DLB Posted September 6, 2015 Author Share Posted September 6, 2015 Hi pug, thanks for stopping by. I'm gonna toss them right now! I also use doxy on my real bad nights. Last night i had about 7 hours. The constant nightly bathroom visits have really slowed down too. I have heard of lots of skin issues too and heard they resolved. I hope mine does too. Thanks again Pug. Paxil start September 2003 due to Fluoroquinolone adverse reaction that I wish doc. knew what it was. 10mg. most of the time with a few short runs of 20mg. FAST tapered 3 times and finally hit poop out or a reaction to nsaid's in Nov.2013. Started a 10% taper Jan. 2014 and have been ok until Sept 14 and went through a short hell. Now plodding through and looking for the light with unrelenting insomnia and pain, fog, loss of interests....<p>12/20/14 - .8mg. 1/01/15 - .75 mg. 1/15/15 - .42 mg. better sleep now, hope it continues... 2/11-15 - .25 mg. doing really good!! 2 weeks feel 85% of old me! 3/17/15 .14 mg. Knee pain bad! 4/07/15 .05 mg. this is so small now that I am estimating and just licking it off palm small as a "." 4/13/15 NOTHING !!!! Took my last little micro dose on 4/12/15. Link to comment
DLB Posted September 6, 2015 Author Share Posted September 6, 2015 Hi pug, thanks for stopping by. I'm gonna toss them right now! I also use doxy on my real bad nights. Last night i had about 7 hours. The constant nightly bathroom visits have really slowed down too. I have heard of lots of skin issues too and heard they resolved. I hope mine does too. Thanks again Pug. Paxil start September 2003 due to Fluoroquinolone adverse reaction that I wish doc. knew what it was. 10mg. most of the time with a few short runs of 20mg. FAST tapered 3 times and finally hit poop out or a reaction to nsaid's in Nov.2013. Started a 10% taper Jan. 2014 and have been ok until Sept 14 and went through a short hell. Now plodding through and looking for the light with unrelenting insomnia and pain, fog, loss of interests....<p>12/20/14 - .8mg. 1/01/15 - .75 mg. 1/15/15 - .42 mg. better sleep now, hope it continues... 2/11-15 - .25 mg. doing really good!! 2 weeks feel 85% of old me! 3/17/15 .14 mg. Knee pain bad! 4/07/15 .05 mg. this is so small now that I am estimating and just licking it off palm small as a "." 4/13/15 NOTHING !!!! Took my last little micro dose on 4/12/15. Link to comment
mattage Posted September 6, 2015 Share Posted September 6, 2015 Chuck em DLB. You won't need them now! Well done on getting through the woods. Hope things keep on improving for you. CT at 10mg. After 3 months RI at 5mg. Taper at 10% per month down to 1mg. Taper the last milligram a little too quickly. After ceasing meds, hit WD. Currently 2 months 3 weeks drug free. Hit protracted withdrawal 3.5 months after coming off Paxil (after 17 years use). I tried to reinstate just 0.5mg of Paxil but my body would no longer accept it. Tried a number of different drugs during a hospital spell. I eventually found one that eased my symptoms a bit. Currently, 10 months (15/05/16) off Paxil in the middle of a bad wave. I'm taking 150mg Clomipramine. Link to comment
DLB Posted September 7, 2015 Author Share Posted September 7, 2015 Thanks matt, they are gone. How you doing?? Paxil start September 2003 due to Fluoroquinolone adverse reaction that I wish doc. knew what it was. 10mg. most of the time with a few short runs of 20mg. FAST tapered 3 times and finally hit poop out or a reaction to nsaid's in Nov.2013. Started a 10% taper Jan. 2014 and have been ok until Sept 14 and went through a short hell. Now plodding through and looking for the light with unrelenting insomnia and pain, fog, loss of interests....<p>12/20/14 - .8mg. 1/01/15 - .75 mg. 1/15/15 - .42 mg. better sleep now, hope it continues... 2/11-15 - .25 mg. doing really good!! 2 weeks feel 85% of old me! 3/17/15 .14 mg. Knee pain bad! 4/07/15 .05 mg. this is so small now that I am estimating and just licking it off palm small as a "." 4/13/15 NOTHING !!!! Took my last little micro dose on 4/12/15. Link to comment
mattage Posted September 7, 2015 Share Posted September 7, 2015 That's Great. Can't wait to ditch mine! I've been very up and down- waves and windows. Had some improvements with emotions, smells, libido and intelligence but I still have plenty of symptoms too. I am getting more confident that I will get through it though (although it may take a while). CT at 10mg. After 3 months RI at 5mg. Taper at 10% per month down to 1mg. Taper the last milligram a little too quickly. After ceasing meds, hit WD. Currently 2 months 3 weeks drug free. Hit protracted withdrawal 3.5 months after coming off Paxil (after 17 years use). I tried to reinstate just 0.5mg of Paxil but my body would no longer accept it. Tried a number of different drugs during a hospital spell. I eventually found one that eased my symptoms a bit. Currently, 10 months (15/05/16) off Paxil in the middle of a bad wave. I'm taking 150mg Clomipramine. Link to comment
DLB Posted September 7, 2015 Author Share Posted September 7, 2015 Trust me Matt, it takes a while but it gets better. I am still not the me I was ,but I see him now. Paxil start September 2003 due to Fluoroquinolone adverse reaction that I wish doc. knew what it was. 10mg. most of the time with a few short runs of 20mg. FAST tapered 3 times and finally hit poop out or a reaction to nsaid's in Nov.2013. Started a 10% taper Jan. 2014 and have been ok until Sept 14 and went through a short hell. Now plodding through and looking for the light with unrelenting insomnia and pain, fog, loss of interests....<p>12/20/14 - .8mg. 1/01/15 - .75 mg. 1/15/15 - .42 mg. better sleep now, hope it continues... 2/11-15 - .25 mg. doing really good!! 2 weeks feel 85% of old me! 3/17/15 .14 mg. Knee pain bad! 4/07/15 .05 mg. this is so small now that I am estimating and just licking it off palm small as a "." 4/13/15 NOTHING !!!! Took my last little micro dose on 4/12/15. Link to comment
DLB Posted October 7, 2015 Author Share Posted October 7, 2015 (edited) *topic and replies moved from the symptoms forum Im basically at 6 months off now and not in a good place right now. I was real tired from a few nights of terrible sleep and was exhausted last night and as i was getting to sleep i had the exploding head thing and was wide awake after that. Have been fighting a cold since saturday and have lots of symptoms that were essentially gone for a while. Does having a simple cold cause this or can this be the dreaded 6 month wave. Sleep and anxiety have been bad. Thanks .... Edited October 16, 2015 by Petunia added note Paxil start September 2003 due to Fluoroquinolone adverse reaction that I wish doc. knew what it was. 10mg. most of the time with a few short runs of 20mg. FAST tapered 3 times and finally hit poop out or a reaction to nsaid's in Nov.2013. Started a 10% taper Jan. 2014 and have been ok until Sept 14 and went through a short hell. Now plodding through and looking for the light with unrelenting insomnia and pain, fog, loss of interests....<p>12/20/14 - .8mg. 1/01/15 - .75 mg. 1/15/15 - .42 mg. better sleep now, hope it continues... 2/11-15 - .25 mg. doing really good!! 2 weeks feel 85% of old me! 3/17/15 .14 mg. Knee pain bad! 4/07/15 .05 mg. this is so small now that I am estimating and just licking it off palm small as a "." 4/13/15 NOTHING !!!! Took my last little micro dose on 4/12/15. Link to comment
Moderator brassmonkey Posted October 7, 2015 Moderator Share Posted October 7, 2015 I'm betting that the cold tripped off a minor wave. I always get increased symptoms when I get sick. Keep warm, rest and take care of your self and things should get better pretty soon. 20 years on Paxil starting at 20mg and working up to 40mg. Sept 2011 started 10% every 6 weeks taper (2.5% every week for 4 weeks then hold for 2 additional weeks), currently at 7.9mg. Oct 2011 CTed 15oz vodka a night, to only drinking 2 beers most nights, totally sober Feb 2013. Since I wrote this I have continued to decrease my dose by 10% every 6 weeks (2.5% every week for 4 weeks and then hold for an additional 2 weeks). I added in an extra 6 week hold when I hit 10mg to let things settle out even more. When I hit 3mgpw it became hard to split the drop into 4 parts so I switched to dropping 1mgpw (pill weight) every week for 3 weeks and then holding for another 3 weeks. The 3 + 3 schedule turned out to be too harsh so I cut back to dropping 1mgpw every 4 weeks which is working better. Final Dose 0.016mg. Current dose 0.000mg 04-15-2017 "It's also important not to become angry, no matter how difficult life is, because you can loose all hope if you can't laugh at yourself and at life in general." Stephen Hawking Link to comment
Miko789 Posted October 7, 2015 Share Posted October 7, 2015 Im basically at 6 months off now and not in a good place right now. I was real tired from a few nights of terrible sleep and was exhausted last night and as i was getting to sleep i had the exploding head thing and was wide awake after that. Have been fighting a cold since saturday and have lots of symptoms that were essentially gone for a while. Does having a simple cold cause this or can this be the dreaded 6 month wave. Sleep and anxiety have been bad. Thanks .... hi DLB its probably caused from the cold, things will get better soon. 2011 protracted withdrawal symptoms from Effexor, managed to come off 2013-2015 risperidone consta 50 mg, started tapering from March 2015 to 1,66mg/day and from 02/2015 started seroxat 10mg/day 01/17 Seroxat 2,0mg,olanzapine 5mg,risperidone consta 25mg/every 15days 05/17 Seroxat 1mg,olanzapine 5mg,risp.consta 25mg/every 15days 06/17 Seroxat 2drops,olanzapine 5mg,liquid risperidone2mg 07/17 Seroxat 1 drop,olanzapine 5mg,Risperidone 0mg, 10/17 Seroxat 0mg,olanzapine,5mg,Risperidone 0mg, 12/17 Seroxat 1/2 drop, olanzapine 5mg, 04/18 Olanzapine 1,25mg, 04/18 xanax 0,5mg 24/06/2019 doc said to take 10mg olanzapine for 13days and down to 5mg been taking 10mg for 14 days, 5mg for 8 days and tapered to 3/4quart. 5mg for 14 days, 1/2 for 14 days, 01/08/19 2,5mg 08/2021 5mg olanzapine Supplements Omega 3, Turmeric, Bacopa monneri, Mucuna Pruriens Link to comment
DLB Posted October 7, 2015 Author Share Posted October 7, 2015 Thanks guys, i havent been like this in a long time. Getting weird hand and foot sensitivity , pins and needles and just real sensitive to the touch. Like you Tom, i am getting lots of pains and constant in the knees. I have noticed im doing alot of body scanning due to some weight loss but eating like always. Im sure that is contributing to the anxiety too. I seem to be losing lots of muscle mass and everyone is noticing and reminding me about it which gets me going with anxiety. I have to remember it gets better but now i feel like i should be worrying about tardive crap sneaking up on me. Body is killing me, i cant wait to get home... Paxil start September 2003 due to Fluoroquinolone adverse reaction that I wish doc. knew what it was. 10mg. most of the time with a few short runs of 20mg. FAST tapered 3 times and finally hit poop out or a reaction to nsaid's in Nov.2013. Started a 10% taper Jan. 2014 and have been ok until Sept 14 and went through a short hell. Now plodding through and looking for the light with unrelenting insomnia and pain, fog, loss of interests....<p>12/20/14 - .8mg. 1/01/15 - .75 mg. 1/15/15 - .42 mg. better sleep now, hope it continues... 2/11-15 - .25 mg. doing really good!! 2 weeks feel 85% of old me! 3/17/15 .14 mg. Knee pain bad! 4/07/15 .05 mg. this is so small now that I am estimating and just licking it off palm small as a "." 4/13/15 NOTHING !!!! Took my last little micro dose on 4/12/15. Link to comment
DLB Posted October 13, 2015 Author Share Posted October 13, 2015 So, it is now 6 months free of that poison Paxil and i am doing fairly well aside from a short wave brought on by a cold last week. Still some anhedonia ,get fatigued real easy from exertion, weak legs and sore knees, and have definitely lost weight especially muscle mass in the past 6 months and i didnt need to. My legs dont even look like mine! I wonder what the heck can cause this loss of weight and muscle whenever i come off. Have NO anxiety and i just last night had my first 7 hour sleep in ages. My sleep is about 5 hours of broken sleep but im used to it. Without a doubt it is better than a year ago or even 6 months ago Paxil start September 2003 due to Fluoroquinolone adverse reaction that I wish doc. knew what it was. 10mg. most of the time with a few short runs of 20mg. FAST tapered 3 times and finally hit poop out or a reaction to nsaid's in Nov.2013. Started a 10% taper Jan. 2014 and have been ok until Sept 14 and went through a short hell. Now plodding through and looking for the light with unrelenting insomnia and pain, fog, loss of interests....<p>12/20/14 - .8mg. 1/01/15 - .75 mg. 1/15/15 - .42 mg. better sleep now, hope it continues... 2/11-15 - .25 mg. doing really good!! 2 weeks feel 85% of old me! 3/17/15 .14 mg. Knee pain bad! 4/07/15 .05 mg. this is so small now that I am estimating and just licking it off palm small as a "." 4/13/15 NOTHING !!!! Took my last little micro dose on 4/12/15. Link to comment
mattage Posted October 13, 2015 Share Posted October 13, 2015 I'm glad you are finally getting some good zzzzzzzs DLB! I'm sure it must help the recovery process. CT at 10mg. After 3 months RI at 5mg. Taper at 10% per month down to 1mg. Taper the last milligram a little too quickly. After ceasing meds, hit WD. Currently 2 months 3 weeks drug free. Hit protracted withdrawal 3.5 months after coming off Paxil (after 17 years use). I tried to reinstate just 0.5mg of Paxil but my body would no longer accept it. Tried a number of different drugs during a hospital spell. I eventually found one that eased my symptoms a bit. Currently, 10 months (15/05/16) off Paxil in the middle of a bad wave. I'm taking 150mg Clomipramine. Link to comment
DLB Posted October 14, 2015 Author Share Posted October 14, 2015 Thanks Matt, doing a lot better than last week! I notice when I do sleep well I am exhausted all morning and come to life in the afternoon. If I get 3-4 hours of sleep I'm fine all day! I think because I'm awake at 3:30 or 4:00 and sit there for a few hours that I end up fully awake at 5:30 when I go to work. Just keep going Matt and know that you will get through it. Paxil start September 2003 due to Fluoroquinolone adverse reaction that I wish doc. knew what it was. 10mg. most of the time with a few short runs of 20mg. FAST tapered 3 times and finally hit poop out or a reaction to nsaid's in Nov.2013. Started a 10% taper Jan. 2014 and have been ok until Sept 14 and went through a short hell. Now plodding through and looking for the light with unrelenting insomnia and pain, fog, loss of interests....<p>12/20/14 - .8mg. 1/01/15 - .75 mg. 1/15/15 - .42 mg. better sleep now, hope it continues... 2/11-15 - .25 mg. doing really good!! 2 weeks feel 85% of old me! 3/17/15 .14 mg. Knee pain bad! 4/07/15 .05 mg. this is so small now that I am estimating and just licking it off palm small as a "." 4/13/15 NOTHING !!!! Took my last little micro dose on 4/12/15. Link to comment
LexAnger Posted October 14, 2015 Share Posted October 14, 2015 Hi DLB, That's interesting how your sleeping impacts how you feel the next day. I observed the same pattern but not sure if it's a coincidence as I assume more sleep would provides a better day. Anyone has a clue about this rather strange phenomena ? Drug free Sep. 23 2017 2009 Mar.: lexapro 10mg for headache for 2 weeks. 2009-2012: on and off 1/4 to 1/3 of 10mg 2012 June--2013 Jan,: 1/4-1/3 of 10mg generic, bad jaw pain 2013 Jan-Mar: 10 mg generic. severe jaw and head pain; 2013 Mar--Aug. started tapering (liquid ever since) from 10 to 5 (one step) then gradually down to 2.25 mg by July. first ever panic attack, severe head/jaw pain 2013 Aug.: back to 2.75 mg; Nov: back to Brand Lex. 2.75mg -- 3mg, 2014 June: stopped PPI, head pressure/numbness. up-dosed 4.5mg, severe reaction mental symptoms added on 2014 Aug--2015 Aug: Micro taper down to 3.2mg, .025mg (<1%) cut holding 2-3 weeks. 2015 Aug 15th, Accidental one dose of 4.2mg. worsening brain non-functional, swollen head, body, coma like, DR 2016 Feb., started dosing 10am through 11 pm everyday 2/13--3.2mg, 3/15-- 2.9mg, 4/19-- 2.6mg, 6/26--2.2mg, 7/22 --1.9mg, 8/16--1.8mg，8/31--1.7m g, 9/13--1.6mg, 9/27--1.5mg, 10/8--1.4mg, 10/14--1.3mg， 11/1--1.2mg, 11/29--1.1mg, 12/12--1mg, 12/22--0.9mg 2017: 1/7--0.8mg, 1/15--0.7mg, 1/17--0.6mg, 1/20--0.52, 1/21--0.4mg, 1/22--0.26, 1/23--0.2, 2/13--0.13mg, 2/20--0.06mg, 3/18--0.13mg, 6/1--0.12mg, 7/6--0.1mg, 7/14--0.08mg, 8/17--0.04mg, 8/20--0.03mg, 8/28--0.02mg, 9/6--0.0205mg, 9/8--0.02mg, 9/17--0.015mg, 9/20--0.01mg, 9/21--0.0048mg, 9/22--0.0001mg, Link to comment
DLB Posted November 13, 2015 Author Share Posted November 13, 2015 7 months!! Doing good and sleep improving in spurts. Defiantly changes happening! Hoping they continue. Hang in there everyone. Paxil start September 2003 due to Fluoroquinolone adverse reaction that I wish doc. knew what it was. 10mg. most of the time with a few short runs of 20mg. FAST tapered 3 times and finally hit poop out or a reaction to nsaid's in Nov.2013. Started a 10% taper Jan. 2014 and have been ok until Sept 14 and went through a short hell. Now plodding through and looking for the light with unrelenting insomnia and pain, fog, loss of interests....<p>12/20/14 - .8mg. 1/01/15 - .75 mg. 1/15/15 - .42 mg. better sleep now, hope it continues... 2/11-15 - .25 mg. doing really good!! 2 weeks feel 85% of old me! 3/17/15 .14 mg. Knee pain bad! 4/07/15 .05 mg. this is so small now that I am estimating and just licking it off palm small as a "." 4/13/15 NOTHING !!!! Took my last little micro dose on 4/12/15. Link to comment
clearday Posted November 13, 2015 Share Posted November 13, 2015 Great news - glad to hear it. Hell hath no fury as an SSRI scorned..... Prozac: 20 mg 1996 – May 2003 CT to 0 mg; by Aug 03 CRASH then protracted WD 3 yrs Zoloft: 2004 few weeks;, CT to 0 mg Effexor: 2005 few months CT to 0 mg; bad withdrawal. Lexapro: 10 mg from 2009 – 2011; cut dose in half to: Lexapro: 5 mg from 2011 – Feb. 2014; CT to 0 mg; 2 months of fatigue, followed by:Aug - Oct 2014 Lexapro WD Insomnia Wave; sleeping very good from Nov 2014 - Nov 2015; broken sleep pattern Dec 2015 - Jan 2016 Dec 2014 - present: Brutal Lexapro WD ear ringing/head ringing/head pressure lasting for 14 months now. 24 months SSRI-free Link to comment
AmyK Posted November 13, 2015 Share Posted November 13, 2015 That's wonderful, DLB! Current dose: 0! Free! Quit June 2017. 2017: Last dose zoloft: 17 June 0,00065 mg 18 May 0, 001 mg 14 May 0,002 mg 9 May 0,003 mg 28 April 0,006 mg 19 April 0,009 mg 8 April 0,013 mg 25 March 0,019 mg 22 March 0,039 mg 18 March 0,052 mg 16 March 0,079 mg 4 March 0,086 1 March 0,099 mg 22 February 0,11 mg 15 February 0,13 mg 6 February 0,145 mg 24 January 0,15 mg 19 January 0,19 mg 10 January 0,20 mg 3 January 2016: 0,98 to 0,22 mg; 2015: 2,35 to 1,01 mg; 2014: 4,9 to 2,5 mg; 2013: 9,1 to 5,1 mg; 2012: 15,7 to 9,7 mg; 2011: Started on 25 mg - then 50 mg- dropped to 25- to 12.5 mg - back to 25 mg - after 18.75 mg started tiny tapering to 16.6 mg Started on 25 mg Zoloft in March 2011 due to stressrelated tinnitus that gave me panicattacks. Had a terrible reaction to Zoloft from start, but was told to "hold on". After four months I was stuck. Therefore the long taper. Crazy, I know... Super sensitive to drops and have dropped by 4-6 % from the previous dose. Link to comment
IHadPassion Posted November 13, 2015 Share Posted November 13, 2015 DLB, How do you feel you've recovered from the floxing aside from the AD withdrawal? I was given Avelox almost ten years ago and have suffered with tendon and muscle issues ever since. Year 0: Social anxiety, obsessive thoughts, NO depression, NO suicidal ideations Years 1-2: Ativan (benzo) <1mg as needed, not abused but developed physical dependence Years 2-3: Paxil (20mg) augmented with Adderall XR (10-20mg) due to withdrawal from Ativan Years 3-Present: Severe depression, headaches, psychiatric hospitalization, lost job, etc. Link to comment
Moderator brassmonkey Posted November 13, 2015 Moderator Share Posted November 13, 2015 That's great to hear DLB. Here's to an even better month 8!!! 20 years on Paxil starting at 20mg and working up to 40mg. Sept 2011 started 10% every 6 weeks taper (2.5% every week for 4 weeks then hold for 2 additional weeks), currently at 7.9mg. Oct 2011 CTed 15oz vodka a night, to only drinking 2 beers most nights, totally sober Feb 2013. Since I wrote this I have continued to decrease my dose by 10% every 6 weeks (2.5% every week for 4 weeks and then hold for an additional 2 weeks). I added in an extra 6 week hold when I hit 10mg to let things settle out even more. When I hit 3mgpw it became hard to split the drop into 4 parts so I switched to dropping 1mgpw (pill weight) every week for 3 weeks and then holding for another 3 weeks. The 3 + 3 schedule turned out to be too harsh so I cut back to dropping 1mgpw every 4 weeks which is working better. Final Dose 0.016mg. Current dose 0.000mg 04-15-2017 "It's also important not to become angry, no matter how difficult life is, because you can loose all hope if you can't laugh at yourself and at life in general." Stephen Hawking Link to comment
LexAnger Posted November 13, 2015 Share Posted November 13, 2015 congratulations! Happy for you! Drug free Sep. 23 2017 2009 Mar.: lexapro 10mg for headache for 2 weeks. 2009-2012: on and off 1/4 to 1/3 of 10mg 2012 June--2013 Jan,: 1/4-1/3 of 10mg generic, bad jaw pain 2013 Jan-Mar: 10 mg generic. severe jaw and head pain; 2013 Mar--Aug. started tapering (liquid ever since) from 10 to 5 (one step) then gradually down to 2.25 mg by July. first ever panic attack, severe head/jaw pain 2013 Aug.: back to 2.75 mg; Nov: back to Brand Lex. 2.75mg -- 3mg, 2014 June: stopped PPI, head pressure/numbness. up-dosed 4.5mg, severe reaction mental symptoms added on 2014 Aug--2015 Aug: Micro taper down to 3.2mg, .025mg (<1%) cut holding 2-3 weeks. 2015 Aug 15th, Accidental one dose of 4.2mg. worsening brain non-functional, swollen head, body, coma like, DR 2016 Feb., started dosing 10am through 11 pm everyday 2/13--3.2mg, 3/15-- 2.9mg, 4/19-- 2.6mg, 6/26--2.2mg, 7/22 --1.9mg, 8/16--1.8mg，8/31--1.7m g, 9/13--1.6mg, 9/27--1.5mg, 10/8--1.4mg, 10/14--1.3mg， 11/1--1.2mg, 11/29--1.1mg, 12/12--1mg, 12/22--0.9mg 2017: 1/7--0.8mg, 1/15--0.7mg, 1/17--0.6mg, 1/20--0.52, 1/21--0.4mg, 1/22--0.26, 1/23--0.2, 2/13--0.13mg, 2/20--0.06mg, 3/18--0.13mg, 6/1--0.12mg, 7/6--0.1mg, 7/14--0.08mg, 8/17--0.04mg, 8/20--0.03mg, 8/28--0.02mg, 9/6--0.0205mg, 9/8--0.02mg, 9/17--0.015mg, 9/20--0.01mg, 9/21--0.0048mg, 9/22--0.0001mg, Link to comment
DLB Posted November 14, 2015 Author Share Posted November 14, 2015 Thank everyone :-) I had passion, I'm not totally sure what is what with my muscle and tendon issues. All I know is that I have never been the same since the floxing and AD use. I know I was in pain from levaquin but did the Paxil cover it all these years? I was off Paxil for my first time in 08 for 5 months and felt great with no muscle issues until I got an infection and was given levaquin a second time and went right back on Paxil due to the reactions it caused me. It was then that I knew the first floxing caused me the same issues in 03 that put me on Paxil to begin with. I have never had any other pain until I quit Paxil thereafter. In 2011 I quit and had no pain but had pain on startup after withdrawal hit. Then in 2012 when I quit I experienced weakness for the first time and bad knee pain just like when I start Paxil. It went away on reinstating. This last long taper it did not come back until I was at 1 mg. It does wax and wane but always there and sometimes it is truly horrible. I went to an acupuncturist recently and he thought the Paxil was covering up this pain and not causing it. I have never had pain like this until quitting or reinstating Paxil. But I did have identical pain with levaquin so I am not sure what is going on. To complicate things even more, during poop out in December 2013 I suddenly acquired a autoimmune disease which attacks joints and tendons and in my case tendons only. But my inflammation markers are always normal on labs. I have gotten all kinds of weird skin issues I never had before poop out hit me , especially over the last 6 months. I have skin peeling and a weird form of eczema called pompholox. It is really uncomfortable and I never had a skin issue in my life. So I'm not sure if the floxing have damaged me and the Paxil covered it but I don't think so. It seems I was injured by both but repeatedly by Paxil. I never felt so much as a twinge of pain on Paxil and the first time I came off which was 5 years after my first floxing. Paxil can't be that good at covering up pain or else even more people would be on it. Although NZ was put on for arm pain..... Stupid doctors. On another note , Prayers to all in France tonight..... Paxil start September 2003 due to Fluoroquinolone adverse reaction that I wish doc. knew what it was. 10mg. most of the time with a few short runs of 20mg. FAST tapered 3 times and finally hit poop out or a reaction to nsaid's in Nov.2013. Started a 10% taper Jan. 2014 and have been ok until Sept 14 and went through a short hell. Now plodding through and looking for the light with unrelenting insomnia and pain, fog, loss of interests....<p>12/20/14 - .8mg. 1/01/15 - .75 mg. 1/15/15 - .42 mg. better sleep now, hope it continues... 2/11-15 - .25 mg. doing really good!! 2 weeks feel 85% of old me! 3/17/15 .14 mg. Knee pain bad! 4/07/15 .05 mg. this is so small now that I am estimating and just licking it off palm small as a "." 4/13/15 NOTHING !!!! Took my last little micro dose on 4/12/15. Link to comment
DLB Posted November 14, 2015 Author Share Posted November 14, 2015 Oh ,and for the PSSD sufferers this is also getting better. Sorry about too much information but the people that say it is always permanent are wrong. Lasting way more than a minute now lol. Waking up almost every morning like I was years ago with morning wood, Lol. Paxil start September 2003 due to Fluoroquinolone adverse reaction that I wish doc. knew what it was. 10mg. most of the time with a few short runs of 20mg. FAST tapered 3 times and finally hit poop out or a reaction to nsaid's in Nov.2013. Started a 10% taper Jan. 2014 and have been ok until Sept 14 and went through a short hell. Now plodding through and looking for the light with unrelenting insomnia and pain, fog, loss of interests....<p>12/20/14 - .8mg. 1/01/15 - .75 mg. 1/15/15 - .42 mg. better sleep now, hope it continues... 2/11-15 - .25 mg. doing really good!! 2 weeks feel 85% of old me! 3/17/15 .14 mg. Knee pain bad! 4/07/15 .05 mg. this is so small now that I am estimating and just licking it off palm small as a "." 4/13/15 NOTHING !!!! Took my last little micro dose on 4/12/15. Link to comment
Moderator Emeritus Fresh Posted November 14, 2015 Moderator Emeritus Share Posted November 14, 2015 Haha , excellent news. Perhaps you could add it to one of the pssd threads. 1987-1997 pertofran , prothiaden , Prozac 1997-2002 Zoloft 2002-2004 effexor 2004-2010 Lexapro 40mg 2010-2012Cymbalta 120mg Sept. 2012 -decreased 90mg in 6months. Care taken over by Dr Lucire in March 2013 , decreased last 30mg at 2mg per week over 3 months. July 21 , 2013- last dose of Cymbalta Protracted withdrawal syndrome kicked in badly Jan.2014 Unrelenting akathisia until May 2014. Voluntary hosp. admission. Cocktail of Seroquel, Ativan and mirtazapine and I was well enough to go home after 14 days. Stopped all hosp. meds in next few months. July 2014 felt v.depressed - couldn't stop crying. Started pristiq 50mg. Felt improvement within days and continued to improve, so stayed on 50mg for 8 months. Began taper 28 Feb. 2015. Pristiq 50mg down to 45mg. Had one month of w/d symptoms. Started CES therapy in March. No w/d symptoms down to 30mg. October 2015 , taking 25mg Pristiq. Capsules compounded with slow-release additive. March 2016 , 21mg Link to comment
IHadPassion Posted November 15, 2015 Share Posted November 15, 2015 Yeah, I feel the same. Paxil definitely masked my floxing symptoms for awhile but as soon as I got off the AD, they came back in full force. Docs initially diagnosed me with muscular dystrophy until I told them I had been given Avelox for a sinus infection a few years back and noticed a significant change in my physical health thereafter. Year 0: Social anxiety, obsessive thoughts, NO depression, NO suicidal ideations Years 1-2: Ativan (benzo) <1mg as needed, not abused but developed physical dependence Years 2-3: Paxil (20mg) augmented with Adderall XR (10-20mg) due to withdrawal from Ativan Years 3-Present: Severe depression, headaches, psychiatric hospitalization, lost job, etc. Link to comment
Moderator Emeritus JanCarol Posted November 27, 2015 Moderator Emeritus Share Posted November 27, 2015 Hey DLB, wow! What a journey, and it looks like we're going to get a happy ending, too! That's huge, great news about the PSSD, and as a mod, I'm relieved at how you described it (PSSD descriptions can often be so, well, you know, TMI?) First I selfishly wanted to ask you about: autoimmune disease which no one in my family has called psoriatic arthritis My husband has this. It seems to be confined to his hands. He takes a not-an-NSAID-NSAID called "sulfasalazine" and has done so for about 5 years. Drugs.com says it's a "salicylate" I mention it because different countries sometimes prescribe in different directions. I worry about him taking it - but when I look I have yet to find horror stories about it. Just the usual, "It's a drug, be careful." But he's on the stuff "for life," or until it stops working. That scares me too. BUT - that said, it sounds less scary than what you were on? Are you still on it? Is that also a leukemia drug, to suppress the immune system? How is that going for you? Is this managed by a rheumatologist (that's what hubby has)? Or is it an Immunologist? Then you mention: now I have minor psoriasis too as well as eczema. And I've wondered this about hubby too. And here's what else I've wondered. What is the connection between psoriatic arthritis and psoriasis? Hubby doesn't have psoriasis officially, but has always had to use special soaps and hair cleaners or he goes all nasty. There is a good connection between Vit D deficiency and psoriasis, and daily, topical Vitamin D - cannot be had in a cream - but squeezing capsules onto your skin - gets awesome results. Dr. Michael Holick tried to get the dermatologists to use it, but they'd be out of a job. He tried to get manufacturers to put it in easy to use cream, but his ideas were rejected. He got excellent results, and it felt criminal that he couldn't get this product to patients. But - conveniently, it's easy to make your own Vit D cream. Just to be sure, I've got hubby on 5,000 iu Vit D daily - it has not changed his skin. It has not changed his psoriatic arthritis, which is in total remission on the sulfasalazine. BECAUSE it is in total remission on the sulfasalazine, he would not quit that drug unless it was essential to saving his life. He's a musician, and the pain in his hands was remarkable - he's a bloke, and doesn't usually complain unless it is important. I'll be curious to hear your thoughts on these things. Sorry for being selfish right out of the gate.... Your next set of interesting comments are around diet: I do try, and i even bought sime gluten free snacks recently Blech, nasty, huh? Some of those things are shocking! and: I do notice more pain after eating potatoes so there may be something to it. Ah. Ha. That's not a gluten thing, that's more likely to be a histamine thing. GiaK of Beyond Meds talks about low histamine issues and the advantage of low histamine is it's not an elimination diet. You can have the forbidden foods, but you keep them under "inflammatory" levels. You need histamine, to a point. They call it the Histamine Bowl. You try and keep the bowl under full - when the bowl fills up, the symptoms spill over the side. So you don't NOT eat histamine, you eat low histamine. So few or no forbidden foods - once you have reduced your histamines enough to reduce symptoms. http://beyondmeds.com/2013/02/25/a-mini-histamine-intolerance/ I'm guessing from your thread that the gluten thing was short lived? I'm now terrified of wheat after now 5 years of IBS. And cheese. And I'm looking sidelong at histamines, now, too. Hmmm. I felt good before dinner, but then - had potatoes. Guess I need to walk the talk! Good to meet you DLB, I hope you see the sun today! "Easy, easy - just go easy and you'll finish." - Hawaiian Kapuna Holding is hard work, holding is a blessing. Give your brain time to heal before you try again. My suggestions are not medical advice, you are in charge of your own medical choices. A lifetime of being prescribed antidepressants that caused problems (30 years in total). At age 35 flipped to "bipolar," but was not diagnosed for 5 years. Started my journey in Midwest United States. Crossed the Pacific for love and hope; currently living in Australia. CT Seroquel 25 mg some time in 2013. Tapered Reboxetine 4 mg Oct 2013 to Sept 2014 = GONE (3 years on Reboxetine). Tapered Lithium 900 to 475 MG (alternating with the SNRI) Jan 2014 - Nov 2014, tapered Lithium 475 mg Jan 2015 - Feb 2016 = GONE (10 years on Lithium). Many mistakes in dry cutting dosages were made. The tedious thread (my intro): JanCarol ☼ Reboxetine first, then Lithium The happy thread (my success story): JanCarol - Undiagnosed Off all bipolar drugs My own blog: https://shamanexplorations.com/shamans-blog/ I have been psych drug FREE since 1 Feb 2016! Link to comment
DLB Posted November 30, 2015 Author Share Posted November 30, 2015 Hi Jan , I had stopped the methotrexate due to developing a nasty cough that lasted 15 weeks. It is a chemotherapy drug used for breast cancer and leukemia and believe it or not , abortions real nasty stuff but it was working. Funny you should mention sulfasalazine, I had mentioned it to my rhumatologist because of course I now research everything before taking it. Apparently it doesn't work most of the time but he prescribed it to me almost three months ago and pharmacy never received the electronic prescription , I was feeling a lot better with my own natural remedies so I never pursued it. I do have an appointment in a few weeks with him and will ask again. Apparently it is a sulfa antibiotic with basically really strong aspirin too and like anything else they don know why it works. After that I have no choice but humira or embrel and am scared to death of taking that crap so I'm holding out as long as I can. In the meantime what is working somewhat for me now is LOTS of probiotics ( 3 times per day) huge amounts of turmeric ( curcumin) and I take 5000iu vitamin d3 per day, biotin, astataxin, lots of fish oil, folic acid. As for a vitamin d cream we have it here by prescription it is called a vitamin d analog. I haven't tried it yet because the only place I have psoriasis is under 2 toenails. So weird, I NEVER had low vitamin d and on my physical exam 2 years ago it started going low at the same time poop out and arthritis hit me. My arthritis is called enthesitis and my joints are fine but it is attacking muscle and ligaments and tendons, something usually only found with psoriatic arthritis. Done with gluten free. I understand the bowl thing about histamine thanks for that, it makes sense. Thanks for stopping by and keep in touch. Paxil start September 2003 due to Fluoroquinolone adverse reaction that I wish doc. knew what it was. 10mg. most of the time with a few short runs of 20mg. FAST tapered 3 times and finally hit poop out or a reaction to nsaid's in Nov.2013. Started a 10% taper Jan. 2014 and have been ok until Sept 14 and went through a short hell. Now plodding through and looking for the light with unrelenting insomnia and pain, fog, loss of interests....<p>12/20/14 - .8mg. 1/01/15 - .75 mg. 1/15/15 - .42 mg. better sleep now, hope it continues... 2/11-15 - .25 mg. doing really good!! 2 weeks feel 85% of old me! 3/17/15 .14 mg. Knee pain bad! 4/07/15 .05 mg. this is so small now that I am estimating and just licking it off palm small as a "." 4/13/15 NOTHING !!!! Took my last little micro dose on 4/12/15. Link to comment
Moderator Emeritus JanCarol Posted November 30, 2015 Moderator Emeritus Share Posted November 30, 2015 Thanks for letting me know how you are going. Yes, hubby said the sulfasalazine doesn't always work but when it works, it works well, and - get this - docs admit they don't know WHY it works, either. It's a weird one. Hmm. What a GP calls low Vit D, and what naturopaths do - might be two different things. The "target range" for hubby & me is 60-80 ng/ml. Usually a normal GP thinks if you are over 35 ng/ml, you are "fine," but there are a number of subclinical conditions (such as pain, headaches, etc.) that can be manifesting at that "normal" levels. SO AMAZING that the dot of Paxil is gone for you! WELL DONE, you! And well done for managing your thing without drugs! You may find that with histamine diet, your "condition" may clear up. Monica's page has a bunch of information and stories - she thought she had an autoimmune disorder too, but it was repaired, healed, and reversed with diet. Now, if only I could walk the talk! "Easy, easy - just go easy and you'll finish." - Hawaiian Kapuna Holding is hard work, holding is a blessing. Give your brain time to heal before you try again. My suggestions are not medical advice, you are in charge of your own medical choices. A lifetime of being prescribed antidepressants that caused problems (30 years in total). At age 35 flipped to "bipolar," but was not diagnosed for 5 years. Started my journey in Midwest United States. Crossed the Pacific for love and hope; currently living in Australia. CT Seroquel 25 mg some time in 2013. Tapered Reboxetine 4 mg Oct 2013 to Sept 2014 = GONE (3 years on Reboxetine). Tapered Lithium 900 to 475 MG (alternating with the SNRI) Jan 2014 - Nov 2014, tapered Lithium 475 mg Jan 2015 - Feb 2016 = GONE (10 years on Lithium). Many mistakes in dry cutting dosages were made. The tedious thread (my intro): JanCarol ☼ Reboxetine first, then Lithium The happy thread (my success story): JanCarol - Undiagnosed Off all bipolar drugs My own blog: https://shamanexplorations.com/shamans-blog/ I have been psych drug FREE since 1 Feb 2016! Link to comment
DLB Posted March 12, 2016 Author Share Posted March 12, 2016 Ugh,coming up on a year off next month and haven't had a good week and last night was real bad. Getting constant ruminating thoughts , terrible sleep, wake hourly and get 3-4 hours max. sleep, lots of anxiety and jumping at the slightest sounds. I actually felt this coming on and seen where it was going and it just got worse. This hasn't happened in months. Also got the forehead sensation back again and I just keep looking up symptoms again and ruminating. It is possible that when I read about Mapleafgirl having problems 20 months out (hope she is doing better) that it set me off and got me thinking about this again and set off this wave. At the same time I did get a nasty chest infection too, so that might have something to do with it, but that is gone for a week now. Hope I can snap out of this soon... Paxil start September 2003 due to Fluoroquinolone adverse reaction that I wish doc. knew what it was. 10mg. most of the time with a few short runs of 20mg. FAST tapered 3 times and finally hit poop out or a reaction to nsaid's in Nov.2013. Started a 10% taper Jan. 2014 and have been ok until Sept 14 and went through a short hell. Now plodding through and looking for the light with unrelenting insomnia and pain, fog, loss of interests....<p>12/20/14 - .8mg. 1/01/15 - .75 mg. 1/15/15 - .42 mg. better sleep now, hope it continues... 2/11-15 - .25 mg. doing really good!! 2 weeks feel 85% of old me! 3/17/15 .14 mg. Knee pain bad! 4/07/15 .05 mg. this is so small now that I am estimating and just licking it off palm small as a "." 4/13/15 NOTHING !!!! Took my last little micro dose on 4/12/15. Link to comment
Junglechicken Posted March 12, 2016 Share Posted March 12, 2016 Ugh,coming up on a year off next month and haven't had a good week and last night was real bad. Getting constant ruminating thoughts , terrible sleep, wake hourly and get 3-4 hours max. sleep, lots of anxiety and jumping at the slightest sounds. I actually felt this coming on and seen where it was going and it just got worse. This hasn't happened in months. Also got the forehead sensation back again and I just keep looking up symptoms again and ruminating. It is possible that when I read about Mapleafgirl having problems 20 months out (hope she is doing better) that it set me off and got me thinking about this again and set off this wave. At the same time I did get a nasty chest infection too, so that might have something to do with it, but that is gone for a week now. Hope I can snap out of this soon... Hi DLB, A chest infection in February set off a wave for me as well. I am still in the wave and praying for it to pass. Hang in there and congrats on winning through coming off the ADs. JC Dose History: 19 Feb 2014 - Escitalopram 10mg daily June 2015 - Started taper, 5mg every other day July 2015 - 5mg every 2 days August 2015 - 5mg every 3 days September 2015 - 5mg every 4 days Sept 14th - Completed tapering, but at 7 weeks "drug free" I suffered serious WD symptoms as a consequence of "incorrect" tapering. Nov 25 2015 - Re-instated Cipralex @ 2.5mg daily. WD symptoms faded. Held at this dose and experienced "windows and waves". 12 Oct 2017 Reduced dose to 1.25mg. 13 Mar 2018 Reduced dose to 0.625mg (approx.). 16 April 2018 0mg. Windows and waves triggered by stress (IBS/reflux, headaches, sinus issues) Aug 2019 Mirena coil fitted 6 Jan 2020 MAJOR Wave hit 19 months following last dose (protracted WD). Symptoms listed below Mar 2020 Mirena coil removal. Therapy: Nov 15th 2016 Re-started therapy Jan 19th 2017 Started CBT Dec 2017 Started listening to Hypnotherapy CD (self-esteem). Nov 2019 Started couples therapy. Supplements: "Bioglan" Biotic Balance Ultimate Flora 10 billion CFU, live Bacteria, Probiotic, suitable for Vegetarians, with Lactobacillus Acidophilus, Lactobacillus Rhamnosus, Bifidobacterium Longum. "Pukka" Vitalise a unique blend of 30 energising botanicals. Diet: 16 April 2018 Detox cleanse / anti-candida for 90 days. Jan 2020 Started "small plate" diet (i.e child size portions). Exercise: Stretching, Yoga, Pilates, Spinning, Elliptical/upper body workout, walking. Medical Test Results: 4 Jan 2017 Homeopathic Treatment starts 24 Feb 2017 Started weight loss program 24 Mar 2017 Naturopathic Treatment + anti-Candida diet started due to suspected Candida Related Complex (CRC). DETOXED for 7 weeks to "re-set" gut. April 2017 "Genova Diagnostics" Comprehensive Stool Analysis NEGATIVE; Full Blood Count (Normal) / Blood Cholesterol: 5.6 (Borderline) / Blood Sugar (Normal) / 28 Jun 2017 FSH 8.2 / 14 Nov 2017 FSH 17.7 Dec 2017 Blood Cholesterol: 3.9 (Normal) / Kidney Function (Normal) / Blood Sugar (Normal). December 2017 "Genova Diagnostics" Food panel allergy (bloodwork) analysis - a few "VERY LOW/VL" allergens; Mar 2018 "Genova Diagnostics" SIBO urine analysis: High Level of Yeast/fungal markers found in small intestine but NO SIBO. April 2018 Thyroid (Normal) / Full Blood Count (Normal) / FSH (Normal). 16 April 2018 Started anti-Candida diet - 3 month protocol. 25 March 2020 All test results "Normal". CRP" 5 mg/L (normal range to 0-5 mg/L). Symptoms: Flu-like symptoms, anxiety, anhedonia, sinus headaches right-side (severe), IBS issues/reflux (severe)**, tinnitus, fatigue, inner tremor, nausea, chills/hot flushes, pounding heart, muscular issues including stiff left hip flexor, intense anger, PSSD (ongoing). **Histhamine intolerance (suspected). Major Life Events: Re-located to UK from Canada: Jan 2016 My father died: 5:05pm, Monday 5 Feb 2018 Last Lexapro dose: 16 April 2018 (its now been over a year since I quit ADs) Moved house: Friday 23rd February 2018 "Divorced" toxic Mother: Monday 26 March 2018 Starting working again: 19 November 2018 Diagnosed with: 5th August 2021 PTSD/C-PTSD Diagnosed with: March 2022 Interstitial Cystitis (IC)/Painful bladder syndrome Link to comment
DLB Posted March 12, 2016 Author Share Posted March 12, 2016 Thanks Jungle, i forced myself out today and threw a frisbee and some baseball for my son and was kind of ok but real weak. Got this real bad sinus and ear thing going now, feels stuffed bad but there is nothing there. Ive been over the chest thing for 2 weeks now. My head just don't feel right... Paxil start September 2003 due to Fluoroquinolone adverse reaction that I wish doc. knew what it was. 10mg. most of the time with a few short runs of 20mg. FAST tapered 3 times and finally hit poop out or a reaction to nsaid's in Nov.2013. Started a 10% taper Jan. 2014 and have been ok until Sept 14 and went through a short hell. Now plodding through and looking for the light with unrelenting insomnia and pain, fog, loss of interests....<p>12/20/14 - .8mg. 1/01/15 - .75 mg. 1/15/15 - .42 mg. better sleep now, hope it continues... 2/11-15 - .25 mg. doing really good!! 2 weeks feel 85% of old me! 3/17/15 .14 mg. Knee pain bad! 4/07/15 .05 mg. this is so small now that I am estimating and just licking it off palm small as a "." 4/13/15 NOTHING !!!! Took my last little micro dose on 4/12/15. Link to comment
aberdeen Posted March 13, 2016 Share Posted March 13, 2016 Hang in there DLB, you've been doing great. being sick seems to bring on waves for all of us who are still in this thing, still in recovery mode. It will pass. I had the flu and it brought on awful depression and DR again...and within a couple of weeks I felt it pass. 2 Timothy 1-7 For God hath not given us the spirit of fear; but of power, and of love, and of a sound mind. Effexor 75mg to 262.5mg 2005-2010 for post partum depression Started having poop out mid 2010, also switched generic brands, then crashed in Dec 2010 (anxiety/ "terror", intense DR, anhedonia, suicidal ideation, chills, insomnia, horrible intrusive thoughts, disorientation, ect)Rapid "tapered" from 262.5mg Effexor in 3 months Tried Celexa,Cipralex, then Paxil to deal with wd(this switching made things worse and added akathesia) Found online support and started tapering Paxil 7 months after quitting Effexor (at this point was having small windows). Paxil taper: dropped 10% every 4-8 weeks Year 1 October 2011 to Nov 2012 20mg to 10mg Year 2 March 2013 to Feb 2014 10mg to 4mg Year 3 April 2014 to May 2015 4mg to 1.1mg Year 4 June 2015 1.1mg , dropping by 10% until .5mg, after then dropped by 0.1mg every 5 weeks until 0.1mg. Finished! Official last dose of 0.1mg on June 15/16 Link to comment
Dawes1b Posted March 17, 2016 Share Posted March 17, 2016 DLB Are you able to get out? To exercise? Does that help insomnia ? Do you get the usual 4 hours of sleep many coming off long term ssri/snri get? thanks 1997 - 2002 20 mg Paxil, 750 mg Depakote2002 - 2005 10 mg Lexapro, 750 mg Depakote2005 - 2014 10 mg Citalopram,750 mg Depakote1/2014 - 1/2015 `10 mg Citalopram, 500 mg Depakote1/2015 - 8/2015 5 mg Citalopram 300 mg Lithium (no more Depakote)8/2015 - today 0 mg Citalopram 300 mg LithiumAlso added to 300 mg Lithium9/2015 - 1/2016 titrate from 0 to 100 mg Lamictal (Lamotrigene)1/2016 - May 7 100 mg Lamictal and 300 mg Lithium. Get about 4 hours broken sleep. Also depression, akathisia that is somewhat reduced by Lamictal.June 1, 2016 relapse back citalopram 20 mgJuly 1. 0 mg Lithium Sept, 2016 back on 300 mg lithium, still on 100 mg Lamictal, 20 mg citalopram Nov 6, 2015: Lamictal (Lamotrigne) reduced from 100 mg to 75 mg. Sleep seems to have improved due to lower Lamotrigene. Link to comment
DLB Posted April 12, 2016 Author Share Posted April 12, 2016 Off of this crap 1 YEAR today and thank God that last wave didn't last too long and i have come out sleeping a little better. I can tell you all that,even though there are some crappy times, it does get better. I still have weird sleep but for the most part it is 5-6 hours a night and mostly getting up at 4-4:30. Still anhedonic to some degree but still push throuh it. Been laughing more lately. Still some pssd issues or my age is just catching up with me. Still have muscle issues and weakness, they seem like they are very stiff all the time and sore but every now and then i can have a good day with the muscle issues. The forehead pressure seems to have abated with the ending of that last wave last month. Hang in there everyone, that light that was flickering in the distance of that long dark tunnel a year and a half ago is closer and brighter for me now and it can be for all of us. Paxil start September 2003 due to Fluoroquinolone adverse reaction that I wish doc. knew what it was. 10mg. most of the time with a few short runs of 20mg. FAST tapered 3 times and finally hit poop out or a reaction to nsaid's in Nov.2013. Started a 10% taper Jan. 2014 and have been ok until Sept 14 and went through a short hell. Now plodding through and looking for the light with unrelenting insomnia and pain, fog, loss of interests....<p>12/20/14 - .8mg. 1/01/15 - .75 mg. 1/15/15 - .42 mg. better sleep now, hope it continues... 2/11-15 - .25 mg. doing really good!! 2 weeks feel 85% of old me! 3/17/15 .14 mg. Knee pain bad! 4/07/15 .05 mg. this is so small now that I am estimating and just licking it off palm small as a "." 4/13/15 NOTHING !!!! Took my last little micro dose on 4/12/15. Link to comment
Moderator Emeritus Fresh Posted April 12, 2016 Moderator Emeritus Share Posted April 12, 2016 Happy anniversary DLB ... winner!! 1987-1997 pertofran , prothiaden , Prozac 1997-2002 Zoloft 2002-2004 effexor 2004-2010 Lexapro 40mg 2010-2012Cymbalta 120mg Sept. 2012 -decreased 90mg in 6months. Care taken over by Dr Lucire in March 2013 , decreased last 30mg at 2mg per week over 3 months. July 21 , 2013- last dose of Cymbalta Protracted withdrawal syndrome kicked in badly Jan.2014 Unrelenting akathisia until May 2014. Voluntary hosp. admission. Cocktail of Seroquel, Ativan and mirtazapine and I was well enough to go home after 14 days. Stopped all hosp. meds in next few months. July 2014 felt v.depressed - couldn't stop crying. Started pristiq 50mg. Felt improvement within days and continued to improve, so stayed on 50mg for 8 months. Began taper 28 Feb. 2015. Pristiq 50mg down to 45mg. Had one month of w/d symptoms. Started CES therapy in March. No w/d symptoms down to 30mg. October 2015 , taking 25mg Pristiq. Capsules compounded with slow-release additive. March 2016 , 21mg Link to comment
DLB Posted April 12, 2016 Author Share Posted April 12, 2016 Thanks Fresh!! Paxil start September 2003 due to Fluoroquinolone adverse reaction that I wish doc. knew what it was. 10mg. most of the time with a few short runs of 20mg. FAST tapered 3 times and finally hit poop out or a reaction to nsaid's in Nov.2013. Started a 10% taper Jan. 2014 and have been ok until Sept 14 and went through a short hell. Now plodding through and looking for the light with unrelenting insomnia and pain, fog, loss of interests....<p>12/20/14 - .8mg. 1/01/15 - .75 mg. 1/15/15 - .42 mg. better sleep now, hope it continues... 2/11-15 - .25 mg. doing really good!! 2 weeks feel 85% of old me! 3/17/15 .14 mg. Knee pain bad! 4/07/15 .05 mg. this is so small now that I am estimating and just licking it off palm small as a "." 4/13/15 NOTHING !!!! Took my last little micro dose on 4/12/15. Link to comment
Moderator brassmonkey Posted April 12, 2016 Moderator Share Posted April 12, 2016 Congratulations on making your year off. It sounds like things are getting better and better. I'm so excited for you. 20 years on Paxil starting at 20mg and working up to 40mg. Sept 2011 started 10% every 6 weeks taper (2.5% every week for 4 weeks then hold for 2 additional weeks), currently at 7.9mg. Oct 2011 CTed 15oz vodka a night, to only drinking 2 beers most nights, totally sober Feb 2013. Since I wrote this I have continued to decrease my dose by 10% every 6 weeks (2.5% every week for 4 weeks and then hold for an additional 2 weeks). I added in an extra 6 week hold when I hit 10mg to let things settle out even more. When I hit 3mgpw it became hard to split the drop into 4 parts so I switched to dropping 1mgpw (pill weight) every week for 3 weeks and then holding for another 3 weeks. The 3 + 3 schedule turned out to be too harsh so I cut back to dropping 1mgpw every 4 weeks which is working better. Final Dose 0.016mg. Current dose 0.000mg 04-15-2017 "It's also important not to become angry, no matter how difficult life is, because you can loose all hope if you can't laugh at yourself and at life in general." Stephen Hawking Link to comment
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