly tapering or the first weeks of a new med. Once I stopped making drastic changes, it did go away. I eventually stabilized somewhat and began a slow taper that took a few years and during that time I didnt have akathesia. I havent had it in the 18 months that Ive been med free either, so please have hope! :)

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kesh

Great to hear. Stories like yours help when I' m bad like today.

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Aria

I got got a new shredder and have been busily shredding medical records. I had been seeing a pain specialist because of neuroleptic toxic effects (muscle spasms) and he kept mentioning my profound mental illness. I was so drug drunk that Lord knows what I told this doctor but the muscle spasms I was having were relentless. When I have read my medical notes from various doctors not one had a clue that the SSRI & neuroleptics were causing the distress (muscle spasms, stomach cramps, diarrhea, blurry vision, strange behavior, incontinence, insomnia, confusion, vomiting, GERD, constipation, dizziness, Akathisia). Into the shredder that page goes, the next page and the next. How blinded physicians are when they see a client with a mental illness diagnosis. Many times I thought about going back to these doctors to say "how could you of not known the psychiatric drugs were causing this?" One good point -- in my last visits more than one doctor said I was off my drugs and completely lucid.

 

Yesterday I was talking to a woman with a college education who mentioned that someone's son had schizophrenia. She said you know how those people go off their drugs and then they can't work. I innocently said "I didn't know schizophrenics could work?" This was the same person she said he was bipolar so to her these are interchangeable diagnoses. I've met the person in question and they seemed fine to me. This is why I don't out myself as a psychiatric Survivor or a Survivor of psychiatry. I would have to go into detail about what happened to me and there's a big chance the person I was talking to wouldn't  get it. They would have lingering doubts of my normality and there's a big chance they would say "were you so gullible that you bought into this?" That's when I would say "I know you're on Prozac and Xanax so don't judge me". At the time I had gone to a psychiatrist thinking he was a medical doctor and might help me. I had no idea he didn't know what he was doing and would haphazardly give me drug combos that blitzed my brain. So many years on these drugs are blurred sometimes I'm thankful they are and other times I'm horrified at what may have happened that I don't remember? My brain filter was off so I blurted out things that did not need to be said plus the Akathisia had me going like a locomotive.

 

I've read with interest other people who escaped psychiatry and wonder what they're going to do with their life? It was very hard for me to figure out what I wanted to do and what I could do. At first I tentatively tried to do things I used to do before I was so drugged like reading and gardening. I joined a ladies group last year and have enjoyed getting together with them. One woman is always talking about alien abductions and The Walking Dead (she's a lot of fun!). It makes me realize we're all so different and that's fine with me unless the behavior is mean or vindictive.

 

Back to my Shredder. There go a few more papers into the shredder. How many copies of what I'm shredding are still out there? Are they in my electronic medical records at the hospitals for all the doctors to see? If only I could shred those too.

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gigi63

Hello Aria, I was thinking of you today. I was thinking, “ How did Aria do this by herself, come off of the drugs?!!”  Aria, I am wondering if you can share how your life started to come back together, what the timeframe for you looked like? And how did you pass your days??  Thank you if you can share.  

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