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Paresthesia: Pins & Needles, Numbness, Tingling, Burning Sensations

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LexAnger

hi JS11,

 

im happy to be connected with you too! This has been my most torturous symptoms for many years and I'm glad we can share experience and thoughts on it.

 

Thanks for visiting my thread too! its quite possible the ups and downs countless times is the main cause of the nerve damage for me. 

 

I li see you are on PST time zone too. I'd be happy to talk to you sometimes if you feel like. Will send a PM to you now.

 

hope you have a better day today,

lex

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JS11
8 hours ago, LexAnger said:

hi JS11,

 

im happy to be connected with you too! This has been my most torturous symptoms for many years and I'm glad we can share experience and thoughts on it.

 

Thanks for visiting my thread too! its quite possible the ups and downs countless times is the main cause of the nerve damage for me. 

 

I li see you are on PST time zone too. I'd be happy to talk to you sometimes if you feel like. Will send a PM to you now.

 

hope you have a better day today,

lex

Thank you, Lex.  I so enjoyed talking with .  It is so lovely to meet others going through similar things.  Assuages that lonely feeling.

Yes, another West Coaster.  So many of us from all over it seems.  Different names for the same evil. The world over.  

 

I do hope your cold and your evening are doing well. 

take care,

JS

 

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LexAnger

Thank you JS11! 

I enjoyed our talk too.

 

there are so much to learn on here and from own experience dancing with these poisons along the way of tapering. We will make it to the other side someday.

 

be kind to yourself!

lex

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Callie

I've been experiencing skin sensations--burning, stinging, jabbing, etc.--for five months now with very little relief. In the beginning, I had severe itching so much so that I scratched until I bled. This has subsided for the most part. I am now able to scratch, and the itch goes away. Does all of this eventually disappear so that I will be normal again? Any suggestions for relief of these symptoms in the meantime?

Edited by scallywag
add then delete pre-approval note to moderators

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JS11
10 hours ago, LexAnger said:

Thank you JS11! 

I enjoyed our talk too.

 

there are so much to learn on here and from own experience dancing with these poisons along the way of tapering. We will make it to the other side someday.

 

be kind to yourself!

lex

Thank you, Lex for the support and encouragement.  May your day go well.

take care,

JS

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whatshappening
On 3/15/2017 at 2:19 AM, IrishMonkey92 said:

TERRY - omg! I have this.

 

The tops of my hands burn/prickle after I eat a meal. I'm trying to figure out if it's due to turkey or not, but it tends to happen with certain meals.

 

My legs have started getting ridiculously strong pins and needles in them when I'm crossing my legs. My hands go numb with holding my phone sometimes. Even laying on the sofa can make the side of my bode go numb too. I use to wake up with numb body parts too!

 

I basically Cold turkey'd (4 week taper) Citalopram 19 months ago.

I had these exact symptoms too last summer very badly as I was getting to the tail end of a one year slow taper. Unfortunately was placed back on original dose and since have stabilized with majority of parasthesia symptoms.  You say you have been done with citalprom more than 19 months now? Only now have your symptoms appeared or have you been battling with these since your discontinuation? If so has it gotten better? 

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whatshappening
On 9/10/2016 at 6:42 PM, Chicosalt said:

This may be the best forum I've read in a year!

I took Paxil for 15 years when it finally "pooped out." Doc told me to just stop and try Wellbutrin (which didn't do a THING for me.) You all can imagine how horrific that cold turkey WD was..

I was really sick for several weeks and a few months in began to experience foot tingling/numbness/weird sensations. Same doctor told me I had Idiopathic Peripheral Neuropathy (Not loving this guy any longer..) . Add that to an already anxious soul- I've been a mess for a year now.

Reading all the above notes gives me faith that these constant symptoms might possibly be ongoing WD symptoms. Thank you to all who have written that, with symptoms getting better, no matter how slowly, these nerves of mine will heal.

XO!

how are you now? I was in similar situation as yours but i did do a slew cautious taper.  But got the

same silly diagnosis and I don't see that doctor anymore.

 

Although I'm stabilized due to reinstatement I've been starting a much shower taper. Scared of the same symptoms occurring again but if they do I wanted to see if since this post you have improved. 

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JS11
On 10/2/2016 at 5:37 PM, ChessieCat said:

You might find reading this topic helpful/interesting:  What is Happening in Your Brain.

 

Alto's quote at the beginning of the post:  "The domino effect of neurotransmitter dysregulation she describes here regarding GABA and glutamate also applies generally to all the other neurotransmitters affected by psychiatric drugs. They are all necessary, working in harmony, like an orchestra. Dysregulate one, and the others tend to get dysregulated, too."

 

It is a long post but I suggest you read completely through Post #1 because I think it helps for us to understand that there is an immense amount of work going on in the brain.  I think this analogy within that post is excellent:

 

"It would be like if the World Trade Center Towers hadn't completely fallen - but had crumbled inside in different places.. Imagine if you were [...] to rebuild the tower - WHILE people were coming and going and [...] to work in the building!  You'd have to set up a temporary elevator - but when you needed to fix part of that area, you'd have to tear down that elevator and set up a temporary elevator somewhere else. And so on. You'd have to build, work around, then tear down, then build again, then work around, then build... ALL while people are coming and going, ALL while the furniture is being replaced, ALL while the walls are getting repainted... ALL while [...] is going on INSIDE the building. No doubt it would be chaotic. That is EXACTLY what is happening with windows and waves.  The windows are where the body has "got it right" for a day or so - but then the building shifts and the brain works on something else - and it's chaos again while another temporary pathway is set up to reroute function until repairs are made."

This helps so very much to visualize things, Chessie Cat.  Thank you, take care, JS

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JS11
On 9/6/2017 at 8:55 AM, Callie said:

I've been experiencing skin sensations--burning, stinging, jabbing, etc.--for five months now with very little relief. In the beginning, I had severe itching so much so that I scratched until I bled. This has subsided for the most part. I am now able to scratch, and the itch goes away. Does all of this eventually disappear so that I will be normal again? Any suggestions for relief of these symptoms in the meantime?

Oh my gosh Callie, I'm so very sorry.  I wish I could give you some expert advice but there are many others out there who can.

I hope you feel better.

take care,

JS11 

and nice to meet you

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IrishMonkey92
On 06/09/2017 at 9:34 PM, whatshappening said:

I had these exact symptoms too last summer very badly as I was getting to the tail end of a one year slow taper. Unfortunately was placed back on original dose and since have stabilized with majority of parasthesia symptoms.  You say you have been done with citalprom more than 19 months now? Only now have your symptoms appeared or have you been battling with these since your discontinuation? If so has it gotten better? 

Battling since discontinuation. 

 

The first 5 months I didn't realise anything was actually wrong. I had minor symptoms which my doctor said was anxiety. Brain zaps here and there. RLS at night time for a month or so. And a bright white dot that zoomed across my vision and left again. Then it wasn't until I had a heavy night of drinking 5 months in, did I think anything was wrong. I woke up and all hell broke loose. That was January 2016. The pins and needles have calmed down. However I still have a lot of my other symptoms. 

 

The burning hands has seemed to disappear too.

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Webhead21

please, please, please someone tell me how to reverse numbness it’s profoundly effect my entire body and in more regions than others.  I need some help finding an answer. I know my diet, sleep, and depression need improvement, but I need to hear that I can get better with a protocol or something positive.  I literally feel like I’m dying.  I really need some support. Anything that all.

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Mimi11

I'm sorry you're going through this Webhead21 and I can relate. My best advice is to take things day by day and do calming things for your nervous system: meditation, gentle yoga, epsom salts baths, get out for a walk. As for supplements, I take a good quality probiotic from Metagenics and I personally think healing the gut is key to recovery, but that's just my opinion. Things improve incredibly slowly, but there is healing going on. Yes, it can take years. It's been 26 months for me. My symptoms of numbness come and go and move around. Things got worse for me after an acupuncture treatment, so I've been staying away from that for now. Take care of yourself and keep moving forward. 

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Callie

I have a question for those who have been through these skin issues as I would like to know if I am improving or getting worse with them.

 

When my post AD WD symptoms began, I suffered intense, insatiable itching. I scratched till I bled; the more I scratched the worse I itched. That symptom resolved after about a month or so. Then burning, pin-sticking, jabbing sensations, and knife-like stabbing persisted for a few months. That went away and was replaced with sparking sensations in my skin. That subsided as well. Now being almost eight months into AD WD, my skin has become super, ultra hypersensitive with a tiny bit of itching on occasion. My arms hurt really bad and also feel cold.

 

Has anyone experienced this or similar? Am I getting worse or better? I would appreciate your help!

 

Thanks,

 

Callie

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grandmaD

Itching, yes.  Another sensation like someone stinging me with stinging nettles lasted for weeks at a time, but okay at present.

 

Heard others have similar issues.  Burning, yes another one. 

 

Pin pricking yes.  Lexapro has what she calls "needling" sensation in her head.

 

Feeling cold, yes and aching muscles (right arm is worse ) and legs are excruciating painful with shooting pains in feet.

 

All part of w/d sorry to say.

 

Have to wait for nervous system to heal.

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Callie

Thank you, grandmaD. I am really having a hard time. I have had no relief from this at all. It is torturous hell for me, so I very much appreciate your response. It helps.

 

Callie

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Callie

It started out as paresthesia months ago, I'm sure, but now the skin on my arms is so hypersensitive that it feels as if it's going to peel off when anything touches it. It's just getting worse day by day. Anybody else have this same problem?

 

Callie

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Spice81

I get tingling in both my hands little fingers and ring fingers also more often mainly when I’m lying down using my phone with both arms bent or when I’m lying down trying to sleep. When I wake up they are normally both knumb. Has been about 4-5 weeks. I’m going through a very messy wd 

been on venlafaxine for 4 weeks 

1mg of lorazepam a day 

25mg quatiapine at night 

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dj2010
51 minutes ago, Spice81 said:

I get tingling in both my hands little fingers and ring fingers also more often mainly when I’m lying down using my phone with both arms bent or when I’m lying down trying to sleep. When I wake up they are normally both knumb. Has been about 4-5 weeks. I’m going through a very messy wd 

been on venlafaxine for 4 weeks 

1mg of lorazepam a day 

25mg quatiapine at night 

had similar thing happen to me, around months 2 - 3 after stopped meds when I would lie down to try and sleep my right arm and hand would go numb, it was always the right side, I would wake up with it completely numb, I thought it was my mattress so bought a new one but it continued, this lasted around 6 weeks and then it stopped,

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Maridou

Hi !

 

I am now two years off klonopin.  I used it for 13 years.  I still now suffer from nerve pain : numbness, buzzing, tingling, burning, pins and needles burning sensation in limbs.  But this condition worsens as I started Tapering Luvox last spring.  The condition is now so bad that I can't sleep. I also have to deal with muscle pain all over.  I really think tapering the SSRI increased that benzo protracted withdrawal related nerve pain symptoms.  I had an MRi which is normal. Not sure if I should continue to taper the SSRI or take a break.  I am currently half way to the end...

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Altostrata

Hi, Maridou. Please start a topic for yourself in the Introductions forum and we will discuss your Luvox taper.

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littleball

Sorry if I make a maybe old question, but if I go to a neurologist will he be able to diagnose any damage related to the nerves? And maybe get a prognosis? 

 

After I took an antibiotic (Cipro) for one time 500mg, a nervous pain in my legs and arms popped up in addition to all the other diseases. I am so scared because this antibiotic is itself frequently associated with this type of issues.


My psychological effects are now relatively mild, but all summed up I am thinking seriously of having a iatrogenic neuropathy.

 

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JanCarol

Hey Littleball - 

 

There might be 1 neurologist in 100 who will "correct" for drug errors.

 

I posted here:

 

Quote

 I know of at least one person in the USA who found a compassionate neurologist.  The neurologist said to her, "You are overdrugged," and then later told her she was never "mentally ill," that it was all drug effects.  (Aria - she has an intro thread and a success story). 

But - I've found that most medical professionals WON'T TOUCH psych drugs with a 10 foot pole.  Meaning, if you are on them, there must be a "good reason" (ugh!) for it.

 

Example:  opthalmologist - I had some retinal tearing.  (that's tear as in rip, not tears as in cry)  I asked him, "what could cause that?"  At first, he didn't want to say anything, something like, "we don't really know"  (oh I hear that way too often!)  He said something about chronic dehydration, and I said:  "So if my kidneys are compromised by lithium, that could cause this?"  He hesitated.  You could see him weighing in his mind if he wanted a stark raving bipolar going off her drugs based on what he said.  He did admit, reluctantly, that this could be the case.  But - he didn't want to.

GP's, same.  I have a friend who is diagnosed with chronic brain damage from neuroleptics.  Diagnosed, and they have offered her support for her brain damage.  But they wouldn't DREAM of reducing her neuroleptics.  After all, that's crazy!  And nobody wants to see crazy.....

So - I make it a point to tell professionals that I did a 2 year taper of lithium (they especially get nervous around lithium, as a loose bipolar can be pretty scary), and that I've been off it for 2 years, and much better, thanks.

WIthdrawal can look like a neurological disorder.  You've been in chronic withdrawal for - decades now.  If you go to the neurologist, you might take your drug history, hand it to him, and say, "could this cause this?"  Don't say anything else, don't talk about tapering or anything "antipsychiatry" until you see his reaction to that.

 

and here:

 

Quote

 I was listening to Peter Breggin the other night, and thought of you.  Now Uncle Peter is a kindly, gentle soul - but his words are often harsh truths, delivered with kindness.  This discussion talked about how neurologists depend upon referrals from psychiatrists for their bread-and-butter.  And that a neurologist is never likely to contradict the drugging behaviour of a psychiatrist.  But you can try, and it would be good to eliminate the possibility of any lasting damage.

 

But here's the thing - once you get off the drugs, much of the damage can be reworked - it's called neuroplasticity.  Norman Doidge, "The Brain that Changes Itself" is a very encouraging read.  I'll tell a personal story - my husband had a stroke, and now has a golf-ball sized hole in his brain.  He didn't lose any physical capacity - he lost words.   He could walk and dig the garden and play guitar - but he couldn't tell you what he had just done, or what he wanted, or how he feels (he still struggles with that one, much to my dismay).  With 6 weeks of intensive rehab (3 weeks inpatient, 3 weeks outpatient) - he got his words back, and was able to go back to work where he needed to talk on the phone, create reports, respond to software emergencies, and a number of other verbal tasks.  The brain is an amazing thing, and while he still has this huge hole over the Broca's area, he is 95% recovered.  All the outsiders believe he is fully recovered.

 

There are people on the Facebook group who claim to have gotten MRI results that show encephalopathy (damage).  But they are not acknowledging the neuroplasticity side of the thing.

If you have a problem and do nothing, there is a chance that you will heal.

 

If you have a problem and address that problem - with yoga, tai chi, walking, meditation, pet therapy - there is a much better chance you will heal.

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littleball
9 hours ago, JanCarol said:

There are people on the Facebook group who claim to have gotten MRI results that show encephalopathy (damage).  But they are not acknowledging the neuroplasticity side of the thing.

If you have a problem and do nothing, there is a chance that you will heal.

 

If you have a problem and address that problem - with yoga, tai chi, walking, meditation, pet therapy - there is a much better chance you will heal.

 

Thank you for your interesting readings!!

 

Actually I wanted to make some specific exams to show the people surrounding me that my pain is real. For example, my uncle is a doctor and he is very kind, but when I talk about him this problem and the worsening brought by the antibiotic he says that it is mainly caused by my anxious nature and that they won't find anything ever. 

 

THIS IS NOT ANXIETY. 

 

I know how I am when I am anxious: I breathe strange, my heart pumps fast, my blood pressure drops. If I accumulate stress I can't sleep and I wake in the middle of the night. This is me not the pins and needles. 

But never had something like paraesthesia. 

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JanCarol

I complained of parasthesia to my GP, years before my taper.

 

I used to wear arch supports in karate - a bare foot sport - to prevent my whole left leg from going numb, because stance - just standing - did it.

 

My GP tried to tell me that it was my posture or a pinched nerve, or I was fat, or had diabetes or something.  She tested me for diabetes (negative) and sent me packing.

 

After I came off the statin, it was better.  When I quit lithium, it got better still.

I still get it - especially on the massage table - 1 hour is a long time to lay still, and my back locks up and my leg - always the left one - goes numb.


But it no longer impedes my functioning.

I doubt you can prove anything to a doctor.

Parathesia seems to be more about the nerves than it does the brain.  Just my guess, after years of experiencing it.

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Spice81

Anyone else get pins and needles in their hands  when they lie down at night and get knumb hands 😥 also get it when I’m on my phone lying down 

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