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Cheeky

JanCarol I think that is a great idea and I'm from Sydney but would try and make my way there to meet other people. I'm in for sure.

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AliG

Hey JanCarol, I've been all over the place with this site. Still trying to figure it all out!  Please don't take my silence for lack of


enthusiasm.  I think it's a fantastic idea for a support group. For years I've been trying to find a support group, of some kind ,


but there were so many  issues  (with me ) , I didn't know  where to turn.  Sounds great, doesn't it!  Anyway, I think we've


got a few here, so let's do it . I agree with you, if our core group is strong, I think it will be fine.


 


Ang, I think if you have a support group there, you are lucky and should pursue it. It might be a godsend for you.


 


I think we are all lucky here, in that we have found each other , in the midst of madness. It just shows the human spirit


of survival and ingenuity! :)


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Fresh

Hi All ,   I'm feeling a teeny bit racy since my last decrease (lol) and have had another  scathingly brilliant idea.

 

Does anyone know how we would go about having a group Skype session for anyone who's interested?    Or could we open a chat-room once a week for an

hour and meet there?

 

Any thoughts?

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AliG

That sounds interesting, Fresh. I would be in if I can work out the technical side of things, but I did skype with my daughter when she was overseas, so it's definitely on the cards.

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Fresh

Hey , welcome back Cheeky.  

 

Tell you what , for a bunch of apathetic b@st@rds I'm pretty impressed - thanks ladies.   I've messaged frantic seeking advice on how to do it. 

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JanCarol

Ang sez:  

 

JanCarol:  We may attract some drama queens and nutbags but if our core group is strong, that won't shake it. Someones quote.

 

If you believe this, then perhaps you are not ready to start a group.  In my experience, the drama queens and nutbags are the ones who are apparently """well"..  

 

I've spent enough time in "group therapy" to know - there is always one.  Isn't it true of all families - there's always one.  And some families are dense with needy drama queens and fringe incoherents.  And in any group with the word "psych" attached in any way, we will have a higher quorum of nuttiness.  Anyhow, in group therapy, if the leader is a wimp, the drama queen monopolizes all the conversation until it's all about her/him.  This can be helpful to the others, to think about problems other than their own - but you don't want it to be the pattern of the group.  That's a sure way to drive people off.

 

I mean no insult with my statement about drama queens, nutbags and nuttiness.  Personally, I'd rather be called a "nutbag" than a "bipolar," because it's a description of behaviour & speech, rather than a medical cubbyhole with a prescribed solution.  Having spent many years as a fringe, sometimes incoherent nutbag myself, and having as a result been attracted to men who were also quite the nutbags (one carried blocks of C4 everywhere he went, I was NEVER to touch his backpack.  NEVER.) and close friends who have had long journeys through the "system" and several dramatic, needy behaviours - and I haven't lost my boundaries yet.

 

I have no intention of turning anyone away - I feel much the same way you do - but you cannot let them be the ones to dominate the conversation - there will be many soft spoken Aussies who need encouragement to talk about this stuff.  When there's an explosion in the middle of the room at every get together (a drama queen) - nobody else gets help.  This is a group dynamic, I've seen it in music, religious, and political groups as well.

 

It's important that this be purely PEER support.  No Psychologists or Psychiatrists or even Social Workers allowed.

 

Back to Ang:

 

Why does it have to be an official sort of group?  Are you going to have a proper meeting, with an agenda and such?  Or just an informal get together in a coffee shop?  Or perhaps a half hour walk together in a park?

 

It doesn't have to be formal, in fact, if you make if Formal, you will lose people - they can get that at their pdocs etc.

 

Starting with coffee, or lunch, or park visits - 

 

the only official part is, when we have a core group - opening it to the public.  When you do that, you need to be a little more reliable, like a set day of the month, or even "topics for discussion" or - in the case of drama queens and nutbags - a talking stick to control the conversation, so that everyone gets support.

 

I think there is a huge need for this, and I don't know if I can pull it off.  I'm not the most organized card in the file.  But - I have a dream.

 

Ali G, sez:  

 

 For years I've been trying to find a support group, of some kind ,

but there were so many  issues  (with me ) , I didn't know  where to turn. 

 

Oh, I've had interesting support groups, but they were always fringe.  A women's group that met once a month, did a bit of ritual, and shared our hearts.  That evolved into a sub-group - a dream group, where we met for lunch and exchanged our dreams and suggesting applications of the symbols and feelings there.  But all of the psych based ones have been uneven.  So uneven as to be not helpful.  I'm not sure how to fix that - if maybe they split us into (ugh) "functioning" levels, or even education, or maybe even age - it might have helped.  Group "therapy" was a waste of my time, because the patients, er, clients, er, consumers, ran roughshod over the spokesperson, and I knew more about what was going on than that educated professional spokesperson.

 

I've given this some thought, and of course, with input from whoever wants to participate, I think we can develop a way that everyone gets some benefit from the group.  Details would include - do we want a "spokesperson?" what would we want to call that person?  I would serve until the group was established, but be happy to step down if the group votes that way.  Do we meet monthly?  (that's my preference), what do we want to call the group?  Do we establish a set time and place, so that newcomers can find us?  Where will that be?  How much structure do you want?  Is this just a gab session?  Or do we each want to make sure that the talking stick goes around at least once, so that we can "check in" with what's happening?  What kinds of topics to you want to discuss?  Would we like to have "talks" - little 10 minute reports on whatever someone is studying (like, new reports that the antidepressants actually cause LESS serotonin, and work paradoxically to the way that "medicine" claims, or the use of inositol or L-arganine for sleep, or the uses of magnesium and epsom salts - my favorite!)

 

There are thousands of ways to approach this.  In my dream, I saw a little wooden church, fallen to disuse, that was now used by AA and us.  It was run down and shabby, but it was ours to use.  Of course, that was in my neighborhood, which might not suit for all of our different locations.

 

Fresh sez:  

 

 

Does anyone know how we would go about having a group Skype session for anyone who's interested? 

Have at it.  I know Ardyes has a Skype account.  I do not.  I would need remedial lessons for how to do that.  I've been intimidated every time.  Plus I don't wish to be seen.  If you set it up, post it here, and see how we go.  

 

It might just be a social thing - but that's beneficial too, since, even if we have social activity in our lives - there aren't many of them who understand what we have been through, what we are going through, what we are trying to do.

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scottly9999

Scottly9999 - Checking in from Melbourne.

Only just noticed this Aussie corner of the site.

damn bloody tablets!!!!

I'm happy to have chats etc, problem shared is a problem halved etc.

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NJJ

Hi Everyone,

 

I just found the Australian forum. I live in the western suburbs of Brisbane. 

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ang

Welcome NJJ

 wish you well     I am suffering at the moment, but this site is great for support, we all suffer together!

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Fresh

Welcome from me too scottly and NJJ   :) .

 

The Danish professor Prof Peter Gotzsche's presentation "Overdiagnosed and Overmedicated"  (Melbourne 2015)  is now on youtube.

Well worth watching , just plug his name and the title into youtube and it will come up.

 

JanCarol , do you think you would you be able to post the link with some info. in "In The Media" ? (one day I'll learn to post links)

 

His presentation sheds light on why we're all in the mess we are , why the medical profession is so slow on the uptake , and what

we need to do to initiate changes.

 

Easy to follow and just makes alot of sense , I'd rate it a 10 out of 10.

 

Fresh

:)

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JanCarol

I'll see what I can do, Fresh - I'm not the sharpest tool in the shed, but I just got the email about it.  But it will have to be later - off to an appointment in just a few moments.

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Fresh

Thanks Jan   :) .    I can do it now - my new skill this week is cutting and pasting , lol.

 

Prof. Peter Gotzsche's presentation is here:  

 

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simack

Hi all checking in here from Bendigo VIC

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ang

Hello simack    welcome!   How was your day?  I am in Albany, WEstern Australia..............You still on the meds?   How long for?          Olanzapine, been on that one, by another name, never worked for me! Sent me nuts in 3 days....

welcome!!!!!!!!!!!!

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dalsaan

Hi Australian members,

 

It has come to my attention that Australia is in the midst of a nation wide shortage of Zoloft.  This appears to be a manufacturing issue at Pfizer and is expected to continue until Jan 2016 according to the Therapeutic Good Administration.

 

One option in this context is to try a generic brand.   I am trying to find out what brands are closest to Zoloft in terms of their non-active ingredients.  It may just be a case of trial and error for you.

 

I am also trying to find out if you can order Zoloft from overseas.   I think you are allowed to with a prescription but it may cost more if its not subsidised under the PBS.  This may be something someone can ask their Dr?

 

Dalsaan

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Alua

Hi all I'm in emerald Queensland Australia. On antidepressant pristiq currently. Love to hear from any Aussies who have successfully tapered off pristiq and how they did it please message me. I contacted rob purssey as suggested on this site but horrendously expensive

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Fresh

Thanks for the tip Dalsaan. Welcome Alua.

 

Does Dr Purssey bulk-bill? I'm curious - what does he charge for a session?

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NJJ

Hi,

 

I originally made an appointment with Dr Purssey as I live in Brisbane but cancelled my appointment because I was sick. He was nice enough to respond to my emails and offered some advice before our session. It actually worked out well that I didn't see him purely because he said Dr Yolande Lucire had more expertise in regards to investigating my drug interaction. From memory it was about $390 a session and you get about $200 back from medicare, I think. He also asks that you fill out questionairs etc about your health before you visit. Hope that helps. Oh it was about a two week wait to get in.

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NJJ

Dalasan

 

I'm on zoloft too. I found this article which recons the problem should be resolved by June 17.

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JanCarol

Importing drugs might be a tricky business if there is an equivalent on the PBS, etc.  Doctors will likely not have experience in this - yes - it is legal, with proper Rx, but uncommon, and I'll bet there is significant red tape.

 

NJJ's article said "June 17" might be fixed?  But Dalsaan's info said Jan 2016?  I do have friends on sertraline, but I'm betting they are generic.  Switching brands of drugs can make a difference to those who are sensitive, as noted in the article.

 

IN OTHER NEWS, I get my car back tomorrow, and will be PMing to Brisbanites soon for a new coffee meet.  Anyone who has preferences, please PM me - I'd love to schedule it so that all possible can attend!  

 

WOW NJJ - my shrink is a bargain at $200 then!  (but she doesn't do ACT or anything special, in fact, she doesn't even believe that psych drugs are harmful...but at least she lets me take charge of my own medical life.)

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Fresh

The mobile.news article was written in May. Sounds like dalsaan's info. is more up to date.

I looked on the TGA website and couldn't find anything.

 

But . . .

I did find this about importing drugs here http://www.tga.gov.au/personal-importation-scheme

 

Personal Importation Scheme

 

Under the Personal Importation Scheme you may import a 3 month supply at the one time (at the maximum dose recommended by the manufacturer) of unapproved therapeutic goods into Australia without any approval required by the TGA provided that:

 

the goods are for your own treatment or the treatment of your immediate family; and

you do not supply (sell or give) the medicine to any other person; and

where possible, you keep the medicines or medical devices in their original packaging with any dispensing labels intact; and

the goods are not restricted under Australian Customs controls or quarantine rules and the goods do not contain a controlled substance; and

the goods are not injections that contain material of human or animal origin (except insulin); and

the total quantity of the goods imported within a 12 month period does not exceed 15 months supply of the goods (for medicines, at the maximum dose recommended by the manufacturer); and

if the goods are medicines in Schedule 4 or 8 of the Poisons Standard a prescription from an Australian-registered medical practitioner is held for the medicines.

You cannot import more than a 3 month supply at the one time under the personal importation scheme. If you wish to bring more than 3 months supply at the one time into Australia, an Australian-registered doctor will first need to apply to the TGA for Special Access Scheme approval.

 

When I was in India I found that meds. were dirt cheap. They may or may not be fake , but they're cheap , lol.

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ang

Maybe just a realisation that zoloft is poison, but that doesnt help those already addicted to it.

 

I only got generic brands,  I am presently trying to fill all my old prescriptions, so if anyone is stuck, happy to send you some....  I DONT USE IT ANYMORE. 

 

Anyone stuck, just ask.

 

And just send me a photocopy or something of your prescription....... dont think they will lock me up.............. I aint sellin it, I give it away.

 

It just hit me when poor Tilly, was refused a prescription by an ignorant doctor, sent her into a tail spin.. How dare they get us addicted, then refuse to supply?  Hello Tilly!  Hugs xxx

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ang

Manufacturing problems?  bullsh*t?  Damn all those trials done in India, audited this year by the  honest European Union, conducted by France,  where 90% of of the drug trials WERE FRAUDULENT!!!! having an impact.   Good, but damn dont make us addicts suffer further.  They sold us bad drugs, we addicted now, dont make us suffer more as we try to kick the habit.

 

Sudden production problems, caused by not being able to verify their drug trial results............. that is the production problem.....   they cant recall the poisons, only try and get people on to other drugs............  

 

Yes zoloft causes horrific birth defects, yes finally someone is listening, took damn 19 years!

 

Yes serious fraud here, by these big Drug Companies, I will meet them in hell one day!

 

You in USA, better start stashing your pills..... Australia>UK  and European Union/NZ  are close........... buddies..... so to speak.

 

USA?  Start stashing your pills, cause this will filter thru to USA>  just takes time.

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ang

19 years ago, I didnt want to sue zoloft for my babys horrific birth defects, I just wanted people to know not to take it..........19 damn years later, they suing in USA, nice to see they had an impact.  Now it has sudden production problems? omg?  Trials done in India, proven falsified, Jan 2015...(easier to fake results in India, obviously)........  and damn 19 years it has taken.......I could not believe that my reports to Australias TGA, were somehow missing, and had to do another 19 damn years after Stevens death.................corruption greed, and bullsh*t,  I am a damn pathologist, I know what killed my baby, yet after 19 years?  no mention anywhere in Australias TGA?  Get real!  Zoloft heart defect baby.  I grew up with thalidomide babies, I would never take drugs while pregnant, but damn it was a vasectomy failure............... and damn they said no birth defects reported from Zoloft use  (INTERPRETATION, THAT PURPOSELY EXCLUDED WOMEN OF CHILD BEARING AGE FROMTH E TRIALS)>   I was one of the first human guinea pigs, yes I am angry, yes I am upset.......... how they lie and deceive............. no birth defects noted  +  no pregnant women ever took the drug. FRAUD AND ABHORRENT FRAUD.

  I WILL MEET THEM IN HELL!

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ang

I STILL AWAIT A RESPONSE!!!! HELLO!!!! sTEVEN DIED DUE TO ZOLOFT, NOT TEGRETOL, PLEASE CORRECT YOUR REPORT, AND SEND IT TO ME.
 

From: angelaoffer@hotmail.com
To: adr.reports@tga.gov.au
Subject: RE: ADR No 358697 [sEC=UNCLASSIFIED]
Date: Fri, 15 May 2015 11:22:22 +0800

Thankyou so much, however I am hoping you can change the wording on the report for Steven.  It sounds as if the tegretol was taken for longer than the zoloft, this was not the case.  Tegretol was stopped immediately, zoloft tapered.
 
It should read Ceased tegretol at 2 weeks after missed period  (ie about 4 weeks gestation)  The zoloft was tapered and ceased by 8 weeks  
 
Thankyou so much

From: ADR.Reports@tga.gov.au
To: angelaoffer@hotmail.com
Subject: FW: ADR No 358697 [sEC=UNCLASSIFIED]
Date: Fri, 15 May 2015 00:17:39 +0000

Dear Angela

 

I, Dr Richard Hill, as delegate of the Secretary for the purposes of section 61 of the Act, approve under subsection 61(7) of the Act, the release to Angela Offer, of therapeutic goods information attached.

 

The information attached includes non-public information and is being released to Angela Offer, on the basis it will be treated in confidence and not disclosed to any other party without first consulting with the TGA and, except in cases where your laws require disclosure, obtaining the TGA’s consent.

 

Should you have any queries please contact the Post-market Surveillance Branch, TGA by email at adr.reports@tga.gov.au

 

Yours sincerely,

 

 

Dr Richard Hill

Senior Medical Officer and

Delegate of the Secretary to the Department of Health

Post-market Surveillance Branch, TGA

Fax No: (02) 6232 8392

e-mail: adr.reports@tga.gov.au

TGA website: www.tga.gov.au

 

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

The Australian Adverse Drug Reactions Database held by the TGA holds details of Australian reports of suspected reactions to drugs received since the 1 November 1972. The majority of these reports were submitted voluntarily by Australian doctors, dentists and pharmacists. It should be noted that reporting of a suspected adverse reaction does not necessarily imply a causal relationship.

 

As the data is mainly ‘voluntary’ it is influenced by selection processes subject to major, and to a large extent unknown, biases. Some of these influencing factors include: extent of drug use, source of reports, status of the drug, severity of reaction and prior knowledge of the drug.

 

Therefore, caution should be exercised when comparisons are made between the number of reports implicating different drugs used for similar purposes, or between reports of reactions to various brands of the same drug. Incidence cannot be reliably calculated based on data gathered from a spontaneous reporting program.

 

Drug safety monitoring is a dynamic process and the numbers of reports of each reaction type will alter following any new information on existing reports and new reports being received. A single report may contain one or more adverse drug reactions

 

 

 

 

From: angela offer [mailto:angelaoffer@hotmail.com
Sent: Thursday, 14 May 2015 4:48 PM
To: ADR Reports
Subject: RE: ADR No 358697 [sEC=UNCLASSIFIED]

 

Thankyou so much, can I have a copy of my report on the death of baby Steven James Offer 1996  due to zoloft use in first trimester?

 

Thankyou so much

Angela

From: ADR.Reports@tga.gov.au
To: angelaoffer@hotmail.com
Subject: RE: ADR No 358697 [sEC=UNCLASSIFIED]
Date: Thu, 14 May 2015 06:35:57 +0000

Hi Angela

 

I have attached a copy of details which you reported online, for your records as requested.

Regards

Yasna Goodwin 
Departmental Officer 
Signal Investigation - Medicines 
Post-market Surveillance Branch


Therapeutic Goods Administration 
Department of Health 
PO Box 100 
Woden ACT 2606 Australia 

www.tga.gov.au

 

From: angela offer [mailto:angelaoffer@hotmail.com
Sent: Thursday, 14 May 2015 4:31 PM
To: ADR Reports
Subject: ADR No 358697

 

Am I able to have a full copy of the report?

 

Many thanks

 

Angela

\

 

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dalsaan

Ang

 

I understand this is very distressing topic for you. I'm sorry about your loss of Steven. It's devastating

 

In your last post you disclosed your name and email address. Are you sure you want to do that?

 

Dalsaan

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dalsaan

Re the shortage issue. I think Pfizer sell their own generic Zoloft called Sertraline Pfizer. The listed ingredients are the same. It doesn't appear on the medicines shortage list so it may actually be available. If you are on Zoloft it's worth asking your gp or pharmacist about the generic Pfizer as a replacement for Zoloft

 

 

Ingredients

Zoloft contains 50 mg or 100 mg of sertraline as the active ingredient.

http://www.nps.org.a...uct-description

 

It also contains:

 

cellulose (microcrystalline)

calcium hydrogen phosphate

hydroxypropyl cellulose

sodium starch glycollate

magnesium stearate

White Opadry

Clear Opadry.

 

 

Ingredients

Sertraline Pfizer contains 50 mg or 100 mg of sertraline as the active ingredient.

http://www.nps.org.a...uct-description

 

It also contains:

 

cellulose (microcrystalline)

calcium hydrogen phosphate

hydroxypropyl cellulose

sodium starch glycollate

magnesium stearate

White Opadry

Clear Opadry.

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ang
 
clear.gifclear.gifclear.gifclear.gif
baby Steven James Offer, died aged 3 days, due to Zoloft use first trimester of preggnancy.
 
 
 
 
8:38 PM
To: adr.reports@tga.gov.au
 
bluemanmxl.png
 
 
 
 
Hello, I have been rediredcted to you, to correct my report submitted recently.  I tried to correct the wrong report, but I have heard nothing about the corrected report, please advise.  I have asked, to no avail.   I keep meticulous records.......... I await a response.
RE: the death of Steven James OFFER                   I DEMAND THE FINAL REPORT
 
When I stupidly trusted Dr Booth?   I took drugs, and he said give up tegretol immediately if you should fall pregnant, but zoloft is not listed as causing birth defects, that is fine!!!!!!!!
 
I gave up Tegretol immediately (as all the reports of that era,  said Tegretol causes birth defects)
 
Hower I tapered zoloft over 8-10 weeks, as the reports said ZOLOFT HAS NOT SHOWN ANY BIRTH DEFECTS..  My psychiatrist  said to give up Tegretol immediately if I were to fall pregnant, he mentioned that Zoloft has no known birth defects problems....   HOW DISGUSTING!
 
I was brought up in the thalidomide era, a local kid had no arms or legs...................   no way would I take drugs during pregnancy, but damn the gp messed up, the vasectomy didnt work!
 
 
 
I want that report,   I want to know what happened to my report 19 damn years ago!
 

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ang

I reported that effexor caused me to be semi manic, to lose my marriage, blah, blah, blah....  yep I got my report in two days./ allcorrect as reported.........

 

The report my second report on birth defects caused by zoloft?  the report was completely wrong, blaming tegretol, when I clearly said I gave up tegretol immediately... I ask for the report to be fixed, and another copy of the report to be sent?

 

Nothing, just the usual, it is all secret bullsh*t.   But now?  No Zoloft in Australia, weird that?

I want that new edited report, despite it suddenly being sent by someone "higher up the chain"...  someone more senior who quotes some secrecy bullsh*t.

 

ie you feel sick, you  act manic, you lose  your life savings, etc,   that goes to a lower level,,, you get the report. 

 

Now when it gets to zoloft use in first trimester, caused heart defects, in my newborn? ****************************************And I reported it 19 years ago, and that report went missing?????????? Now higher up the chain, and the SECOND REPORT 19 years later... is completely wrong...  Damn I want the report to be right.     I clearly said the only drug I was on was Zoloft, yet the report is wrong, I said it was wrong, wanted corrections, and damn 4 weeks? No reply???

 

Sick of this crap.

 

They are obviously panicking, cause I reported this 19 damn years ago, and Australian TGA either threw the report in the bin, or now embarrassed cause they found it 19 years too damn late!  god i hope so!!!!!!!!!!!!!!      I want a copy of my original report, 19 damn years ago, on the death of my baby caused by zoloft use first trimester....... You TGA have got It... I want it.

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ang

OK  how long do we have to edit posts?  1 hour? Or less?   Too late now, cant delete my posts    ... so so awful when one knows in their heart, what drugs have done, but cant speak out, if you do, well you end up,well where I am.........   Like want to speak the truth, but dont dare to......... Well I have spoken the truth....  let it roll!

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NJJ

Dalsan

 

Thank you for letting me know about the zoloft shortage, I was panicking because I had trouble with the generic. One pharmacist told me I had a psychological issue with generic brands, but when it happened It didn't even cross my mind about taking a different brand, but I certainly felt strange, then weeks later I put two and two together. I contacted Pfizer Australia and they recon its a global problem because the main ingredient has been hard to source or something along those lines. I called heaps of chemists and found one online pharmacy that has 50 boxes of Pfizer left. I feel like an addict.

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